Re: (unknown)

February 13, 2002

Becky I certainly understand what you mean about

the normies... personally I take offense when

people try and call me normal.. I'm not.. and I

know it.. and I take pride in that... but with

the bipolar.. and the fibro? Your right.. most

normal people just don't understand.. or want to

if they could... there are a few exceptions...

but very few....

hang in there hon.. thankfully i've met a few

online friends F2F... and they are still my

friends... but I don't have any friends that I

met completely offline ... well.. one.. but he

doesnt count.. hes as unnormal as i am

Serena

__________________________________________________

February 17, 2002

> At 11:30 AM 02/17/2002 -0800, Darrell wrote:

There wasn't a name here but I'm thinking Peg -- anyway, welcome to the

list, Peg! Hope you find it a good source of information and support.

Best,

Em

~~~~~~~~~~~~~

Live as if you were to die tomorrow.

Learn as if you were to live forever.

(Gandhi)

Catapultam habeo. Nisi pecuniam

omnem mihi dabis, ad caput tuum

saxum immane mittam.

~~~~~~~~~~~~~

February 17, 2002

Hi Em,

Thanks for the welcome andd that's fine to call me Peg. I was wondering if you

had any info on Fibromyalgia and pregnancy. This is a concern because my husband

and I are thinking about having a child. I worried because the last 2 years have

been so hard physically and mentally (not knowing what was wrong). I'm sure

there have been women with Fibromyalgia that have had this experience.

Thanks for your help!!!!!!

Peg

issa@... wrote: > At 11:30 AM 02/17/2002 -0800, Darrell wrote:

There wasn't a name here but I'm thinking Peg -- anyway, welcome to the

list, Peg! Hope you find it a good source of information and support.

Best,

Em

~~~~~~~~~~~~~

Live as if you were to die tomorrow.

Learn as if you were to live forever.

(Gandhi)

Catapultam habeo. Nisi pecuniam

omnem mihi dabis, ad caput tuum

saxum immane mittam.

~~~~~~~~~~~~~

February 18, 2002

Some have found certain foods causes problems with CFS or Fibro, have

you?

I have found out that when I do eat something with sugar that my tinnitus and

my fibro gets worse.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman.

February 20, 2002

> > Some have found certain foods causes problems with

> CFS

> or Fibro, have

> you?

>

> I just stopped drinking caffeine. It is too early

> for

> me to know. I am open to suggestions on this

> subject

> as I want to know more.

Why did you stop drinking it? For the fatigue factor

or for the pain factor? Just curious. I attempted to

cut the caffine and sugar out and my fatigue lessened

considerably. However, I am addicted so I have to

ween myself off, but I have noticed a difference.

=====

**Liz Kelso**

" A nice pickle we have landed ourselves in, Mr. Frodo! " -- Samwise Gamgee.

__________________________________________________

February 20, 2002

> > Some have found certain foods causes problems with

> CFS

> or Fibro, have

> you?

>

> I just stopped drinking caffeine. It is too early

> for

> me to know. I am open to suggestions on this

> subject

> as I want to know more.

Why did you stop drinking it? For the fatigue factor

or for the pain factor? Just curious. I attempted to

cut the caffine and sugar out and my fatigue lessened

considerably. However, I am addicted so I have to

ween myself off, but I have noticed a difference.

=====

**Liz Kelso**

" A nice pickle we have landed ourselves in, Mr. Frodo! " -- Samwise Gamgee.

__________________________________________________

February 20, 2002

I know this doesn't make YOU feel any better but it's nice to know that I'm not

the only one losing her hair. So far no doctor has figured out why it's falling

out...it just is. Don't you just love those answers???

anne

(unknown)

Age range:36

Male/female:Female

What are the symptoms?

Chronic Pain, Fatigue, dizziness, irritable bowel,

difficulty sleeping at night, stiff, night sweats, ear

ringing and or hard to hear, hair loss, depression,

anxiety and tingling of hands, feet and mouth and

chin.

Has you illness been diagnosed? Yes

How long did you suffer before you got help?

I have been in chronic pain in my neck and back since

my car accident in 1992. The pain has spread the

fatigue and other symptoms has come in the past year

and half. Everything has gotten worse in the past six

months.

Is there a time that you can remember when it started?

Possibly my car accident in 92. I have had a lot of

stress and trauma in my life for the past two years..

maybe it aggravated it??

Some of us have found lack of exercise we are

overweight. Have you

found this to be a problem also?

Absolutely!!! I have gained 40 pounds in the past two

years.

Are you on disability? No

If you are any pointers for others trying to get on

disability?

What have you found that helps ease the pain, warm

baths, medications

etc.?

I take a lot of warm baths and have for a couple of

years. I discovered way before I was diagnosed that

it was one of the only things that made me feel

better. Recently I have gotten a couple heating pads,

one for home and one for work and they are helping.

The Dr. has put me on three anti-depressants and they

do seem to be helping. I was diagnosed with

depression three weeks before my FMS diagnosis so I

was already on the meds and was already starting to

feel better when I saw the DR about my physical pain.

Do you have sleep problems? How do you deal with it?

Yes! I just started on a new anti depressant to help

me sleep. I took my first pill last night and had the

first uninterrupted night of sleep in a very long

time. I have been exhausted today anyway and don't

know if it is the FMS or the new meds.

Do you have family that understands your illness?

My husband, daughter and mother are being very

supportive.

Some have found certain foods causes problems with CFS

or Fibro, have

you?

I just stopped drinking caffeine. It is too early for

me to know. I am open to suggestions on this subject

as I want to know more.

What type of Doctor have you found that has helped you

the most?

Reumotoligist

If you want to leave a bio you may go to the groups

page at

www.yahoogroups.com, log in to the file area, and make

a folder. There you can

leave a picture of yourself, be sure to click to

notify the list. You can

also leave a bio by making text file then bio.txt

Post are in text only not html codes.

__________________________________________________

February 20, 2002

I know this doesn't make YOU feel any better but it's nice to know that I'm not

the only one losing her hair. So far no doctor has figured out why it's falling

out...it just is. Don't you just love those answers???

anne

(unknown)

Age range:36

Male/female:Female

What are the symptoms?

Chronic Pain, Fatigue, dizziness, irritable bowel,

difficulty sleeping at night, stiff, night sweats, ear

ringing and or hard to hear, hair loss, depression,

anxiety and tingling of hands, feet and mouth and

chin.

Has you illness been diagnosed? Yes

How long did you suffer before you got help?

I have been in chronic pain in my neck and back since

my car accident in 1992. The pain has spread the

fatigue and other symptoms has come in the past year

and half. Everything has gotten worse in the past six

months.

Is there a time that you can remember when it started?

Possibly my car accident in 92. I have had a lot of

stress and trauma in my life for the past two years..

maybe it aggravated it??

Some of us have found lack of exercise we are

overweight. Have you

found this to be a problem also?

Absolutely!!! I have gained 40 pounds in the past two

years.

Are you on disability? No

If you are any pointers for others trying to get on

disability?

What have you found that helps ease the pain, warm

baths, medications

etc.?

I take a lot of warm baths and have for a couple of

years. I discovered way before I was diagnosed that

it was one of the only things that made me feel

better. Recently I have gotten a couple heating pads,

one for home and one for work and they are helping.

The Dr. has put me on three anti-depressants and they

do seem to be helping. I was diagnosed with

depression three weeks before my FMS diagnosis so I

was already on the meds and was already starting to

feel better when I saw the DR about my physical pain.

Do you have sleep problems? How do you deal with it?

Yes! I just started on a new anti depressant to help

me sleep. I took my first pill last night and had the

first uninterrupted night of sleep in a very long

time. I have been exhausted today anyway and don't

know if it is the FMS or the new meds.

Do you have family that understands your illness?

My husband, daughter and mother are being very

supportive.

Some have found certain foods causes problems with CFS

or Fibro, have

you?

I just stopped drinking caffeine. It is too early for

me to know. I am open to suggestions on this subject

as I want to know more.

What type of Doctor have you found that has helped you

the most?

Reumotoligist

If you want to leave a bio you may go to the groups

page at

www.yahoogroups.com, log in to the file area, and make

a folder. There you can

leave a picture of yourself, be sure to click to

notify the list. You can

also leave a bio by making text file then bio.txt

Post are in text only not html codes.

__________________________________________________

February 20, 2002

Hi Liz,

I have known for a while that I should quit drinking

the lattes. For one the milk messes with my bowels

and I know that caffeine isn't good. I have read in a

couple of books that it makes the symptoms worse. I

would assume they are talking about the fatigue. What

I am realizing though is that I feel even more tired

in the mornings now than I did without the caffeine.

I realize now that I was using the caffeine to get me

going in the morning. I don't know, I am thinking

that maybe I should start with the exercise and

medication and once I am more stabilized, stop the

coffee. I am really having a hard time today and

today is the first day without coffee!

--- Liz Kelso winddancer44@...> wrote:

> > > Some have found certain foods causes problems

> with

> > CFS

> > or Fibro, have

> > you?

> >

> > I just stopped drinking caffeine. It is too early

> > for

> > me to know. I am open to suggestions on this

> > subject

> > as I want to know more.

>

> Why did you stop drinking it? For the fatigue factor

> or for the pain factor? Just curious. I attempted to

> cut the caffine and sugar out and my fatigue

> lessened

> considerably. However, I am addicted so I have to

> ween myself off, but I have noticed a difference.

>

> =====

> **Liz Kelso**

> " A nice pickle we have landed ourselves in, Mr.

> Frodo! " -- Samwise Gamgee.

>

> __________________________________________________

>

February 20, 2002

I know!! I haven't had any DR tell me that it is

related but I have read in a couple of books that it

is a symptom. So, who knows!! All I know is that is

sucks!

Thanks for letting me know that I am not alone!!

H

--- Anne Scarborough annedmj@...> wrote:

> I know this doesn't make YOU feel any better but

> it's nice to know that I'm not the only one losing

> her hair. So far no doctor has figured out why it's

> falling out...it just is. Don't you just love those

> answers???

>

> anne

> (unknown)

>

> Age range:36

>

> Male/female:Female

>

> What are the symptoms?

>

> Chronic Pain, Fatigue, dizziness, irritable bowel,

> difficulty sleeping at night, stiff, night sweats,

> ear

> ringing and or hard to hear, hair loss,

> depression,

> anxiety and tingling of hands, feet and mouth and

> chin.

>

> Has you illness been diagnosed? Yes

>

> How long did you suffer before you got help?

>

> I have been in chronic pain in my neck and back

> since

> my car accident in 1992. The pain has spread the

> fatigue and other symptoms has come in the past

> year

> and half. Everything has gotten worse in the past

> six

> months.

>

> Is there a time that you can remember when it

> started?

>

> Possibly my car accident in 92. I have had a lot

> of

> stress and trauma in my life for the past two

> years..

> maybe it aggravated it??

>

> Some of us have found lack of exercise we are

> overweight. Have you

> found this to be a problem also?

>

> Absolutely!!! I have gained 40 pounds in the past

> two

> years.

>

> Are you on disability? No

>

> If you are any pointers for others trying to get

> on

> disability?

>

> What have you found that helps ease the pain, warm

> baths, medications

> etc.?

>

> I take a lot of warm baths and have for a couple

> of

> years. I discovered way before I was diagnosed

> that

> it was one of the only things that made me feel

> better. Recently I have gotten a couple heating

> pads,

> one for home and one for work and they are

> helping.

> The Dr. has put me on three anti-depressants and

> they

> do seem to be helping. I was diagnosed with

> depression three weeks before my FMS diagnosis so

> I

> was already on the meds and was already starting

> to

> feel better when I saw the DR about my physical

> pain.

>

> Do you have sleep problems? How do you deal with

> it?

>

> Yes! I just started on a new anti depressant to

> help

> me sleep. I took my first pill last night and had

> the

> first uninterrupted night of sleep in a very long

> time. I have been exhausted today anyway and

> don't

> know if it is the FMS or the new meds.

>

> Do you have family that understands your illness?

>

> My husband, daughter and mother are being very

> supportive.

>

> Some have found certain foods causes problems with

> CFS

> or Fibro, have

> you?

>

> I just stopped drinking caffeine. It is too early

> for

> me to know. I am open to suggestions on this

> subject

> as I want to know more.

>

> What type of Doctor have you found that has helped

> you

> the most?

>

> Reumotoligist

>

> If you want to leave a bio you may go to the

> groups

> page at

> www.yahoogroups.com, log in to the file area, and

> make

> a folder. There you can

> leave a picture of yourself, be sure to click to

> notify the list. You can

> also leave a bio by making text file then bio.txt

> Post are in text only not html codes.

>

> __________________________________________________

>

February 20, 2002

I know!! I haven't had any DR tell me that it is

related but I have read in a couple of books that it

is a symptom. So, who knows!! All I know is that is

sucks!

Thanks for letting me know that I am not alone!!

H

--- Anne Scarborough annedmj@...> wrote:

> I know this doesn't make YOU feel any better but

> it's nice to know that I'm not the only one losing

> her hair. So far no doctor has figured out why it's

> falling out...it just is. Don't you just love those

> answers???

>

> anne

> (unknown)

>

> Age range:36

>

> Male/female:Female

>

> What are the symptoms?

>

> Chronic Pain, Fatigue, dizziness, irritable bowel,

> difficulty sleeping at night, stiff, night sweats,

> ear

> ringing and or hard to hear, hair loss,

> depression,

> anxiety and tingling of hands, feet and mouth and

> chin.

>

> Has you illness been diagnosed? Yes

>

> How long did you suffer before you got help?

>

> I have been in chronic pain in my neck and back

> since

> my car accident in 1992. The pain has spread the

> fatigue and other symptoms has come in the past

> year

> and half. Everything has gotten worse in the past

> six

> months.

>

> Is there a time that you can remember when it

> started?

>

> Possibly my car accident in 92. I have had a lot

> of

> stress and trauma in my life for the past two

> years..

> maybe it aggravated it??

>

> Some of us have found lack of exercise we are

> overweight. Have you

> found this to be a problem also?

>

> Absolutely!!! I have gained 40 pounds in the past

> two

> years.

>

> Are you on disability? No

>

> If you are any pointers for others trying to get

> on

> disability?

>

> What have you found that helps ease the pain, warm

> baths, medications

> etc.?

>

> I take a lot of warm baths and have for a couple

> of

> years. I discovered way before I was diagnosed

> that

> it was one of the only things that made me feel

> better. Recently I have gotten a couple heating

> pads,

> one for home and one for work and they are

> helping.

> The Dr. has put me on three anti-depressants and

> they

> do seem to be helping. I was diagnosed with

> depression three weeks before my FMS diagnosis so

> I

> was already on the meds and was already starting

> to

> feel better when I saw the DR about my physical

> pain.

>

> Do you have sleep problems? How do you deal with

> it?

>

> Yes! I just started on a new anti depressant to

> help

> me sleep. I took my first pill last night and had

> the

> first uninterrupted night of sleep in a very long

> time. I have been exhausted today anyway and

> don't

> know if it is the FMS or the new meds.

>

> Do you have family that understands your illness?

>

> My husband, daughter and mother are being very

> supportive.

>

> Some have found certain foods causes problems with

> CFS

> or Fibro, have

> you?

>

> I just stopped drinking caffeine. It is too early

> for

> me to know. I am open to suggestions on this

> subject

> as I want to know more.

>

> What type of Doctor have you found that has helped

> you

> the most?

>

> Reumotoligist

>

> If you want to leave a bio you may go to the

> groups

> page at

> www.yahoogroups.com, log in to the file area, and

> make

> a folder. There you can

> leave a picture of yourself, be sure to click to

> notify the list. You can

> also leave a bio by making text file then bio.txt

> Post are in text only not html codes.

>

> __________________________________________________

>

February 21, 2002

avocawicklow wrote:

>

> The books say that this disease isn't progressive, but

> as I read the stories of people it seems to me that it

> does get worse. Any thought on this? Should I expect

> that my symptoms will be what I have been dealing

> with, and hopefully better with exercise, eating

> better and medication?

Officially, fibro is *not* progressive, but you'll find that for a lot

of people it is. I have a good friend with fibro and hers hasn't gotten

any worse in 20 years. I did get worse. For some people, eliminating

certain items such as diary, sugar, caffeine, meat, artificial

sweeteners out of their diets is a huge help. They don't necessarily

get rid of all of them. You may find out that eliminating any of those

items doesn't make you feel any better. I don't notice feeling better

if I don't eat those foods. Eating decently is important for everyone,

so you should definitely try to eat healthier foods. That isn't to say

that you can't have a twinkie (if you find sugar doesn't bother you),

just have the twinkie as dessert and not as the main course. Exercise

should help you to feel better unless you're part of the small group of

people (as I am) who can not exercise without going into a flare. Start

*really* slowly, and work up slowly. You'll probably eventually hit a

wall where if you do more than xyz worth of exercise, you'll flare.

Everyone is different as to where that wall is.

>

> Also, what do you think of using medication ie anti

> depressants vs trying to go the natural route? Right

> now I am on three different anti depressants and a

> anti inflamitory and they seem to be helping.

My rule is if it helps you, stay with it. I fought being on

antidepressant for depression, and now that I'm on them, I'm much

happier. Some people can go a more natural route, but most of us need

the assistance of some kind of drugs.

> I have

> started walking five days a week, am seeing my

> therapist, and started drinking decafinated lattes.

> (This is killing me!) I know as time goes on I will

> have to back on sugar as well but I have to take it

> one thing at a time. I thought getting into an

> exercise program and quite the coffee is the best way

> to start. Anyway, any feed back on meds vs natural

> would be helpful..

My advice is to start slowly with any changes. It gives you a better

chance to really notice whether giving up something or starting

something is helping or not making a difference. It wouldn't hurt to

run a little log of your symptoms and when you change something so you

can clearly see if you're being helped or not.

Darcy

February 24, 2002

Peg writes,

> Sorry about the previous blank e-mail I sent, Having a hard time for the

> past couple days. Spasms are at there max, my right arm feels like jello,

> cant grasp anything or hold it. Has anyone experienced this symptom? Typing

> with left hand only. i went to wipe my runny nose and couldn't lift it up

> to my face...will call the doc tomorrow if it continues. Sleepless nights,

> my fiance sad i was crying in my sleep, most likely from pain. em remember

> how the pregnancy issue came up? well i think i have my ansrew.. Sorry for

> the caps, finger pecking my way thru this message...thanks for you support

> everyone, its needed. peg

Sorry that you are feeling so bad. Yes, I have trouble with my left arm.

When I am going into a flare my left arm starts to hurt badly. It has

started hurting today and I am taking my pain pills and staying in bed. I

also have a left foot that drags.

I would call the doctor even if it does not continue. There are other

problems beside fibro that could cause pain in your arm.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman.

February 24, 2002