Guest guest Posted March 31, 2002 Report Share Posted March 31, 2002 Hi Peg: happy easter! I feel bad for your pain. Is it any better today? I heard that statement about the pain being like arthritis in your muscles and I have been using it since to describe to others what this disease is like. It makes it easier for them to understand. I went for lots of blood testing last week and the dr's office called, wants to see me this week. I am in the middle of trying to get a fibro diagnosis. Hope he just doesn't say, oh you have high cholesterol, or oh you need some iron. This has been plaguing me for all of my adult life, since my first baby, and she is 33 now. But on the bright side, I finally got some sleep last night, 8 whole hours! I cannot tell you how that feels, or how rare that is. But you probably understand! Feel better, Peg! Hugs coming your way. Ellie (unknown) Hi All, Hope everyone is well. Fiance did something to the PC so I've been to aggravated to fix. I had mentioned pain that I was experiencing in my inner knees, lower and mid back, pain that I hadn't had before. The neuro that diagnosed the FM said that pain in these areas are not common to FM. It's funny because I went to Borders (book store) and spent several hours reading (didn't hav $ to buy) those areas are common to FM. I called the PCP office on Friday morning at 8:30 for help with the migrain, Imitrex and compazine not helping,no appts available, no call back until 4:00 pm. Advice was to come in tomorrow. I had to take the youngest into Boston for his infusion, was trying to get migrain under control before appt.I swear no-one knows what they are doing. My PCP refered me to the Rheumatologist that sent me to the Neuro who sent me back to the PCP. Sounds like a bad Country song. (no offense I like Country) The nurse who infuses my son asked me what was wrong, and I told her about the Fibro, she said, " FM's like having arthritis in your muscles. " That is the most logical statement anyone has made yet! Hope you all have a great weekend. Peg --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2002 Report Share Posted March 31, 2002 LaRue wrote: > > Well, I went to the urologist yesterday (they > rescheduled my appointment) and after a few minutes of > questions and an examination of pressing on all the > sore spots! he is scheduling me in to test for IC. I > have to wait 5 months for a time in the hospital. Has > anyone had their bladder stretched and filled with > water with a tube going through their urethra > (spelling:) ). I must say, it sounds quite painful. This should be done while you are under anesthesia. I had it done, and the only thing I noticed (since I was under when they did it) was for maybe the next week or two, it was kind of painful to pee. It wasn't constant nor the whole time I was peeing, and it went away. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 audie5us wrote: > > Hi I'm new to this group, but not to fibromyalgia, I have had this > for a few years and finding out that it doesn't get any better and I > think it getting worse,does anyone have anything new to try for > this. Hi Audie, welcome to the group. If you tell us what you've tried, and what symptom you're trying to help, we'll be better at giving stuff you haven't tried yet. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Welcome, . Ellie (unknown) These my answers: Age range:35-40 Male/female: female What are the symptoms? I have severe pain in shoulder blades and ache all over. Also I get alot of brain fog. Has you illness been diagnosed? by Dr. Usmani a rheaumatologist How long did you suffer before you got help? years Is there a time that you can remember when it started? I was diagnosed with fibrocistis 1984, buy a different rheaumatologist. Some of us have found lack of exercise we are overweight. Have you found this to be a problem also? yes and no. I when I was first diagnosed no, when I was rediagnosed yes. Are you on disability? yes If you are any pointers for others trying to get on disability? get as many doctors and as much documentions you can get. what have you found that helps ease the pain, warm baths, medications etc.? ladiocaine patches, injections, Glucosamine-Capsicin gel, Super Blue Stuff Do you have sleep problems? How do you deal with it? Yes, I try not to sleep thru the day and early evening. When really bad I use presciption medication Do you have family that understands your illness? Yes Some have found certain foods causes problems with CFS or Fibro, have you? Not that I have realized What type of Doctor have you found that has helped you the most? Rheumatologist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 graduate56@... wrote: > > Hi all, > Its me again. Hi, I think a subject will get more responses I know what you mean about relief at a diagnosis, by the time I was diagnosed I'd have been happy with any diagnosis for as long as they started treating me, and stopped blaming " stress " . Are you on antithyroid drugs yet? > I have been reading up on graves since my diagnosis last thurseday. > I saw somewhere that it can effect your sex drivel. > But It didn't say how. Some hyperthyroid people have more interest in sex that other people. But then they often have more energy, and sleep less, and are generally more bouncy, at least for a while. Certainly being a student who could party through the night (heck I didn't need to sleep some nights, even without a party) did good things for my social life, and nothing for my studies. However once the body can't keep up the frantic pace of hyperthyroidism, most people crash into a sorry state, and sick people don't generally have much interest in sex. Similarly the hypothyroid tend to be depressed and lethargic, and that isn't good for your sex life either. Some report it makes no difference what so ever.... So if you haven't notice it yet, you've missed one of the few redeeming features - actually inappropriate interest in sex isn't always a redeeming feature, as it can play hell with your relationships. Hormones is funny things, and it is a revelation for most to discover just how much we are puppets of our chemistry. Certainly I've become a lot more tolerant of others 'eccentricies' having been through this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 graduate56@... wrote: > > Hi all, > Its me again. Hi, I think a subject will get more responses I know what you mean about relief at a diagnosis, by the time I was diagnosed I'd have been happy with any diagnosis for as long as they started treating me, and stopped blaming " stress " . Are you on antithyroid drugs yet? > I have been reading up on graves since my diagnosis last thurseday. > I saw somewhere that it can effect your sex drivel. > But It didn't say how. Some hyperthyroid people have more interest in sex that other people. But then they often have more energy, and sleep less, and are generally more bouncy, at least for a while. Certainly being a student who could party through the night (heck I didn't need to sleep some nights, even without a party) did good things for my social life, and nothing for my studies. However once the body can't keep up the frantic pace of hyperthyroidism, most people crash into a sorry state, and sick people don't generally have much interest in sex. Similarly the hypothyroid tend to be depressed and lethargic, and that isn't good for your sex life either. Some report it makes no difference what so ever.... So if you haven't notice it yet, you've missed one of the few redeeming features - actually inappropriate interest in sex isn't always a redeeming feature, as it can play hell with your relationships. Hormones is funny things, and it is a revelation for most to discover just how much we are puppets of our chemistry. Certainly I've become a lot more tolerant of others 'eccentricies' having been through this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Simon said: Hormones is funny things, and it is a revelation for most to discover just how much we are puppets of our chemistry. Certainly I've become a lot more tolerant of others 'eccentricies' having been through this Yes, Simon, I hadn't thought of that but it's true I think. Maybe we should add that to the silver lining list. I think I've developed more patience as a result of this too... that was always a life long struggle for me. To the new person with no name or subject line, welcome! Yes, releif is usually one of the emotions in our mixed bag when diagnosis finally comes. My overriding emtotion was terror - I thought I was going to die and had to get my life in order. But that's not the case, and as far as autoimmune diseases, this one can be much easier to live with than others, as long as you become active in your care and especially if you can reach remission. You might want to read this letter for people newly diagnosed with GD. http://www.webmosaics.com/thyroid/letter.htm Let us know when you have questions! Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Simon said: Hormones is funny things, and it is a revelation for most to discover just how much we are puppets of our chemistry. Certainly I've become a lot more tolerant of others 'eccentricies' having been through this Yes, Simon, I hadn't thought of that but it's true I think. Maybe we should add that to the silver lining list. I think I've developed more patience as a result of this too... that was always a life long struggle for me. To the new person with no name or subject line, welcome! Yes, releif is usually one of the emotions in our mixed bag when diagnosis finally comes. My overriding emtotion was terror - I thought I was going to die and had to get my life in order. But that's not the case, and as far as autoimmune diseases, this one can be much easier to live with than others, as long as you become active in your care and especially if you can reach remission. You might want to read this letter for people newly diagnosed with GD. http://www.webmosaics.com/thyroid/letter.htm Let us know when you have questions! Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Simon said: Hormones is funny things, and it is a revelation for most to discover just how much we are puppets of our chemistry. Certainly I've become a lot more tolerant of others 'eccentricies' having been through this Yes, Simon, I hadn't thought of that but it's true I think. Maybe we should add that to the silver lining list. I think I've developed more patience as a result of this too... that was always a life long struggle for me. To the new person with no name or subject line, welcome! Yes, releif is usually one of the emotions in our mixed bag when diagnosis finally comes. My overriding emtotion was terror - I thought I was going to die and had to get my life in order. But that's not the case, and as far as autoimmune diseases, this one can be much easier to live with than others, as long as you become active in your care and especially if you can reach remission. You might want to read this letter for people newly diagnosed with GD. http://www.webmosaics.com/thyroid/letter.htm Let us know when you have questions! Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 Hi Janet:-) Welcome. First, let yourself mourn the perfect healthy baby it sounds like this came as a shock to you so I am assuming you did not have a lot of prenatal testing. Second: Let us know what is going on and the Magic Foundation has a library full of great information on RSS. Start reading and educating yourself on the healthcare terminology as you read these articles. When a doctor says no or I do not think that pertains to RSS....always ask the question what would indicate to you ( the doc) that a child had this or that or when would you test for this or that. RSS is a little different for every child so in order for us to help your family we need to know what is going on or concerns you are having and someone or many of us would have gone through similar things and will have advice for you. Things to watch for: Hypoglycemia...From my own experience I do not know any RSS child that can sleep through the night without getting hypoglycemic. They do not necessarily let you know they are hungry. My own personal situation I had to feed my daughter every 2 hours. Get some ketone sticks at the drug store and put a cotton ball in the diaper and squeeze it out to test the first morning urine for ketones. If they are present, your child needs to eat more during the night. The theory is to keep their blood sugar up and you can avoid learning disabilities that may be caused by nocturnal hypoglycemia. Watch for reflux...It doesn't always manifest itself by all out vomiting. If your baby has it they usually arch their backs and appear to be swallowing a lot or " chewing their cud " This should get you started. I do have to run. But we are here to help. -- Jovanovich ****Please note - our NEW e-mail address laura@... Reply-To: RSS-Support Date: Sat, 28 Sep 2002 04:47:48 -0000 To: RSS-Support Subject: (unknown) Resent-From: laura@... Resent-To: bugwilder@... Resent-Date: Mon, 30 Sep 2002 08:07:33 -0500 hi everyone im new to this my daughter was just diagnosed with rss and it was really scary to hear i don't really know much about it but ilooked at alot of the pics and all the children are so cute i just would like more parents advice on what to do next email me back thanks, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Hi Suzee, sorry you hurt your tail bone - I know how bad that hurts! Hope it heals sooner than mine did. You said: ....the Endo called and said that she was going to have to re-think my situation because the uptake was a 1 % scan and she's thinking that I might just have Thyroiditis. She will re-check blood tests in two weeks and go from there depending on the results!! YEAH!!!!! She said, if it is Thyroiditis...I'll go HypO before normal, so be prepared! Make sure you ask your endo for some antibody tests so you can rule out autoimmune thyroid disease. You might just have a viral type of thyroiditis too, not autoimmune... in which case, once that clears up you will be as good as new and not be hypo. Hope that is what it is for you. Take care and let us know what you find out, Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Suzee - Glad you had a fun trip, but sorry about the tailbone! Ouch! Mine hurts just thinking about it! Hope it heals quickly! (unknown) > Hi Everyone... > I'm back!!! I got back Sunday late afternoon but couldn't get > online. Gimme a minute and I'll tell you why....I'll start from the > beginning. > > Manda had a volley-ball game Thursday afternoon. My dad came here > from Seattle and watched her game...we headed to Spokane, WA. from > there. We got there fairly late, got a room, had dinner and crashed > for the night. The next morning, we went to this SUPER DUPER HUGE > mall and shopped forever for Manda's Birthday. Went to a video > arcade and had a blast. Then, we headed for Idaho. On our way...the > Endo called and said that she was going to have to re-think my > situation because the uptake was a 1 % scan and she's thinking that > I might just have Thyroiditis. She will re-check blood tests in two > weeks and go from there depending on the results!! YEAH!!!!! She > said, if it is Thyroiditis...I'll go HypO before normal, so be > prepared! > > THEN....we got to Idaho and got a Motel room with hottub and pool. > Bummed around and looked around. Went to Red Lobster for dinner and > bought some underwear looking things for hot-tub wear, since we > forgot our suits. On our way back to the Motel, we saw a > rollerskating rink. OHhHHHHHHH.....FUN...so we stopped. Said, we > would skate for an hour only, so we could make it back to the motel > before the hot-tub closed. On our last lap....we were racing...I was > trying to lap my Dad. Well, let's just say...I lost. My feet went > forward and I went straight down on my BUTT!!!! They stopped the > song, turned on the lights and carried me off of the floor. > > I hurt soooo bad!!!!! > > The next morning we went to Silverwood. We had a wonderful time, > except I was in terrible, unbearable pain! But...for my > daughter....I made it through. We spent one more night and headed > home, where I had to lay the seat back in the car and lay on my side, > cuz I couldn't sit on my butt it hurt soo bad. > > Monday morning, (since I hadn't slept since Friday night)...I headed > to the Doctor's office. There I found out that I shattered my tail > bone. The last three bones are totally, in pieces. JUST MY LUCK, > I'LL TELL YOU NOW!!!! Do you believe it?! > > So, here I sit (on a toilet seat, ring pillow) on major pain > medications and muscle relaxers. Not to mention two meds to make me > go to the bathroom, since those muscles down there aren't working > correctly!! LOL....I'm a mess!!! I'll read and get caught up with > everything as soon as I can! It's hard to sit for long periods of > time cuz...MY BUTT HURTS and I'm very, very tired. Hope to hear from > anyone soon!!! **Shattered Butt Suzee** > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Suzee, Here's praying for a speedy recovery. Ouch, it hurts just thinking about it. Debbie R. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Suzee, Here's praying for a speedy recovery. Ouch, it hurts just thinking about it. Debbie R. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Suzee, Here's praying for a speedy recovery. Ouch, it hurts just thinking about it. Debbie R. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2002 Report Share Posted October 3, 2002 Hi Janet! My name is Pat and I'm the grandmother of . It was really scary to find out that had RSS, mostly because I didn't know what it was. Researching it really helped, and just living it day to day and figuring out that B is normal for the most part has helped tons! is 9 months old now. He weighs in at 3.715kg and is 22.5inches long, basically the size of a newborn. He just got a G tube placed on Sept.10th, so hopefully he'll start to get bigger! His care is a little more specialized than a normal baby, and feeding him used to be an act for developing patience, but day to day, looking back it doesn't seem as hard as it did then. PT has just become a normal part of his play, we seem to do his movements without even thinking about it now. The baby massage we've been doing for months, has just become a normal part of lotioning him after his bath. A few months ago I would have to refer to an instruction sheet just to get it right and not forget steps! LOL I guess it just becomes " normal " for you and your baby. The best advice I could give you would be to take it one day at a time. Enjoy your daughter for who she is, RSS and all, and deal with the problems as they arrive. I've been trying to take things one at a time, solve one problem, then move onto the next, and for me it makes the situation less intimidating. Come here often! It was here, on this site, that I really learned that we're not all alone in this, and these people will do anything they can to help you through any problems that arise. Here you can talk about weight problems and feeding problems, and pyloriplasties and fundoplications and g tubes and they understand and offer any and all advice that they think might help to make it easier for you. Sometimes the general public and even families just can't understand! They get into this " if only " game, if only you would feed more, if only you did this or that more, and they make you feel like you're just not doing enough, when inside you're tearing your hair out trying to think of something you haven't tried! Here, life with an RSS child IS normal! LOL Empower yourself! Read, ask questions, research! The more you know about something the less scary it becomes. The better you can communicate with the drs, the more help you'll be to your daughter. I am far from an expert, and we've only been handling this situation for about 6 months, but if there is ever anything I can do, or a question that I can answer, don't hesitate to ask! The best to you and your daughter! And god bless! Pat (g-ma to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2002 Report Share Posted October 5, 2002 Hey Janet! I was wondering where Hollsopple, penn is. We live on the north coast of Ohio, about a block from Lake Erie acttually. Pennsylvania isn't all that far away. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Hi - Yes, definitely Graves' can affect your cycle! Let's see if I can get this right again. If your hyper, it can cause your periods to be more frequent and lighter. If you're more towards hypo, then your periods can be farther apart and heavier. However, it's not just the current level that you're at that can affect it, but the direction that you're going. For example, when I was hyper, my periods can more fequently, but as the levels went down to the normal level, the body interpretted that as a move towards the hypo end of the scale, so my periods became farther apart. So even though the lab tests showed " normal " levels, the body felt like it was " hypo " . Does that make sense? Same is true of the reverse. The other thing with menstrual cycles is that your thyroid levels can be slightly higher right before your period comes, and then go down after the arrival of your period. {This is a good thing to keep in mind when you're scheduling your lab tests.) So many of us feel more " hyper " symptoms right before our period - even if our levels are normal. It has to do with the " female " hormone levels, they have an affect on the thyroid hormones as well. So don't worry, you're not weird! This is all very common stuff! (unknown) > Hi all, > I have a question. > For the women on this list. > Do you notice a diference with your menstrual cycle because of this > disease. > Just curious. > I'm also making sure that I'm not a little weird. > For me, it seems as though my hyper symptoms increase. Along with > nausia, insomnia, and diarrhea, and other symptoms. These other symptoms > are probably just related to me. > Take care all. > Look forward to hearing from you. > > diagnosed with graves > 9/19/2002 > > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/web/. > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Hi - Yes, definitely Graves' can affect your cycle! Let's see if I can get this right again. If your hyper, it can cause your periods to be more frequent and lighter. If you're more towards hypo, then your periods can be farther apart and heavier. However, it's not just the current level that you're at that can affect it, but the direction that you're going. For example, when I was hyper, my periods can more fequently, but as the levels went down to the normal level, the body interpretted that as a move towards the hypo end of the scale, so my periods became farther apart. So even though the lab tests showed " normal " levels, the body felt like it was " hypo " . Does that make sense? Same is true of the reverse. The other thing with menstrual cycles is that your thyroid levels can be slightly higher right before your period comes, and then go down after the arrival of your period. {This is a good thing to keep in mind when you're scheduling your lab tests.) So many of us feel more " hyper " symptoms right before our period - even if our levels are normal. It has to do with the " female " hormone levels, they have an affect on the thyroid hormones as well. So don't worry, you're not weird! This is all very common stuff! (unknown) > Hi all, > I have a question. > For the women on this list. > Do you notice a diference with your menstrual cycle because of this > disease. > Just curious. > I'm also making sure that I'm not a little weird. > For me, it seems as though my hyper symptoms increase. Along with > nausia, insomnia, and diarrhea, and other symptoms. These other symptoms > are probably just related to me. > Take care all. > Look forward to hearing from you. > > diagnosed with graves > 9/19/2002 > > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/web/. > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 >>The other thing with menstrual cycles is that your thyroid levels can be slightly higher right before your period comes, and then go down after the arrival of your period. {This is a good thing to keep in mind when you're scheduling your lab tests.)<< May I ask a question about this... I was having my first natural cycle since February when I was rediagnosed this month. However, the fertility drugs I was taking usually caused ovarian cysts which required 2-3 weeks of birth control to get rid of them. But I did not follow my last medicated cycle with birth control. When I had my thyroid tested I was almost 2 weeks late for my period (very unusual for me). I was not pregnant and it was later determined that for my natural cycle, Clomid was still in my system and it aggravated the cysts and caused me to skip my period (still haven't had one... waiting for authorization for meds). Now, since I was beyond due for my period, but was still " technically " at the end of my cycle, would this cause my thyroid test to be inaccurate. Thanks, Clair Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Clair - My understanding is that the difference right before your period is relatively slight. I don't know if the Clomid would cause a greater difference in thyroid levels or not, that's beyond me. Elaine might know more about that. But for your typical menstrual cycle, the difference before period/after period isn't going to be a HUGE difference. Diagnosed 7/01 very early with Graves', alternative treatment. So far euthyroid since 10/01. Also have high TPO ABs, new theory is Hashitoxicosis. T4's currently normal, but on a TSH rollercoaster. Early eye symptoms. Re: (unknown) > > >>The other thing with menstrual cycles is that your thyroid levels > can be slightly higher right before your period comes, and then go > down after the arrival of your period. {This is a good thing to keep > in mind when you're scheduling your lab tests.)<< > > May I ask a question about this... I was having my first natural > cycle since February when I was rediagnosed this month. However, the > fertility drugs I was taking usually caused ovarian cysts which > required 2-3 weeks of birth control to get rid of them. But I did > not follow my last medicated cycle with birth control. When I had my > thyroid tested I was almost 2 weeks late for my period (very unusual > for me). I was not pregnant and it was later determined that for my > natural cycle, Clomid was still in my system and it aggravated the > cysts and caused me to skip my period (still haven't had one... > waiting for authorization for meds). Now, since I was beyond due for > my period, but was still " technically " at the end of my cycle, would > this cause my thyroid test to be inaccurate. > > Thanks, > Clair > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Hi, It's more common in hyper for periods to be scant or absent. I never had a period when I was in college and this isn't all that unusual in GD. In hypo, the periods are usually heavier and they can also occur a bit sooner than usual. But since thyroid hormone does affect our other hormone levels in different degrees, we can all experience different symptoms. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Hi, It's more common in hyper for periods to be scant or absent. I never had a period when I was in college and this isn't all that unusual in GD. In hypo, the periods are usually heavier and they can also occur a bit sooner than usual. But since thyroid hormone does affect our other hormone levels in different degrees, we can all experience different symptoms. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 Hi , Prednisone can lower your TSH level. This can make it look like you're normal when you're hypothyroid. The effects of prednisone can last several weeks and longer in people who are hypothyroid. Also, is your doctor testing your FT4 and FT3 as well as your TSH. The TSH test is great for diagnosing new disorders, but for people on replacement hormone or anti-thyroid drug therapy, the results can be misleading. Hypothyroidism will definitely make your eyes worse and cause joint pain. Take care, elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 , Every symptom you listed is a symptom of hypothyroidism for me. You said your labs were normal. The range for " normal " is very broad, and you CAN be in the normal range according to labs and still be hypo. Do you have your actual lab values. That may be helpful in knowing if it's your thyroid or something else. Holly (unknown) Hello to everyone. Hope all is well. I'm writing this in desperation, seeking answers or at least suggestions my doc wont give me. I was on a high dose of prednisone for my eyes for several months for my eyes and was gradually tapered off a couple months ago. Since then, I have been having fatigue, joint pain, hair loss, and (ack!) decreased libido. I thought maybe my thyroid was going out of whack again, but my tests came back normal. STILL, I wonder if there is some other sort of hormonal imbalance going on, perhaps brought on by being on the prednisone? My doc isn't really LISTENING to me. He's saying the joint pain is just previous pain I had that I " forgot " about while being on the prednisone and now that I'm off, my " memory " is coming back and my body isn't used to dealing with the pain now but it will get better. He says my hair falling out is simply hereditary, and afterall, I'm " getting older. " I'm only 35! I haven't even started menopause yet! Besides that, I have a license in cosmetology and know that hair does thin out for some people as we get older, but gradually, not over the course of a couple months. This is soooo frustrating because I KNOW when something different is going on with my body, I wouldn't go in to see the doc if I didn't really think I needed to, and the doc is practically laughing in my face, no he DID laugh in my face and suggested a wig (all in good humor, of course) and then he suggested if the joint pain gets worse, come back in, otherwise, he'll see me for another thyroid check in 6 months. He never bothered to suggest a hormone imbalance not particularly related to the thyroid. Anyway, my question is, has anyone else here gone through anything like this after taking prednisone? Perhaps it is something coincidental, NOT caused by being on and then off the prednisone, but I do believe it is some sort of hormone imbalance nonetheless. Is there ANYONE here who can relate? Any responses will be very much appreciated. Thanks. ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list do not have the endorsement of the listowner. I have no input as to what ads are attached to emails. ---------------------------------------------------------------------------- ---------- Quote Link to comment Share on other sites More sharing options...
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