Re: Introduction

[Guest guest]

Hello Amy,

My name is . I have two sons. My youngest, Caleb, has a mild

sloping to profound, bilateral, sensory - neural loss. He just turned

six at the end of August. I also homeschool both my boys, and just

started kindergarten materials with Caleb.

Welcome to the list.

[Guest guest]

> I am a stay at home mom of two, ages 8 and 18 months. We just

found out the day before Thanksgiving that my son has suffered

profound hearing loss supposedly in both ears as a result of severe

prematurity. It's believed it has been a gradual loss since perhaps

March or so.

>

> I would like to just connect with parents who have already started

the lifestyle change that we will be starting soon.

> Kathy

Kathy – Welcome!

I think you have found the right place for meeting other parents in

your situation.

My son will be 2 in February and has a mild/moderate loss that was

diagnosed at birth. He wears hearing aids, and has done remarkably

well with his acquisition of speech.

I've been a member of this group for almost a year (can it be that

time really flies by so quickly?!?!) and this group has always been

there to answer my questions, no matter how big or small they may

be. So ask away – I'm sure you have a lot of questions and I'm sure

there is someone out there that can help you.

Welcome!

Mom of Miri – 7 – hearing

Abigail – 4 ½ - hearing

– 22 months – mild/mod bilateral SNHL

[Guest guest]

Welcome to the group Kathy. How premature was your son?

LINDA A.

introduction

I am a stay at home mom of two, ages 8 and 18 months. We just found

out the day

before Thanksgiving that my son has suffered profound hearing loss

supposedly in

both ears as a result of severe prematurity. It's believed it has been

a

gradual loss since perhaps March or so.

I would like to just connect with parents who have already started the

lifestyle change that we will be starting soon.

Kathy

___________________________________________________

Try the New Netscape Mail Today!

Virtually Spam-Free | More Storage | Import Your Contact List

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[Guest guest]

Welcome to the group Kathy. How premature was your son?

LINDA A.

introduction

I am a stay at home mom of two, ages 8 and 18 months. We just found

out the day

before Thanksgiving that my son has suffered profound hearing loss

supposedly in

both ears as a result of severe prematurity. It's believed it has been

a

gradual loss since perhaps March or so.

I would like to just connect with parents who have already started the

lifestyle change that we will be starting soon.

Kathy

___________________________________________________

Try the New Netscape Mail Today!

Virtually Spam-Free | More Storage | Import Your Contact List

http://mail.netscape.com

[Guest guest]

Welcome to the group Kathy. How premature was your son?

LINDA A.

introduction

I am a stay at home mom of two, ages 8 and 18 months. We just found

out the day

before Thanksgiving that my son has suffered profound hearing loss

supposedly in

both ears as a result of severe prematurity. It's believed it has been

a

gradual loss since perhaps March or so.

I would like to just connect with parents who have already started the

lifestyle change that we will be starting soon.

Kathy

___________________________________________________

Try the New Netscape Mail Today!

Virtually Spam-Free | More Storage | Import Your Contact List

http://mail.netscape.com

[Guest guest]

Hello,

My son Carson was born at 27 weeks and spent 6 1/2 months in ICU. He has

hearing loss in both ears and we just received his hearing aids for the first

time. He is 19 months now. We (Mom and Dad) are nervous, scared, etc. but are

starting to adapt. He is not wearing them all day yet but we are slowly getting

him to wear them a little longer each day. We have noticed a huge difference

yet, but at the same time its only been two weeks.

We are in the begining stages of trying to find a speech therapist to help with

his speech development.

Would love to chat along the way to share stories, success, etc.

-------------- Original message --------------

> I am a stay at home mom of two, ages 8 and 18 months. We just found out the

day

> before Thanksgiving that my son has suffered profound hearing loss supposedly

in

> both ears as a result of severe prematurity. It's believed it has been a

> gradual loss since perhaps March or so.

>

> I would like to just connect with parents who have already started the

> lifestyle change that we will be starting soon.

>

> Kathy

> ___________________________________________________

> Try the New Netscape Mail Today!

> Virtually Spam-Free | More Storage | Import Your Contact List

> http://mail.netscape.com

>

>

>

[Guest guest]

Hi - welcome! I have deaf two sons who are now " big guys " - Tom's

13 years old and just had cochlear implant surgery about 2 weeks ago

(we're anxiously awaiting hookup in two more weeks!). Sam is 11 and

wears two hearing aids although given Tom's recent hearing loss, we're

keeping a close eye on Sam as well.

I think probably most, if not all, of us on this list know just how you

feel about being nervous and scared. I remember coming home with Tom's

new hearing aids 10 years ago and wondering how in the world we were

going to manage those tiny things. then of course boy #2 gets them...

Now it's really just part of things and I'm guessing it will be that way

with you guys as well.

I'm glad you found us!

Take care

Barbara

davidsanford05@... wrote:

>

> Hello,

>

> My son Carson was born at 27 weeks and spent 6 1/2 months in ICU. He

> has hearing loss in both ears and we just received his hearing aids

> for the first time. He is 19 months now. We (Mom and Dad) are

> nervous, scared, etc. but are starting to adapt. He is not wearing

> them all day yet but we are slowly getting him to wear them a little

> longer each day. We have noticed a huge difference yet, but at the

> same time its only been two weeks.

>

> We are in the begining stages of trying to find a speech therapist to

> help with his speech development.

>

> Would love to chat along the way to share stories, success, etc.

>

>

[Guest guest]

Hi a - welcome! I'm glad you're here... I have two boys - Tom

is 13 and Sam is 11. Both are deaf. Tom just three weeks ago was

implanted - prior to his implant he'd worn two hearing aids. Tom's

activation date is Monday! Sam wears two hearing aids and has done well

with them.

It sounds like you're in a good place for Josie. Tell me - what is CHD

and also CEID?

Take care!

Barbara

kristinaqls wrote:

> Wanted to introduce myself. My name is a and my daughter Josie

> was born profoundly deaf in 7/03. She was diagnosed in the hospital so

> we knew right away, and for us the deafness was the least of our

> worries as Josie was born with CHD as well. She's 2 (almost 21/2 now)

> and doing fabulous. We were connected very early with CEID, in

> Berkeley, and tried an 8 month trial with hearing aides (we called

> them her old man hearing aides) and nothing seemed to help. As a

> family we have decided not to try Cochlear implants, I think the

> medical profession has a harder time with that than we did. We are

> using ASL and a whole communication approach and Josie is thriving.

> Right now she attends preschool with me (I'm a director in the East

> Bay) and my staff has done a wonderful job integrating sign language

> into their daily routines. I feel really fortunate as I took sign as

> my specialization in early childhood education a hundred years ago.

> I'm looking forward to having someplace to go with questions and

> finding answers from people who have been through it themselves or are

> muddling through it now.

>

[Guest guest]

Josie was born with Congenital Heart Disease. She had her first

surgery at 8 days and her second at 5 months. So for us, deafness

wasn't going to kill her and we had bigger fish to fry. CEID is the

Center for the Education of the Infant Deaf (CEID.org). They provide

us with a home visitor once a week, speech therapy if needed, a great

transition program and a toddler and preschool program as well. We are

hoping, however, to get Josie into the California School for the Deaf,

Fremont this coming July. Our school district offers a deaf and hard

of hearing program, but the numbers are small and they focus on SEE

sign, and we are using ASL and would like her to be in as large a

group environment as possible with children who are using a similiar

communication style.

[Guest guest]

Welcome Jayson! Just so you know, since your new to this. Wheat free ( Rice ) communion wafers are available if you have not found them yet. Check here-----> http://www.food4celiacs.com/ "Rev. Jayson Nadolny" wrote: Hello everyone! My name is Jayson and I just wanted to take a second to introduce myself. I have been enjoying the shared recipes, etc.

I am very new to this GF lifestyle, and it sure has been hard. It is so great to have a place to go where everyone knows what you are talking about. I just recently found that I have Celiacs Disease, and it is quite overwhelming. I do have a nice support at our local church, where there are 7 other people who have the same thing.Personally, I am a Preschool teacher during the summer for their summer programs. During regular school year times, I spend most of my time in the High School Special Education Department as a Student-Specific Aide. So, I am pretty busy most of the time! When I was in college, I went through so much with this disorder, and never having a Doctor catch it other than calling it IBS over and over again. It cost me a lot of money in loans, because I had to miss so many days of class, because I couldn't get out of BED much less, go to class. I am so blessed to know that there are

others who can share with me and help me through this, since I have no clue what I am doing! I bought a book by Bette Hagman, and that is about the extent of my knowledge base :-) Well, thanks everyone and I look forward to meeting you all as well!

Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better.

[Guest guest]

Welcome to the group. I have been a lurker here, but am also thankful for this group. In our house, all of us are gluten intolerant, with one of us with celiac (our 3 y.o. daughter). Finally finding the cause of so many wrongly diagnosed symptoms was a blessing for us as well. Compliance is challenging when you don't have celiac-educated people in your social circle, so you are doubly blessed to have people in your church who are familiar with your situation. Right now, I take comfort in the fact that my children are in a gradual healing process, and that what we have experienced is helping others. Recenly my niece also was diagnosed with celiac, and I have been able to help her parents understand the lifestyle adjustments, because we are more experienced at it. Try to focus on your positive anticipation of finally feeling well ! Also, once the initial adjustment period is over, I found

that our diet is now more varied, healthy and certainly better tasting that when we relied on wheat based foods for so many staples in our diet. Rebekah My name is Jayson and I just wanted to take a second to introduce myself. I have been enjoying the shared recipes, etc. I am very new to this GF lifestyle, and it sure has been hard. It is so great to have a place to go where everyone knows what you are talking about. I just recently found that I have Celiacs Disease, and it is quite overwhelming. I do have a nice support at our local church, where there are 7 other people who have the same thing.

Yahoo! Music Unlimited - Access over 1 million songs.

Try it free.

[Guest guest]

Hi Debbie and welcome. It seems like so many younger women are joining that have

breast cancer. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Introduction

HI!!

My name is Debbie, and I'm new to the group. I am 38 years old and

was diagnosed with Breast Cancer in March of this year. I have had a

hysterectomy along with my treatment because my cancer was estrogen

positive and this is my second bout of cancer, so my oncologist felt

this would be the best treatment. In 1997, I was diagnosed with

Leukemia, but am still in remission. I've had a lumpectomy and

radiation already and am still taking chemo.

We have 5 children ages 21, 18, 17, 4 and 3, so...a very active

household.

Debbie

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[Guest guest]

Dear ,

Have patience, my dear and you will learn from the beginning just like we

all did.

You will amaze yourself by how much you absorb and will truly find a place

here to share, vent and make friends.

Best,

[Guest guest]

Dear ,

Have patience, my dear and you will learn from the beginning just like we

all did.

You will amaze yourself by how much you absorb and will truly find a place

here to share, vent and make friends.

Best,

[Guest guest]

Dear ,

Have patience, my dear and you will learn from the beginning just like we

all did.

You will amaze yourself by how much you absorb and will truly find a place

here to share, vent and make friends.

Best,

[Guest guest]

Welcome . I had my surgery 5/24/1990. I had a mastectomy, 23 nodes removed,

one was bad, 6 mo of chemo, no radiation and no reconstruction. I had no

problems with either the surgery or chemo.

I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Introduction

Hi,

My name is Hogan, 55 years old and live in

Salt Lake City, Utah. On September 18 I was

diagnosed with breast cancer. On Sept 25 I had a

lumpectomy and 2 lymph nodes removed. I have

stage 3 invasive ductal carcinoma. One node was

clean, the other was not. Last Friday, I went in

again for more surgery to have more nodes

removed. I have not heard back from pathology on

those yet.

I am looking for a group to share my experience

with and to find some support. I was, am still

stunned to find out I have breast cancer. It

never occurred to me that it could happen to me.

My profile risk is in the lowest risk category

and there's no history of it in my family, until

now. I've been told that I need chemo, a

masectomy, radiation and reconstruction if I want

it. I am suppose to start chemo on November 7.

What's kind of interesting is that I worked for

the Cancer Center here for over 10 years and

still work within a university research area so

this shouldn't come much as a surprise to me but

I am just starting to realize how much I really

don't know.

So I am looking forward to learning from you all

and in turn help to support others.

Thank you,

and her Wonderful Wascally Weasels

Frontier Ferrets Rescue and Shelter

------------------------------------------------------------------------------

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Checked by AVG Free Edition.

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[Guest guest]

Welcome . I had my surgery 5/24/1990. I had a mastectomy, 23 nodes removed,

one was bad, 6 mo of chemo, no radiation and no reconstruction. I had no

problems with either the surgery or chemo.

I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Introduction

Hi,

My name is Hogan, 55 years old and live in

Salt Lake City, Utah. On September 18 I was

diagnosed with breast cancer. On Sept 25 I had a

lumpectomy and 2 lymph nodes removed. I have

stage 3 invasive ductal carcinoma. One node was

clean, the other was not. Last Friday, I went in

again for more surgery to have more nodes

removed. I have not heard back from pathology on

those yet.

I am looking for a group to share my experience

with and to find some support. I was, am still

stunned to find out I have breast cancer. It

never occurred to me that it could happen to me.

My profile risk is in the lowest risk category

and there's no history of it in my family, until

now. I've been told that I need chemo, a

masectomy, radiation and reconstruction if I want

it. I am suppose to start chemo on November 7.

What's kind of interesting is that I worked for

the Cancer Center here for over 10 years and

still work within a university research area so

this shouldn't come much as a surprise to me but

I am just starting to realize how much I really

don't know.

So I am looking forward to learning from you all

and in turn help to support others.

Thank you,

and her Wonderful Wascally Weasels

Frontier Ferrets Rescue and Shelter

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.408 / Virus Database: 268.13.11/496 - Release Date: 10/24/2006

[Guest guest]

Welcome . I had my surgery 5/24/1990. I had a mastectomy, 23 nodes removed,

one was bad, 6 mo of chemo, no radiation and no reconstruction. I had no

problems with either the surgery or chemo.

I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Introduction

Hi,

My name is Hogan, 55 years old and live in

Salt Lake City, Utah. On September 18 I was

diagnosed with breast cancer. On Sept 25 I had a

lumpectomy and 2 lymph nodes removed. I have

stage 3 invasive ductal carcinoma. One node was

clean, the other was not. Last Friday, I went in

again for more surgery to have more nodes

removed. I have not heard back from pathology on

those yet.

I am looking for a group to share my experience

with and to find some support. I was, am still

stunned to find out I have breast cancer. It

never occurred to me that it could happen to me.

My profile risk is in the lowest risk category

and there's no history of it in my family, until

now. I've been told that I need chemo, a

masectomy, radiation and reconstruction if I want

it. I am suppose to start chemo on November 7.

What's kind of interesting is that I worked for

the Cancer Center here for over 10 years and

still work within a university research area so

this shouldn't come much as a surprise to me but

I am just starting to realize how much I really

don't know.

So I am looking forward to learning from you all

and in turn help to support others.

Thank you,

and her Wonderful Wascally Weasels

Frontier Ferrets Rescue and Shelter

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.408 / Virus Database: 268.13.11/496 - Release Date: 10/24/2006

[Guest guest]

Hi Lee -

I believe it would be best if you opened a new thread for your introduction. It

is very comfusing when different subjects appear at one thread.

Ah..and welcome

>

> Hi, everyone. I¹m new here and thought I¹d toss in an introduction. I¹m 54

> and was diagnosed with CFS in 2003, although I¹ve had problems with chronic

> fatigue since I was 18 and had a mystery illness that was diagnosed as

> mononucleosis, even though the test was not conclusive. I just never got

> better from it. Personally, I think the fatigue, and other related problems

> (joint and muscle pain, brain fog, dry skin, weight gain, hair loss, cold

> intolerance, etc., etc., etc.), are really due to a thyroid problem, and

> have thought that for a long time.

>

> I have a new doctor after my doctor of 20 years retired. After discussing

> my CFS diagnosis, she wants to send me to an endocrinologist, and I have an

> appointment in July. We ran a long list of thyroid tests ­ every one I

> could find in doing my own research on hypothyroidism ­ and they all came

> back within the normal range. The only thing I could find in my reading

> that might indicate a problem is the ratio of T3 and Free T3 to Reverse T3,

> which is why I joined this group. My total T3 was 1.17, Free T3 was 3.27,

> and Reverse T3 was 203.

>

> The other subject I keep running into is adrenal fatigue. However, the

> websites where I¹ve found information on adrenal fatigue all appear to want

> to sell you things, so I kind of distrust the information I¹m getting there.

>

> I did a search of this group¹s posts and saw a number of posts on

> CFS/Fibromyalgia (which I think are really the same thing), but I¹d love to

> pick all of your brains about the intersection of CFS/Fibro, adrenal issues

> and thyroid issues. Any thoughts?

>

> Thanks so much.

>

> Lee

>

[Guest guest]

Hi Lee -

I believe it would be best if you opened a new thread for your introduction. It

is very comfusing when different subjects appear at one thread.

Ah..and welcome

>

> Hi, everyone. I¹m new here and thought I¹d toss in an introduction. I¹m 54

> and was diagnosed with CFS in 2003, although I¹ve had problems with chronic

> fatigue since I was 18 and had a mystery illness that was diagnosed as

> mononucleosis, even though the test was not conclusive. I just never got

> better from it. Personally, I think the fatigue, and other related problems

> (joint and muscle pain, brain fog, dry skin, weight gain, hair loss, cold

> intolerance, etc., etc., etc.), are really due to a thyroid problem, and

> have thought that for a long time.

>

> I have a new doctor after my doctor of 20 years retired. After discussing

> my CFS diagnosis, she wants to send me to an endocrinologist, and I have an

> appointment in July. We ran a long list of thyroid tests ­ every one I

> could find in doing my own research on hypothyroidism ­ and they all came

> back within the normal range. The only thing I could find in my reading

> that might indicate a problem is the ratio of T3 and Free T3 to Reverse T3,

> which is why I joined this group. My total T3 was 1.17, Free T3 was 3.27,

> and Reverse T3 was 203.

>

> The other subject I keep running into is adrenal fatigue. However, the

> websites where I¹ve found information on adrenal fatigue all appear to want

> to sell you things, so I kind of distrust the information I¹m getting there.

>

> I did a search of this group¹s posts and saw a number of posts on

> CFS/Fibromyalgia (which I think are really the same thing), but I¹d love to

> pick all of your brains about the intersection of CFS/Fibro, adrenal issues

> and thyroid issues. Any thoughts?

>

> Thanks so much.

>

> Lee

>

[Guest guest]

HI Lee yes from your labs you DO have an RT3 problem. This si ofgten

caused by low cortils or LOW IRON which you wil not get from most

doctors . I would suggest oyu get a full iron panel dne as well as

saliva cortiosl testing. I also own a HUGE adrnela group on Yahoo

groups which might be to your liking a well the link is in my signature

lines. Welcome!

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://faqhelp.webs.com/

http://health.groups.yahoo.com/group/RT3_T3/

http://www.thyroid-rt3.com/

http://groups.yahoo.com/group/HypoPets/

Introduction

Hi, everyone. I’m new here and thought I’d

toss in an introduction. I’m 54 and was diagnosed with CFS in 2003,

although I’ve had problems with chronic fatigue since I was 18 and had

a mystery illness that was diagnosed as mononucleosis, even though the

test was not conclusive. I just never got better from it. Personally,

I think the fatigue, and other related problems (joint and muscle pain,

brain fog, dry skin, weight gain, hair loss, cold intolerance, etc.,

etc., etc.), are really due to a thyroid problem, and have thought that

for a long time.

I have a new doctor after my doctor of 20 years retired. After

discussing my CFS diagnosis, she wants to send me to an

endocrinologist, and I have an appointment in July. We ran a long list

of thyroid tests – every one I could find in doing my own research on

hypothyroidism – and they all came back within the normal range. The

only thing I could find in my reading that might indicate a problem is

the ratio of T3 and Free T3 to Reverse T3, which is why I joined this

group. My total T3 was 1.17, Free T3 was 3.27, and Reverse T3 was 203.

The other subject I keep running into is adrenal fatigue. However, the

websites where I’ve found information on adrenal fatigue all appear to

want to sell you things, so I kind of distrust the information I’m

getting there.

I did a search of this group’s posts and saw a number of posts on

CFS/Fibromyalgia (which I think are really the same thing), but I’d

love to pick all of your brains about the intersection of CFS/Fibro,

adrenal issues and thyroid issues. Any thoughts?

Thanks so much.

Lee

[Guest guest]

HI Lee yes from your labs you DO have an RT3 problem. This si ofgten

caused by low cortils or LOW IRON which you wil not get from most

doctors . I would suggest oyu get a full iron panel dne as well as

saliva cortiosl testing. I also own a HUGE adrnela group on Yahoo

groups which might be to your liking a well the link is in my signature

lines. Welcome!

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://faqhelp.webs.com/

http://health.groups.yahoo.com/group/RT3_T3/

http://www.thyroid-rt3.com/

http://groups.yahoo.com/group/HypoPets/

Introduction

Hi, everyone. I’m new here and thought I’d

toss in an introduction. I’m 54 and was diagnosed with CFS in 2003,

although I’ve had problems with chronic fatigue since I was 18 and had

a mystery illness that was diagnosed as mononucleosis, even though the

test was not conclusive. I just never got better from it. Personally,

I think the fatigue, and other related problems (joint and muscle pain,

brain fog, dry skin, weight gain, hair loss, cold intolerance, etc.,

etc., etc.), are really due to a thyroid problem, and have thought that

for a long time.

I have a new doctor after my doctor of 20 years retired. After

discussing my CFS diagnosis, she wants to send me to an

endocrinologist, and I have an appointment in July. We ran a long list

of thyroid tests – every one I could find in doing my own research on

hypothyroidism – and they all came back within the normal range. The

only thing I could find in my reading that might indicate a problem is

the ratio of T3 and Free T3 to Reverse T3, which is why I joined this

group. My total T3 was 1.17, Free T3 was 3.27, and Reverse T3 was 203.

The other subject I keep running into is adrenal fatigue. However, the

websites where I’ve found information on adrenal fatigue all appear to

want to sell you things, so I kind of distrust the information I’m

getting there.

I did a search of this group’s posts and saw a number of posts on

CFS/Fibromyalgia (which I think are really the same thing), but I’d

love to pick all of your brains about the intersection of CFS/Fibro,

adrenal issues and thyroid issues. Any thoughts?

Thanks so much.

Lee

[Guest guest]

HI Lee yes from your labs you DO have an RT3 problem. This si ofgten

caused by low cortils or LOW IRON which you wil not get from most

doctors . I would suggest oyu get a full iron panel dne as well as

saliva cortiosl testing. I also own a HUGE adrnela group on Yahoo

groups which might be to your liking a well the link is in my signature

lines. Welcome!

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://faqhelp.webs.com/

http://health.groups.yahoo.com/group/RT3_T3/

http://www.thyroid-rt3.com/

http://groups.yahoo.com/group/HypoPets/

Introduction

Hi, everyone. I’m new here and thought I’d

toss in an introduction. I’m 54 and was diagnosed with CFS in 2003,

although I’ve had problems with chronic fatigue since I was 18 and had

a mystery illness that was diagnosed as mononucleosis, even though the

test was not conclusive. I just never got better from it. Personally,

I think the fatigue, and other related problems (joint and muscle pain,

brain fog, dry skin, weight gain, hair loss, cold intolerance, etc.,

etc., etc.), are really due to a thyroid problem, and have thought that

for a long time.

I have a new doctor after my doctor of 20 years retired. After

discussing my CFS diagnosis, she wants to send me to an

endocrinologist, and I have an appointment in July. We ran a long list

of thyroid tests – every one I could find in doing my own research on

hypothyroidism – and they all came back within the normal range. The

only thing I could find in my reading that might indicate a problem is

the ratio of T3 and Free T3 to Reverse T3, which is why I joined this

group. My total T3 was 1.17, Free T3 was 3.27, and Reverse T3 was 203.

The other subject I keep running into is adrenal fatigue. However, the

websites where I’ve found information on adrenal fatigue all appear to

want to sell you things, so I kind of distrust the information I’m

getting there.

I did a search of this group’s posts and saw a number of posts on

CFS/Fibromyalgia (which I think are really the same thing), but I’d

love to pick all of your brains about the intersection of CFS/Fibro,

adrenal issues and thyroid issues. Any thoughts?

Thanks so much.

Lee

[Guest guest]

hi lee,

welcome:D!!

you came to the right place

think cfs and fibro are generic blanket diagnoses for the same systemic

condition...

if you have low thyroid, then you have all of the things you mentioned... and

you would be " chronically fatigued " ... and have aches and pains.

if you have tired out adrenal glands, then you might be low cortisol, and that

is the oil for our joint.... then you would have joint aches and pains....like

fibroM, plus an array of other symptoms. they have to put these fancy names on

it to market and sell to it.

its all related and cant be separated into different specific conditions, each

treated separately. each person is unique and came to their current state due

to a conglomeration of various influences from within and without. you seem to

have figured that out, so congrats

you also seem to have a doctor that will acknowledge the thyroid connection to

how you are feeling, and thats more than a lot of people can say. but dont put

all your money on the endo you find for all your answers... stick to your gut

and how YOUR BODY feels. you have to be the one to live in it at the end of the

day.

anyway, this stuff can be overwhelming, but i hope it is encouraging to know you

can have a say and can feel better because of it.

welcome again;)

hope this offers encouragement

>

> Hi, everyone. I¹m new here and thought I¹d toss in an introduction. I¹m 54

> and was diagnosed with CFS in 2003, although I¹ve had problems with chronic

> fatigue since I was 18 and had a mystery illness that was diagnosed as

> mononucleosis, even though the test was not conclusive. I just never got

> better from it. Personally, I think the fatigue, and other related problems

> (joint and muscle pain, brain fog, dry skin, weight gain, hair loss, cold

> intolerance, etc., etc., etc.), are really due to a thyroid problem, and

> have thought that for a long time.

>

> I have a new doctor after my doctor of 20 years retired. After discussing

> my CFS diagnosis, she wants to send me to an endocrinologist, and I have an

> appointment in July. We ran a long list of thyroid tests ­ every one I

> could find in doing my own research on hypothyroidism ­ and they all came

> back within the normal range. The only thing I could find in my reading

> that might indicate a problem is the ratio of T3 and Free T3 to Reverse T3,

> which is why I joined this group. My total T3 was 1.17, Free T3 was 3.27,

> and Reverse T3 was 203.

>

> The other subject I keep running into is adrenal fatigue. However, the

> websites where I¹ve found information on adrenal fatigue all appear to want

> to sell you things, so I kind of distrust the information I¹m getting there.

>

> I did a search of this group¹s posts and saw a number of posts on

> CFS/Fibromyalgia (which I think are really the same thing), but I¹d love to

> pick all of your brains about the intersection of CFS/Fibro, adrenal issues

> and thyroid issues. Any thoughts?

>

> Thanks so much.

>

> Lee

>

[Guest guest]

hi lee,

welcome:D!!

you came to the right place

think cfs and fibro are generic blanket diagnoses for the same systemic

condition...

if you have low thyroid, then you have all of the things you mentioned... and

you would be " chronically fatigued " ... and have aches and pains.

if you have tired out adrenal glands, then you might be low cortisol, and that

is the oil for our joint.... then you would have joint aches and pains....like

fibroM, plus an array of other symptoms. they have to put these fancy names on

it to market and sell to it.

its all related and cant be separated into different specific conditions, each

treated separately. each person is unique and came to their current state due

to a conglomeration of various influences from within and without. you seem to

have figured that out, so congrats

you also seem to have a doctor that will acknowledge the thyroid connection to

how you are feeling, and thats more than a lot of people can say. but dont put

all your money on the endo you find for all your answers... stick to your gut

and how YOUR BODY feels. you have to be the one to live in it at the end of the

day.

anyway, this stuff can be overwhelming, but i hope it is encouraging to know you

can have a say and can feel better because of it.

welcome again;)

hope this offers encouragement

>

> Hi, everyone. I¹m new here and thought I¹d toss in an introduction. I¹m 54

> and was diagnosed with CFS in 2003, although I¹ve had problems with chronic

> fatigue since I was 18 and had a mystery illness that was diagnosed as

> mononucleosis, even though the test was not conclusive. I just never got

> better from it. Personally, I think the fatigue, and other related problems

> (joint and muscle pain, brain fog, dry skin, weight gain, hair loss, cold

> intolerance, etc., etc., etc.), are really due to a thyroid problem, and

> have thought that for a long time.

>

> I have a new doctor after my doctor of 20 years retired. After discussing

> my CFS diagnosis, she wants to send me to an endocrinologist, and I have an

> appointment in July. We ran a long list of thyroid tests ­ every one I

> could find in doing my own research on hypothyroidism ­ and they all came

> back within the normal range. The only thing I could find in my reading

> that might indicate a problem is the ratio of T3 and Free T3 to Reverse T3,

> which is why I joined this group. My total T3 was 1.17, Free T3 was 3.27,

> and Reverse T3 was 203.

>

> The other subject I keep running into is adrenal fatigue. However, the

> websites where I¹ve found information on adrenal fatigue all appear to want

> to sell you things, so I kind of distrust the information I¹m getting there.

>

> I did a search of this group¹s posts and saw a number of posts on

> CFS/Fibromyalgia (which I think are really the same thing), but I¹d love to

> pick all of your brains about the intersection of CFS/Fibro, adrenal issues

> and thyroid issues. Any thoughts?

>

> Thanks so much.

>

> Lee

>