hello

[Guest guest]

Antonietta

I think Sharon might have been referring to the " bandster " meetings we hold

here in Armadale. The next one is on Tuesday 20th November, 7:30pm at 514

Orrong Road Armadale. We would love to see you there.

love, Liz

Re: Hello

Hi Sharon,

Yes I have been to the last two meetings and hope to go to each

meeting on a reqular basis as I think they are a great support. Tell

me about your surgery etc and hopefully we will meet up at the next

meeting!

Antonietta

Hi

> > Antonietta,

> >

> > Good luck for your op next week. I'm getting banded

> > on the 22nd of November

> > who is your specialist?

> >

> > Regards,

> >

> >

> >

> > Hello

> >

> >

> > > Hi Everyone,

> > > I wish I had found this earlier !!!

> > > I am having my surgery on Nov 2nd and am very

> > excited but also

> > > extremely anxious, moody, teary and scared. It is

> > such a weird

> > > feeling.

> > > I am very afraid of failure. Has anyone

> > experienced no weight loss

> > > or eventual weight gain??

> > > Has anyone experienced hair loss??

> > > Your feed back would be great.

> > > Antonietta

> > >

> > >

> > >

> > > ozband website:

> > > http://www.ozband.com

> > >

> > >

[Guest guest]

Hi Antonietta,

I am seeing Stuart Skinner he is at the Avenue Hospital. I live in Ballarat but I come down to the meetings once a month at Liz's, she can fill you in (Please Liz). You should come they are great. Really nice bunch of people. I can imagine that the nerves have started to kick in. Do you have MSN or ICQ a few of the girls and guys have these and converse on a regular basis if you would like to join in.

Take Care,

Hello> Hi Everyone,> I wish I had found this earlier !!!> I am having my surgery on Nov 2nd and am very excited but also> extremely anxious, moody, teary and scared. It is such a weird> feeling.> I am very afraid of failure. Has anyone experienced no weight loss> or eventual weight gain??> Has anyone experienced hair loss??> Your feed back would be great.> Antonietta>>>> ozband website:> http://www.ozband.com>>

[Guest guest]

Thankis Errin for the fax, and sorry I didn't acknowledge it earlier. It was most informative and thank you for going to the trouble of sending it.

Love, Liz

-----Original Message-----From: D & E Rodgers Sent: Tuesday, 30 October 2001 8:33 AMTo: ozband Subject: Re: Hello

PS Liz & Sharon did you get the fax that I sent. I hope so. If not let me know and I will fax it again.

[Guest guest]

<< Currently, I am married and we are expecting our first child in a

few months. >>

Welcome Craig and congratulations on the expected arrival of your little one.

A very exciting time.

Thanks for the information on Dr. Brent. I didn't know this.

Autumn

Mom to Brayden 22 months unilateral microtia/atresia

[Guest guest]

Hello

I am a new member and wanted to introduce myself. I am 36

years old and was born with hemifacial microsomia including

unilateral microtia, atresia and an underdeveloped jaw and chin.

When I was 5, I had a silicon implant that failed. After that, I didn't

have any surgeries for several years until my father read about

Dr. Brent in Time Magazine. This was when J. Getty's son

was kidnapped and had his ear cut off. Dr. Brent did the

reconstruction. Dr Brent also gave me a new ear, though not his

best work given the scar tissue I had from the implant. It is very

passable and most people don't know I was born without an ear.

I have also had jaw surgery to rebuild my jaw and chin. That's it

as far as surgeries go. I am not a good candidate for

canalplasty. My middle ear is too underdeveloped. However, I do

have good hearing in my other ear.

Currently, I am married and we are expecting our first child in a

few months. I was quite concerned about whether our child

would also have HFM. Fortunately, ultrasound technology has

come a long way. We were able to see both ears at 5 months

along with the symmetry of the face. We had a 3D- ultrasound

along with a level 2 ultrasound. To me , this is a godsend,

because it cuts down the amount of time we had to worry from 9

months to 5 months. It would also have given us time to prepare

emotionally.

Finally, this group is great. I have waited a long time for a group

like this though sometimes it is hard to read the posts. It is

comforting to know there are other people out there with the

same condition. Thanks again for the group

Craig

craig!

thats exactly how i found out about dr brent, through that article in time magazine!

that would be about 1979 or so, right??

come to ny and visit with dr brent!!

you would get a LOT of pleasure out of seeing the families do all they can for THEIR children, as your father did for YOU!

uncle jack

[Guest guest]

welcome craig!

Hello

Hello

I am a new member and wanted to introduce myself. I am 36

years old and was born with hemifacial microsomia including

unilateral microtia, atresia and an underdeveloped jaw and chin.

When I was 5, I had a silicon implant that failed. After that, I didn't

have any surgeries for several years until my father read about

Dr. Brent in Time Magazine. This was when J. Getty's son

was kidnapped and had his ear cut off. Dr. Brent did the

reconstruction. Dr Brent also gave me a new ear, though not his

best work given the scar tissue I had from the implant. It is very

passable and most people don't know I was born without an ear.

I have also had jaw surgery to rebuild my jaw and chin. That's it

as far as surgeries go. I am not a good candidate for

canalplasty. My middle ear is too underdeveloped. However, I do

have good hearing in my other ear.

Currently, I am married and we are expecting our first child in a

few months. I was quite concerned about whether our child

would also have HFM. Fortunately, ultrasound technology has

come a long way. We were able to see both ears at 5 months

along with the symmetry of the face. We had a 3D- ultrasound

along with a level 2 ultrasound. To me , this is a godsend,

because it cuts down the amount of time we had to worry from 9

months to 5 months. It would also have given us time to prepare

emotionally.

Finally, this group is great. I have waited a long time for a group

like this though sometimes it is hard to read the posts. It is

comforting to know there are other people out there with the

same condition. Thanks again for the group

Craig

[Guest guest]

Hello Craig

My name is Chelvi, I am from Malaysia and my son who is 4 has unilateral

microtia/atresia and slight HFM.

I am interested to know at what age did you have your rib graft ear

reconstruction done. Also, at what age did you have your jaw and chin

surgery? Could you pls describe what you meant when you said that your jaw

and chin was 'underdeveloped'? Did it interfere with your breathing and

eating?

Also anybody, is there a difference between a silicon and polyethelene

implant?

BTW congrats with the baby on the way.

Chelvi

Hello

Hello

I am a new member and wanted to introduce myself. I am 36

years old and was born with hemifacial microsomia including

unilateral microtia, atresia and an underdeveloped jaw and chin.

When I was 5, I had a silicon implant that failed. After that, I didn't

have any surgeries for several years until my father read about

Dr. Brent in Time Magazine. This was when J. Getty's son

was kidnapped and had his ear cut off. Dr. Brent did the

reconstruction. Dr Brent also gave me a new ear, though not his

best work given the scar tissue I had from the implant. It is very

passable and most people don't know I was born without an ear.

I have also had jaw surgery to rebuild my jaw and chin. That's it

as far as surgeries go. I am not a good candidate for

canalplasty. My middle ear is too underdeveloped. However, I do

have good hearing in my other ear.

Currently, I am married and we are expecting our first child in a

few months. I was quite concerned about whether our child

would also have HFM. Fortunately, ultrasound technology has

come a long way. We were able to see both ears at 5 months

along with the symmetry of the face. We had a 3D- ultrasound

along with a level 2 ultrasound. To me , this is a godsend,

because it cuts down the amount of time we had to worry from 9

months to 5 months. It would also have given us time to prepare

emotionally.

Finally, this group is great. I have waited a long time for a group

like this though sometimes it is hard to read the posts. It is

comforting to know there are other people out there with the

same condition. Thanks again for the group

Craig

[Guest guest]

Hi Craig and welcome! Thank you for sharing your personal story. I cannot

tell you how cherished your first hand description is to us.

Congratulations on your upcoming arrival! How wonderful! God bless your

family!

Love, beth

>

>Reply-To: AtresiaMicrotia

>To: AtresiaMicrotia

>Subject: Hello

>Date: Sun, 04 Aug 2002 16:18:09 -0000

>

>Hello

>I am a new member and wanted to introduce myself. I am 36

>years old and was born with hemifacial microsomia including

>unilateral microtia, atresia and an underdeveloped jaw and chin.

>When I was 5, I had a silicon implant that failed. After that, I didn't

>have any surgeries for several years until my father read about

>Dr. Brent in Time Magazine. This was when J. Getty's son

>was kidnapped and had his ear cut off. Dr. Brent did the

>reconstruction. Dr Brent also gave me a new ear, though not his

>best work given the scar tissue I had from the implant. It is very

>passable and most people don't know I was born without an ear.

>I have also had jaw surgery to rebuild my jaw and chin. That's it

>as far as surgeries go. I am not a good candidate for

>canalplasty. My middle ear is too underdeveloped. However, I do

>have good hearing in my other ear.

>Currently, I am married and we are expecting our first child in a

>few months. I was quite concerned about whether our child

>would also have HFM. Fortunately, ultrasound technology has

>come a long way. We were able to see both ears at 5 months

>along with the symmetry of the face. We had a 3D- ultrasound

>along with a level 2 ultrasound. To me , this is a godsend,

>because it cuts down the amount of time we had to worry from 9

>months to 5 months. It would also have given us time to prepare

>emotionally.

>Finally, this group is great. I have waited a long time for a group

>like this though sometimes it is hard to read the posts. It is

>comforting to know there are other people out there with the

>same condition. Thanks again for the group

>Craig

>

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

All right Suzanne! Way to take control again! Everyone has these bumps

(or lumps) in the road. But getting back on track quickly is the best

way to handle it.

Hello

Hi guys time to fess up. My last 2 days have been

xx++++++++++ but i'm back on!! Going on my power walk

as soon as i'm finished on the computer!! Your support

and encouragement are what gave me the inspiration to

get back on the wagon Thanks to everyone!!

Suzanne

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

You can do this Suzanne!!! You have been doing great, just get right back to

it!

Maureen

Hello

Hi guys time to fess up. My last 2 days have been

xx++++++++++ but i'm back on!! Going on my power walk

as soon as i'm finished on the computer!! Your support

and encouragement are what gave me the inspiration to

get back on the wagon Thanks to everyone!!

Suzanne

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

Welcome to the group. I think you will find a lot of people here who

understand what you are going through and that empathize with your

situation.

It is not uncommon for there to be different opinions about diagnosis-this

is because there is no medical test to find out if a kid really has ASD.

There are some medical tests that can rule out certain conditions like

fragile X and Landau-kleffner syndrome, but as far as ASD goes there are

only opinions.

My son who is now 3 years old 4 months was never definitively diagnosed

with autism, but instead there has been a variety of opinions as to what he

might have-some of these opinions vary a lot and nothing is very definite.

When he was 18 months old he lost all his speech and when he was 2 he was

unable to say mama or dad-he had only 25 words very inconsistently used(it

wasn't clear if he understood any of these 25 words he was saying). In

order for him to learn how to speak we had to teach him to use sign

language. His first word that we taught him was " more " . It took him a

whole month for him to learn how to sign and vocalize for more. When he

finally learned to sign for more, it was like a miracle to us. Then I spent

several weeks teaching him how to say mama and dada by using a photo album

which had pictures of me and my husband and other family members and going

through the photo album with him every day. Amazingly, he caught on and

started labeling everything in his environment.

My son also had a variety of unusual behaviors such as a fascination with

doors and lights. He would love to open and close doors and open and close

lights and would sometimes use language in unusual ways. In the year since

we started trying to figure out what was causing our sons problems, we have

gotten no definitive answers but have used a variety of intensive

interventions to work on his problems-things such as speech therapy, O.T,

P.T, ABA, Floortime, language camp, ans some dietary modifications.

Now my son is speaking in full sentences and is able to engage people

socially. If he were to be in a group of other kids his age, he could

probably do pretty well conversationally and socially. He is also doing

cognitively well. When he is with other people it is not obvious that there

was ever anything wrong with him to begin with. He is also making good

progress on toilet training and on fine and gross motor skills. A lot of

his unusual behaviors have disappeared or have greatly diminished. Though

we still have things we need to work on with him, we anticipate that by the

age of 4 or 5 he will be ready to go to preschool and regular kindergarten

with minimal or no problems.

I guess what I'm trying to say is that the diagnosis is not nearly as

important as getting early and intensive intervention.

Hang in there and know that there is hope-things do get better.

Debbie (mother of )

Debbie

Hello

We are new members to the group. Our names are and Celeste. We

have a 2 1/2 year old son who is not talking. He has been diagnosed

with ADHD and ASD. He has been through the neurological

evaluation and the speech therapy evaluation. Both Medical

professional have their own opinion on our sons diagnosis, mainly

conflicting opinions. We have joined this group to get a better

perspective on what we are dealing with.

Our son, KeVonne, seemingly has two sides to him. He is a very smart

and articulate child. he has a strong fascination with wheeled toys

and he loves building thing with his Legos. But those are the only

things he likes to play with. He has a difficult time getting along

with others and would prefer to play in " his " own space. He does not

like to be touched or looked at and when he is he throws quite a

tantrum. While having a temper tantrum KeVonne throws quite a fit

and at times we fear that he will hurt himself severely. He throws

things , bangs head against wall, pinches himself, slaps himself,

bites, screams and kicks his heals on the floor.This is a ver major

concern of ours.He is also very violent to his siblings.

Lately, since we have been going through all of these evaluations,

Its seems as though Ke Vonne has been reverting back to being a

baby. He sleeps all day, doesn't want to walk(he would rather be

carried), and cries ALL day.

Since this is new to us, we were just wondering if there is anyone

else who is going through or has gone through a similar situation.

In this ordeal, Dad is saying that we will get through it and that

everything is alright(denial) and mom is wondering if this is her

fault(responsible). we both acknowledge that there is something

wrong but we just don't want to put a label on our son. we have

faith that we can adjust to our sons needs and are just looking for

some insight form other parents who have expereinced this. Any input

would be greatly appreciated.

Thanks

and Celeste

Support Everyday Miracles by shopping online at IGIVE.COM, where a portion

of every purchase is donated to this support network. Proceeds received will

be used for a variety of functions, such as educational activities, therapy,

famiy outings, etc. http://www.igive.com/EDM

[Guest guest]

I second what Debbie says. Getting the proper treatment for the problems is much more important that getting the correct diagnosis.

My son went through the EEG/neurology stuff too, just because that's what neurologists do; he also had blood work done to rule out the genetic things (Fragile X, etc)....once that was done, we focused on the symptoms and treated those.

I would suggest you really push to get him going in an intensive early intervention program of some kind- don't let the school system drag their feet. There are also private ways to go- let us know if you need more ideas on resources out in your community that are apart from the public school system. Biomedical interventions help many of our kids- you may want to look into getting some testing done or looking into the GFCF diet (info about this at www.gfcfdiet.com ). Your son sounds like he really needs speech intervention and sensory OT- most kids start with it at least twice /week. There are many private resources available for this as well outside of the school district. Oakland County ASA has a great resource guide out with many of these resources (www.asaoakland.org ). Everyday Miracles has a lot of resources on the yahoo site too; check those out in the files and the links section for local resource information.

We are having a family picnic day next Saturday (Aug. 30th) in Clawson, I would encourage you (and everyone!) to come to the picnic to meet other families-- I have learned just about everything I know about autism from other parents who have walked the walk. We have monthly support group meetings too; I encourage you to come out to one of these to get more information and support.

It is scary in the beginning, trying to figure out what is going on....there are over 200 of us on-line who know what you are going through right now....you are not alone. But the good news is, there is hope and there is treatment available. So get ready to work, and things will get better.

Let us know if you need any more specific help or answers to your questions.

--

RE: Hello

Welcome to the group. I think you will find a lot of people here whounderstand what you are going through and that empathize with yoursituation.It is not uncommon for there to be different opinions about diagnosis-thisis because there is no medical test to find out if a kid really has ASD.There are some medical tests that can rule out certain conditions likefragile X and Landau-kleffner syndrome, but as far as ASD goes there areonly opinions.My son who is now 3 years old 4 months was never definitively diagnosedwith autism, but instead there has been a variety of opinions as to what hemight have-some of these opinions vary a lot and nothing is very definite.When he was 18 months old he lost all his speech and when he was 2 he wasunable to say mama or dad-he had only 25 words very inconsistently used(itwasn't clear if he understood any of these 25 words he was saying). Inorder for him to learn how to speak we had to teach him to use signlanguage. His first word that we taught him was "more". It took him awhole month for him to learn how to sign and vocalize for more. When hefinally learned to sign for more, it was like a miracle to us. Then I spentseveral weeks teaching him how to say mama and dada by using a photo albumwhich had pictures of me and my husband and other family members and goingthrough the photo album with him every day. Amazingly, he caught on andstarted labeling everything in his environment.My son also had a variety of unusual behaviors such as a fascination withdoors and lights. He would love to open and close doors and open and closelights and would sometimes use language in unusual ways. In the year sincewe started trying to figure out what was causing our sons problems, we havegotten no definitive answers but have used a variety of intensiveinterventions to work on his problems-things such as speech therapy, O.T,P.T, ABA, Floortime, language camp, ans some dietary modifications.Now my son is speaking in full sentences and is able to engage peoplesocially. If he were to be in a group of other kids his age, he couldprobably do pretty well conversationally and socially. He is also doingcognitively well. When he is with other people it is not obvious that therewas ever anything wrong with him to begin with. He is also making goodprogress on toilet training and on fine and gross motor skills. A lot ofhis unusual behaviors have disappeared or have greatly diminished. Thoughwe still have things we need to work on with him, we anticipate that by theage of 4 or 5 he will be ready to go to preschool and regular kindergartenwith minimal or no problems.I guess what I'm trying to say is that the diagnosis is not nearly asimportant as getting early and intensive intervention.Hang in there and know that there is hope-things do get better.Debbie (mother of )Debbie-----Original Message-----From: Celeste and Sent: Friday, August 22, 2003 11:00 PMTo: EverydayMiraclesAutism Subject: HelloWe are new members to the group. Our names are and Celeste. Wehave a 2 1/2 year old son who is not talking. He has been diagnosedwith ADHD and ASD. He has been through the neurologicalevaluation and the speech therapy evaluation. Both Medicalprofessional have their own opinion on our sons diagnosis, mainlyconflicting opinions. We have joined this group to get a betterperspective on what we are dealing with.Our son, KeVonne, seemingly has two sides to him. He is a very smartand articulate child. he has a strong fascination with wheeled toysand he loves building thing with his Legos. But those are the onlythings he likes to play with. He has a difficult time getting alongwith others and would prefer to play in "his" own space. He does notlike to be touched or looked at and when he is he throws quite atantrum. While having a temper tantrum KeVonne throws quite a fitand at times we fear that he will hurt himself severely. He throwsthings , bangs head against wall, pinches himself, slaps himself,bites, screams and kicks his heals on the floor.This is a ver majorconcern of ours.He is also very violent to his siblings.Lately, since we have been going through all of these evaluations,Its seems as though Ke Vonne has been reverting back to being ababy. He sleeps all day, doesn't want to walk(he would rather becarried), and cries ALL day.Since this is new to us, we were just wondering if there is anyoneelse who is going through or has gone through a similar situation.In this ordeal, Dad is saying that we will get through it and thateverything is alright(denial) and mom is wondering if this is herfault(responsible). we both acknowledge that there is somethingwrong but we just don't want to put a label on our son. we havefaith that we can adjust to our sons needs and are just looking forsome insight form other parents who have expereinced this. Any inputwould be greatly appreciated.Thanks and CelesteSupport Everyday Miracles by shopping online at IGIVE.COM, where a portionof every purchase is donated to this support network. Proceeds received willbe used for a variety of functions, such as educational activities, therapy,famiy outings, etc. http://www.igive.com/EDM

[Guest guest]

Wow, 19 pounds is awesome! You sound soooo happy and content with your life. I am glad you are making your goal. Now if you could rub some positive energy on to me we are set to go. LOL!

Neoshea Bergman

NHCD Recruiter

HIRING RECRUITERS THIS WEEK!

E-mail me for more information!

-- Hello

Hi everyone!!! I haven't been active just because I have had a ton of things happening lately......but I hope to try my best to be more active! Here is my intro!!!Hi! I'm Kammy! I have "all the time in the world"! I don't do a thing a day long! LOL! Oh is that a joke! I have three beautiful kidos! Twins that will be three this month and a 5 month old! My world is so colorful and I LOVE IT! And I am married to a wonderful man!! He was my high school sweetheart!!!! :)I joined WW back after the twins were born........then I decided that I could do it on my own verses going to meetings.......well, that didn't work. I slowly got of the bandwagon. Then I had Bryce and I am determined to make my dreams reality this time around. I KNOW that I need to stick to going to meetings......anyone else have the same experience???? I just weighed in last night. I have have lost 19 lbs in 8 weeks!!! YEH!! Next week I will be at my 10%! I can't wait! I am excited to get to know you all!!!!

Kammy Happily Married to Rob (05/08/00)Mommy toChase and Autumn (10/19/00)Bryce (05/09/03)

[Guest guest]

Kammy - welcome and congratulations on such a good loss.

Henri in Granbury

[Guest guest]

Hi Kammy,

Welcome to the group. My name is Debbie, mom to (2 1/2) and we live on Long Island, NY (but may be moving to PA one day). I'm a special ed teacher and a consultant for Discovery Toys. I'm trying to lose about 15-20lbs and they just don't want to come off (my own fault I'm sure, I've lost some, but now the scale is stuck). Anyway, so are your twins girls, boys for b/g? October is a great time for a birthday (I'll be 32 next Friday).

Good luck on your weight loss journey.

Debbie

~~~~~*****~~~~~*****~~~~~*****~~~~~*****~~~~~*****~~~~~Ask me about the BEST educational toys and how you can get them for FREE!!!Discovery Toys...I play for a living, how about you?

www.discoverytoyslink.com/DebbieGluck

Hello

Hi everyone!!! I haven't been active just because I have had a ton of things happening lately......but I hope to try my best to be more active! Here is my intro!!!Hi! I'm Kammy! I have "all the time in the world"! I don't do a thing a day long! LOL! Oh is that a joke! I have three beautiful kidos! Twins that will be three this month and a 5 month old! My world is so colorful and I LOVE IT! And I am married to a wonderful man!! He was my high school sweetheart!!!! :)I joined WW back after the twins were born........then I decided that I could do it on my own verses going to meetings.......well, that didn't work. I slowly got of the bandwagon. Then I had Bryce and I am determined to make my dreams reality this time around. I KNOW that I need to stick to going to meetings......anyone else have the same experience???? I just weighed in last night. I have have lost 19 lbs in 8 weeks!!! YEH!! Next week I will be at my 10%! I can't wait! I am excited to get to know you all!!!!

Kammy Happily Married to Rob (05/08/00)Mommy toChase and Autumn (10/19/00)Bryce (05/09/03)

[Guest guest]

Hi Pat!!

We're glad you're back. This is one terrific group.

Donna

>

> Thought I would introduce myself. Just started SBD Tuesday. So

far so

> good, even with Halloween candy everywhere. I had gone on SBD 18

months

> ago, and lost 10 pounds, and manged to keep it off for 6 months -

then last

> Thanksgiving and Christmas I gained, and just kept on gaining til

now I am

> at my all time high weight of 167, 10 lbs more than I started the

last time.

> I've set 3 goals - short, medium, and long. I'm 5'4, age 52. My

short

> goal is to get to 150 - so I will try to be really strict to get to

that

> point. My medium goal is 140, what I weighed 10 years ago. My

long goal is

> to weigh what my Mom weighs, 126, and about what I weighed when I

got

> married 22 years ago. I look forward to reading all your tips and

tricks,

> it was very helpful the last time.

>

> Pat

>

[Guest guest]

Betty2 ~ Hope you start feeling better !!!!! And that you have a loss by your next meeting for the anniversary........blessings and hugs, Randie

Hello

Have been off now for a couple of days so got behind, just haven't felt like setting at the computer.

For those of you I haven't said CONGRATULATIONS on your weight loss there it is!!

For those that might have stayed the same GREEN is a good color, you maintained!! For those who gained, this will be a new week and you know what to do, just do it.

Hope to feel better by Thursday as its our club aniversary surely do want to feel up to going.

Betty 2

[Guest guest]

Congratulations to thoses that losses, you're doing great, gainers; we

know what to do! turtles green is beautiful! top/kops, love, Eloy.