Re: Introduction

[Guest guest]

Hi . Welcome!!!! My son, , was diagnosed with a hearing loss at

the age of 5 2 years ago. We are in South Jersy and we go to Children's for

audiology/ENT. Where are you?

Cherie

Ian and R Collin wrote:

Hi all,

My name is and I live in the suburbs of Philadelphia.

My younger daughter is 1 month old and was diagnosed with severe (maybe worse)

hearing loss in both ears last week. She failed the newborn hearing screen at

the hospital 2 times, but as we knew multiple families whose children had failed

at the hospital and then passed upon further testing we tried not to worry too

much. We were shocked to find out at the more involved testing that our dear

girl couldn't hear. We have no family history of hearing loss and none of the

risk factors seem to apply to us.

We are still in the process of absorbing this news, as I'm sure you can all

imagine. I hope to learn a lot from all of you as we move ahead and do our best

to make sure our sweet little one has every advantage we can provide for her.

My first question - I am currently on maternity leave and am lucky enough to

be able to take 6 months off from work. I am due to return to my job at the end

of September. However, as I learn more and more, I am starting to wonder if it

will even be possible for my daughter to go to daycare. Any input?

I look forward to learning more about your kids and hope I will someday be a

good resource for others as well. Thanks!

---------------------------------

New Yahoo! Messenger with Voice. Call regular phones from your PC and save big.

[Guest guest]

Hi, ,

Welcome to the list! You have found a good place to ask questions and get

information. My son was also identified through newborn screening, and his

severe loss was confirmed at one month. Not my best memories of his

infancy!! I was actually laid off during my maternity leave, and decided I

couldn't handle a job and his care, so stayed home. But I know other people

who went back to work and found great daycare that was willing to learn

about how to care for infants with hearing loss, and I bet you can too.

For those babies who are in daycare, I believe the specialists that provide

services to age three go right to the daycare to work with the baby, and the

caregivers. And otherwise, with infants it's really about loving them. Also,

you would want to make sure that the caregivers know how to communicate with

your child, whether it's sign or speech or both. That may sway where you're

willing to leave your child.

Before I totally inundate you with info, I'll leave it at that. I'm sure

others will chime in! Feel free to ask more questions as they come to you;

someone is always here --

Take care,

Stefanie

Mom to Ben, 7, severe/profound HOH, and Isabella, 10, mild loss

on 5/4/06 3:09 PM, Ian and R Collin at ian_and_jen@... wrote:

> Hi all,

>

> My name is and I live in the suburbs of Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed with severe (maybe worse)

> hearing loss in both ears last week. She failed the newborn hearing screen at

> the hospital 2 times, but as we knew multiple families whose children had

> failed at the hospital and then passed upon further testing we tried not to

> worry too much. We were shocked to find out at the more involved testing that

> our dear girl couldn't hear. We have no family history of hearing loss and

> none of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this news, as I'm sure you can all

> imagine. I hope to learn a lot from all of you as we move ahead and do our

> best to make sure our sweet little one has every advantage we can provide for

> her.

>

> My first question - I am currently on maternity leave and am lucky enough to

> be able to take 6 months off from work. I am due to return to my job at the

> end of September. However, as I learn more and more, I am starting to wonder

> if it will even be possible for my daughter to go to daycare. Any input?

>

> I look forward to learning more about your kids and hope I will someday be a

> good resource for others as well. Thanks!

[Guest guest]

Hi, ,

Welcome to the list! You have found a good place to ask questions and get

information. My son was also identified through newborn screening, and his

severe loss was confirmed at one month. Not my best memories of his

infancy!! I was actually laid off during my maternity leave, and decided I

couldn't handle a job and his care, so stayed home. But I know other people

who went back to work and found great daycare that was willing to learn

about how to care for infants with hearing loss, and I bet you can too.

For those babies who are in daycare, I believe the specialists that provide

services to age three go right to the daycare to work with the baby, and the

caregivers. And otherwise, with infants it's really about loving them. Also,

you would want to make sure that the caregivers know how to communicate with

your child, whether it's sign or speech or both. That may sway where you're

willing to leave your child.

Before I totally inundate you with info, I'll leave it at that. I'm sure

others will chime in! Feel free to ask more questions as they come to you;

someone is always here --

Take care,

Stefanie

Mom to Ben, 7, severe/profound HOH, and Isabella, 10, mild loss

on 5/4/06 3:09 PM, Ian and R Collin at ian_and_jen@... wrote:

> Hi all,

>

> My name is and I live in the suburbs of Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed with severe (maybe worse)

> hearing loss in both ears last week. She failed the newborn hearing screen at

> the hospital 2 times, but as we knew multiple families whose children had

> failed at the hospital and then passed upon further testing we tried not to

> worry too much. We were shocked to find out at the more involved testing that

> our dear girl couldn't hear. We have no family history of hearing loss and

> none of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this news, as I'm sure you can all

> imagine. I hope to learn a lot from all of you as we move ahead and do our

> best to make sure our sweet little one has every advantage we can provide for

> her.

>

> My first question - I am currently on maternity leave and am lucky enough to

> be able to take 6 months off from work. I am due to return to my job at the

> end of September. However, as I learn more and more, I am starting to wonder

> if it will even be possible for my daughter to go to daycare. Any input?

>

> I look forward to learning more about your kids and hope I will someday be a

> good resource for others as well. Thanks!

[Guest guest]

Hi, ,

Welcome to the list! You have found a good place to ask questions and get

information. My son was also identified through newborn screening, and his

severe loss was confirmed at one month. Not my best memories of his

infancy!! I was actually laid off during my maternity leave, and decided I

couldn't handle a job and his care, so stayed home. But I know other people

who went back to work and found great daycare that was willing to learn

about how to care for infants with hearing loss, and I bet you can too.

For those babies who are in daycare, I believe the specialists that provide

services to age three go right to the daycare to work with the baby, and the

caregivers. And otherwise, with infants it's really about loving them. Also,

you would want to make sure that the caregivers know how to communicate with

your child, whether it's sign or speech or both. That may sway where you're

willing to leave your child.

Before I totally inundate you with info, I'll leave it at that. I'm sure

others will chime in! Feel free to ask more questions as they come to you;

someone is always here --

Take care,

Stefanie

Mom to Ben, 7, severe/profound HOH, and Isabella, 10, mild loss

on 5/4/06 3:09 PM, Ian and R Collin at ian_and_jen@... wrote:

> Hi all,

>

> My name is and I live in the suburbs of Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed with severe (maybe worse)

> hearing loss in both ears last week. She failed the newborn hearing screen at

> the hospital 2 times, but as we knew multiple families whose children had

> failed at the hospital and then passed upon further testing we tried not to

> worry too much. We were shocked to find out at the more involved testing that

> our dear girl couldn't hear. We have no family history of hearing loss and

> none of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this news, as I'm sure you can all

> imagine. I hope to learn a lot from all of you as we move ahead and do our

> best to make sure our sweet little one has every advantage we can provide for

> her.

>

> My first question - I am currently on maternity leave and am lucky enough to

> be able to take 6 months off from work. I am due to return to my job at the

> end of September. However, as I learn more and more, I am starting to wonder

> if it will even be possible for my daughter to go to daycare. Any input?

>

> I look forward to learning more about your kids and hope I will someday be a

> good resource for others as well. Thanks!

[Guest guest]

Hi

Six months! How lucky! I envy that!

Yes, your daugther can go to daycare. As a former single working mom,

mine were in day care, including my deaf 13 year old. It worked out

fine, really.

If your daugther does turn out to have a hearing loss, I need to tell

you though I think its little comfort - you have caught it SOOO early

and you are that much further ahead.

I am a still recent transplant to PA, also. My family and I are in

Mechanicsburg, suburb of burg and my daughter attends Western

PA school for the deaf, a very good residential school, in PGH, which

she started when she was 12. Buy PLEASE - DON'T EVEN THINK! that

that is somethng you need to be worrying about - I am mostly telling

you that because I have been pleasantly surprised at the resources PA

has to offer, which includes this school. The choice for Hayley to

attend this school was my family's but mostly Hayley's. More on

that some other time.

Welcome to the list, and best wishes. I know you are feeling lost

and overwhelmed now, but you've come to the right place, and we are

here to help you however we can.

> My name is and I live in the suburbs of Philadelphia.

> We are still in the process of absorbing this news, as I'm sure

you can all imagine. I hope to learn a lot from all of you as we

move ahead and do our best to make sure our sweet little one has

every advantage we can provide for her.

>

> My first question - I am currently on maternity leave and am

lucky enough to be able to take 6 months off from work. I am due to

return to my job at the end of September. However, as I learn more

and more, I am starting to wonder if it will even be possible for my

daughter to go to daycare. Any input?

>

>

[Guest guest]

Hi

Six months! How lucky! I envy that!

Yes, your daugther can go to daycare. As a former single working mom,

mine were in day care, including my deaf 13 year old. It worked out

fine, really.

If your daugther does turn out to have a hearing loss, I need to tell

you though I think its little comfort - you have caught it SOOO early

and you are that much further ahead.

I am a still recent transplant to PA, also. My family and I are in

Mechanicsburg, suburb of burg and my daughter attends Western

PA school for the deaf, a very good residential school, in PGH, which

she started when she was 12. Buy PLEASE - DON'T EVEN THINK! that

that is somethng you need to be worrying about - I am mostly telling

you that because I have been pleasantly surprised at the resources PA

has to offer, which includes this school. The choice for Hayley to

attend this school was my family's but mostly Hayley's. More on

that some other time.

Welcome to the list, and best wishes. I know you are feeling lost

and overwhelmed now, but you've come to the right place, and we are

here to help you however we can.

> My name is and I live in the suburbs of Philadelphia.

> We are still in the process of absorbing this news, as I'm sure

you can all imagine. I hope to learn a lot from all of you as we

move ahead and do our best to make sure our sweet little one has

every advantage we can provide for her.

>

> My first question - I am currently on maternity leave and am

lucky enough to be able to take 6 months off from work. I am due to

return to my job at the end of September. However, as I learn more

and more, I am starting to wonder if it will even be possible for my

daughter to go to daycare. Any input?

>

>

[Guest guest]

Hi

Six months! How lucky! I envy that!

Yes, your daugther can go to daycare. As a former single working mom,

mine were in day care, including my deaf 13 year old. It worked out

fine, really.

If your daugther does turn out to have a hearing loss, I need to tell

you though I think its little comfort - you have caught it SOOO early

and you are that much further ahead.

I am a still recent transplant to PA, also. My family and I are in

Mechanicsburg, suburb of burg and my daughter attends Western

PA school for the deaf, a very good residential school, in PGH, which

she started when she was 12. Buy PLEASE - DON'T EVEN THINK! that

that is somethng you need to be worrying about - I am mostly telling

you that because I have been pleasantly surprised at the resources PA

has to offer, which includes this school. The choice for Hayley to

attend this school was my family's but mostly Hayley's. More on

that some other time.

Welcome to the list, and best wishes. I know you are feeling lost

and overwhelmed now, but you've come to the right place, and we are

here to help you however we can.

> My name is and I live in the suburbs of Philadelphia.

> We are still in the process of absorbing this news, as I'm sure

you can all imagine. I hope to learn a lot from all of you as we

move ahead and do our best to make sure our sweet little one has

every advantage we can provide for her.

>

> My first question - I am currently on maternity leave and am

lucky enough to be able to take 6 months off from work. I am due to

return to my job at the end of September. However, as I learn more

and more, I am starting to wonder if it will even be possible for my

daughter to go to daycare. Any input?

>

>

[Guest guest]

Thanks for the welcome, Cherie!

We are going to CHOP for all of our hearing-related appts. Carys

(my daughter) is being fitted with her first set of hearing aids in

a few weeks. I can't imagine a 2 month old with a set of hearing

aids, but we'll see how it goes.

This is all just a lot to absorb right now - I'm sure you understand.

> Hi all,

>

> My name is and I live in the suburbs of Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed with severe

(maybe worse) hearing loss in both ears last week. She failed the

newborn hearing screen at the hospital 2 times, but as we knew

multiple families whose children had failed at the hospital and then

passed upon further testing we tried not to worry too much. We were

shocked to find out at the more involved testing that our dear girl

couldn't hear. We have no family history of hearing loss and none

of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this news, as I'm sure

you can all imagine. I hope to learn a lot from all of you as we

move ahead and do our best to make sure our sweet little one has

every advantage we can provide for her.

>

> My first question - I am currently on maternity leave and am

lucky enough to be able to take 6 months off from work. I am due to

return to my job at the end of September. However, as I learn more

and more, I am starting to wonder if it will even be possible for my

daughter to go to daycare. Any input?

>

> I look forward to learning more about your kids and hope I will

someday be a good resource for others as well. Thanks!

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones from your PC

and save big.

>

>

[Guest guest]

Thanks for the welcome, Cherie!

We are going to CHOP for all of our hearing-related appts. Carys

(my daughter) is being fitted with her first set of hearing aids in

a few weeks. I can't imagine a 2 month old with a set of hearing

aids, but we'll see how it goes.

This is all just a lot to absorb right now - I'm sure you understand.

> Hi all,

>

> My name is and I live in the suburbs of Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed with severe

(maybe worse) hearing loss in both ears last week. She failed the

newborn hearing screen at the hospital 2 times, but as we knew

multiple families whose children had failed at the hospital and then

passed upon further testing we tried not to worry too much. We were

shocked to find out at the more involved testing that our dear girl

couldn't hear. We have no family history of hearing loss and none

of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this news, as I'm sure

you can all imagine. I hope to learn a lot from all of you as we

move ahead and do our best to make sure our sweet little one has

every advantage we can provide for her.

>

> My first question - I am currently on maternity leave and am

lucky enough to be able to take 6 months off from work. I am due to

return to my job at the end of September. However, as I learn more

and more, I am starting to wonder if it will even be possible for my

daughter to go to daycare. Any input?

>

> I look forward to learning more about your kids and hope I will

someday be a good resource for others as well. Thanks!

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones from your PC

and save big.

>

>

[Guest guest]

Thanks for the welcome, Cherie!

We are going to CHOP for all of our hearing-related appts. Carys

(my daughter) is being fitted with her first set of hearing aids in

a few weeks. I can't imagine a 2 month old with a set of hearing

aids, but we'll see how it goes.

This is all just a lot to absorb right now - I'm sure you understand.

> Hi all,

>

> My name is and I live in the suburbs of Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed with severe

(maybe worse) hearing loss in both ears last week. She failed the

newborn hearing screen at the hospital 2 times, but as we knew

multiple families whose children had failed at the hospital and then

passed upon further testing we tried not to worry too much. We were

shocked to find out at the more involved testing that our dear girl

couldn't hear. We have no family history of hearing loss and none

of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this news, as I'm sure

you can all imagine. I hope to learn a lot from all of you as we

move ahead and do our best to make sure our sweet little one has

every advantage we can provide for her.

>

> My first question - I am currently on maternity leave and am

lucky enough to be able to take 6 months off from work. I am due to

return to my job at the end of September. However, as I learn more

and more, I am starting to wonder if it will even be possible for my

daughter to go to daycare. Any input?

>

> I look forward to learning more about your kids and hope I will

someday be a good resource for others as well. Thanks!

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones from your PC

and save big.

>

>

[Guest guest]

What audiologist do you see? They're all excellent! I have 3 kids and they've

all had hearing issues to some extent, so we know the audiologists very well at

this point!

You'll get through all this. Trust me, you'll be an expert before you know

it. Stick around here and you'll learn a lot. This is an awesome bunch of

mommies!!!!!

Cherie

ian_and_jen wrote:

Thanks for the welcome, Cherie!

We are going to CHOP for all of our hearing-related appts. Carys

(my daughter) is being fitted with her first set of hearing aids in

a few weeks. I can't imagine a 2 month old with a set of hearing

aids, but we'll see how it goes.

This is all just a lot to absorb right now - I'm sure you understand.

> Hi all,

>

> My name is and I live in the suburbs of Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed with severe

(maybe worse) hearing loss in both ears last week. She failed the

newborn hearing screen at the hospital 2 times, but as we knew

multiple families whose children had failed at the hospital and then

passed upon further testing we tried not to worry too much. We were

shocked to find out at the more involved testing that our dear girl

couldn't hear. We have no family history of hearing loss and none

of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this news, as I'm sure

you can all imagine. I hope to learn a lot from all of you as we

move ahead and do our best to make sure our sweet little one has

every advantage we can provide for her.

>

> My first question - I am currently on maternity leave and am

lucky enough to be able to take 6 months off from work. I am due to

return to my job at the end of September. However, as I learn more

and more, I am starting to wonder if it will even be possible for my

daughter to go to daycare. Any input?

>

> I look forward to learning more about your kids and hope I will

someday be a good resource for others as well. Thanks!

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones from your PC

and save big.

>

>

[Guest guest]

What audiologist do you see? They're all excellent! I have 3 kids and they've

all had hearing issues to some extent, so we know the audiologists very well at

this point!

You'll get through all this. Trust me, you'll be an expert before you know

it. Stick around here and you'll learn a lot. This is an awesome bunch of

mommies!!!!!

Cherie

ian_and_jen wrote:

Thanks for the welcome, Cherie!

We are going to CHOP for all of our hearing-related appts. Carys

(my daughter) is being fitted with her first set of hearing aids in

a few weeks. I can't imagine a 2 month old with a set of hearing

aids, but we'll see how it goes.

This is all just a lot to absorb right now - I'm sure you understand.

> Hi all,

>

> My name is and I live in the suburbs of Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed with severe

(maybe worse) hearing loss in both ears last week. She failed the

newborn hearing screen at the hospital 2 times, but as we knew

multiple families whose children had failed at the hospital and then

passed upon further testing we tried not to worry too much. We were

shocked to find out at the more involved testing that our dear girl

couldn't hear. We have no family history of hearing loss and none

of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this news, as I'm sure

you can all imagine. I hope to learn a lot from all of you as we

move ahead and do our best to make sure our sweet little one has

every advantage we can provide for her.

>

> My first question - I am currently on maternity leave and am

lucky enough to be able to take 6 months off from work. I am due to

return to my job at the end of September. However, as I learn more

and more, I am starting to wonder if it will even be possible for my

daughter to go to daycare. Any input?

>

> I look forward to learning more about your kids and hope I will

someday be a good resource for others as well. Thanks!

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones from your PC

and save big.

>

>

[Guest guest]

What audiologist do you see? They're all excellent! I have 3 kids and they've

all had hearing issues to some extent, so we know the audiologists very well at

this point!

You'll get through all this. Trust me, you'll be an expert before you know

it. Stick around here and you'll learn a lot. This is an awesome bunch of

mommies!!!!!

Cherie

ian_and_jen wrote:

Thanks for the welcome, Cherie!

We are going to CHOP for all of our hearing-related appts. Carys

(my daughter) is being fitted with her first set of hearing aids in

a few weeks. I can't imagine a 2 month old with a set of hearing

aids, but we'll see how it goes.

This is all just a lot to absorb right now - I'm sure you understand.

> Hi all,

>

> My name is and I live in the suburbs of Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed with severe

(maybe worse) hearing loss in both ears last week. She failed the

newborn hearing screen at the hospital 2 times, but as we knew

multiple families whose children had failed at the hospital and then

passed upon further testing we tried not to worry too much. We were

shocked to find out at the more involved testing that our dear girl

couldn't hear. We have no family history of hearing loss and none

of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this news, as I'm sure

you can all imagine. I hope to learn a lot from all of you as we

move ahead and do our best to make sure our sweet little one has

every advantage we can provide for her.

>

> My first question - I am currently on maternity leave and am

lucky enough to be able to take 6 months off from work. I am due to

return to my job at the end of September. However, as I learn more

and more, I am starting to wonder if it will even be possible for my

daughter to go to daycare. Any input?

>

> I look forward to learning more about your kids and hope I will

someday be a good resource for others as well. Thanks!

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones from your PC

and save big.

>

>

[Guest guest]

Hi and congrats on the birth of your daughter! I was

in your same situation 2 years ago and I know exactly

how you feel. It was a horrible time for us when it

should have been wonderful! But it DOES get easier.

My one piece of advice is to just enjoy that little

girl of yours and try not to stress just yet over her

hearing loss. She's still so young!

Does your daughter seem to react to sounds? I remember

I used to always open a can of soda near Lucy to see

if her eyes would blink or she would startle. I had

all kinds of tests. If she's startling to some sounds,

that's a good thing. Mother knows best!! Doctors

don't always know best! I will spare you our saga

which continues to this day but it does get better and

it does get easier. Keep getting her hearing tested

even though that is very hard to do as the babies get

older.

Good luck and if you have any questions let me know.

Alison

mom to Lucy - 2 years old - mild-moderate loss

--- Ian and R Collin

wrote:

> Hi all,

>

> My name is and I live in the suburbs of

> Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed

> with severe (maybe worse) hearing loss in both ears

> last week. She failed the newborn hearing screen at

> the hospital 2 times, but as we knew multiple

> families whose children had failed at the hospital

> and then passed upon further testing we tried not to

> worry too much. We were shocked to find out at the

> more involved testing that our dear girl couldn't

> hear. We have no family history of hearing loss and

> none of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this

> news, as I'm sure you can all imagine. I hope to

> learn a lot from all of you as we move ahead and do

> our best to make sure our sweet little one has every

> advantage we can provide for her.

>

> My first question - I am currently on maternity

> leave and am lucky enough to be able to take 6

> months off from work. I am due to return to my job

> at the end of September. However, as I learn more

> and more, I am starting to wonder if it will even be

> possible for my daughter to go to daycare. Any

> input?

>

> I look forward to learning more about your kids

> and hope I will someday be a good resource for

> others as well. Thanks!

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones

> from your PC and save big.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi and congrats on the birth of your daughter! I was

in your same situation 2 years ago and I know exactly

how you feel. It was a horrible time for us when it

should have been wonderful! But it DOES get easier.

My one piece of advice is to just enjoy that little

girl of yours and try not to stress just yet over her

hearing loss. She's still so young!

Does your daughter seem to react to sounds? I remember

I used to always open a can of soda near Lucy to see

if her eyes would blink or she would startle. I had

all kinds of tests. If she's startling to some sounds,

that's a good thing. Mother knows best!! Doctors

don't always know best! I will spare you our saga

which continues to this day but it does get better and

it does get easier. Keep getting her hearing tested

even though that is very hard to do as the babies get

older.

Good luck and if you have any questions let me know.

Alison

mom to Lucy - 2 years old - mild-moderate loss

--- Ian and R Collin

wrote:

> Hi all,

>

> My name is and I live in the suburbs of

> Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed

> with severe (maybe worse) hearing loss in both ears

> last week. She failed the newborn hearing screen at

> the hospital 2 times, but as we knew multiple

> families whose children had failed at the hospital

> and then passed upon further testing we tried not to

> worry too much. We were shocked to find out at the

> more involved testing that our dear girl couldn't

> hear. We have no family history of hearing loss and

> none of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this

> news, as I'm sure you can all imagine. I hope to

> learn a lot from all of you as we move ahead and do

> our best to make sure our sweet little one has every

> advantage we can provide for her.

>

> My first question - I am currently on maternity

> leave and am lucky enough to be able to take 6

> months off from work. I am due to return to my job

> at the end of September. However, as I learn more

> and more, I am starting to wonder if it will even be

> possible for my daughter to go to daycare. Any

> input?

>

> I look forward to learning more about your kids

> and hope I will someday be a good resource for

> others as well. Thanks!

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones

> from your PC and save big.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi and congrats on the birth of your daughter! I was

in your same situation 2 years ago and I know exactly

how you feel. It was a horrible time for us when it

should have been wonderful! But it DOES get easier.

My one piece of advice is to just enjoy that little

girl of yours and try not to stress just yet over her

hearing loss. She's still so young!

Does your daughter seem to react to sounds? I remember

I used to always open a can of soda near Lucy to see

if her eyes would blink or she would startle. I had

all kinds of tests. If she's startling to some sounds,

that's a good thing. Mother knows best!! Doctors

don't always know best! I will spare you our saga

which continues to this day but it does get better and

it does get easier. Keep getting her hearing tested

even though that is very hard to do as the babies get

older.

Good luck and if you have any questions let me know.

Alison

mom to Lucy - 2 years old - mild-moderate loss

--- Ian and R Collin

wrote:

> Hi all,

>

> My name is and I live in the suburbs of

> Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed

> with severe (maybe worse) hearing loss in both ears

> last week. She failed the newborn hearing screen at

> the hospital 2 times, but as we knew multiple

> families whose children had failed at the hospital

> and then passed upon further testing we tried not to

> worry too much. We were shocked to find out at the

> more involved testing that our dear girl couldn't

> hear. We have no family history of hearing loss and

> none of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this

> news, as I'm sure you can all imagine. I hope to

> learn a lot from all of you as we move ahead and do

> our best to make sure our sweet little one has every

> advantage we can provide for her.

>

> My first question - I am currently on maternity

> leave and am lucky enough to be able to take 6

> months off from work. I am due to return to my job

> at the end of September. However, as I learn more

> and more, I am starting to wonder if it will even be

> possible for my daughter to go to daycare. Any

> input?

>

> I look forward to learning more about your kids

> and hope I will someday be a good resource for

> others as well. Thanks!

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones

> from your PC and save big.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

I totally understand that it is difficult to imagine hearing aids on a

baby, but once she has them you will learn that looking at old photos of

her without them will look strange, like something is missing, but you

can't pinpoint what.

My daughter who is seventeen months old was fitted with hearing aids

when she was 11 weeks old. She has a moderate/moderately severe loss.

If you can have someone else with you when she gets her hearing aids,

please do. It is quite an emotional experience. My husband came and

listened to all the instructions about taking care of the aids, while I

reacted to my daughter's reactions to all these new noises she was

hearing for the first time.

in Manassas, VA

>

> We are going to CHOP for all of our hearing-related appts. Carys

> (my daughter) is being fitted with her first set of hearing aids in

> a few weeks. I can't imagine a 2 month old with a set of hearing

> aids, but we'll see how it goes.

>

> This is all just a lot to absorb right now - I'm sure you understand.

>

>

>

>

>

[Guest guest]

I totally understand that it is difficult to imagine hearing aids on a

baby, but once she has them you will learn that looking at old photos of

her without them will look strange, like something is missing, but you

can't pinpoint what.

My daughter who is seventeen months old was fitted with hearing aids

when she was 11 weeks old. She has a moderate/moderately severe loss.

If you can have someone else with you when she gets her hearing aids,

please do. It is quite an emotional experience. My husband came and

listened to all the instructions about taking care of the aids, while I

reacted to my daughter's reactions to all these new noises she was

hearing for the first time.

in Manassas, VA

>

> We are going to CHOP for all of our hearing-related appts. Carys

> (my daughter) is being fitted with her first set of hearing aids in

> a few weeks. I can't imagine a 2 month old with a set of hearing

> aids, but we'll see how it goes.

>

> This is all just a lot to absorb right now - I'm sure you understand.

>

>

>

>

>

[Guest guest]

Hi ,

Welcome to the group-- and congratulations on finding it so fast!

I'm Kerry, mom to Hadley who is now 4 1/2 years old. She, too, was

diagnosed through newborn hearing screen and was aided for her severe

bilateral loss when she was six months old. Hadley started

auditory-verbal therapy (AVT) the very next day (an oral method that

trains the child to really develop his/her listening skills without the

use of visual cues or lipreading). She is in her second year of

preschool, is preparing for a kids' opera recital next month, training

for her very first gymnastics show, taking a musical theatre class this

summer, and begging me to sign her up for daily swim lessons. The fact

that she listens with hearing aids is just a small part of her, just

like her hair is brown and her feet are big!

I did go back to work for a short time when Hadley was four months old,

and my husband took his family leave time then. For me, I just couldn't

do my job the way I wanted to and still be the kind of mother I wanted

to be for Hadley, so I resigned at the end of my husband's paternity

leave. AVT is parent guided therapy, so I really threw myself into

learning everything I could in those first few months. That, coupled

with the massive numbers of medical appointments, left me just enough

time to teach my daughter to talk!

Having said this, I have met so many great families who have made

daycare work for their children (and you will meet some of them in this

group). If staying at your job is your plan, you can make it happen in

a way that serves your entire family.

I don't think any of us have forgotten the shock and pain we experienced

in those early days of learning of our child(ren)'s hearing loss. I

will say that, for me, those early months of figuring out the diagnosis

and what to do were the absolute worst part of this whole journey.

Looking back, things have only become better since that day when Hadley

received her first set of aids. Don't get me wrong-- we've had our

share of obstacles and bad news along the way, but none of that compares

to the grief, anger and guilt I went through at the start of all of

this. And I'm glad I went through all of it, because it made me tougher

for my daughter.

You'll get to a good place-- we all do eventually. Until then, vent,

ask as many questions as you need to, and vent some more.

Kerry

Introduction

Hi all,

My name is and I live in the suburbs of Philadelphia.

My younger daughter is 1 month old and was diagnosed with severe (maybe

worse) hearing loss in both ears last week. She failed the newborn

hearing screen at the hospital 2 times, but as we knew multiple families

whose children had failed at the hospital and then passed upon further

testing we tried not to worry too much. We were shocked to find out at

the more involved testing that our dear girl couldn't hear. We have no

family history of hearing loss and none of the risk factors seem to

apply to us.

We are still in the process of absorbing this news, as I'm sure you

can all imagine. I hope to learn a lot from all of you as we move ahead

and do our best to make sure our sweet little one has every advantage we

can provide for her.

My first question - I am currently on maternity leave and am lucky

enough to be able to take 6 months off from work. I am due to return to

my job at the end of September. However, as I learn more and more, I am

starting to wonder if it will even be possible for my daughter to go to

daycare. Any input?

I look forward to learning more about your kids and hope I will

someday be a good resource for others as well. Thanks!

[Guest guest]

Hi ,

Welcome to the group-- and congratulations on finding it so fast!

I'm Kerry, mom to Hadley who is now 4 1/2 years old. She, too, was

diagnosed through newborn hearing screen and was aided for her severe

bilateral loss when she was six months old. Hadley started

auditory-verbal therapy (AVT) the very next day (an oral method that

trains the child to really develop his/her listening skills without the

use of visual cues or lipreading). She is in her second year of

preschool, is preparing for a kids' opera recital next month, training

for her very first gymnastics show, taking a musical theatre class this

summer, and begging me to sign her up for daily swim lessons. The fact

that she listens with hearing aids is just a small part of her, just

like her hair is brown and her feet are big!

I did go back to work for a short time when Hadley was four months old,

and my husband took his family leave time then. For me, I just couldn't

do my job the way I wanted to and still be the kind of mother I wanted

to be for Hadley, so I resigned at the end of my husband's paternity

leave. AVT is parent guided therapy, so I really threw myself into

learning everything I could in those first few months. That, coupled

with the massive numbers of medical appointments, left me just enough

time to teach my daughter to talk!

Having said this, I have met so many great families who have made

daycare work for their children (and you will meet some of them in this

group). If staying at your job is your plan, you can make it happen in

a way that serves your entire family.

I don't think any of us have forgotten the shock and pain we experienced

in those early days of learning of our child(ren)'s hearing loss. I

will say that, for me, those early months of figuring out the diagnosis

and what to do were the absolute worst part of this whole journey.

Looking back, things have only become better since that day when Hadley

received her first set of aids. Don't get me wrong-- we've had our

share of obstacles and bad news along the way, but none of that compares

to the grief, anger and guilt I went through at the start of all of

this. And I'm glad I went through all of it, because it made me tougher

for my daughter.

You'll get to a good place-- we all do eventually. Until then, vent,

ask as many questions as you need to, and vent some more.

Kerry

Introduction

Hi all,

My name is and I live in the suburbs of Philadelphia.

My younger daughter is 1 month old and was diagnosed with severe (maybe

worse) hearing loss in both ears last week. She failed the newborn

hearing screen at the hospital 2 times, but as we knew multiple families

whose children had failed at the hospital and then passed upon further

testing we tried not to worry too much. We were shocked to find out at

the more involved testing that our dear girl couldn't hear. We have no

family history of hearing loss and none of the risk factors seem to

apply to us.

We are still in the process of absorbing this news, as I'm sure you

can all imagine. I hope to learn a lot from all of you as we move ahead

and do our best to make sure our sweet little one has every advantage we

can provide for her.

My first question - I am currently on maternity leave and am lucky

enough to be able to take 6 months off from work. I am due to return to

my job at the end of September. However, as I learn more and more, I am

starting to wonder if it will even be possible for my daughter to go to

daycare. Any input?

I look forward to learning more about your kids and hope I will

someday be a good resource for others as well. Thanks!

[Guest guest]

Hi ,

Welcome to the group-- and congratulations on finding it so fast!

I'm Kerry, mom to Hadley who is now 4 1/2 years old. She, too, was

diagnosed through newborn hearing screen and was aided for her severe

bilateral loss when she was six months old. Hadley started

auditory-verbal therapy (AVT) the very next day (an oral method that

trains the child to really develop his/her listening skills without the

use of visual cues or lipreading). She is in her second year of

preschool, is preparing for a kids' opera recital next month, training

for her very first gymnastics show, taking a musical theatre class this

summer, and begging me to sign her up for daily swim lessons. The fact

that she listens with hearing aids is just a small part of her, just

like her hair is brown and her feet are big!

I did go back to work for a short time when Hadley was four months old,

and my husband took his family leave time then. For me, I just couldn't

do my job the way I wanted to and still be the kind of mother I wanted

to be for Hadley, so I resigned at the end of my husband's paternity

leave. AVT is parent guided therapy, so I really threw myself into

learning everything I could in those first few months. That, coupled

with the massive numbers of medical appointments, left me just enough

time to teach my daughter to talk!

Having said this, I have met so many great families who have made

daycare work for their children (and you will meet some of them in this

group). If staying at your job is your plan, you can make it happen in

a way that serves your entire family.

I don't think any of us have forgotten the shock and pain we experienced

in those early days of learning of our child(ren)'s hearing loss. I

will say that, for me, those early months of figuring out the diagnosis

and what to do were the absolute worst part of this whole journey.

Looking back, things have only become better since that day when Hadley

received her first set of aids. Don't get me wrong-- we've had our

share of obstacles and bad news along the way, but none of that compares

to the grief, anger and guilt I went through at the start of all of

this. And I'm glad I went through all of it, because it made me tougher

for my daughter.

You'll get to a good place-- we all do eventually. Until then, vent,

ask as many questions as you need to, and vent some more.

Kerry

Introduction

Hi all,

My name is and I live in the suburbs of Philadelphia.

My younger daughter is 1 month old and was diagnosed with severe (maybe

worse) hearing loss in both ears last week. She failed the newborn

hearing screen at the hospital 2 times, but as we knew multiple families

whose children had failed at the hospital and then passed upon further

testing we tried not to worry too much. We were shocked to find out at

the more involved testing that our dear girl couldn't hear. We have no

family history of hearing loss and none of the risk factors seem to

apply to us.

We are still in the process of absorbing this news, as I'm sure you

can all imagine. I hope to learn a lot from all of you as we move ahead

and do our best to make sure our sweet little one has every advantage we

can provide for her.

My first question - I am currently on maternity leave and am lucky

enough to be able to take 6 months off from work. I am due to return to

my job at the end of September. However, as I learn more and more, I am

starting to wonder if it will even be possible for my daughter to go to

daycare. Any input?

I look forward to learning more about your kids and hope I will

someday be a good resource for others as well. Thanks!

[Guest guest]

Hi , welcome to our little corner of the world. I had the opposite

situation than what you are in. My daughter was born with heairng loss but

wasn't diagnosed until she was almost 4 YEARS old! We had a lot of catching up

to do. This May is her 10 year anniversary of wearing hearing aids (for a

mod-severe loss). We did AV Therapy. I realize the Philly suburbs are big, but

there is a place called the Helen Beebe Center in Ft. Washington PA. As you

are deciding which direction you are going in, it helps to visit places that

offer the various modes of communication. The Beebe Center is probably the #1

center in the nation for Auditory Verbal therapy, where kids learn to listen and

talk. The great thing about AV Therapy for us is that the parent and child

attend once per week, so it is a little more doable from a little more

distance. We went to Atlanta which is almost 100 miles away. A great book that

tells about all the choices you'll be faced with is " CHoices in Deafness " by Sue

Schwartz. You can get it at your library or through interlibrary loan. Hugs to

you and welcome. in GA

[Guest guest]

Hi , welcome to our little corner of the world. I had the opposite

situation than what you are in. My daughter was born with heairng loss but

wasn't diagnosed until she was almost 4 YEARS old! We had a lot of catching up

to do. This May is her 10 year anniversary of wearing hearing aids (for a

mod-severe loss). We did AV Therapy. I realize the Philly suburbs are big, but

there is a place called the Helen Beebe Center in Ft. Washington PA. As you

are deciding which direction you are going in, it helps to visit places that

offer the various modes of communication. The Beebe Center is probably the #1

center in the nation for Auditory Verbal therapy, where kids learn to listen and

talk. The great thing about AV Therapy for us is that the parent and child

attend once per week, so it is a little more doable from a little more

distance. We went to Atlanta which is almost 100 miles away. A great book that

tells about all the choices you'll be faced with is " CHoices in Deafness " by Sue

Schwartz. You can get it at your library or through interlibrary loan. Hugs to

you and welcome. in GA

[Guest guest]

Hi , welcome to our little corner of the world. I had the opposite

situation than what you are in. My daughter was born with heairng loss but

wasn't diagnosed until she was almost 4 YEARS old! We had a lot of catching up

to do. This May is her 10 year anniversary of wearing hearing aids (for a

mod-severe loss). We did AV Therapy. I realize the Philly suburbs are big, but

there is a place called the Helen Beebe Center in Ft. Washington PA. As you

are deciding which direction you are going in, it helps to visit places that

offer the various modes of communication. The Beebe Center is probably the #1

center in the nation for Auditory Verbal therapy, where kids learn to listen and

talk. The great thing about AV Therapy for us is that the parent and child

attend once per week, so it is a little more doable from a little more

distance. We went to Atlanta which is almost 100 miles away. A great book that

tells about all the choices you'll be faced with is " CHoices in Deafness " by Sue

Schwartz. You can get it at your library or through interlibrary loan. Hugs to

you and welcome. in GA

[Guest guest]

Dear ,

Welcome to the group, you have come to the right place

if you haven't notice already. I am also a relatively

new member to this group and lurk a lot more than I

post, but I had to reply to you.

I am mom to , 2 hearing and 19 weeks

old. He also failed the newborn screening twice and

than took the ABR (Baer test) and it was discovered

that he has mild/severe hearing loss in both ears.

Neither my husband nor I have hearing loss in our

families so it was a shock to us. It turns out that

Connexin 26 is the cause for us.

When I was first told about 's hearing loss I was

in denial, kinda. I thought that he was turning to

sounds and reacting to sounds. However when he was 3

months he got his hearing aids, and I knew at moment

that they turned on the aids that he was missing

stuff. His eyes opened wide when the audiologist

started talking. At that point I knew that getting

everything early was the best thing for .

We live in NY and have been working with Early

Intervention for . He also has services from the

Department of Education and goes to a center based

program once a week. It is a little tough on

but she has been really good.

If you have any questions you can email me offline, it

seems that we are going to be going through the same

thing at the same time.

Good luck

Marni

--- Ian and R Collin

wrote:

> Hi all,

>

> My name is and I live in the suburbs of

> Philadelphia.

>

> My younger daughter is 1 month old and was diagnosed

> with severe (maybe worse) hearing loss in both ears

> last week. She failed the newborn hearing screen at

> the hospital 2 times, but as we knew multiple

> families whose children had failed at the hospital

> and then passed upon further testing we tried not to

> worry too much. We were shocked to find out at the

> more involved testing that our dear girl couldn't

> hear. We have no family history of hearing loss and

> none of the risk factors seem to apply to us.

>

> We are still in the process of absorbing this

> news, as I'm sure you can all imagine. I hope to

> learn a lot from all of you as we move ahead and do

> our best to make sure our sweet little one has every

> advantage we can provide for her.

>

> My first question - I am currently on maternity

> leave and am lucky enough to be able to take 6

> months off from work. I am due to return to my job

> at the end of September. However, as I learn more

> and more, I am starting to wonder if it will even be

> possible for my daughter to go to daycare. Any

> input?

>

> I look forward to learning more about your kids

> and hope I will someday be a good resource for

> others as well. Thanks!

>

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones

> from your PC and save big.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________