Re: Introduction

[Guest guest]

I saw a news blurb on a recent medical study, I think it was in JAMA or NEJM,

will try to get the article. Anyway, it was on ototoxic drugs, specifically

gentamicin. They said this wasn't such a problem in the states because

gentamycin isn't used much here, but it was a huge problem in China. They

conducted the study in China, and gave aspirin along with the gentamycin which

seemed to prevent the ototoxicity. The blurb I read said they took 3 grams of

aspirin (which is 9 regular sized 325 mg,) and that is a TOXIC dose if given

all at once, so I want to read the actual study. But I can tell you that

infants are often given Gentamycin if they are suspected to be septic. If you

waited until you knew which bug was growing, the baby would be dead. So they

give a combination of 3 antibiotics to cover for virtually all bugs known to

cause neonatal sepsis. One of the three is gentamycin or a cousin of it like

Amikacin. in GA

Re: Introduction

>

>I wanted to chime in on this. My son's hearing loss is caused entirely by

>known ototoxic drugs. On the treatment protocol that he did two years ago

>(for neuroblastoma), 62% of the kids end up with hearing loss severe enough

>to need hearing aids. In his case, the culprits were high dose cisplatin,

>lots and lots of amikacin, and Lasix.

>

>Bonnie

>

>

>>

>> Nice to hear from you, ! I wonder if your daughter's hearing loss

>> was

>> caused by the meds she took during her ear infections . . . I am learning

>> more and more about ototoxic drugs. You might want to check them out,

>> too.

>> Dr. Bauman is at another list I'm on, and he did extensive research on

>> them. It's scary.

>>

>> Link to some info.: http://hearinglosshelp.com/weblog/?cat=2

>>

>>

>> Blessings,

>> Robin T. in NC

>>

>>

>>

>>

>>

>>

>>

>

>

>

[Guest guest]

I saw a news blurb on a recent medical study, I think it was in JAMA or NEJM,

will try to get the article. Anyway, it was on ototoxic drugs, specifically

gentamicin. They said this wasn't such a problem in the states because

gentamycin isn't used much here, but it was a huge problem in China. They

conducted the study in China, and gave aspirin along with the gentamycin which

seemed to prevent the ototoxicity. The blurb I read said they took 3 grams of

aspirin (which is 9 regular sized 325 mg,) and that is a TOXIC dose if given

all at once, so I want to read the actual study. But I can tell you that

infants are often given Gentamycin if they are suspected to be septic. If you

waited until you knew which bug was growing, the baby would be dead. So they

give a combination of 3 antibiotics to cover for virtually all bugs known to

cause neonatal sepsis. One of the three is gentamycin or a cousin of it like

Amikacin. in GA

Re: Introduction

>

>I wanted to chime in on this. My son's hearing loss is caused entirely by

>known ototoxic drugs. On the treatment protocol that he did two years ago

>(for neuroblastoma), 62% of the kids end up with hearing loss severe enough

>to need hearing aids. In his case, the culprits were high dose cisplatin,

>lots and lots of amikacin, and Lasix.

>

>Bonnie

>

>

>>

>> Nice to hear from you, ! I wonder if your daughter's hearing loss

>> was

>> caused by the meds she took during her ear infections . . . I am learning

>> more and more about ototoxic drugs. You might want to check them out,

>> too.

>> Dr. Bauman is at another list I'm on, and he did extensive research on

>> them. It's scary.

>>

>> Link to some info.: http://hearinglosshelp.com/weblog/?cat=2

>>

>>

>> Blessings,

>> Robin T. in NC

>>

>>

>>

>>

>>

>>

>>

>

>

>

[Guest guest]

Hi ,

I'm Debbie, mom to and . is 6 and has a moderate

SNHL. She is mainstreamed in first grade and is the only child in her school

that wears hearing aids. She is doing well, but I know she can do better. We

didn't discover 's loss until she was 2 1/2. We believe that she was born

with her loss. She missed the newborn hearing screening because they didn't

start doing them at our hospital until 6 months after she was born. We had her

tested for connexin, a CT scan to check for LVAS and for a malformed cochlea.

All came back negative. We have no " cause " for her loss at this point in time

and figure we never will. is 3 and hearing, but he's been the one that

has had all of the other minor medical issues. When he was born he was in NICU

for 10 days due to sepis. He had numerous ear infections that lead to him

needing tubes. He's been to the emergency room twice for stiches to his

forehead (he is VERY much boy!). They keep me

quite busy.

Debbie

Alvarez wrote:

Thank you, I will definitely check that out. Till this day they're unable to

give me the reason how this happen. There is no history of hearing loss in our

family neither.

Some men see things as they are and ask why. Others dream things that never were

and ask why not. G.B Shaw

---------------------------------

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Hi ,

I'm Debbie, mom to and . is 6 and has a moderate

SNHL. She is mainstreamed in first grade and is the only child in her school

that wears hearing aids. She is doing well, but I know she can do better. We

didn't discover 's loss until she was 2 1/2. We believe that she was born

with her loss. She missed the newborn hearing screening because they didn't

start doing them at our hospital until 6 months after she was born. We had her

tested for connexin, a CT scan to check for LVAS and for a malformed cochlea.

All came back negative. We have no " cause " for her loss at this point in time

and figure we never will. is 3 and hearing, but he's been the one that

has had all of the other minor medical issues. When he was born he was in NICU

for 10 days due to sepis. He had numerous ear infections that lead to him

needing tubes. He's been to the emergency room twice for stiches to his

forehead (he is VERY much boy!). They keep me

quite busy.

Debbie

Alvarez wrote:

Thank you, I will definitely check that out. Till this day they're unable to

give me the reason how this happen. There is no history of hearing loss in our

family neither.

Some men see things as they are and ask why. Others dream things that never were

and ask why not. G.B Shaw

---------------------------------

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Do you remember anything concerning 's umbilical cord? Is there

anything on her birth record? Did you hear them say anything? Sydney

failed her newborn hearing screen in her left ear. It is common belief

that you can't have LVAS at birth because the aqueducts have not finished

forming. That's our first point of confusion.

Sydney had an easy birth, but when she came out, the nurse exclaimed that it

was good she came out when she did because she had two really tight knots in

her cord. I read later that when there is lack of oxygen at birth, hearing

is usually the first thing to start going. I believe LVAS was diagnosed for

her just because no one has another answer and her vestibular ducts are

slightly enlarged (fine by old measurements, a little large by latest

markers) . . . Strange to me that her hearing is the worst in the ear that

has the closest to normal duct size. ?????? Her hearing loss has remained

stable, and no falls, trampoline jumping, etc. changes anything. WE ARE

TOTALLY HAPPY WITH THAT . . . don't get me wrong . . . I just wonder if she

really has LVAS sometimes.

>

> Hi ,

> I'm Debbie, mom to and . is 6 and has a

> moderate SNHL. She is mainstreamed in first grade and is the only child in

> her school that wears hearing aids. She is doing well, but I know she can

> do better. We didn't discover 's loss until she was 2 1/2. We

> believe that she was born with her loss. She missed the newborn hearing

> screening because they didn't start doing them at our hospital until 6

> months after she was born. We had her tested for connexin, a CT scan to

> check for LVAS and for a malformed cochlea. All came back negative. We

> have no " cause " for her loss at this point in time and figure we never

> will. is 3 and hearing, but he's been the one that has had all of

> the other minor medical issues. When he was born he was in NICU for 10 days

> due to sepis. He had numerous ear infections that lead to him needing

> tubes. He's been to the emergency room twice for stiches to his forehead

> (he is VERY much boy!). They keep me

> quite busy.

>

> Debbie

>

> Alvarez wrote:

> Thank you, I will definitely check that out. Till this day they're

> unable to give me the reason how this happen. There is no history of hearing

> loss in our family neither.

>

>

>

> Some men see things as they are and ask why. Others dream things that

> never were and ask why not. G.B Shaw

>

>

>

>

>

>

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call

> rates.

>

>

[Guest guest]

Do you remember anything concerning 's umbilical cord? Is there

anything on her birth record? Did you hear them say anything? Sydney

failed her newborn hearing screen in her left ear. It is common belief

that you can't have LVAS at birth because the aqueducts have not finished

forming. That's our first point of confusion.

Sydney had an easy birth, but when she came out, the nurse exclaimed that it

was good she came out when she did because she had two really tight knots in

her cord. I read later that when there is lack of oxygen at birth, hearing

is usually the first thing to start going. I believe LVAS was diagnosed for

her just because no one has another answer and her vestibular ducts are

slightly enlarged (fine by old measurements, a little large by latest

markers) . . . Strange to me that her hearing is the worst in the ear that

has the closest to normal duct size. ?????? Her hearing loss has remained

stable, and no falls, trampoline jumping, etc. changes anything. WE ARE

TOTALLY HAPPY WITH THAT . . . don't get me wrong . . . I just wonder if she

really has LVAS sometimes.

>

> Hi ,

> I'm Debbie, mom to and . is 6 and has a

> moderate SNHL. She is mainstreamed in first grade and is the only child in

> her school that wears hearing aids. She is doing well, but I know she can

> do better. We didn't discover 's loss until she was 2 1/2. We

> believe that she was born with her loss. She missed the newborn hearing

> screening because they didn't start doing them at our hospital until 6

> months after she was born. We had her tested for connexin, a CT scan to

> check for LVAS and for a malformed cochlea. All came back negative. We

> have no " cause " for her loss at this point in time and figure we never

> will. is 3 and hearing, but he's been the one that has had all of

> the other minor medical issues. When he was born he was in NICU for 10 days

> due to sepis. He had numerous ear infections that lead to him needing

> tubes. He's been to the emergency room twice for stiches to his forehead

> (he is VERY much boy!). They keep me

> quite busy.

>

> Debbie

>

> Alvarez wrote:

> Thank you, I will definitely check that out. Till this day they're

> unable to give me the reason how this happen. There is no history of hearing

> loss in our family neither.

>

>

>

> Some men see things as they are and ask why. Others dream things that

> never were and ask why not. G.B Shaw

>

>

>

>

>

>

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call

> rates.

>

>

[Guest guest]

Robin Tomlinson wrote: Do you remember anything

concerning 's umbilical cord? Is there

anything on her birth record? Did you hear them say anything?

No, nothing different about her unbilical cord. I had an induced labor as she

was almost two weeks late and BOY was her skin a little flaky. The one thing I

do remember is the nurse telling me that when they did the PKU testing that she

never cried...she just flinched a bit.

Debbie

Some men see things as they are and ask why. Others dream things that never were

and ask why not. G.B Shaw

---------------------------------

Get amazing travel prices for air and hotel in one click on Yahoo! FareChase

[Guest guest]

Robin Tomlinson wrote: Do you remember anything

concerning 's umbilical cord? Is there

anything on her birth record? Did you hear them say anything?

No, nothing different about her unbilical cord. I had an induced labor as she

was almost two weeks late and BOY was her skin a little flaky. The one thing I

do remember is the nurse telling me that when they did the PKU testing that she

never cried...she just flinched a bit.

Debbie

Some men see things as they are and ask why. Others dream things that never were

and ask why not. G.B Shaw

---------------------------------

Get amazing travel prices for air and hotel in one click on Yahoo! FareChase

[Guest guest]

Hi Amy,

Thanks for the idea. And no I've never heard of it, where can I find it?

nisulaag1 wrote:

Hi ,

I have a son with a moderate to severe hearing loss in his right

ear. He will be 5 in August.

I was wondering if you have heard of the computer program Headsprout

(for reading.) It is very well done-- it was tested and refined

with actual children and is designed for all types of abilities and

learning styles. I would highly recommend it. It works on fluency

and comprehension as well and adapts to your child.

I just know headsprout has helped our family,

Amy

>

> Hi,

> My name is Alvarez. I have 3 children; Alyanna 7, severe-

profound hearing loss; 4, hearing & 1, hearing. First

of all, I would like to say this is amazing. It feels good knowing

there is so much support out there.

>

> Let me tell a little (I hope) about my daughter. Alyanna passed

the hearing test when she born, but had alot of ear infections from

newborn till she was one. I kept pushing the fact to her

pediatrician that my daughter wouldn't respond to my voice, unless I

clapped my hand very loud or yelled her name. He then send me to an

ENT. The ENT recommended ear tubes since she had alot of fluid in

her ears. After the tubes I still insisted that my daughter would

not respond. They finally send us to get another hearing test, which

confirmed that she had severe-profound loss in one ear and moderate-

severe on the other. She is now 7 and in 1st grade.She is in a

regular class, but gets pulled out for Language Arts. There is about

7 kids in her class that are hearing impared, but the entire class

use sign language and verbal communication. She is doing great in

some of her work but not so good in others....actually they only

problem is in reading and understading what she just read.

> Alyanna goes to an excellent school that had a great DHH program,

but at her last IEP they were actually considering on keeping her in

1st grade. I wasn't too pleased with the idea just because I didn't

feel it was necessay to repeat an entire grade for one subject. I

really don't know what to do. I feel that she tries so hard but is

not getting it, but everything else she is amazing. I'm actually

thinking in looking for a tutor with experience with hearing loss

and getting her speech therapy. If anyone has any suggestions I'm

very open to them.

>

> Also, I went for a follow up with her audiologist a couple of

weeks ago and she mentioned the fact that one ear is getting worst

than the other (she has over 90% hearing loss on her right ear). She

said that when she gets older she might not even want to bother with

a hearing aide on that ear since it doesn't help much. I asked her

about cochlear implants but she said she doesn't know if they do it

in just one ear. She said to do alot of research before getting it

done.

> Did I mention she also a great soccer player )

>

> I also wanted to ask Selena where can I get information

regarding ADHD-LD. I have a 14 year cousin that was diagnosed with

it since she was little but we feel there is more to it. The doctors

also mentioned TMH.

>

> Thank you so much for getting to know my family and helping us

with some situations.

> God Bless!!!

>

>

>

>

>

> ---------------------------------

> Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

Yahoo! Messenger with Voice.

>

>

[Guest guest]

Hi , I didn't get a chance to respond to you earlier. I'm Cherie. I have

3 kids... - 7, moderate - severe b/l snhl; - almost 6, hearing;

and - 4, severe conductive loss, still waiting on a " good " audiogram to

decide if she also has an underlying snhl (after 2 1/2 years if you can believe

that....there's never a time she doesn't have a blocked tube, infection, or

fluid). Anyway, I wanted to comment on what you said about the school wanting

to hold back your daughter. Go with your gut on that one. It sounds to me like

you don't feel that's the best course for her. I was in the opposite position

last year. did great academically, but he was a Sept baby and just made

the cut off date. I decided by the middle of first grade that I was going to

hold him back. I got horrible letters from the Child Study Team about how

adversly my decision was going to affect him. With the backing of the

principal, I stuck with my gut and held him back.

It was the best thing I ever did, and he is in no way adversely affected. I

think it's been harder for me than for him, to be honest. You know your

daughter better than anyone and just keep that in mind. I wish you luck with

your decision. I cannot begin to tell you how valuable the women here were to

me when I was trying to make that decision. I will always be grateful. I hope

you find the same wealth of information and support here that I have found.

Cherie

PS I love the name Alyanna. One of my best friend's little girl is named

Aliana. It's a beautiful name!!!!

>

> Let me tell a little (I hope) about my daughter. Alyanna passed

the hearing test when she born, but had alot of ear infections from

newborn till she was one. I kept pushing the fact to her

pediatrician that my daughter wouldn't respond to my voice, unless I

clapped my hand very loud or yelled her name. He then send me to an

ENT. The ENT recommended ear tubes since she had alot of fluid in

her ears. After the tubes I still insisted that my daughter would

not respond. They finally send us to get another hearing test, which

confirmed that she had severe-profound loss in one ear and moderate-

severe on the other. She is now 7 and in 1st grade.She is in a

regular class, but gets pulled out for Language Arts. There is about

7 kids in her class that are hearing impared, but the entire class

use sign language and verbal communication. She is doing great in

some of her work but not so good in others....actually they only

problem is in reading and understading what she just read.

> Alyanna goes to an excellent school that had a great DHH program,

but at her last IEP they were actually considering on keeping her in

1st grade. I wasn't too pleased with the idea just because I didn't

feel it was necessay to repeat an entire grade for one subject. I

really don't know what to do. I feel that she tries so hard but is

not getting it, but everything else she is amazing. I'm actually

thinking in looking for a tutor with experience with hearing loss

and getting her speech therapy. If anyone has any suggestions I'm

very open to them.

>

> Also, I went for a follow up with her audiologist a couple of

weeks ago and she mentioned the fact that one ear is getting worst

than the other (she has over 90% hearing loss on her right ear). She

said that when she gets older she might not even want to bother with

a hearing aide on that ear since it doesn't help much. I asked her

about cochlear implants but she said she doesn't know if they do it

in just one ear. She said to do alot of research before getting it

done.

> Did I mention she also a great soccer player )

>

> I also wanted to ask Selena where can I get information

regarding ADHD-LD. I have a 14 year cousin that was diagnosed with

it since she was little but we feel there is more to it. The doctors

also mentioned TMH.

>

> Thank you so much for getting to know my family and helping us

with some situations.

> God Bless!!!

>

>

>

>

>

> ---------------------------------

> Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

Yahoo! Messenger with Voice.

>

>

[Guest guest]

Hi , I didn't get a chance to respond to you earlier. I'm Cherie. I have

3 kids... - 7, moderate - severe b/l snhl; - almost 6, hearing;

and - 4, severe conductive loss, still waiting on a " good " audiogram to

decide if she also has an underlying snhl (after 2 1/2 years if you can believe

that....there's never a time she doesn't have a blocked tube, infection, or

fluid). Anyway, I wanted to comment on what you said about the school wanting

to hold back your daughter. Go with your gut on that one. It sounds to me like

you don't feel that's the best course for her. I was in the opposite position

last year. did great academically, but he was a Sept baby and just made

the cut off date. I decided by the middle of first grade that I was going to

hold him back. I got horrible letters from the Child Study Team about how

adversly my decision was going to affect him. With the backing of the

principal, I stuck with my gut and held him back.

It was the best thing I ever did, and he is in no way adversely affected. I

think it's been harder for me than for him, to be honest. You know your

daughter better than anyone and just keep that in mind. I wish you luck with

your decision. I cannot begin to tell you how valuable the women here were to

me when I was trying to make that decision. I will always be grateful. I hope

you find the same wealth of information and support here that I have found.

Cherie

PS I love the name Alyanna. One of my best friend's little girl is named

Aliana. It's a beautiful name!!!!

>

> Let me tell a little (I hope) about my daughter. Alyanna passed

the hearing test when she born, but had alot of ear infections from

newborn till she was one. I kept pushing the fact to her

pediatrician that my daughter wouldn't respond to my voice, unless I

clapped my hand very loud or yelled her name. He then send me to an

ENT. The ENT recommended ear tubes since she had alot of fluid in

her ears. After the tubes I still insisted that my daughter would

not respond. They finally send us to get another hearing test, which

confirmed that she had severe-profound loss in one ear and moderate-

severe on the other. She is now 7 and in 1st grade.She is in a

regular class, but gets pulled out for Language Arts. There is about

7 kids in her class that are hearing impared, but the entire class

use sign language and verbal communication. She is doing great in

some of her work but not so good in others....actually they only

problem is in reading and understading what she just read.

> Alyanna goes to an excellent school that had a great DHH program,

but at her last IEP they were actually considering on keeping her in

1st grade. I wasn't too pleased with the idea just because I didn't

feel it was necessay to repeat an entire grade for one subject. I

really don't know what to do. I feel that she tries so hard but is

not getting it, but everything else she is amazing. I'm actually

thinking in looking for a tutor with experience with hearing loss

and getting her speech therapy. If anyone has any suggestions I'm

very open to them.

>

> Also, I went for a follow up with her audiologist a couple of

weeks ago and she mentioned the fact that one ear is getting worst

than the other (she has over 90% hearing loss on her right ear). She

said that when she gets older she might not even want to bother with

a hearing aide on that ear since it doesn't help much. I asked her

about cochlear implants but she said she doesn't know if they do it

in just one ear. She said to do alot of research before getting it

done.

> Did I mention she also a great soccer player )

>

> I also wanted to ask Selena where can I get information

regarding ADHD-LD. I have a 14 year cousin that was diagnosed with

it since she was little but we feel there is more to it. The doctors

also mentioned TMH.

>

> Thank you so much for getting to know my family and helping us

with some situations.

> God Bless!!!

>

>

>

>

>

> ---------------------------------

> Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

Yahoo! Messenger with Voice.

>

>

[Guest guest]

Sydney was two weeks late and also induced. Cytotec is listed in Dr.

Bauman's ototoxic drug list, too. I believe they used Pitocin with me, but

I should check that.

RT

>

>

>

> Robin Tomlinson wrote: Do you remember

> anything concerning 's umbilical cord? Is there

> anything on her birth record? Did you hear them say anything?

>

>

> No, nothing different about her unbilical cord. I had an induced labor

> as she was almost two weeks late and BOY was her skin a little flaky. The

> one thing I do remember is the nurse telling me that when they did the PKU

> testing that she never cried...she just flinched a bit.

>

> Debbie

>

>

>

> Some men see things as they are and ask why. Others dream things that

> never were and ask why not. G.B Shaw

>

>

>

>

>

>

>

> ---------------------------------

> Get amazing travel prices for air and hotel in one click on Yahoo!

> FareChase

>

>

[Guest guest]

Sydney was two weeks late and also induced. Cytotec is listed in Dr.

Bauman's ototoxic drug list, too. I believe they used Pitocin with me, but

I should check that.

RT

>

>

>

> Robin Tomlinson wrote: Do you remember

> anything concerning 's umbilical cord? Is there

> anything on her birth record? Did you hear them say anything?

>

>

> No, nothing different about her unbilical cord. I had an induced labor

> as she was almost two weeks late and BOY was her skin a little flaky. The

> one thing I do remember is the nurse telling me that when they did the PKU

> testing that she never cried...she just flinched a bit.

>

> Debbie

>

>

>

> Some men see things as they are and ask why. Others dream things that

> never were and ask why not. G.B Shaw

>

>

>

>

>

>

>

> ---------------------------------

> Get amazing travel prices for air and hotel in one click on Yahoo!

> FareChase

>

>

[Guest guest]

I could very well be wrong. this is my opinion. I don't feel that

Cytotec used vaginally to ripen/dilate the cervix could cause

HOH/deaf-ness to the baby. I think if anything it could cause HL to the

mother.

-The other Robin (in Memphis) Mommy to Constance 6, Breanna 3 (mild HL?)

is 2 (on Friday)

Re: Introduction

Sydney was two weeks late and also induced. Cytotec is listed in Dr.

Bauman's ototoxic drug list, too. I believe they used Pitocin with me,

but

I should check that.

RT

_____

[Guest guest]

I could very well be wrong. this is my opinion. I don't feel that

Cytotec used vaginally to ripen/dilate the cervix could cause

HOH/deaf-ness to the baby. I think if anything it could cause HL to the

mother.

-The other Robin (in Memphis) Mommy to Constance 6, Breanna 3 (mild HL?)

is 2 (on Friday)

Re: Introduction

Sydney was two weeks late and also induced. Cytotec is listed in Dr.

Bauman's ototoxic drug list, too. I believe they used Pitocin with me,

but

I should check that.

RT

_____

[Guest guest]

probably so . . . i guess through our bloodstream, right? if that's so . .

.. our blood is their blood for a while

who knows? it's all so strange, and aggravating. i hate NOT KNOWING stuff.

>

> I could very well be wrong. this is my opinion. I don't feel that

> Cytotec used vaginally to ripen/dilate the cervix could cause

> HOH/deaf-ness to the baby. I think if anything it could cause HL to the

> mother.

>

> -The other Robin (in Memphis) Mommy to Constance 6, Breanna 3 (mild HL?)

> is 2 (on Friday)

>

>

> Re: Introduction

>

> Sydney was two weeks late and also induced. Cytotec is listed in Dr.

> Bauman's ototoxic drug list, too. I believe they used Pitocin with me,

> but

> I should check that.

>

> RT

>

>

>

>

>

> _____

>

>

>

>

>

[Guest guest]

probably so . . . i guess through our bloodstream, right? if that's so . .

.. our blood is their blood for a while

who knows? it's all so strange, and aggravating. i hate NOT KNOWING stuff.

>

> I could very well be wrong. this is my opinion. I don't feel that

> Cytotec used vaginally to ripen/dilate the cervix could cause

> HOH/deaf-ness to the baby. I think if anything it could cause HL to the

> mother.

>

> -The other Robin (in Memphis) Mommy to Constance 6, Breanna 3 (mild HL?)

> is 2 (on Friday)

>

>

> Re: Introduction

>

> Sydney was two weeks late and also induced. Cytotec is listed in Dr.

> Bauman's ototoxic drug list, too. I believe they used Pitocin with me,

> but

> I should check that.

>

> RT

>

>

>

>

>

> _____

>

>

>

>

>

[Guest guest]

Humm, as I read this red lights go off in my head. They have never found a

" reason " for Hailey's SNL (severe now). She passed the newborn screen, but I do

know that she was born also with 2 knots in her umbilical cord and it was

wrapped around her neck twice, She didn't need oxygen at birth, her apgars where

9 and 9 but I wonder now if the knots had anything to do with her loss. The ENT

said it had to have been present since birth but she wasn't dxed until age 2

1/2, she also has Sensory Intergration Dysfunction which made it harder for them

to dx her hearing loss. Hailey's loss has been progrssive, however we don't know

what causes it. No ear infection and no falls or head trama to speak of.

Intresting, I may have to ponder this somemore and ask the ENT and Audi about it

at her next appointment.

Selena

Mom to:

8 1/2, LD

7, DSI, Kidney issues and Child Onset Bipolar Disorder

6, ODD, ADHD, LD

5, DSI and Physcomotor Eppliepsy

Hailey 4, DSI, and Severe Bilatereal Sensory-neural Hearing Loss (aided

6-4-05)

and the 16 wonderful special ed kids I teach everyday! Go NORTHWOOD!!!!!!

---------------------------------

Get amazing travel prices for air and hotel in one click on Yahoo! FareChase

[Guest guest]

Humm, as I read this red lights go off in my head. They have never found a

" reason " for Hailey's SNL (severe now). She passed the newborn screen, but I do

know that she was born also with 2 knots in her umbilical cord and it was

wrapped around her neck twice, She didn't need oxygen at birth, her apgars where

9 and 9 but I wonder now if the knots had anything to do with her loss. The ENT

said it had to have been present since birth but she wasn't dxed until age 2

1/2, she also has Sensory Intergration Dysfunction which made it harder for them

to dx her hearing loss. Hailey's loss has been progrssive, however we don't know

what causes it. No ear infection and no falls or head trama to speak of.

Intresting, I may have to ponder this somemore and ask the ENT and Audi about it

at her next appointment.

Selena

Mom to:

8 1/2, LD

7, DSI, Kidney issues and Child Onset Bipolar Disorder

6, ODD, ADHD, LD

5, DSI and Physcomotor Eppliepsy

Hailey 4, DSI, and Severe Bilatereal Sensory-neural Hearing Loss (aided

6-4-05)

and the 16 wonderful special ed kids I teach everyday! Go NORTHWOOD!!!!!!

---------------------------------

Get amazing travel prices for air and hotel in one click on Yahoo! FareChase

[Guest guest]

Last time I looked this up, true knots in the cord are associated with fetal

death but not problems at birth. Cords that are looped around the neck (or other

body parts) can cause lack of oxygen during birth. But Apgars of 9 and 9 show

that even if they had a little hypoxia as they were being born, they bounced

back within 1 minute. Babies who are asphyxiated during the birth process

usually require some true resuscitation and that means a lower apgar score.

And ongoing treatment to support them in the ICU. 9/9 means bouncing healthy

baby. in GA

Re: Introduction

>

>Humm, as I read this red lights go off in my head. They have never found a

" reason " for Hailey's SNL (severe now). She passed the newborn screen, but I do

know that she was born also with 2 knots in her umbilical cord and it was

wrapped around her neck twice, She didn't need oxygen at birth, her apgars where

9 and 9 but I wonder now if the knots had anything to do with her loss. The ENT

said it had to have been present since birth but she wasn't dxed until age 2

1/2, she also has Sensory Intergration Dysfunction which made it harder for them

to dx her hearing loss. Hailey's loss has been progrssive, however we don't know

what causes it. No ear infection and no falls or head trama to speak of.

Intresting, I may have to ponder this somemore and ask the ENT and Audi about it

at her next appointment.

>

>

>

>

>

>

> Selena

> Mom to:

> 8 1/2, LD

> 7, DSI, Kidney issues and Child Onset Bipolar Disorder

> 6, ODD, ADHD, LD

> 5, DSI and Physcomotor Eppliepsy

> Hailey 4, DSI, and Severe Bilatereal Sensory-neural Hearing Loss (aided

6-4-05)

> and the 16 wonderful special ed kids I teach everyday! Go NORTHWOOD!!!!!!

>

>

>

>

>

>---------------------------------

>Get amazing travel prices for air and hotel in one click on Yahoo! FareChase

>

>

[Guest guest]

Last time I looked this up, true knots in the cord are associated with fetal

death but not problems at birth. Cords that are looped around the neck (or other

body parts) can cause lack of oxygen during birth. But Apgars of 9 and 9 show

that even if they had a little hypoxia as they were being born, they bounced

back within 1 minute. Babies who are asphyxiated during the birth process

usually require some true resuscitation and that means a lower apgar score.

And ongoing treatment to support them in the ICU. 9/9 means bouncing healthy

baby. in GA

Re: Introduction

>

>Humm, as I read this red lights go off in my head. They have never found a

" reason " for Hailey's SNL (severe now). She passed the newborn screen, but I do

know that she was born also with 2 knots in her umbilical cord and it was

wrapped around her neck twice, She didn't need oxygen at birth, her apgars where

9 and 9 but I wonder now if the knots had anything to do with her loss. The ENT

said it had to have been present since birth but she wasn't dxed until age 2

1/2, she also has Sensory Intergration Dysfunction which made it harder for them

to dx her hearing loss. Hailey's loss has been progrssive, however we don't know

what causes it. No ear infection and no falls or head trama to speak of.

Intresting, I may have to ponder this somemore and ask the ENT and Audi about it

at her next appointment.

>

>

>

>

>

>

> Selena

> Mom to:

> 8 1/2, LD

> 7, DSI, Kidney issues and Child Onset Bipolar Disorder

> 6, ODD, ADHD, LD

> 5, DSI and Physcomotor Eppliepsy

> Hailey 4, DSI, and Severe Bilatereal Sensory-neural Hearing Loss (aided

6-4-05)

> and the 16 wonderful special ed kids I teach everyday! Go NORTHWOOD!!!!!!

>

>

>

>

>

>---------------------------------

>Get amazing travel prices for air and hotel in one click on Yahoo! FareChase

>

>

[Guest guest]

In a message dated 5/4/2006 3:15:21 P.M. Eastern Daylight Time,

ian_and_jen@... writes:

My first question - I am currently on maternity leave and am lucky enough to

be able to take 6 months off from work. I am due to return to my job at the

end of September. However, as I learn more and more, I am starting to

wonder if it will even be possible for my daughter to go to daycare. Any

input?

First, welcome to the list. You'll find there is a wealth of knowledge and

sympathy here. Many people here have been exactly where you are right now and

are more than happy to share their experiences. So please don't be shy about

asking questions. We have all been new to this at some point.

We are also a hearing family without any D/HOH (deaf/hard of hearing)

people, unless we count my mother-in-law who got her aids when she was 78. It

was

also a shock for us and it takes time to accept it and let it settle in. I use

to refer to it as " getting use to our new reality. " And it took time for

everyone in the family to come to terms with it. So take it slow and go easy on

yourself.

I'm Jill, mom to a 15-year-old D/HOH boy named Ian. Our Ian has a moderate

progressive loss, which means it increases as time goes by. He wears hearing

aids and is now a sophomore in our local high school. We also have , a

hearing daughter who is 12 and often prefers not to listen. (grin) We learned

about our son's haring loss when he was 7, so I don't have any direct

experience being the mom of a baby with hearing loss. The good news, though, is

that

there are many people here in this list-serve who do.

As for daycare and even preschool ... there is no reason to assume that your

child will have to skip anything that any other child does. There are just

different considerations. There are kids on this list who do anything you can

think of: dance lessons, soccer, Little League, cheerleading, one boy

recently earned his black belt. Our son kayaks and rock climbs, and is a

" camping

machine " according to his friends. He's a Boy Scout who is a couple badges and

a project short of being an Eagle Scout. He also has a dry sense of humor, a

kind soul and likes silly movies like Airplane and Monty Python. His hearing

loss is only one little piece of who he is and he doesn't let it limit him.

Our kids may be a bit different from their hearing peers, but there is no

reason to think they are going to have limited lives. It's just not the case.

There is a lot of information that is going to be coming your way in a very

short period of time. I'm sure it's already started. It's too much to take in

all at once -- the acronyms alone were enough to reduce me to tears in the

beginning (like D/HOH), not to mention trying to make decisions about hearing

aids and communication styles. It is all very overwhelming.

But you should feel free to come onto this list and ask any questions you

have. We can help interpret doctor-speak and even help find resources in your

area. There are parents on this list from all over the country and even outside

the US. And we're glad to share our experiences.

Right now the best advice I can think of is to enjoy you new little lady.

You've already started to do what's needed for her hearing loss, now focus on

her as the wonder she is. Make stupid noises, sing to her and everything you

would do if she could hear you. She'll see your smile, feel your voice, and

know what you mean. Babies get the message just from our smiles and our

actions, so don't skimp on the sound just because she may not hear it.

I know that when I first found out about Ian's hearing loss, it became the

focus. I had to remind myself that he was real focus, not just how his ears

worked.

Again, welcome to the list,

Jill

[Guest guest]

In a message dated 5/4/2006 3:15:21 P.M. Eastern Daylight Time,

ian_and_jen@... writes:

My first question - I am currently on maternity leave and am lucky enough to

be able to take 6 months off from work. I am due to return to my job at the

end of September. However, as I learn more and more, I am starting to

wonder if it will even be possible for my daughter to go to daycare. Any

input?

First, welcome to the list. You'll find there is a wealth of knowledge and

sympathy here. Many people here have been exactly where you are right now and

are more than happy to share their experiences. So please don't be shy about

asking questions. We have all been new to this at some point.

We are also a hearing family without any D/HOH (deaf/hard of hearing)

people, unless we count my mother-in-law who got her aids when she was 78. It

was

also a shock for us and it takes time to accept it and let it settle in. I use

to refer to it as " getting use to our new reality. " And it took time for

everyone in the family to come to terms with it. So take it slow and go easy on

yourself.

I'm Jill, mom to a 15-year-old D/HOH boy named Ian. Our Ian has a moderate

progressive loss, which means it increases as time goes by. He wears hearing

aids and is now a sophomore in our local high school. We also have , a

hearing daughter who is 12 and often prefers not to listen. (grin) We learned

about our son's haring loss when he was 7, so I don't have any direct

experience being the mom of a baby with hearing loss. The good news, though, is

that

there are many people here in this list-serve who do.

As for daycare and even preschool ... there is no reason to assume that your

child will have to skip anything that any other child does. There are just

different considerations. There are kids on this list who do anything you can

think of: dance lessons, soccer, Little League, cheerleading, one boy

recently earned his black belt. Our son kayaks and rock climbs, and is a

" camping

machine " according to his friends. He's a Boy Scout who is a couple badges and

a project short of being an Eagle Scout. He also has a dry sense of humor, a

kind soul and likes silly movies like Airplane and Monty Python. His hearing

loss is only one little piece of who he is and he doesn't let it limit him.

Our kids may be a bit different from their hearing peers, but there is no

reason to think they are going to have limited lives. It's just not the case.

There is a lot of information that is going to be coming your way in a very

short period of time. I'm sure it's already started. It's too much to take in

all at once -- the acronyms alone were enough to reduce me to tears in the

beginning (like D/HOH), not to mention trying to make decisions about hearing

aids and communication styles. It is all very overwhelming.

But you should feel free to come onto this list and ask any questions you

have. We can help interpret doctor-speak and even help find resources in your

area. There are parents on this list from all over the country and even outside

the US. And we're glad to share our experiences.

Right now the best advice I can think of is to enjoy you new little lady.

You've already started to do what's needed for her hearing loss, now focus on

her as the wonder she is. Make stupid noises, sing to her and everything you

would do if she could hear you. She'll see your smile, feel your voice, and

know what you mean. Babies get the message just from our smiles and our

actions, so don't skimp on the sound just because she may not hear it.

I know that when I first found out about Ian's hearing loss, it became the

focus. I had to remind myself that he was real focus, not just how his ears

worked.

Again, welcome to the list,

Jill

[Guest guest]

Hi . Welcome!!!! My son, , was diagnosed with a hearing loss at

the age of 5 2 years ago. We are in South Jersy and we go to Children's for

audiology/ENT. Where are you?

Cherie

Ian and R Collin wrote:

Hi all,

My name is and I live in the suburbs of Philadelphia.

My younger daughter is 1 month old and was diagnosed with severe (maybe worse)

hearing loss in both ears last week. She failed the newborn hearing screen at

the hospital 2 times, but as we knew multiple families whose children had failed

at the hospital and then passed upon further testing we tried not to worry too

much. We were shocked to find out at the more involved testing that our dear

girl couldn't hear. We have no family history of hearing loss and none of the

risk factors seem to apply to us.

We are still in the process of absorbing this news, as I'm sure you can all

imagine. I hope to learn a lot from all of you as we move ahead and do our best

to make sure our sweet little one has every advantage we can provide for her.

My first question - I am currently on maternity leave and am lucky enough to

be able to take 6 months off from work. I am due to return to my job at the end

of September. However, as I learn more and more, I am starting to wonder if it

will even be possible for my daughter to go to daycare. Any input?

I look forward to learning more about your kids and hope I will someday be a

good resource for others as well. Thanks!

---------------------------------

New Yahoo! Messenger with Voice. Call regular phones from your PC and save big.

[Guest guest]

Hi . Welcome!!!! My son, , was diagnosed with a hearing loss at

the age of 5 2 years ago. We are in South Jersy and we go to Children's for

audiology/ENT. Where are you?

Cherie

Ian and R Collin wrote:

Hi all,

My name is and I live in the suburbs of Philadelphia.

My younger daughter is 1 month old and was diagnosed with severe (maybe worse)

hearing loss in both ears last week. She failed the newborn hearing screen at

the hospital 2 times, but as we knew multiple families whose children had failed

at the hospital and then passed upon further testing we tried not to worry too

much. We were shocked to find out at the more involved testing that our dear

girl couldn't hear. We have no family history of hearing loss and none of the

risk factors seem to apply to us.

We are still in the process of absorbing this news, as I'm sure you can all

imagine. I hope to learn a lot from all of you as we move ahead and do our best

to make sure our sweet little one has every advantage we can provide for her.

My first question - I am currently on maternity leave and am lucky enough to

be able to take 6 months off from work. I am due to return to my job at the end

of September. However, as I learn more and more, I am starting to wonder if it

will even be possible for my daughter to go to daycare. Any input?

I look forward to learning more about your kids and hope I will someday be a

good resource for others as well. Thanks!

---------------------------------

New Yahoo! Messenger with Voice. Call regular phones from your PC and save big.