New Member

Report post · August 23, 2002

Thanks so much for the welcome and what an inspiration you are. If you can keep

plugging along everyday then I can do the same thing. Nice to meet someone that

has stats close to mine. There is like maybe a six pound difference? My husband

and I are starting the WW at home program. I start school in two weeks on top of

looking for a full-time job since I lost mine in June, I do not have the time to

go to a meeting. A friend of mine recommended it so I thought why not. I am

really excited about doing it and my husband is too.

Betsy

Re: New Member

Welcome Betsy!!!!! This is an awesome group. We have very close stats. I started

at 319 and am in the 260 now. This group will really support you. Look forward

to getting to know you.

Zephyr

Report post · August 23, 2002

Thanks Maureen for the welcome. I have looked at the files. Was able to get a

few recipes. Very nice. I really like the group. Congrats on your loss so far.

WEIGH TO GOAL!!!!!!

Betsy

Re: New Member

HI and Welcome to the group Betsy!!! CONGRATULATIONS on your losses so far!!!!!

That is AWESOME!!!!

My name is Maureen. I am in Texas, but originally form LaFayette, NY. I

started at 225 and am at 165 right now. I am married to the love of my life for

13 years and we have 3 children.

We have a great bunch of losers with tons of support, encouragement, and advice

to help you along your way! Be sure to check out our Files, Database, and

Bookmarks for great tools and information. Ask any questions and post often!

Maureen

Report post · August 24, 2002

Welcome to the group Betsy! This is a wonderful group of ladies! Looking

forward to loosing with you.

-- Re: New Member

Thanks Maureen for the welcome. I have looked at the files. Was able to get

a few recipes. Very nice. I really like the group. Congrats on your loss so

far. WEIGH TO GOAL!!!!!!

Betsy

Re: New Member

HI and Welcome to the group Betsy!!! CONGRATULATIONS on your losses so

far!!!!! That is AWESOME!!!!

My name is Maureen. I am in Texas, but originally form LaFayette, NY. I

started at 225 and am at 165 right now. I am married to the love of my life

for 13 years and we have 3 children.

We have a great bunch of losers with tons of support, encouragement, and

advice to help you along your way! Be sure to check out our Files, Database

and Bookmarks for great tools and information. Ask any questions and post

often!

Maureen

Report post · August 24, 2002

wElCoMe QuEeN vIcToRiA...

ha! ha! ha! after visiting you amazing website, i just had to write like

that!!!! your site is great - it must have taken ages to compile such a

wonderful " castle " - i am quite sure that your dreams of becoming a famous

'whatever' will definately become a reality!! you certainly have the

talent!!

regards,

kelly (mom to ella 1yr 10mths-unilateral microtia/atresia)

New member

>Date: Fri, 23 Aug 2002 15:31:41 -0700 (PDT)

>

>Hi, everyone! I just joined the group yesterday and

>thought I'd introduce myself. I am a 22 year old

>college student (attending a college in my state, but

>may spend a semester at Gally so I can become fluent

>in ASL)with bilateral aural atresia (As well as absent

>eardrums and the bones in my inner ear are fused

>together) due to 18q- syndrome (a chromosome disorder)

>I had the surgery done on my left ear,by Dr. Roland

>Eavy at Mass. Eye and Ear, back in '96. It worked at

>first but then closed up again. I still wear an ITE in

>that ear,(due to a mild loss)and I also wear a BTE

>(mild-moderate loss) in my right ear.

>Got to run.(leaving for college in a couple of weeks!)

>Hope to hear from everyone soon.

>Torrie

>

>=====

>Let there be peace on earth, and let it begin with me.

> " Deaf people can do anything except hear! " Dr. I.King Jordan

>

> " I'd found myself becoming more immobile, when I'd think a little girl in

>the world can't do anything. A distant nation my community, a street person

>my responsbilty. If I have a care in the world, I have a gift to

>bring " - " Hammer & a Nail " Indigo Girls

>

>Waste some time looking at my webpage!:

>http://www.angelfire.com/grrl/deafgrrl/indextwo.html

>

>__________________________________________________

>

Report post · August 25, 2002

hi torrie

can u get to nyc on oct 6th to meet with dr j?

its not TOO far from gally...

jack gross

if u need an invitation...let me know..

i think we have 64 families with atresis kids signed up

jack

Report post · August 26, 2002

Thanks for the welcome !

Re: New Member

Welcome to the group Betsy! This is a wonderful group of ladies! Looking

forward to loosing with you.

Report post · December 26, 2002

Hi everyone! When I was born, I had a tiny sausage-type shaped left ear and no opening.

hi laura

welcome

i am the father of a boy who was born with R microtia and bilateral atresia, in 1975.

he now has 3 mormal kids.

he was operated on when he was 7 by dr brent who, in a series of 3 surgeries, gave him a newly constructed auricle.

he was then operated on by dr jahrsdoerfer who opened his canal and repaired the atresia, in both ears.

he now hears normally, and looks (in his fathers humble opinion) like a movie star.

dr brents website is www.earsurgery.com

and you'll learn a lot from it, i assure you.

i've hosted meetings for these 2 doctors to come to nyc over the last 17 years.

in october we had 100 families, most of them new, come together to hear the lectures and meet each other for freindship and support.

my guess is that i have helped put 1000 kids into this surgery, and handful of adults as well, though many of the newer kids may as yet only be scheduling this or considering it.

this is an incredible group, warm caring, and well-informed.

they know of other protocols in other locales, insurance solutions, legal remedies, and hairstyles.

we're glad you're here. we were waiting for you.

jack

Report post · December 26, 2002

Hi everyone! When I was born, I had a tiny sausage-type shaped left ear and no opening.

hi laura

welcome

i am the father of a boy who was born with R microtia and bilateral atresia, in 1975.

he now has 3 mormal kids.

he was operated on when he was 7 by dr brent who, in a series of 3 surgeries, gave him a newly constructed auricle.

he was then operated on by dr jahrsdoerfer who opened his canal and repaired the atresia, in both ears.

he now hears normally, and looks (in his fathers humble opinion) like a movie star.

dr brents website is www.earsurgery.com

and you'll learn a lot from it, i assure you.

i've hosted meetings for these 2 doctors to come to nyc over the last 17 years.

in october we had 100 families, most of them new, come together to hear the lectures and meet each other for freindship and support.

my guess is that i have helped put 1000 kids into this surgery, and handful of adults as well, though many of the newer kids may as yet only be scheduling this or considering it.

this is an incredible group, warm caring, and well-informed.

they know of other protocols in other locales, insurance solutions, legal remedies, and hairstyles.

we're glad you're here. we were waiting for you.

jack

Report post · December 26, 2002

Hi everyone! When I was born, I had a tiny sausage-type shaped left ear and no opening.

hi laura

welcome

i am the father of a boy who was born with R microtia and bilateral atresia, in 1975.

he now has 3 mormal kids.

he was operated on when he was 7 by dr brent who, in a series of 3 surgeries, gave him a newly constructed auricle.

he was then operated on by dr jahrsdoerfer who opened his canal and repaired the atresia, in both ears.

he now hears normally, and looks (in his fathers humble opinion) like a movie star.

dr brents website is www.earsurgery.com

and you'll learn a lot from it, i assure you.

i've hosted meetings for these 2 doctors to come to nyc over the last 17 years.

in october we had 100 families, most of them new, come together to hear the lectures and meet each other for freindship and support.

my guess is that i have helped put 1000 kids into this surgery, and handful of adults as well, though many of the newer kids may as yet only be scheduling this or considering it.

this is an incredible group, warm caring, and well-informed.

they know of other protocols in other locales, insurance solutions, legal remedies, and hairstyles.

we're glad you're here. we were waiting for you.

jack

Report post · December 27, 2002

Hi and welcome to the group!

I have a son Josh (10) who has right microtia/atresia and Hemi facial

microsomia. He had his ear reconstructed this past year by Dr. Brent in

California. I went to the ccakids.com site which is a craniofacial

association for children. They have a few specialists listed in Illinois

and Indiana, but none for Wisconsin. I've included the info they have for

craniofacial specialists:

Bruce Bauer MD

2300 Children's Plaza

Chicago, IL 60614

A Sadove MD

702 Barnhill Dr.

Indianapolis, IN 46202

Dr. Eppley

Indianapolis, Indiana

(LINDA P. CAN YOU SUPPLY THE PHONE NUMBER?)

Is there a children's hospital in Milwaukee? You may want to find out if

they have a cranio-facial department. They may be able to point you in the

right direction for a good plastic surgeon and oral surgeon, for your jaw,

who specialize in cranio facial concerns. Have you considered a prostetic

ear? There are so many options and so many experiences on this website. So

very glad to have you aboard!

Love, beth

>

>Reply-To: AtresiaMicrotia

>To: AtresiaMicrotia >

>Subject: Re: new member-Jack

>Date: Fri, 27 Dec 2002 00:00:30 -0600

>

>Thanks Jack!!! I looked at Dr. Brent's website and some others that were in

>the files section on the yahoo group site. I'm hoping to find a specialist

>near Milwaukee but having no luck so far.

>

> Re: new member

>

> In a message dated 12/25/2002 3:58:36 AM Eastern Standard Time,

>florabaura@... writes:

>

> Hi everyone! When I was born, I had a tiny sausage-type shaped left

>ear and no opening.

>

> hi laura

> welcome

> i am the father of a boy who was born with R microtia and bilateral

>atresia, in 1975.

> he now has 3 mormal kids.

> he was operated on when he was 7 by dr brent who, in a series of 3

>surgeries, gave him a newly constructed auricle.

> he was then operated on by dr jahrsdoerfer who opened his canal and

>repaired the atresia, in both ears.

> he now hears normally, and looks (in his fathers humble opinion) like a

>movie star.

> dr brents website is www.earsurgery.com

> and you'll learn a lot from it, i assure you.

> i've hosted meetings for these 2 doctors to come to nyc over the last 17

>years.

> in october we had 100 families, most of them new, come together to hear

>the lectures and meet each other for freindship and support.

> my guess is that i have helped put 1000 kids into this surgery, and

>handful of adults as well, though many of the newer kids may as yet only be

>scheduling this or considering it.

>

> this is an incredible group, warm caring, and well-informed.

> they know of other protocols in other locales, insurance solutions,

>legal remedies, and hairstyles.

> we're glad you're here. we were waiting for you.

>

> jack

>

Report post · December 27, 2002

Hi and welcome to the group!

I have a son Josh (10) who has right microtia/atresia and Hemi facial

microsomia. He had his ear reconstructed this past year by Dr. Brent in

California. I went to the ccakids.com site which is a craniofacial

association for children. They have a few specialists listed in Illinois

and Indiana, but none for Wisconsin. I've included the info they have for

craniofacial specialists:

Bruce Bauer MD

2300 Children's Plaza

Chicago, IL 60614

A Sadove MD

702 Barnhill Dr.

Indianapolis, IN 46202

Dr. Eppley

Indianapolis, Indiana

(LINDA P. CAN YOU SUPPLY THE PHONE NUMBER?)

Is there a children's hospital in Milwaukee? You may want to find out if

they have a cranio-facial department. They may be able to point you in the

right direction for a good plastic surgeon and oral surgeon, for your jaw,

who specialize in cranio facial concerns. Have you considered a prostetic

ear? There are so many options and so many experiences on this website. So

very glad to have you aboard!

Love, beth

>

>Reply-To: AtresiaMicrotia

>To: AtresiaMicrotia >

>Subject: Re: new member-Jack

>Date: Fri, 27 Dec 2002 00:00:30 -0600

>

>Thanks Jack!!! I looked at Dr. Brent's website and some others that were in

>the files section on the yahoo group site. I'm hoping to find a specialist

>near Milwaukee but having no luck so far.

>

> Re: new member

>

> In a message dated 12/25/2002 3:58:36 AM Eastern Standard Time,

>florabaura@... writes:

>

> Hi everyone! When I was born, I had a tiny sausage-type shaped left

>ear and no opening.

>

> hi laura

> welcome

> i am the father of a boy who was born with R microtia and bilateral

>atresia, in 1975.

> he now has 3 mormal kids.

> he was operated on when he was 7 by dr brent who, in a series of 3

>surgeries, gave him a newly constructed auricle.

> he was then operated on by dr jahrsdoerfer who opened his canal and

>repaired the atresia, in both ears.

> he now hears normally, and looks (in his fathers humble opinion) like a

>movie star.

> dr brents website is www.earsurgery.com

> and you'll learn a lot from it, i assure you.

> i've hosted meetings for these 2 doctors to come to nyc over the last 17

>years.

> in october we had 100 families, most of them new, come together to hear

>the lectures and meet each other for freindship and support.

> my guess is that i have helped put 1000 kids into this surgery, and

>handful of adults as well, though many of the newer kids may as yet only be

>scheduling this or considering it.

>

> this is an incredible group, warm caring, and well-informed.

> they know of other protocols in other locales, insurance solutions,

>legal remedies, and hairstyles.

> we're glad you're here. we were waiting for you.

>

> jack

>

Report post · December 27, 2002

Hi and welcome to the group!

I have a son Josh (10) who has right microtia/atresia and Hemi facial

microsomia. He had his ear reconstructed this past year by Dr. Brent in

California. I went to the ccakids.com site which is a craniofacial

association for children. They have a few specialists listed in Illinois

and Indiana, but none for Wisconsin. I've included the info they have for

craniofacial specialists:

Bruce Bauer MD

2300 Children's Plaza

Chicago, IL 60614

A Sadove MD

702 Barnhill Dr.

Indianapolis, IN 46202

Dr. Eppley

Indianapolis, Indiana

(LINDA P. CAN YOU SUPPLY THE PHONE NUMBER?)

Is there a children's hospital in Milwaukee? You may want to find out if

they have a cranio-facial department. They may be able to point you in the

right direction for a good plastic surgeon and oral surgeon, for your jaw,

who specialize in cranio facial concerns. Have you considered a prostetic

ear? There are so many options and so many experiences on this website. So

very glad to have you aboard!

Love, beth

>

>Reply-To: AtresiaMicrotia

>To: AtresiaMicrotia >

>Subject: Re: new member-Jack

>Date: Fri, 27 Dec 2002 00:00:30 -0600

>

>Thanks Jack!!! I looked at Dr. Brent's website and some others that were in

>the files section on the yahoo group site. I'm hoping to find a specialist

>near Milwaukee but having no luck so far.

>

> Re: new member

>

> In a message dated 12/25/2002 3:58:36 AM Eastern Standard Time,

>florabaura@... writes:

>

> Hi everyone! When I was born, I had a tiny sausage-type shaped left

>ear and no opening.

>

> hi laura

> welcome

> i am the father of a boy who was born with R microtia and bilateral

>atresia, in 1975.

> he now has 3 mormal kids.

> he was operated on when he was 7 by dr brent who, in a series of 3

>surgeries, gave him a newly constructed auricle.

> he was then operated on by dr jahrsdoerfer who opened his canal and

>repaired the atresia, in both ears.

> he now hears normally, and looks (in his fathers humble opinion) like a

>movie star.

> dr brents website is www.earsurgery.com

> and you'll learn a lot from it, i assure you.

> i've hosted meetings for these 2 doctors to come to nyc over the last 17

>years.

> in october we had 100 families, most of them new, come together to hear

>the lectures and meet each other for freindship and support.

> my guess is that i have helped put 1000 kids into this surgery, and

>handful of adults as well, though many of the newer kids may as yet only be

>scheduling this or considering it.

>

> this is an incredible group, warm caring, and well-informed.

> they know of other protocols in other locales, insurance solutions,

>legal remedies, and hairstyles.

> we're glad you're here. we were waiting for you.

>

> jack

>

Report post · December 27, 2002

Hey Beth ..I sure can supply the phone number!

Dr.Barry Eppley

702 Barnhill Drive

Suite 3540

Indianapolis,IN 46202-5200

Ph.(317)278-0940 (Office)

Ph.(317)278-0939 (Fax)

E-mail: beppley@...

(E-mails are answered promptly by Dr.Eppley).

I also have his pager number and cell phone number and home phone

number...LOL..but I figured he'd probably rather I keep those private

for now...LOL.

Patton

Report post · December 27, 2002

Hey Beth ..I sure can supply the phone number!

Dr.Barry Eppley

702 Barnhill Drive

Suite 3540

Indianapolis,IN 46202-5200

Ph.(317)278-0940 (Office)

Ph.(317)278-0939 (Fax)

E-mail: beppley@...

(E-mails are answered promptly by Dr.Eppley).

I also have his pager number and cell phone number and home phone

number...LOL..but I figured he'd probably rather I keep those private

for now...LOL.

Patton

Report post · December 27, 2002

Hey Beth ..I sure can supply the phone number!

Dr.Barry Eppley

702 Barnhill Drive

Suite 3540

Indianapolis,IN 46202-5200

Ph.(317)278-0940 (Office)

Ph.(317)278-0939 (Fax)

E-mail: beppley@...

(E-mails are answered promptly by Dr.Eppley).

I also have his pager number and cell phone number and home phone

number...LOL..but I figured he'd probably rather I keep those private

for now...LOL.

Patton

Report post · January 2, 2003

,

Let me introduce myself. My name is Cheryl, and I'm a 16-year old

with microtia. I was lucky enough to have a very large, educated

family who promptly showed my right ear to a plastic surgeon when I

was very young. All my life, I have known of my condition, and I

have only just discovered the wonders of the internet. I thought I

was alone, but yes, technology is grand! Your story really depresses

me because so much can be done. Our insurance company wasn't going

to pay for my ear surgeries, but we begged, pleaded, and appealed,

and finally, they agreed. There are actually many doctors out there

who can help. The surgeries are well worth it, and there is hope.

I think you should get the surgery; you will be 100 times happier!

I just finished my second one last January, and am going for my

third in February. Don't give up, there is so much help out there!!

Cheryl

Report post · January 2, 2003