Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 Ditto - my son with ASD is very social. He also likes people but doesn't play with them appropriately. Lack of social interest is not necessary for an ASD dx. My son has also benefitted greatly from ABA. > > Laurie Mom to Mic 5 yrs old ds/asd. I dont think a child has to be non social to be considered asd. Mic is a very social little boy and always has been. He likes people and kids but doesnt play with them appropiately. He has plenty of OCD behaviors, I would find another doctor. Maybe mild asd but not just below. I know of several asd kids in Mics school that are social and you have to be dxed asd to be in that school. Something just doesnt seem right here.Mic is considered moderately autistic because we do have the social part we just fit most all the rest of the criteria. If you get a diagnosis your services will be much better. I have seen children severely autistic change into normal happy social talking kids using ABA. I just wanted tp put my 2 cents in here. Mic would be considered globally delayed but thats not a clear dx is it. I hope you find some answers. Laurie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 I don't think this is uncommon--to give a diagnosis of PDD NOS when they are uncertain of diagnosis. Many people feel that when PDD gets dropped when the child is older it means the diagnosis was incorrect to begin with. (Is this what happened with your child?) I've been told that when parents push for a diagnosis doctors fall back on PDD NOS. > > > > I don't understand how they can diagnos a child that young unless > the symtpms are evident. PDD-NOS means they are unsure.... > > > > Can you please elaborate on globally dev. delay? > > > > I am getting my endorsement / masters in autism...any info would > be helpful for me to research. > > > > Thank you!!!! > > Tonya > > > Hi Tonya....they can and do diagnos kids at around age two. Our > first pdd dx came when my son was about 20 months old....he had > stopped babbling, became extremely picky with foods, and was self- > stimming. > He also seemed social, lovable and warm. They gave him dx of pddnos. > (later when he was around 4 he got dx of apraxia.) He is not global > dev delayed but when he was 2 they thought he may possably > be...which some people think is the same as MR. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 I think this is controversial. The cornerstone of autism is a failure to relate socially (according to the original definition). Some would argue that a child who is social is not truly autistic. Autism is not supposed to be curable, so again, many would argue that a child who " overcomes " autism was not autistic to begin with. Some parents seem satisfied that their child's ASD diagnosis fits in spite of the child's social interest and affection. Other parents feel their child has been mislabeled. I've also read there are different models to diagnos ASD and PDD, clinical, educational and behavioral (the last two might be one in the same and are more liberal). I find all of this really confusing. Why wouldn't there be a standard model for diagnosis and a fixed criteria? For those parents whose children have been diagnosed with ASD and PDD, but who are social and affectionate, I wonder what type of professional made the diagnosis, and what model did they use? > > Laurie Mom to Mic 5 yrs old ds/asd. I dont think a child has to be non social to be considered asd. Mic is a very social little boy and always has been. He likes people and kids but doesnt play with them appropiately. He has plenty of OCD behaviors, I would find another doctor. Maybe mild asd but not just below. I know of several asd kids in Mics school that are social and you have to be dxed asd to be in that school. Something just doesnt seem right here.Mic is considered moderately autistic because we do have the social part we just fit most all the rest of the criteria. If you get a diagnosis your services will be much better. I have seen children severely autistic change into normal happy social talking kids using ABA. I just wanted tp put my 2 cents in here. Mic would be considered globally delayed but thats not a clear dx is it. I hope you find some answers. Laurie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 > > I don't think this is uncommon--to give a diagnosis of PDD NOS when > they are uncertain of diagnosis. Many people feel that when PDD > gets dropped when the child is older it means the diagnosis was > incorrect to begin with. (Is this what happened with your child?) > I've been told that when parents push for a diagnosis doctors fall > back on PDD NOS. > > --- In , " ritas2boys " Hi....well actually my son still carries the pddnos dx and the dyspraxia/apraxia dx. I just haven't had him re-evaluated and don't know if I shoud. He still has issues but most related to dyspraxia....hard time tying his shoes (he is 9 yr old) handwriting is really bad, although cursive is pretty good....speech is funny, high pitched......anyway, attends regular ed and gets mostly A's but still needs speech and OT therapy..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 You're right, the whole PDD discussion is controversial. I think it is an emotional hot button for many of us. I work in the medical field.... in pediatrics. I've always considered PDD an " I give up " diagnosis. In other words.... you have a little bit of this and a little bit of that... there is something wrong but it doesn't really fit anywhere.... you're a bit of a mystery.... I give up- lets call it PDD, for now. I live in Washington but until recently spent my entire career in central Florida. We actually have labeled this (tongue in cheek) as some kids are PDD and some are PDDFN (PDD for now). Why? Because parents go see a specialist or something to get their diagnosis and when they come back they tell us that the evaluator said it wasn't clear, etc but they thought that it was appropriate to label the child " pdd for now " . The mom is also told that the child may or may not be PDD in a year or two. (???) While I know these kids are difficult to diagnose, I am always left with the feeling that the evaluator just stopped trying when they make statements like that to parents. Because the diagnosis is so overused many school systems cut services when a child moves from dev. delay label to a PDD label. The reason is that dev. delay means you have rehab potential, but PDD, in their minds, does not. That said, PDD is on the spectrum but does not get the boom of increased services that classic autism gets you. Why? School systems seem to think that PDD doesn't have the social interaction difficulties that classic autism does so they don't need to spend as much funds on speech and such to help the child integrate into society. It's a diagnosis of uncertainty and I fear that some kids fall through the cracks once that label is attached. Just my 2cents! Kris On Sep 25, 2006, at 4:46 PM, myjunkytrash wrote: > I don't think this is uncommon--to give a diagnosis of PDD NOS when > they are uncertain of diagnosis. Many people feel that when PDD > gets dropped when the child is older it means the diagnosis was > incorrect to begin with. (Is this what happened with your child?) > I've been told that when parents push for a diagnosis doctors fall > back on PDD NOS. > > > > > > > > I don't understand how they can diagnos a child that young > unless > > the symtpms are evident. PDD-NOS means they are unsure.... > > > > > > Can you please elaborate on globally dev. delay? > > > > > > I am getting my endorsement / masters in autism...any info > would > > be helpful for me to research. > > > > > > Thank you!!!! > > > Tonya > > > > > Hi Tonya....they can and do diagnos kids at around age two. Our > > first pdd dx came when my son was about 20 months old....he had > > stopped babbling, became extremely picky with foods, and was > self- > > stimming. > > He also seemed social, lovable and warm. They gave him dx of > pddnos. > > (later when he was around 4 he got dx of apraxia.) He is not > global > > dev delayed but when he was 2 they thought he may possably > > be...which some people think is the same as MR. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 I think it is extremely important for anyone concerned about autism to Google DSM IV criteria for autism and study it. Autism is normally not diagnosed in children who are " very social " but " very social, " of course, is a subjective description. There is strict criteria that must be met for an autism diagnosis to be made by a reputable professional. A qualified developmental pediatrician who is skilled at diagnosing children with autism (and those without) will follow this criteria. This is a touchy subject for me because when I first became a member of this group I started to wonder if my son, who had been diagnosed as having motor dyspraxia by a developmental pediatrician, might actually be autistic, if only mildly so. I wondered because there were bright, reasonable sounding folks posting about their experiences and describing kids as autistic whom they also described as having strong social skills, like my outgoing, affectionate, social son. I did not want to be " in denial " and overlook treatment that could be helpful to my son. Meanwhile, everyone working with my son - from speech therapists to occupational therapists - believed the diagnosis of dyspraxia (and later apraxia) was accurate. Wanting to be absolutely sure, though, I ultimately flew from California to New York City to see Dr. Agin. I knew that she had dxd kids with autism, and that she could tell me with conviction whether he was on the spectrum. Her diagnosis was global dyspraxia. She and the speech therapist who was also present for the evaluation both readily dismissed the possibility of autism. I worry about parents who may go off on tangents like I did because they want to do the right thing for their child and don't want to be " in denial. " Everytime this topic gets revisited, and it gets revisited a lot, I worry about parents who might start second guessing the diagnosing professionals who have actually observed and assessed their children. My son is now in his 5th week of mainstream kindergarten at a private Catholic school. He consistently leaves school with a " color clip " describing his performance for the day as either " outstanding " " great " or " good. " He loves school. His teacher describes him as " a wonderful boy with a very sweet temperment. " His fine motor skills are still an issue, but he can write his name finally, and is learning to write letters and numbers. Would he be less likely to be " a wonderful boy with a very sweet temperment " if he were also labeled as having autism? NO. Would I love him any less? NO. Would the focus of his current therapy and his school placement be different? YES to current therapy, probably yes to treatnment. There is a difference between dyspraxia/apraxia and autism. After you have located a qualified developmental pediatrician who understands the difference, trust them to give you an accurate diagnosis. > > > > Laurie Mom to Mic 5 yrs old ds/asd. I dont think a child has to be > non social to be considered asd. Mic is a very social little boy and > always has been. He likes people and kids but doesnt play with them > appropiately. He has plenty of OCD behaviors, I would find another > doctor. Maybe mild asd but not just below. I know of several asd kids > in Mics school that are social and you have to be dxed asd to be in > that school. Something just doesnt seem right here.Mic is considered > moderately autistic because we do have the social part we just fit > most all the rest of the criteria. If you get a diagnosis your > services will be much better. I have seen children severely autistic > change into normal happy social talking kids using ABA. I just wanted > tp put my 2 cents in here. Mic would be considered globally delayed > but thats not a clear dx is it. I hope you find some answers. Laurie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 > > I don't think this is uncommon--to give a diagnosis of PDD NOS when > they are uncertain of diagnosis. Many people feel that when PDD > gets dropped when the child is older it means the diagnosis was > incorrect to begin with. (Is this what happened with your child?) > I've been told that when parents push for a diagnosis doctors fall > back on PDD NOS. > > --- In , " ritas2boys " Hi....well actually my son still carries the pddnos dx and the dyspraxia/apraxia dx. I just haven't had him re-evaluated and don't know if I shoud. He still has issues but most related to dyspraxia....hard time tying his shoes (he is 9 yr old) handwriting is really bad, although cursive is pretty good....speech is funny, high pitched......anyway, attends regular ed and gets mostly A's but still needs speech and OT therapy..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 In my area, docs seem reluctant to give the ASD/PDD label, so kids are likely to get diagnosed late. This is unfortunate, since early intervention is so crucial. I don't agree that PDD-NOS is an " I give up " diagnosis. It has diagnostic criteria just as autism, Asperger's, Rett's, etc do. An experienced diagnostician should be able to make an accurate dx in a child at age 2. If a doctor told me that my child might not qualify for the PDD-NOS dx in a couple of years, I would take that as a sign that the doc believes my child has the potential to improve a lot in a fairly short time. That's a good thing to hear. Maybe the situation is different in areas where an autism dx gets you funding for an ABA program. If you have a younger child and feel uncertain about what diagnosis is accurate, I suggest you ask your ped to do the CHAT screening on him/her. If you google " CHAT autism " you'll find a copy of it. There is a modified version that is even more accurate. > > > > > > > > I don't understand how they can diagnos a child that young > > unless > > > the symtpms are evident. PDD-NOS means they are unsure.... > > > > > > > > Can you please elaborate on globally dev. delay? > > > > > > > > I am getting my endorsement / masters in autism...any info > > would > > > be helpful for me to research. > > > > > > > > Thank you!!!! > > > > Tonya > > > > > > > Hi Tonya....they can and do diagnos kids at around age two. Our > > > first pdd dx came when my son was about 20 months old....he had > > > stopped babbling, became extremely picky with foods, and was > > self- > > > stimming. > > > He also seemed social, lovable and warm. They gave him dx of > > pddnos. > > > (later when he was around 4 he got dx of apraxia.) He is not > > global > > > dev delayed but when he was 2 they thought he may possably > > > be...which some people think is the same as MR. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 I've also heard people define (tongue-in-cheek) PDD as " Physician Didn't Diagnose " for all the same reasons you stated. If a diagnosis doesn't give insight into what kind of therapies or treatments to use, then what good is it? > > > > > > > > I don't understand how they can diagnos a child that young > > unless > > > the symtpms are evident. PDD-NOS means they are unsure.... > > > > > > > > Can you please elaborate on globally dev. delay? > > > > > > > > I am getting my endorsement / masters in autism...any info > > would > > > be helpful for me to research. > > > > > > > > Thank you!!!! > > > > Tonya > > > > > > > Hi Tonya....they can and do diagnos kids at around age two. Our > > > first pdd dx came when my son was about 20 months old....he had > > > stopped babbling, became extremely picky with foods, and was > > self- > > > stimming. > > > He also seemed social, lovable and warm. They gave him dx of > > pddnos. > > > (later when he was around 4 he got dx of apraxia.) He is not > > global > > > dev delayed but when he was 2 they thought he may possably > > > be...which some people think is the same as MR. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 , I don't think anyone is saying that social relationships and play skills are completely normal in children with ASD. What we are saying is that the stereotype of a child who has no interest in social interaction doesn't apply in many cases. As I said, my son with ASD *is* very interested in other people and wants to play and talk with other kids, but that doesn't mean that he has the skills to interact appropriately with a same age peer. But I do want to emphasize that a lack of social interest, and a lack of affection, does not necessarily come with ASD. If you look at the CHAT - which I encourage anyone who is concerned that their young child might have autism spectrum disorder - the screening questions will give you a good idea of what key things to look for. Note that there are no questions about how affectionate the child is, or whether he or she gets upset when another child doesn't want to play with him/her. > > > > > > Laurie Mom to Mic 5 yrs old ds/asd. I dont think a child has to > be > > non social to be considered asd. Mic is a very social little boy > and > > always has been. He likes people and kids but doesnt play with them > > appropiately. He has plenty of OCD behaviors, I would find another > > doctor. Maybe mild asd but not just below. I know of several asd > kids > > in Mics school that are social and you have to be dxed asd to be in > > that school. Something just doesnt seem right here.Mic is > considered > > moderately autistic because we do have the social part we just fit > > most all the rest of the criteria. If you get a diagnosis your > > services will be much better. I have seen children severely > autistic > > change into normal happy social talking kids using ABA. I just > wanted > > tp put my 2 cents in here. Mic would be considered globally delayed > > but thats not a clear dx is it. I hope you find some answers. > Laurie > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 My son was given the ASD, PDD, and PDD NOS diagnosis within different visits to the same Ped. Neurologist. [ ] Re: Just below ASD > In my area, docs seem reluctant to give the ASD/PDD label, so kids are > likely to get diagnosed late. This is unfortunate, since early > intervention is so crucial. > > I don't agree that PDD-NOS is an " I give up " diagnosis. It has > diagnostic criteria just as autism, Asperger's, Rett's, etc do. An > experienced diagnostician should be able to make an accurate dx in a > child at age 2. If a doctor told me that my child might not qualify > for the PDD-NOS dx in a couple of years, I would take that as a sign > that the doc believes my child has the potential to improve a lot in a > fairly short time. That's a good thing to hear. > > Maybe the situation is different in areas where an autism dx gets you > funding for an ABA program. > > If you have a younger child and feel uncertain about what diagnosis is > accurate, I suggest you ask your ped to do the CHAT screening on > him/her. If you google " CHAT autism " you'll find a copy of it. There > is a modified version that is even more accurate. > > > > >> > > > >> > > > I don't understand how they can diagnos a child that young >> > unless >> > > the symtpms are evident. PDD-NOS means they are unsure.... >> > > > >> > > > Can you please elaborate on globally dev. delay? >> > > > >> > > > I am getting my endorsement / masters in autism...any info >> > would >> > > be helpful for me to research. >> > > > >> > > > Thank you!!!! >> > > > Tonya >> > > > >> > > Hi Tonya....they can and do diagnos kids at around age two. Our >> > > first pdd dx came when my son was about 20 months old....he had >> > > stopped babbling, became extremely picky with foods, and was >> > self- >> > > stimming. >> > > He also seemed social, lovable and warm. They gave him dx of >> > pddnos. >> > > (later when he was around 4 he got dx of apraxia.) He is not >> > global >> > > dev delayed but when he was 2 they thought he may possably >> > > be...which some people think is the same as MR. >> > > >> > >> > >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 You're right, the whole PDD discussion is controversial. I think it is an emotional hot button for many of us. I work in the medical field.... in pediatrics. I've always considered PDD an " I give up " diagnosis. In other words.... you have a little bit of this and a little bit of that... there is something wrong but it doesn't really fit anywhere.... you're a bit of a mystery.... I give up- lets call it PDD, for now. I live in Washington but until recently spent my entire career in central Florida. We actually have labeled this (tongue in cheek) as some kids are PDD and some are PDDFN (PDD for now). Why? Because parents go see a specialist or something to get their diagnosis and when they come back they tell us that the evaluator said it wasn't clear, etc but they thought that it was appropriate to label the child " pdd for now " . The mom is also told that the child may or may not be PDD in a year or two. (???) While I know these kids are difficult to diagnose, I am always left with the feeling that the evaluator just stopped trying when they make statements like that to parents. Because the diagnosis is so overused many school systems cut services when a child moves from dev. delay label to a PDD label. The reason is that dev. delay means you have rehab potential, but PDD, in their minds, does not. That said, PDD is on the spectrum but does not get the boom of increased services that classic autism gets you. Why? School systems seem to think that PDD doesn't have the social interaction difficulties that classic autism does so they don't need to spend as much funds on speech and such to help the child integrate into society. It's a diagnosis of uncertainty and I fear that some kids fall through the cracks once that label is attached. Just my 2cents! Kris On Sep 25, 2006, at 4:46 PM, myjunkytrash wrote: > I don't think this is uncommon--to give a diagnosis of PDD NOS when > they are uncertain of diagnosis. Many people feel that when PDD > gets dropped when the child is older it means the diagnosis was > incorrect to begin with. (Is this what happened with your child?) > I've been told that when parents push for a diagnosis doctors fall > back on PDD NOS. > > > > > > > > I don't understand how they can diagnos a child that young > unless > > the symtpms are evident. PDD-NOS means they are unsure.... > > > > > > Can you please elaborate on globally dev. delay? > > > > > > I am getting my endorsement / masters in autism...any info > would > > be helpful for me to research. > > > > > > Thank you!!!! > > > Tonya > > > > > Hi Tonya....they can and do diagnos kids at around age two. Our > > first pdd dx came when my son was about 20 months old....he had > > stopped babbling, became extremely picky with foods, and was > self- > > stimming. > > He also seemed social, lovable and warm. They gave him dx of > pddnos. > > (later when he was around 4 he got dx of apraxia.) He is not > global > > dev delayed but when he was 2 they thought he may possably > > be...which some people think is the same as MR. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 I do not mean to be ignorant. Many disabilities overlap each other...how can a doctor be certain at such a young age....unless there is a significant sign. Until a child reaches a certain age (from what my pysch said 10-12 yrs. old), a RX can't be diagnosed. Then I get the response, " Oh, the SCHOOL psych has to their evaluation and determine whether or not the child qualifies. A Dr's diagnosis means nothing because a parent can ask the doctor to exaggerate the truth. " The thing I was told.........how does this adversly affect the education of the child. I am SO CONFUSED! Not only as a parent, but teacher. My son was diagnonsed with Aspergers, dependent upon a rating scale by CARS. I don't mean to be a dumb butt.... I have 7 children (students) with AI and 1 CI but should be AI...... my goal is to help them receive the upmost appropriate education I can give them. Any suggestions and help is greatly appreciated! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 I think it is extremely important for anyone concerned about autism to Google DSM IV criteria for autism and study it. Autism is normally not diagnosed in children who are " very social " but " very social, " of course, is a subjective description. There is strict criteria that must be met for an autism diagnosis to be made by a reputable professional. A qualified developmental pediatrician who is skilled at diagnosing children with autism (and those without) will follow this criteria. This is a touchy subject for me because when I first became a member of this group I started to wonder if my son, who had been diagnosed as having motor dyspraxia by a developmental pediatrician, might actually be autistic, if only mildly so. I wondered because there were bright, reasonable sounding folks posting about their experiences and describing kids as autistic whom they also described as having strong social skills, like my outgoing, affectionate, social son. I did not want to be " in denial " and overlook treatment that could be helpful to my son. Meanwhile, everyone working with my son - from speech therapists to occupational therapists - believed the diagnosis of dyspraxia (and later apraxia) was accurate. Wanting to be absolutely sure, though, I ultimately flew from California to New York City to see Dr. Agin. I knew that she had dxd kids with autism, and that she could tell me with conviction whether he was on the spectrum. Her diagnosis was global dyspraxia. She and the speech therapist who was also present for the evaluation both readily dismissed the possibility of autism. I worry about parents who may go off on tangents like I did because they want to do the right thing for their child and don't want to be " in denial. " Everytime this topic gets revisited, and it gets revisited a lot, I worry about parents who might start second guessing the diagnosing professionals who have actually observed and assessed their children. My son is now in his 5th week of mainstream kindergarten at a private Catholic school. He consistently leaves school with a " color clip " describing his performance for the day as either " outstanding " " great " or " good. " He loves school. His teacher describes him as " a wonderful boy with a very sweet temperment. " His fine motor skills are still an issue, but he can write his name finally, and is learning to write letters and numbers. Would he be less likely to be " a wonderful boy with a very sweet temperment " if he were also labeled as having autism? NO. Would I love him any less? NO. Would the focus of his current therapy and his school placement be different? YES to current therapy, probably yes to treatnment. There is a difference between dyspraxia/apraxia and autism. After you have located a qualified developmental pediatrician who understands the difference, trust them to give you an accurate diagnosis. > > > > Laurie Mom to Mic 5 yrs old ds/asd. I dont think a child has to be > non social to be considered asd. Mic is a very social little boy and > always has been. He likes people and kids but doesnt play with them > appropiately. He has plenty of OCD behaviors, I would find another > doctor. Maybe mild asd but not just below. I know of several asd kids > in Mics school that are social and you have to be dxed asd to be in > that school. Something just doesnt seem right here.Mic is considered > moderately autistic because we do have the social part we just fit > most all the rest of the criteria. If you get a diagnosis your > services will be much better. I have seen children severely autistic > change into normal happy social talking kids using ABA. I just wanted > tp put my 2 cents in here. Mic would be considered globally delayed > but thats not a clear dx is it. I hope you find some answers. Laurie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 In my area, docs seem reluctant to give the ASD/PDD label, so kids are likely to get diagnosed late. This is unfortunate, since early intervention is so crucial. I don't agree that PDD-NOS is an " I give up " diagnosis. It has diagnostic criteria just as autism, Asperger's, Rett's, etc do. An experienced diagnostician should be able to make an accurate dx in a child at age 2. If a doctor told me that my child might not qualify for the PDD-NOS dx in a couple of years, I would take that as a sign that the doc believes my child has the potential to improve a lot in a fairly short time. That's a good thing to hear. Maybe the situation is different in areas where an autism dx gets you funding for an ABA program. If you have a younger child and feel uncertain about what diagnosis is accurate, I suggest you ask your ped to do the CHAT screening on him/her. If you google " CHAT autism " you'll find a copy of it. There is a modified version that is even more accurate. > > > > > > > > I don't understand how they can diagnos a child that young > > unless > > > the symtpms are evident. PDD-NOS means they are unsure.... > > > > > > > > Can you please elaborate on globally dev. delay? > > > > > > > > I am getting my endorsement / masters in autism...any info > > would > > > be helpful for me to research. > > > > > > > > Thank you!!!! > > > > Tonya > > > > > > > Hi Tonya....they can and do diagnos kids at around age two. Our > > > first pdd dx came when my son was about 20 months old....he had > > > stopped babbling, became extremely picky with foods, and was > > self- > > > stimming. > > > He also seemed social, lovable and warm. They gave him dx of > > pddnos. > > > (later when he was around 4 he got dx of apraxia.) He is not > > global > > > dev delayed but when he was 2 they thought he may possably > > > be...which some people think is the same as MR. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 The terms " autism spectrum disorder " and " pervasive developmental disorder " are typically used interchangeably (see the DSM). PDD-NOS as a dx just indicates that the child's symptoms meet the definition of a PDD, but the child's symptoms did not fit under the description of one of the specifically defined pervasive developmental disorders, such as childhood disintegrative disorder, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 I've also heard people define (tongue-in-cheek) PDD as " Physician Didn't Diagnose " for all the same reasons you stated. If a diagnosis doesn't give insight into what kind of therapies or treatments to use, then what good is it? > > > > > > > > I don't understand how they can diagnos a child that young > > unless > > > the symtpms are evident. PDD-NOS means they are unsure.... > > > > > > > > Can you please elaborate on globally dev. delay? > > > > > > > > I am getting my endorsement / masters in autism...any info > > would > > > be helpful for me to research. > > > > > > > > Thank you!!!! > > > > Tonya > > > > > > > Hi Tonya....they can and do diagnos kids at around age two. Our > > > first pdd dx came when my son was about 20 months old....he had > > > stopped babbling, became extremely picky with foods, and was > > self- > > > stimming. > > > He also seemed social, lovable and warm. They gave him dx of > > pddnos. > > > (later when he was around 4 he got dx of apraxia.) He is not > > global > > > dev delayed but when he was 2 they thought he may possably > > > be...which some people think is the same as MR. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 Who developed the CHAT? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 , I don't think anyone is saying that social relationships and play skills are completely normal in children with ASD. What we are saying is that the stereotype of a child who has no interest in social interaction doesn't apply in many cases. As I said, my son with ASD *is* very interested in other people and wants to play and talk with other kids, but that doesn't mean that he has the skills to interact appropriately with a same age peer. But I do want to emphasize that a lack of social interest, and a lack of affection, does not necessarily come with ASD. If you look at the CHAT - which I encourage anyone who is concerned that their young child might have autism spectrum disorder - the screening questions will give you a good idea of what key things to look for. Note that there are no questions about how affectionate the child is, or whether he or she gets upset when another child doesn't want to play with him/her. > > > > > > Laurie Mom to Mic 5 yrs old ds/asd. I dont think a child has to > be > > non social to be considered asd. Mic is a very social little boy > and > > always has been. He likes people and kids but doesnt play with them > > appropiately. He has plenty of OCD behaviors, I would find another > > doctor. Maybe mild asd but not just below. I know of several asd > kids > > in Mics school that are social and you have to be dxed asd to be in > > that school. Something just doesnt seem right here.Mic is > considered > > moderately autistic because we do have the social part we just fit > > most all the rest of the criteria. If you get a diagnosis your > > services will be much better. I have seen children severely > autistic > > change into normal happy social talking kids using ABA. I just > wanted > > tp put my 2 cents in here. Mic would be considered globally delayed > > but thats not a clear dx is it. I hope you find some answers. > Laurie > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 My son was given the ASD, PDD, and PDD NOS diagnosis within different visits to the same Ped. Neurologist. [ ] Re: Just below ASD > In my area, docs seem reluctant to give the ASD/PDD label, so kids are > likely to get diagnosed late. This is unfortunate, since early > intervention is so crucial. > > I don't agree that PDD-NOS is an " I give up " diagnosis. It has > diagnostic criteria just as autism, Asperger's, Rett's, etc do. An > experienced diagnostician should be able to make an accurate dx in a > child at age 2. If a doctor told me that my child might not qualify > for the PDD-NOS dx in a couple of years, I would take that as a sign > that the doc believes my child has the potential to improve a lot in a > fairly short time. That's a good thing to hear. > > Maybe the situation is different in areas where an autism dx gets you > funding for an ABA program. > > If you have a younger child and feel uncertain about what diagnosis is > accurate, I suggest you ask your ped to do the CHAT screening on > him/her. If you google " CHAT autism " you'll find a copy of it. There > is a modified version that is even more accurate. > > > > >> > > > >> > > > I don't understand how they can diagnos a child that young >> > unless >> > > the symtpms are evident. PDD-NOS means they are unsure.... >> > > > >> > > > Can you please elaborate on globally dev. delay? >> > > > >> > > > I am getting my endorsement / masters in autism...any info >> > would >> > > be helpful for me to research. >> > > > >> > > > Thank you!!!! >> > > > Tonya >> > > > >> > > Hi Tonya....they can and do diagnos kids at around age two. Our >> > > first pdd dx came when my son was about 20 months old....he had >> > > stopped babbling, became extremely picky with foods, and was >> > self- >> > > stimming. >> > > He also seemed social, lovable and warm. They gave him dx of >> > pddnos. >> > > (later when he was around 4 he got dx of apraxia.) He is not >> > global >> > > dev delayed but when he was 2 they thought he may possably >> > > be...which some people think is the same as MR. >> > > >> > >> > >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 I do not mean to be ignorant. Many disabilities overlap each other...how can a doctor be certain at such a young age....unless there is a significant sign. Until a child reaches a certain age (from what my pysch said 10-12 yrs. old), a RX can't be diagnosed. Then I get the response, " Oh, the SCHOOL psych has to their evaluation and determine whether or not the child qualifies. A Dr's diagnosis means nothing because a parent can ask the doctor to exaggerate the truth. " The thing I was told.........how does this adversly affect the education of the child. I am SO CONFUSED! Not only as a parent, but teacher. My son was diagnonsed with Aspergers, dependent upon a rating scale by CARS. I don't mean to be a dumb butt.... I have 7 children (students) with AI and 1 CI but should be AI...... my goal is to help them receive the upmost appropriate education I can give them. Any suggestions and help is greatly appreciated! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 The terms " autism spectrum disorder " and " pervasive developmental disorder " are typically used interchangeably (see the DSM). PDD-NOS as a dx just indicates that the child's symptoms meet the definition of a PDD, but the child's symptoms did not fit under the description of one of the specifically defined pervasive developmental disorders, such as childhood disintegrative disorder, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Who developed the CHAT? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Sorry, this is a little long winded... about labeling I've been through the same problem with my son. He has been finally diagnosed (at 4 years) as having sensory processing disorder with oral and verbal apraxia. When we saw a neurologist at 2.5 years he said " PDDNOS " . But he also suggested something to my husband and I that ended up working out great for my son. He suggested that we allow him to put a diagnosis of " autism " . He said that he believed that he was on the spectrum and that the only way to guarantee that we got all of the services through the school district that he needed was to go this way. We didn't really care what he called " it " , we just wanted Bobby to get everything that was needed, so we said sure. He went to the township preschool disabled program when he turned 3 and didn't make that much progress. I wanted to see how or if he would progress, so I didn't push the " autism " diagnosis although I had informed them verbally of it. After a year in the program, his teacher told me that she could not give him what he needed, that he needed special attention (basically, all of the techniques used to teach kids diagnosed with autism). I then wrote a letter to the school district and informed them that my child needed to be in a full day program for autism and occupational therapy to address sensory issues. I also forwarded a copy of the report from the neurologist. He started the program in the summer and what an incredible difference! He started speaking (words) within a week and is now saying phrases. Some speech is still not very clear, but he's improving on a daily basis. He is finally in the learning environment where he needs to be. His confidence in social situations has changed dramatically. He used to isolate himself at school - now he approaches kids in the playground to play. His appetite has improved and he seems so much happier (as are his parents!). When I took him to the developmental pediatrician in August, she told me I had done the best thing possible for my son. She said she gets sooo many parents in her office complaining about a lack of services for their children but they won't allow their child to be " labeled " . She made the updated diagnosis of SPD but warned me NOT to share this diagnosis with the school district because they could take away those services without that disgnosis. She also told me NOT to move - that my school district was the place to be right now for Bobby. I know when I told others that we had allowed a diagnosis of autism, some were appalled. They said that it may hurt him in the future being labeled " autistic " . One woman even said that her son's college application asked this question and that I was dooming him in the future. Our thoughts were, he can't even speak - we don't even know if he'll be able to go to college or ever be independent, who cares about 14 years from now? Just my 2 cents... > > > > > > I don't understand how they can diagnos a child that young > unless > > the symtpms are evident. PDD-NOS means they are unsure.... > > > > > > Can you please elaborate on globally dev. delay? > > > > > > I am getting my endorsement / masters in autism...any info > would > > be helpful for me to research. > > > > > > Thank you!!!! > > > Tonya > > > > > Hi Tonya....they can and do diagnos kids at around age two. Our > > first pdd dx came when my son was about 20 months old....he had > > stopped babbling, became extremely picky with foods, and was > self- > > stimming. > > He also seemed social, lovable and warm. They gave him dx of > pddnos. > > (later when he was around 4 he got dx of apraxia.) He is not > global > > dev delayed but when he was 2 they thought he may possably > > be...which some people think is the same as MR. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 great point! ----------------------------------------- This transmission may contain information that is privileged, confidential, legally privileged, and/or exempt from disclosure under applicable law. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or use of the information contained herein (including any reliance thereon) is STRICTLY PROHIBITED. Although this transmission and any attachments are believed to be free of any virus or other defect that might affect any computer system into which it is received and opened, it is the responsibility of the recipient to ensure that it is virus free and no responsibility is accepted by JP Chase & Co., its subsidiaries and affiliates, as applicable, for any loss or damage arising in any way from its use. If you received this transmission in error, please immediately contact the sender and destroy the material in its entirety, whether in electronic or hard copy format. Thank you. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.