question

[Guest guest]

sherman.fam@... wrote:

>

> From: " sherman.fam@... " <sherman.fam@...>

>

> Have any of you ever smoked or smoke now??? Wondering if there is a

> connection somehow.....just curious.

>

I have never smoked and neither has my husband. But my dad was a chain

smoker so I lived with it for a long time. Now I cannot stand to be

around it -- makes me feel very sick and irritable. A lot of other

things do the same - like diesel fuel, perfumes, etc. I feel like I

need to be sealed into a bubble!

Marsha

[Guest guest]

[This message contained attachments]

[Guest guest]

Dear Lee Ann:

Personal opinion of course but, a hot bath helps me even though it is tough

to get out of the tub if I had a Jacuzzi then it would be heaven. But, some

people do get stiff afterward. I personally do it before I go to bed and it

helps me relax and feel better. Hope I answered your question.

[Guest guest]

, my personal experience with hot water is that it feels great when I am in

it, like the tub or a pool, but when I get out everything stiffens up and

then the pain kicks in.

[Lee Ann :>] Hi Janet, This is the same problem I have. I get very stiff

after a good hot or warm bath. The longer I stay in the tub, the worse it

gets. Should I avoid taking a warm to hot bath?

Lee Ann Walter

Wife of Steve;

Mom to: 16; Krystle 14;

Caleb 2.5+; 2.5; 1yr.

[Guest guest]

Hi ,

Since I am the one keeping the names on the list, I will be happy to tell you.

We're keeping a list of names/birthdates/e-mail addresses so anyone who would

like to send a birthday e-card can do so. I will publish the list for the next

month at the end of the current month. As of today, we have 30 names. :-)

We would LOVE add you to the list .

Ann

(TX)

[Lyme-aid] Question

Could someone tell me what the Birthday list is all about? Thanks...

[Guest guest]

Ann

Please add me to your list...It sounds fun...

Birthday: September 4th.....ranlin@...

Re: [Lyme-aid] Question

Hi ,

Since I am the one keeping the names on the list, I will be happy to tell

you. We're keeping a list of names/birthdates/e-mail addresses so anyone who

would like to send a birthday e-card can do so. I will publish the list for the

next month at the end of the current month. As of today, we have 30 names. :-)

We would LOVE add you to the list .

Ann

(TX)

[Lyme-aid] Question

Could someone tell me what the Birthday list is all about?

Thanks...

[Guest guest]

Hi Hellen,

I am fairly new to the list but I would like to tell

about my achilles tendons repairs. I had on my right

foot in 1995 a very limmited resection of the

deformity(bone spur) that was causing my tendonitis

and bursitis in the achilles. The surgery has been

somewhat of a sucess until 1999. The right achilles

tendon also was troubled by the same deformity (bone

spur) and I ended up having a reconstruction of my

right achilles tendon. I had extensive multiple

complications from the surgery. With the last

surgery to my right foot I was finally received the

diagnosis of psoriatic arthritis. I have been told

that I need the same surgery that done on my right

foot to my left foot. As I will need at some point a

ankle replacement for my right ankle. The orthopedic

who evaluated you possibly does not have the

expertise to do this type of foot surgery. I suggest

you find an orthopedic surgeon who specializes in

foot and ankle surgery. Good luck! Ellen

--- Helen Pond <hpond@...> wrote:

> From: " Helen Pond " <hpond@...>

>

> Someone mentioned in a letter earlier today about

> having tendon problems in

> the foot. Would you please contact me again?

> Would like to compare notes.

> In the left leg where I already have shingles, the

> bone spurs are cutting

> and inflaming the achilles tendon. The orthopedic

> surgeon told me he would

> not operate when he saw where they actually were.

> Said he couldn't do

> anything for me but put it in an immovable cast.

> Well couldn't do that with

> shingles already on the leg. So I'm on crutches.

> So far I have found that

> I am losing the battle as I can no longer stand on

> the ball of my foot - it

> simply will not hold me up like the right foot

> will. Anybody else having

> this problem and what are they doing for it? I

> need help here!

>

> Peace

> Helen

>

> ---------------------------

[Guest guest]

Ellen - I really think I need a better orthopedic specialist too. This one

was at least honest enough to tell me he had never had a patient with PA,

didn't know how in the world to treat me because he had never even heard of

it before. So at least he was honest and I have to give him credit for

that. I get so tired of these doctors who are too macho to admit it.

Anyway, from your experience I'm not so sure he was wrong in telling me not

to have the surgery. I think at this point in time I will just stay with

the half arm crutches and keep on going until I can't go on anymore. It's

only on the left foot for now and therapy didn't do a thing for it. They

even tried the sonic wave bit to try to bust them apart - nah. So it's

onward and upward. Thanks for your advice though. I'll keep it in mind.

Helen

[Guest guest]

Helen,

One important element I left out in my prior note is

that the pain has diminished. The pain will never go

away completely but I do not regret the choice of the

first surgical procedure. Then I unfortuately had

extensive complications after the fact but it could

have happened to anyone. I as usual baffled the

orthopedic surgeon and all the other consulting

physicians involved in care. I honestly believe

finally having a diagnosis and proper medical

treatment will in the long run help. Even though

psoriatic arthritis is not the best diagnosis to have

but it has at least answered some of the many

questions I have concerning my health If your

achilles tendon is bothering now without the proper

treatment it could potentially rupture. I commend

your physician about being honest to you about his

inability to treat you effectively. Ask him for a

refferal to another physician that could potentially

help you. Good luck, Ellen

P.S. You have to do what is best for YOU!!

--- Helen Pond <hpond@...> wrote:

> From: " Helen Pond " <hpond@...>

>

> Ellen - I really think I need a better orthopedic

> specialist too. This one

> was at least honest enough to tell me he had never

> had a patient with PA,

> didn't know how in the world to treat me because he

> had never even heard of

> it before. So at least he was honest and I have to

> give him credit for

> that. I get so tired of these doctors who are too

> macho to admit it.

> Anyway, from your experience I'm not so sure he was

> wrong in telling me not

> to have the surgery. I think at this point in time

> I will just stay with

> the half arm crutches and keep on going until I

> can't go on anymore. It's

> only on the left foot for now and therapy didn't do

> a thing for it. They

> even tried the sonic wave bit to try to bust them

> apart - nah. So it's

> onward and upward. Thanks for your advice though.

> I'll keep it in mind.

>

> Helen

>

> ---------------------------

[Guest guest]

I took them both together, most people can take them but, I'm the one

allergic to everything so it didn't work for me. I was even allergic to

Enbrel one in a million. I don't think the Arava has to many side effects,

just for me.. Rash, sick all over, asthma flare. I hope it works for you!

Ilene

[Guest guest]

I am taking arava and MTX together with wonderful results. I take 20 mg of

MTX weekly by IM injection and 10 mg of arava daily in pill form. My pain has

decreased by over 60 % and I have much more flexibility in my hip and

shoulder. My neck still hurts all the time, but considering the top five

verterbrae are fused i guess that is to be expected. The side effects for me

have been very minimal. For the first three weeks, I experienced stomach

upset (mild nausea) for about two hours after taking the arave and diarrhea

about once a week. Those have subsided. I just hope I continue to see

results. good luck.

MELISSA

[Guest guest]

,

I take 25mg of MTX weekly in injections and 30mg of Arava daily. It seems to

be working well for me. It took about six months to feel a major

improvement. But, now I'm feeling really great.

Amy

[Guest guest]

There is no way to know if the organism is gone. Personally, my own view is

that six weeks of doxy, particularly if the infection wasn't caught in the

beginning....well, six weeks is nothin'. It is also impossible to tell based

upon any of the blood tests that you described. One thing to note is that

you're more likely to get a positive test if you're off the antibiotics for

at least several days if not longer. I won't belabor the explanation here,

but if the western blot was drawn very close to the time you were taking

antibiotics or during that time, you may actualy demonstrate more positive

bands if you waited longer.

There are some practitioners I know who follow evidence of reactivity in the

IgM, hypothesizing that this signifies active disease --- sort of the like

the same model for chronic active hepatitis. A 39 band in the IgM is quite

significant.

Some doctors who treat Lyme disease believe a person should be treated until

their symptoms recede or go away. So, some LLMDs would argue that because you

still feel ill that treatment should be continued.

My own observation is following patients of Sam Donta's in my psychiatric

practice was that little practice is made with six weeks of antibiotics.

Progress comes in 3 month intervals. In someone responsive to antibiotics,

they start to demonstate changes around 6 months --- and then there will be

gradual improvement as the antibiotics are continued. Personally, I have

never seen anyone progress to the point of regaining 100% function. But,

there can be remarkable improvement with more aggressive antibiotic treatment.

Lynn

[Guest guest]

Ok, let me see if I have this straight. My first test was taken on Sept 4,

1998 stated the following: SEDIMENTATION RATE-WESTERGREN: the SED RATE -

HI 37; my Lyme Western Blot, serum, Lyme AB IGG BY WB: all were absent and

negative but on the Lyme AB IGM BY WB: P41 AB PRESENT, P39 AB PRESENT and

P23 AB ABSENT and then the Lyme IGM WB Interp was POSITIVE.

I don't understand what the Sedimentation Rate Westergren HI 37 means

either.

My second test whicfh was on Dec 8, 1998 was as stated below.

Should I be confused? Because I am.

Anne - MD

[ ] Question

I know I have probably asked this before, but just to be sure, here it goes:

My second blood test after about 6-8 weeks of 100mg of Doxy, my blood

results

came up as follows: Lyme, Western Blot, Serum - Lyme AB IGG by WB=all bands

say absent and the Lyme IgG WB Interp says NEGATIVE. Then it says: Lyme AB

IGM BY WB:

P41 AB - Absent, P39 AB - Present, P23 AB - Absent then the Lyme IgM WB

Interp says

NEGATIVE. Then the Lyme AB/Total Immunoglobulins says NEGATIVE. So my

doctor assumes that the Lyme is gone...is this possible?

I am still trying to get a copy of my first blood work where they told me I

had Lyme. I mean its so hard to tell, I never found the tick nor did I have

the bullseye rash unless it was on my head and I didn't know it. Someone

tried to tell me that without the bullseye rash that it means you don't have

Lyme, I told them that was BS.

I am still experiencing fatigue and achey & swollen joints. My legs still

hurt at times, just not as bad, and lately my arms and under my arms were

hurting.

There are a couple of people from my work who were diagnosed with Lyme and

they said that their doctor says they are fine...is there a cure, I mean

even if you catch it early?

I am so confused and depressed about this whole situation that I have just

about forgotten about it as to talking about it with doctors and others...of

course except you guys........everyone else here seems to understand because

we are all going through tough times and some have experienced the same

situations.

Thanks for listening........

Anne - MD

_____

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_____

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[Guest guest]

I just had a man e-mail me. He had read some of my posts on another

newsgroup. He has just bought one of Hulda's books. He is asking me if there

are any groups where he can hear some testimonies. I have forgotten the rules

for the digest list. I know we want to keep the you know whos out of that

list, and I don't know this poster. What are the rules again for the digest

list??

Thanks,

Jan

[Guest guest]

Jan, I do not know the answers to your questions, but I do thank you so much for asking.....so that we may find out the answer for the good of the group and Dr. .

Kathy Neff

Re:Question

I just had a man e-mail me. He had read some of my posts on another newsgroup. He has just bought one of Hulda's books. He is asking me if there are any groups where he can hear some testimonies. I have forgotten the rules for the digest list. I know we want to keep the you know whos out of that list, and I don't know this poster. What are the rules again for the digest list??Thanks,JanLearn more from:http://home.online.no/~dusan/http://www.geocities.com/~mycleanse/http://home.online.no/~huldakli/http://www..net/http://home.online.no/~dusan/gallstones/

[Guest guest]

Tell him to go to .net. There are many testimonials there. And

" they " all know about it any way.

Leo.

----------------------------------------

> I just had a man e-mail me. He had read some of my posts on another

> newsgroup. He has just bought one of Hulda's books. He is asking me

if there

> are any groups where he can hear some testimonies. I have forgotten

the rules

> for the digest list. I know we want to keep the you know whos out

of

that

> list, and I don't know this poster. What are the rules again for

the

digest

> list??

> Thanks,

> Jan

[Guest guest]

He can call me personally, and I can give him a few people to talk to

directly. He can find our company in the back of one of Hulda's books

(Self Health). Use the Canadian number. He will need to first give me

his full name, address and home phone number, and the reason he needs

to phone me when he already has all these resources available to him.

Leo.

----------------------------------------------

> I just had a man e-mail me. He had read some of my posts on another

> newsgroup. He has just bought one of Hulda's books. He is asking me

if there

> are any groups where he can hear some testimonies. I have forgotten

the rules

> for the digest list. I know we want to keep the you know whos out

of

that

> list, and I don't know this poster. What are the rules again for

the

digest

> list??

> Thanks,

> Jan

[Guest guest]

Hi ,

You could still be feeling worse because of the amoxicillin, or maybe it's

cycle

time for an exacerbation. People have different cycles; I believe most have a 4

week

cycle but the antibiotics could have thrown you off. Why don't you take a

picture of the

red lesion on your ankle? I think you can get a rash anytime. This disease does

not

follow rules.

Eileen, NJ

[Guest guest]

Thanks to all who replied to my questions. I never have complained about

aches and pains before in my life and now, trying to keep track of all of

them, I feel like a hypochondriac. I just want to make sure that I don't

miss anything, and wonder why my body is doing all these strange things.

The human spirit is stronger than anything that can

happen to it.

C.

[Guest guest]

Thanks for your replies. From what I understood one thing is linked

to the other, but the symptoms do not necessarily manifest at the

same time in everyone. Jon developed both when he reached puberty,

so I made the mistake of assuming that both manifested like that in

everyone. You can get the arthritis but not develop any psoriasis

symptom for years, or just extremely mild ones if at all and

viceversa. Right?

[Guest guest]

Now, should I make a few people mad? Sure...

We have a dog that has adult onset mange. Looks pathetic but we don't want to put him down. A old timey remedy (not shotgun) is to mix diesel fuel w/ used motor oil. Now, who is mad? Think about it for a minute. An astringent and a lubricant. It works wonders for this dog. It is easier on his system than the dips and meds from the Vet that drag him down and make him sick as a dog.

One of these days,

PatB

This is more in reply to your dog than to the PA....We bought a puppy that had Kennel rash, or so we were told...they knocked $50.00 off the price, since they said we would need to take her to the vet.  Well, to say the least, our vet was livid.  He said Kennel rash was a polite way of saying Mange.  I never knew that..and this was a 6 week old teacup Chihuahua.  Poor thing was in agony and all the expensive medications were of no help.  

Finally the pharmacist at our local Fred's told me to buy a bottle of Rid for lice and bathe her in it.  He said mange is only a mite that burrows under the skin and is the same thing as scabies in humans.  Anyway, I bought some and bathed her twice in it and she was completely healed.  And I had spent close to $200.00 at the vets already, when an $8.00 bottle of Rid worked and I still have the rest of the bottle if I ever need it again.

I have had Psoriasis since I was pregnant with my last child 38 years ago.  I first developed scaly patches on my elbows...and have been to many doctors and found no help.  Years later I started having arthritis like pain and was diagnosed as having PA, but all the medication I have been given for it was Motrin, or now am taking Celebrex for arthritis. I was told to be thankful for the rash, because otherwise the pain would be unbearable.  I know no one who has psoriasis, I have been told it is hereditary, but no one in my family as far back as we know has even had it.  Any information would be appreciated.

 

[Guest guest]

There are lots, not to say all, of conditions that just 15 years ago

would have been gone undetected. A mild case of psoriasis could be

dismissed as just " dry skin " . Don't be so sure that no one in your

family had psoriasis. We inherit genes up to the third generation

(greatgrandparents).

> Now, should I make a few people mad? Sure...

> We have a dog that has adult onset mange. Looks pathetic but we

don't

> want to put him down. A old timey remedy (not shotgun) is to mix

> diesel fuel w/ used motor oil. Now, who is mad? Think about it for

a

> minute. An astringent and a lubricant. It works wonders for this

dog.

> It is easier on his system than the dips and meds from the Vet that

> drag him down and make him sick as a dog.

>

> One of these days,

> PatB

>

> This is more in reply to your dog than to the PA....We bought a

puppy that

> had Kennel rash, or so we were told...they knocked $50.00 off the

price,

> since they said we would need to take her to the vet. Well, to say

the

> least, our vet was livid. He said Kennel rash was a polite way of

saying

> Mange. I never knew that..and this was a 6 week old teacup

Chihuahua. Poor

> thing was in agony and all the expensive medications were of no

help.

> Finally the pharmacist at our local Fred's told me to buy a bottle

of Rid for

> lice and bathe her in it. He said mange is only a mite that

burrows under

> the skin and is the same thing as scabies in humans. Anyway, I

bought some

> and bathed her twice in it and she was completely healed. And I

had spent

> close to $200.00 at the vets already, when an $8.00 bottle of Rid

worked and

> I still have the rest of the bottle if I ever need it again.

> I have had Psoriasis since I was pregnant with my last child 38

years ago. I

> first developed scaly patches on my elbows...and have been to many

doctors

> and found no help. Years later I started having arthritis like

pain and was

> diagnosed as having PA, but all the medication I have been given

for it was

> Motrin, or now am taking Celebrex for arthritis. I was told to be

thankful

> for the rash, because otherwise the pain would be unbearable. I

know no one

> who has psoriasis, I have been told it is hereditary, but no one in

my family

> as far back as we know has even had it. Any information would be

appreciated.

[Guest guest]

Larry-

My opinion?? My brother-in-law was dxd with MS in 1985, treated until 1998

when I hounded him to be tested for lyme. He came up highly positive WITH the

co-infections of babesia/ehrlichia, but his damage is permanent due to the

length of time he went w/out treatment for lyme AND the steroids/MS meds.

I also would like for you to read the following and PRINT it. I have various

drs. (Dr. Marshall was a dear friend of mine until he recently passed

away). that back me in the following statements....after all, there is NO

proof what causes MS. I believe that MS IS lyme left untreated. After all,

what causes the demyelination of the nerve coating? It has to be either viral

of bacterial...... I believe it is bacterial, borrelia bacteria.

Many people are misdiagnosed every day. Without the CORRECT info, one would

just do what the dr. says because after all, they are " God-like " . This is

where you as the individual intelligent human being has the ability to do a

little research and see if you can find facts to confirm your diagnosis. Just

a suggestion because this is a VERY personal story to me; my brother-in-law

was misdiagnosed with MS in 1985 and JUST last summer I insisted that he be

PROPERLY tested for lyme. He was almost in a wheelchair, now on antibiotics

since August, feeling great, no more cane.

The following paragraph can be found at : www.cassia.org , then go to the

bottom and click on DIAGNOSTICS, then on the next page, click on " When to

Suspect Lyme Disease " , then go down about 30 paragraphs and you will see the

following.........

Many patients are told that they have Multiple Sclerosis (MS) because of

brain MRI findings or a spinal tap was positive for oligoclonal bands (OCB)

or myelin basic protein (MBP). The medical literature is quite emphatic that

MRI does not reliably distinguish between MS an LD because there is too much

overlap in their supposedly distinct appearance and location of plaques.

Plaques have been detected with both disorders in the brain and spinal cord.

OCB's and MBP are non-specific markers for demyelination (loss of sheath

around nerves) and do not signify a cause of the demyelination. In Miklossy's

study above, senile plaques stained avidly for Bb spirochetes.

Marshall reviewed the MD literature in Medical Hypothesis (Vol 25: 89-92,

1988) and advances the notion that LD is causing MS! His survey revealed that

multiple studies prior to 1951 were able to demonstrate spirochetes in the

spinal fluid of MS patients (by inoculation into animals and on silver stain

of CNS tissues). Dr. Coyle has documented the presence of antibodies to Bb in

MS patients (Neurology Vol. 39:760-763, 1989). The encephalopathy attributed

to MS is very reminiscent of LD. Both MS and LD are associated with sinusitis

(Lancet, 1986). Dr. Leigner has reported a case of LD which fulfilled all

criteria for MS. The epidemiology of MS and the geographic distribution

parallels that of LD. The symptoms of both LD and MS can be aggravated if the

patient takes a hot bath. Anecdotally, patients with LD, who previously had

been identified as MS, responded to antibiotic therapy.

best of luck.

sue in nj

[Guest guest]

Larry-

I would like to make suggestions on remedies and protocols that you can do to

help yourself feel better.

YOU have alot more power in your healing than you think.

Here are some.....

Here are some suggestions that we do to feel better--

1. olive leaf extract- natural antibiotic, anti-viral (wards off colds) and

anti-fungal (yeast). Look for at least " 17-23% pure " . We take 2pills, 3x/day.

2. colostrum- super immune builder, natural antibiotic, made from bovine

cows' pre-milk, excellent also for loosing weight!!!

3. colloidal silver- mixture of silver metal particles in a liquid solution

that supposedly is a natural antibiotic, an immune system booster and a

natural healing property that can relieve pain and suppress the lyme

spirochete.

4. grape seed extract- excellent super anti-oxident, aids in fighting the

free radicals.

5. CoQ10- again an anti-oxident, helps generate energy. Great for heart,

liver and kidney free radical damage.

6. Molybdenum- a trace mineral which aids in ridding the body of yeast and

bacterial die-off from the Herxes.

7. Calcium/magnesium- for bones, and magnesium is to help counteract

twitches, muscle spasms, cramps and general weakness.

8. acidopholius-- A MUST with anybody that is taking antibiotics. The

antibiotics kill ALL the bacteria in the intestinal tract, the acidopholius

puts back the " good " bacteria. If one does not take it, you will suffer with

yeast infections!!!!! Take 2 definitely before bed so they can work min. of

6-8 hrs.

9. B and C vitamins as well as a good multi-vitamin.

10. Purified water is a MUST--at least 8 glasses per day.

11. I personally also find an anti-depressant also helps with pain/mood

swings/anxiety. Kava-kava is a natural for anxiety, but one can take

xanax(Rx) too.

(we do both).

12. Insomnia? we do melatonin or valerian from the health food store, or

Ambien (Rx), Tylenol PM.

13. Severe headaches? we take Butalbital (Rx of ferrocet), or Advil.

14. Severe difficulty breathing? we do oxygen from an oxygen tank.

15. the rife machine--I swear by it. Electro-magnetic frequencies zap the

spirochetes. (I have info)

16. massage therapy, chiropractic, " Aqua bed " --new--it is a hydro-bed that

shoots hot water (104degrees) from underneath you while you are fully

clothed. It does deep tissue massage. IT WORKS!!! I have been herxing like

crazy since doing it!!!!

17. Any exercise whatsoever, even walking. These spirochetes HATE internal

body heat and oxygen.

Write to me if you would like more info/support/references.

BEST OF HEALTH TO ALL!!!!

sue in nj

Ssadlermas@...

PS- Something brand new that is getting all the buzz is Transfer Factor

supplements....I just ordered these and will post what I find. My LLMD

recommends them--I have ordering info if anyone would like it, e-mail me.