Re: Carole to

[Guest guest]

Hi ,

Oh, , I'm so glad they have found the problem for your pain. I know you are worried that the Pancreatitis won't go away but removing the gallbladder most definitely will help your Pancreas to settle down with less pain. I am very happy for you and wish you the best...who knows, it may take care of all your medical problems. I'm glad your surgeon isn't going to do anything to your Pancreas right now. Stones in the gallbladder can cause many medical problems...it's no wonder you have so much pain all the time. , if you have your gallbladder removed around the 18th, maybe you will be able to eat during the Christmas holidays...what a great Christmas present that will be for you!!! I will keep you in my prayers as always. Again, I'm very happy for you and let me when they set your surgery date.

Hugs & Prayers

Carole

[Guest guest]

Hi ,

I am so sorry you are having problems with your liquid diet. Broth has never been a liquid I could tolerate. Have you ever tried mixing boiling water with a Beef Bouillon as part of your liquid diet? It isn't supposed to have any fat in it and I found it pretty tasty...unlike the broth. For a while it became my breakfast, lunch and dinner. That, jello and nonfat yogurt was the only thing that would stay down. It worked for me when I had Acute Pancreatitis...at least it was one of the few things I could tolerate for a while before my surgery. As it has already been said, everyone is different...just wanted to help if I could. I will keep you in my prayers and hope you will be able to tolerate more each day.

Hugs & Prayers

Carole

[Guest guest]

Dear Carol.

Thanks,, I know that all the prayers have helped..but as you said even if

it doesn't take the pancreatis problems away totally it is going to help my

pain at least some and that will be a blessing in itself, My prayers with all

of you that things will get better for all I still wish they would fine a

cure for this dang disease, it sure would make a lot of life's happier..

thanks again

Wishing you all a

pain free day from Michigan

[Guest guest]

Dear Carol.

Thanks,, I know that all the prayers have helped..but as you said even if

it doesn't take the pancreatis problems away totally it is going to help my

pain at least some and that will be a blessing in itself, My prayers with all

of you that things will get better for all I still wish they would fine a

cure for this dang disease, it sure would make a lot of life's happier..

thanks again

Wishing you all a

pain free day from Michigan

[Guest guest]

Hi ,

We will just pray that your surgery will end your pain with Pancreatitis. If they had a hard time seeing your gallbladder with the xray, your gallbladder must have been full of stones and the dye couldn't get in. It's a strong possibility that your gallbladder is causing most of your pain if not all. Take care of yourself, , for your upcoming surgery. I'll keep you in my prayers.

Hugs & Prayers

Carole

[Guest guest]

Hi ,

We will just pray that your surgery will end your pain with Pancreatitis. If they had a hard time seeing your gallbladder with the xray, your gallbladder must have been full of stones and the dye couldn't get in. It's a strong possibility that your gallbladder is causing most of your pain if not all. Take care of yourself, , for your upcoming surgery. I'll keep you in my prayers.

Hugs & Prayers

Carole

[Guest guest]

Hi ,

I really believe that once you have that nasty gallbladder removed, most of your pain, if not all, will be gone. My husband had gallstones and the pain was so severe, it doubled him over. The narcotic pain medication they gave him didn't help him. After they removed his gallbladder, the pain was gone. There's no telling how long you've had those stones and had to deal with that type of pain daily. , hang in there because pretty soon you are going to have G-O-O-D days! You are in my thoughts and prayers especially for your upcoming surgery.

Hugs & Prayers

Carole

[Guest guest]

Hi ,

I really believe that once you have that nasty gallbladder removed, most of your pain, if not all, will be gone. My husband had gallstones and the pain was so severe, it doubled him over. The narcotic pain medication they gave him didn't help him. After they removed his gallbladder, the pain was gone. There's no telling how long you've had those stones and had to deal with that type of pain daily. , hang in there because pretty soon you are going to have G-O-O-D days! You are in my thoughts and prayers especially for your upcoming surgery.

Hugs & Prayers

Carole

[Guest guest]

Hi ,

I really believe that once you have that nasty gallbladder removed, most of your pain, if not all, will be gone. My husband had gallstones and the pain was so severe, it doubled him over. The narcotic pain medication they gave him didn't help him. After they removed his gallbladder, the pain was gone. There's no telling how long you've had those stones and had to deal with that type of pain daily. , hang in there because pretty soon you are going to have G-O-O-D days! You are in my thoughts and prayers especially for your upcoming surgery.

Hugs & Prayers

Carole

[Guest guest]

Carole,

The only thing is that they said there isn't stones but he thinks there

is sluge and cravel like stuff there which is slowing things down and that is

why my counts have never came back to normal but as he said if it doesn't

take it all away it should take alot of my pain away ..and he knows there is

some sort of blockage since my gallbadder didn't show up on the hida scan at

all.. but thanks for all the thoughts and prayers.. and you have mine.. how

are you feeling? hope things are ok with you.. keep the chin up and thanks

again for the support...

Wishing you all a

pain free day from Michigan

[Guest guest]

Carole,

The only thing is that they said there isn't stones but he thinks there

is sluge and cravel like stuff there which is slowing things down and that is

why my counts have never came back to normal but as he said if it doesn't

take it all away it should take alot of my pain away ..and he knows there is

some sort of blockage since my gallbadder didn't show up on the hida scan at

all.. but thanks for all the thoughts and prayers.. and you have mine.. how

are you feeling? hope things are ok with you.. keep the chin up and thanks

again for the support...

Wishing you all a

pain free day from Michigan

[Guest guest]

Carole,

The only thing is that they said there isn't stones but he thinks there

is sluge and cravel like stuff there which is slowing things down and that is

why my counts have never came back to normal but as he said if it doesn't

take it all away it should take alot of my pain away ..and he knows there is

some sort of blockage since my gallbadder didn't show up on the hida scan at

all.. but thanks for all the thoughts and prayers.. and you have mine.. how

are you feeling? hope things are ok with you.. keep the chin up and thanks

again for the support...

Wishing you all a

pain free day from Michigan

[Guest guest]

Hi ,

Glad to hear you don't have to wait very long for your gallbladder surgery. Even though you don't have stones, I still hope and pray that the removal of your gallbladder will take the majority of your pain away. You will be in my thoughts and prayers especially December 20th. A very "special" prayer will be said for you on that day!

Hugs & Prayers

Carole

[Guest guest]

Carole,

Thanks Carole I am glad too I don't have to wait to long he had told me

that he wanted to do asap but didn't want me to be in pain for the holidays

and I told him then that doc I am in pain every day so that part doesn't

matter so I guess he believed that since it is next week... I hope this works

I really do, I haven't had this as long as alot of you here but I know that I

need a break already,,, this everyday pain is for the birds.. I know there

will come a day that it will be here and not go away but for now I want some

days that are pain free as I know we all do or at least better then most

days.. today was really bad day again I don't know if I could work many more

days with the pain that I had today.. most of the time work takes my mind off

of it but days like today it doesn't matter what I do I don't forget that it

is there.. again Carole thanks for the thoughts and prayers and the special

one the day of the surgery hopefully I can get ahold of someone to let them

know how I am if I can't get on the puter to let you know. take care and hugs

and prayers to you and all

Wishing you all a

pain free day from Michigan

[Guest guest]

Hi ,

Thanks, . I hope you get to feeling better and I pray that you are soon able to tolerate some liquids. I can only imagine how frustrated you must be. You are in my thoughts and prayers. Let me know how you are doing. We'll have to chat again soon.

Hugs & Prayers

Carole

[Guest guest]

Hi ,

Thanks, , I was hoping the same thing but the little monster (I should say little devil) had other ideas. My GI doctor wants to see me after he goes over my X-Ray to make sure the pseudocyst isn't attached to anything else (all I need right now). He had the Radiologist's report when he phoned me but for some reason he wants to look over the X-Ray himself. He said he would call me as soon as he received the X-Ray from the hospital. I'm still not going to do anything until after the first of the year...I'll make my decision then. I'm not sure if he will let me choose which option. I'll let you know.

How are you feeling? I know you are glad to have your surgery over with and desperately waiting to see if it helps your pain after recovery. I hope and pray it does.

Didn't you say you were getting a Siberian Husky puppy or was it someone else? Let me know and if it is, I was going to send you a picture of my four year old Siberian Husky.

Take care of yourself and get plenty of rest to recover from your surgery. I'll keep you in my prayers.

Hugs & Prayers

Carole

[Guest guest]

I haven't been writing much because my tummy is doing much better. I'm kind of holding my breath and praying I will never develop chronic Pancreatitis.

Hi ,

Haven't talked to you in a while but I have noticed you haven't been posting and very happy to hear it's because you are having better days. Hope it continues. If I am very careful with what I eat, I won't have the severe pain but if I eat anything that has a lot of fat, my pain comes back and I have to start all over again to get it to calm down. Of course, I always have the hurt in my left side but I can deal with that. , how do the doctors tell definitely if you have Chronic Pancreatitis? In the past, I was diagnosed with Acute Pancreatitis but how do I know I really have Chronic Pancreatitis if I am able to control the pain by only eating nonfat foods?....not complaining....just wondering! Had a CT on December 8th and the Pseudocyst is still growing on the tail of my Pancreas...So many questions but not enough answers with this disease.

I really got creative Sunday and made a nonfat, sugarless chocolate pie...sounds horrible but it taste good to me. I figure if I have to eat this way, I'll make my own recipes of things I love but can't have.

I will keep you in my prayers, , and I hope your pain doesn't return.

Hugs & Prayers

Carole

[Guest guest]

I really got creative Sunday and made a nonfat, sugarless chocolate pie...sounds horrible but it taste good to me. I figure if I have to eat this way,

carole - that doesn't sound too bad! i have gotten some no fat, no sugar instant pudding mixes and sometimes when i fill the need for some i can just ship it up w/some skim milk and feel like i'm cheating. debbie s. (ark)

[Guest guest]

I really got creative Sunday and made a nonfat, sugarless chocolate pie...sounds horrible but it taste good to me. I figure if I have to eat this way, I'll make my own recipes of things I love but can't have.

Good for you Carole. I hope you enjoyed it and ate the whole pie yourself.. YUM< YUM

[Guest guest]

Hi ,

I've been having a lot of pain with depression that goes right along with the

attacks so I haven't been posting for quite some time. When I get like that,

I tend to withdraw from everyone and everything until the attack subsides.

I'm feeling better but I'm still having trouble with anything I put in my

mouth so yogurt and skimmed milk is my primary source of food....at least the

severe pain is gone....for now!

The strange part is whenever my attacks subside, I seem to go into denial

believing that everything is going to be fine...I even tell myself that the

Pseudocyst is gone but then the pain comes back and it starts all over again.

This has been the pattern since last July. My doctor said if the CT Scan

scheduled for March 8th shows the " little monster " (Pseudocyst) is still

growing, he thinks surgery is the only answer. I agree with him but I

remember that same surgery in 1986 as if it were yesterday and I wish there

was some other way. I really hate to be cut on like that again in the same

place with all those horrible tubes. To make matters worse, my sister

compares my cyst on my Pancreas to cysts that she is familiar with and can't

understand why the doctor hasn't already removed it! I've tried to tell her

the Pancreas is a little different but I get tired of explaining and I can

tell she isn't really listening anyway. I haven't heard from either of my

sisters in two months so I don't know why I even worry about what they think

about me. Obviously, they aren't thinking about me at all!

Now I feel guilty because I'm complaining and so many of the others have it a

lot worse than I. That's the very reason I don't like to post until I'm

feeling better....sorry everyone!

Anyway, I'm better now and thanks for asking and caring......bet you wish now

you hadn't asked. I really have missed everyone in this group and I'm

also glad to be back. I hope the medication for your Thyroid starts kicking

in soon and you feel much better.

Since I haven't been posting, I'd like to extend a warm welcome to all our

new members.

Hugs & Prayers To All

Carole

[Guest guest]

Carole,

I am never sorry I asked that is what I and everyone here is for..god

knows you have listen to me enough.. and it doesn't matter that there are

ones worse or better we are here for you.. weather it is to just let you vent

I know that sometimes just getting it out helps...I am sorry that your

sisters are like that... I wish people realized how important life is and to

treasure the time you have with people.. my brother who also has pancreatis

and is diabetic now..doesn't understand what I go through with

pancreatis..see he didn't have the every day pain and he would have attacks

be in the hospital a week and counts back to normal till the next time where

mine haven't went back to normal since last may, so he tells me it is the

doctors not doing something right... and that I should do this and that.. I

can t explain it to him that we are so different.. I feel your frustration so

much... it isn't easy... but you know we don't need the stress so try my

friend to put it out of your mind.. I know having surgery isn't easy but if

it is going to help...you are in my prayers nd thought daily.. be well my

friend...

hugs and kisses

your pal from Michigan

[Guest guest]

In a message dated 3/2/01 10:05:41 AM Eastern Standard Time, mrsteep1@...

writes:

> I feel your frustration so

> much... it isn't easy... but you know we don't need the stress so try my

> friend to put it out of your mind.. I know having surgery isn't easy but if

> it is going to help...you are in my prayers nd thought daily.. be well my

> friend...

>

Dear ,

Thanks for your kind words and support....I really do need to vent once in a

while and I feel like the people here truly understand our pain and

frustration. You and others on this board help me through some really bad

times both mentally and physically and for this I thank you from the bottom

of my heart. I just hope I can give back half of what you all have given to

me since I became a member. I wish there was some way I could help you...you

seem to have had more than your share of problems too.

As far as my sisters are concerned, they couldn't hurt me if I didn't love

them as I do and I really don't think I can stop loving them to help

myself....does that make any sense? I know I will always love them no matter

how they treat me. I know they love me (in their own way), they just don't

understand this disease and think I just want attention.....that's what

hurts. Anyway, if I treated them the way they do me, I would be no better

than they are and I don't choose to be like my sisters in that way.

I hope you feel better soon and I will keep you in my prayers.

Hugs & Prayers

Carole

[Guest guest]

In a message dated 3/2/01 11:02:36 AM Eastern Standard Time,

CJWatts88@... writes:

> . Anyway, if I treated them the way they do me, I would be no better

> than they are and I don't choose to be like my sisters in that way.

>

> I hope you feel better soon and I will keep you in my prayers.

>

> Hugs & Prayers

> Carole

>

>

>

>

>

Dear Carole, good for you. I know it is hard to keep your emotions inside

and to put on a pretty face but with Gods help we can do it. I have a sister

also who makes it very hard on me and I have to pray to God to help me ignore

her insults. I have been ill for so long and she has never believed me. She

struts into my house and sticks her breast out and tells me what a wonderful

life she has. She continuously tells me that she feels like a 20 year old

and all the men want her. She is 75. LOL She sure can make me feel bad.

When she leaves my house and after an hour or two of her bragging on her

wonderful life and how wonderful she feels I just sit down and cry. I don't

know if she does this to me on purpose or if she is so self consumed she

doesn't know she is doing this. When I couldn't eat and on tpn she would tell

me all the really good things she was eating and the good foods she had

prepared. I am not exaggerating. She is a real trip. So dear Carol and all

of you who have relatives who hurt you and are insensitive to your illness I

understand. Oh do I understand. Love, Shirley

[Guest guest]

In a message dated 3/2/01 12:31:39 PM Eastern Standard Time,

shirlf3542@... writes:

> I know it is hard to keep your emotions inside

> and to put on a pretty face but with Gods help we can do it. I have a

> sister

> also who makes it very hard on me and I have to pray to God to help me

> ignore

> her insults. I have been ill for so long and she has never believed me.

Hi Shirley,

It's hard to believe how much we have in common and how much we are so alike.

Are you sure my sisters aren't related to yours? I get the same reaction

when we're all together at Christmas. They think I don't eat so they will

feel sorry for me. That's so far from the truth...I'd really rather stay at

home away from them so they wouldn't have any reason to judge me. They

aren't around me enough to know what goes on daily in my life. In fact, I

have told my husband and my children that if indeed I have to have surgery,

they are not to tell my sisters. If they can't phone me with love in their

heart now when I would really love to hear from them, I don't want them at

the hospital. I don't mean to be ugly...I just don't want them there if it

takes my going into the hospital before they acknowledge I really do have a

problem....does that make any sense??

Shirley, I'm so glad I have you to vent to about my sisters because I know

you truly understand. We'll just have to stick together and give to each

other the love and support we would love to have from them.

Hugs & Prayers

Carole

[Guest guest]

In a message dated 3/2/01 10:38:34 PM Eastern Standard Time,

CJWatts88@... writes:

>

> Hi Shirley,

> It's hard to believe how much we have in common and how much we are so

> alike.

> Are you sure my sisters aren't related to yours? I get the same

> reaction

> when we're all together at Christmas. They think I don't eat so they will

> feel sorry for me. That's so far from the truth...I'd really rather stay

> at

> home away from them so they wouldn't have any reason to judge me. They

> aren't around me enough to know what goes on daily in my life. In fact, I

> have told my husband and my children that if indeed I have to have surgery,

> they are not to tell my sisters. If they can't phone me with love in their

> heart now when I would really love to hear from them, I don't want them at

> the hospital. I don't mean to be ugly...I just don't want them there if it

> takes my going into the hospital before they acknowledge I really do have a

> problem....does that make any sense??

>

> Shirley, I'm so glad I have you to vent to about my sisters because I know

> you truly understand. We'll just have to stick together and give to each

> other the love and support we would love to have from them.

>

> Hugs & Prayers

> Carole

>

>

>

Dear Carole, my husband has already gone to bed and here I am on the PC. But

that's OK because we sleep in separate bedrooms. He snores really loud and

keeps me awake and I have to read so I can fall asleep and that keeps him

awake. I guess we are getting old. All this talk among the group today

about sexual things made me feel guilty so I asked him if he wanted to sleep

with me tonight and he said no so I ask him if he wanted me to sleep with him

and he said no. So to be sure he understood my thoughts I asked why and he

said it's too late. It wasn't even 11:30 yet. We are old and I have been

sick for so long I think he has just about forgotten all about sex. That's

OK with me since I don't have any hormone and having sex hurts so bad. We

are a funny pair. LOL

I am sorry you have to take abuse from your sisters. I have always had to

take it from them. The one I described today is really something. I am

nothing like her. We don't think alike, act alike, are personalities are so

different. I am so glad I am not like her. She is a user, a manipilator,

and dollar signs is first and foremost on her mind. I know I am being really

bad talking about my sister this way but it is the truth and so much more.

When I go to bed tonight and say my prayers I will feel so guilty for talking

about her. Did you say you feel guilty also when you get angry or talk about

you sisters? I love her but I don't want to be around her for too long. She

uses men for their money and I can't stand that. Here I go again. I am not

going to talk about her anymore tonight. I will try to be good.

How are you feeling tonight and today Carole? How do you feel physically and

emotionally? I am hoping that you are feeling better every day. When you go

for your C. T. Scan I will be anxious for you and waiting for you to write me

and let me know what the doctor had to say. Please keep us informed.

I am worried about Henry. I think that Henry hasn't been very well for a

long time. I believe he suffers terribly. I have not heard from him and am

wondering if he is in the hospital. Have you heard anything about him? I

also have not heard anything from Jang. I am wondering how she is doing.

There are so many people in the group now it makes it hard to keep up with

everyone. I am thankful though that they all have found us because I

remember the day I found the group. I was so happy that I had finally found

people who understood what I was going thru and they all were so nice to me.

I don't blame you for telling your children and your husband not to tell your

sisters that you are in the hospital. I have been there, you have described

my situation so clearly. We are so much alike Carole. I hope that one day

we can meet. Take care and I am hoping I will be able to talk with you

tomorrow. Love, Shirley