carol

[Guest guest]

Carol, that's so disgusting that they don't look at their jobs as " helping

people " . All that loyalty to the others dr's, I know what you mean, cause I've

seen it as a nurse.

Can you call to make an appointment to see a neurosurgeon for the second

opinion, but not tell them that it's for a second opinion. Just make an

appointment for your symptoms, then, when you get there, show your MRI, but

don't tell them what the other one said. Just say the neurologist said you

should see a neurosurgeon. Sometimes I guess you have to play the game.

Dee

---------------------------------

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[Guest guest]

how clever! in my shock, i hadn't thought of it.

of course, i'm also wondering if a surgeon ever suggests NOT having surgery!

thank you, dee! i may be a bit more mysterious about my reasons!

c

Re: Re: carol

Carol, that's so disgusting that they don't look at their jobs as " helping

people " . All that loyalty to the others dr's, I know what you mean, cause I've

seen it as a nurse.

Can you call to make an appointment to see a neurosurgeon for the second

opinion, but not tell them that it's for a second opinion. Just make an

appointment for your symptoms, then, when you get there, show your MRI, but

don't tell them what the other one said. Just say the neurologist said you

should see a neurosurgeon. Sometimes I guess you have to play the game.

Dee

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

how clever! in my shock, i hadn't thought of it.

of course, i'm also wondering if a surgeon ever suggests NOT having surgery!

thank you, dee! i may be a bit more mysterious about my reasons!

c

Re: Re: carol

Carol, that's so disgusting that they don't look at their jobs as " helping

people " . All that loyalty to the others dr's, I know what you mean, cause I've

seen it as a nurse.

Can you call to make an appointment to see a neurosurgeon for the second

opinion, but not tell them that it's for a second opinion. Just make an

appointment for your symptoms, then, when you get there, show your MRI, but

don't tell them what the other one said. Just say the neurologist said you

should see a neurosurgeon. Sometimes I guess you have to play the game.

Dee

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

, I have never had daily bowel movements in my entire life.

Before surgery I'd have one or two a week. If I started having them

now, I'd know something would be wrong! I work on having a weekly

bowel movement. I use the stool softener every day (senakot) and if I

haven't had one in a few days a take the Dulcolax (2) and if that

doesn't work, I use a suppository or two. That's enough work for one

week!

Carol

>

> Dear Carol,

>

> Another suggestion to try with constipation is Fiber caplets

(citrucel). I was on Fentanyl patches when first released from the

hospital, and was very constipated, to the point I got toxic, and

couldn't keep anything down, and ended up in the emergency room twice

getting I.V. Fluids. Not one doc asked about my bowel function. They

were sure it was my med's, that I had gotten a bad virus while in the

hospital, no one asked how often I was having a bowel movement. My

best friend from Oregon called and I was in awful shape, and her

husband who is a doc figured out from talking to me that I was

extreamly constipated and suggested Fiber caplets. Mind you I had

been taking stool softeners and laxitives with no results. So I used

the maxium listed on the bottle of fiber caplets, and low and behold

things finally got going. If your bowels aren't moving everyday you

can and will get very ill, and I'll be forever grateful to my friend

and her husband for asking the questions that no other doc asked "

Are you having daily bowel movements " ? You would think that would be

a basic question to ask someone who just had surgery and were on

major pain killers but no one did, they were just sure I had a nasty

virus from the hospital.

>

>

>

[Guest guest]

Whenever you are all done with it (don't hurry! use it as long as you

want to) you can send it back to me. If never finds hers, I'll

probably send it back to her at that point (LOL!)

Carol V.

>

> Thank you for sending me the c.d. I have listened too it twice, I

> really like it.

>

> Thanks,

>

>

> P.S. when I am done with it you'll have to tell me what to do with it

>

[Guest guest]

Its still missing Carol! Its probably in one of the Christmas CD

cases. As I was still in the hosp for Christmas, we had the carols a

blarin! As those are on the bottom shelf in the other room...will be

awhile till I go through them lol

> >

> > Thank you for sending me the c.d. I have listened too it twice, I

> > really like it.

> >

> > Thanks,

> >

> >

> > P.S. when I am done with it you'll have to tell me what to do

with it

> >

>

[Guest guest]

I am not sure where my copy is, but I will be glad to copy it for you

when I find it!

> > >

> > > Thank you for sending me the c.d. I have listened too it twice,

I

> > > really like it.

> > >

> > > Thanks,

> > >

> > >

> > > P.S. when I am done with it you'll have to tell me what to do

> with it

> > >

> >

>

[Guest guest]

Thank you for asking. No, I didn't bother to write her or call her. I

did write Sharon Whittemore, but she said I'd have to address Dr. Hu.

I can't see how she could tell anything unless I go and see her. I

have an appointment scheduled for Sept 17, so I will have to wait

until then. If I'm careful and remember to " suck in " my core muscles

when I have the brace off, I do OK. The pain isn't as bad as it was a

few weeks ago. I also have to get more PT arranged. My 4 visits are

up. I think the PT place will arrange it with Dr. Hu and my

insurance. I was hoping to ask the main PT lady last week when I was

in there what she thought, but she was on vacation. I did bring

photocopies of my X-rays for her to see, too. They are now in my file

there for anyone to see. The two guys that saw them last week were

amazed. They asked a few questions, but I tried to keep it simple for

them. Most wouldn't understand. Their eyes glaze over if you say too

much!

Carol V.

> > >

> > > Hi All!

> > >

> > > glad to see joined, she has an amazing story...just to

> > keep it straight I am just

> > > " Kim " . We met @ our pain management Dr. when he called the next

> > patient " Kim " and we

> > > both stood up! :~) great to find someone like !!

> > >

> > > I see Dr. Hu a week from today (13th @ 9a.m), still on the

fence

> > about surgery as the

> > > solution. My SI joint pain is worse than ever and worse than

my

> > spine pain. Worry a fusion

> > > isn't going to relieve SI pain because its a matter of

alignment w/

> > my hips, fused ankle, tibial

> > > plateau repair, and femur osteotomy etc. etc. etc.... my

> > questions are many for Dr. Hu...wish

> > > me luck! :~)

> > >

> > > Kim

> > >

> >

>

[Guest guest]

Carol, I admire your determination and courage. I wish life were easier for you

-- and for all us humans, I guess.

You are blessed with great inherent gifts, or perhaps I should say that you've

created those gifts for yourself. You're better off than many people with

flawless health!

Are you taking anything in place of the Imuran? There are other steroid-sparing

drugs, such as 6MP or CellCept, that might help. How long have you been taking

Prednisone? Are you reducing Prednisone now?

If you want links to some sites with information about AIH, let me know.

Best wishes.

Harper

AIH dx 2000

CD dx 2002

[ ] Re: Have AIH and I feel so hopeless

>

>

>

>

>

> I think maybe all of us have felt like this at one time or another ,but I

think the thought of the alternative has put us in the right direction.I was

very sick when I was diagnosed, but I have been sick most of my life.This was

just one more hurdle to get over.You are young and still have a life ahead of

you..Take the drugs...Im not saying they are the best in the world,but they will

save your life.This group is here to listen and ofer support...Life is worth

living even if we do look like a chubby little chipmunk...LOL...Take the

drugs...It may take a little while to see results,but I think you will feel

better ...Keep the group updated as to how you are doing...Heres wishing you the

best...

> Carol in Bloomington Indiana

> >

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Best wishes of healing to you, Carol

June

On Mar 13, 2011, at 11:59 AM, Cooky Stonkey wrote:

> Carol hi!

>

> OMG I was so sorry to read your note this morning. You have been

> thru so

> much and now to have this happen. I hope they are at least giving

> you some

> good pain medsJ

>

> I can't believe they are making you stay in that awful hospital. You

> would

> be so much better off at home. I have noticed hospital staff has

> become like

> they were in the 40's and 50's...very snippy and not at all helpful.

> Seems

> the more machines (as in computers) the worse they get personally. I'm

> getting Clindy IV's in a local hospital and I would never treat a

> patient

> like I am treated.

>

> I hope you are feeling better soon. Use my email address if you want

> to

> talk. How is your daughter?

>

> Hugs and blessings.

>

> cooky

>

> From: rheumatic [mailto:rheumatic ]

> On Behalf

> Of Carol Esposito

>

> I am in the hospital with what looks schematic colitis of the

> descending

> colon. That I got from the cat scan. Have to have a colonscopy on

> monday

> I just want to get out of the hospital by tues! Been here since last

> tues

> where the horrible ER drs and staff almost killed me. I was in

> secondary

> adrenal crisis and it wasn't until my blood pressure was super low

> and I was

> passing out that they realized I needed to be admitted. Severe gi

> obstruction and 12 bloody diarrhea attacks, hx of other autoimmune

> problems,

> didn't convince. One aide told me that it was improper to have

> diarrhea on

> an ER bed! Once I was admitted on the 2nd floor of the hospital, the

> care

> from most of the nurses and staff has helped a lot. Doctors though are

> passive and not good at communicating.

>

> Dolores, I too have been under a lot of stress. My mom died in Aug

> 2010 and

> was sick on a feeding tube for three years. My father and mother

> lived with

> me and now just my dad does Mom died at 88. My dad will be 88 in

> March. He

> has slowed down a lot. And I was working part-time. Now I have to

> take time

> off and focus on myself!

> I hardly post. I got involved in this group back in approximate

> 1997. I

> improved on doxy but stopped in around 2008, particular bec my good

> friend

> treppel cantor from this group got sick with lung cancer so I

> had no

> one to share the stress of driving to Nj with. Also I was busying

> returning

> to work on a part time basis. And was stressed and overdoing too

> much. My

> local drs wouldn't prescribe antibiotics and instead I ended up on

> too much

> prednisone.

>

> I had just started to see two alternative drs when I ended up I'm the

> hospital.

>

> I think of the strength that this people have in this group. I may

> not write

> much but I read a lot and thank you for all your kindness and

> information.

> Carol e from ny

>

> ,___

>

>