carol

[Guest guest]

That is a very good thought. I am very thankful, but sometimes don't sound like

it! I have lost over 20 pounds this month, some water I am sure and some fat.

I hope to lose a whole bunch so I may qualify for transplant if it comes to

that. I really don't care about my hair anymore, it has been this way for so

long, if necessary I will buy a wig! Lynn aih

Ccannc@... wrote:

> From: Ccannc@...

>

> Hi Lyn my name is Carol and also fat and getting bald from AIH still o9n

> predisone but have been cut back to 2.5 and that day I started my diet hope

> it works as far as the hair I told my doctor and he changed me from actigal

> to urso and I noticed my hair isnt falliong out as much. Well I guess we

> still have to thank the Lord above any how that were here to get fat and

> bald. Take care and be well Carol

>

> ---------------------------

[Guest guest]

Lynn: Good job on the 20 pounds. I wish I could lose some. I also have

hair loss on the top and sides of my head. I don't let it bother me because

I could have no hair. Then I could polish my head every night before I go to

bed.

Sue AIH

Wisconsin

[Guest guest]

--Thanks for the computing, Carol! My brain just can't do that...and

to think I wanted to be a physicist!

You're great!

Jo Ann

- In egroups, " Sieverling " <lsieverl@f...>

wrote:

> JoAnn, a few thoughts.

>

> ImmunoPro is two to three times more potent. So, say you want to

err on the side of caution, and start at 1/3 your ImuPlus dose. One

pack is 1.75 tablespoons. Or just under 2 - that's easier. 2

tablespoons is 6 teaspoons. And one-third of that is 2 teaspoons.

>

> So 1/3 of your ImuPlus dose is a little under 2 teaspoons of

ImmunoPro. (That's actually Cheney's recommended starting dose - one

teaspoon twice a day.)

>

> All the best. Carol

[Guest guest]

yes

[Guest guest]

Thanks Leah,

I'm not familiar with the Coalition for Students With Disabilities and

would like to hear more about that as well as TAP and TTAC. Any info you can

give would be wonderful. I made up a work notebook and sent it in to school

today with different activities for Trisha to work on. I shouldn't have to

be the one doing this at least not for the school. It also bothers me that

her teacher has limited knowledge at best when it comes to sign and that is

Trisha's primary way of communicating even if it is just basic signs. I will

be dropping in on her class next week without prior warning so I can get an

idea of what is going on. I am also going to ask that I be shown the

teacher's schedule for Trisha and to be shown how she is keeping measurable

progress charts and to be shown what work if any she is doing with Trisha. I

started to call and ask but then that would give her time to make them up if

she doesn't have any and I want to know for sure I want to see that she is

following the IEP and if she is then she should have all the documentation

available when I go in. It was agreed that she would keep measurable

documentation on Trisha's progress and that a daily communication would be

done. I sent a notebook in for a communication book and it hasn't come back.

I sent a note to her on monday about a question I had about the book fair

and still have not received an answer from her. I have not had any thing

sent home telling me how Trisha is doing not even when I forgot to send the

money in for her lunch did I receive a note. I just happened to remember I

hadn't sent it in but I can't help but wonder how long it would have taken

her to let me know if I hadn't remembered. It's funny the night of the

advisory board meeting, it wasn't the teacher who came to our h ouse to see

if we were going, it was the aide who came and also offered us a ride. I

spoke to another parent of a child in Trisha's class and he isn't happy with

this teacher as well. I will not allow this teacher or anyone else

jeopordize my daughter's education. I just need to gather as much

information as I can so I can make sure I do the right thing.

Carol

Trisha's Mom

She isn't Typical, She's Trisha!

[Guest guest]

CAROL

Im so glad you joined the group and Im sorry to hear about your medical

problems. Without your voice would be very difficult and Im sure it is hard

with friends and family. I am also trying to get out more and see what all I

can do, thanks for the positive encouragement! Hugs Colleen

[Guest guest]

colleen-at times the irritation is created by me for I should remember

that when I do whisper at people i need to have their attention and then

when the remind me that I should ge their attention before speaking it

bothers me for the normal way of speaking is just to do it . guess it

just takes time to accept the losses and learn to cope with it. carol

On Mon, 06 Aug 2001 22:01:07 EDT ccomm777@... writes:

> CAROL

> Im so glad you joined the group and Im sorry to hear about your

> medical problems. Without your voice would be very difficult and Im

> sure it is hard with friends and family. I am also trying to get

> out more and see what all I can do, thanks for the positive

> encouragement! Hugs Colleen

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Being Sick Community

>

> Memorial Page

> http://www.dreamwater.net/lovingmemory/

>

> Message Archives and Digest Attachment Pictures:-

> /messages

>

> Chat:-

> Scheduled Daily Chats at # on IRC DALnet.

> /files/chat.htm

>

> Bookmarks:-

> Add a website URL you have found useful.

> /links

>

> Personal Complaints or problems:-

> Please contact a moderator

> email: -owner

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you

> receive.

> 2) Daily Digest - sends you 25 messages in one single email for you

> to browse. This is an excellent option if you receive alot of

> email.

> 3) Web only/No mail - means that you can pop into eGroups at your

> convenience and receive no email.

>

> To modify your subscription settings please visit:-

> /join

>

> To subscribe or unsubscribe please email:-

> -subscribe

> -unsubscribe

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

>

> “Hold on to what is good, even if it's a handful of earth. Hold on

> to what you believe, even if it's a tree that stands by itself. Hold

> on to what you must do even, if it's a long way from here. Hold on

> to your life, even if it's easier to let go. " - Pueblo Prayer

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

>

>

>

[Guest guest]

Hi Carol!!! I'm glad you have people helping you ) Do you live alone???

I like staying home also ) Meeting people makes me nervous! Has the cancer been stopped??? Do you have chemo? Take Care!!!!!!!!!!!

{{{ Many Special Hugs }}}

Helen

Helen, I do have two home health nurses that try to get me out, also my ex comes once a week and he takes me out.  I am not unhappy staying home.  when I had to stop working i was devestated for a long time but it is easier now that I have the computer and can do some stuff on iyt.  thanks carol

I may never see tomorrow; there's no written guarantee, And things that happened yesterday

belong to history!!!

{{{Sent With Many Hugs}}}

Helen

[Guest guest]

Oh My!!! You sure have been dealt a blow!!! But you have such a healthy attitude about it now ) We can not Change what we have, but We can Make life easy or hard on ourselfs, is the way we choose too ) Glad you have joined us ) Keep us posted!!!

Triple digets!!! I would roast!!! And I'm complaining of high nineties!!!

We had a heaat index of 107 today!!! For our area that is too hot!!! We broke our record high of 93 to 97 now!

{{{ Blessing Hugs }}}

Helen

Helen, can relate about the heat thing-we have had 21 days of continuous triple digits and it sure can wear on the nerves.  I had uterine cancer in 1975 and beat it and stayed relatively healthy until the last few years.  when I first started getting really ill I was pretty upset-I was an addictionns counselor and was active in a travelling choir and doing many other things but then had to stop.  Guess I pulled into my own world for several months and then decided that it was not the way I wanted to be the rest of my life.  I have a dear friend that has a life threatening illness and she told me she wakes up every morning and allows herself 15 minutes of gripe time about her illness and then begins the day.  I kind of adopted that too and have learned to live rather than give up in this journey.  carol

I may never see tomorrow; there's no written guarantee, And things that happened yesterday

belong to history!!!

{{{Sent With Many Hugs}}}

Helen

[Guest guest]

22, WOW !!! 39 has been my lowest and that was bad enough. 22, is too low!!! Do you still get that low???

Hugs

Helen

-I found out i was hypo by accident-I had collapsed on my job as amed tech in a nursing hoime and when they tested my blood glucose levelit was 22 and my doc was really amazed-every test I have had shows it onthe low side which has also amazed me given the history of diabetes in myfamily. carol

          I may never see tomorrow;       there's no written guarantee, And things that happened yesterday                 belong to history!!! {{{Sent With Many Hugs}}}                  Helen

              

[Guest guest]

no not nearly so-I range between 38-46 now carol

On Thu, 16 Aug 2001 00:01:10 EDT angelbear1129@... writes:

22, WOW !!! 39 has been my lowest and that was bad enough. 22, is too low!!! Do you still get that low??? Hugs Helen -I found out i was hypo by accident-I had collapsed on my job as amed tech in a nursing hoime and when they tested my blood glucose levelit was 22 and my doc was really amazed-every test I have had shows it onthe low side which has also amazed me given the history of diabetes in myfamily. carol I may never see tomorrow; there's no written guarantee, And things that happened yesterday belong to history!!! {{{Sent With Many Hugs}}} Helen ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMemorial Pagehttp://www.dreamwater.net/lovingmemory/Message Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at # on IRC DALnet./files/chat.htmBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Hi Carol,

I'm sorry to hear of your diagnosis, but glad you

found us. Feel free to ask as many questions as you

need to - we ALL have been where you are now at one

time. There are no dumb questions!

I agree with you on the diet vs. vitamins. And the

doc too. It would be ideal to get all of our vitamin

and mineral needs from just our foods, but unless you

are growing your own and eating them fresh picked you

won't be getting the full benefits. Many vitamins are

lost during storage and processing. In fact, I've read

that frozen veggies are probably better than the fresh

sold in grocery stores since the frozen are frozen

immediately after harvesting, whereas the 'fresh' may

have been picked days before. And, with the busy life

most of us leave, it's kind of hard to ALWAYS eat the

way we should.

Always get copies of all your lab tests and save

that copy for yourself! It can save a lot of time and

aggravation, especially if you need to change doctors,

or get referred to other doctors. Seems like the first

thing they all want to do is get some blood from you,

lol! No point in doing the same tests over and over.

Plus, you can look up results at home, at your

leisure, whenever you have questions. A good place to

look up some basic info on basic lab tests is:

http://www.carbonbased.com/cbcblood.htm

Good luck to you, and remember, we are here if you

need us!

Claudine

__________________________________________________

[Guest guest]

Hi Carol,

I'm sorry to hear of your diagnosis, but glad you

found us. Feel free to ask as many questions as you

need to - we ALL have been where you are now at one

time. There are no dumb questions!

I agree with you on the diet vs. vitamins. And the

doc too. It would be ideal to get all of our vitamin

and mineral needs from just our foods, but unless you

are growing your own and eating them fresh picked you

won't be getting the full benefits. Many vitamins are

lost during storage and processing. In fact, I've read

that frozen veggies are probably better than the fresh

sold in grocery stores since the frozen are frozen

immediately after harvesting, whereas the 'fresh' may

have been picked days before. And, with the busy life

most of us leave, it's kind of hard to ALWAYS eat the

way we should.

Always get copies of all your lab tests and save

that copy for yourself! It can save a lot of time and

aggravation, especially if you need to change doctors,

or get referred to other doctors. Seems like the first

thing they all want to do is get some blood from you,

lol! No point in doing the same tests over and over.

Plus, you can look up results at home, at your

leisure, whenever you have questions. A good place to

look up some basic info on basic lab tests is:

http://www.carbonbased.com/cbcblood.htm

Good luck to you, and remember, we are here if you

need us!

Claudine

__________________________________________________

[Guest guest]

Hi Carol,

I'm sorry to hear of your diagnosis, but glad you

found us. Feel free to ask as many questions as you

need to - we ALL have been where you are now at one

time. There are no dumb questions!

I agree with you on the diet vs. vitamins. And the

doc too. It would be ideal to get all of our vitamin

and mineral needs from just our foods, but unless you

are growing your own and eating them fresh picked you

won't be getting the full benefits. Many vitamins are

lost during storage and processing. In fact, I've read

that frozen veggies are probably better than the fresh

sold in grocery stores since the frozen are frozen

immediately after harvesting, whereas the 'fresh' may

have been picked days before. And, with the busy life

most of us leave, it's kind of hard to ALWAYS eat the

way we should.

Always get copies of all your lab tests and save

that copy for yourself! It can save a lot of time and

aggravation, especially if you need to change doctors,

or get referred to other doctors. Seems like the first

thing they all want to do is get some blood from you,

lol! No point in doing the same tests over and over.

Plus, you can look up results at home, at your

leisure, whenever you have questions. A good place to

look up some basic info on basic lab tests is:

http://www.carbonbased.com/cbcblood.htm

Good luck to you, and remember, we are here if you

need us!

Claudine

__________________________________________________

[Guest guest]

Hi Carol,

I'm sorry to hear of your diagnosis, but glad you

found us. Feel free to ask as many questions as you

need to - we ALL have been where you are now at one

time. There are no dumb questions!

I agree with you on the diet vs. vitamins. And the

doc too. It would be ideal to get all of our vitamin

and mineral needs from just our foods, but unless you

are growing your own and eating them fresh picked you

won't be getting the full benefits. Many vitamins are

lost during storage and processing. In fact, I've read

that frozen veggies are probably better than the fresh

sold in grocery stores since the frozen are frozen

immediately after harvesting, whereas the 'fresh' may

have been picked days before. And, with the busy life

most of us leave, it's kind of hard to ALWAYS eat the

way we should.

Always get copies of all your lab tests and save

that copy for yourself! It can save a lot of time and

aggravation, especially if you need to change doctors,

or get referred to other doctors. Seems like the first

thing they all want to do is get some blood from you,

lol! No point in doing the same tests over and over.

Plus, you can look up results at home, at your

leisure, whenever you have questions. A good place to

look up some basic info on basic lab tests is:

http://www.carbonbased.com/cbcblood.htm

Good luck to you, and remember, we are here if you

need us!

Claudine

__________________________________________________

[Guest guest]

--- Carol <csean@...> wrote:

but I know

> family physicians really don't know a whole lot

> about HepC. And I'm not bad

> enuff yet to have to see a specialist....

Unless you've had a biopsy that shows no damage to

your liver there is no way for your PCP to know if you

are bad enough to see a specialist. You should be

referred to a specialist, no matter what! A PCP is not

qualified to deal with HCV. (Neither are a lot of

GI's, to tell the truth!). But you need to be seen by

a doctor who does specialize in liver disease. There

is no way your PCP can know for sure what is going on

with just a few blood tests.

Claudine

__________________________________________________

[Guest guest]

--- Carol <csean@...> wrote:

but I know

> family physicians really don't know a whole lot

> about HepC. And I'm not bad

> enuff yet to have to see a specialist....

Unless you've had a biopsy that shows no damage to

your liver there is no way for your PCP to know if you

are bad enough to see a specialist. You should be

referred to a specialist, no matter what! A PCP is not

qualified to deal with HCV. (Neither are a lot of

GI's, to tell the truth!). But you need to be seen by

a doctor who does specialize in liver disease. There

is no way your PCP can know for sure what is going on

with just a few blood tests.

Claudine

__________________________________________________

[Guest guest]

Hi Claudine

Thanx for the welcome, and this advice too. I was wondering about it

myself....but so glad to see that you think I should I see a specialist. I

live in Canada and up here in the north pole LOL, we have to be " referred " to

a specialist by our family Doc. Hmm, do I see a problem here? I'll give it

a try next time I see him...thanx again.

Huggs

Carol

claudine intexas wrote:

> --- Carol <csean@...> wrote:

> but I know

> > family physicians really don't know a whole lot

> > about HepC. And I'm not bad

> > enuff yet to have to see a specialist....

>

> Unless you've had a biopsy that shows no damage to

> your liver there is no way for your PCP to know if you

> are bad enough to see a specialist. You should be

> referred to a specialist, no matter what! A PCP is not

> qualified to deal with HCV. (Neither are a lot of

> GI's, to tell the truth!). But you need to be seen by

> a doctor who does specialize in liver disease. There

> is no way your PCP can know for sure what is going on

> with just a few blood tests.

> Claudine

>

> __________________________________________________

>

[Guest guest]

Hi Claudine

Thanx for the welcome, and this advice too. I was wondering about it

myself....but so glad to see that you think I should I see a specialist. I

live in Canada and up here in the north pole LOL, we have to be " referred " to

a specialist by our family Doc. Hmm, do I see a problem here? I'll give it

a try next time I see him...thanx again.

Huggs

Carol

claudine intexas wrote:

> --- Carol <csean@...> wrote:

> but I know

> > family physicians really don't know a whole lot

> > about HepC. And I'm not bad

> > enuff yet to have to see a specialist....

>

> Unless you've had a biopsy that shows no damage to

> your liver there is no way for your PCP to know if you

> are bad enough to see a specialist. You should be

> referred to a specialist, no matter what! A PCP is not

> qualified to deal with HCV. (Neither are a lot of

> GI's, to tell the truth!). But you need to be seen by

> a doctor who does specialize in liver disease. There

> is no way your PCP can know for sure what is going on

> with just a few blood tests.

> Claudine

>

> __________________________________________________

>

[Guest guest]

Hi Claudine

Thanx for the welcome, and this advice too. I was wondering about it

myself....but so glad to see that you think I should I see a specialist. I

live in Canada and up here in the north pole LOL, we have to be " referred " to

a specialist by our family Doc. Hmm, do I see a problem here? I'll give it

a try next time I see him...thanx again.

Huggs

Carol

claudine intexas wrote:

> --- Carol <csean@...> wrote:

> but I know

> > family physicians really don't know a whole lot

> > about HepC. And I'm not bad

> > enuff yet to have to see a specialist....

>

> Unless you've had a biopsy that shows no damage to

> your liver there is no way for your PCP to know if you

> are bad enough to see a specialist. You should be

> referred to a specialist, no matter what! A PCP is not

> qualified to deal with HCV. (Neither are a lot of

> GI's, to tell the truth!). But you need to be seen by

> a doctor who does specialize in liver disease. There

> is no way your PCP can know for sure what is going on

> with just a few blood tests.

> Claudine

>

> __________________________________________________

>

[Guest guest]

Hi Claudine

Thanx for the welcome, and this advice too. I was wondering about it

myself....but so glad to see that you think I should I see a specialist. I

live in Canada and up here in the north pole LOL, we have to be " referred " to

a specialist by our family Doc. Hmm, do I see a problem here? I'll give it

a try next time I see him...thanx again.

Huggs

Carol

claudine intexas wrote:

> --- Carol <csean@...> wrote:

> but I know

> > family physicians really don't know a whole lot

> > about HepC. And I'm not bad

> > enuff yet to have to see a specialist....

>

> Unless you've had a biopsy that shows no damage to

> your liver there is no way for your PCP to know if you

> are bad enough to see a specialist. You should be

> referred to a specialist, no matter what! A PCP is not

> qualified to deal with HCV. (Neither are a lot of

> GI's, to tell the truth!). But you need to be seen by

> a doctor who does specialize in liver disease. There

> is no way your PCP can know for sure what is going on

> with just a few blood tests.

> Claudine

>

> __________________________________________________

>

[Guest guest]

I agree with Claudine. You MUST be evaluated by a gastro/hepatologist

before you can really know your liver status.

Your pcr, genotype and liver biopsy, I feel, are the very basics of

helping to determine the degree of your hep c and amount of liver

damage. Liver enzymes are only a small indicator, but not always

accurate. You can have cirrhosis and have normal liver enzymes

(alt/ast).

Now, this is just my opinion, I'm not a doc, just a hepper.

I know in Canada it can be hard to get referred to a specialist, but

as much as Canada is dealing with Hep C and the Red Cross fiasco,

you'd think they would be more into getting your evaluated properly.

You may only need to see your gastro once, for the biopsy and exam

and never need one again, but it's best to be evaluated.

Keep pushing your doc or find one that will work with you.

Good luck! Let us know how you are doing.

alley

http://communities.msn.com/LiverDiseaseSupportGroup

icq 12631861

[Guest guest]

I agree with Claudine. You MUST be evaluated by a gastro/hepatologist

before you can really know your liver status.

Your pcr, genotype and liver biopsy, I feel, are the very basics of

helping to determine the degree of your hep c and amount of liver

damage. Liver enzymes are only a small indicator, but not always

accurate. You can have cirrhosis and have normal liver enzymes

(alt/ast).

Now, this is just my opinion, I'm not a doc, just a hepper.

I know in Canada it can be hard to get referred to a specialist, but

as much as Canada is dealing with Hep C and the Red Cross fiasco,

you'd think they would be more into getting your evaluated properly.

You may only need to see your gastro once, for the biopsy and exam

and never need one again, but it's best to be evaluated.

Keep pushing your doc or find one that will work with you.

Good luck! Let us know how you are doing.

alley

http://communities.msn.com/LiverDiseaseSupportGroup

icq 12631861

[Guest guest]

I agree with Claudine. You MUST be evaluated by a gastro/hepatologist

before you can really know your liver status.

Your pcr, genotype and liver biopsy, I feel, are the very basics of

helping to determine the degree of your hep c and amount of liver

damage. Liver enzymes are only a small indicator, but not always

accurate. You can have cirrhosis and have normal liver enzymes

(alt/ast).

Now, this is just my opinion, I'm not a doc, just a hepper.

I know in Canada it can be hard to get referred to a specialist, but

as much as Canada is dealing with Hep C and the Red Cross fiasco,

you'd think they would be more into getting your evaluated properly.

You may only need to see your gastro once, for the biopsy and exam

and never need one again, but it's best to be evaluated.

Keep pushing your doc or find one that will work with you.

Good luck! Let us know how you are doing.

alley

http://communities.msn.com/LiverDiseaseSupportGroup

icq 12631861

[Guest guest]

I agree with Claudine. You MUST be evaluated by a gastro/hepatologist

before you can really know your liver status.

Your pcr, genotype and liver biopsy, I feel, are the very basics of

helping to determine the degree of your hep c and amount of liver

damage. Liver enzymes are only a small indicator, but not always

accurate. You can have cirrhosis and have normal liver enzymes

(alt/ast).

Now, this is just my opinion, I'm not a doc, just a hepper.

I know in Canada it can be hard to get referred to a specialist, but

as much as Canada is dealing with Hep C and the Red Cross fiasco,

you'd think they would be more into getting your evaluated properly.

You may only need to see your gastro once, for the biopsy and exam

and never need one again, but it's best to be evaluated.

Keep pushing your doc or find one that will work with you.

Good luck! Let us know how you are doing.

alley

http://communities.msn.com/LiverDiseaseSupportGroup

icq 12631861