Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 www.obesityhelp.com There's a link at the top of the page for finding people in your state, or something like that. Jeanne in WI Age 39 Open RNY 05/21/2002 314/ 248/150-175 5' 8 " djgraves@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 thanks!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Sunways1: I had bouts of depression last year when I was suffering with my fibroids. I don't know if the fibroids cause the depression for me or if it was the debilitating symptoms they caused. My gut feeling is the depression was from the horrible symptoms I was experiencing: long periods, heavy bleeding, big clots, bad pain, etc. That is enough to make anyone depressed. Along with not wanting to go out or do your usual routine when your symptoms are that bad. I had a UAE in Nov and immediately felt better (mostly mentally). My symptoms have somewhat improved, but my mindset is much improved and that is important to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Sunways1: I had bouts of depression last year when I was suffering with my fibroids. I don't know if the fibroids cause the depression for me or if it was the debilitating symptoms they caused. My gut feeling is the depression was from the horrible symptoms I was experiencing: long periods, heavy bleeding, big clots, bad pain, etc. That is enough to make anyone depressed. Along with not wanting to go out or do your usual routine when your symptoms are that bad. I had a UAE in Nov and immediately felt better (mostly mentally). My symptoms have somewhat improved, but my mindset is much improved and that is important to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Sunways1: I had bouts of depression last year when I was suffering with my fibroids. I don't know if the fibroids cause the depression for me or if it was the debilitating symptoms they caused. My gut feeling is the depression was from the horrible symptoms I was experiencing: long periods, heavy bleeding, big clots, bad pain, etc. That is enough to make anyone depressed. Along with not wanting to go out or do your usual routine when your symptoms are that bad. I had a UAE in Nov and immediately felt better (mostly mentally). My symptoms have somewhat improved, but my mindset is much improved and that is important to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Sandy, I, for one, certainly think it's possible. This last year, I've had a terrible time. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Sandy, I, for one, certainly think it's possible. This last year, I've had a terrible time. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Sandy, I, for one, certainly think it's possible. This last year, I've had a terrible time. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Jane Anne, If there is something that you can add to your car, you can bet Don will know it from attending all those Abilities EXPOS. I have a much easier time getting into our SUV stepping up than my car getting into the driver's seat. I'm assuming there isn't a handle to assist you getting into the car. Alone we can do so little. Together we can do so much. Helen Keller (1880-1968) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Jane Anne, If there is something that you can add to your car, you can bet Don will know it from attending all those Abilities EXPOS. I have a much easier time getting into our SUV stepping up than my car getting into the driver's seat. I'm assuming there isn't a handle to assist you getting into the car. Alone we can do so little. Together we can do so much. Helen Keller (1880-1968) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Jane Anne, When you sit on the seat keep your feet on the ground with your legs against the car....have someone turn your legs as they lift them into position in the car...my husband does this for me and it works...I have a strap above the door when it's closed that I hang onto....hope this helps blessings Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Jane Anne, When you sit on the seat keep your feet on the ground with your legs against the car....have someone turn your legs as they lift them into position in the car...my husband does this for me and it works...I have a strap above the door when it's closed that I hang onto....hope this helps blessings Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Jane Anne, When you sit on the seat keep your feet on the ground with your legs against the car....have someone turn your legs as they lift them into position in the car...my husband does this for me and it works...I have a strap above the door when it's closed that I hang onto....hope this helps blessings Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 Hey Jane I have that problem with low cars I dont have that problem with my Pickup its higher also our Suv is higher cars nowadays are too low .What i think happens the calfs get spastic when theyre bent down past 45degrees (like the difference between low toilets and high ones ) spastic meaning they go stiff ..I would try making the seat higher by getting seat cushions or pillows make sure they wont slide on the seat . If you have Bucket seats you could go to a company that specializes in handicapped appliances for cars and get a bucket seat that turns and raises or lowers . But i like suvs . GEO QUESTION To all, I am having much difficulty getting in and out of the car because it is so low to ground. Its a Buick. Sometimes when I start to get in I miss the seat and I lie down and my feet are extended out straight. People stare at me and I am so embarrassed. The other night 8 of us went out to eat and this happened again as I was getting in. They are looking at me and then turn there backs to me and are talking and of course I think they are talking about me. There has to be a better way. Can any of you all tell me what you do? Jane Anne King Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 , No there is not a handle. Jane Anne King Re: QUESTION > Jane Anne, > > If there is something that you can add to your car, you can bet Don > will know it from attending all those Abilities EXPOS. I have a much easier > time getting into our SUV stepping up than my car getting into the driver's seat. > I'm assuming there isn't a handle > to assist you getting into the car. > > > > Alone we can do so little. Together we can do so much. > Helen Keller (1880-1968) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 Dear Sue ellen, I am having the same problem with the clippers. They are very difficult to hold and fall out of the hand and can be quite dangerous. The only other tool i have found useful is an emory board. It takes forever but not as long as bending over and continually picking up the clippers from the b/r floor. If you can find a heavy and wide emory board they do not slip out of your hand as easily. Re: Question > I'd like to add my problem to the toenail discussion. Not only to I have trouble reaching my toes, but the clippers continually pop out of my hand. I even spent $20 for an ergonomic pair thinking that might help. Of course it didn't. Any suggestions besides the dremel tool? I do have a nail grinder which I bought to use on my dog, but the minute I getr it out I have a battle on my hands to hold her down. Maybe I'll try it, but I can see me grinding part of my toe off too. I can't see my toes very well either, too far for the reading portion of my glasses and too close for distance. I guess I should try my computer glasses with the grinder. This should be interesting to watch.] > Regards, Sue Ellen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Donna, Wow, that is terrible to have had this for 10 years and only recently been diagnosed. How did you initially get RSD and how much has it spread? I have had it for not even a year and it is throughout my body, and I'm in Stage 3. The one block I had did not work and caused it to spread to my upper body. I am supposed to go for a week long treatment of an IV drip of Lidocaine and Ketamine. Did you ever have something like this done? I am trying to stop this from going into the next stage but nothing has worked and I keep getting worse and worse. I feel so bad that you are in Stage 4...are you getting any kind of treatment and is it helping any at this point? Just as you said Rhonda's story touched your heart, your situation touched mine...I feel for you so much. I hope that you have some relief when you get the morphine pump...when are you having that done? Anyway, I wanted to say hi...I hope you are having a nice weekend so far...I will keep you in my thoughts and prayers. <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Sandy, I remain hopeful for you too. If they do not diagnose you with RSD after the autonomic test do you know if he has anything else planned? Keep us posted and good luck with the test! Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 JoAnn, OMG I must thank you for this e-mail, about the ceiling fan, I never even thought about that! I have a fan in my bedroom and I never considered it might be hurting me and to try turning it off, how stupid of me!! I will try that tonight...thank you again. = ) Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Sandy, Every time I have had those types of symptoms, it has been either a compressed nerve or something similar. I would speak to your Dr. about it. You don't want any kind of nerve impingement to be permanent and do permanent damage if that is what it is. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Thanks Jo. I will mention it to him. I wasn't sure if it was part of the whole RSD thing or not. Sandy -- Re: Question Sandy, Every time I have had those types of symptoms, it has been either a compressed nerve or something similar. I would speak to your Dr. about it. You don't want any kind of nerve impingement to be permanent and do permanent damage if that is what it is. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Stacey, Methadone is basically heroin in a pill, which is why it is associated with junkies. However, I"m on it since Oxycontin wasn't helping with the pain at all. I'm on 10 mg and I take 3 pills in the am, 3 in the afternoon and 2 at night...however, I'm still in a great deal of pain. I don't know how bad the pain would be if I Wasn't taking them, nor do I want to find out...lol. One of the benefits of Methadone is that your body keeps a residual, so if you forget to take one there will still be medication in your body so you won't have extreme pain. I don't have any side effects from it, I can still work, drive, etc. If you are in a great deal of pain and have tried other medications that haven't worked, I would recommend trying Methadone. One other thing, since it is associated with junkies, I told my boss so if they did a random drug test I wouldn't get in trouble...lol...and also I told Nobody except my boss and my family. I don't think any of my friends are junkies but I didn't want anyone to "try one" and bug me for any. I hope this helps you decide but I'm sorry you are in so much pain that you are considering it. I think I noticed a post that you had a fever, I had to delete a bunch so forgive me if I'm wrong, but has that gone away yet? I hope you start to feel better soon. Hang in there and let me know how you do on the Methadone if you try it. You are always in my prayers. <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Stacey, Yes, I have taken Methadone for RSD and my doctor told me to keep it put away where no one could get it and to not tell anyone I had it because it had become a street drug. It helped the pain but I felt funny and the idea that is was such a dangerous narcotic I only take it once in a while. I found it did help the pain but I was afraid like you are that I might become a junkie. Good Luck and let me know how it works for you. Love, Deb from Louisiana MOLLYPEAR1@... wrote: HI I have a question. Has anyone taken methadone for rsd pain? if so how was it or is it? I thought methadone was for junkies. Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 , Well I guess on top of everything else in my life I am a junkie now to!(just kidding) I was put on Methadone about 3 months ago for my RSD. My pain doctor said that it is having very good effects on neuropathic pain, and it has helped me better than most other narcotics I have been on. It did have to be increased recently, but now seems to be okay. I must tell you that I like it much better than the oxycontin, neurontin, and topamax. That is just my personal opinion everyone is different and I am certainly not a physician!! I wish you the best and if you have any other questions please feel free to ask! Take Care of Yourself and I hope it helps you! LOL Dawn L. MOLLYPEAR1@... wrote: HI I have a question. Has anyone taken methadone for rsd pain? if so how was it or is it? I thought methadone was for junkies. Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Deb, It is funny that the doctor told you not to tell anyone that you were taking it, because they told me the same thing. They told me in the pharmacy to put it in a completely different place than I put my other meds. I guess it is just as popular on the street as oxycontin! I store it in its own private place where I know it will never be found and just take out what I need each day. I find that it really does help me with my pain since they adjusted it. Take Care and LOL. Dawn L.Deborah Ducote wrote: Stacey, Yes, I have taken Methadone for RSD and my doctor told me to keep it put away where no one could get it and to not tell anyone I had it because it had become a street drug. It helped the pain but I felt funny and the idea that is was such a dangerous narcotic I only take it once in a while. I found it did help the pain but I was afraid like you are that I might become a junkie. Good Luck and let me know how it works for you. Love, Deb from Louisiana MOLLYPEAR1@... wrote: HI I have a question. Has anyone taken methadone for rsd pain? if so how was it or is it? I thought methadone was for junkies. Stacey Quote Link to comment Share on other sites More sharing options...
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