Guest guest Posted January 17, 2002 Report Share Posted January 17, 2002 works for me!!~~Lowi who is not a biology major either Re: QUESTIONHi all, Pardon my complete ignorance of the term "mosaic". What's that / what are symptoms? I am the only one in my family known to have NF2, but my mom has always had some problems like Migraine headaches, bouts of depression, and fibrous breast tumors that doctors told her to 'live with".Matt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2002 Report Share Posted January 17, 2002 works for me!!~~Lowi who is not a biology major either Re: QUESTIONHi all, Pardon my complete ignorance of the term "mosaic". What's that / what are symptoms? I am the only one in my family known to have NF2, but my mom has always had some problems like Migraine headaches, bouts of depression, and fibrous breast tumors that doctors told her to 'live with".Matt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2002 Report Share Posted January 17, 2002 works for me!!~~Lowi who is not a biology major either Re: QUESTIONHi all, Pardon my complete ignorance of the term "mosaic". What's that / what are symptoms? I am the only one in my family known to have NF2, but my mom has always had some problems like Migraine headaches, bouts of depression, and fibrous breast tumors that doctors told her to 'live with".Matt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Lois What do you mean by this? You just have to lay there and not move for the MRI. When I had a stroke the right side of my body could not move at all. They had no problem putting me in the MRI machine. Just had to help me more. Hugs Marnie At 05:44 PM 1/23/02 -0600, you wrote: > `Hi I'm wondering if any of you are paralyzed and have to get MRI'S > how do you go about it ?? Lois > > >--- >Outgoing mail is certified Virus Free. >Checked by AVG anti-virus system >(<http://www.grisoft.com>http://www.grisoft.com). >Version: 6.0.314 / Virus Database: 175 - Release Date: 1/11/02 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Lois What do you mean by this? You just have to lay there and not move for the MRI. When I had a stroke the right side of my body could not move at all. They had no problem putting me in the MRI machine. Just had to help me more. Hugs Marnie At 05:44 PM 1/23/02 -0600, you wrote: > `Hi I'm wondering if any of you are paralyzed and have to get MRI'S > how do you go about it ?? Lois > > >--- >Outgoing mail is certified Virus Free. >Checked by AVG anti-virus system >(<http://www.grisoft.com>http://www.grisoft.com). >Version: 6.0.314 / Virus Database: 175 - Release Date: 1/11/02 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Lois What do you mean by this? You just have to lay there and not move for the MRI. When I had a stroke the right side of my body could not move at all. They had no problem putting me in the MRI machine. Just had to help me more. Hugs Marnie At 05:44 PM 1/23/02 -0600, you wrote: > `Hi I'm wondering if any of you are paralyzed and have to get MRI'S > how do you go about it ?? Lois > > >--- >Outgoing mail is certified Virus Free. >Checked by AVG anti-virus system >(<http://www.grisoft.com>http://www.grisoft.com). >Version: 6.0.314 / Virus Database: 175 - Release Date: 1/11/02 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Marie, I meant it would be approximately 4 hours long in the MRI machine maybe longer they could take Mike out between times BUT its to much lifting for them soooo he will have to lie there with his back hurting all that time... and like it .....seems to me there should be a plastic hoya lift invented to lift people in places like that lol they expected my husband & I to help me hanging on my oxygen tank and Gene back there with that magnet and his Brest bone wired tog ... smart huh? hugs Lois Re: Question > Lois > What do you mean by this? > > You just have to lay there and not move for the MRI. When I had a stroke > the right side of my body could not move at all. They had no problem > putting me in the MRI machine. Just had to help me more. > Hugs > Marnie > > > At 05:44 PM 1/23/02 -0600, you wrote: > > `Hi I'm wondering if any of you are paralyzed and have to get MRI'S > > how do you go about it ?? Lois > > > > > >--- > >Outgoing mail is certified Virus Free. > >Checked by AVG anti-virus system > >(<http://www.grisoft.com>http://www.grisoft.com). > >Version: 6.0.314 / Virus Database: 175 - Release Date: 1/11/02 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Marie, I meant it would be approximately 4 hours long in the MRI machine maybe longer they could take Mike out between times BUT its to much lifting for them soooo he will have to lie there with his back hurting all that time... and like it .....seems to me there should be a plastic hoya lift invented to lift people in places like that lol they expected my husband & I to help me hanging on my oxygen tank and Gene back there with that magnet and his Brest bone wired tog ... smart huh? hugs Lois Re: Question > Lois > What do you mean by this? > > You just have to lay there and not move for the MRI. When I had a stroke > the right side of my body could not move at all. They had no problem > putting me in the MRI machine. Just had to help me more. > Hugs > Marnie > > > At 05:44 PM 1/23/02 -0600, you wrote: > > `Hi I'm wondering if any of you are paralyzed and have to get MRI'S > > how do you go about it ?? Lois > > > > > >--- > >Outgoing mail is certified Virus Free. > >Checked by AVG anti-virus system > >(<http://www.grisoft.com>http://www.grisoft.com). > >Version: 6.0.314 / Virus Database: 175 - Release Date: 1/11/02 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Does anybody wear a medical bracelet or necklace for deafness like they have for diabetics? I don't even know if they have them. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 I think Jennette had one. Its the same bracelet or necklace... you just have them engrave "I am deaf" or something like that on it. na -----Original Message-----From: Carol Winarski Sent: Wednesday, January 30, 2002 10:05 AMTo: NF2_Crew Subject: Re: questionDoes anybody wear a medical bracelet or necklace for deafness like they have for diabetics? I don't even know if they have them. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 I think Jennette had one. Its the same bracelet or necklace... you just have them engrave "I am deaf" or something like that on it. na -----Original Message-----From: Carol Winarski Sent: Wednesday, January 30, 2002 10:05 AMTo: NF2_Crew Subject: Re: questionDoes anybody wear a medical bracelet or necklace for deafness like they have for diabetics? I don't even know if they have them. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 YES CAROL I WEAR A M MEDICAL BRACELET IT SAYS I AM DEAF AMONG OTHER IMPORTANT HEALTH THINGS MARIE ALSO HAS ONE CATHERINE -----Original Message-----From: Carol Winarski Sent: Wednesday, January 30, 2002 11:05 AMTo: NF2_Crew Subject: Re: questionDoes anybody wear a medical bracelet or necklace for deafness like they have for diabetics? I don't even know if they have them. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 I HAVE ONE I WEAR IT ALL THE TIME. IT IS FROM MEDIC ALERT. IT SAYS I AM DEAF, ALSO AN ABI RECIPIENT, AND THEN LISTS MY DRUG ALLERGIES AND A NUMBER TO CALL (MEDIC ALERT) TO GET THE REST OF THE INFORMATION - MORE DRUG ALLERGIES. BUT THE DEAF AND ABI ARE THE FIRST THINGS LISTED. I GOT MY MEDIC ALERT APPLICATION AT MY PHARMACY.I THINK. I HAVE HAD MINE SINCE 1997. THEY JUST SENT ME A CARD (CREDIT CARD TYPE) IN THE MAIL FOR FURTHER IDENTIFICATION TO CARRY IN MY PURSE. HERE IS THE NUMBER TO REQUEST ORDERS, UPDATE INFOR, ETC. IT IS TOLL FREE 24 HOURS A DAY - 1-. WEBSITE: www.medicalert.org SNAIL MAIL: 2323 COLORADO AVE. TURLOCK, CA 95392 Jane RE: question I think Jennette had one. Its the same bracelet or necklace... you just have them engrave " I am deaf " or something like that on it. na -----Original Message-----From: Carol Winarski Sent: Wednesday, January 30, 2002 10:05 AMTo: NF2_Crew Subject: Re: questionDoes anybody wear a medical bracelet or necklace for deafness like they have for diabetics? I don't even know if they have them. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Thanks Jane...I have so much stuff wrong I need to get one. Carol Jane wrote: I HAVE ONE I WEAR IT ALL THE TIME. IT IS FROM MEDIC ALERT. IT SAYS I AM DEAF, ALSO AN ABI RECIPIENT, AND THEN LISTS MY DRUG ALLERGIES AND A NUMBER TO CALL (MEDIC ALERT) TO GET THE REST OF THE INFORMATION - MORE DRUG ALLERGIES. BUT THE DEAF AND ABI ARE THE FIRST THINGS LISTED. I GOT MY MEDIC ALERT APPLICATION AT MY PHARMACY.I THINK. I HAVE HAD MINE SINCE 1997. THEY JUST SENT ME A CARD (CREDIT CARD TYPE) IN THE MAIL FOR FURTHER IDENTIFICATION TO CARRY IN MY PURSE. HERE IS THE NUMBER TO REQUEST ORDERS, UPDATE INFOR, ETC. IT IS TOLL FREE 24 HOURS A DAY - 1-. WEBSITE: www.medicalert.org SNAIL MAIL: 2323 COLORADO AVE. TURLOCK, CA 95392 Jane Re: question Does anybody wear a medical bracelet or necklace for deafness like they have for diabetics? I don't even know if they have them. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 I wear a medic alert bracelet, and I think does also. Marie Re: questionDoes anybody wear a medical bracelet or necklace for deafness like they have for diabetics? I don't even know if they have them. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 I wear a medic alert bracelet, and I think does also. Marie Re: questionDoes anybody wear a medical bracelet or necklace for deafness like they have for diabetics? I don't even know if they have them. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 I also wear the a medic alert bracelet. Mine says "neurofibromatosis 2 seizures LP shunt drug allergies and then my number" If medical people call that number they will be given a list of all my drug allergies, the medicine I am currently taken, and the fact that I have a plate in my head. I ordered it on-line. I also received a plastic card to keep in my wallet. You pay a yearly fee for the service. Blessings, ----- Original Message ----- From: Marie Drew I wear a medic alert bracelet, and I think does also. Marie -----Original Message-----Does anybody wear a medical bracelet or necklace for deafness like they have for diabetics? I don't even know if they have them. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2002 Report Share Posted February 2, 2002 Yes I wear a Medical bracelet it has NF2 on it , Lupus (SLE) and some other stuff about my medication they couldn't fit deafness on there lol lol but the card in my purse has more details as well as the fact that I am deaf. Re: question Does anybody wear a medical bracelet or necklace for deafness like they have for diabetics? I don't even know if they have them. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2002 Report Share Posted October 19, 2002 > ok there use to be this place where you could look at dr. and people that > have had this surgery in your area! i cant find it anywhere someone help me > please? i need all the links again i looked and didnt find what i was looking > for in the links here? thank you Maybe you're looking for this from the ObesityHelp site? http://www.obesityhelp.com/morbidobesity/peerdir.phtml That link will let you search for peers in your state. Here is the link to find doctors in your state http://www.obesityhelp.com/morbidobesity/findadoc.phtml Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2002 Report Share Posted October 19, 2002 > ok there use to be this place where you could look at dr. and people that > have had this surgery in your area! i cant find it anywhere someone help me > please? i need all the links again i looked and didnt find what i was looking > for in the links here? thank you Maybe you're looking for this from the ObesityHelp site? http://www.obesityhelp.com/morbidobesity/peerdir.phtml That link will let you search for peers in your state. Here is the link to find doctors in your state http://www.obesityhelp.com/morbidobesity/findadoc.phtml Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Where are you? m question ok there use to be this place where you could look at dr. and people that have had this surgery in your area! i cant find it anywhere someone help me please? i need all the links again i looked and didnt find what i was looking for in the links here? thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Where are you? m question ok there use to be this place where you could look at dr. and people that have had this surgery in your area! i cant find it anywhere someone help me please? i need all the links again i looked and didnt find what i was looking for in the links here? thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Where are you? m question ok there use to be this place where you could look at dr. and people that have had this surgery in your area! i cant find it anywhere someone help me please? i need all the links again i looked and didnt find what i was looking for in the links here? thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 www.obesityhelp.com There's a link at the top of the page for finding people in your state, or something like that. Jeanne in WI Age 39 Open RNY 05/21/2002 314/ 248/150-175 5' 8 " djgraves@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 www.obesityhelp.com There's a link at the top of the page for finding people in your state, or something like that. Jeanne in WI Age 39 Open RNY 05/21/2002 314/ 248/150-175 5' 8 " djgraves@... Quote Link to comment Share on other sites More sharing options...
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