Guest guest Posted May 20, 2001 Report Share Posted May 20, 2001 > Hello, I am a new member to this group. My husband is the one > suffering from chronic pancreatitis. He has had it for about 6 years > now. He is actually in the hospital now and has been since Sunday. > I am looking for a group he can chat with. He truly needs to find > others who experience the same daily severe pain and learn what their > coping methods are. Any response is appreciated. > Thanks and God Bless. Welcome to the group. I just joined a couple of months ago. I too am caring for a husband with this terrible condition. You have come to the right place. There is a wealth of information here from people who are willing to share whatever experiences they have had, and I am grateful to every one of them. Hope your hubby is feeling better,and keep posting. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2001 Report Share Posted May 20, 2001 , No, Mike did not go to OSU. He has always gone to Riverside Methodist Hospital. But we did not have a great experience with doctors there either. I am not sure how far of a drive Indy is for you, but Dr. Darwin Conwell at the Cleveland Clinic is wonderful!! If you ever feel you need a second opinion let us know and we can give you his phone number. A doctor a Riverside initially treated his acute attack and felt Mike was just looking for drugs when he continued to have pain and additional symptoms. The first time we went to Cleveland it took the doctor 2 minutes to tell us Mike had a stricture in the tail end of the pancreas (which he found on the origianl CT scan) Let me tell you, Mike and I were quite upset that he suffered for over a year unnecessarily. Anyway, thanks so much for your warm welcome. Cristina > > Thanks for your reply. My husband is Mike and my name is > Cristina. We live > > just south of Columbus, OH in Grove City. His pancreatitis is > ideopathic > > and it began with an acute attack in 1994. He is in and out of the > hospital > > alot. Usually once every three months. His immune system is so > low he also > > gets pnemonia alot and has had viral meningitis. His energy level > is low > > and he currently take approx. 30 dilaudid a day for pain. > Everything else > > has been tried, celiac plexus blocks, sandostatin shots, two > surgeries. He > > had his gall bladder, spleen, and 1/3 of his pancreas removed in > 1995. He > > had a thorascopic sympathectomy in 2000. This was for pain > management but > > it failed. They suggested he try the pain pump, however, his GI at > the > > Cleveland Clinic said he wouldn't do it. He is too young and they > are > > afraid it may do additional damage to his veins/nerves. Are you the > > sufferer or the supporter? > > Thanks, Cristina > > > > Re: New member > > > > > > In a message dated 5/15/01 10:28:31 PM Central Daylight Time, > > crandall@c... writes: > > > > > > > Hello, I am a new member to this group. My husband is the one > > > suffering from chronic pancreatitis. He has had it for about 6 > years > > > now. He is actually in the hospital now and has been since > Sunday. > > > I am looking for a group he can chat with. He truly needs to > find > > > others who experience the same daily severe pain and learn what > their > > > coping methods are. > > > > Hello - sorry that your husband is suffering from pancreatitis. > what > > caused > > his? where do you live? is he home or still hospitalized? > questions, > > questions. you will find many friends here and lots of moral > support and > > answers to YOUR questions. it is so nice to have others to talk > to that > > know > > exactly how you feel and what you are going through. > > welcome to the group! i hope that i can be helpful to you in > some way., > > > > Debbie Sikes > > djssekis@a... > > Arkansas Chapter Representative > > Pancreatitis Association, International > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 It'd be great if we had ULTIMATE control over where we stop, but we don't always. So, fi you reach a size 6, will you panic? Since you're 1 yr, you could keep on moving. Tell your family not to panic. When you're done, you're done and there you are, except for a little bounceback. Gotta stabilize and get muscle back under your skin and it rounds you out a little, but not in a bad way. Heck, the change is part of the FUN! LOL! Thanks, www.vitalady.com https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com New member > I had my surgery on May 29, 2000 so I am one year out today! Life is > Good! I feel Great! I have lost 110 pounds. I want to lose a bit > more, but my family doc and my family say to stop now. I wear a size > 8-10. I really need to have some skin removed but it is not going to > happen soon as I switched jobs and I am going back to school for 2 > years. A friend that lurks in the background of this club waiting > for her surgery invited me here to talk to others that have lived > through the first year. I am really very lucky. I can eat just > about anything I want, just in very small quantities. I had a RNY. > I still walk several times a week. I bought a bicycle this spring > and have been riding it when the weather permits. > I just feel Great!!! > Scrubs > > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Heh heh heh I know what you mean. My family thinks I'm too skinny (at just about 170 lbs, a little over 190 lost!). My mom told me I should start eating more...my doc says I still have 15 lbs to go I think I am fine where I am! - New member > I had my surgery on May 29, 2000 so I am one year out today! Life is > Good! I feel Great! I have lost 110 pounds. I want to lose a bit > more, but my family doc and my family say to stop now. I wear a size > 8-10. I really need to have some skin removed but it is not going to > happen soon as I switched jobs and I am going back to school for 2 > years. A friend that lurks in the background of this club waiting > for her surgery invited me here to talk to others that have lived > through the first year. I am really very lucky. I can eat just > about anything I want, just in very small quantities. I had a RNY. > I still walk several times a week. I bought a bicycle this spring > and have been riding it when the weather permits. > I just feel Great!!! > Scrubs > > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Lilyann, Medical College of Georgia and Mayo Clinic in ville, FL are the only big names that I know of in that area. Both have movement disorder specialists. However, if you have a good family doctor who knows you and is willing to work with you, that could work well also. There are so many people on the list who know the medicines used, that you can tell your doctor and they could work on adjusting the meds with you. Be SURE you only add or delete one medicine at a time to allow for interactions and side effects to show up. That lets you know which medicine is causing problems. I seem to remember someone that was living in SE Georgia. Maybe you will get more answers from people in the area. Take care, Bill and Charlotte Werre in Herndon, VA, USA ========================== Lilyann man wrote: > Greetings to all of you on this list. We've been reading your messages for > the past two months since my sister, Sara, was given a tentative diagnosis > of MSA at the Medical College of Georgia after searching for almost two > years. Do any of you know of " movement disorder specialists " or other > specialists near South Georgia? > > Thanks, > > Lilyann > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 Welcome Shoshana~ You've come to a good place! I have a friend named Debora in Jerusalem! How I'd love to learn Hebrew!! =) Regards~ Jacque > Hi! I just subscribed to this group. It is the first time in my life that > I have ever posted to a group so forgive me if I do not follow webetiquette > properly. I had gastric-bypass surgery in January 1997. I weighed 335 lb. > before surgery, lost 140 and maintained my weight at 195 without any special > dieting for around four years until I got pregnant. During pregnancy I > gained 60 pounds (which is rather extreme). My baby is now 7.5 months old > and I still have 18 extra pounds. Now, 18 pounds may not sound like much > but I wasn't extremely thin before and the extra weight is really bothering > me and makes a big difference in my appearance. I am looking for help, > support and information. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Hillary, Greetings! Welcome to the RSS group. Recently I joined hoping to also find other people my age with RSS. My name is Angel and I'm 24 years old. The oldest of 2, my sister just turned 18. Recently I sent the group a copy of my life's story, let me know if you got a copy, if not I'll send you one. Look forward to getting to know you! Have a G'day! God Bless <>< ANGEL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Hi Hillary, Well, I'd like to think I'm still " remotely close " to 19! I'm a 24 year-old woman with RSS. As Ken mentioned, there is another yahoogroup where a few (13 so far) of us RSS adults (ages 13 to 40- something) have been chatting. It's called RSS-People; we'd love to hear from you there! (you should be able to sign up for it the same way you did for this one -- just go to groups.yahoo.com and search for RSS-People) Also, feel free to email me directly at hu99am43@... -Ana > Hi! I'm new to the list and just wanted to introduce myself. I am a 19 > year old female with RSS. I joined the list in hopes of finding others like > me. From the posts I've read so far, it appears that most of the members of > this group are parents of children w/ RSS, but it feels good just to be > someplace where people are going through the same things I've been or am > going through. If by chance there is anyone out there who is remotely close > to my age with RSS, I would LOVE to " hear " from you. > Best Wishes, > Hillary > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Thank you Betty for your answer, sorry to write back this late ( we had visitors over from overseas) Just for your info. Maerega (my daughter who has RSS) is 29 months, 76 cm and weight 8065 grams (so a bit over 8kg) and thank you for writing it in cm and kg because I do not understand inches and pounds (I always have to get the calculator out!!!) Thanks again, and I will be trying to read all the messages that come in every day although I probably read them once a week as I am busy with my 3 kiddies in the daytime. Regards, Simone Price (mum to Connor,5 yrs old, Maerega, 2.5 yrs old (RSS), Daron, 10 mths old.) -----Oorspronkelijk bericht----- Van: Real ez, Elvira Beatriz (Elvira Beatriz) Verzonden: donderdag 9 augustus 2001 18:56 Aan: RSS-Support Onderwerp: RE: new member Hi Simone: My name is Betty I live in Mexico City, my son is 21 months and has a pre diagnostic of RSS, he has the incurves 5th finger, triangular face, his height is 80 cm and weight almost 8 kg. He doesn't have problems in walk and his talk is considered normal to his age, I have found I lot of support in this list and I'm sure you are going to fine the same. betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Thank you Betty for your answer, sorry to write back this late ( we had visitors over from overseas) Just for your info. Maerega (my daughter who has RSS) is 29 months, 76 cm and weight 8065 grams (so a bit over 8kg) and thank you for writing it in cm and kg because I do not understand inches and pounds (I always have to get the calculator out!!!) Thanks again, and I will be trying to read all the messages that come in every day although I probably read them once a week as I am busy with my 3 kiddies in the daytime. Regards, Simone Price (mum to Connor,5 yrs old, Maerega, 2.5 yrs old (RSS), Daron, 10 mths old.) -----Oorspronkelijk bericht----- Van: Real ez, Elvira Beatriz (Elvira Beatriz) Verzonden: donderdag 9 augustus 2001 18:56 Aan: RSS-Support Onderwerp: RE: new member Hi Simone: My name is Betty I live in Mexico City, my son is 21 months and has a pre diagnostic of RSS, he has the incurves 5th finger, triangular face, his height is 80 cm and weight almost 8 kg. He doesn't have problems in walk and his talk is considered normal to his age, I have found I lot of support in this list and I'm sure you are going to fine the same. betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Hello Jodi, I am reading through all the messages tonight. I have been behind the computer for more then 2 hours already reading it all. What a lot of information. And there is so much i don't know about yet. Thanks, Simone Price -----Oorspronkelijk bericht----- Van: z4all Verzonden: donderdag 9 augustus 2001 23:30 Aan: RSS-Support Onderwerp: Re: new member Simone, I am so glad that you joined this group! I am the same Jodi that emailed you from my other address - magicrss@.... You will be very happy that you found this group! Jodi new member > Hello, > My name is simone price. I am new to this group. I just found out my > 2 year old daughter has RSS. At least, thats what the doctors think, > after numerous tests (on urine and DNA). She is very small for her > age and doesn't walk yet (she turns 3 in March so she is late) and > also has a difficulty talking (she can say a number of words now but > you can't really make a conversation with her). She has incurved > little fingers but thats it. I just want to come in contact with > parents who have a child with RSS, also parents with older children. > Curious how they have grown. I also want to know more about using > hormones (results and side effects) > Another thing I would like to know if there are any parents in this > group with RSS children who are from Holland. Its hard to get > information here so I turned to the Magic Foundation. > Thanks to everyone who wants to fill me in on any information you > have. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Hello Joan, thank you for your reply. Maerega is 29mths old, 76 cms and 8kg (yep get the old calculator out). Did your son have problems with talking and walking when he was younger. Is 2nd grade normal for a 7 year old. Sorry to ask you this but the school system in Holland is different. Maerega has physiotherapy and is learning how to walk. She has not had any speach lessons, the doctor tells us to wait until she is 3 yrs old. Any experience? Thanks again, Simone Price, mother to Connor (5 yrs old), Maerega (29 mths RSS), Daron (10 mths old) -----Oorspronkelijk bericht----- Van: tierrasoleada@... Verzonden: vrijdag 10 augustus 2001 0:50 Aan: RSS-Support Onderwerp: New member Simone: Hi! My son Ian is 7y he's 43inches and 32pounds. He started using growth hormone just ten months ago, so far is helping his growth rate. He's a healthy boy and super energetic, he just started in 2nd grade. I joint this group just weeks ago and has been really helpful, knowing that you're not alone. So I now you'll like here too. Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 Simone- I thought I would respond to your question about what age to start speech therapy (ST). My son Dominic, started ST at 20 months old and has made vast improvements. We are thrilled with the progress! Here in the US, there is a free program called Early Intervention or Birth -3 (different states refer to it differently). Anyway, we wanted to get him in this program early instead of wait until he was 3. Good luck! F. (mom to Dominic, RSS, 23 months, 16lbs.) --- the priceys wrote: > Hello Joan, > thank you for your reply. Maerega is 29mths old, 76 > cms and 8kg (yep get the > old calculator out). > Did your son have problems with talking and walking > when he was younger. Is > 2nd grade normal for a 7 year old. Sorry to ask you > this but the school > system in Holland is different. > Maerega has physiotherapy and is learning how to > walk. She has not had any > speach lessons, the doctor tells us to wait until > she is 3 yrs old. Any > experience? > Thanks again, Simone Price, mother to Connor (5 yrs > old), Maerega (29 mths > RSS), Daron (10 mths old) > > -----Oorspronkelijk bericht----- > Van: tierrasoleada@... > > Verzonden: vrijdag 10 augustus 2001 0:50 > Aan: RSS-Support > Onderwerp: New member > > > Simone: > Hi! My son Ian is 7y he's 43inches and 32pounds. > He started using growth > hormone just ten months ago, so far is helping his > growth rate. He's a > healthy boy and super energetic, he just started in > 2nd grade. > I joint this group just weeks ago and has been > really helpful, knowing > that you're not alone. So I now you'll like here > too. > Joan > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 Simone: We use cm and gr in Mexico, I have the same problem that you, I need the calculator when I read the messages. Betty RE: new member Thank you Betty for your answer, sorry to write back this late ( we had visitors over from overseas) Just for your info. Maerega (my daughter who has RSS) is 29 months, 76 cm and weight 8065 grams (so a bit over 8kg) and thank you for writing it in cm and kg because I do not understand inches and pounds (I always have to get the calculator out!!!) Thanks again, and I will be trying to read all the messages that come in every day although I probably read them once a week as I am busy with my 3 kiddies in the daytime. Regards, Simone Price (mum to Connor,5 yrs old, Maerega, 2.5 yrs old (RSS), Daron, 10 mths old.) -----Oorspronkelijk bericht----- Van: Real ez, Elvira Beatriz (Elvira Beatriz) Verzonden: donderdag 9 augustus 2001 18:56 Aan: RSS-Support Onderwerp: RE: new member Hi Simone: My name is Betty I live in Mexico City, my son is 21 months and has a pre diagnostic of RSS, he has the incurves 5th finger, triangular face, his height is 80 cm and weight almost 8 kg. He doesn't have problems in walk and his talk is considered normal to his age, I have found I lot of support in this list and I'm sure you are going to fine the same. betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 Welcome to the board! I hope you find this to be as helpful to you as I do!!! I just joined a week or so ago & it has been UNBELIEVABLY comforting to me & such a great source of info. Look forward to hearing more from you ~Macy~ Mommy to our miracle Kylie born April 11, 1998 our three Angels: Baby @12weeks, Baby @ 7weeks Christian born still January 20, 2000 @ 20weeks & our Newest miracle, Hunter born April 19, 2001 2lbs. 7oz. @ 34 weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 Hi Mimi! Welcome to the list... I, too have an almost 4 1/2 year old RSS daughter. I think we all feel the nervous jitters for our children as they begin a new school year. I'm sure everything will work out. And, we'll all be here to support one another through these times! Good Luck, Diane mom to a, 4 yrs 5mos., RSS, UPD7, to be measured tomorrow & , 7 wife to Vince :-D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 Hi Mimi Welcome to the group. Yes, I think you'll find your daughter will do fine. Many people on the list have done different things when the kids begin school. Some go in and have a parent to class chat about the disorder (one child actually was afraid he could " catch " RSS) other parents leave everything alone. I am of the belief, personally, to leave well enough alone. The teachers are well trained to deal with " differences " (whether it's colour, handicap, glasses, or size) that they do a fine job making the children all feel equal. But others feel differently. You'll hear both sides here. I find that at the young age, the worst thing that happens is that the other kids " baby " our RSS kids. Adam had 2 or 3 girls that followed him around everywhere and carried him and helped him with his shoes and all of that. Of course the teacher put the stop to that right away. She just reinforced that Adam was 4, and he can do his shoes, his snack or walk all by himself. She was a fabulous teacher. Have you had a chance to check out the Magic Foundation yet? www.magicfoundation.org has " brochures " on various growth disorders. You can go and print up the information on RSS, in case you'd like to give it to your daughter's teacher. And there is also a section to join, for a fee, and become a member. It has a list serve like this one, and produces newsletters, and is a great source of information and help when dealing with insurance companies, etc. etc. Again. Welcome. Debby Mother of Adam (almost 9, RSS) and hugely tall non RSS Colette who is now 12. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 hello Mimi, Welcome to the group, I'm relatively new myself. But I have more information and support from them, then I ever dreamed of. I hope it helps you too. ali --- chiefssw@... wrote: > Hi All, > > I'm a relatively new member to the list. I have > just been reading > posts for the past several months, so I thought I > should finally say > hello. I have a 4 1/2 year-old daughter with RSS. > She starts pre- > school next week and I am cautiously hoping > everything goes well, > especially because I have sheltered her to a certain > extent up until > now. I guess I am worried about her social > interactions with large > groups of other kids. Look forward to learning from > all of you. > > Mimi > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 hello Mimi, Welcome to the group, I'm relatively new myself. But I have more information and support from them, then I ever dreamed of. I hope it helps you too. ali --- chiefssw@... wrote: > Hi All, > > I'm a relatively new member to the list. I have > just been reading > posts for the past several months, so I thought I > should finally say > hello. I have a 4 1/2 year-old daughter with RSS. > She starts pre- > school next week and I am cautiously hoping > everything goes well, > especially because I have sheltered her to a certain > extent up until > now. I guess I am worried about her social > interactions with large > groups of other kids. Look forward to learning from > all of you. > > Mimi > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 hello Mimi, Welcome to the group, I'm relatively new myself. But I have more information and support from them, then I ever dreamed of. I hope it helps you too. ali --- chiefssw@... wrote: > Hi All, > > I'm a relatively new member to the list. I have > just been reading > posts for the past several months, so I thought I > should finally say > hello. I have a 4 1/2 year-old daughter with RSS. > She starts pre- > school next week and I am cautiously hoping > everything goes well, > especially because I have sheltered her to a certain > extent up until > now. I guess I am worried about her social > interactions with large > groups of other kids. Look forward to learning from > all of you. > > Mimi > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2001 Report Share Posted September 27, 2001 Welcome Alice! Congratulations on a wonderful weight loss! I'm carbo-phobic myself so you are among friends. Keep posting! Carol Richmond, VA RNY 10/31/97 >>> 09/27/01 09:34AM >>> Hello all, My name is Alice, and I had an open RNY on 4/25/00, 15 months ago, at Newton Wellesley Hospital in MA, with Dr. Bruce Thayer. I'm 30 years old, 5'4, and started at 236# with a BMI of 40. I lost most of my weight in the first 7 months, and have been maintaining my weight at 152# since then. I was lucky to have no complications and to tolerate all foods in moderation. At this point, I eat like a normal person. I try to focus on protein, but I pretty much eat a little of everything, and still find myself addicted to carbs. I worry about the amount I can eat, as I'm sure most of you do. I rarely exercise, as I STILL have a huge phobia about it, but I hope to start a routine this winter. At 152#, I'm still in a size 14, and I would like to be smaller. 14 is just too close to plus size for my taste. Anyway, I'm looking forward to being a part of this group. - Alice Homepage: http://groups.yahoo.com/group/Graduate-OSSG Unsubscribe: mailto:Graduate-OSSG-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2001 Report Share Posted September 27, 2001 Welcome Alice! Congratulations on a wonderful weight loss! I'm carbo-phobic myself so you are among friends. Keep posting! Carol Richmond, VA RNY 10/31/97 >>> 09/27/01 09:34AM >>> Hello all, My name is Alice, and I had an open RNY on 4/25/00, 15 months ago, at Newton Wellesley Hospital in MA, with Dr. Bruce Thayer. I'm 30 years old, 5'4, and started at 236# with a BMI of 40. I lost most of my weight in the first 7 months, and have been maintaining my weight at 152# since then. I was lucky to have no complications and to tolerate all foods in moderation. At this point, I eat like a normal person. I try to focus on protein, but I pretty much eat a little of everything, and still find myself addicted to carbs. I worry about the amount I can eat, as I'm sure most of you do. I rarely exercise, as I STILL have a huge phobia about it, but I hope to start a routine this winter. At 152#, I'm still in a size 14, and I would like to be smaller. 14 is just too close to plus size for my taste. Anyway, I'm looking forward to being a part of this group. - Alice Homepage: http://groups.yahoo.com/group/Graduate-OSSG Unsubscribe: mailto:Graduate-OSSG-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 > I am a new member to the graduate list and wanted to introduce myself to everyone. I had my RNY on 12/22/99 with Dr. Bessler in NYC. I was 46 years old, and weighed 350 pounds. I have lost almost 200 pounds since then. I come > from a family where diabetes, stroke and obesity runs rampant, and although I had no co-morbidies at the time, my doctors told me I was heading for diabetes within a few years, for sure. > > I've had a few complications - needed three endoscopies to open my stoma at month two, and then had to have emergency surgery to fix a herniated bowel this past May. With it all, I have no regrets, and the surgery has given me > a wonderful, new life. I've worked hard to develop new eating habits, and up until recently, was eating a fairly healthy, balanced diet, stressing proteins, water and veggies. > > I've had a hard time since I reached my goal. Loosing seemed easier to me than maintaining, somehow. I've lost 100+ pounds three other times in my life, and each time gained it back right away. I've never been able to > maintain, and it scares me now that I won't be able to now. I find that as soon as I realized I didn't have to lose anymore, I started eating more. I don't dump, and the occasional sweet has turned into a few scary binges. I > find myself fighting the food demons more and more. I just started with a personal trainer, and had a session with the nutritionist, and shrink, to try and get a grip on things. > > I'm looking forward to hearing what you all are going through, and how you deal with the return on the appetite! > > Helene > RNY 12/22/99 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 New Member Hi to all! This is my first time communicating, but I have followed closely most of your letters. I am on my second year of misery and nothing is helping. Mostly heat and cold urticaria. Sometimes pressure sets them off also. I have taken pred. but this is not good and I know it. Atarax is great at night till I need to get up and I can barely communicate the first two hours. I noticed my body temp and when it deviates set off a huge amount of these. Any suggestions on keeping my temp norm. Are there any meds for this? in GlendaleCalifornia _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 Dear .... I know what it feels like to want to hide - That is nice to know that you have found some comfort in the goings on here...and it is great you are here now! .we need you - the more the merrier :) What have you tried to control your hives? Keep in touch...Best wishes...Tree New Member Hi! I'm from Glendale, CA. My hives started two years ago and have been a torment since. I use your interactions for comfort at times when the hives are significant and I just want to hide. They travel from my torso to my face. Last week my left eye shut completely. Today, my forehead is huge from them. I am forty and feel like I am aging more rapidly due to these constant elevated bumps.. The cold and heat trigger most, sometimes pressure, and possible something I ingest. Thanks for being here. Cath~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~If you do wish to unsubscribe then you can click on the following link: urticaria-unsubscribeegroups~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new.Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
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