New member

[Guest guest]

> Hello, I am a new member to this group. My husband is the one

> suffering from chronic pancreatitis. He has had it for about 6

years

> now. He is actually in the hospital now and has been since

Sunday.

> I am looking for a group he can chat with. He truly needs to find

> others who experience the same daily severe pain and learn what

their

> coping methods are. Any response is appreciated.

> Thanks and God Bless.

Welcome to the group. I just joined a couple of months ago. I too am

caring for a husband with this terrible condition. You have come to

the right place. There is a wealth of information here from people

who are willing to share whatever experiences they have had, and I am

grateful to every one of them. Hope your hubby is feeling better,and

keep posting.

Ann

[Guest guest]

,

No, Mike did not go to OSU. He has always gone to Riverside

Methodist Hospital. But we did not have a great experience with

doctors there either. I am not sure how far of a drive Indy is for

you, but Dr. Darwin Conwell at the Cleveland Clinic is wonderful!!

If you ever feel you need a second opinion let us know and we can

give you his phone number. A doctor a Riverside initially treated

his acute attack and felt Mike was just looking for drugs when he

continued to have pain and additional symptoms. The first time we

went to Cleveland it took the doctor 2 minutes to tell us Mike had a

stricture in the tail end of the pancreas (which he found on the

origianl CT scan) Let me tell you, Mike and I were quite upset that

he suffered for over a year unnecessarily. Anyway, thanks so much

for your warm welcome.

Cristina

> > Thanks for your reply. My husband is Mike and my name is

> Cristina. We live

> > just south of Columbus, OH in Grove City. His pancreatitis is

> ideopathic

> > and it began with an acute attack in 1994. He is in and out of

the

> hospital

> > alot. Usually once every three months. His immune system is so

> low he also

> > gets pnemonia alot and has had viral meningitis. His energy

level

> is low

> > and he currently take approx. 30 dilaudid a day for pain.

> Everything else

> > has been tried, celiac plexus blocks, sandostatin shots, two

> surgeries. He

> > had his gall bladder, spleen, and 1/3 of his pancreas removed in

> 1995. He

> > had a thorascopic sympathectomy in 2000. This was for pain

> management but

> > it failed. They suggested he try the pain pump, however, his GI

at

> the

> > Cleveland Clinic said he wouldn't do it. He is too young and

they

> are

> > afraid it may do additional damage to his veins/nerves. Are you

the

> > sufferer or the supporter?

> > Thanks, Cristina

> >

> > Re: New member

> >

> >

> > In a message dated 5/15/01 10:28:31 PM Central Daylight Time,

> > crandall@c... writes:

> >

> >

> > > Hello, I am a new member to this group. My husband is the one

> > > suffering from chronic pancreatitis. He has had it for about

6

> years

> > > now. He is actually in the hospital now and has been since

> Sunday.

> > > I am looking for a group he can chat with. He truly needs to

> find

> > > others who experience the same daily severe pain and learn

what

> their

> > > coping methods are.

> >

> > Hello - sorry that your husband is suffering from

pancreatitis.

> what

> > caused

> > his? where do you live? is he home or still hospitalized?

> questions,

> > questions. you will find many friends here and lots of moral

> support and

> > answers to YOUR questions. it is so nice to have others to

talk

> to that

> > know

> > exactly how you feel and what you are going through.

> > welcome to the group! i hope that i can be helpful to you in

> some way.,

> >

> > Debbie Sikes

> > djssekis@a...

> > Arkansas Chapter Representative

> > Pancreatitis Association, International

> >

> >

> >

> >

> >

[Guest guest]

It'd be great if we had ULTIMATE control over where we stop, but we don't

always. So, fi you reach a size 6, will you panic? Since you're 1 yr, you could

keep on moving. Tell your family not to panic. When you're done, you're done and

there you are, except for a little bounceback. Gotta stabilize and get muscle

back under your skin and it rounds you out a little, but not in a bad way.

Heck, the change is part of the FUN! LOL!

Thanks,

www.vitalady.com

https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com

New member

> I had my surgery on May 29, 2000 so I am one year out today! Life is

> Good! I feel Great! I have lost 110 pounds. I want to lose a bit

> more, but my family doc and my family say to stop now. I wear a size

> 8-10. I really need to have some skin removed but it is not going to

> happen soon as I switched jobs and I am going back to school for 2

> years. A friend that lurks in the background of this club waiting

> for her surgery invited me here to talk to others that have lived

> through the first year. I am really very lucky. I can eat just

> about anything I want, just in very small quantities. I had a RNY.

> I still walk several times a week. I bought a bicycle this spring

> and have been riding it when the weather permits.

> I just feel Great!!!

> Scrubs

>

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

Heh heh heh I know what you mean. My family thinks I'm too skinny (at just

about 170 lbs, a little over 190 lost!). My mom told me I should start eating

more...my doc says I still have 15 lbs to go

I think I am fine where I am!

-

New member

> I had my surgery on May 29, 2000 so I am one year out today! Life is

> Good! I feel Great! I have lost 110 pounds. I want to lose a bit

> more, but my family doc and my family say to stop now. I wear a size

> 8-10. I really need to have some skin removed but it is not going to

> happen soon as I switched jobs and I am going back to school for 2

> years. A friend that lurks in the background of this club waiting

> for her surgery invited me here to talk to others that have lived

> through the first year. I am really very lucky. I can eat just

> about anything I want, just in very small quantities. I had a RNY.

> I still walk several times a week. I bought a bicycle this spring

> and have been riding it when the weather permits.

> I just feel Great!!!

> Scrubs

>

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

Lilyann,

Medical College of Georgia and Mayo Clinic in ville, FL are the only big

names that I know of in that area. Both have movement disorder specialists.

However, if you have a good family doctor who knows you and is willing to work

with you, that could work well also. There are so many people on the list who

know the medicines used, that you can tell your doctor and they could work on

adjusting the meds with you. Be SURE you only add or delete one medicine at a

time to allow for interactions and side effects to show up. That lets you know

which medicine is causing problems.

I seem to remember someone that was living in SE Georgia. Maybe you will get

more answers from people in the area.

Take care, Bill and Charlotte Werre in Herndon, VA, USA

==========================

Lilyann man wrote:

> Greetings to all of you on this list. We've been reading your messages for

> the past two months since my sister, Sara, was given a tentative diagnosis

> of MSA at the Medical College of Georgia after searching for almost two

> years. Do any of you know of " movement disorder specialists " or other

> specialists near South Georgia?

>

> Thanks,

>

> Lilyann

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

[Guest guest]

Welcome Shoshana~

You've come to a good place! I have a friend named Debora in Jerusalem! How

I'd love to learn Hebrew!! =)

Regards~

Jacque

> Hi! I just subscribed to this group. It is the first time in my life that

> I have ever posted to a group so forgive me if I do not follow webetiquette

> properly. I had gastric-bypass surgery in January 1997. I weighed 335 lb.

> before surgery, lost 140 and maintained my weight at 195 without any special

> dieting for around four years until I got pregnant. During pregnancy I

> gained 60 pounds (which is rather extreme). My baby is now 7.5 months old

> and I still have 18 extra pounds. Now, 18 pounds may not sound like much

> but I wasn't extremely thin before and the extra weight is really bothering

> me and makes a big difference in my appearance. I am looking for help,

> support and information.

>

[Guest guest]

Hillary,

Greetings! Welcome to the RSS group. Recently I joined hoping to also find

other people my age with RSS. My name is Angel and I'm 24 years old. The

oldest of 2, my sister just turned 18. Recently I sent the group a copy of

my life's story, let me know if you got a copy, if not I'll send you one.

Look forward to getting to know you! Have a G'day! God Bless <>< ANGEL

[Guest guest]

Hi Hillary,

Well, I'd like to think I'm still " remotely close " to 19! I'm a

24 year-old woman with RSS. As Ken mentioned, there is another

yahoogroup where a few (13 so far) of us RSS adults (ages 13 to 40-

something) have been chatting. It's called RSS-People; we'd love to

hear from you there! (you should be able to sign up for it the same

way you did for this one -- just go to groups.yahoo.com and search

for RSS-People)

Also, feel free to email me directly at hu99am43@...

-Ana

> Hi! I'm new to the list and just wanted to introduce myself. I am

a 19

> year old female with RSS. I joined the list in hopes of finding

others like

> me. From the posts I've read so far, it appears that most of the

members of

> this group are parents of children w/ RSS, but it feels good just

to be

> someplace where people are going through the same things I've been

or am

> going through. If by chance there is anyone out there who is

remotely close

> to my age with RSS, I would LOVE to " hear " from you.

> Best Wishes,

> Hillary

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at

http://explorer.msn.com/intl.asp

[Guest guest]

Thank you Betty for your answer, sorry to write back this late ( we had

visitors over from overseas)

Just for your info. Maerega (my daughter who has RSS) is 29 months, 76 cm

and weight 8065 grams (so a bit over 8kg) and thank you for writing it in cm

and kg because I do not understand inches and pounds (I always have to get

the calculator out!!!)

Thanks again, and I will be trying to read all the messages that come in

every day although I probably read them once a week as I am busy with my 3

kiddies in the daytime.

Regards, Simone Price (mum to Connor,5 yrs old, Maerega, 2.5 yrs old (RSS),

Daron, 10 mths old.)

-----Oorspronkelijk bericht-----

Van: Real ez, Elvira Beatriz (Elvira Beatriz)

Verzonden: donderdag 9 augustus 2001 18:56

Aan: RSS-Support

Onderwerp: RE: new member

Hi Simone:

My name is Betty I live in Mexico City, my son is 21 months and

has a pre diagnostic of RSS, he has the incurves 5th finger, triangular

face, his height is 80 cm and weight almost 8 kg.

He doesn't have problems in walk and his talk is considered normal to

his age, I have found I lot of support in this list and I'm sure you are

going to fine the same.

betty

[Guest guest]

Thank you Betty for your answer, sorry to write back this late ( we had

visitors over from overseas)

Just for your info. Maerega (my daughter who has RSS) is 29 months, 76 cm

and weight 8065 grams (so a bit over 8kg) and thank you for writing it in cm

and kg because I do not understand inches and pounds (I always have to get

the calculator out!!!)

Thanks again, and I will be trying to read all the messages that come in

every day although I probably read them once a week as I am busy with my 3

kiddies in the daytime.

Regards, Simone Price (mum to Connor,5 yrs old, Maerega, 2.5 yrs old (RSS),

Daron, 10 mths old.)

-----Oorspronkelijk bericht-----

Van: Real ez, Elvira Beatriz (Elvira Beatriz)

Verzonden: donderdag 9 augustus 2001 18:56

Aan: RSS-Support

Onderwerp: RE: new member

Hi Simone:

My name is Betty I live in Mexico City, my son is 21 months and

has a pre diagnostic of RSS, he has the incurves 5th finger, triangular

face, his height is 80 cm and weight almost 8 kg.

He doesn't have problems in walk and his talk is considered normal to

his age, I have found I lot of support in this list and I'm sure you are

going to fine the same.

betty

[Guest guest]

Hello Jodi,

I am reading through all the messages tonight. I have been behind the

computer for more then 2 hours already reading it all. What a lot of

information. And there is so much i don't know about yet.

Thanks, Simone Price

-----Oorspronkelijk bericht-----

Van: z4all

Verzonden: donderdag 9 augustus 2001 23:30

Aan: RSS-Support

Onderwerp: Re: new member

Simone,

I am so glad that you joined this group! I am the same Jodi that emailed

you from my other address - magicrss@.... You will be very happy

that you found this group!

Jodi

new member

> Hello,

> My name is simone price. I am new to this group. I just found out my

> 2 year old daughter has RSS. At least, thats what the doctors think,

> after numerous tests (on urine and DNA). She is very small for her

> age and doesn't walk yet (she turns 3 in March so she is late) and

> also has a difficulty talking (she can say a number of words now but

> you can't really make a conversation with her). She has incurved

> little fingers but thats it. I just want to come in contact with

> parents who have a child with RSS, also parents with older children.

> Curious how they have grown. I also want to know more about using

> hormones (results and side effects)

> Another thing I would like to know if there are any parents in this

> group with RSS children who are from Holland. Its hard to get

> information here so I turned to the Magic Foundation.

> Thanks to everyone who wants to fill me in on any information you

> have.

>

>

>

>

>

>

>

[Guest guest]

Hello Joan,

thank you for your reply. Maerega is 29mths old, 76 cms and 8kg (yep get the

old calculator out).

Did your son have problems with talking and walking when he was younger. Is

2nd grade normal for a 7 year old. Sorry to ask you this but the school

system in Holland is different.

Maerega has physiotherapy and is learning how to walk. She has not had any

speach lessons, the doctor tells us to wait until she is 3 yrs old. Any

experience?

Thanks again, Simone Price, mother to Connor (5 yrs old), Maerega (29 mths

RSS), Daron (10 mths old)

-----Oorspronkelijk bericht-----

Van: tierrasoleada@...

Verzonden: vrijdag 10 augustus 2001 0:50

Aan: RSS-Support

Onderwerp: New member

Simone:

Hi! My son Ian is 7y he's 43inches and 32pounds. He started using growth

hormone just ten months ago, so far is helping his growth rate. He's a

healthy boy and super energetic, he just started in 2nd grade.

I joint this group just weeks ago and has been really helpful, knowing

that you're not alone. So I now you'll like here too.

Joan

[Guest guest]

Simone-

I thought I would respond to your question about what

age to start speech therapy (ST). My son Dominic,

started ST at 20 months old and has made vast

improvements. We are thrilled with the progress!

Here in the US, there is a free program called Early

Intervention or Birth -3 (different states refer to it

differently). Anyway, we wanted to get him in this

program early instead of wait until he was 3. Good

luck!

F. (mom to Dominic, RSS, 23 months, 16lbs.)

--- the priceys wrote:

> Hello Joan,

> thank you for your reply. Maerega is 29mths old, 76

> cms and 8kg (yep get the

> old calculator out).

> Did your son have problems with talking and walking

> when he was younger. Is

> 2nd grade normal for a 7 year old. Sorry to ask you

> this but the school

> system in Holland is different.

> Maerega has physiotherapy and is learning how to

> walk. She has not had any

> speach lessons, the doctor tells us to wait until

> she is 3 yrs old. Any

> experience?

> Thanks again, Simone Price, mother to Connor (5 yrs

> old), Maerega (29 mths

> RSS), Daron (10 mths old)

>

> -----Oorspronkelijk bericht-----

> Van: tierrasoleada@...

>

> Verzonden: vrijdag 10 augustus 2001 0:50

> Aan: RSS-Support

> Onderwerp: New member

>

>

> Simone:

> Hi! My son Ian is 7y he's 43inches and 32pounds.

> He started using growth

> hormone just ten months ago, so far is helping his

> growth rate. He's a

> healthy boy and super energetic, he just started in

> 2nd grade.

> I joint this group just weeks ago and has been

> really helpful, knowing

> that you're not alone. So I now you'll like here

> too.

> Joan

>

>

>

>

>

[Guest guest]

Simone:

We use cm and gr in Mexico, I have the same problem that you, I need the

calculator when I read the messages.

Betty

RE: new member

Thank you Betty for your answer, sorry to write back this late ( we had

visitors over from overseas)

Just for your info. Maerega (my daughter who has RSS) is 29 months, 76

cm

and weight 8065 grams (so a bit over 8kg) and thank you for writing it

in cm

and kg because I do not understand inches and pounds (I always have to

get

the calculator out!!!)

Thanks again, and I will be trying to read all the messages that come in

every day although I probably read them once a week as I am busy with my

3

kiddies in the daytime.

Regards, Simone Price (mum to Connor,5 yrs old, Maerega, 2.5 yrs old

(RSS),

Daron, 10 mths old.)

-----Oorspronkelijk bericht-----

Van: Real ez, Elvira Beatriz (Elvira Beatriz)

Verzonden: donderdag 9 augustus 2001 18:56

Aan: RSS-Support

Onderwerp: RE: new member

Hi Simone:

My name is Betty I live in Mexico City, my son is 21 months and

has a pre diagnostic of RSS, he has the incurves 5th finger, triangular

face, his height is 80 cm and weight almost 8 kg.

He doesn't have problems in walk and his talk is considered normal to

his age, I have found I lot of support in this list and I'm sure you are

going to fine the same.

betty

[Guest guest]

Welcome to the board! I hope you find this to be as helpful to you as I

do!!! I just joined a week or so ago & it has been UNBELIEVABLY comforting

to me & such a great source of info. Look forward to hearing more from you

~Macy~

Mommy to our miracle Kylie born April 11, 1998

our three Angels: Baby @12weeks, Baby @ 7weeks

Christian born still January 20, 2000 @ 20weeks

& our Newest miracle,

Hunter born April 19, 2001

2lbs. 7oz. @ 34 weeks

[Guest guest]

Hi Mimi!

Welcome to the list... I, too have an almost 4 1/2 year old RSS

daughter. I think we all feel the nervous jitters for our children

as they begin a new school year. I'm sure everything will work out.

And, we'll all be here to support one another through these times!

Good Luck,

Diane

mom to a, 4 yrs 5mos., RSS, UPD7, to be measured tomorrow &

, 7

wife to Vince :-D

[Guest guest]

Hi Mimi

Welcome to the group. Yes, I think you'll find your daughter will do fine.

Many people on the list have done different things when the kids begin

school. Some go in and have a parent to class chat about the disorder (one

child actually was afraid he could " catch " RSS) other parents leave

everything alone. I am of the belief, personally, to leave well enough

alone. The teachers are well trained to deal with " differences " (whether

it's colour, handicap, glasses, or size) that they do a fine job making the

children all feel equal. But others feel differently. You'll hear both sides

here.

I find that at the young age, the worst thing that happens is that the other

kids " baby " our RSS kids. Adam had 2 or 3 girls that followed him around

everywhere and carried him and helped him with his shoes and all of that. Of

course the teacher put the stop to that right away. She just reinforced that

Adam was 4, and he can do his shoes, his snack or walk all by himself. She

was a fabulous teacher.

Have you had a chance to check out the Magic Foundation yet?

www.magicfoundation.org

has " brochures " on various growth disorders. You can go and print up the

information on RSS, in case you'd like to give it to your daughter's

teacher. And there is also a section to join, for a fee, and become a

member. It has a list serve like this one, and produces newsletters, and is

a great source of information and help when dealing with insurance

companies, etc. etc.

Again. Welcome.

Debby

Mother of Adam (almost 9, RSS) and hugely tall non RSS Colette who is now

12.

[Guest guest]

hello Mimi,

Welcome to the group, I'm relatively new myself. But

I have more information and support from them, then I

ever dreamed of. I hope it helps you too.

ali

--- chiefssw@... wrote:

> Hi All,

>

> I'm a relatively new member to the list. I have

> just been reading

> posts for the past several months, so I thought I

> should finally say

> hello. I have a 4 1/2 year-old daughter with RSS.

> She starts pre-

> school next week and I am cautiously hoping

> everything goes well,

> especially because I have sheltered her to a certain

> extent up until

> now. I guess I am worried about her social

> interactions with large

> groups of other kids. Look forward to learning from

> all of you.

>

> Mimi

>

>

>

__________________________________________________

[Guest guest]

hello Mimi,

Welcome to the group, I'm relatively new myself. But

I have more information and support from them, then I

ever dreamed of. I hope it helps you too.

ali

--- chiefssw@... wrote:

> Hi All,

>

> I'm a relatively new member to the list. I have

> just been reading

> posts for the past several months, so I thought I

> should finally say

> hello. I have a 4 1/2 year-old daughter with RSS.

> She starts pre-

> school next week and I am cautiously hoping

> everything goes well,

> especially because I have sheltered her to a certain

> extent up until

> now. I guess I am worried about her social

> interactions with large

> groups of other kids. Look forward to learning from

> all of you.

>

> Mimi

>

>

>

__________________________________________________

[Guest guest]

hello Mimi,

Welcome to the group, I'm relatively new myself. But

I have more information and support from them, then I

ever dreamed of. I hope it helps you too.

ali

--- chiefssw@... wrote:

> Hi All,

>

> I'm a relatively new member to the list. I have

> just been reading

> posts for the past several months, so I thought I

> should finally say

> hello. I have a 4 1/2 year-old daughter with RSS.

> She starts pre-

> school next week and I am cautiously hoping

> everything goes well,

> especially because I have sheltered her to a certain

> extent up until

> now. I guess I am worried about her social

> interactions with large

> groups of other kids. Look forward to learning from

> all of you.

>

> Mimi

>

>

>

__________________________________________________

[Guest guest]

Welcome Alice!

Congratulations on a wonderful weight loss! I'm carbo-phobic myself so you are

among friends. Keep posting!

Carol

Richmond, VA

RNY 10/31/97

>>> 09/27/01 09:34AM >>>

Hello all,

My name is Alice, and I had an open RNY on 4/25/00, 15 months ago, at

Newton Wellesley Hospital in MA, with Dr. Bruce Thayer. I'm 30 years

old, 5'4, and started at 236# with a BMI of 40. I lost most of my

weight in the first 7 months, and have been maintaining my weight at

152# since then.

I was lucky to have no complications and to tolerate all foods in

moderation. At this point, I eat like a normal person. I try to focus

on protein, but I pretty much eat a little of everything, and still

find myself addicted to carbs. I worry about the amount I can eat, as

I'm sure most of you do.

I rarely exercise, as I STILL have a huge phobia about it, but I hope

to start a routine this winter. At 152#, I'm still in a size 14, and I

would like to be smaller. 14 is just too close to plus size for my

taste.

Anyway, I'm looking forward to being a part of this group.

- Alice

Homepage: http://groups.yahoo.com/group/Graduate-OSSG

Unsubscribe: mailto:Graduate-OSSG-unsubscribe

[Guest guest]

Welcome Alice!

Congratulations on a wonderful weight loss! I'm carbo-phobic myself so you are

among friends. Keep posting!

Carol

Richmond, VA

RNY 10/31/97

>>> 09/27/01 09:34AM >>>

Hello all,

My name is Alice, and I had an open RNY on 4/25/00, 15 months ago, at

Newton Wellesley Hospital in MA, with Dr. Bruce Thayer. I'm 30 years

old, 5'4, and started at 236# with a BMI of 40. I lost most of my

weight in the first 7 months, and have been maintaining my weight at

152# since then.

I was lucky to have no complications and to tolerate all foods in

moderation. At this point, I eat like a normal person. I try to focus

on protein, but I pretty much eat a little of everything, and still

find myself addicted to carbs. I worry about the amount I can eat, as

I'm sure most of you do.

I rarely exercise, as I STILL have a huge phobia about it, but I hope

to start a routine this winter. At 152#, I'm still in a size 14, and I

would like to be smaller. 14 is just too close to plus size for my

taste.

Anyway, I'm looking forward to being a part of this group.

- Alice

Homepage: http://groups.yahoo.com/group/Graduate-OSSG

Unsubscribe: mailto:Graduate-OSSG-unsubscribe

[Guest guest]

> I am a new member to the graduate list and wanted to introduce myself to

everyone. I had my RNY on 12/22/99 with Dr. Bessler in NYC. I was 46 years

old, and weighed 350 pounds. I have lost almost 200 pounds since then. I

come

> from a family where diabetes, stroke and obesity runs rampant, and

although I had no co-morbidies at the time, my doctors told me I was heading

for diabetes within a few years, for sure.

>

> I've had a few complications - needed three endoscopies to open my stoma

at month two, and then had to have emergency surgery to fix a herniated

bowel this past May. With it all, I have no regrets, and the surgery has

given me

> a wonderful, new life. I've worked hard to develop new eating habits, and

up until recently, was eating a fairly healthy, balanced diet, stressing

proteins, water and veggies.

>

> I've had a hard time since I reached my goal. Loosing seemed easier to me

than maintaining, somehow. I've lost 100+ pounds three other times in my

life, and each time gained it back right away. I've never been able to

> maintain, and it scares me now that I won't be able to now. I find that

as soon as I realized I didn't have to lose anymore, I started eating more.

I don't dump, and the occasional sweet has turned into a few scary binges.

I

> find myself fighting the food demons more and more. I just started with a

personal trainer, and had a session with the nutritionist, and shrink, to

try and get a grip on things.

>

> I'm looking forward to hearing what you all are going through, and how you

deal with the return on the appetite!

>

> Helene

> RNY 12/22/99

>

>

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[Guest guest]

New Member

Hi to all!

This is my first time communicating, but I have followed closely most of

your letters.

I am on my second year of misery and nothing is helping. Mostly heat and

cold urticaria. Sometimes pressure sets them off also. I have taken pred.

but this is not good and I know it. Atarax is great at night till I need to

get up and I can barely communicate the first two hours. I noticed my body

temp and when it deviates set off a huge amount of these. Any suggestions on

keeping my temp norm. Are there any meds for this?

in GlendaleCalifornia

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[Guest guest]

Dear ....

I know what it feels like to want to hide - That is nice to know that you have found some comfort in the goings on here...and it is great you are here now! .we need you - the more the merrier :) What have you tried to control your hives? Keep in touch...Best wishes...Tree

New Member

Hi!

I'm from Glendale, CA. My hives started two years ago and have been a torment since. I use your interactions for comfort at times when the hives are significant and I just want to hide. They travel from my torso to my face. Last week my left eye shut completely. Today, my forehead is huge from them. I am forty and feel like I am aging more rapidly due to these constant elevated bumps.. The cold and heat trigger most, sometimes pressure, and possible something I ingest. Thanks for being here.

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