Re: Yeast /sugar advice and reassurance please

October 17, 2004

---

Sorry forgot to sign off - and one last thing, since starting the scd

cannot get little one to go to sleep. He just can't seem to switch

off. He used to go at 8pm now he is hyper, crying at times to after

11. Anyone shed light on why this is happening? Sorry for all the

questions.

Aileen

In pecanbread , " stepbystep67 " <stepbystep@u...> wrote:

>

> Hello

> When does one know that the yeast and bacteria is actually gone. We

> are into week 5 and BM have been very unpredicable - I don't know

if

> it is a reaction to a new food or just yeast die off. What is the

> difference?

>

> Also my young man is still craving food i.e sugar food and keeps

> requesting for the jelly, raisens or honey. I have hardly give him

> any honey so far and i have given him raisens to entice to drink

the

> soup. He is six, with autism, non-social and little verbals (only

to

> request)and no concept of the diet. I am finding it all very hard

as

> he seems to have went backwards. He just climbs the cupboards day

in

> day out as he refuses to eat most of the foods, he is still wetting

> at night (he was dry for 2 years before diet) and quite verbally

> stimmy. I did G/C free before this with high hopes ABA with high

> hopes and now this diet. Even though he has learnt a great deal he

> just doesn't see the need to share it. He lacks motivation and

could

> sit all day watching the world go by. I am wondering am I just

> torturing him as he doesn't get into food shops anymore because of

> the sweets, does't get top parties, other people's houses -he is an

> nightmare to watch because all that is on his mind is food - sugar

in

> particular, his lunch is bland. He can't stand the sight of fruit -

I

> made up beautiful ice-cream with bananas and strawberries , a

little

> bit of coconut milk and a drizzle of honey. hubbie devoured it as

my

> little one cried his eyes out at the thought of me given this to

him.

> Later out for a walk he attempted to eat cows manure. I just feel

> like giving up. I don't know what I am doing-Every meal he is being

> force fed. Before this we were encouraging him to eat with a spoon

> and fork now he won't even feed himself . Where am I going wrong?

Has

> anyone else any of these issues and what helped. Didn't mean to go

on

> so long but I just feel like giving up!

October 18, 2004

We really need to know how you started SCD and what he is

eating now to give you good suggestions.

I did notice that you mention raisins. They are dried fruits and we

don't suggest introducing dried fruits until all digestive problems

have cleared up. They are difficult to digest.

Can you tell us how you started SCD (intro or not) and what you

are feeding him now?

Jody

mom to -5 and -8

SCD 20 months

October 18, 2004

Welcome Aileen,

Definately let us know exactly what he is eating. Sometimes phenol

problems become more obvious after starting SCD and some of his

behavior could be contributed to that if he's eating alot of phenols

(raisins are very high in salicylates.) And we can all give some tips

of good intro foods and treats that lots of our kids liked in the

beginning.

At week 5, he could definately still be going through die off. All of

the behavior you described could easily be caused by the yeast dying

off, especially the cravings for sugar. The beginning is really hard.

Keep going and offer lots of SCD legal foods. When the cravings abate

some, he may become more receptive of the SCD goodies you're working

so hard to make.

Good luck!

Chrystee

Sam, 5, NT, salicylate sensitive

SCD 8 months

October 18, 2004

Hi Jody and Chrystee Thanks for the replies.

I did the intro but Cian only accepted egg. On day 2-3 he was

listless with no energy to get up , wretching when he drank water and

very pale and sickly.He was clingly and unusually huggy and

calm.Slept alot. I thought the eggs had sickened him as he would only

eat them nearly raw. On day 3 he started wetting bed and not going to

sleep till very late.

For the next couple of weeks his diet consisted of organic chicken

and burgers, (turkey he refused)

waffles, allowed dry cured bacon, egg, allowed biscuit from BTVC and

any veg i could sneak into a quiche made from almond flour. onions,

garlic, peppers, carrots, greens, etc. He refused point blank to

drink soup, coloured juices - Cian has an absolute abhorance to

fruit - come anywhere near him with any fruit and he physically

wretchs!! Has anyone else experienced this and has any idea why and

how to address it. I did not offer fruit on the first few weeks

anyway.

Eventually got him to take spoon fuls of chicken broth

Lately I have got him to take some stew but literally spooned into

him.

He did not get any grape jelly, raisens or honey until last week-

week 5 as once I give Cian anything sweet that is all he wants. That

is exactly what happened. Cian craves for sugar all day. We have to

lock the cupboards, the kitchen and can't take him anywhere. He has

craved sugar since he went on the gluten/casien free diet at 31/2 and

also searches and seeks for ordinary food. I sometimes wonder have I

created this obsession. Members of my family think he is hunger and

he is not getting enough but this is not the case.

His daily menu roughly is allowed waffles with bacon,

chicken/burger/salmon and veg quiche/pizza/dinner

allowed bread,muffins,biscuits all from SCD recipes

Chicken pancakes

grape jelly which he is now eating but I think it is sending him wild

and he wants to eat the whole tub at once.

Because he is so desperate I introduce the raisens but again used as

an incentive to drink the soup. I also use the jelly as an incentive.

I can drop the raisens but I don't know what else to give him when he

is climbing the cupboards. This goes on CONSTANTLY.

last week I introduced honey but again he wants to eat the bottle.

Ingredients I am using are almond flour, eggs, organic unsalted

butter, lemon juice, tomato (which I have a question mark over - not

sure if he can handle tomato) garlic, mixed herbs, organic, basil,

sea salt, cocunut unsweetened organic, expensive! pears, cardamon,

olive oil, and allowed meat/ veg honey ( I am very restrictive on the

honey) gelatine -thats about it. So do I start again? What would you

question? and how do I combat this sweet thing - 31/2 years is just

too long???

He is taking fish oil and probiotic also

Thank you so much for your help. I really would love to know if I am

helping or hindering him.

Aileen

October 18, 2004

It seems to me that he is not getting enough carbs.

Can you try using fitday.com to determine the number of carbs

he's getting in a day?

I think you need to get some fruit into him without him knowing

that there is any fruit in the item. Things like the cashew butter

muffins, the peanut butter squash brownies, avocado meatloaf,

etc. He needs the carbs for energy.

Post what you figure out using fitday.com so we can help you

more.

Jody

mom to -5 and -8

SCD 20 months

October 18, 2004

Patti Cian is on a probiotic - he was on customs but a doctor who

totally support SCD recommended a stronger one that has more stains

in it. It is specifically designed for children in mind particular ASD

Jody

did the fitday.com I am not familiar with this so maybe you could

advise

Cals for today 2377 fat145 carb122 Protein 142. I ommitted that Cian

gets avocado . Is there more carbs in cashew butter and peanut butter

squash than almond flour? Cian has loads of energy - it was only in

the first week he was lethargic. Tonight he has way too much!!

Should I start again? as I don't know what he is reacting too yeast

or food items. Also I worry about the amount of eggs in baking etc.

It is unclear whether eggs effect Cian - I would have to remove for a

couple of weeks but what then would I cook with. Are there egg free

recipes or would I resort to meat and veg which again would limit the

carbs.Thanks for helping me with this.

Aileen

>

> It seems to me that he is not getting enough carbs.

>

> Can you try using fitday.com to determine the number of carbs

> he's getting in a day?

>

> I think you need to get some fruit into him without him knowing

> that there is any fruit in the item. Things like the cashew butter

> muffins, the peanut butter squash brownies, avocado meatloaf,

> etc. He needs the carbs for energy.

>

> Post what you figure out using fitday.com so we can help you

> more.

>

> Jody

> mom to -5 and -8

> SCD 20 months

October 18, 2004

Jody he is six and as he refuses most foods it is difficult to get

him to eat. Cian is not motivated to eat. He is not motivated by food

at all unless of course sweet items as I have already mensioned.

Ok the probiotic is bioKult. There strains are in very small print

and it would take me ages to type here but the web site is

www.bio-kult.com

I also have customs probiotic but hadn't started using it before my

consultation with the doctor who recommended this one.

Thanks again for your help . I am really keeping you busy!!

Best

Aileen

>

> For 2377 calories:

>

> 20% protein would be

> 118 g (you listed 142)

>

> 50% carbs would be

> 297 g (you listed 122)

>

> 30% fat would be

> 79g (you listed 145)

>

> Based on what you listed his protein intake is 24%, carb intake

> is 21%, and fat intake is 55%.

>

> So, based on what I see, he is getting far too much fat and not

> nearly enough carbs.

>

> As for the probiotic you mentioned, we cannot recommend

> anything other than L. Acidophilus.

> Can you please tell us what strains are in the product that you

> are giving?

>

> There are egg-free recipes on pecanbread.com if you want to

> use some of them in his meals rather than using all baked

> goods with eggs. That would cut down on his egg intake if that's

> your goal.

>

> Also, I missed how old he is. 2377 is quite a few calories, but it

> depends on his age as to whether it is too many/too few.

>

> Jody

> mom to -5 and -8

> SCD 20 months

October 18, 2004

Patti if Bifidus = Bifidobacterium then there is 4 such strains in

there . I have just posted the web site as I can hardly read this

small box . www.bio-kult.com There are14 different strains in there

and yes I was trying to follow the doctor's advice. Depending on what

you or jody come back with I would like to share the information with

the doctor as if it isn't helping Cian then there is no point in

giving it and I have Customs in the freezer. For the record how much

should I start giving to him if this Bio-kult is a no no. I have

actually questioned this Bio-Kult as Cian would devour the box if I

let him. It has a sweetish taste and the doctor put it down to that.

Thanks for the helpi really want to help Cian through this and I

appreciate everyones support on this site.

Best

Aileen

> Aileen,

> First and foremost, I need to ask you if the probiotic you're using

has bifidus in it? If so, you need to know that quite a few SCD kids

on this list have ended up not doing very well at all due to bifidus.

I'm aware that some of the doctors are recommending other strains,

but Elaine continues to stress " acidophilus only " .... but

especially " no bifidus " . I think it's interesting that when she was

actively participating on our list, she kept warning against the

bifidus over and over...... and yet some of the parents are trying

to follow their doctor's advice at the same time they're trying to

stay SCD legal....... so there were some that used it anyway. Then,

sure enough, we saw one kid after another doing poorly on SCD......

that improved dramatically after removing the bifidus strain. There

are many other new probiotic strains out there...... and Elaine

admits that she doesn't know much about them and doesn't have the

time to research them.... but she did pass along quite a bit of

information on why we should avoid bifidus (which I can find for you

and forward, if you want). She recommends acidophilus only (in

supplements), because she feels this is the safest...... and has

produced the best result with those on SCD over the years.

>

> So......once I see what strains you're using, maybe we can make

further recommendations on the food issues..... but if bifidus is in

the mix, you may not make much progress no matter what changes you

make, food-wise.

>

> Patti, mom to Katera, SCD 17 months

> Re: Yeast /sugar advice and reassurance

please

>

> Patti Cian is on a probiotic - he was on customs but a doctor who

> totally support SCD recommended a stronger one that has more

stains

> in it. It is specifically designed for children in mind

particular ASD

>

> Aileen

>

October 18, 2004

Aileen,

I went to the bio-kult website and yes, indeed...... there are several strains

of bifidus. Definitely could be causing a problem..... but if that weren't

reason enough, it is also in a base of MALTODEXTRIN, which is illegal. If you

are trying to stay 100% on SCD (which is really the only way you'll have a

chance of making it work), you won't be able to give him this product. Do you

have the Custom Probiotics ACIDOPHILUS ONLY? Or does that one have other

strains, too? If it's only acidophilus, there are instructions for how to

introduce it..... SLOWLY.... on the www.pecanbread.com website.

I have to go pick Katera up from school now but will forward the things I have

saved about bifidus.

Patti