Guest guest Posted February 10, 2000 Report Share Posted February 10, 2000 In a message dated 02/10/2000 10:02:14 PM Eastern Standard Time, pber@... writes: << Is it even remotely possible that someone's milk would never come in? >> Call me crazy, but is she female? I mean, does she actually have breasts? I'm with you. That's a load of crap. G. FREE CAR? FREE HOUSE? IT'S POSSIBLE!!! GET YOUR SPOT NOW!!! WWW.GETYOURSPOT.COM USE ID#124321 1- MAIL BOX # 124321 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2000 Report Share Posted February 10, 2000 .. Is it even remotely possible that someone's milk would never come in My best friend never had a drop of milk but it was because she had a breast reduction and the surgeon did a horrendous job, she l;ooks like she went to a butcher but that is another story. Any way her OB and a LC confirmed that she would never be able to breastfeed. She was devastated!! Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 > > > I just need a quick answer. My hubby's cousin had a baby last month. His > sister was talking about how grandma has babysat ten times already! My > hubby said, " Well, obviously she isn't breastfed. " ( I am so proud of him!!) > His sister replied that she couldn't because her milk never came in. I said > that is a load of Bulls & *%, but she said they even had a LLL over and she > said the same thing. Again I said that is BS! Now this weekend we have to > go to grandma's and I know this is going to come up again. Is it even > remotely possible that someone's milk would never come in? I can't believe > so, but would just like to have some back up. > > My cousin tried to pull that one on me, and come to find out she was not latching the baby correctly, and then gave up becasue she was supplemnting with bottles of formula so much , and her milk did not come in. Beckie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 Pat wrote: > Is it even remotely possible that someone's milk would never > come in? I can't believe so, but would just like to have some > back up. > Remotely possible, yes, but not likely. The women who truly are unable to produce milk usually have a long line of women in the family who also were unable to produce milk; it's a hereditary trait. It's a glandular disorder, and breasts aren't formed at all, or not maturely. Simply, if she had breast changes during her pregnancy, a glandular disorder isn't probably. If she had breast changes during her pregnancy, she would have milk in after a few days following the birth of her baby. It would obviously be in sooner if she had allowed her baby to suckly colostrum for those few days, but if she didn't, her body would react as if she had lost her baby and not attempted to produce milk. If she had *any* engorgement or swelling of her breasts following birth, her milk " came in " but no supply was created since there was not enough demand. For most moms trying to relactate, it takes about as long to re-establish her milk supply as it has been since she nursed... so in your hubby's cousin's case, it may take up to a month of effort to re-establish her supply. That's the bad news, because most moms aren't that enthusiastic about something that takes that long. You had a suggestion already for using the SNS, and that's one way to quickly impact the supply and demand cycle for breastfeeding without having to interfere with the baby's ability to learn how to suckle the breast by using bottles. Retraining her baby how to suckle the breast will be her biggest obstacle if she is really able to make milk. Eliminating the competition of other nipples is the best route, but probably one of the hardest. Cutting back is good, but can still keep a young baby confused. If she's really serious about relactating, check Wendi's site (lactivist.com) for info about that, or ask for more info here -- we'll give you lots! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 Pat, I am not sure what could be causing the patches of dry skin but it could be eczema which is almost always related to allergies of some sort. Dairy, soy, nuts, wheat, citrus, strawberries and chocolate are some of the big food allergies for youngsters. Wendi http://www.lactivist.com breastfeeding info & resources (unknown) We spent last week in the big city and we did pretty good considering the size of the hotel room and the weather outside. The hotel was very dry and all of our skins suffered, but had really red cheeks Wednesday night so I talked to a RN and she said that it sounded like Fifth Disease. The redness has gone down and now she is just a little pink. I don't know how Samm got it, because she doesn't sit in shopping carts, or touch anyone when we are out, and she hasn't been around other kids for a couple of weeks. She seems just fine otherwise. Now she has little dry patchers of skin all over her legs, almost like little bites, but they are dry. They seemed to get better with a little lotion, but now they are spreading to her calves. Any ideas? I ate curry one day and chinese two days, so maybe it is an allergic reaction? She is still exclusively breastfed, but not for long!! Thanx in advance for any help. ------------------------------------------------------------------------ MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! Get a NextCard Visa, in 30 seconds! Get rates as low as 0.0% Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! http://click./1/2122/0/_/410002/_/953575279/ ------------------------------------------------------------------------ Give the Gift of Life Breastfeed! http://www.lactivist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 I found this on the web. Description: Azelaic acid is a naturally occurring saturated dicarboxylic acid with the chemical name of 1,7-heptanedicarboxylic acid and a molecular weight of 188.22. Azelaic acid is a dietary component of whole grain cereals and animal products. Clinical Pharmacology: The exact mechanism of action of azelaic acid is not known. The antimicrobial action may be attributable to inhibition of microbial cellular protein synthesis. Azelaic acid at high concentrations is bactericidal against Propionibacterium acnes and Staphylococcus epidermis and possesses bacteriostatic properties against a variety of aerobic microorganisms, including Staphylococcus aureus, Escherichia coli, Pseudomonas aeruginosa and Candida albicans. In vitro, azelaic acid acted as a scavenger of oxy radicals and inhibits a variety of oxidoreductive enzymes including 5-alpha reductase, the enzyme responsible for converting testosterone to DHT. Azelaic acid (0.1 to 3.0 mmol/l) has been shown to produce a competitive concentration dependent inhibition of 5-alpha reductase activity in homogenates of human foreskin. Azelaic acid is being studied for potential antimycotic and antiviral properties. The multiple actions of azelaic acid cause a normalization of keratinization and a decrease in the free fatty acid content of skin surface lipids. Pharmacodynamics: Following a single application to human skin, 3 to 5% of the azelaic acid penetrates into the strateum corneum (up to 10% is present in the dermis and epidermis). There is negligible cutaneous metabolism after topical application. Approximately 4% of topically applied azelaic acid is systemically absorbed and mainly excreted unchanged in the urine. The half-life is approximately 12 hours after topical dosing, indicating percutaneous absorption rate-limited kinetics. After topical treatment with azelaic acid, plasma concentration and urinary excretion are not significantly different from baseline levels. Contraindications: Azelaic acid solutions or lotions are contraindicated in individuals who have shown hypersensitivity to any of their components. Warnings: There have been isolated reports of hypopigmentation after use of azelaic acid, although there is no depigmenting effect on normal melanocytes. Precautions: If sensitivity or severe irritation develops with the use of Azelaic Acid treatment should be discontinued. The most common adverse reactions occurring in approximately 1-5% of patients were pruritis, burning, stinging and tingling, usually at the start of treatment and may last 5 to 20 minutes, especially if the skin is inflamed or broken. The adverse effects commonly subside if treatment is continued. Other adverse reactions such as erythema, dryness, rash, peeling, irritation and dermatitis were reported in less than 1% of patients. The following additional adverse experiences have been rarely reported: worsening of asthma, vitilago pigmentation, hypertrichosis and reddening (signs of keratosis pilaris). Note: azelaic acid will consistently lighten hyperpigmented skin (skin that is daker than normal for a given individual) but will not typically lighten skin beyond its normal color. Rarely, patients with dark complexions may notice hypopigmentation of skin. There are no systemic adverse effects. Considerations: Azelaic acid is normally found in the human diet and is not considered to be a carcinogenic substance. Mutagenicity studies are negative and animal studies have shown no adverse effects on fertility or reproduction. Human problems have not been reported during pregnancy. (unknown) What is azelaic acid? This is an abstract of a paper published last June. Thanks. Judi A comparison of topical azelaic acid 20% cream and topical metronidazole 0.75% cream in the treatment of patients with papulopustular rosacea. Maddin S Division of Dermatology, University of British Columbia, Vancouver, Canada. BACKGROUND: Although it is important for physicians to have sufficient clinical data on which to base treatment decisions, little comparative data exist regarding newer treatment modalities for rosacea. OBJECTIVE: The goal of the study was to compare the efficacy and safety of topical azelaic acid 20% cream and topical metronidazole 0.75% cream in the treatment of patients with papulopustular rosacea. Parameters of patient satisfaction to treatment were also assessed. METHODS: Forty patients with the clinical manifestation of symmetric facial rosacea were investigated in this single-center, double-blind, randomized, contralateral split- face comparison clinical trial. RESULTS: After 15 weeks of treatment, both azelaic acid and metronidazole induced significant, albeit equal reductions in the number of inflammatory lesions (pustules and papules). A significantly higher physician rating of global improvement was achieved with azelaic acid. Changes in the rosacea signs and symptoms of dryness, burning, telangiectasia, and itching were equal between treatments. A reduction in erythema tended toward significance with azelaic acid at week 15. A trace amount of stinging on application was noted with azelaic acid; however, such discomfort did not appear to concern patients because their overall impression of azelaic acid was superior to that of metronidazole. CONCLUSION: Azelaic acid 20% cream provides an effective and safe alternative to metronidazole 0.75% cream with the added benefit of increased patient satisfaction. -------------------------------------------------------- Please read the list highlights thoroughly before posting to the whole group. see http://rosacea.ii.net/toc.html When replying, please delete all text at the end of your email that isn't necessary for your message. To leave the list send an email to rosacea-support-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2000 Report Share Posted April 30, 2000 The vita oil can be smoothed around your newly washed, rinsed wet face--probably damp face if you have drier skin; after that dries, I apply a bit of sunscreen, and Rx topical; let dry and apply the zinc-o, which I find healing, good for reducing blotchiness--I can't use much oil or sunscreen because if I " apply generously and often " the way the sunscreen directions state, I break out like crazy! A little bit'll do me Carol Trish wrote: > > *Vita Oil and Zinc Cream* > > Does anyone know of the regime that was recommended by Dr.Sy when you use > the vita oil and Zinc cream. I was concerned after reading some of the > posts, that you should wait an extended time. Can anyone fill " us " in. > > ***How many people have seen a great improvement in your skin after using > these products? > Why does Zinc work? > > Thanks! > Tricia > > -------------------------------------------------------- > Please read the list highlights thoroughly before posting to the whole group. see http://rosacea.ii.net/toc.html > > When replying, please delete all text at the end of your email that isn't necessary for your message. > > To leave the list send an email to rosacea-support-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2000 Report Share Posted May 4, 2000 In a message dated 5/3/00 8:10:22 PM Pacific Daylight Time, rozi1@... writes: << I would like to know if the Zinc-cream we are using by Dr. Sy is potentially toxic? Does anyone have any concrete information of this subject? The zinc is working wonderfully! Any comments? >> It's safe. Completely totally safe. Enjoy. Zinc supplements in large doses can be toxic. Esther Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2000 Report Share Posted May 4, 2000 Please read the message I just posted. Sy M.D. Sy Skin Care http://www.lindasy.com Voice:Toll-free 877-sy (546-3279) FAX: Is the Zinc-Cream some of us are using dangerous? > > > I would like to know if the Zinc-cream we are using by Dr. Sy is > potentially > toxic? Does anyone have any concrete information of this subject? The zinc > is working wonderfully! Any comments? > > Tricia > *This is in response to a recent posting in which someone mentioned zinc to > be toxic. > > > > -------------------------------------------------------- > Please read the list highlights thoroughly before posting to the whole group. see http://rosacea.ii.net/toc.html > > When replying, please delete all text at the end of your email that isn't necessary for your message. > > To leave the list send an email to rosacea-support-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 Dear real estate person: Perhaps some of the posts seem lengthy and " unqualified, " but I think that a lot of us, including myself, are grateful for the time and effort that people put into sharing information of both their successes and their struggles. Many of us have tried several routes of treatment, and are eager or desperate to find alternatives for taking care of our own conditions, and not to be at the mercy of the few health care professionals who are even aware of this condition. It may seem trivial and vain to be putting energy into these posts, but if so, we are all guilty of this, as we have all subscribed to this list to address this condition, including yourself. And part of finding a treatment includes finding a cause -- hence the seemingly " grasping at straws " -- such is the nature of detective work. If you've found things helpful to you in the past, and are tired of listening to " unqualified " spouting off's (so to speak), perhaps you could share your experience, and what seems to have worked for you. Or you could limit yourself to the more " qualified " people at the national rosacea association -- not to discredit them, but they do take a more exclusively western medicine/scientific-research based approach. For myself, the success of those who are sharing their methods make them more qualified than any certified, registered, whatevered health professional I've encountered. By the way, I didn't respond to the sleeping on the left or right cheek theory, but just for your information, I spent a good 3 weeks enduring a rash from head to toe because of too much detergent used in one washing. Just one washing. So, I think people examining things like detergents and fabrics against their skin is worthy of mention. People did think the world was flat at one time, and imagine how kooky they thought the people were who thought it was round. Go figure. In any event, I hope you reach some kind of resolution with this issue so that it causes you less stress. Regards, Chantal Jolly (health practitioner who has worked for the past 8 years with brain injured adults, adults with severe psychiatric conditions, and terminally ill people -- I don't forget that there are worse things that can happen, but it doesn't prevent me from trying to take care of the body, mind, and spirit I've been blessed with in this life. On the contrary, it makes it my obligation.) (unknown) > There was a time when this support group was an absolute God-send,whose purpose was to disseminate helpful treatment information andemotional support for rosacea sufferers. To all those who have sokindly helped me in the past, you have my undying gratitude and love. Lately, however, the majority of posts have seemed to consist ofridiculous, know-it-all, unqualified practitioners stating ludicroustheories and hypotheses, people telling of far-fetched andmeaningless personal histories and experiences that have absolutelyno bearing on anything, or embarrassingly stupid theories ( " Do youthink that because I sleep more on my left side than on my right Icould be exacerbating my rosacea? Please tell me your opinion. " ) Geez! Can we please get back to the intent of this board and stopposting just so we can see our name(s) in print?! Get a life! Getsome perspective! Go volunteer at a local children's hospital andsee what true sickness and illness is all about! See how innocentchildren, no matter how dire their con > > > > -------------------------------------------------------- > Please read the list highlights thoroughly before posting to the whole group. see http://rosacea.ii.net/toc.html > > When replying, please delete all text at the end of your email that isn't necessary for your message. > > To leave the list send an email to rosacea-support-unsubscribeegroups > > -------------------------------------------------------- Please read the list highlights thoroughly before posting to the whole group. see http://rosacea.ii.net/toc.html When replying, please delete all text at the end of your email that isn't necessary for your message. To leave the list send an email to rosacea-support-unsubscribeegroups ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 What said!!!!!!! Noreen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 In a message dated 6/13/00 8:05:26 PM Eastern Daylight Time, chantaljolly@... writes: << ves for taking care of our own conditions, and not to be at the mercy of the few health care professionals who are even aware of this condition. It may seem trivial and vain to be pu >> I agree with you! I beleive that if the health care professionals were interested in helping us we might not have to come to our own stupid conclusions as the unknown poster has reffered to them because they would be searching every avenue as we have tried to. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 At the risk of being told my post is lame I will proceed anyway! I recently read the book Joy-Full Holistic Remedies by Georgie Holbrook...she tells of her experience with rosacea and her path way to full recovery. It is not a book that deals with lots of physical things you change (diet and such) but there is some of that...it is more of a spiritual book. Looking inside to your inner spirit for answers. For me I found it encouraging and since I do believe in miracles of healing her experience just confirmed to me that healing of rosacea is possible for all. When this disease first showed it's awful symptoms I didn't handle things well....my life sorta spiraled down the drain. Even though derms gave me no hope and only offered drugs to help with the depression/anxiety (panic attacks) inside a small voice kept saying there has to be a way out of this. Georgie's book also reflects this same thing...I truly think that most if not all on this group are hearing that same thing and you have a never give up attitude! I have benefited from some of the exercises in the book and would recommend it....she put into words in the first few chapters exactly what I would have said...just hearing another express it brought emotional healing to me. Just wanted to share, Darlene Oh, and God Bless each and every one of you....I would have gone insane without this group 2 years ago. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 Actually, that's the least useful post I've seen yet. I'm grateful for the info I've received over the past few weeks, and simply skim over the posts that don't relate to me, and contribute to those that do. I don't think anyone has paralleled having rosacea with having, say, leukemia, but it is a real condition that causes discomfort and grief to a lot of people. I'm sure no one here would have an " oh well, that's life " attitude regarding sick children in hospitals. Where did that come from? If you don't find the posts useful anymore, perhaps you could click on the blue link at the bottom of all the posts that says To leave the list send an email to rosacea-support-unsubscribeegroups (unknown) > There was a time when this support group was an absolute God-send,whose purpose was to disseminate helpful treatment information andemotional support for rosacea sufferers. To all those who have sokindly helped me in the past, you have my undying gratitude and love. Lately, however, the majority of posts have seemed to consist ofridiculous, know-it-all, unqualified practitioners stating ludicroustheories and hypotheses, people telling of far-fetched andmeaningless personal histories and experiences that have absolutelyno bearing on anything, or embarrassingly stupid theories ( " Do youthink that because I sleep more on my left side than on my right Icould be exacerbating my rosacea? Please tell me your opinion. " ) Geez! Can we please get back to the intent of this board and stopposting just so we can see our name(s) in print?! Get a life! Getsome perspective! Go volunteer at a local children's hospital andsee what true sickness and illness is all about! See how innocentchildren, no matter how dire their con > > > > -------------------------------------------------------- > Please read the list highlights thoroughly before posting to the whole group. see http://rosacea.ii.net/toc.html > > When replying, please delete all text at the end of your email that isn't necessary for your message. > > To leave the list send an email to rosacea-support-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 Noreen. I'm agreeing with and talking about what the unknown poster said. :0) Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 I don't usually get in the middle of these things, but this recent post struck a particular nerve. Lately, however, the majority of > posts have seemed to consist ofridiculous, > know-it-all, unqualified practitioners stating > ludicroustheories and hypotheses, people telling of > far-fetched andmeaningless personal histories and > experiences that have absolutelyno bearing on > anything, or embarrassingly stupid theories Well, some of the most important discoveries began as ludicrous theories (a mold to cure infections? Puhleeeze!). And when you're dealing with a condition as curious as rosacea, sometimes you have to try every avenue to find something relelvant and helpful. Perhaps we may seem to you to ask some crazy or ridiculous questions, but it's because we don't know the answers already. If you do, we're all ears... ( " Do > youthink that because I sleep more on my left side > than on my right Icould be exacerbating my rosacea? > Please tell me your opinion. " ) Um, yeah, it certainly could, esp. if you're prone to allergies, say to laundry detergents or even accumulated dust and other sundry airborne particles that can cause the immune system to mount an attack. Many people have worse symptoms on one side of the face than the other. The friction of moving around at night on the pillows can also exacerbate symptoms like flushing and genreral irritation or inflammatory papules. Geez! Can we please > get back to the intent of this board and stopposting > just so we can see our name(s) in print?! I think this is the intent of this board--to ask for the support and advice of fellow sufferers and, in our lucky case, the guidance of two professionals. What we're doing right now, however--THIS is not the intent of this board. Get a > life! Getsome perspective! Go volunteer at a local > children's hospital andsee what true sickness and > illness is all about! See how innocentchildren, no > matter how dire their condition, never seem to > complainor be down-spirited. Whoa there, honey! I don't know what clinic you've been volunteering at, but that ain't always the way! Having been a hospitalized child myself--had rheumatoid arthritis diagnosed as a toddler, used to sit on the floor and howl and tear out my hair because my wrist hurt so much and had begun to freeze in place, doctors tried to prepare my mother for raising a crippled child, barring the miracle that obviously occurred--I can tell you that we ain't all sweetness and light. Children certainly suffer, too, they just don't have the cognitive maturity yet to understand what's happening to them or two articulate complex feelings about it. That's fine when you're a child. But as an adult, you need to express and understand those feelings because you're going to be experiencing something far more complex than what a child experiences. I don't think your comparison is accurate. Then realize how lucky > you/we are that we " only " have rosacea, that we, at > least, survived to adulthood and ourcondition is not > life-threatening, and that we can afford a > computeron which to correspond and post, whereas so > many others cannot. Survived to adulthood?! In the 21st century, with the increasing sophistication of our health care and health research, I should think we should expect a little more than that. And, no, rosacea is not life-threatening, but it does threaten the quality of life. Isn't that just as important? Should we really settle for just, " I'm glad to be alive " or should we keep reaching for improvement? I'm for the latter. The former is stagnation. And by the way, I can't afford a computer. I use my terminal at work. It's borrowed time for me, honey... I'm happy to hear you've found quite a bit of support and many good suggestions from this board. But I'm disappointed to hear you belittling so many who have helped you. That's biting the hand that feeds you, and I don't appreciate it. If you are unhappy about what's being discussed, perhaps you need to find another forum that meets your standards. We won't miss you. Loomis __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 This was the response I got. Just wanted to forward it to the group so we know what kind of person we're dealing with here. Sad, isn't it? For now, though, I think we should be done with this issue. We have more important issues to tackle. --- Loomis wrote: > I've received 16 e-mails already thanking me for my > honesty and ability > to say what so many are too embarrassed to say. The > only contrary > e-mails have been from the likes of you and the two > or > three others > whose lives are obsessed with the site and who find > the need to post > SIX > or SEVEN times per day! Support is > critical--listening to the inane > theories or advice of people who have no lives (like > you) is not. > Maybe > you get your thrills by posting ten times per > day--we > who have been > helped and desire to help others are tired of > sifting > through your > garbage in order to get to those in need. > Seriously, > find something > other than the internet to give your life some > meaning. I'm sorry for > your childhood malady, but, if nothing else, I would > hope that it would > have given you some proper perspective on just what > is > important in > life. Good luck. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 >> Lately, however, the majority of posts have seemed to consist ofridiculous, know-it-all, unqualified practitioners stating ludicroustheories and hypotheses, people telling of far-fetched andmeaningless personal histories and experiences that have absolutelyno bearing on anything, or embarrassingly stupid theories > > To the above post: You had indicated to me in previous posts that you come from a family of doctors who are dermatologists. Are you, by chance, angry because some of us have indicated our doctors/dermatologists have not been able to help us and you are taking this personally? You say to go out and " get a life. " I believe I told you in a previous post that there are some who are unable to go out because our rosacea (or whatever it is we have) has made going out impossible until we get a resolution. A number of us are going through extensive series of tests; these take time and we are trying to be patient. Some have skin so sensitive that a breeze or any lighting causes pain and illness! I think you must be equating your stage of rosacea with everyone else's and that is obviously not the case. We have different triggers, are in different stages and are trying to cope and find answers. People come and go from this group all the time as they have tests, try products, light therapies, etc. These things take time. I suggest you have found all of your answers and no longer need to be a part of this group. This is a support group and there really is no room for people who can only belittle and insult other human beings. Your perceptions say a lot about you as a human being. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 I think so! All we're doing here is proposing theories, things that seemed to have helped/or aggravated this condition. and...let's FACE it, appearance in our somewhat sick culture is important. So, my impression is that we stay very well on track with helpful hints and suggestions...by the way; I'm in my fifties and haven't been going through this life unscathed--perhaps none of us has; but we're here because we like to share ideas/remedies/opinions! I'm glad you've found some of it helpful, and I have too! Best regards, Carol jabrealestate@... wrote: > > There was a time when this support group was an absolute God-send,whose purpose was to disseminate helpful treatment information andemotional support for rosacea sufferers. To all those who have sokindly helped me in the past, you have my undying gratitude and love. Lately, however, the majority of posts have seemed to consist ofridiculous, know-it-all, unqualified practitioners stating ludicroustheories and hypotheses, people telling of far-fetched andmeaningless personal histories and experiences that have absolutelyno bearing on anything, or embarrassingly stupid theories ( " Do youthink that because I sleep more on my left side than on my right Icould be exacerbating my rosacea? Please tell me your opinion. " ) Geez! Can we please get back to the intent of this board and stopposting just so we can see our name(s) in print?! Get a life! Getsome perspective! Go volunteer at a local children's hospital andsee what true sickness and illness is all about! See how innocentchildren, no matter how dire their condition, never seem to complainor be down-spirited. Then realize how lucky you/we are that we " only " have rosacea, that we, at least, survived to adulthood and ourcondition is not life-threatening, and that we can afford a computeron which to correspond and post, whereas so many others cannot. Findsome perspective and stop obsessing about rosacea. Please...aswonderful as this post has been, turn off your computer for a weekand forget about this post! We must start living a life that isn'tconsumed, first and foremost, with rosacea! Can we please returnthis post to its original intent? > > -------------------------------------------------------- > Please read the list highlights thoroughly before posting to the whole group. see http://rosacea.ii.net/toc.html > > When replying, please delete all text at the end of your email that isn't necessary for your message. > > To leave the list send an email to rosacea-support-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 This is crazy. We are not going to stop posting things just so you can only talk about what might help you. Everyone is different. Someone really got help by asking about sleeping on one side of the face. Maybe they did not realize it could be detergent. Maybe it really helped them. Ive been with this group a long time. I have not seen such negativity until you did this. please stop so we can get back to helping each other. Patty Loomis wrote: > > I've received 16 e-mails already thanking me for my > honesty and ability > to say what so many are too embarrassed to say. The > only contrary > e-mails have been from the likes of you and the two or > three others > whose lives are obsessed with the site and who find > the need to post > SIX > or SEVEN times per day! Support is > critical--listening to the inane > theories or advice of people who have no lives (like > you) is not. > Maybe > you get your thrills by posting ten times per day--we > who have been > helped and desire to help others are tired of sifting > through your > garbage in order to get to those in need. Seriously, > find something > other than the internet to give your life some > meaning. I'm sorry for > your childhood malady, but, if nothing else, I would > hope that it would > have given you some proper perspective on just what is > important in > life. Good luck. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 Does anyone else see the irony in this post?? I really don't see anything wrong with the group at all. What do you expect people to post?? Everyone is different, I can tell you're not from Canada because you expect everyone to post the same way. If someone wants to post about their arm, or their leg, so be it! It's a support group for cripes sakes. What exactly do you want people to talk about?? I fail to see any reasoning for your post at all, instead it made a non-existant situation into a completely ironic post by yourself. Let it be. If you want to go outside and frolic in the sun, go ahead, we all aren't as fortunate as you I guess. Tell us oh great one, what should we be posting. (unknown) > There was a time when this support group was an absolute God-send,whose purpose was to disseminate helpful treatment information andemotional support for rosacea sufferers. To all those who have sokindly helped me in the past, you have my undying gratitude and love. Lately, however, the majority of posts have seemed to consist ofridiculous, know-it-all, unqualified practitioners stating ludicroustheories and hypotheses, people telling of far-fetched andmeaningless personal histories and experiences that have absolutelyno bearing on anything, or embarrassingly stupid theories ( " Do youthink that because I sleep more on my left side than on my right Icould be exacerbating my rosacea? Please tell me your opinion. " ) Geez! Can we please get back to the intent of this board and stopposting just so we can see our name(s) in print?! Get a life! Getsome perspective! Go volunteer at a local children's hospital andsee what true sickness and illness is all about! See how innocentchildren, no matter how dire their condition, never seem to complainor be down-spirited. Then realize how lucky you/we are that we " only " have rosacea, that we, at least, survived to adulthood and ourcondition is not life-threatening, and that we can afford a computeron which to correspond and post, whereas so many others cannot. Findsome perspective and stop obsessing about rosacea. Please...aswonderful as this post has been, turn off your computer for a weekand forget about this post! We must start living a life that isn'tconsumed, first and foremost, with rosacea! Can we please returnthis post to its original intent? > > > > > -------------------------------------------------------- > Please read the list highlights thoroughly before posting to the whole group. see http://rosacea.ii.net/toc.html > > When replying, please delete all text at the end of your email that isn't necessary for your message. > > To leave the list send an email to rosacea-support-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 Somebody get this moron off the group please, this isn't what this is for at all. Re: (unknown) > Try getting a life! It's obvious from the frequency of your posts that > the only life you have is on the internet! How many times do you check > in daily--seven, eight, nine? Your stupidity of content is only > compounded by your frequency of posts! Save posting for those in > serious need! " Gee, I got an e-mail from a total moron--will my rosacea > get worse? " Don't e-mail me again! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2000 Report Share Posted July 6, 2000 Yes, I have used Dynacin. It worked very well for me. (My insurance has recently changed, to an HMO, so can no longer request name brand meds., unless I want to pay the cost myself.) I now have to use generic Minocycline, which doesn't work as well for me. Cyd > Has anyone used the antibiotic Dynacin, I think it is a product of > Minnocycline?? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2000 Report Share Posted July 9, 2000 sherri if your welts appear an disappear they are welts if they stay on your face and do not go away for a week or two i get them maybe 1 a year then its probably from the rosacea just take a benadryl and if it goes away its an allergic reaction if not its rosacea. carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Naomi, My skin likes the warmer months better also. The very cold months dry my skin out badly. I don't like the very hot days (90 deg +) either because I get in and out of a car and am in the sun all day and the persperation and subsequent oiliness sometinmes causes flare ups. It's much better this year now that I am on Noritate. 70 Degree days with a little cloud cover are the perfect days. -Mike McNeill --- Naomi wrote: > Hi all > Just wondering whether anyone else is similar to me, > ofcourse we are each individual with rosacea but > just > thought I'd see if my symptoms tallyed with anyone > elses. > During the winter with the central heating my skin > was > unbearable. > Since having a few (must emphasise the few as live > in > England!) hot sunny days we've had he hotter I get > my > skin seems to " perspire " and my face feels cool all > the time- odd isn't it? > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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