Hello

[Guest guest]

Hi ,

My name is , I am thirty nine years old and was only

diagnosed properly with CMT two years ago. At the end of your

message you stated you wanted to enjoy life again. This has

been my aim for the past ten years as this is the amount of time

my CMT has restricted me from what I call a " normal " life. I have

only just discovered that I can enjoy and be part of life again as

long as I am prepeared to take life at a slower more relaxed

pace and accept my limitations. This will take practice .

This is a perfect sight to get inspiration and courage to deal with

CMT.

Ciao

Palombo

> Hi, my name is and I was diagnosed with CMT when I

was 4 years

> old (I'm 24 now). I am not sure what type I have. My father has

CMT,

> but his case is not as severe as mine. One doctor told us that I

had

> Type 1 and that my father had type 2, another said that we were

both

> type 2, and another said that he wasn't sure which type we

were! It's

> frustrating to say the least and I don't have much faith in

doctors.

> I've had 4 surgeries: 2 biopsies, and 2 ankle fusions. I've been

> wearing AFOs on both legs since the age of 4 (my father

doesn't need

> braces). I've also developed arthritis in my right foot and am

taking

> Celebrex. I was surprised to learn that fatigue was common for

> CMT'ers, that explains a lot. I always thought that I had Chronic

> Fatigue Syndrome and was often told that I was lazy and sleep

too

> much. The problem is that I often feel like I have no energy

> whatsoever. My physical limitations have increased over the

last few

> years. When I was younger, I was pretty active, and I enjoyed

> swimming, bike-riding, walking, etc. Going up and down stairs

was a

> chore, but I still did it. These days, I cannot walk without a cane,

> going up and down stairs has become very, very, difficult. If

there

> is no hand-rail, well, then forget it! Stepping up onto the

sidewalk

> was not a problem, but today, I need to lean on someone to

step up

> onto the sidewalk.

> My lifestyle has become less active, and I really hate that!! I

know

> that I need to take charge, but right now I just don't have the

fight

> in me. I want to enjoy life again...

>

> I am happy to find this list. I've never met anyone with CMT

other

> then my father.

>

> ciao!

>

>

[Guest guest]

Hi ,

I am pretty new to the group too. My father has what we believe to be CMT

(he is pretty much confined to a wheelchair) and I am about to be tested for

it as I have been exhibiting the same symptoms that he started out with. He

has had the biopsies, EMG/NC, CTR etc., but they have never given him a name

for his disease and he is just too tired to go through any more just to have

a name. I, unfortunately, need to know, especially as it is hereditary and

I have three children. AS for the type 1 and type 2, I went thru the same

thing about diabetes. I was first diagnosed with type 1, then they decided

it was type 2, etc. As oral meds are working, I must assume that it is type

2, otherwise I would require insulin. Anyways, I know that it is difficult

to have faith in doctors some times. But believe it or not, it gets better

in that category as you get older. They tend to believe you more and will

very often take your advice. Your best defense is to be well-armed when you

go in there. At least sound informed and you will usually be treated with

more respect. Of course, that won't work with EVERY Doctor, but it's worth

a try. I used to have a problem getting a doctor to take me seriously and I

would leave their office mad at him and mad at me, because I was intimidated

by them. I finally realized that they are human beings, just like us. They

just happen to be a bit better educated than me. Which is why I make an

attempt to diagnose myself before I go in to the doctor, research my

problem, and then ask him, " So Doc, what do you think? " Most of them

appreciate it, it saves them time and nobody knows you like you do yourself.

Not all doctors are appreciative, but most will be.

At any rate, I hope that you will find as much enjoyment and learn as much

from this site as I have.

WELCOME!!!

B.

----- Original Message -----

From: <sarahlabara@...>

< >

Sent: Tuesday, May 22, 2001 2:08 PM

Subject: [] hello

> Hi, my name is and I was diagnosed with CMT when I was 4 years

> old (I'm 24 now). I am not sure what type I have. My father has CMT,

> but his case is not as severe as mine. One doctor told us that I had

> Type 1 and that my father had type 2, another said that we were both

> type 2, and another said that he wasn't sure which type we were! It's

> frustrating to say the least and I don't have much faith in doctors.

> I've had 4 surgeries: 2 biopsies, and 2 ankle fusions. I've been

> wearing AFOs on both legs since the age of 4 (my father doesn't need

> braces). I've also developed arthritis in my right foot and am taking

> Celebrex. I was surprised to learn that fatigue was common for

> CMT'ers, that explains a lot. I always thought that I had Chronic

> Fatigue Syndrome and was often told that I was lazy and sleep too

> much. The problem is that I often feel like I have no energy

> whatsoever. My physical limitations have increased over the last few

> years. When I was younger, I was pretty active, and I enjoyed

> swimming, bike-riding, walking, etc. Going up and down stairs was a

> chore, but I still did it. These days, I cannot walk without a cane,

> going up and down stairs has become very, very, difficult. If there

> is no hand-rail, well, then forget it! Stepping up onto the sidewalk

> was not a problem, but today, I need to lean on someone to step up

> onto the sidewalk.

> My lifestyle has become less active, and I really hate that!! I know

> that I need to take charge, but right now I just don't have the fight

> in me. I want to enjoy life again...

>

> I am happy to find this list. I've never met anyone with CMT other

> then my father.

>

> ciao!

>

>

>

>

>

[Guest guest]

Hello !

Thank you so much for e-mailing me. My Mom talked to my brother last night. (

He is just returning from the beach). He is a lot more like himself again.

Not as scared just has a lot of questions. He goes back to the doctor on the

7th. Mom said something about maybe a spinal tap? I have been telling him

about all of you and my hope is that he will join the group soon. I have also

told Brad that we all do need to take care of our selves anyway. With or

without CMT. I live that not DISabled but just DIFFERENTLYabled expression. I

will definitely use that in the future!! LOL

Hugs,

[Guest guest]

I donot know where the chat room is!!!!!!!!!!!!!!!!!!!!

--- lauracraig07@...

> wrote:

>When is everyone going to be in the chat room???? When I go into it-

>it says chatters and there is no name under it...when will people be

>in there......like what time???

>

>

>

>

>

>

> Foundation: http://www..org

>

>

>

[Guest guest]

,

Welcome to our family! I hope that you ask whatever questions you have. We

have some wonderful people here to help you find answers, if they can. Where

do you live? I live in Delaware.

[Guest guest]

Thanks for the welcome! I live in California.

>From: leggylindars@...

>Reply-

>

>Subject: Re: [] hello

>Date: Wed, 12 Dec 2001 13:46:06 EST

>

>,

>Welcome to our family! I hope that you ask whatever questions you have. We

>have some wonderful people here to help you find answers, if they can.

>Where

>do you live? I live in Delaware.

>

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

Hello June

Welcome to this small but growing group. I hope you

find, as I did, the warmth and companionship of this

" community " . We are all in the same boat in some

degree. Gretchen is the coordinator and everyone else

pitches in to answer any questions you may have about

ANYTHING you want to ask. If you are feeling down

just come and tell us. If you have had a good day or

good news share it with us. We all are here for each

other.

Welcome again!

Susie

--- swain62 <june@...> wrote:

> dear all i'm june just to say your group is reat and

> i'm pleased to

> be able to join iit yours june swain

>

>

__________________________________________________

[Guest guest]

Do you still live on or near an air force base in FL. My son works at

Hurlbert Field and my daughter-in-law at Eglin AFB, both in northern FL. I

am going there March 21. Maybe we can meet.

Joan

[Guest guest]

Hi Toby - As an AFO wearer - you will find that they are a great help. I have

worn mine now for two and a half years and just finished designing my second

pair (I thought of bright pink with silver and purple racing stripes - but

settled on beige). They not only help keep me from falling all the time, but

for the first time in a long time I am not twisting my ankles every ten minutes,

I only wish I had started wearing them before I did.

Craftylin

Toby son <toby_stevenson@...> wrote: Hello to the group

My name is Toby, I'm 27 and was diagnosed with CMT at

age 7. My father had already known for several decades

that he had CMT, so it wasn't a shock when one of

three children turned up with it.

I'm very lucky that it seems to run quite mildly in my

family, and I'm not as badly afflicted as my father

was at my age. I have a minimal amount of clawing in

my feet, my hands are a little weak, but still quite

serviceable. I've had a couple of numb patches on my

legs in the last couple of years. Overall quite minor

symptoms.

I'm really here just to learn more about CMT, and to

become more aware of things to watch for, and possible

treatments. I'm considering getting AFO in a couple of

years time, as I'm starting to turn my ankles with a

little more frequency then I used to.

Toby

______________________________________________________________________

Find, Connect, Date! http://personals..ca

[Guest guest]

Welcome to the group, Toby. I recently joined myself. My husband and 3 year

old son have CMT. So far, my son is showing minimal symptoms, but we do

realize that can change. My husband has all the typical symptoms, hands,

ankles, fatigue, but he's managed to be a massage therapist for the last 10

years so we're crossing our fingers he holds out. lol

[Guest guest]

> My flushes have not produced many stones.

> But, those little thingys that look like seeds..

> are they flukes? Lordy, who knew?

>

> Thank you all !!

>

>

, What color are the " little thingy's " :-)

I have passed flecks of yellow, which is just chaff,

lots of it the first flush I did, not so much the second

a couple months back.

L. Meydrech, CN

http://nutritionist.tripod.com/gallbladder.html ~ My Flushes

HerBulletin

FREE Health Analysis:

http://www.mynsp.com/web/meydrech/healthAnalyzer.jsp

mailto:claudiameydrech@...

" A cheerful heart is good medicine " Prov. 17:22a

[Guest guest]

--- In gallstones , " L. Meydrech " <claudiameydrech@c...>

wrote:

> > My flushes have not produced many stones.

> > But, those little thingys that look like seeds..

> > are they flukes? Lordy, who knew?

> >

> > Thank you all !!

> >

> >

>

> , What color are the " little thingy's " :-)

> I have passed flecks of yellow, which is just chaff,

> lots of it the first flush I did, not so much the second

> a couple months back.

>

> L. Meydrech, CN

~~~~~~~

Hi ,

The seeds (chaff?) are a tan/yellow color, shaped like a tiny watermelon seed.

And yes, in the first flush a lot of them, not as many this time.

I have not done a parasite cleanse. There are so many to chose from, any

suggestions? I do have occasional bouts of IBS, I do not want to do anything

to set that off.

Thanks

http://nutritionist.tripod.com/gallbladder.html ~ My Flushes

> HerBulletin

> FREE Health Analysis:

> http://www.mynsp.com/web/meydrech/healthAnalyzer.jsp

> mailto:claudiameydrech@c...

> " A cheerful heart is good medicine " Prov. 17:22a

[Guest guest]

> Hi ,

>

> The seeds (chaff?) are a tan/yellow color,

>shaped like a tiny watermelon seed. And yes,

>in the first flush a lot of them, not as many this time.

, it would be interesting to see if they crumble

like the stones do, if they are a parasite, they will be

" tougher " I should think. Maybe they are flat cholesterol

fat type stones, but it's hard to say without seeing.

>I have not done a parasite cleanse. There are

>so many to chose from, any suggestions?

I am biased I guess because I've been using and

selling for the same company for over 15 years, and

like the parasite cleanse they have...it is mentioned on

my web page re my flushes in the signature lines (I'll

be updating that page over the next couple days to make

it easier to follow, it's getting a bit choppy :-)

>I do have occasional bouts of IBS, I do not

>want to do anything to set that off.

I also got that under control...was really suffering from it

over the past two years, related to my messed up GB

and digestive system. I have a regimen that works great

now.

Before a meal that has some fat in it, I take 2 Intestinal

Soothe, 2 Fat Grabbers, and 1-2 Proactizyme (digestive

enzymes). I can send you links to them if you are

interested...but that has improved things so much when

I remember to take them...and the consequences of

forgetting keep me remembering :-)

L. Meydrech, CN

http://nutritionist.tripod.com/gallbladder.html ~ My Flushes

HerBulletin

FREE Health Analysis:

http://www.mynsp.com/web/meydrech/healthAnalyzer.jsp

mailto:claudiameydrech@...

" A cheerful heart is good medicine " Prov. 17:22a

[Guest guest]

I'm surprised you are on all the drugs as I have PPMS as well and the only

drug they offered to me was solumedrol... which wreaks havoc on the immune

system (so I declined) -- not to mention, does nothing long term for PPMS.

Anyway, let me know of your impressions of any of these drugs... I will

attest to LDNs greatness, and I recommend it highly. Good luck

On Fri, 11 Jul 2003, Tee wrote:

> Hi, I'm new here, have been lurking the past few days... trying to absorb what

everyone is sharing here about LDN.

>

> I have PPMS, I'm on Betaseron, Imuran, Novantrone (Chemo every 3 months) and

Solu-Medrol (1gm via IV monthly), and a host of other drugs to keep my MS under

control.

>

> My next appt. with my MS Specialist is the 24th of this month. I'll def. be

asking him about LDN. I'll also be doing more research to be prepared for my

visit. Anywhere you can lead me to on the net or by your own information that

will help me be prepared, will be greatly appreciated.

>

> I'm so glad that I've found this group.

>

> Tee

[Guest guest]

My MS Spec. believes that *something* is better than *nothing*, so he put me

down (for ins. purposes) as SPMS so I my ins. would pay for the Betaseron and

other drugs.... 'cause as you know.. for us PPMS'ers, there ain't much they'll

give us or that ins. will cover. I'm very thankful for the Neuro that I have.

He is caring and compassionate and like I said, believes that everyone should

have a shot at slowing the progression.

My MS progressed so rapidly that it startled even him. I've been on Chemo since

Sept. of 2000 and once a month IV SM since about the same time, maybe a bit

before. So far, I'm holding my own.. progression has slowed and I believe, with

the Novantrone, it's the only reason I'm still as mobile as I am.

Thank you for the recommendation of the LDN.. I'm surely going to check into it

and see if it's something he will give to me... maybe it'll be my next " miracle "

drug since my time is running out on the Novantrone.

Tee

----- Original Message -----

From: " G. Harding " <philh@...>

" Tee " <tchapman@...>

Cc: <low dose naltrexone >

Sent: Friday, July 11, 2003 6:14 PM

Subject: Re: [low dose naltrexone] Hello

I'm surprised you are on all the drugs as I have PPMS as well and the only

drug they offered to me was solumedrol... which wreaks havoc on the immune

system (so I declined) -- not to mention, does nothing long term for PPMS.

Anyway, let me know of your impressions of any of these drugs... I will

attest to LDNs greatness, and I recommend it highly. Good luck

On Fri, 11 Jul 2003, Tee wrote:

> Hi, I'm new here, have been lurking the past few days... trying to absorb what

everyone is sharing here about LDN.

>

> I have PPMS, I'm on Betaseron, Imuran, Novantrone (Chemo every 3 months) and

Solu-Medrol (1gm via IV monthly), and a host of other drugs to keep my MS under

control.

>

> My next appt. with my MS Specialist is the 24th of this month. I'll def. be

asking him about LDN. I'll also be doing more research to be prepared for my

visit. Anywhere you can lead me to on the net or by your own information that

will help me be prepared, will be greatly appreciated.

>

> I'm so glad that I've found this group.

>

> Tee

[Guest guest]

What a great post.

Yes, the extra cup of coffee, an extra long sleep - nothing works. It is so frustrating.

You sound great, so full of spunk! Do you have FIVE kids?

Sunday ()

-----Original Message-----From: naturalbeauty38 [mailto:naturalbeauty38@...]Sent: Dienstag, 15. Juli 2003 23:48 Subject: Hello

Wow this group has been so busy since I was away. I am happy to see so many new girls posting too, awesome! I got home from my trip on Sunday but then had to work and stuff so I have been super biz and not enough time to write much. We had a fantastic time in California though I am a bit tired. We were so busy everyday, squeezing allot of things into the trip and with 5 kids it was active I tell ya! Ha, anyhow I just wanted to comment on the brain fog, wow when I read all of your descriptions it brough it all back to me how miserable I was when I was so sick. Sometimes I think i actually forget how bad it was now that it is gone.Anyhow, it was def not depression to anyone thinking that is the answer. I had it bad and trust me I wanted so desperately to keep the implants that when the 1st Dr I saw said I was depressed I was more than willing to take the anti depressants and give them time to kick in, I tried all the newest best ones with supposed less side effects and not one helped me at all, in fact I would say they just made me feel worse, they made me even more spacey and more sick than I was already. I even stayed on some of them a good 3 months to see if it would help, but it never did. I tried Celexa, Wellbutrin, lexapro, and serzone, and none of them worked! EVER. So no I don't believe I had clinical depression at all, it seemed like messing with the chemicals in my brain just made the brain fog or whatever it was worse. I had an MRI and it was normal, in fact other than my ana all my tests were always normal. I was depressed in many ways yes, for sure, but not 1st, the sickness came and that was followed by the depression over the illness, not the other way around. It should have been an exciting happy time in my life, things were all really starting to look up for me, I had finally got the boobs I was wanting, I was newly single and starting to date, I was in the prime of my life, but one day I started getting achy, the next day I was dizzy, and then it all just never went away. I kept thinking too that if I could just sleep it would feel better, or having that extra cup of coffee to wake up, it just never worked. I never felt better, it never eased till much after explant for me.The sunglass thing that Patty mentioned really caught my attention too because I also had that, you felt like the light was too bright but when you would put on sunglasses it made it too dark, so I too was constantly putting them on, taking them off, I could not get it right! It was crazy. I remember looking down the long halls of the hospital where I worked and everything was blurry and crazy looking, like i was high on some crazy drugs, it was the weirdest feeling in the world!I also realized that florescent lights made it worse, and would have to literally run through the grocery store to buy groceries because it made me feel like i was trippin on LSD or something. NO ONE HAS EVER TOLD ME WHAT THIS IS THAT CAUSES THIS. I have no idea of the actual physical cause that makes the brain get like this, and I have never had a good answer. I have theories, but none of them are for sure. I think that the toxins released into the body do something to the chemistry of the brain. I also know that yeast can release ethanol into the body, and that can make you feel intoxicated, so maybe it is both those things. When I spoke with Dr Fengs office they made it clear that neurological issues were pretty common in implant illness. Anyhow, whatever it was I can say that it is gone now. I think since explant and since about 6-12 months of healing I have only experienced very mild brain fog a few times. Once after flying on a plain, and maybe a few other times of over doing or not enough sleep. Also some sleep meds like trazadone make me spacey. So the depression thing I do not believe is what we are talking about. I too had my eyes checked when I was at the peak of my illness and they were normal I was told. I have good eyes and now they seem totaly fine. The thing was I could tell it was not really my eyes anyhow, it was something deeper if that makes any sense.Anyhow, I not too happy to say that I am experiencing heel pain again in my left foot, so tomorrow I am going to see about adjusting my orthotic. I just don't know why I cannot seem to permanently kick this darn heel thing. I do know that I overdid the walking on my trip so that may be a part of it too.Other than that I am good, just tired is all.hugs to every one and esp the newbies

[Guest guest]

YES I do have lots of spunk, we had a fun trip and girl this trip is

just another of the many reminders of the things I can do now! We

went to two huge amusement parks with all the big wild rides and I

rode them all, something I KNOW I COULD NOT HAVE DONE WHEN I WAS SICK

with implants, no way. My brain and body could not have handled it.

We had a tough tight schedule too, we were up early everyday and

traveling, in a motor home, with 5 kids(not all mine) my hubby has 4

two from his previous wife and two adopted from the Ukraine, and then

I have one from my previous marriage, anyhow, we were up and rolling

everyday. we opened the amusement parks and shut them down ha ha. I

rode every twisted coaster at least 3 times a piece, what a blast and

so much fun. One coaster is a flying coaster, you actually lay down

and they strap you in this harness so you don't fly off the thing

when it turns you upside down about 6 times, I loved it! Anyhow I

really am happy to be able to live life again. The thing that amazed

me is that we were in California and I did not see as many implanted

women as I thought I would. Interesting to me, maybe they are all at

home and can't ride coasters( ya never know)

At any rate it was an awesome trip and I had a ton of fun.

hope your doing well!

Hugs

wrote:

> What a great post.

> Yes, the extra cup of coffee, an extra long sleep - nothing works.

It is so

> frustrating.

> You sound great, so full of spunk! Do you have FIVE kids?

>

> Sunday ()

>

>

>

> -----Original Message-----

> From: naturalbeauty38 [mailto:naturalbeauty38@y...]

> Sent: Dienstag, 15. Juli 2003 23:48

>

> Subject: Hello

>

>

> Wow this group has been so busy since I was away. I am happy to

see

> so many new girls posting too, awesome! I got home from my trip on

> Sunday but then had to work and stuff so I have been super biz and

> not enough time to write much. We had a fantastic time in

California

> though I am a bit tired. We were so busy everyday, squeezing

allot of

> things into the trip and with 5 kids it was active I tell ya! Ha,

> anyhow I just wanted to comment on the brain fog, wow when I read

all

> of your descriptions it brough it all back to me how miserable I

was

> when I was so sick. Sometimes I think i actually forget how bad it

> was now that it is gone.Anyhow, it was def not depression to

anyone

> thinking that is the answer. I had it bad and trust me I wanted so

> desperately to keep the implants that when the 1st Dr I saw said I

> was depressed I was more than willing to take the anti depressants

> and give them time to kick in, I tried all the newest best ones

with

> supposed less side effects and not one helped me at all, in fact I

> would say they just made me feel worse, they made me even more

spacey

> and more sick than I was already. I even stayed on some of them a

> good 3 months to see if it would help, but it never did. I tried

> Celexa, Wellbutrin, lexapro, and serzone, and none of them worked!

> EVER. So no I don't believe I had clinical depression at all, it

> seemed like messing with the chemicals in my brain just made the

> brain fog or whatever it was worse. I had an MRI and it was

normal,

> in fact other than my ana all my tests were always normal. I was

> depressed in many ways yes, for sure, but not 1st, the sickness

came

> and that was followed by the depression over the illness, not the

> other way around. It should have been an exciting happy time in my

> life, things were all really starting to look up for me, I had

> finally got the boobs I was wanting, I was newly single and

starting

> to date, I was in the prime of my life, but one day I started

getting

> achy, the next day I was dizzy, and then it all just never went

away.

> I kept thinking too that if I could just sleep it would feel

better,

> or having that extra cup of coffee to wake up, it just never

worked.

> I never felt better, it never eased till much after explant for

> me.The sunglass thing that Patty mentioned really caught my

attention

> too because I also had that, you felt like the light was too

bright

> but when you would put on sunglasses it made it too dark, so I too

> was constantly putting them on, taking them off, I could not get

it

> right! It was crazy. I remember looking down the long halls of the

> hospital where I worked and everything was blurry and crazy

looking,

> like i was high on some crazy drugs, it was the weirdest feeling

in

> the world!I also realized that florescent lights made it worse,

and

> would have to literally run through the grocery store to buy

> groceries because it made me feel like i was trippin on LSD or

> something. NO ONE HAS EVER TOLD ME WHAT THIS IS THAT CAUSES THIS.

I

> have no idea of the actual physical cause that makes the brain get

> like this, and I have never had a good answer. I have theories,

but

> none of them are for sure. I think that the toxins released into

the

> body do something to the chemistry of the brain. I also know that

> yeast can release ethanol into the body, and that can make you

feel

> intoxicated, so maybe it is both those things. When I spoke with

Dr

> Fengs office they made it clear that neurological issues were

pretty

> common in implant illness. Anyhow, whatever it was I can say that

it

> is gone now. I think since explant and since about 6-12 months of

> healing I have only experienced very mild brain fog a few times.

Once

> after flying on a plain, and maybe a few other times of over

doing or

> not enough sleep. Also some sleep meds like trazadone make me

spacey.

> So the depression thing I do not believe is what we are talking

> about. I too had my eyes checked when I was at the peak of my

illness

> and they were normal I was told. I have good eyes and now they

seem

> totaly fine. The thing was I could tell it was not really my eyes

> anyhow, it was something deeper if that makes any sense.

>

> Anyhow, I not too happy to say that I am experiencing heel pain

again

> in my left foot, so tomorrow I am going to see about adjusting my

> orthotic. I just don't know why I cannot seem to permanently kick

> this darn heel thing. I do know that I overdid the walking on my

trip

> so that may be a part of it too.

>

> Other than that I am good, just tired is all.

>

> hugs to every one and esp the newbies

>

>

>

>

[Guest guest]

Sus: we welcome you to the group!

on 12/23/2003 12:55 PM, sussusana at sussusana@... wrote:

> Hello there. I am new to the sight and I am very interested in

> learning more about CRON. I just ordered Dr. Walford's books and I

> can't wait to receive them. Just for info sake, I am a 34 year old

> female, 4 ft. 11 in. tall and weigh about 105 pounds. I would like

> to try the CRON diet because it sounds healthy and, selfishly, it

> would be nice to weigh 95 pounds and be able to stay there. I

> currently eat the Atkins way, but I know I need to vary my diet with

> more nutrient dense foods such as vegetables. I am not sure how to

> start and how to figure out what my daily caloric intake should be.

See the file " CR Made Easy " to start. In fact if you read all the files, you'll get a pretty good idea of how we eat and what typical meals are like. Also Dr W discusses ways to start at his website and in his book.

> I have eaten less than 1000 calories a day in the past and it has not

> really caused me to lose more wieght. What seems to have worked when

> I've gotten down to 98 pounds is exercising at least 2 hours a day

> with running, tae bo, and pilates. But that's a lot of hard work and

> I don't always have the time.

It is not recommended to go below 1000 calories a day because you will probably be missing important nutrients. Also exercising to excess is counter-productive to long life, since it releases free radicals. Walford explains this in his book. Exercise is necessary to stay fit, such as walking, free weights etc, but not good when done to excess.

The reason I would like to get to 95

> pounds is because the way my body is shaped, I retain my weight in

> the midsection which can be sign of future heart disease or other

> conditions such as diabetes. At least, this is what I've read in

> medical magazines, books, and journals. I figure at 95 pounds, I

> could possibly be leaner and healthier. Also, there are tons of

> people who are taller than me, say 5 ft. or 5 ft., 1,2, or 3 inches

> tall and theny weigh in the 90s in pounds. So if they can be at such

> low weights why can't I? Any suggestions? Well, I hope to get some

> advice and inspiration from anybody who may have been where I am

> now. Can't wait to hear from you!

CRON is not a weight loss diet. It is a diet to live healthier and better. The objective is not to lose weight, although most people do. See our files for all kinds of suggestions on how to eat less - such as the " Aids and Tips " file. Remember we do not advocate going under 1000 cal a day. This is not healthy!

>

> Sincerely,

>

> Sus

>

[Guest guest]

Welcome to rhe forum Chey, and thank you for your good wishes.

Good luck with LDN...You will be in my prayers.

Sally

--- In low dose naltrexone , " cheystay " <c_chey@h...>

wrote:

> to all the members of this group and above all a very happy and

> blessed Christmas!

>

> I became a member just now. A friend of mine from our MS_bacterie

> community redirected me to this group. I'll tell some about me.

>

> My name is Chey, I live in the Netherlands, 36, 3 daughters, MS

> diagnosed since december 1989 and wheelchair depending.

>

> I started taking antibiotics in 2000 and do very well on that. Had

> only one shub since. Normally 2 or 3 a year. But lately spasms are

> getting worse and I'm going to start LDN in about a week. Have to

> buy LDN in Spain because Dutch physicians are against the use.

Have

> to make a solution with 2 tablets 50mg and 100ml water.

>

> I am scared and happy. If it works, wow, if the MS gets worse.....

> Wait and see.

>

> Greetings,

> Chey

[Guest guest]

Hi Diane,

Thanks for the welcome! I really liked the course. It came with great materials: Dr 's Herbal Home Health Care(Book), An Herbal Legacy of Courage(Book),Master Herbalist's Speak(CD), Saftey of Herbs (CD), Internal Cleansing (CD), Fundamentals of Herbology (VHS), Simple Home Remedies (VHS). I learned more than I ever imagined (of course I'm fairly new to this). I can't wait to take more courses. I'm just waiting for my certificate from the family herbalist course so I can sign up for their aromatherapy and nutritional herbalist courses.

Love,

RoniRDAugustine <rdaugustine@...> wrote:

Hi Roni,

I wanting to take the course... possibly in the spring of next year... how did you like it?

Welcome to the group,

diane in nw mt

----- Original Message -----

From: roni_slye

health

Sent: Friday, October 29, 2004 2:40 PM

Subject: Hello

Hi everyone!I just joined the group recently and am happy to "see" so many familiar "faces". You probably don't remember me, but I've really missed you guys. Anyway, a short introduction. I'm married with two teenage daughters, and unfortunately my husband is living in Washington right now while the girls and I are in Montana (job transfer). We're hoping to all be together again soon though. I just finished the family herbalist course from the school of natural healing, and am planning on continuing with the master herbalist program, as well as the aromatherapy program through them. I am also currently working on going to an all raw diet (so susie I really appreciate those recipes!), and to think a year ago I had barely heard of natural health . Many of you on this list have had a huge part in my growth in this area (even though you probably don't know it), and I'm just so happy to be a part of this

wonderful group. Everyone have a great day!Love,Roni

[Guest guest]

roni_slye wrote:

>

> Hi everyone!

> I just joined the group recently and am happy to " see " so many

> familiar " faces " . You probably don't remember me, but I've really

> missed you guys. Anyway, a short introduction. I'm married with two

> teenage daughters, and unfortunately my husband is living in

> Washington right now while the girls and I are in Montana (job

> transfer). We're hoping to all be together again soon though. I just

> finished the family herbalist course from the school of natural

> healing, and am planning on continuing with the master herbalist

> program, as well as the aromatherapy program through them. I am also

> currently working on going to an all raw diet (so susie I really

> appreciate those recipes!), and to think a year ago I had barely

> heard of natural health . Many of you on this list have had a huge

> part in my growth in this area (even though you probably don't know

> it), and I'm just so happy to be a part of this wonderful group.

> Everyone have a great day!

>

> Love,

> Roni

============================

Hi Roni,

I remember you but I am sure you won't remember me. ;-) Welcome to

the group and congratulations on finishing your first course with the

School of Natural Healing. Very, very good courses. I appreciate your

goals and I know you will attain them in due time. Sorry to hear that

you and DH are currently living in separate states but am glad to hear

that it is only because of a job transfer. :-)

Yes, there are many familiar faces here and you will most likely find

yourself feeling, more or less, at home here. I do hope you enjoy your

stay with us and feel free to peruse the files to your hearts content.

Being a fairly new group we are going through growing pains but then all

groups do, even long standing ones.

Anyway, we are glad you are here and hope to be hearing lots from you.

Peace be with you Roni.

--

Peace, love and light,

Don Quai

" Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal

and wakes in man. "

[Guest guest]

Kathy wrote:

>

>

> Hi everyone,

> I am so excited to find your group! I have made it my quest to get

> healthy this year. Since this is something I know nothing about I

> came for any advice you can give me. I am 46 yrs old, live in

> Louisiana and stay sick way too much! Right now I am getting over

> pneumonia. The last time I had this the doctors gave me all sorts

> of antibiotics and finally we went to water, water, water to flush

> it out. Nothing seems to work on me the way it should. I am

> relatively healthy, I just pick up bugs very easily.

>

> I don't have a clue as to where to start to even begin getting

> myself healthy. Please help!

>

> Thank you so much.

> Kathy

============================

Hi Kathy,

Welcome to the group. Feel free to peruse the archives and files at your

leisure. The human body is not meant to be ill. If you are ill it is

most likely because of your diet and/or lifestyle. If you will be so

kind and divulge what your diet consists of we can begin to help you

overcome your dis-eases or ailments. Are you eating processed foods?

Meats? Junk foods? Snack foods? Using any dairy products? Cooking your

foods? Eating refined sugars and flour products (pastries, cakes,

candies, etc)? Are you drinking coffee? Alcohol? Do you smoke?

You helping us to understand you will enable us to help you understand.

You can overcome this as there is no reason why your body should be ill

or pick up bugs all the time. NONE!!

Peace be with you Kathy and again welcome to the group.

--

Peace, love and light,

Don " Quai " Eitner

" Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal

and wakes in man. "

--

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[Guest guest]

Welcome Pat and God Bless! in WVpat_cool72 <p_vandusen@...> wrote: I am a new member I think, hahah. I joined a long time ago to a group like this one but I don't know if this is the same one. So if it isn't the same one then yes I am new here. My name is Pat and I have severe R.A. Sometimes it is nice to talk to someone who knows and understands how I feel. Right now I'm kinda tired so I will be back on later. I hope to find many friends here. God Bless

New Messenger with Voice. Call regular phones from your PC and save big.

[Guest guest]

Hi Pat Yes ture you take care . john pat_cool72 <p_vandusen@...> wrote: I am a new member I think, hahah. I joined a long time ago to a group like this one but I don't know if this is the same one. So if it isn't the same one then yes I am new here. My name is Pat and I have severe R.A. Sometimes it is nice to talk to someone who

knows and understands how I feel. Right now I'm kinda tired so I will be back on later. I hope to find many friends here. God Bless

goes everywhere you do. Get it on your phone.

[Guest guest]

I hadn’t heard of it but it sounds a

lot like Mangosteen or Gogi juice in that it has a high concentration of

desirable components. I couldn’t find any clinical trials on it in

a quick look. I did spend some time looking for data on Mangosteen juice

and found one site that seemed to present a balanced picture instead of a

testimonial or sales pitch. The balanced picture did say it had helpful

components at high concentration but you can get much more of the same type

components from things such as blueberry or dark grape juice at much less

cost. I also found one site that reported bad side effects from the juice

and refusal to refund money. It may help some people but I would rather

stick to the more common juices and drink more of them. God bless.

From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Garanimal

Sent: Monday, November 20, 2006

10:20 AM

Rheumatoid Arthritis

Subject:

hello

hay has anyone ever tryed monavie juice? everyone is

telling me about

it...