questions

[Guest guest]

,

I am o expert on implantation spotting but I think it happens on days 5-11 so

that would be about right on time. Maybe someone else knows more about it.

Dana

[Guest guest]

,

I am o expert on implantation spotting but I think it happens on days 5-11 so

that would be about right on time. Maybe someone else knows more about it.

Dana

[Guest guest]

,

lots of prayers and ::::::::::::::::::::::::::::::::; baby dust for you

lisa r

T.T.F.N.

[Guest guest]

I know I'm knew here but I agree that maybe putting warnings in the subject line

might help people who are having a hard day or are " fresh " from the

battlefield...

I personally LOVE to read the success stories.. but I know there are women who

can't deal with it so soon after a loss..

Just my 2 cents

Karla

----- Original Message -----

From:

I'll be the first one to say that the past few weeks is a tough time for a new

member to come aboard, with all the excitement about recent pregnancies, it

would be hard to take in the wake of a recent loss. I think we can ALL

work together to be more considerate of others not ready to share in our

transition by paying special attention to note the " SUBJECT " line of the

messages (this way we won't subject a new member to the discussion of pregnancy

if they are not ready to face that).

[Guest guest]

I know I'm knew here but I agree that maybe putting warnings in the subject line

might help people who are having a hard day or are " fresh " from the

battlefield...

I personally LOVE to read the success stories.. but I know there are women who

can't deal with it so soon after a loss..

Just my 2 cents

Karla

----- Original Message -----

From:

I'll be the first one to say that the past few weeks is a tough time for a new

member to come aboard, with all the excitement about recent pregnancies, it

would be hard to take in the wake of a recent loss. I think we can ALL

work together to be more considerate of others not ready to share in our

transition by paying special attention to note the " SUBJECT " line of the

messages (this way we won't subject a new member to the discussion of pregnancy

if they are not ready to face that).

[Guest guest]

wow KJ< you said it so eloquently and it is the absolute truth....

especially about everyone being here no matter what stage they are, and

Everyone does stop and hellp you when you need it...

lisa r

T.T.F.N.

[Guest guest]

wow KJ< you said it so eloquently and it is the absolute truth....

especially about everyone being here no matter what stage they are, and

Everyone does stop and hellp you when you need it...

lisa r

T.T.F.N.

[Guest guest]

wow KJ< you said it so eloquently and it is the absolute truth....

especially about everyone being here no matter what stage they are, and

Everyone does stop and hellp you when you need it...

lisa r

T.T.F.N.

[Guest guest]

Karla,

I think you (and everyone) has every right to express their feelings. I

think we've gotten so wrapped up in our own excitement (guilty***) that we

forget to do those little things that can make such a big difference for

someone new. I'm truly sorry if we hurt anyone's feelings or seemed

insensitive. I'm also very glad that the topic was raised and addressed,

I'd never want to make anyone feel uncomfortable (especially at a time when

they're already so wounded).

maria

Re: Re: questions

> I know I'm knew here but I agree that maybe putting warnings in the

subject line

> might help people who are having a hard day or are " fresh " from the

> battlefield...

>

> I personally LOVE to read the success stories.. but I know there are women

who

> can't deal with it so soon after a loss..

>

> Just my 2 cents

>

> Karla

>

> ----- Original Message -----

> From:

>

> I'll be the first one to say that the past few weeks is a tough time for

a new

> member to come aboard, with all the excitement about recent pregnancies,

it

> would be hard to take in the wake of a recent loss. I think we can ALL

> work together to be more considerate of others not ready to share in our

> transition by paying special attention to note the " SUBJECT " line of the

> messages (this way we won't subject a new member to the discussion of

pregnancy

> if they are not ready to face that).

>

>

>

>

[Guest guest]

Karla,

I think you (and everyone) has every right to express their feelings. I

think we've gotten so wrapped up in our own excitement (guilty***) that we

forget to do those little things that can make such a big difference for

someone new. I'm truly sorry if we hurt anyone's feelings or seemed

insensitive. I'm also very glad that the topic was raised and addressed,

I'd never want to make anyone feel uncomfortable (especially at a time when

they're already so wounded).

maria

Re: Re: questions

> I know I'm knew here but I agree that maybe putting warnings in the

subject line

> might help people who are having a hard day or are " fresh " from the

> battlefield...

>

> I personally LOVE to read the success stories.. but I know there are women

who

> can't deal with it so soon after a loss..

>

> Just my 2 cents

>

> Karla

>

> ----- Original Message -----

> From:

>

> I'll be the first one to say that the past few weeks is a tough time for

a new

> member to come aboard, with all the excitement about recent pregnancies,

it

> would be hard to take in the wake of a recent loss. I think we can ALL

> work together to be more considerate of others not ready to share in our

> transition by paying special attention to note the " SUBJECT " line of the

> messages (this way we won't subject a new member to the discussion of

pregnancy

> if they are not ready to face that).

>

>

>

>

[Guest guest]

I had a full septum and carried my DD to 41 1/2 weeks- the Dr's are AMAZED I was able to carry her with a septum- she should have been at LEAST a preemie. Dr Paltrer discovered the septum while doing my AS repair- and he removed it during that repair after a consult with my DH about using a lap too. the septum I believe might have prevented my AS from being more serious- ads there was a barrier between the 2 walls- I would definitely look into repair if you have a septum- it's one of the most common reasons for repeat mc- and who needs THAT in a uterus with AS? prayers with you as you try to figure it out

"I know God won't give me anything I can't handle, I just wish he didn't trust me so much"

-Mother

, Mike, Brenna (VSD, PS- open heart surgery 1/29/98--- typical 4 1/2YO- YIPES!), and Jaden Kalyan Ross-born in Cambodia July 15, 2001 home with us forever May 3, 2002, Baby Angel born still 11/7/00, and Riley and Snoozer the dogs

Join us again next year in remembering the millions of people affected by CHD on 2/14/2003: "A Day for Hearts: Congenital Heart Defects Awareness Day!"

[Guest guest]

I had a full septum and carried my DD to 41 1/2 weeks- the Dr's are AMAZED I was able to carry her with a septum- she should have been at LEAST a preemie. Dr Paltrer discovered the septum while doing my AS repair- and he removed it during that repair after a consult with my DH about using a lap too. the septum I believe might have prevented my AS from being more serious- ads there was a barrier between the 2 walls- I would definitely look into repair if you have a septum- it's one of the most common reasons for repeat mc- and who needs THAT in a uterus with AS? prayers with you as you try to figure it out

"I know God won't give me anything I can't handle, I just wish he didn't trust me so much"

-Mother

, Mike, Brenna (VSD, PS- open heart surgery 1/29/98--- typical 4 1/2YO- YIPES!), and Jaden Kalyan Ross-born in Cambodia July 15, 2001 home with us forever May 3, 2002, Baby Angel born still 11/7/00, and Riley and Snoozer the dogs

Join us again next year in remembering the millions of people affected by CHD on 2/14/2003: "A Day for Hearts: Congenital Heart Defects Awareness Day!"

[Guest guest]

I had a full septum and carried my DD to 41 1/2 weeks- the Dr's are AMAZED I was able to carry her with a septum- she should have been at LEAST a preemie. Dr Paltrer discovered the septum while doing my AS repair- and he removed it during that repair after a consult with my DH about using a lap too. the septum I believe might have prevented my AS from being more serious- ads there was a barrier between the 2 walls- I would definitely look into repair if you have a septum- it's one of the most common reasons for repeat mc- and who needs THAT in a uterus with AS? prayers with you as you try to figure it out

"I know God won't give me anything I can't handle, I just wish he didn't trust me so much"

-Mother

, Mike, Brenna (VSD, PS- open heart surgery 1/29/98--- typical 4 1/2YO- YIPES!), and Jaden Kalyan Ross-born in Cambodia July 15, 2001 home with us forever May 3, 2002, Baby Angel born still 11/7/00, and Riley and Snoozer the dogs

Join us again next year in remembering the millions of people affected by CHD on 2/14/2003: "A Day for Hearts: Congenital Heart Defects Awareness Day!"

[Guest guest]

,

How are you?

brennasmom@... wrote: I"I know God won't give me anything I can't handle, I just wish he didn't trust me so much"-Mother , Mike, Brenna(VSD, PS- open heart surgery 1/29/98--- typical 4 1/2YO- YIPES!), and Jaden Kalyan Ross-born in Cambodia July 15, 2001 home with us forever May 3, 2002, Baby Angel born still 11/7/00, and Riley and Snoozer the dogsJoin us again next year in remembering the millions of people affected by CHD on 2/14/2003: "A Day for Hearts: Congenital Heart Defects Awareness Day!"

[Guest guest]

,

How are you?

brennasmom@... wrote: I"I know God won't give me anything I can't handle, I just wish he didn't trust me so much"-Mother , Mike, Brenna(VSD, PS- open heart surgery 1/29/98--- typical 4 1/2YO- YIPES!), and Jaden Kalyan Ross-born in Cambodia July 15, 2001 home with us forever May 3, 2002, Baby Angel born still 11/7/00, and Riley and Snoozer the dogsJoin us again next year in remembering the millions of people affected by CHD on 2/14/2003: "A Day for Hearts: Congenital Heart Defects Awareness Day!"

[Guest guest]

,

How are you?

brennasmom@... wrote: I"I know God won't give me anything I can't handle, I just wish he didn't trust me so much"-Mother , Mike, Brenna(VSD, PS- open heart surgery 1/29/98--- typical 4 1/2YO- YIPES!), and Jaden Kalyan Ross-born in Cambodia July 15, 2001 home with us forever May 3, 2002, Baby Angel born still 11/7/00, and Riley and Snoozer the dogsJoin us again next year in remembering the millions of people affected by CHD on 2/14/2003: "A Day for Hearts: Congenital Heart Defects Awareness Day!"

[Guest guest]

I wonder if the scarring recurred or if they partially dilated the

cervix/opening to the uterus and then it tightened back up. The

dilation she did of your cervix in her office may have stretched it

open temporarily but wasn't sufficient to get rid of the scarring

altogether. Because she did that dilation between the 2 HSGs I would

think that's what caused the difference, which would mean the uterus

may be normal above scarring right around the cervix since the

radiologist didn't see any abnormality on the HSG after the dilation

(assuming he read the xray correctly). If your period doesn't come

I would think you need another HSG and they may need to look up

there to really see what's going on (hysteroscopy).

After a D & C for an incomplete miscarriage I had scarring just in the

bottom of the uterus that initially only partially closed off the

cervix, and closed down altogether after 5 months. After the doctor

got it opened up he said it was a little like cervical stenosis seen

in women whose mothers had taken DES and that it could close down

again over time and I might need to have it opened back up. With my

second bout of Ashermans, the doctor has told me a couple of times

that, although he got everything open, my uterus might scar down

again in places because there was so little endometrium left.

[Guest guest]

I wonder if the scarring recurred or if they partially dilated the

cervix/opening to the uterus and then it tightened back up. The

dilation she did of your cervix in her office may have stretched it

open temporarily but wasn't sufficient to get rid of the scarring

altogether. Because she did that dilation between the 2 HSGs I would

think that's what caused the difference, which would mean the uterus

may be normal above scarring right around the cervix since the

radiologist didn't see any abnormality on the HSG after the dilation

(assuming he read the xray correctly). If your period doesn't come

I would think you need another HSG and they may need to look up

there to really see what's going on (hysteroscopy).

After a D & C for an incomplete miscarriage I had scarring just in the

bottom of the uterus that initially only partially closed off the

cervix, and closed down altogether after 5 months. After the doctor

got it opened up he said it was a little like cervical stenosis seen

in women whose mothers had taken DES and that it could close down

again over time and I might need to have it opened back up. With my

second bout of Ashermans, the doctor has told me a couple of times

that, although he got everything open, my uterus might scar down

again in places because there was so little endometrium left.

[Guest guest]

I wonder if the scarring recurred or if they partially dilated the

cervix/opening to the uterus and then it tightened back up. The

dilation she did of your cervix in her office may have stretched it

open temporarily but wasn't sufficient to get rid of the scarring

altogether. Because she did that dilation between the 2 HSGs I would

think that's what caused the difference, which would mean the uterus

may be normal above scarring right around the cervix since the

radiologist didn't see any abnormality on the HSG after the dilation

(assuming he read the xray correctly). If your period doesn't come

I would think you need another HSG and they may need to look up

there to really see what's going on (hysteroscopy).

After a D & C for an incomplete miscarriage I had scarring just in the

bottom of the uterus that initially only partially closed off the

cervix, and closed down altogether after 5 months. After the doctor

got it opened up he said it was a little like cervical stenosis seen

in women whose mothers had taken DES and that it could close down

again over time and I might need to have it opened back up. With my

second bout of Ashermans, the doctor has told me a couple of times

that, although he got everything open, my uterus might scar down

again in places because there was so little endometrium left.

[Guest guest]

: This is very odd....why one doctor wouldn't be able to perform

an HSG and the other would is strange. Perhaps you had some scarring

in your cervix which cause the " blockage " which has now been cleared?

But if so....then your periods should have come back full-force and

not so weakly...

I would see Dr. Valle for a second " second opinion " . It seems very

odd to me that you would not be having a better period if you were,

in fact, scar-free. And it seems odd to me that you are having such

significant pain if you have no blockage left in your uterus. You

need to have this checked-out by an expert in my opinion.

Gwen

[Guest guest]

: This is very odd....why one doctor wouldn't be able to perform

an HSG and the other would is strange. Perhaps you had some scarring

in your cervix which cause the " blockage " which has now been cleared?

But if so....then your periods should have come back full-force and

not so weakly...

I would see Dr. Valle for a second " second opinion " . It seems very

odd to me that you would not be having a better period if you were,

in fact, scar-free. And it seems odd to me that you are having such

significant pain if you have no blockage left in your uterus. You

need to have this checked-out by an expert in my opinion.

Gwen

[Guest guest]

: This is very odd....why one doctor wouldn't be able to perform

an HSG and the other would is strange. Perhaps you had some scarring

in your cervix which cause the " blockage " which has now been cleared?

But if so....then your periods should have come back full-force and

not so weakly...

I would see Dr. Valle for a second " second opinion " . It seems very

odd to me that you would not be having a better period if you were,

in fact, scar-free. And it seems odd to me that you are having such

significant pain if you have no blockage left in your uterus. You

need to have this checked-out by an expert in my opinion.

Gwen

[Guest guest]

First of all, you probably need to see if you have another period in

the next month. You could get two different readings on HSG tests

due to the first one removing or pushing something such as scar

tissue out of the way so the second one could be performed

correctly. Since you went to the doctor in Dallas, you started BC

pills but have light spotting. You may not have had time to develop

a normal or thick lining of endometrium so your period could be light

this month but heavier next. I would watch it closely the next month

or two and then if it is still light or not the same as before the

D & C, then I would try to get an appt with Dr Valle in Chicago. Time

will help with your diagnosis, but if you have a clear uterus from

the HSG, you sound as if your uterus is in good health. Let's hope

all continues well with your periods and maybe your medical situation

will be solved. Good luck and let us know if you have more questions.

W

[Guest guest]

First of all, you probably need to see if you have another period in

the next month. You could get two different readings on HSG tests

due to the first one removing or pushing something such as scar

tissue out of the way so the second one could be performed

correctly. Since you went to the doctor in Dallas, you started BC

pills but have light spotting. You may not have had time to develop

a normal or thick lining of endometrium so your period could be light

this month but heavier next. I would watch it closely the next month

or two and then if it is still light or not the same as before the

D & C, then I would try to get an appt with Dr Valle in Chicago. Time

will help with your diagnosis, but if you have a clear uterus from

the HSG, you sound as if your uterus is in good health. Let's hope

all continues well with your periods and maybe your medical situation

will be solved. Good luck and let us know if you have more questions.

W

[Guest guest]

Hi Helen;

Typically for a thyroid cancer patient, our TSH should be less

than .1 - you don't mention what yours is.. but thats the level to be

working towards, it keeps us sufficiently suppressed that if there

were to be some remaining thyroid cancer cells, they wouldn't be

stimulated to grow.

Its really difficult to know if your thyroid cancer is completely

gone without a scan. There are two indications, a scan showing

uptake of radioactive iodine, and TG thyroglobulin which is measured

via a blood test, typically when the patient is hypo (off their meds)

so that if there were any remaining thyroid tissue, cancerous or not,

it would either show up on a scan or by having a high TG measurment.

A TG reading while suppressed (on medication) wouldn't tell much, and

TSH level don't tell if there is any remaining thyroid tissue, they

just measure how much you are suppressed.

So, in my opinion (and i'm a patient just like you and not a doctor)

you aren't being followed in a way that would tell about if your

thyroid cancer is completely gone at this point, and the only

indication of recurrence would be if your doc felt a lump in a neck

check.. but it could be behind something, or not very big, and thats

not an ideal way to tell. With a scan they would know more. If it

were me, I would find that more reassuring.

Good luck, and welcome back

barb

tt8/99 RAI 4/00 Clean Scans 12/00,5/02

> Hi everyone,

> I have been a member of this group for quite a while and had my

> thyroid removed nearly four year ago. I have not been reading the

> post for quite a while, this was partly due to the fact that you

guys

> made me doubt the treatment i am receiving and i havent read

anything

> on the board for some time.

>

> Well now im back and as usual I have questions, some of which you

> guys have probably answered loads of time but im going to ask all

the

> same.

>

> I have an appointment with my oncologist on thrusday and i was

> hopeing someone would be able to answer the following:

>

> I have been on thryoid replacement for about 3 1/2 years

(thryoxine)

> and have never been on the same dose for more than 6 months. My

dose

> has gone up and down. The most i have been on was 8 months ago and

i

> was on 500mg per day this has nothing to do with weight, this was

> because they have not been able to supress my tsh levels. Well

sice

> then ive gone down to 400mg, 350mg, 300mg and 250mg and at this

point

> my doctor told me for a normal person i would be slightly ober

> medicated but she was frightened to drop my does any lower as my

TSH

> level would rise. Then the other day i had to take my son to see

my

> gp and she said she was glad i had taken him as she needed to see

me

> she had sent my results throught to my oncologist and she had told

my

> GP to riase my thyroxine again as my YSH levels were not suppressed

> enough. So im now back on 300mg per day. OK guys im so sorry this

is

> so long winded but im so confused. What should my TSH and T4 level

> be??? and what effect are all these tablets having on my body. Im

> not sure if i was slightly over medicated according to my Gp on

250mg

> per day why am i now on 300mg per day. How long did it take you

guys

> to get you medication levels right as i think 4 years is a bit too

> long.

>

> 2nd question.... I live in the UK and im not sure if all thyroid

> cancer patients here a treated the same way but as i said I was

> suppose to have had a total thyroidectomy done and my surgeon

decided

> during the op that things looked better than he had hoped (good

news

> right...) well unfortunately not two weeks later when my labv

results

> came back it turned out that i did indeed have folicular cancer and

> they decided they could remove the rest with radioactive iodine

(this

> all seems fairly normal right?) well my surgeon told me they would

do

> the iodine thing and then i would have to have a body scan to see

if

> they could trace anything else. I have never had this scan. Well to

> this day this is all the treatment i have had apart from the

messing

> about with my medication and they feel my neck and take my blood

> every 6 months (the blood thing has been done every 8 weeks by my

GP

> this year as they have been trying to get the medication right)

sorry

> im rambling on and on but you all talk about doing the lid and

scans

> and ive never had them is it just me or is this normal???????

>

> As i said i had a 4cm folicular tumour which they did removed or at

> least i hope they did.

>

> |Please help. Maybe its normal and if there was a problem then

this

> would show up in my blood test right???? or maybe not as my blood

> tests were normal and showed no problems thyroid or other even with

> the tumour.

>

> As you can see im desperate and need advice anyhing anyone wants to

> comment on would be much apreciated.

>

> Many thanks for taking the time to read this novel

>

> Helen (34 years old), thyroid cancer removed 1998 december,

> Pseudotumour cerebri diagnosed October 1999, 5 surgeries in 4 years

> and still trying to get myself sorted out. Im a medical marvel :-)