RE: New here.

[Guest guest]

Allicia,

I have had Fibro for well over 10 years, and before I found my doctor that I

have now I was in cronic pain like you are, and I slept all of the time too.

My Doctor put me on anti-depressants and pain meds. I currently take Celexa

40mg and Wellbutrian 550 mg (spelling?) duragesic patches (they just bumped me

up to 75 micrograms today.) and I have vicoden for break thru pain.

Once you get your pain under controll then you will get more restful sleep and

wont require the 20 hours a day.

When I first started the doctors didnt understand and said that it was all in my

head until I met Dr. " B " he is helping me get my pain under control. I sleep

about 7-10 hours a day now, I work 50+ hours a week, and I manage to make all of

my 2 kids sporting events. Some days are pretty bad, but the Duragesic Patch

that gives me a constant flow of pain meds has saved my life.

I had never heard of treating Fibro with the patch, but I am sure glad that my

doc has given it to me. I went for years and years in pain. Ask you doctor

about the antidepressants as well, they help. Celexa was about 2 weeks of

intense side effects until my body got used to the change, but now I am fine.

Best of luck to you, there is light at the end of the tunnel.

Joan Furman

[Guest guest]

Allicia,

I have had Fibro for well over 10 years, and before I found my doctor that I

have now I was in cronic pain like you are, and I slept all of the time too.

My Doctor put me on anti-depressants and pain meds. I currently take Celexa

40mg and Wellbutrian 550 mg (spelling?) duragesic patches (they just bumped me

up to 75 micrograms today.) and I have vicoden for break thru pain.

Once you get your pain under controll then you will get more restful sleep and

wont require the 20 hours a day.

When I first started the doctors didnt understand and said that it was all in my

head until I met Dr. " B " he is helping me get my pain under control. I sleep

about 7-10 hours a day now, I work 50+ hours a week, and I manage to make all of

my 2 kids sporting events. Some days are pretty bad, but the Duragesic Patch

that gives me a constant flow of pain meds has saved my life.

I had never heard of treating Fibro with the patch, but I am sure glad that my

doc has given it to me. I went for years and years in pain. Ask you doctor

about the antidepressants as well, they help. Celexa was about 2 weeks of

intense side effects until my body got used to the change, but now I am fine.

Best of luck to you, there is light at the end of the tunnel.

Joan Furman

[Guest guest]

Allicia,

Hi Allicia. I hope I'm responding to your email the

correct way...

I too have FMS. It took quite a while for it to show

up completely as FMS. In the meanwhile it destroyed my

marriage, career, and friendships due to the 'Fibro

Fog' that made me look like a zombi.

The pain is bad enough. If I could get anything back

it would be a clear head so I can concentrate and

enjoy life more. But, these are the lemons I've been

given, so lemonade it will be:)

Oddly enough, despite all of the bad things that have

come from this disease, I am still very greatfull to

be alive. I don't know where the gratitude comes from,

but it sure helps to grow with the condition.

I hope you are doing better with your FMS.

I noticed that your Dr has you taking Ultram. I've

heard of a lot of folks who took Ultram who had funky

symptoms. I was prescribed these synthetic drugs for

about 1.5 years until I found a Dr who put me on MS

Contin (Morphin) Taken orally, it actually helped

clear a lot of Fibro Fog. It definitely made me less

groggy than Ultram or Codene. The biggest problem I

can see with taking it is the stigma that morphin has

in the minds of the public and some physicians. I

found that if you follow the dr's prescription to the

letter, and not mention to folks that you are taking

it, they usually don't look at you funny.

Have you been to a pain management clinic yet? I went

to one a couple of years ago. It really helped to

lower my overall daily pain experience. I was even

able to go back to work after completing this one

month clinic. It's given here in Manchester, NH and in

Boston, MA I'm sure there are others in your area that

are given by reputable physicians -- you might want to

check one out.

Go slow,

--- Allicia wrote:

> Hello my name is Allicia and I am 21 years of age. I

> live in Indiana

> and I was recently diagnosed a year ago with

> Fibromyalgia and

> Raynauds.This has been a tramadic experience for me,

> but I am trying

> to deal with this the best way I know how. Granted

> it has its ups and

> downs as most parts of life do, but I am trying the

> best way I know

> how to deal with this.

> Being 21 it has made it especially difficult to deal

> with because

> most people my age are in college, working full

> time, going out to

> the bars, night clubs, and dancing on the weekends.

> I however can not

> do any of these.

> I can not go to college because the drive there

> wears me out and

> makes me sleepy, and believe me the prof's do not

> like you sleeping

> in class trust me..( I found out the hard way) I can

> not stay awake

> to save my life. I sleep 15-20 hours a day at least.

>

> I can not work because no one is going to hire a 21

> year old with a

> chronic disease who does not have a college degree

> these days. Plus

> with the economy the way it is...there is

> deffinately not too much

> hope out there. I can not stand on my feet for long

> periods of time

> because my legs and feet start to stiffen to the

> point of me not

> being able to move.

> So I stay at home with my Golden Retriever who keeps

> me company. I

> live with my boyfriend of 2 years who works 80 hours

> a week to make

> ends meet since I can not work or receive disablity.

> So if I don't

> get disablity or find a job by December I will

> pretty much be out of

> a relationship and back with mommy.Things have

> deffinately been a

> challenge in the year 2001 and it looks like it is

> deffinately going

> out with a bang. *(

> I am looking foward to talking with you all and

> listening to

> suggestions. The following are the medicaitons I am

> on and take

> everynight/day.

>

> Effexor 225 mg.

> Detrol LA 4 mg.

> Urimax

> Zyrtec 10 mg.

> Ultram 50 mg.

> Skelaxin 400 mg. 4 pills day

> Naproxen 500 mg. 3 x's a day

> Clonzepam 1/2 mg.

> Zanaflex 4 mg.

> Dewowen cream .05% (falickyalitist not sure on

> spelling)sores on face

> & body

> Clobetasol .05% (falickyalitist not sure on

> spelling) sores on scalp

> Plus two shots of toradol every two months.

>

>

__________________________________________________

[Guest guest]

Allicia,

Hi Allicia. I hope I'm responding to your email the

correct way...

I too have FMS. It took quite a while for it to show

up completely as FMS. In the meanwhile it destroyed my

marriage, career, and friendships due to the 'Fibro

Fog' that made me look like a zombi.

The pain is bad enough. If I could get anything back

it would be a clear head so I can concentrate and

enjoy life more. But, these are the lemons I've been

given, so lemonade it will be:)

Oddly enough, despite all of the bad things that have

come from this disease, I am still very greatfull to

be alive. I don't know where the gratitude comes from,

but it sure helps to grow with the condition.

I hope you are doing better with your FMS.

I noticed that your Dr has you taking Ultram. I've

heard of a lot of folks who took Ultram who had funky

symptoms. I was prescribed these synthetic drugs for

about 1.5 years until I found a Dr who put me on MS

Contin (Morphin) Taken orally, it actually helped

clear a lot of Fibro Fog. It definitely made me less

groggy than Ultram or Codene. The biggest problem I

can see with taking it is the stigma that morphin has

in the minds of the public and some physicians. I

found that if you follow the dr's prescription to the

letter, and not mention to folks that you are taking

it, they usually don't look at you funny.

Have you been to a pain management clinic yet? I went

to one a couple of years ago. It really helped to

lower my overall daily pain experience. I was even

able to go back to work after completing this one

month clinic. It's given here in Manchester, NH and in

Boston, MA I'm sure there are others in your area that

are given by reputable physicians -- you might want to

check one out.

Go slow,

--- Allicia wrote:

> Hello my name is Allicia and I am 21 years of age. I

> live in Indiana

> and I was recently diagnosed a year ago with

> Fibromyalgia and

> Raynauds.This has been a tramadic experience for me,

> but I am trying

> to deal with this the best way I know how. Granted

> it has its ups and

> downs as most parts of life do, but I am trying the

> best way I know

> how to deal with this.

> Being 21 it has made it especially difficult to deal

> with because

> most people my age are in college, working full

> time, going out to

> the bars, night clubs, and dancing on the weekends.

> I however can not

> do any of these.

> I can not go to college because the drive there

> wears me out and

> makes me sleepy, and believe me the prof's do not

> like you sleeping

> in class trust me..( I found out the hard way) I can

> not stay awake

> to save my life. I sleep 15-20 hours a day at least.

>

> I can not work because no one is going to hire a 21

> year old with a

> chronic disease who does not have a college degree

> these days. Plus

> with the economy the way it is...there is

> deffinately not too much

> hope out there. I can not stand on my feet for long

> periods of time

> because my legs and feet start to stiffen to the

> point of me not

> being able to move.

> So I stay at home with my Golden Retriever who keeps

> me company. I

> live with my boyfriend of 2 years who works 80 hours

> a week to make

> ends meet since I can not work or receive disablity.

> So if I don't

> get disablity or find a job by December I will

> pretty much be out of

> a relationship and back with mommy.Things have

> deffinately been a

> challenge in the year 2001 and it looks like it is

> deffinately going

> out with a bang. *(

> I am looking foward to talking with you all and

> listening to

> suggestions. The following are the medicaitons I am

> on and take

> everynight/day.

>

> Effexor 225 mg.

> Detrol LA 4 mg.

> Urimax

> Zyrtec 10 mg.

> Ultram 50 mg.

> Skelaxin 400 mg. 4 pills day

> Naproxen 500 mg. 3 x's a day

> Clonzepam 1/2 mg.

> Zanaflex 4 mg.

> Dewowen cream .05% (falickyalitist not sure on

> spelling)sores on face

> & body

> Clobetasol .05% (falickyalitist not sure on

> spelling) sores on scalp

> Plus two shots of toradol every two months.

>

>

__________________________________________________

[Guest guest]

Hi Allicia

Where do you live in Indiana. I'm right outside of Fort Wayne.

I'm new to the list and I'll get around to sending my bio before

to long.

Allicia wrote:

> Hello my name is Allicia and I am 21 years of age. I live in Indiana

Soft Hugs

Aria

Roanoke, IN

http://ariasplace.freeservers.com

AIM & Yahoo: AriaAJR ICQ: 36167718

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[Guest guest]

Hi Allicia

Where do you live in Indiana. I'm right outside of Fort Wayne.

I'm new to the list and I'll get around to sending my bio before

to long.

Allicia wrote:

> Hello my name is Allicia and I am 21 years of age. I live in Indiana

Soft Hugs

Aria

Roanoke, IN

http://ariasplace.freeservers.com

AIM & Yahoo: AriaAJR ICQ: 36167718

Check out my groups when you have time:

AntiqueBlockSwap has changed to:

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http://groups.yahoo.com/group/UFOsInTheQuiltWorld

[Guest guest]

,

Thank you for your informative email. I am trying to make lemonade

with my lemons as well. I also have the fibro fog severely. Infact just

tonight I had to go outside and look to see if my puppy was outside, because

I couldn't remember if I had all ready brought him in, which infact I had all

ready done so. he was upstairs asleep in my bed. I also have the fattest fish

in the whole world, because I fed them 5,000 times a day due to the fact that

I can not remember if I had fed them before or not. It is very very

frustrating and I understand where you are coming from. No I have never been

to a pain management clinic before. I would like to go, but my rheumy will

not refer me and the ones around this area will not see you unless referred

by a doc. So I am stuck with my thousands of NSAIDS and sitting at him with

my puppy...

Thanks again for your wonderful letter. huggzz

Allicia

[Guest guest]

Jeane,

Thank you soo much for responding to my email. Its nice seeing someone

who has delt with this at such a young age. I wish I had the drive to go back

to school, but I don't have it anymore. My rheumy told me to either go back

to school full time or get a full time job. Its sooo aggervating. I too have

wondered if I am over medicated. I love to swim as well. This summer I went

to the local swimming pool and swam almost everyday. You couldn't believe how

much difference it made for me, but with winter setting on now, I can not

afford to go to the Y and swim it is soo expensive. So I usually just go to

my b/f aunt's hottub and get my muscles limbered up and stretch while sitting

in the hottub.

Thanks again for your wonderful post. Take care and lots of huggzzz

Allicia

[Guest guest]

Jeane,

Thank you soo much for responding to my email. Its nice seeing someone

who has delt with this at such a young age. I wish I had the drive to go back

to school, but I don't have it anymore. My rheumy told me to either go back

to school full time or get a full time job. Its sooo aggervating. I too have

wondered if I am over medicated. I love to swim as well. This summer I went

to the local swimming pool and swam almost everyday. You couldn't believe how

much difference it made for me, but with winter setting on now, I can not

afford to go to the Y and swim it is soo expensive. So I usually just go to

my b/f aunt's hottub and get my muscles limbered up and stretch while sitting

in the hottub.

Thanks again for your wonderful post. Take care and lots of huggzzz

Allicia

[Guest guest]

Jeane,

Thank you soo much for responding to my email. Its nice seeing someone

who has delt with this at such a young age. I wish I had the drive to go back

to school, but I don't have it anymore. My rheumy told me to either go back

to school full time or get a full time job. Its sooo aggervating. I too have

wondered if I am over medicated. I love to swim as well. This summer I went

to the local swimming pool and swam almost everyday. You couldn't believe how

much difference it made for me, but with winter setting on now, I can not

afford to go to the Y and swim it is soo expensive. So I usually just go to

my b/f aunt's hottub and get my muscles limbered up and stretch while sitting

in the hottub.

Thanks again for your wonderful post. Take care and lots of huggzzz

Allicia

[Guest guest]

Aria,

I live in Muncie. I went to a Rheumatologist up there and he was

horrible. his name was Ko. He was the awfulest doc. I have EVER been

to. He said everything on the internet was b.s., more or less we found out

the hard way if he didn't rx it then it didn't exsist or I was rx'ed wrong.

So I quit going to him. he was mean, rough with me, and I didn't like him at

all. Well if you have anymore questions for me feel free to email me.

Allicia

[Guest guest]

Aria,

I live in Muncie. I went to a Rheumatologist up there and he was

horrible. his name was Ko. He was the awfulest doc. I have EVER been

to. He said everything on the internet was b.s., more or less we found out

the hard way if he didn't rx it then it didn't exsist or I was rx'ed wrong.

So I quit going to him. he was mean, rough with me, and I didn't like him at

all. Well if you have anymore questions for me feel free to email me.

Allicia

[Guest guest]

Hugs and welcome, Allicia. Yes, it is very difficult to be so young and so

incapacitated. Looking back, I was probably in my mid twenties when FMS

first grabbed me, but at that time it didn't have a name . . . except for

possibly hypochondria! From your list of meds, I wonder if possibly you

are over medicated? Just seems like a lot, but I'm a person who prefers to

take as little medication as possible. You might try swimming for

exercise. As for college, try taking just a few classes . . . say two

classes that both meet on the same days. Talk with your teachers about

your problems and ask to record lectures. This is how I got thru college

and my master's program, and I also have ADHD, which added it's own unique

problems. It wasn't at all easy, but it was something that I really wanted.

Hang in there, sweetie, and try to gather about you a strong support

system. You've got an excellent start already . . . the perfect dog for

someone with FMS! They are awesome!

>Hello my name is Allicia and I am 21 years of age. I live in Indiana

>and I was recently diagnosed a year ago with Fibromyalgia and

>Raynauds.This has been a tramadic experience for me, but I am trying

>to deal with this the best way I know how. Granted it has its ups and

>downs as most parts of life do, but I am trying the best way I know

>how to deal with this.

>Being 21 it has made it especially difficult to deal with because

>most people my age are in college, working full time, going out to

>the bars, night clubs, and dancing on the weekends. I however can not

>do any of these.

Jeane, who thinks animals in general are the BEST MEDICINE!

[Guest guest]

Hugs and welcome, Allicia. Yes, it is very difficult to be so young and so

incapacitated. Looking back, I was probably in my mid twenties when FMS

first grabbed me, but at that time it didn't have a name . . . except for

possibly hypochondria! From your list of meds, I wonder if possibly you

are over medicated? Just seems like a lot, but I'm a person who prefers to

take as little medication as possible. You might try swimming for

exercise. As for college, try taking just a few classes . . . say two

classes that both meet on the same days. Talk with your teachers about

your problems and ask to record lectures. This is how I got thru college

and my master's program, and I also have ADHD, which added it's own unique

problems. It wasn't at all easy, but it was something that I really wanted.

Hang in there, sweetie, and try to gather about you a strong support

system. You've got an excellent start already . . . the perfect dog for

someone with FMS! They are awesome!

>Hello my name is Allicia and I am 21 years of age. I live in Indiana

>and I was recently diagnosed a year ago with Fibromyalgia and

>Raynauds.This has been a tramadic experience for me, but I am trying

>to deal with this the best way I know how. Granted it has its ups and

>downs as most parts of life do, but I am trying the best way I know

>how to deal with this.

>Being 21 it has made it especially difficult to deal with because

>most people my age are in college, working full time, going out to

>the bars, night clubs, and dancing on the weekends. I however can not

>do any of these.

Jeane, who thinks animals in general are the BEST MEDICINE!

[Guest guest]

Hugs and welcome, Allicia. Yes, it is very difficult to be so young and so

incapacitated. Looking back, I was probably in my mid twenties when FMS

first grabbed me, but at that time it didn't have a name . . . except for

possibly hypochondria! From your list of meds, I wonder if possibly you

are over medicated? Just seems like a lot, but I'm a person who prefers to

take as little medication as possible. You might try swimming for

exercise. As for college, try taking just a few classes . . . say two

classes that both meet on the same days. Talk with your teachers about

your problems and ask to record lectures. This is how I got thru college

and my master's program, and I also have ADHD, which added it's own unique

problems. It wasn't at all easy, but it was something that I really wanted.

Hang in there, sweetie, and try to gather about you a strong support

system. You've got an excellent start already . . . the perfect dog for

someone with FMS! They are awesome!

>Hello my name is Allicia and I am 21 years of age. I live in Indiana

>and I was recently diagnosed a year ago with Fibromyalgia and

>Raynauds.This has been a tramadic experience for me, but I am trying

>to deal with this the best way I know how. Granted it has its ups and

>downs as most parts of life do, but I am trying the best way I know

>how to deal with this.

>Being 21 it has made it especially difficult to deal with because

>most people my age are in college, working full time, going out to

>the bars, night clubs, and dancing on the weekends. I however can not

>do any of these.

Jeane, who thinks animals in general are the BEST MEDICINE!

[Guest guest]

Can you give me your doctors information and such. I want to try to get on

disability, but it isn't look'n to promising right now with the Rheumy I have

now, she refuses to sign for it...she says that she isn't going to let me

have an easy " out " like that...I am just soo frustrated. If you could give me

that information I would be very grateful. Thanks a bunches.

Allicia

[Guest guest]

Can you give me your doctors information and such. I want to try to get on

disability, but it isn't look'n to promising right now with the Rheumy I have

now, she refuses to sign for it...she says that she isn't going to let me

have an easy " out " like that...I am just soo frustrated. If you could give me

that information I would be very grateful. Thanks a bunches.

Allicia

[Guest guest]

Can you give me your doctors information and such. I want to try to get on

disability, but it isn't look'n to promising right now with the Rheumy I have

now, she refuses to sign for it...she says that she isn't going to let me

have an easy " out " like that...I am just soo frustrated. If you could give me

that information I would be very grateful. Thanks a bunches.

Allicia

[Guest guest]

Great thanks

[Guest guest]

Great thanks

[Guest guest]

Great thanks

[Guest guest]

I use MS Contin and it is a big help in controlling my pain. However, I have

Vicodon for breakthrough pain. I take 1 or 2 every 6 hours. Most days I

have to take the Vicodon. If I am asked, which I seldom am, I just tell them

Mscontin. That takes care of that. My close friends know that it is

morphine.

I don't know if it has helped with the fibro fog. Today I locked my keys in

the car with the motor running. I had to call my daughter to go to our house

and get her dad's keys. He just received a new knee and of course he could

not come and help. I left my extra key in another purse when I went to

England and forgot to get them out.

Take care,

Irene

> about 1.5 years until I found a Dr who put me on MS

> Contin (Morphine) Taken orally, it actually helped

> clear a lot of Fibro Fog. It definitely made me less

> groggy than Ultram or Codeine. The biggest problem I

> can see with taking it is the stigma that morphine has

> in the minds of the public and some physicians. I

> found that if you follow the dr's prescription to the

> letter, and not mention to folks that you are taking

>

[Guest guest]

I use MS Contin and it is a big help in controlling my pain. However, I have

Vicodon for breakthrough pain. I take 1 or 2 every 6 hours. Most days I

have to take the Vicodon. If I am asked, which I seldom am, I just tell them

Mscontin. That takes care of that. My close friends know that it is

morphine.

I don't know if it has helped with the fibro fog. Today I locked my keys in

the car with the motor running. I had to call my daughter to go to our house

and get her dad's keys. He just received a new knee and of course he could

not come and help. I left my extra key in another purse when I went to

England and forgot to get them out.

Take care,

Irene

> about 1.5 years until I found a Dr who put me on MS

> Contin (Morphine) Taken orally, it actually helped

> clear a lot of Fibro Fog. It definitely made me less

> groggy than Ultram or Codeine. The biggest problem I

> can see with taking it is the stigma that morphine has

> in the minds of the public and some physicians. I

> found that if you follow the dr's prescription to the

> letter, and not mention to folks that you are taking

>

[Guest guest]

I use MS Contin and it is a big help in controlling my pain. However, I have

Vicodon for breakthrough pain. I take 1 or 2 every 6 hours. Most days I

have to take the Vicodon. If I am asked, which I seldom am, I just tell them

Mscontin. That takes care of that. My close friends know that it is

morphine.

I don't know if it has helped with the fibro fog. Today I locked my keys in

the car with the motor running. I had to call my daughter to go to our house

and get her dad's keys. He just received a new knee and of course he could

not come and help. I left my extra key in another purse when I went to

England and forgot to get them out.

Take care,

Irene

> about 1.5 years until I found a Dr who put me on MS

> Contin (Morphine) Taken orally, it actually helped

> clear a lot of Fibro Fog. It definitely made me less

> groggy than Ultram or Codeine. The biggest problem I

> can see with taking it is the stigma that morphine has

> in the minds of the public and some physicians. I

> found that if you follow the dr's prescription to the

> letter, and not mention to folks that you are taking

>

[Guest guest]

We're only about 1 hr from each other. I'm seeing a dr of internal

medicine in Fort Wayne that is fabulous. He is compassionate and

caring. They even have a dr that works with him that helps patients

with disability claims. I've been on SSDI for 3 yrs. It took 2 yrs

to get it. I had a good attorney in Muncie.

Allicia21@... wrote:

> Aria,

> I live in Muncie. I went to a Rheumatologist up there and he was

> horrible. his name was Ko.

Soft Hugs

Aria

Roanoke, IN

http://ariasplace.freeservers.com

AIM & Yahoo: AriaAJR ICQ: 36167718

Check out my groups when you have time:

AntiqueBlockSwap has changed to:

http://groups.yahoo.com/group/AmericaUnderCovers

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http://groups.yahoo.com/group/BlockOfTheMonth

http://groups.yahoo.com/group/UFOsInTheQuiltWorld