Re: Hemoglobin and Hematocrit

[Guest guest]

Hi... while the anemia often doesn't come until kidney functioning

is decreased a good bit... I just had to tell you that it's not as

rare as some might think!

My daughter (2 1/2 yrs old) went from a normal RBC count one month

to a well below normal one 2 months later. The only thing that

changed in between was she started having blood (and protein of

course) in her urine. The longer she bled the lower her counts

were. Platelets and WBC were also starting to drop right before

treatment started. When she got to 9 (hemoglobin I think?) they

said if she got any lower they would have to start thinking about

treating the anemia. All the while she was on iron supplements.

ANYWAY... after she started steroids... and the inflammation

decreased and the blood went from gross to microscopic... her counts

went back to normal. Her kidney functioning is 95% right now.

(approx)

So... if it concerns you- as it did me- and he is still losing

blood... then by all means request that they check his CBC. It

can't hurt anything. And it's your son. Whether my daughters blood

counts dropped because of lack of EPO being produced- or from actual

blood loss is irrelevant. What matters is that they dropped... and

early in her kidney disease. Please get him checked if it would

make you feel better. I also talked with another mom on IgAN.ca

that stated that her sons got as low as 7.6 and they were very

concerned! Once steroids were started his counts returned to

normal.

Good luck and I'm interested in hearing what the doctor says.

mom to 2.5 yrs old

> Hi, With all those protein/ creatinine ratios done, why has my

son's

> nephrologist never checked his blood count? Doesn't all that blood

> passing in the urine lower his count? I'm confused.

[Guest guest]

Oops. That should have read "

" To me, it's almost inconceivable that hemoglobin would NOT have been

checked. "

Inserted the word NOT in there.

Pierre

Re: Re: Hemoglobin and Hematocrit

> It's probably appropriate for a reminder here that most of what is said on

> here about IgAN is about late teens and adults. With children, especially

> very young ones, it's a whole other ballgame, so I wouldn't advise taking

> any chances with anything when it comes to small children. To me, it's

> almost inconceivable that hemoglobin would have been checked. It's usually

> done with the rest of the blood work, even if there NO visible blood in

the

> urine.

> Pierre

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Oops. That should have read "

" To me, it's almost inconceivable that hemoglobin would NOT have been

checked. "

Inserted the word NOT in there.

Pierre

Re: Re: Hemoglobin and Hematocrit

> It's probably appropriate for a reminder here that most of what is said on

> here about IgAN is about late teens and adults. With children, especially

> very young ones, it's a whole other ballgame, so I wouldn't advise taking

> any chances with anything when it comes to small children. To me, it's

> almost inconceivable that hemoglobin would have been checked. It's usually

> done with the rest of the blood work, even if there NO visible blood in

the

> urine.

> Pierre

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Oops. That should have read "

" To me, it's almost inconceivable that hemoglobin would NOT have been

checked. "

Inserted the word NOT in there.

Pierre

Re: Re: Hemoglobin and Hematocrit

> It's probably appropriate for a reminder here that most of what is said on

> here about IgAN is about late teens and adults. With children, especially

> very young ones, it's a whole other ballgame, so I wouldn't advise taking

> any chances with anything when it comes to small children. To me, it's

> almost inconceivable that hemoglobin would have been checked. It's usually

> done with the rest of the blood work, even if there NO visible blood in

the

> urine.

> Pierre

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>