Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Trisha, That was a big help to me. Thanks for the tips. Dyan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Hi Tara My name is and I'm the mom of 3. She is asd and also very hyper. I've found that alot of movement helps. We do joint compressions twice daily along with tampoline jumping, and rollar skating. I find this helps but not enough. I also find her on top of stereo speakers, desks etc. I am suppose to be hearing something from another OT company this week. When I do hopefully I'll have some more ideas. They are going to write me up a " sensory diet " for her at home. Hugs PS I have cried every single day since she was diagnoised it's been over a year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Hi Tara My name is and I'm the mom of 3. She is asd and also very hyper. I've found that alot of movement helps. We do joint compressions twice daily along with tampoline jumping, and rollar skating. I find this helps but not enough. I also find her on top of stereo speakers, desks etc. I am suppose to be hearing something from another OT company this week. When I do hopefully I'll have some more ideas. They are going to write me up a " sensory diet " for her at home. Hugs PS I have cried every single day since she was diagnoised it's been over a year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Hello. My name is Tara and I am brand new to this group. I suppose I should start by telling you that I am a 34 year old divorced mother of 5 year old twins. My son, Landrue is an NT and my daughter Kylin has recently been diagnosed in the autism spectrum. She is very verbal, but much of what she says cannot be deciphered. She does use gestures,such as pulling you to what she wants, but struggles with her language as a means to communicate. Sometimes she becomes so frustrated she simply cannot think of anything else to do but growl and yell. I have known for some time that autism was a possibility. We live in Iowa and they do not like to " label " a child. They would not even place her until she was at least five. She has had benefit of a really strong early intervention program. She has had in-home intervention since the age of 9 months. We have graduated out of OT and PT. We are still doing speech of course. She was also diagnosed with ADHD. Great combo. The crux of the problem with Kylin is extreme physical activity. She constantly climbs and hangs in all of my doorways, curtain rods (had to really nip that one!) anywhere she can get to. The other day I heard her yelling help!help! When I entered the living room, she had climbed on top of my computer armois and slid down behind it. I had to strain and pull the armois to move it and rescue her. Does anyone have any suggestions to curb this behavior? She is on Atarax to aid in sleeping at night. Thank God for that drug! Before we started seeing the child psychologist (last month was first visit), I suffered years of sleep deprevity. It is difficult to bring Kylin to family functions because she does not play with toys like a " normal " child and all she is interested in doing is climbing. This gives me very little time for family socialization because I am too busy chasing her around. I feel very frustrated and sad for the future I had in mind for her is gone. I mourn the little girl I imagined would grow up and have a family of her own. I mourn the loss of the life I had in mind for her and my son. Unfortunately, he sometimes get shafted because she demands so much of my time. I work 40+ hours per week and try to give him some one on one time as well, but he does not always get as much as he needs. My ex-husband is nowhere to be found and has no relationship with his children. Nor does he feel any financial obligation. I guess I am just looking for some insight from other people who understand the world of autism. I am trying to navigate, but feel like my compass is broken. Crying myself to sleep doesn't seem to be working, and besides I look like hell the next day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Trampoline jumping? Wow, I hadn't thought of that. debbi -----Original Message----- From: myfishruleWJG@... Hi Tara My name is and I'm the mom of 3. She is asd and also very hyper. I've found that alot of movement helps. We do joint compressions twice daily along with tampoline jumping, and rollar skating. I find this helps but not enough. I also find her on top of stereo speakers, desks etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Trampoline jumping? Wow, I hadn't thought of that. debbi -----Original Message----- From: myfishruleWJG@... Hi Tara My name is and I'm the mom of 3. She is asd and also very hyper. I've found that alot of movement helps. We do joint compressions twice daily along with tampoline jumping, and rollar skating. I find this helps but not enough. I also find her on top of stereo speakers, desks etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Trampoline jumping? Wow, I hadn't thought of that. debbi -----Original Message----- From: myfishruleWJG@... Hi Tara My name is and I'm the mom of 3. She is asd and also very hyper. I've found that alot of movement helps. We do joint compressions twice daily along with tampoline jumping, and rollar skating. I find this helps but not enough. I also find her on top of stereo speakers, desks etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 --- Hi my name is Daeley and I am also new to this group. I have a 5 year old boy with autism who is also very very hyper and also a 4 year old NT boy. Chasing taylor at family functions is pretty much what i do too! My son isnt so much a climber, he's a jumper. He jumps up and down alot! We too use a trampoline. We have found that our son get " more " wound up with physical activities rather than worn out and calmer. If he is playing outside or doing anything physically exhilerating..he becomes more hyper and cannot bring himself back down. So, we have found for our son...that finding calming activities works best. We try to keep his activity level from getting past the point of no return...by using activities that calm him. For taylor it is things like gentle swinging, sucking milkshake or apple sauce thru a straw (sucking is calming to him), holding his favorite baby blanket, reading books, cuddling, computer, video games, deep pressure massage, (taylor doesnt like light touch), etc. We also make sure we pack a backpack with some of his favorite calming things so we can pull out one when we need it. I have no idea if this will help you at all. But for taylor when he has that need to jump...we do the trampoline. Maybe for climbing...you can have her climb a jungle gym. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 > Trampoline jumping? Wow, I hadn't thought of that. > > debbi > -----Original Message----- > From: myfishruleWJG@a... [mailto:myfishruleWJG@a...] > > Hi Tara > > My name is and I'm the mom of 3. She is asd and also very > hyper. > I've found that alot of movement helps. We do joint compressions twice > daily along with tampoline jumping, and rollar skating. I find this helps > but not enough. I also find her on top of stereo speakers, desks etc. Thank-you for your warm welcome. I appreciate your offer for suggestions. Got any for potty training? I suppose the up side to all of Kylin's climbing is that she has a six pack on her stomache to absolutely envy. Although she has callouses worse than any construction worker on her hands and feet. She's definitely NOT my delicate flower. The one thing I am grateful for is the fact that she is very affectionate and social. She doesn't always play with other kids, but she likes to be held and loved on. She initiates often and she's just so sweet. I may look into the trampoline option. Just need a place to put it. She has a large sturdy tension rod on the doorway of her room so she can do all of her " tricks " . It helps, but damned if I can confine her to just that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 > Trampoline jumping? Wow, I hadn't thought of that. > > debbi > -----Original Message----- > From: myfishruleWJG@a... [mailto:myfishruleWJG@a...] > > Hi Tara > > My name is and I'm the mom of 3. She is asd and also very > hyper. > I've found that alot of movement helps. We do joint compressions twice > daily along with tampoline jumping, and rollar skating. I find this helps > but not enough. I also find her on top of stereo speakers, desks etc. Thank-you for your warm welcome. I appreciate your offer for suggestions. Got any for potty training? I suppose the up side to all of Kylin's climbing is that she has a six pack on her stomache to absolutely envy. Although she has callouses worse than any construction worker on her hands and feet. She's definitely NOT my delicate flower. The one thing I am grateful for is the fact that she is very affectionate and social. She doesn't always play with other kids, but she likes to be held and loved on. She initiates often and she's just so sweet. I may look into the trampoline option. Just need a place to put it. She has a large sturdy tension rod on the doorway of her room so she can do all of her " tricks " . It helps, but damned if I can confine her to just that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 > Trampoline jumping? Wow, I hadn't thought of that. > > debbi > -----Original Message----- > From: myfishruleWJG@a... [mailto:myfishruleWJG@a...] > > Hi Tara > > My name is and I'm the mom of 3. She is asd and also very > hyper. > I've found that alot of movement helps. We do joint compressions twice > daily along with tampoline jumping, and rollar skating. I find this helps > but not enough. I also find her on top of stereo speakers, desks etc. Thank-you for your warm welcome. I appreciate your offer for suggestions. Got any for potty training? I suppose the up side to all of Kylin's climbing is that she has a six pack on her stomache to absolutely envy. Although she has callouses worse than any construction worker on her hands and feet. She's definitely NOT my delicate flower. The one thing I am grateful for is the fact that she is very affectionate and social. She doesn't always play with other kids, but she likes to be held and loved on. She initiates often and she's just so sweet. I may look into the trampoline option. Just need a place to put it. She has a large sturdy tension rod on the doorway of her room so she can do all of her " tricks " . It helps, but damned if I can confine her to just that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 > Trampoline jumping? Wow, I hadn't thought of that. > > debbi > -----Original Message----- > From: myfishruleWJG@a... [mailto:myfishruleWJG@a...] > > Hi Tara > > My name is and I'm the mom of 3. She is asd and also very > hyper. > I've found that alot of movement helps. We do joint compressions twice > daily along with tampoline jumping, and rollar skating. I find this helps > but not enough. I also find her on top of stereo speakers, desks etc. Thank-you for your warm welcome. I appreciate your offer for suggestions. Got any for potty training? I suppose the up side to all of Kylin's climbing is that she has a six pack on her stomache to absolutely envy. Although she has callouses worse than any construction worker on her hands and feet. She's definitely NOT my delicate flower. The one thing I am grateful for is the fact that she is very affectionate and social. She doesn't always play with other kids, but she likes to be held and loved on. She initiates often and she's just so sweet. I may look into the trampoline option. Just need a place to put it. She has a large sturdy tension rod on the doorway of her room so she can do all of her " tricks " . It helps, but damned if I can confine her to just that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 > Trampoline jumping? Wow, I hadn't thought of that. > > debbi > -----Original Message----- > From: myfishruleWJG@a... [mailto:myfishruleWJG@a...] > > Hi Tara > > My name is and I'm the mom of 3. She is asd and also very > hyper. > I've found that alot of movement helps. We do joint compressions twice > daily along with tampoline jumping, and rollar skating. I find this helps > but not enough. I also find her on top of stereo speakers, desks etc. Thank-you for your warm welcome. I appreciate your offer for suggestions. Got any for potty training? I suppose the up side to all of Kylin's climbing is that she has a six pack on her stomache to absolutely envy. Although she has callouses worse than any construction worker on her hands and feet. She's definitely NOT my delicate flower. The one thing I am grateful for is the fact that she is very affectionate and social. She doesn't always play with other kids, but she likes to be held and loved on. She initiates often and she's just so sweet. I may look into the trampoline option. Just need a place to put it. She has a large sturdy tension rod on the doorway of her room so she can do all of her " tricks " . It helps, but damned if I can confine her to just that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 > Trampoline jumping? Wow, I hadn't thought of that. > > debbi > -----Original Message----- > From: myfishruleWJG@a... [mailto:myfishruleWJG@a...] > > Hi Tara > > My name is and I'm the mom of 3. She is asd and also very > hyper. > I've found that alot of movement helps. We do joint compressions twice > daily along with tampoline jumping, and rollar skating. I find this helps > but not enough. I also find her on top of stereo speakers, desks etc. Thank-you for your warm welcome. I appreciate your offer for suggestions. Got any for potty training? I suppose the up side to all of Kylin's climbing is that she has a six pack on her stomache to absolutely envy. Although she has callouses worse than any construction worker on her hands and feet. She's definitely NOT my delicate flower. The one thing I am grateful for is the fact that she is very affectionate and social. She doesn't always play with other kids, but she likes to be held and loved on. She initiates often and she's just so sweet. I may look into the trampoline option. Just need a place to put it. She has a large sturdy tension rod on the doorway of her room so she can do all of her " tricks " . It helps, but damned if I can confine her to just that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Hi Tara!! <waves wildly> Can you tell I'm excited??? My name is Debbie and I have 29 month old boy/girl twins. Like you, one of my twins is ASD and the other is NT. Except we're reversed ... my son Jordan is ASD and my daughter is NT. I'm so excited to have another person in the same situation, ASD/NT twins. It puts a whole different twist on autism & siblings. Anyways, welcome to the group. You'll love it here. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Hi Tara!! <waves wildly> Can you tell I'm excited??? My name is Debbie and I have 29 month old boy/girl twins. Like you, one of my twins is ASD and the other is NT. Except we're reversed ... my son Jordan is ASD and my daughter is NT. I'm so excited to have another person in the same situation, ASD/NT twins. It puts a whole different twist on autism & siblings. Anyways, welcome to the group. You'll love it here. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Hi Tara!! <waves wildly> Can you tell I'm excited??? My name is Debbie and I have 29 month old boy/girl twins. Like you, one of my twins is ASD and the other is NT. Except we're reversed ... my son Jordan is ASD and my daughter is NT. I'm so excited to have another person in the same situation, ASD/NT twins. It puts a whole different twist on autism & siblings. Anyways, welcome to the group. You'll love it here. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Hey Tara, glad to have you here! This place is my life line. Alot of our kids have sleep issues and behavioral issues like your daughter's hyperactivity. Our house has been privy to flying, climbing, leaping children for years now. Two of the five have sleep medications, and another may yet be there. Autism is what we do here at PA and at our house. (dh for 17 years) , 15yo, AS unofficially, formal dx's NVLD, Tourette's, ADD, OCD Gail, 13yo, Severe ADHD, Anxiety, Panic attacks, OCD , 10yo, HFA, ADHD, Tourette's BP , 5yo next week, PDD-NOS, Sensory Issues , 2.5yo, PDD=NOS as of today instead of apraxia and DSI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Hey Tara, glad to have you here! This place is my life line. Alot of our kids have sleep issues and behavioral issues like your daughter's hyperactivity. Our house has been privy to flying, climbing, leaping children for years now. Two of the five have sleep medications, and another may yet be there. Autism is what we do here at PA and at our house. (dh for 17 years) , 15yo, AS unofficially, formal dx's NVLD, Tourette's, ADD, OCD Gail, 13yo, Severe ADHD, Anxiety, Panic attacks, OCD , 10yo, HFA, ADHD, Tourette's BP , 5yo next week, PDD-NOS, Sensory Issues , 2.5yo, PDD=NOS as of today instead of apraxia and DSI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Hey Tara, glad to have you here! This place is my life line. Alot of our kids have sleep issues and behavioral issues like your daughter's hyperactivity. Our house has been privy to flying, climbing, leaping children for years now. Two of the five have sleep medications, and another may yet be there. Autism is what we do here at PA and at our house. (dh for 17 years) , 15yo, AS unofficially, formal dx's NVLD, Tourette's, ADD, OCD Gail, 13yo, Severe ADHD, Anxiety, Panic attacks, OCD , 10yo, HFA, ADHD, Tourette's BP , 5yo next week, PDD-NOS, Sensory Issues , 2.5yo, PDD=NOS as of today instead of apraxia and DSI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Tara I can't get potty trained either. We have recently purchased a potty from Canada that has a sensor in the bottom. It plays old mcdonald when she pees LOL. It hasn't worked though Alot of us have bought the little tramploines from walmart. They have them in the health section for around 20 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Tara I can't get potty trained either. We have recently purchased a potty from Canada that has a sensor in the bottom. It plays old mcdonald when she pees LOL. It hasn't worked though Alot of us have bought the little tramploines from walmart. They have them in the health section for around 20 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Tara I can't get potty trained either. We have recently purchased a potty from Canada that has a sensor in the bottom. It plays old mcdonald when she pees LOL. It hasn't worked though Alot of us have bought the little tramploines from walmart. They have them in the health section for around 20 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 She initiates > often and she's just so sweet. Yep, just like a lot of the kids here. I may look into the trampoline > option. Just need a place to put it. You could always put her bed mattress right on the floor and allow her to jump on that. We have an old one downstairs and actually bought a new one to go with it. That makes up the safety padding under the monkey bars and the kids can jump there, too. The mini tramps are usually 36 to 40 " in diameter and only about 6 to 8 inches off the ground. You could store it standing against the wall and she could lay it down when she needs to bounce. Most stores like Wal Mart, Kmart and Meijers and sporting good stores have them. :-) Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 She initiates > often and she's just so sweet. Yep, just like a lot of the kids here. I may look into the trampoline > option. Just need a place to put it. You could always put her bed mattress right on the floor and allow her to jump on that. We have an old one downstairs and actually bought a new one to go with it. That makes up the safety padding under the monkey bars and the kids can jump there, too. The mini tramps are usually 36 to 40 " in diameter and only about 6 to 8 inches off the ground. You could store it standing against the wall and she could lay it down when she needs to bounce. Most stores like Wal Mart, Kmart and Meijers and sporting good stores have them. :-) Sue Quote Link to comment Share on other sites More sharing options...
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