Getting started

[Guest guest]

Trisha, That was a big help to me. Thanks for the tips.

Dyan

[Guest guest]

Hi Tara

My name is and I'm the mom of 3. She is asd and also very hyper.

I've found that alot of movement helps. We do joint compressions twice

daily along with tampoline jumping, and rollar skating. I find this helps

but not enough. I also find her on top of stereo speakers, desks etc.

I am suppose to be hearing something from another OT company this week. When

I do hopefully I'll have some more ideas. They are going to write me up a

" sensory diet " for her at home.

Hugs

PS I have cried every single day since she was diagnoised it's been over a

year.

[Guest guest]

Hi Tara

My name is and I'm the mom of 3. She is asd and also very hyper.

I've found that alot of movement helps. We do joint compressions twice

daily along with tampoline jumping, and rollar skating. I find this helps

but not enough. I also find her on top of stereo speakers, desks etc.

I am suppose to be hearing something from another OT company this week. When

I do hopefully I'll have some more ideas. They are going to write me up a

" sensory diet " for her at home.

Hugs

PS I have cried every single day since she was diagnoised it's been over a

year.

[Guest guest]

Hello. My name is Tara and I am brand new to this group. I suppose I should

start by telling you that I am a 34 year old divorced mother of 5 year old

twins. My son, Landrue is an NT and my daughter Kylin has recently been

diagnosed in the autism spectrum. She is very verbal, but much of what she says

cannot be deciphered. She does use gestures,such as pulling you to what she

wants, but struggles with her language as a means to communicate. Sometimes she

becomes so frustrated she simply cannot think of anything else to do but growl

and yell. I have known for some time that autism was a possibility. We live in

Iowa and they do not like to " label " a child. They would not even place her

until she was at least five. She has had benefit of a really strong early

intervention program. She has had in-home intervention since the age of 9

months. We have graduated out of OT and PT. We are still doing speech of

course. She was also diagnosed with ADHD. Great combo. The crux of the

problem with Kylin is extreme physical activity. She constantly climbs and hangs

in all of my doorways, curtain rods (had to really nip that one!) anywhere she

can get to. The other day I heard her yelling help!help! When I entered the

living room, she had climbed on top of my computer armois and slid down behind

it. I had to strain and pull the armois to move it and rescue her. Does anyone

have any suggestions to curb this behavior? She is on Atarax to aid in sleeping

at night. Thank God for that drug! Before we started seeing the child

psychologist (last month was first visit), I suffered years of sleep deprevity.

It is difficult to bring Kylin to family functions because she does not play

with toys like a " normal " child and all she is interested in doing is climbing.

This gives me very little time for family socialization because I am too busy

chasing her around. I feel very frustrated and sad for the future I had in mind

for her is gone. I mourn the little girl I imagined would grow up and have a

family of her own. I mourn the loss of the life I had in mind for her and my

son. Unfortunately, he sometimes get shafted because she demands so much of my

time. I work 40+ hours per week and try to give him some one on one time as

well, but he does not always get as much as he needs. My ex-husband is nowhere

to be found and has no relationship with his children. Nor does he feel any

financial obligation. I guess I am just looking for some insight from other

people who understand the world of autism. I am trying to navigate, but feel

like my compass is broken. Crying myself to sleep doesn't seem to be working,

and besides I look like hell the next day.

[Guest guest]

Trampoline jumping? Wow, I hadn't thought of that.

debbi

-----Original Message-----

From: myfishruleWJG@...

Hi Tara

My name is and I'm the mom of 3. She is asd and also very

hyper.

I've found that alot of movement helps. We do joint compressions twice

daily along with tampoline jumping, and rollar skating. I find this helps

but not enough. I also find her on top of stereo speakers, desks etc.

[Guest guest]

Trampoline jumping? Wow, I hadn't thought of that.

debbi

-----Original Message-----

From: myfishruleWJG@...

Hi Tara

My name is and I'm the mom of 3. She is asd and also very

hyper.

I've found that alot of movement helps. We do joint compressions twice

daily along with tampoline jumping, and rollar skating. I find this helps

but not enough. I also find her on top of stereo speakers, desks etc.

[Guest guest]

Trampoline jumping? Wow, I hadn't thought of that.

debbi

-----Original Message-----

From: myfishruleWJG@...

Hi Tara

My name is and I'm the mom of 3. She is asd and also very

hyper.

I've found that alot of movement helps. We do joint compressions twice

daily along with tampoline jumping, and rollar skating. I find this helps

but not enough. I also find her on top of stereo speakers, desks etc.

[Guest guest]

--- Hi my name is Daeley and I am also new to this group. I have a 5

year old boy with autism who is also very very hyper and also a 4

year old NT boy. Chasing taylor at family functions is pretty much

what i do too! My son isnt so much a climber, he's a jumper. He

jumps up and down alot! We too use a trampoline. We have found that

our son get " more " wound up with physical activities rather than worn

out and calmer. If he is playing outside or doing anything physically

exhilerating..he becomes more hyper and cannot bring himself back

down. So, we have found for our son...that finding calming

activities works best. We try to keep his activity level from getting

past the point of no return...by using activities that calm him. For

taylor it is things like gentle swinging, sucking milkshake or apple

sauce thru a straw (sucking is calming to him), holding his favorite

baby blanket, reading books, cuddling, computer, video games, deep

pressure massage, (taylor doesnt like light touch), etc. We also

make sure we pack a backpack with some of his favorite calming things

so we can pull out one when we need it. I have no idea if this will

help you at all. But for taylor when he has that need to jump...we do

the trampoline. Maybe for climbing...you can have her climb a jungle

gym.

[Guest guest]

> Trampoline jumping? Wow, I hadn't thought of that.

>

> debbi

> -----Original Message-----

> From: myfishruleWJG@a... [mailto:myfishruleWJG@a...]

>

> Hi Tara

>

> My name is and I'm the mom of 3. She is asd and also

very

> hyper.

> I've found that alot of movement helps. We do joint compressions

twice

> daily along with tampoline jumping, and rollar skating. I find

this helps

> but not enough. I also find her on top of stereo speakers, desks

etc.

Thank-you for your warm welcome. I appreciate your offer for

suggestions. Got any for potty training? I suppose the up side to

all of Kylin's climbing is that she has a six pack on her stomache to

absolutely envy. Although she has callouses worse than any

construction worker on her hands and feet. She's definitely NOT my

delicate flower. The one thing I am grateful for is the fact that

she is very affectionate and social. She doesn't always play with

other kids, but she likes to be held and loved on. She initiates

often and she's just so sweet. I may look into the trampoline

option. Just need a place to put it. She has a large sturdy tension

rod on the doorway of her room so she can do all of her " tricks " . It

helps, but damned if I can confine her to just that.

[Guest guest]

> Trampoline jumping? Wow, I hadn't thought of that.

>

> debbi

> -----Original Message-----

> From: myfishruleWJG@a... [mailto:myfishruleWJG@a...]

>

> Hi Tara

>

> My name is and I'm the mom of 3. She is asd and also

very

> hyper.

> I've found that alot of movement helps. We do joint compressions

twice

> daily along with tampoline jumping, and rollar skating. I find

this helps

> but not enough. I also find her on top of stereo speakers, desks

etc.

Thank-you for your warm welcome. I appreciate your offer for

suggestions. Got any for potty training? I suppose the up side to

all of Kylin's climbing is that she has a six pack on her stomache to

absolutely envy. Although she has callouses worse than any

construction worker on her hands and feet. She's definitely NOT my

delicate flower. The one thing I am grateful for is the fact that

she is very affectionate and social. She doesn't always play with

other kids, but she likes to be held and loved on. She initiates

often and she's just so sweet. I may look into the trampoline

option. Just need a place to put it. She has a large sturdy tension

rod on the doorway of her room so she can do all of her " tricks " . It

helps, but damned if I can confine her to just that.

[Guest guest]

> Trampoline jumping? Wow, I hadn't thought of that.

>

> debbi

> -----Original Message-----

> From: myfishruleWJG@a... [mailto:myfishruleWJG@a...]

>

> Hi Tara

>

> My name is and I'm the mom of 3. She is asd and also

very

> hyper.

> I've found that alot of movement helps. We do joint compressions

twice

> daily along with tampoline jumping, and rollar skating. I find

this helps

> but not enough. I also find her on top of stereo speakers, desks

etc.

Thank-you for your warm welcome. I appreciate your offer for

suggestions. Got any for potty training? I suppose the up side to

all of Kylin's climbing is that she has a six pack on her stomache to

absolutely envy. Although she has callouses worse than any

construction worker on her hands and feet. She's definitely NOT my

delicate flower. The one thing I am grateful for is the fact that

she is very affectionate and social. She doesn't always play with

other kids, but she likes to be held and loved on. She initiates

often and she's just so sweet. I may look into the trampoline

option. Just need a place to put it. She has a large sturdy tension

rod on the doorway of her room so she can do all of her " tricks " . It

helps, but damned if I can confine her to just that.

[Guest guest]

> Trampoline jumping? Wow, I hadn't thought of that.

>

> debbi

> -----Original Message-----

> From: myfishruleWJG@a... [mailto:myfishruleWJG@a...]

>

> Hi Tara

>

> My name is and I'm the mom of 3. She is asd and also

very

> hyper.

> I've found that alot of movement helps. We do joint compressions

twice

> daily along with tampoline jumping, and rollar skating. I find

this helps

> but not enough. I also find her on top of stereo speakers, desks

etc.

Thank-you for your warm welcome. I appreciate your offer for

suggestions. Got any for potty training? I suppose the up side to

all of Kylin's climbing is that she has a six pack on her stomache to

absolutely envy. Although she has callouses worse than any

construction worker on her hands and feet. She's definitely NOT my

delicate flower. The one thing I am grateful for is the fact that

she is very affectionate and social. She doesn't always play with

other kids, but she likes to be held and loved on. She initiates

often and she's just so sweet. I may look into the trampoline

option. Just need a place to put it. She has a large sturdy tension

rod on the doorway of her room so she can do all of her " tricks " . It

helps, but damned if I can confine her to just that.

[Guest guest]

> Trampoline jumping? Wow, I hadn't thought of that.

>

> debbi

> -----Original Message-----

> From: myfishruleWJG@a... [mailto:myfishruleWJG@a...]

>

> Hi Tara

>

> My name is and I'm the mom of 3. She is asd and also

very

> hyper.

> I've found that alot of movement helps. We do joint compressions

twice

> daily along with tampoline jumping, and rollar skating. I find

this helps

> but not enough. I also find her on top of stereo speakers, desks

etc.

Thank-you for your warm welcome. I appreciate your offer for

suggestions. Got any for potty training? I suppose the up side to

all of Kylin's climbing is that she has a six pack on her stomache to

absolutely envy. Although she has callouses worse than any

construction worker on her hands and feet. She's definitely NOT my

delicate flower. The one thing I am grateful for is the fact that

she is very affectionate and social. She doesn't always play with

other kids, but she likes to be held and loved on. She initiates

often and she's just so sweet. I may look into the trampoline

option. Just need a place to put it. She has a large sturdy tension

rod on the doorway of her room so she can do all of her " tricks " . It

helps, but damned if I can confine her to just that.

[Guest guest]

> Trampoline jumping? Wow, I hadn't thought of that.

>

> debbi

> -----Original Message-----

> From: myfishruleWJG@a... [mailto:myfishruleWJG@a...]

>

> Hi Tara

>

> My name is and I'm the mom of 3. She is asd and also

very

> hyper.

> I've found that alot of movement helps. We do joint compressions

twice

> daily along with tampoline jumping, and rollar skating. I find

this helps

> but not enough. I also find her on top of stereo speakers, desks

etc.

Thank-you for your warm welcome. I appreciate your offer for

suggestions. Got any for potty training? I suppose the up side to

all of Kylin's climbing is that she has a six pack on her stomache to

absolutely envy. Although she has callouses worse than any

construction worker on her hands and feet. She's definitely NOT my

delicate flower. The one thing I am grateful for is the fact that

she is very affectionate and social. She doesn't always play with

other kids, but she likes to be held and loved on. She initiates

often and she's just so sweet. I may look into the trampoline

option. Just need a place to put it. She has a large sturdy tension

rod on the doorway of her room so she can do all of her " tricks " . It

helps, but damned if I can confine her to just that.

[Guest guest]

Hi Tara!! <waves wildly> Can you tell I'm excited???

My name is Debbie and I have 29 month old boy/girl twins. Like you, one

of my twins is ASD and the other is NT. Except we're reversed ... my

son Jordan is ASD and my daughter is NT.

I'm so excited to have another person in the same situation, ASD/NT

twins. It puts a whole different twist on autism & siblings.

Anyways, welcome to the group. You'll love it here.

Debbie

[Guest guest]

Hi Tara!! <waves wildly> Can you tell I'm excited???

My name is Debbie and I have 29 month old boy/girl twins. Like you, one

of my twins is ASD and the other is NT. Except we're reversed ... my

son Jordan is ASD and my daughter is NT.

I'm so excited to have another person in the same situation, ASD/NT

twins. It puts a whole different twist on autism & siblings.

Anyways, welcome to the group. You'll love it here.

Debbie

[Guest guest]

Hi Tara!! <waves wildly> Can you tell I'm excited???

My name is Debbie and I have 29 month old boy/girl twins. Like you, one

of my twins is ASD and the other is NT. Except we're reversed ... my

son Jordan is ASD and my daughter is NT.

I'm so excited to have another person in the same situation, ASD/NT

twins. It puts a whole different twist on autism & siblings.

Anyways, welcome to the group. You'll love it here.

Debbie

[Guest guest]

Hey Tara, glad to have you here! This place is my life line. Alot

of our kids have sleep issues and behavioral issues like your

daughter's hyperactivity. Our house has been privy to flying,

climbing, leaping children for years now. Two of the five have sleep

medications, and another may yet be there. Autism is what we do here

at PA and at our house.

(dh for 17 years)

, 15yo, AS unofficially, formal dx's NVLD, Tourette's, ADD, OCD

Gail, 13yo, Severe ADHD, Anxiety, Panic attacks, OCD

, 10yo, HFA, ADHD, Tourette's BP

, 5yo next week, PDD-NOS, Sensory Issues

, 2.5yo, PDD=NOS as of today instead of apraxia and DSI.

[Guest guest]

Hey Tara, glad to have you here! This place is my life line. Alot

of our kids have sleep issues and behavioral issues like your

daughter's hyperactivity. Our house has been privy to flying,

climbing, leaping children for years now. Two of the five have sleep

medications, and another may yet be there. Autism is what we do here

at PA and at our house.

(dh for 17 years)

, 15yo, AS unofficially, formal dx's NVLD, Tourette's, ADD, OCD

Gail, 13yo, Severe ADHD, Anxiety, Panic attacks, OCD

, 10yo, HFA, ADHD, Tourette's BP

, 5yo next week, PDD-NOS, Sensory Issues

, 2.5yo, PDD=NOS as of today instead of apraxia and DSI.

[Guest guest]

Hey Tara, glad to have you here! This place is my life line. Alot

of our kids have sleep issues and behavioral issues like your

daughter's hyperactivity. Our house has been privy to flying,

climbing, leaping children for years now. Two of the five have sleep

medications, and another may yet be there. Autism is what we do here

at PA and at our house.

(dh for 17 years)

, 15yo, AS unofficially, formal dx's NVLD, Tourette's, ADD, OCD

Gail, 13yo, Severe ADHD, Anxiety, Panic attacks, OCD

, 10yo, HFA, ADHD, Tourette's BP

, 5yo next week, PDD-NOS, Sensory Issues

, 2.5yo, PDD=NOS as of today instead of apraxia and DSI.

[Guest guest]

Tara

I can't get potty trained either. We have recently purchased a potty

from Canada that has a sensor in the bottom. It plays old mcdonald when she

pees LOL.

It hasn't worked though

Alot of us have bought the little tramploines from walmart. They have them

in the health section for around 20

[Guest guest]

Tara

I can't get potty trained either. We have recently purchased a potty

from Canada that has a sensor in the bottom. It plays old mcdonald when she

pees LOL.

It hasn't worked though

Alot of us have bought the little tramploines from walmart. They have them

in the health section for around 20

[Guest guest]

Tara

I can't get potty trained either. We have recently purchased a potty

from Canada that has a sensor in the bottom. It plays old mcdonald when she

pees LOL.

It hasn't worked though

Alot of us have bought the little tramploines from walmart. They have them

in the health section for around 20

[Guest guest]

She initiates

> often and she's just so sweet.

Yep, just like a lot of the kids here.

I may look into the trampoline

> option. Just need a place to put it.

You could always put her bed mattress right on the floor and allow her to

jump on that. We have an old one downstairs and actually bought a new one

to go with it. That makes up the safety padding under the monkey bars and

the kids can jump there, too. The mini tramps are usually 36 to 40 " in

diameter and only about 6 to 8 inches off the ground. You could store it

standing against the wall and she could lay it down when she needs to

bounce. Most stores like Wal Mart, Kmart and Meijers and sporting good

stores have them. :-)

Sue

[Guest guest]

She initiates

> often and she's just so sweet.

Yep, just like a lot of the kids here.

I may look into the trampoline

> option. Just need a place to put it.

You could always put her bed mattress right on the floor and allow her to

jump on that. We have an old one downstairs and actually bought a new one

to go with it. That makes up the safety padding under the monkey bars and

the kids can jump there, too. The mini tramps are usually 36 to 40 " in

diameter and only about 6 to 8 inches off the ground. You could store it

standing against the wall and she could lay it down when she needs to

bounce. Most stores like Wal Mart, Kmart and Meijers and sporting good

stores have them. :-)

Sue