Re: do I get kicked off the list?

[Guest guest]



Why should you get kicked of the list? Just signed up to this forum and don't really know what the list is.

I was never actually diagnosed by a Dr. just know I was feeling so awfully tired I had a hard time walking with out stagering and breathing was very difficult. I went on the puter and typed in pasta allergies and was told wheat products were the problem as I always felt the very worse after eating pasta. I gave it up and within a week felt 20 years younger. I have no desire to have that feeling again so am very careful about not eating any wheat, rye, barley and oats. Myself I stay focused on what I can eat and there really a lot of it, and not think about the other stuff. Its not easy as I thought I would die if I ever had to give up pasta, pizza, and grinders. Goodluck, I know it is not easy but not impossible. I am pulling for you.

Ada

Re: do I get kicked off the list?

I feel your pain. Sorry about that!

I'm not feeling positive and optimistic about GF lifestyle today.As a matter of fact, I'm feeling quite discouraged.Hope you don't kick me off the list. But I needed to confess this darksecret in case any one has any words of encouragement.How do you get over the grief of saying good-bye to the old favorites?How do you get over the denial? "Just one <whatever> won't hurt me."How do you learn to think of the future honestly? "A minute on the tongue, a few days of pain and extra trips to the necessary room." Help! Today has NOT been an easy GF day for me.

[Guest guest]

I agree totally with you and you said it much better than I did. Isn't feeling good just the greatest?

Ada

Re: do I get kicked off the list?

I hate to be the one that says I've never really gone thru this, when i was first going gluten free many people on another list told me I would have a period of mourning. I didn't. They kept saying, you watch, its going to hit you soon, you will miss your old foods, you will be depressed, etc. Never really happened.

Do I miss pizza and beer, yeah I guess I do, but I'm certainly not going to "mourn" over food. I tend to think a lot of it is attitude and mine is that when I was diagnosed I was handed a gift. The gift of health. I'm no longer feeling awful, I don't have the runs, my belly doesn't hurt, I'd never trade in all that for a pizza. My diet is so much healthier now, I'm so much healthier, I've lost weight and don't have to watch it for the first time in 40 years, I've got more energy, my skin looks a good 10 years younger then I am. I'm doing well and feeling well for the first time in years.

I've been handed a lot of challenges in life.. I've also got Eosinophilic Colitis and I'm hearing impaired but then I've got a lot of good things going too, I'm a succssful stockbroker, I've got a wonderful boyfriend, and a happy daughter. Its all how you look at it in my book.

[Guest guest]

I agree totally with you and you said it much better than I did. Isn't feeling good just the greatest?

Ada

Re: do I get kicked off the list?

I hate to be the one that says I've never really gone thru this, when i was first going gluten free many people on another list told me I would have a period of mourning. I didn't. They kept saying, you watch, its going to hit you soon, you will miss your old foods, you will be depressed, etc. Never really happened.

Do I miss pizza and beer, yeah I guess I do, but I'm certainly not going to "mourn" over food. I tend to think a lot of it is attitude and mine is that when I was diagnosed I was handed a gift. The gift of health. I'm no longer feeling awful, I don't have the runs, my belly doesn't hurt, I'd never trade in all that for a pizza. My diet is so much healthier now, I'm so much healthier, I've lost weight and don't have to watch it for the first time in 40 years, I've got more energy, my skin looks a good 10 years younger then I am. I'm doing well and feeling well for the first time in years.

I've been handed a lot of challenges in life.. I've also got Eosinophilic Colitis and I'm hearing impaired but then I've got a lot of good things going too, I'm a succssful stockbroker, I've got a wonderful boyfriend, and a happy daughter. Its all how you look at it in my book.

[Guest guest]

I agree totally with you and you said it much better than I did. Isn't feeling good just the greatest?

Ada

Re: do I get kicked off the list?

I hate to be the one that says I've never really gone thru this, when i was first going gluten free many people on another list told me I would have a period of mourning. I didn't. They kept saying, you watch, its going to hit you soon, you will miss your old foods, you will be depressed, etc. Never really happened.

Do I miss pizza and beer, yeah I guess I do, but I'm certainly not going to "mourn" over food. I tend to think a lot of it is attitude and mine is that when I was diagnosed I was handed a gift. The gift of health. I'm no longer feeling awful, I don't have the runs, my belly doesn't hurt, I'd never trade in all that for a pizza. My diet is so much healthier now, I'm so much healthier, I've lost weight and don't have to watch it for the first time in 40 years, I've got more energy, my skin looks a good 10 years younger then I am. I'm doing well and feeling well for the first time in years.

I've been handed a lot of challenges in life.. I've also got Eosinophilic Colitis and I'm hearing impaired but then I've got a lot of good things going too, I'm a succssful stockbroker, I've got a wonderful boyfriend, and a happy daughter. Its all how you look at it in my book.

[Guest guest]

Doreen, After 53 years of not being diagnosed, I embraced the GF diet. But, I too, get frustrated with it's complexities. Believe me, the alternative of chronic illness is not acceptible. I was very ill much of the time, would get well then suddenly for no reason get sick again for years and years. After I diagnosed myself and requested the testing from my doctor--who was reluctant and didn't believe it could be Celiac, I still have problems. I'm hoping you people who are diagnosed early and maintain a gluten free lifestyle are much luckier. and much, much healthier than I am. Shirley in San DiegoDo wrote: Living with any chronic disease is all but impossible.It actually

shows me that I am not the only one not happy about this thing. Some days are worse than others.I can't even imagine living on this diet.Thank You for sharing and I hope you feel better soon, Doreen do I get kicked off the list? I'm not feeling positive and optimistic about GF lifestyle today.As a matter of fact, I'm feeling quite discouraged. Hope you don't kick me off the list. But I needed to confess this darksecret in case any one has any words of encouragement.How do you get over the grief of saying good-bye to the old favorites?How do you get over the denial? "Just one <whatever> won't hurt me."How do you learn to think of the future honestly? "A minute on the tongue, a few days of pain and extra trips to the necessary room." Help! Today has NOT been an easy GF day for me.

[Guest guest]

Doreen, After 53 years of not being diagnosed, I embraced the GF diet. But, I too, get frustrated with it's complexities. Believe me, the alternative of chronic illness is not acceptible. I was very ill much of the time, would get well then suddenly for no reason get sick again for years and years. After I diagnosed myself and requested the testing from my doctor--who was reluctant and didn't believe it could be Celiac, I still have problems. I'm hoping you people who are diagnosed early and maintain a gluten free lifestyle are much luckier. and much, much healthier than I am. Shirley in San DiegoDo wrote: Living with any chronic disease is all but impossible.It actually

shows me that I am not the only one not happy about this thing. Some days are worse than others.I can't even imagine living on this diet.Thank You for sharing and I hope you feel better soon, Doreen do I get kicked off the list? I'm not feeling positive and optimistic about GF lifestyle today.As a matter of fact, I'm feeling quite discouraged. Hope you don't kick me off the list. But I needed to confess this darksecret in case any one has any words of encouragement.How do you get over the grief of saying good-bye to the old favorites?How do you get over the denial? "Just one <whatever> won't hurt me."How do you learn to think of the future honestly? "A minute on the tongue, a few days of pain and extra trips to the necessary room." Help! Today has NOT been an easy GF day for me.

[Guest guest]

Doreen, After 53 years of not being diagnosed, I embraced the GF diet. But, I too, get frustrated with it's complexities. Believe me, the alternative of chronic illness is not acceptible. I was very ill much of the time, would get well then suddenly for no reason get sick again for years and years. After I diagnosed myself and requested the testing from my doctor--who was reluctant and didn't believe it could be Celiac, I still have problems. I'm hoping you people who are diagnosed early and maintain a gluten free lifestyle are much luckier. and much, much healthier than I am. Shirley in San DiegoDo wrote: Living with any chronic disease is all but impossible.It actually

shows me that I am not the only one not happy about this thing. Some days are worse than others.I can't even imagine living on this diet.Thank You for sharing and I hope you feel better soon, Doreen do I get kicked off the list? I'm not feeling positive and optimistic about GF lifestyle today.As a matter of fact, I'm feeling quite discouraged. Hope you don't kick me off the list. But I needed to confess this darksecret in case any one has any words of encouragement.How do you get over the grief of saying good-bye to the old favorites?How do you get over the denial? "Just one <whatever> won't hurt me."How do you learn to think of the future honestly? "A minute on the tongue, a few days of pain and extra trips to the necessary room." Help! Today has NOT been an easy GF day for me.

[Guest guest]

ayle,

that's a fascinating story. Mine is not dissimilar (although I did not have

a tooth problem. Rather, a muscle and heart rhythm problem from a potassium

shortage).

I had dry, itchy callous skin on my wrists so bad that they were numb to the

tough (the feeling is coming back, but its not there yet). I also have had a

more accellerated deterioration in eyesight- but I hadn't heard that was a

related symptom (hmmm). Anyhow, at my age, I should not be getting

near-sighted more and more every year, and I'm starting to get far-sighted

(argh)

One question, how long did it take for your stomach to go down. I have the

same distention. I have been gf for 2 months, and am also certain I am not

pregnant. I am large, but my waist is disproportionately large, making it

hard to get clothes, as anyhing that closes over the waste has me swimming

in the clothes aroung the shoulders.

>

>Reply-To: SillyYaks

>To: <SillyYaks >

>Subject: Re: do I get kicked off the list?

>Date: Sat, 17 Dec 2005 22:22:10 -0600 (Central Standard Time)

>

>Dear Esther,

>

>Eating the GF way and not the old way is a matter of breaking habits.

>

> Here's how I did coped: I kept on reading about the damage " just a

>little "

>gluten will do to my intestines. I read about malabsorption issues and how

>not absorbing vitamins and minerals can cause major diseases. My teeth were

>breaking off. Just breaking off! My stomach was swollen and my sister told

>me I looked like I was pregnant. (Can't happen; I've been fixed.) It went

>down after I went GF. I got tired of being gassy. It was embarrassing! My

>vision was getting worse -- and I've had Lasik surgery. I had itchy ankles

>every night when I went to bed. It was so bad that I had to take Benedryl

>to

>stop it. (And then I slept like I was drugged all night. Yuck.)

>

>Soooo.... I stopped eating bread. Pasta. Sauces. Gravies. .... I started

>looking for sources of gluten in everything I ate. My tummy went down and

>it

>wasn't hard anymore. The gas went away. The smelly bowel movements stopped.

>My teeth stopped breaking. The itchiness went away. I lost 31 pounds in 11

>months from eating " better. " I discovered GF bread. It's expensive but I am

>the only one in the house eating it and I only have one slice every morning

>at breakfast, so the $5 loaf lasts a long time. I discovered that I could

>buy GF bread dough frozen and turn it into pizza crust (it has yeast in it

>and smells and tastes so GOOD). My depression and mood swings went away. I

>weaned myself off of Paxil (which had robbed me of my sex drive!). I eat

>healthy, walk every day, and feel great!

>

>You'll get there, my dear Esther. Just keep on fighting the fight. And know

>this: Every day we get more choices in GF foods (in addition to fresh

>fruits

>and vegetables, etc). Awareness is growing and someday soon, the major food

>producers are going to realize that GF foods could be a very profitable

>niche market for them. More restaurants are offering GF choices. It's not

>nearly as hard to do the GF lifestyle today as it was even a year ago!

>

>You -- we -- all have reason to celebrate! In the meantime, clear your

>cupboards of forbidden foods so you won't be tempted. Don't go to parties

>yet (too many forbidden foods), only eat at restaurants where you know they

>serve GF foods, like P.F. Chang's. Go to support group meetings. Join the

>www.celiac.com link; on the first of every month, food marketers are

>allowed

>to send their ads to the link and you'll have 30-50 places that you can

>order GF food from! Some even offer free shipping if your order goes over a

>certain amount.

>

>Buy some GF chocolate coffee to brew. It smells so good and tastes good,

>too! And you'll feel a little less deprived.

>

>Good luck!

>Gail in Houston

>

>-- do I get kicked off the list?

>

>I'm not feeling positive and optimistic about GF lifestyle today.

>

>As a matter of fact, I'm feeling quite discouraged.

>

>Hope you don't kick me off the list. But I needed to confess this dark

>secret in case any one has any words of encouragement.

>

>How do you get over the grief of saying good-bye to the old favorites?

>

>How do you get over the denial? " Just one <whatever> won't hurt me. "

>

>How do you learn to think of the future honestly? " A minute on

>the tongue, a few days of pain and extra trips to the necessary room. "

>

>Help! Today has NOT been an easy GF day for me.

>

>

>

>

>

>

>

[Guest guest]

ayle,

that's a fascinating story. Mine is not dissimilar (although I did not have

a tooth problem. Rather, a muscle and heart rhythm problem from a potassium

shortage).

I had dry, itchy callous skin on my wrists so bad that they were numb to the

tough (the feeling is coming back, but its not there yet). I also have had a

more accellerated deterioration in eyesight- but I hadn't heard that was a

related symptom (hmmm). Anyhow, at my age, I should not be getting

near-sighted more and more every year, and I'm starting to get far-sighted

(argh)

One question, how long did it take for your stomach to go down. I have the

same distention. I have been gf for 2 months, and am also certain I am not

pregnant. I am large, but my waist is disproportionately large, making it

hard to get clothes, as anyhing that closes over the waste has me swimming

in the clothes aroung the shoulders.

>

>Reply-To: SillyYaks

>To: <SillyYaks >

>Subject: Re: do I get kicked off the list?

>Date: Sat, 17 Dec 2005 22:22:10 -0600 (Central Standard Time)

>

>Dear Esther,

>

>Eating the GF way and not the old way is a matter of breaking habits.

>

> Here's how I did coped: I kept on reading about the damage " just a

>little "

>gluten will do to my intestines. I read about malabsorption issues and how

>not absorbing vitamins and minerals can cause major diseases. My teeth were

>breaking off. Just breaking off! My stomach was swollen and my sister told

>me I looked like I was pregnant. (Can't happen; I've been fixed.) It went

>down after I went GF. I got tired of being gassy. It was embarrassing! My

>vision was getting worse -- and I've had Lasik surgery. I had itchy ankles

>every night when I went to bed. It was so bad that I had to take Benedryl

>to

>stop it. (And then I slept like I was drugged all night. Yuck.)

>

>Soooo.... I stopped eating bread. Pasta. Sauces. Gravies. .... I started

>looking for sources of gluten in everything I ate. My tummy went down and

>it

>wasn't hard anymore. The gas went away. The smelly bowel movements stopped.

>My teeth stopped breaking. The itchiness went away. I lost 31 pounds in 11

>months from eating " better. " I discovered GF bread. It's expensive but I am

>the only one in the house eating it and I only have one slice every morning

>at breakfast, so the $5 loaf lasts a long time. I discovered that I could

>buy GF bread dough frozen and turn it into pizza crust (it has yeast in it

>and smells and tastes so GOOD). My depression and mood swings went away. I

>weaned myself off of Paxil (which had robbed me of my sex drive!). I eat

>healthy, walk every day, and feel great!

>

>You'll get there, my dear Esther. Just keep on fighting the fight. And know

>this: Every day we get more choices in GF foods (in addition to fresh

>fruits

>and vegetables, etc). Awareness is growing and someday soon, the major food

>producers are going to realize that GF foods could be a very profitable

>niche market for them. More restaurants are offering GF choices. It's not

>nearly as hard to do the GF lifestyle today as it was even a year ago!

>

>You -- we -- all have reason to celebrate! In the meantime, clear your

>cupboards of forbidden foods so you won't be tempted. Don't go to parties

>yet (too many forbidden foods), only eat at restaurants where you know they

>serve GF foods, like P.F. Chang's. Go to support group meetings. Join the

>www.celiac.com link; on the first of every month, food marketers are

>allowed

>to send their ads to the link and you'll have 30-50 places that you can

>order GF food from! Some even offer free shipping if your order goes over a

>certain amount.

>

>Buy some GF chocolate coffee to brew. It smells so good and tastes good,

>too! And you'll feel a little less deprived.

>

>Good luck!

>Gail in Houston

>

>-- do I get kicked off the list?

>

>I'm not feeling positive and optimistic about GF lifestyle today.

>

>As a matter of fact, I'm feeling quite discouraged.

>

>Hope you don't kick me off the list. But I needed to confess this dark

>secret in case any one has any words of encouragement.

>

>How do you get over the grief of saying good-bye to the old favorites?

>

>How do you get over the denial? " Just one <whatever> won't hurt me. "

>

>How do you learn to think of the future honestly? " A minute on

>the tongue, a few days of pain and extra trips to the necessary room. "

>

>Help! Today has NOT been an easy GF day for me.

>

>

>

>

>

>

>

[Guest guest]

ayle,

that's a fascinating story. Mine is not dissimilar (although I did not have

a tooth problem. Rather, a muscle and heart rhythm problem from a potassium

shortage).

I had dry, itchy callous skin on my wrists so bad that they were numb to the

tough (the feeling is coming back, but its not there yet). I also have had a

more accellerated deterioration in eyesight- but I hadn't heard that was a

related symptom (hmmm). Anyhow, at my age, I should not be getting

near-sighted more and more every year, and I'm starting to get far-sighted

(argh)

One question, how long did it take for your stomach to go down. I have the

same distention. I have been gf for 2 months, and am also certain I am not

pregnant. I am large, but my waist is disproportionately large, making it

hard to get clothes, as anyhing that closes over the waste has me swimming

in the clothes aroung the shoulders.

>

>Reply-To: SillyYaks

>To: <SillyYaks >

>Subject: Re: do I get kicked off the list?

>Date: Sat, 17 Dec 2005 22:22:10 -0600 (Central Standard Time)

>

>Dear Esther,

>

>Eating the GF way and not the old way is a matter of breaking habits.

>

> Here's how I did coped: I kept on reading about the damage " just a

>little "

>gluten will do to my intestines. I read about malabsorption issues and how

>not absorbing vitamins and minerals can cause major diseases. My teeth were

>breaking off. Just breaking off! My stomach was swollen and my sister told

>me I looked like I was pregnant. (Can't happen; I've been fixed.) It went

>down after I went GF. I got tired of being gassy. It was embarrassing! My

>vision was getting worse -- and I've had Lasik surgery. I had itchy ankles

>every night when I went to bed. It was so bad that I had to take Benedryl

>to

>stop it. (And then I slept like I was drugged all night. Yuck.)

>

>Soooo.... I stopped eating bread. Pasta. Sauces. Gravies. .... I started

>looking for sources of gluten in everything I ate. My tummy went down and

>it

>wasn't hard anymore. The gas went away. The smelly bowel movements stopped.

>My teeth stopped breaking. The itchiness went away. I lost 31 pounds in 11

>months from eating " better. " I discovered GF bread. It's expensive but I am

>the only one in the house eating it and I only have one slice every morning

>at breakfast, so the $5 loaf lasts a long time. I discovered that I could

>buy GF bread dough frozen and turn it into pizza crust (it has yeast in it

>and smells and tastes so GOOD). My depression and mood swings went away. I

>weaned myself off of Paxil (which had robbed me of my sex drive!). I eat

>healthy, walk every day, and feel great!

>

>You'll get there, my dear Esther. Just keep on fighting the fight. And know

>this: Every day we get more choices in GF foods (in addition to fresh

>fruits

>and vegetables, etc). Awareness is growing and someday soon, the major food

>producers are going to realize that GF foods could be a very profitable

>niche market for them. More restaurants are offering GF choices. It's not

>nearly as hard to do the GF lifestyle today as it was even a year ago!

>

>You -- we -- all have reason to celebrate! In the meantime, clear your

>cupboards of forbidden foods so you won't be tempted. Don't go to parties

>yet (too many forbidden foods), only eat at restaurants where you know they

>serve GF foods, like P.F. Chang's. Go to support group meetings. Join the

>www.celiac.com link; on the first of every month, food marketers are

>allowed

>to send their ads to the link and you'll have 30-50 places that you can

>order GF food from! Some even offer free shipping if your order goes over a

>certain amount.

>

>Buy some GF chocolate coffee to brew. It smells so good and tastes good,

>too! And you'll feel a little less deprived.

>

>Good luck!

>Gail in Houston

>

>-- do I get kicked off the list?

>

>I'm not feeling positive and optimistic about GF lifestyle today.

>

>As a matter of fact, I'm feeling quite discouraged.

>

>Hope you don't kick me off the list. But I needed to confess this dark

>secret in case any one has any words of encouragement.

>

>How do you get over the grief of saying good-bye to the old favorites?

>

>How do you get over the denial? " Just one <whatever> won't hurt me. "

>

>How do you learn to think of the future honestly? " A minute on

>the tongue, a few days of pain and extra trips to the necessary room. "

>

>Help! Today has NOT been an easy GF day for me.

>

>

>

>

>

>

>

[Guest guest]

Esther,

Just a thought- I was delighted to be diagnosed, as I had been sick for

years without any clear answers. I was taking medicine that didn't help and

seeing doctors that I know thought I was crazy. And to top it off, I got

something that wasn't fatal and could be controlled without drugs or painful

invasive therapies- its not that bad a deal. I have a close friend with a

brain tumor who is still alive after 4 years, when she " died " as was brought

back the first night she was diagnosed (she thought she had sinusitis, and

went to the emergency room because her doctor was away. The had a seizure

and caridac results in the emergency room while waiting for tests) She has

been on a drug so experimental and so new that she is blazing the trail for

future users. They can't tell her how long she'll live on the drug, but they

are tracking her so they can tell future users. She's 41 and has a 4 year

old. She's had two brain surgeries, and a personality change because of

where the tumor is. SHE HAS A BAD DEAL. What we have is an inconvenience.

I have gone the opposite route as Donna- I have told everyone who will

listen, becuase I find that given the opportunity to plan ahead, most of my

true friends and family want to accomodate me. So when I get invited to

dinner, I now find potatoes as a side dish in addition or instead of pasta.

I find food without breading, and people who keep track of what went into

the food so I can figure out whether to avoid it or not.

Last night, I went a wedding for an old family friend, and as lick would

have it, the bride has a wheat allergy. I was in hog heaven. Shrimp,

oysters, carved meat, beautifully prepared fresh fruit, cheese and contourni

style vegatbles. The only real accomodations: no pasta bar, and I had to eat

the cavier off a plate instead of toast points or blini (which were probably

buckwheat, but I couldn't be sure).

Sure, its rotten thinking you have any restrictions in life, but everybody

has restrictions, some are just more obvious.

I had an " I miss it momemt " today. I was sharring some New England Clam

Chowder with my son, and I gave him some crackers, and really would have

liked some for the soup, but I haven't found a good gf soup cracker, so I

abstained. There will be moments like that. They just don't seem as painful

after a while. I am only gf for 2 months, but the improvement has been

dramatic. Is it worth it to feel sick? For me, no.

>

>Reply-To: SillyYaks

>To: <SillyYaks >

>Subject: Re: do I get kicked off the list?

>Date: Sun, 18 Dec 2005 06:41:11 -0700

>

>Esther,

>

>I don't know how long you have been GF, but if it has been a short time, it

>will get better.

>

>I had a long period of grieving over my loss of lifestyle. I went through

>denial, anger, acceptance, anger, acceptance, just as if I had lost a loved

>one. I saw all my dreams washed down the drain because I have celiac. I

>stopped socializing because it was too difficult to expect other people to

>understand the diet that I was just beginning to learn. I was depressed.

>I offered my husband a divorce since I felt that my diet would cramp his

>lifestyle too. (He didn't take me up on that and we are thriving on a GF

>household.)

>

>But, as I got better at the diet, I got better at acceptance. I have

>learned to socialize without needing to eat. I've learned to substitute

>other foods for the foods I was missing.

>

>I'm a silent celiac so I don't feel the symptoms of eating gluten like

>others do. But, I would imagine that the few days of pain and discomfort

>would make you want to avoid gluten. If you are craving a certain food at

>a particular time, try to substitute another similar food. Don't deny

>yourself of pleasures of food....just find different foods. (Ask the group

>for recipes to substitute for some of your favorite foods.)

>

>I also went through the " just a little bit won't hurt " feeling until I read

>about and understood the additional risks that go with eating gluten.

>While there are probably other great books out there, the book Wheat Free,

>Worry Free by Danna Korn was the book that finally made sense to me. It

>lists all the various risks and was the book that finally got through to

>me.

>

>Hang in there. It's the holidays and a period of great stress. You will

>do better each day and if you slip, just get right back on track. You can

>do it.

>

>Donna in Littleton Colorado

>

>

>

> do I get kicked off the list?

>

>

> I'm not feeling positive and optimistic about GF lifestyle today.

>

> As a matter of fact, I'm feeling quite discouraged.

>

> Hope you don't kick me off the list. But I needed to confess this dark

> secret in case any one has any words of encouragement.

>

> How do you get over the grief of saying good-bye to the old favorites?

>

> How do you get over the denial? " Just one <whatever> won't hurt me. "

>

> How do you learn to think of the future honestly? " A minute on

> the tongue, a few days of pain and extra trips to the necessary room. "

>

> Help! Today has NOT been an easy GF day for me.

>

>

>

>

>

>

>

>

>

[Guest guest]

Esther,

Just a thought- I was delighted to be diagnosed, as I had been sick for

years without any clear answers. I was taking medicine that didn't help and

seeing doctors that I know thought I was crazy. And to top it off, I got

something that wasn't fatal and could be controlled without drugs or painful

invasive therapies- its not that bad a deal. I have a close friend with a

brain tumor who is still alive after 4 years, when she " died " as was brought

back the first night she was diagnosed (she thought she had sinusitis, and

went to the emergency room because her doctor was away. The had a seizure

and caridac results in the emergency room while waiting for tests) She has

been on a drug so experimental and so new that she is blazing the trail for

future users. They can't tell her how long she'll live on the drug, but they

are tracking her so they can tell future users. She's 41 and has a 4 year

old. She's had two brain surgeries, and a personality change because of

where the tumor is. SHE HAS A BAD DEAL. What we have is an inconvenience.

I have gone the opposite route as Donna- I have told everyone who will

listen, becuase I find that given the opportunity to plan ahead, most of my

true friends and family want to accomodate me. So when I get invited to

dinner, I now find potatoes as a side dish in addition or instead of pasta.

I find food without breading, and people who keep track of what went into

the food so I can figure out whether to avoid it or not.

Last night, I went a wedding for an old family friend, and as lick would

have it, the bride has a wheat allergy. I was in hog heaven. Shrimp,

oysters, carved meat, beautifully prepared fresh fruit, cheese and contourni

style vegatbles. The only real accomodations: no pasta bar, and I had to eat

the cavier off a plate instead of toast points or blini (which were probably

buckwheat, but I couldn't be sure).

Sure, its rotten thinking you have any restrictions in life, but everybody

has restrictions, some are just more obvious.

I had an " I miss it momemt " today. I was sharring some New England Clam

Chowder with my son, and I gave him some crackers, and really would have

liked some for the soup, but I haven't found a good gf soup cracker, so I

abstained. There will be moments like that. They just don't seem as painful

after a while. I am only gf for 2 months, but the improvement has been

dramatic. Is it worth it to feel sick? For me, no.

>

>Reply-To: SillyYaks

>To: <SillyYaks >

>Subject: Re: do I get kicked off the list?

>Date: Sun, 18 Dec 2005 06:41:11 -0700

>

>Esther,

>

>I don't know how long you have been GF, but if it has been a short time, it

>will get better.

>

>I had a long period of grieving over my loss of lifestyle. I went through

>denial, anger, acceptance, anger, acceptance, just as if I had lost a loved

>one. I saw all my dreams washed down the drain because I have celiac. I

>stopped socializing because it was too difficult to expect other people to

>understand the diet that I was just beginning to learn. I was depressed.

>I offered my husband a divorce since I felt that my diet would cramp his

>lifestyle too. (He didn't take me up on that and we are thriving on a GF

>household.)

>

>But, as I got better at the diet, I got better at acceptance. I have

>learned to socialize without needing to eat. I've learned to substitute

>other foods for the foods I was missing.

>

>I'm a silent celiac so I don't feel the symptoms of eating gluten like

>others do. But, I would imagine that the few days of pain and discomfort

>would make you want to avoid gluten. If you are craving a certain food at

>a particular time, try to substitute another similar food. Don't deny

>yourself of pleasures of food....just find different foods. (Ask the group

>for recipes to substitute for some of your favorite foods.)

>

>I also went through the " just a little bit won't hurt " feeling until I read

>about and understood the additional risks that go with eating gluten.

>While there are probably other great books out there, the book Wheat Free,

>Worry Free by Danna Korn was the book that finally made sense to me. It

>lists all the various risks and was the book that finally got through to

>me.

>

>Hang in there. It's the holidays and a period of great stress. You will

>do better each day and if you slip, just get right back on track. You can

>do it.

>

>Donna in Littleton Colorado

>

>

>

> do I get kicked off the list?

>

>

> I'm not feeling positive and optimistic about GF lifestyle today.

>

> As a matter of fact, I'm feeling quite discouraged.

>

> Hope you don't kick me off the list. But I needed to confess this dark

> secret in case any one has any words of encouragement.

>

> How do you get over the grief of saying good-bye to the old favorites?

>

> How do you get over the denial? " Just one <whatever> won't hurt me. "

>

> How do you learn to think of the future honestly? " A minute on

> the tongue, a few days of pain and extra trips to the necessary room. "

>

> Help! Today has NOT been an easy GF day for me.

>

>

>

>

>

>

>

>

>

[Guest guest]

Esther,

Just a thought- I was delighted to be diagnosed, as I had been sick for

years without any clear answers. I was taking medicine that didn't help and

seeing doctors that I know thought I was crazy. And to top it off, I got

something that wasn't fatal and could be controlled without drugs or painful

invasive therapies- its not that bad a deal. I have a close friend with a

brain tumor who is still alive after 4 years, when she " died " as was brought

back the first night she was diagnosed (she thought she had sinusitis, and

went to the emergency room because her doctor was away. The had a seizure

and caridac results in the emergency room while waiting for tests) She has

been on a drug so experimental and so new that she is blazing the trail for

future users. They can't tell her how long she'll live on the drug, but they

are tracking her so they can tell future users. She's 41 and has a 4 year

old. She's had two brain surgeries, and a personality change because of

where the tumor is. SHE HAS A BAD DEAL. What we have is an inconvenience.

I have gone the opposite route as Donna- I have told everyone who will

listen, becuase I find that given the opportunity to plan ahead, most of my

true friends and family want to accomodate me. So when I get invited to

dinner, I now find potatoes as a side dish in addition or instead of pasta.

I find food without breading, and people who keep track of what went into

the food so I can figure out whether to avoid it or not.

Last night, I went a wedding for an old family friend, and as lick would

have it, the bride has a wheat allergy. I was in hog heaven. Shrimp,

oysters, carved meat, beautifully prepared fresh fruit, cheese and contourni

style vegatbles. The only real accomodations: no pasta bar, and I had to eat

the cavier off a plate instead of toast points or blini (which were probably

buckwheat, but I couldn't be sure).

Sure, its rotten thinking you have any restrictions in life, but everybody

has restrictions, some are just more obvious.

I had an " I miss it momemt " today. I was sharring some New England Clam

Chowder with my son, and I gave him some crackers, and really would have

liked some for the soup, but I haven't found a good gf soup cracker, so I

abstained. There will be moments like that. They just don't seem as painful

after a while. I am only gf for 2 months, but the improvement has been

dramatic. Is it worth it to feel sick? For me, no.

>

>Reply-To: SillyYaks

>To: <SillyYaks >

>Subject: Re: do I get kicked off the list?

>Date: Sun, 18 Dec 2005 06:41:11 -0700

>

>Esther,

>

>I don't know how long you have been GF, but if it has been a short time, it

>will get better.

>

>I had a long period of grieving over my loss of lifestyle. I went through

>denial, anger, acceptance, anger, acceptance, just as if I had lost a loved

>one. I saw all my dreams washed down the drain because I have celiac. I

>stopped socializing because it was too difficult to expect other people to

>understand the diet that I was just beginning to learn. I was depressed.

>I offered my husband a divorce since I felt that my diet would cramp his

>lifestyle too. (He didn't take me up on that and we are thriving on a GF

>household.)

>

>But, as I got better at the diet, I got better at acceptance. I have

>learned to socialize without needing to eat. I've learned to substitute

>other foods for the foods I was missing.

>

>I'm a silent celiac so I don't feel the symptoms of eating gluten like

>others do. But, I would imagine that the few days of pain and discomfort

>would make you want to avoid gluten. If you are craving a certain food at

>a particular time, try to substitute another similar food. Don't deny

>yourself of pleasures of food....just find different foods. (Ask the group

>for recipes to substitute for some of your favorite foods.)

>

>I also went through the " just a little bit won't hurt " feeling until I read

>about and understood the additional risks that go with eating gluten.

>While there are probably other great books out there, the book Wheat Free,

>Worry Free by Danna Korn was the book that finally made sense to me. It

>lists all the various risks and was the book that finally got through to

>me.

>

>Hang in there. It's the holidays and a period of great stress. You will

>do better each day and if you slip, just get right back on track. You can

>do it.

>

>Donna in Littleton Colorado

>

>

>

> do I get kicked off the list?

>

>

> I'm not feeling positive and optimistic about GF lifestyle today.

>

> As a matter of fact, I'm feeling quite discouraged.

>

> Hope you don't kick me off the list. But I needed to confess this dark

> secret in case any one has any words of encouragement.

>

> How do you get over the grief of saying good-bye to the old favorites?

>

> How do you get over the denial? " Just one <whatever> won't hurt me. "

>

> How do you learn to think of the future honestly? " A minute on

> the tongue, a few days of pain and extra trips to the necessary room. "

>

> Help! Today has NOT been an easy GF day for me.

>

>

>

>

>

>

>

>

>

[Guest guest]

If you react with pain, one EASY (but not necessarily recommended) way is to

indulge yourself for one day and eat very high wheat portions with every

meal. If you can still stomach food, repeat for one day. You should then be

so sick that the very smell of wheat based food turns your stomach!! )

Alternatively, join one of the groups that posts proven gf recipes and learn

to make what you are craving, but in a safe, gf version. Or cultivate a new

favorite (can't have yucky store bought cake? fine, cook a flourless

chocolate torte and never be jealous of the tasteless dry stuff again). Bake

with real ingredients again (eggs, butter or lard, real sugar) and indulge

in small amounts of full flavored treats (freeze the rest for the next

emergency). Not only proven to result in better weight control (for those in

need of this), it gets you over feeling blue (nothing like some fat and

chocolate to improve anyone's mood).

Cookies are an easy spur of the moment fix (esp if you do the pudding

cookies posted a few months back and cook the entire things as bar cookies,

to cut down on the work).

> -----Original Message-----

>

> How do you get over the denial? " Just one <whatever> won't hurt me. "

>

> How do you learn to think of the future honestly? " A minute on

> the tongue, a few days of pain and extra trips to the necessary room. "

>

> Help! Today has NOT been an easy GF day for me.

---

[This E-mail scanned for viruses by Declude Virus]

[Guest guest]

If you react with pain, one EASY (but not necessarily recommended) way is to

indulge yourself for one day and eat very high wheat portions with every

meal. If you can still stomach food, repeat for one day. You should then be

so sick that the very smell of wheat based food turns your stomach!! )

Alternatively, join one of the groups that posts proven gf recipes and learn

to make what you are craving, but in a safe, gf version. Or cultivate a new

favorite (can't have yucky store bought cake? fine, cook a flourless

chocolate torte and never be jealous of the tasteless dry stuff again). Bake

with real ingredients again (eggs, butter or lard, real sugar) and indulge

in small amounts of full flavored treats (freeze the rest for the next

emergency). Not only proven to result in better weight control (for those in

need of this), it gets you over feeling blue (nothing like some fat and

chocolate to improve anyone's mood).

Cookies are an easy spur of the moment fix (esp if you do the pudding

cookies posted a few months back and cook the entire things as bar cookies,

to cut down on the work).

> -----Original Message-----

>

> How do you get over the denial? " Just one <whatever> won't hurt me. "

>

> How do you learn to think of the future honestly? " A minute on

> the tongue, a few days of pain and extra trips to the necessary room. "

>

> Help! Today has NOT been an easy GF day for me.

---

[This E-mail scanned for viruses by Declude Virus]

[Guest guest]

If you react with pain, one EASY (but not necessarily recommended) way is to

indulge yourself for one day and eat very high wheat portions with every

meal. If you can still stomach food, repeat for one day. You should then be

so sick that the very smell of wheat based food turns your stomach!! )

Alternatively, join one of the groups that posts proven gf recipes and learn

to make what you are craving, but in a safe, gf version. Or cultivate a new

favorite (can't have yucky store bought cake? fine, cook a flourless

chocolate torte and never be jealous of the tasteless dry stuff again). Bake

with real ingredients again (eggs, butter or lard, real sugar) and indulge

in small amounts of full flavored treats (freeze the rest for the next

emergency). Not only proven to result in better weight control (for those in

need of this), it gets you over feeling blue (nothing like some fat and

chocolate to improve anyone's mood).

Cookies are an easy spur of the moment fix (esp if you do the pudding

cookies posted a few months back and cook the entire things as bar cookies,

to cut down on the work).

> -----Original Message-----

>

> How do you get over the denial? " Just one <whatever> won't hurt me. "

>

> How do you learn to think of the future honestly? " A minute on

> the tongue, a few days of pain and extra trips to the necessary room. "

>

> Help! Today has NOT been an easy GF day for me.

---

[This E-mail scanned for viruses by Declude Virus]

[Guest guest]

You know, I've heard of strange ways to get a date ...... He probably would

have said yes, without buying him a drink (although that always helps).

-----Original Message-----

..... the agonizing pain that comes with that bite of the mozzarella stick

that you saw a marine eating from across the restaurant and you actually had

the guts to go over to his table and eat the mozz right out of his hand

because you were so delirious by the magnetizing smell of that delicious

fried food (Yep that was me and I bet that guy will never forget the strange

girl that ate his food! And I will never ever forget what that tasted like)

---

[This E-mail scanned for viruses by Declude Virus]

[Guest guest]

You know, I've heard of strange ways to get a date ...... He probably would

have said yes, without buying him a drink (although that always helps).

-----Original Message-----

..... the agonizing pain that comes with that bite of the mozzarella stick

that you saw a marine eating from across the restaurant and you actually had

the guts to go over to his table and eat the mozz right out of his hand

because you were so delirious by the magnetizing smell of that delicious

fried food (Yep that was me and I bet that guy will never forget the strange

girl that ate his food! And I will never ever forget what that tasted like)

---

[This E-mail scanned for viruses by Declude Virus]

[Guest guest]

You know, I've heard of strange ways to get a date ...... He probably would

have said yes, without buying him a drink (although that always helps).

-----Original Message-----

..... the agonizing pain that comes with that bite of the mozzarella stick

that you saw a marine eating from across the restaurant and you actually had

the guts to go over to his table and eat the mozz right out of his hand

because you were so delirious by the magnetizing smell of that delicious

fried food (Yep that was me and I bet that guy will never forget the strange

girl that ate his food! And I will never ever forget what that tasted like)

---

[This E-mail scanned for viruses by Declude Virus]

[Guest guest]

Dear Marlo,

How long did it take for my distended stomach to go down? A few months because of accidental exposure to gluten. I just wasn't vigilant enough. Finally, I figured it out, the weight started dropping, and the tummy relaxed. (The distension had made it hard to the touch, like a pregnancy.) For Christmas, I bought myself one of those exercise contraptions that you lay down on and pull up with your feet and hands -- an Ab Lounger. Academy had them for $87. It's supposed to tighten your tummy and it does work.

-Gail

-- do I get kicked off the list?>>I'm not feeling positive and optimistic about GF lifestyle today.>>As a matter of fact, I'm feeling quite discouraged.>>Hope you don't kick me off the list. But I needed to confess this dark>secret in case any one has any words of encouragement.>>How do you get over the grief of saying good-bye to the old favorites?>>How do you get over the denial? "Just one <whatever> won't hurt me.">>How do you learn to think of the future honestly? "A minute on>the tongue, a few days of pain and extra trips to the necessary room.">>Help! Today has NOT been an easy GF day for me.>>>>>>>

[Guest guest]

Dear Marlo,

How long did it take for my distended stomach to go down? A few months because of accidental exposure to gluten. I just wasn't vigilant enough. Finally, I figured it out, the weight started dropping, and the tummy relaxed. (The distension had made it hard to the touch, like a pregnancy.) For Christmas, I bought myself one of those exercise contraptions that you lay down on and pull up with your feet and hands -- an Ab Lounger. Academy had them for $87. It's supposed to tighten your tummy and it does work.

-Gail

-- do I get kicked off the list?>>I'm not feeling positive and optimistic about GF lifestyle today.>>As a matter of fact, I'm feeling quite discouraged.>>Hope you don't kick me off the list. But I needed to confess this dark>secret in case any one has any words of encouragement.>>How do you get over the grief of saying good-bye to the old favorites?>>How do you get over the denial? "Just one <whatever> won't hurt me.">>How do you learn to think of the future honestly? "A minute on>the tongue, a few days of pain and extra trips to the necessary room.">>Help! Today has NOT been an easy GF day for me.>>>>>>>

[Guest guest]

Dear Marlo,

How long did it take for my distended stomach to go down? A few months because of accidental exposure to gluten. I just wasn't vigilant enough. Finally, I figured it out, the weight started dropping, and the tummy relaxed. (The distension had made it hard to the touch, like a pregnancy.) For Christmas, I bought myself one of those exercise contraptions that you lay down on and pull up with your feet and hands -- an Ab Lounger. Academy had them for $87. It's supposed to tighten your tummy and it does work.

-Gail

-- do I get kicked off the list?>>I'm not feeling positive and optimistic about GF lifestyle today.>>As a matter of fact, I'm feeling quite discouraged.>>Hope you don't kick me off the list. But I needed to confess this dark>secret in case any one has any words of encouragement.>>How do you get over the grief of saying good-bye to the old favorites?>>How do you get over the denial? "Just one <whatever> won't hurt me.">>How do you learn to think of the future honestly? "A minute on>the tongue, a few days of pain and extra trips to the necessary room.">>Help! Today has NOT been an easy GF day for me.>>>>>>>

[Guest guest]

I'm at two months gf, so two more onths maybe? I am trying to be strict. I

will get the ab lounger thing, hopefully after the first of the year (too

much scheduled to go shopping).

Than's for the advice. The distension is really uncomfortable. I also had a

surgeon tell me, after I had the twins, that I had something torn (some sort

of fascia or something) over my stomach muscles that need surgical repair,

but I have been unwilling to get the procedure for fear of the side effects.

Perhaps if I drop some weight, I'll do it.

>

>Reply-To: SillyYaks

>To: <SillyYaks >

>Subject: Re: do I get kicked off the list?

>Date: Wed, 21 Dec 2005 05:22:16 -0600 (Central Standard Time)

>

>Dear Marlo,

> How long did it take for my distended stomach to go down? A few months

>because of accidental exposure to gluten. I just wasn't vigilant enough.

>Finally, I figured it out, the weight started dropping, and the tummy

>relaxed. (The distension had made it hard to the touch, like a pregnancy.)

>For Christmas, I bought myself one of those exercise contraptions that you

>lay down on and pull up with your feet and hands -- an Ab Lounger. Academy

>had them for $87. It's supposed to tighten your tummy and it does work.

>-Gail

>

>-- do I get kicked off the list?

> >

> >I'm not feeling positive and optimistic about GF lifestyle today.

> >

> >As a matter of fact, I'm feeling quite discouraged.

> >

> >Hope you don't kick me off the list. But I needed to confess this dark

> >secret in case any one has any words of encouragement.

> >

> >How do you get over the grief of saying good-bye to the old favorites?

> >

> >How do you get over the denial? " Just one <whatever> won't hurt me. "

> >

> >How do you learn to think of the future honestly? " A minute on

> >the tongue, a few days of pain and extra trips to the necessary room. "

> >

> >Help! Today has NOT been an easy GF day for me.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I'm at two months gf, so two more onths maybe? I am trying to be strict. I

will get the ab lounger thing, hopefully after the first of the year (too

much scheduled to go shopping).

Than's for the advice. The distension is really uncomfortable. I also had a

surgeon tell me, after I had the twins, that I had something torn (some sort

of fascia or something) over my stomach muscles that need surgical repair,

but I have been unwilling to get the procedure for fear of the side effects.

Perhaps if I drop some weight, I'll do it.

>

>Reply-To: SillyYaks

>To: <SillyYaks >

>Subject: Re: do I get kicked off the list?

>Date: Wed, 21 Dec 2005 05:22:16 -0600 (Central Standard Time)

>

>Dear Marlo,

> How long did it take for my distended stomach to go down? A few months

>because of accidental exposure to gluten. I just wasn't vigilant enough.

>Finally, I figured it out, the weight started dropping, and the tummy

>relaxed. (The distension had made it hard to the touch, like a pregnancy.)

>For Christmas, I bought myself one of those exercise contraptions that you

>lay down on and pull up with your feet and hands -- an Ab Lounger. Academy

>had them for $87. It's supposed to tighten your tummy and it does work.

>-Gail

>

>-- do I get kicked off the list?

> >

> >I'm not feeling positive and optimistic about GF lifestyle today.

> >

> >As a matter of fact, I'm feeling quite discouraged.

> >

> >Hope you don't kick me off the list. But I needed to confess this dark

> >secret in case any one has any words of encouragement.

> >

> >How do you get over the grief of saying good-bye to the old favorites?

> >

> >How do you get over the denial? " Just one <whatever> won't hurt me. "

> >

> >How do you learn to think of the future honestly? " A minute on

> >the tongue, a few days of pain and extra trips to the necessary room. "

> >

> >Help! Today has NOT been an easy GF day for me.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Do you understand what fascia is? What would be the side effects of

getting that repaired? If there is a tear in it and you are doing

all kinds of sit-ups and what not, it could tear more. Why not just

have it done and get it over with? Just my opinion. Maybe I don't

understand fully what the situation is.

Rhiannon

>

> I'm at two months gf, so two more onths maybe? I am trying to be

strict. I

> will get the ab lounger thing, hopefully after the first of the

year (too

> much scheduled to go shopping).

>

> Than's for the advice. The distension is really uncomfortable. I

also had a

> surgeon tell me, after I had the twins, that I had something torn

(some sort

> of fascia or something) over my stomach muscles that need surgical

repair,

> but I have been unwilling to get the procedure for fear of the

side effects.

> Perhaps if I drop some weight, I'll do it.

>

>

> >From: " - " <gcevans@h...>

> >Reply-To: SillyYaks

> >To: <SillyYaks >

> >Subject: Re: do I get kicked off the list?

> >Date: Wed, 21 Dec 2005 05:22:16 -0600 (Central Standard Time)

> >

> >Dear Marlo,

> > How long did it take for my distended stomach to go down? A few

months

> >because of accidental exposure to gluten. I just wasn't vigilant

enough.

> >Finally, I figured it out, the weight started dropping, and the

tummy

> >relaxed. (The distension had made it hard to the touch, like a

pregnancy.)

> >For Christmas, I bought myself one of those exercise contraptions

that you

> >lay down on and pull up with your feet and hands -- an Ab

Lounger. Academy

> >had them for $87. It's supposed to tighten your tummy and it does

work.

> >-Gail

> >

> >-- do I get kicked off the list?

> > >

> > >I'm not feeling positive and optimistic about GF lifestyle

today.

> > >

> > >As a matter of fact, I'm feeling quite discouraged.

> > >

> > >Hope you don't kick me off the list. But I needed to confess

this dark

> > >secret in case any one has any words of encouragement.

> > >

> > >How do you get over the grief of saying good-bye to the old

favorites?

> > >

> > >How do you get over the denial? " Just one <whatever> won't hurt

me. "

> > >

> > >How do you learn to think of the future honestly? " A minute on

> > >the tongue, a few days of pain and extra trips to the necessary

room. "

> > >

> > >Help! Today has NOT been an easy GF day for me.

> > >

> > >

> > >

> > >

> > >

> > >

> > >