RE: Terry...may I ask a question???

[Guest guest]

Darnell,

Would u say it was a painful operation? I have all this to look forward

to!!!

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete

voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals.

I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me

on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still

have

it after I stop the meds? My voice sounds a little better today so

hopeful

but still scared it won't come all the way back. Anyone out there heard

of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and

please

share what you find. My decision is made... to continue with the ATDs for

as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a

stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she

went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is

a

factor too, but I was very bummed to hear this news..and though I

would

never have the RAI done.....can one stay on the ATDs indefinitely?

Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the

Drs

always know best and he and his family went to the Dr for every cold

and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on

again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Darnell,

Would u say it was a painful operation? I have all this to look forward

to!!!

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete

voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals.

I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me

on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still

have

it after I stop the meds? My voice sounds a little better today so

hopeful

but still scared it won't come all the way back. Anyone out there heard

of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and

please

share what you find. My decision is made... to continue with the ATDs for

as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a

stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she

went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is

a

factor too, but I was very bummed to hear this news..and though I

would

never have the RAI done.....can one stay on the ATDs indefinitely?

Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the

Drs

always know best and he and his family went to the Dr for every cold

and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on

again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Thank you Darnell. I hope things continue to improve for you!

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete

voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little

rascals.

I

had surgery Dec 17th. I did end up with a sinus infection last week

which

made my voice worse. I followed up with the surgeon and they now have

me

on

a methylprednisolone pak for 6 days to help with the swelling in my

throat

and hopefully to give me my voice back. I just wonder if I will still

have

it after I stop the meds? My voice sounds a little better today so

hopeful

but still scared it won't come all the way back. Anyone out there heard

of

it taking so long to get your voice back after surgery when they say

there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and

please

share what you find. My decision is made... to continue with the ATDs

for

as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a

stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she

went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on

and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age

is

a

factor too, but I was very bummed to hear this news..and though I

would

never have the RAI done.....can one stay on the ATDs indefinitely?

Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term

with

their

RAI choice. She was all bubbly and happy about hers and said the

only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only

hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the

Drs

always know best and he and his family went to the Dr for every cold

and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on

again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Thank you Darnell. I hope things continue to improve for you!

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete

voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little

rascals.

I

had surgery Dec 17th. I did end up with a sinus infection last week

which

made my voice worse. I followed up with the surgeon and they now have

me

on

a methylprednisolone pak for 6 days to help with the swelling in my

throat

and hopefully to give me my voice back. I just wonder if I will still

have

it after I stop the meds? My voice sounds a little better today so

hopeful

but still scared it won't come all the way back. Anyone out there heard

of

it taking so long to get your voice back after surgery when they say

there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and

please

share what you find. My decision is made... to continue with the ATDs

for

as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a

stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she

went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on

and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age

is

a

factor too, but I was very bummed to hear this news..and though I

would

never have the RAI done.....can one stay on the ATDs indefinitely?

Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term

with

their

RAI choice. She was all bubbly and happy about hers and said the

only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only

hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the

Drs

always know best and he and his family went to the Dr for every cold

and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on

again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Thank you Darnell. I hope things continue to improve for you!

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete

voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little

rascals.

I

had surgery Dec 17th. I did end up with a sinus infection last week

which

made my voice worse. I followed up with the surgeon and they now have

me

on

a methylprednisolone pak for 6 days to help with the swelling in my

throat

and hopefully to give me my voice back. I just wonder if I will still

have

it after I stop the meds? My voice sounds a little better today so

hopeful

but still scared it won't come all the way back. Anyone out there heard

of

it taking so long to get your voice back after surgery when they say

there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and

please

share what you find. My decision is made... to continue with the ATDs

for

as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a

stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she

went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on

and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age

is

a

factor too, but I was very bummed to hear this news..and though I

would

never have the RAI done.....can one stay on the ATDs indefinitely?

Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term

with

their

RAI choice. She was all bubbly and happy about hers and said the

only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only

hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the

Drs

always know best and he and his family went to the Dr for every cold

and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on

again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Hi . As I am thinking about a sub-total myself, would you mind

sharing with me why you are having it done? Was it suggested by your doctor

for some reason, or is this something you decided on based on your research

of the three options. Have you been on ATDs, and if so, how long?

Holly

RE: Terry...may I ask a question???

I am due to have a sub total thyroidectomy on 25th February and they have

said that it can sometimes take up to six months for any voice problems to

disappear. They told me that it is usually about 1% of people that end up

with some permanent damage.

[Guest guest]

Hi . As I am thinking about a sub-total myself, would you mind

sharing with me why you are having it done? Was it suggested by your doctor

for some reason, or is this something you decided on based on your research

of the three options. Have you been on ATDs, and if so, how long?

Holly

RE: Terry...may I ask a question???

I am due to have a sub total thyroidectomy on 25th February and they have

said that it can sometimes take up to six months for any voice problems to

disappear. They told me that it is usually about 1% of people that end up

with some permanent damage.

[Guest guest]

Hi . As I am thinking about a sub-total myself, would you mind

sharing with me why you are having it done? Was it suggested by your doctor

for some reason, or is this something you decided on based on your research

of the three options. Have you been on ATDs, and if so, how long?

Holly

RE: Terry...may I ask a question???

I am due to have a sub total thyroidectomy on 25th February and they have

said that it can sometimes take up to six months for any voice problems to

disappear. They told me that it is usually about 1% of people that end up

with some permanent damage.

[Guest guest]

Hi Holly,

I was first diagnosed with GD when i was 17. I was referred to an

endocrinologist and was put on Carbimazole which i had to stay on for quite

a while until my thyroid levels came under control. I was finally able to

come off of the medication some months later and had regular blood tests

every 6 months to make sure the GD hadn`t come back. In July 2001 the GD

came back. This time i felt much worseand was put on a much higher dose of

Carbimazole. I was referred back to the same endocrinologist who said that

as there was a history of thyroid problems in my family and as it had

already come back once, it would be a good idea to look at a permanent

solution to my GD. It has taken from July until now to get my thyroid down

to a stage where i can think about what treatment i want to have. I have

spent a long time thinking about RAI and i have heard some people say that

is not the ideal treatment. My endocrinologist also said that although there

is no concrete proof but people that have had thyroid eye disease can

sometimes find that their eyes become worse when they have had RAI. I

finally decided that i wanted surgery as i know quite a few people that have

had it done and all have said that they felt much much better afterwards. I

met with the surgeon that will perform the operation and he has suggested a

sub total but has said he willmake sure he doesn`t leave enough of the gland

behind for it to become overactive again. I didn`t really want a total

because there is more chance of damage to the voice and parathyroid glands

(Calcium). If you need any questions answered or if there is anything i can

help you with just let me know.

RE: Terry...may I ask a question???

I am due to have a sub total thyroidectomy on 25th February and they have

said that it can sometimes take up to six months for any voice problems to

disappear. They told me that it is usually about 1% of people that end up

with some permanent damage.