RE: Terry...may I ask a question???

[Guest guest]

Hi Ruthie and Terry,

I get the palpitations sometimes watching scary movies also.

Like CSI, I've always loved mysteries but don't know how I will

react to what's going on.

Debbie R.

Debbie who used ATDs and took 5.5 yrs. to get my thyroid levels

back to normal and would do the same again if I had too, has

learned here to supplement gradually thanks to Jody.

> Ruthie,

>

> I am the same way. Which is why I don't watch scary movies, I

have NO

> control over how I react to them. Sometimes my own

nightmares can bring on

> palpitations!

>

> Terry

>

> > From: " Ruthie Schaffer " <rschaffer@u...>

> > Reply-To: graves_support@y...

> > Date: Wed, 30 Jan 2002 09:37:23 -0600

> > To: <graves_support@y...>

> > Subject: Re: Terry...may I ask a

question???

> >

> > Thank you Terry...your novel is a huge help. My prospects are

not dim. I just

> > have a feeling that I have never responded well to stress. I

had a period of

> > palpitations when my high need child started school..he is

now 17. But I wore

> > that Holter monitor for 24 hours and they found benign

pre-ventricular

> > contractions....most probably due to stress. My life is quite

stress free for

> > the most part...but my body seems to respond overly much to

any monkey wrench

> > that might be thrown my way. I am a low key sensible person

who can roll with

> > the flow...but my body doesn't cooperate and I can palpitate

or feel that

> > adrenaline surge and heart racing if something unexpected

happens. I guess

> > that may get me in trouble for relapse type episodes...oh

well..I can't worry

> > about it...one goal at a time...and the first order of business is

to exercise

> > more and keep hoping for remission...in another 9 months or

so. Thanks again

> > for sharing your experience.

[Guest guest]

Hi Ruthie-

He treats all kinds of patients (he's an emergency physician) so he doesn't

treat post-RAI patients for their Graves'. But while he's treating them for

whatever they came in for, he'll ask them about how they've done since RAI.

When he does treat Graves' patients for their Graves', generally they're

either undiagnosed or untreated.

Take care,

> Thanks ...I guess the gamble is not worth taking. It helps to have

your husband's perspective as one who treats post RAI patients.

> Ruthie

[Guest guest]

Hi Ruthie-

He treats all kinds of patients (he's an emergency physician) so he doesn't

treat post-RAI patients for their Graves'. But while he's treating them for

whatever they came in for, he'll ask them about how they've done since RAI.

When he does treat Graves' patients for their Graves', generally they're

either undiagnosed or untreated.

Take care,

> Thanks ...I guess the gamble is not worth taking. It helps to have

your husband's perspective as one who treats post RAI patients.

> Ruthie

[Guest guest]

Hi Ruthie-

He treats all kinds of patients (he's an emergency physician) so he doesn't

treat post-RAI patients for their Graves'. But while he's treating them for

whatever they came in for, he'll ask them about how they've done since RAI.

When he does treat Graves' patients for their Graves', generally they're

either undiagnosed or untreated.

Take care,

> Thanks ...I guess the gamble is not worth taking. It helps to have

your husband's perspective as one who treats post RAI patients.

> Ruthie

[Guest guest]

Hi Holly,

>>>It's only been six months, but I feel like crap most of the time, and my

>>>eyes are getting worse. They haven't popped out, but I have awful

>>>dryness, and itching, and burning, and they're always bloodshot, and I

>>>occasionally have stabbing pains in them.<<<

Think about asking your doctor to switch you to PTU and see if this won't

help your eyes. When my doctors agreed to let me go on PTU for my eyes (RAI

in '96, still high TSI ab's) both were adament that it be PTU and not

TAP...they both have told me people on PTU for hyperthyroid generally see a

big improvement on their eyes. When I asked about TAP or the generic that

you take they both told me no.

Jody

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Hi Holly,

>>>It's only been six months, but I feel like crap most of the time, and my

>>>eyes are getting worse. They haven't popped out, but I have awful

>>>dryness, and itching, and burning, and they're always bloodshot, and I

>>>occasionally have stabbing pains in them.<<<

Think about asking your doctor to switch you to PTU and see if this won't

help your eyes. When my doctors agreed to let me go on PTU for my eyes (RAI

in '96, still high TSI ab's) both were adament that it be PTU and not

TAP...they both have told me people on PTU for hyperthyroid generally see a

big improvement on their eyes. When I asked about TAP or the generic that

you take they both told me no.

Jody

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Hi Holly,

>>>It's only been six months, but I feel like crap most of the time, and my

>>>eyes are getting worse. They haven't popped out, but I have awful

>>>dryness, and itching, and burning, and they're always bloodshot, and I

>>>occasionally have stabbing pains in them.<<<

Think about asking your doctor to switch you to PTU and see if this won't

help your eyes. When my doctors agreed to let me go on PTU for my eyes (RAI

in '96, still high TSI ab's) both were adament that it be PTU and not

TAP...they both have told me people on PTU for hyperthyroid generally see a

big improvement on their eyes. When I asked about TAP or the generic that

you take they both told me no.

Jody

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Ruthie,

Please, if you haven't done it yet, search out or A in the

archives and read her posts on relaxing and reducing stress. That really

helped me so much more than anything else. My life is not stress free, but

the things that use to stress me don't anymore. You may want to find and

read them for 's perspective on this.

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

Ruthie,

Please, if you haven't done it yet, search out or A in the

archives and read her posts on relaxing and reducing stress. That really

helped me so much more than anything else. My life is not stress free, but

the things that use to stress me don't anymore. You may want to find and

read them for 's perspective on this.

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

Ruthie,

Please, if you haven't done it yet, search out or A in the

archives and read her posts on relaxing and reducing stress. That really

helped me so much more than anything else. My life is not stress free, but

the things that use to stress me don't anymore. You may want to find and

read them for 's perspective on this.

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and they said

that their is no damage but I still do not have my complete voice back due to

all the swelling I still have (at least what I am told). My husband says I

still sound like popeye or froggy from the little rascals. I had surgery Dec

17th. I did end up with a sinus infection last week which made my voice worse.

I followed up with the surgeon and they now have me on a methylprednisolone pak

for 6 days to help with the swelling in my throat and hopefully to give me my

voice back. I just wonder if I will still have it after I stop the meds? My

voice sounds a little better today so hopeful but still scared it won't come all

the way back. Anyone out there heard of it taking so long to get your voice

back after surgery when they say there is no damage to your vocal chords? Also

should there still be this much swelling this far out from surgery? Thanks for

any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply Holly...nice

to know I am not alone. Good luck with your research and please share what you

find. My decision is made... to continue with the ATDs for as long as it

takes...surgery would be my second choice..but as a singer, I would be VERY

concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am optimistically

on my way there too. I was so excited yesterday when I heard a stranger say

something about finally being off Tapazole. I went right up to her( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she went

hyper again so she recently had RAI...2 mos. ago maybe. My question is...did

this happen for you as well( not the RAI, but the going hyper when coming

off the ATD)..is that why I think I heard you were on the ATDs on and off

for 7 years? She was maybe in her mid 50's...I think I've heard age is a

factor too, but I was very bummed to hear this news..and though I would

never have the RAI done.....can one stay on the ATDs indefinitely? Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a couple

of months into it though. My husband thinks that this group only hears the

negatives and that the people happy with their treatment and their outcome

don't need this support...he comes from a background of thinking the Drs

always know best and he and his family went to the Dr for every cold and

sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted

our own immune systems to fight whatever we had. I rambled on again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Thanks Jody...I will. It's so nice to know that those archives aren't going

anywhere and I can look something up any time. I know that the more I exercise,

the less stress gets to me. Not sure what may problem is today but so far I have

insinuated that a telemarketer was feeding me a crock of you know what.... and I

have left an annoyed message with my son's school financial secretary wondering

why we are being fined 31 $ for an American Lit textbook.......it was evidently

not the one he was issued, but he did turn one in at the end of the semester and

they want us to pay for it anyway!!?? Used to be that I was such a meek

doormat-like person. I would have been just as irritated but wouldn't have

dreamed of showing it...I rather like the assertive me better...but who knows

how these little tiny irritations can get to us. I do have my little dogs....I

firmly believe in the health benefits of pets...they have been shown to lower

blood pressure. Thanks for all of your wealth of experience,

Ruthie

Re: Terry...may I ask a question???

Ruthie,

Please, if you haven't done it yet, search out or A in the

archives and read her posts on relaxing and reducing stress. That really

helped me so much more than anything else. My life is not stress free, but

the things that use to stress me don't anymore. You may want to find and

read them for 's perspective on this.

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

Hi Darnell..thanks for responding. I hope your voice continues to heal and

please keep us posted on the progress.

Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am optimistically

on my way there too. I was so excited yesterday when I heard a stranger say

something about finally being off Tapazole. I went right up to her( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she went

hyper again so she recently had RAI...2 mos. ago maybe. My question is...did

this happen for you as well( not the RAI, but the going hyper when coming

off the ATD)..is that why I think I heard you were on the ATDs on and off

for 7 years? She was maybe in her mid 50's...I think I've heard age is a

factor too, but I was very bummed to hear this news..and though I would

never have the RAI done.....can one stay on the ATDs indefinitely? Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a couple

of months into it though. My husband thinks that this group only hears the

negatives and that the people happy with their treatment and their outcome

don't need this support...he comes from a background of thinking the Drs

always know best and he and his family went to the Dr for every cold and

sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted

our own immune systems to fight whatever we had. I rambled on again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Hi Darnell..thanks for responding. I hope your voice continues to heal and

please keep us posted on the progress.

Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am optimistically

on my way there too. I was so excited yesterday when I heard a stranger say

something about finally being off Tapazole. I went right up to her( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she went

hyper again so she recently had RAI...2 mos. ago maybe. My question is...did

this happen for you as well( not the RAI, but the going hyper when coming

off the ATD)..is that why I think I heard you were on the ATDs on and off

for 7 years? She was maybe in her mid 50's...I think I've heard age is a

factor too, but I was very bummed to hear this news..and though I would

never have the RAI done.....can one stay on the ATDs indefinitely? Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a couple

of months into it though. My husband thinks that this group only hears the

negatives and that the people happy with their treatment and their outcome

don't need this support...he comes from a background of thinking the Drs

always know best and he and his family went to the Dr for every cold and

sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted

our own immune systems to fight whatever we had. I rambled on again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Hi Darnell..thanks for responding. I hope your voice continues to heal and

please keep us posted on the progress.

Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am optimistically

on my way there too. I was so excited yesterday when I heard a stranger say

something about finally being off Tapazole. I went right up to her( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she went

hyper again so she recently had RAI...2 mos. ago maybe. My question is...did

this happen for you as well( not the RAI, but the going hyper when coming

off the ATD)..is that why I think I heard you were on the ATDs on and off

for 7 years? She was maybe in her mid 50's...I think I've heard age is a

factor too, but I was very bummed to hear this news..and though I would

never have the RAI done.....can one stay on the ATDs indefinitely? Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a couple

of months into it though. My husband thinks that this group only hears the

negatives and that the people happy with their treatment and their outcome

don't need this support...he comes from a background of thinking the Drs

always know best and he and his family went to the Dr for every cold and

sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted

our own immune systems to fight whatever we had. I rambled on again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

I am due to have a sub total thyroidectomy on 25th February and they have

said that it can sometimes take up to six months for any voice problems to

disappear. They told me that it is usually about 1% of people that end up

with some permanent damage.

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals. I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still have

it after I stop the meds? My voice sounds a little better today so hopeful

but still scared it won't come all the way back. Anyone out there heard of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and please

share what you find. My decision is made... to continue with the ATDs for as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is a

factor too, but I was very bummed to hear this news..and though I would

never have the RAI done.....can one stay on the ATDs indefinitely? Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the Drs

always know best and he and his family went to the Dr for every cold and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

I am due to have a sub total thyroidectomy on 25th February and they have

said that it can sometimes take up to six months for any voice problems to

disappear. They told me that it is usually about 1% of people that end up

with some permanent damage.

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals. I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still have

it after I stop the meds? My voice sounds a little better today so hopeful

but still scared it won't come all the way back. Anyone out there heard of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and please

share what you find. My decision is made... to continue with the ATDs for as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is a

factor too, but I was very bummed to hear this news..and though I would

never have the RAI done.....can one stay on the ATDs indefinitely? Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the Drs

always know best and he and his family went to the Dr for every cold and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

I am due to have a sub total thyroidectomy on 25th February and they have

said that it can sometimes take up to six months for any voice problems to

disappear. They told me that it is usually about 1% of people that end up

with some permanent damage.

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals. I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still have

it after I stop the meds? My voice sounds a little better today so hopeful

but still scared it won't come all the way back. Anyone out there heard of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and please

share what you find. My decision is made... to continue with the ATDs for as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is a

factor too, but I was very bummed to hear this news..and though I would

never have the RAI done.....can one stay on the ATDs indefinitely? Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the Drs

always know best and he and his family went to the Dr for every cold and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Thanks for your response ! I was worried just becasue the surgeon seem

to think that I should have my voice back by now. Probably panicing before I

should. With four kids and a job that I use the phone alot it is very very hard

to get use to this sound comming out of my mouth.....lol

Darnell

wrote: I am due to have a sub

total thyroidectomy on 25th February and they have

said that it can sometimes take up to six months for any voice problems to

disappear. They told me that it is usually about 1% of people that end up

with some permanent damage.

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals. I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still have

it after I stop the meds? My voice sounds a little better today so hopeful

but still scared it won't come all the way back. Anyone out there heard of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and please

share what you find. My decision is made... to continue with the ATDs for as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is a

factor too, but I was very bummed to hear this news..and though I would

never have the RAI done.....can one stay on the ATDs indefinitely? Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the Drs

always know best and he and his family went to the Dr for every cold and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Thanks for your response ! I was worried just becasue the surgeon seem

to think that I should have my voice back by now. Probably panicing before I

should. With four kids and a job that I use the phone alot it is very very hard

to get use to this sound comming out of my mouth.....lol

Darnell

wrote: I am due to have a sub

total thyroidectomy on 25th February and they have

said that it can sometimes take up to six months for any voice problems to

disappear. They told me that it is usually about 1% of people that end up

with some permanent damage.

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals. I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still have

it after I stop the meds? My voice sounds a little better today so hopeful

but still scared it won't come all the way back. Anyone out there heard of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and please

share what you find. My decision is made... to continue with the ATDs for as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is a

factor too, but I was very bummed to hear this news..and though I would

never have the RAI done.....can one stay on the ATDs indefinitely? Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the Drs

always know best and he and his family went to the Dr for every cold and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Thanks for your response ! I was worried just becasue the surgeon seem

to think that I should have my voice back by now. Probably panicing before I

should. With four kids and a job that I use the phone alot it is very very hard

to get use to this sound comming out of my mouth.....lol

Darnell

wrote: I am due to have a sub

total thyroidectomy on 25th February and they have

said that it can sometimes take up to six months for any voice problems to

disappear. They told me that it is usually about 1% of people that end up

with some permanent damage.

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals. I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still have

it after I stop the meds? My voice sounds a little better today so hopeful

but still scared it won't come all the way back. Anyone out there heard of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and please

share what you find. My decision is made... to continue with the ATDs for as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is a

factor too, but I was very bummed to hear this news..and though I would

never have the RAI done.....can one stay on the ATDs indefinitely? Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the Drs

always know best and he and his family went to the Dr for every cold and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

,

Not really I was suprised by that. The first day was probably the worst due to

the way I believe your next is streched. That is where most of my pain was. I

had pain meds thru iv that day only, there after a couple of tylenol did the

trick if I felt uncomfortable. The dr had given me a prescription for pain meds

that I never took the first one so that is a good thing. One thing be aware if

they didn't tell you that your calcium can drop extremely low and this will keep

you in the hospt longer if it happens and if it doesn't come back up you will be

on alot of calcium until it does. Also since I was feeling so much better and

didn't have a lot of pain you tend to over due be aware that you will tire out

very easily and all of a sudden. You will be fine one min and completely and

utterly exhausted the next. I went back to work after 2 1/2 weeks and was glad

that I only had to work 1/2 of a week that first week so something you might

want to consider. Hope all goes well for you and if you need any more info

please let me know.

Darnell

wrote: Darnell,

Would u say it was a painful operation? I have all this to look forward

to!!!

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete

voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals.

I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me

on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still

have

it after I stop the meds? My voice sounds a little better today so

hopeful

but still scared it won't come all the way back. Anyone out there heard

of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and

please

share what you find. My decision is made... to continue with the ATDs for

as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a

stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she

went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is

a

factor too, but I was very bummed to hear this news..and though I

would

never have the RAI done.....can one stay on the ATDs indefinitely?

Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the

Drs

always know best and he and his family went to the Dr for every cold

and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on

again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

,

Not really I was suprised by that. The first day was probably the worst due to

the way I believe your next is streched. That is where most of my pain was. I

had pain meds thru iv that day only, there after a couple of tylenol did the

trick if I felt uncomfortable. The dr had given me a prescription for pain meds

that I never took the first one so that is a good thing. One thing be aware if

they didn't tell you that your calcium can drop extremely low and this will keep

you in the hospt longer if it happens and if it doesn't come back up you will be

on alot of calcium until it does. Also since I was feeling so much better and

didn't have a lot of pain you tend to over due be aware that you will tire out

very easily and all of a sudden. You will be fine one min and completely and

utterly exhausted the next. I went back to work after 2 1/2 weeks and was glad

that I only had to work 1/2 of a week that first week so something you might

want to consider. Hope all goes well for you and if you need any more info

please let me know.

Darnell

wrote: Darnell,

Would u say it was a painful operation? I have all this to look forward

to!!!

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete

voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals.

I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me

on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still

have

it after I stop the meds? My voice sounds a little better today so

hopeful

but still scared it won't come all the way back. Anyone out there heard

of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and

please

share what you find. My decision is made... to continue with the ATDs for

as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a

stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she

went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is

a

factor too, but I was very bummed to hear this news..and though I

would

never have the RAI done.....can one stay on the ATDs indefinitely?

Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the

Drs

always know best and he and his family went to the Dr for every cold

and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on

again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

,

Not really I was suprised by that. The first day was probably the worst due to

the way I believe your next is streched. That is where most of my pain was. I

had pain meds thru iv that day only, there after a couple of tylenol did the

trick if I felt uncomfortable. The dr had given me a prescription for pain meds

that I never took the first one so that is a good thing. One thing be aware if

they didn't tell you that your calcium can drop extremely low and this will keep

you in the hospt longer if it happens and if it doesn't come back up you will be

on alot of calcium until it does. Also since I was feeling so much better and

didn't have a lot of pain you tend to over due be aware that you will tire out

very easily and all of a sudden. You will be fine one min and completely and

utterly exhausted the next. I went back to work after 2 1/2 weeks and was glad

that I only had to work 1/2 of a week that first week so something you might

want to consider. Hope all goes well for you and if you need any more info

please let me know.

Darnell

wrote: Darnell,

Would u say it was a painful operation? I have all this to look forward

to!!!

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete

voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals.

I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me

on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still

have

it after I stop the meds? My voice sounds a little better today so

hopeful

but still scared it won't come all the way back. Anyone out there heard

of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and

please

share what you find. My decision is made... to continue with the ATDs for

as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a

stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she

went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is

a

factor too, but I was very bummed to hear this news..and though I

would

never have the RAI done.....can one stay on the ATDs indefinitely?

Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the

Drs

always know best and he and his family went to the Dr for every cold

and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on

again..but

thanks in advance for answers to questions..

Ruthie

[Guest guest]

Darnell,

Would u say it was a painful operation? I have all this to look forward

to!!!

Re: Terry...may I ask a question???

Ruthie,

You are right to be afraid of vocal cord damage. I had mine check and

they said that their is no damage but I still do not have my complete

voice

back due to all the swelling I still have (at least what I am told). My

husband says I still sound like popeye or froggy from the little rascals.

I

had surgery Dec 17th. I did end up with a sinus infection last week which

made my voice worse. I followed up with the surgeon and they now have me

on

a methylprednisolone pak for 6 days to help with the swelling in my throat

and hopefully to give me my voice back. I just wonder if I will still

have

it after I stop the meds? My voice sounds a little better today so

hopeful

but still scared it won't come all the way back. Anyone out there heard

of

it taking so long to get your voice back after surgery when they say there

is no damage to your vocal chords? Also should there still be this much

swelling this far out from surgery? Thanks for any imput.

Darnell

Ruthie Schaffer wrote: Thanks for your reply

Holly...nice to know I am not alone. Good luck with your research and

please

share what you find. My decision is made... to continue with the ATDs for

as

long as it takes...surgery would be my second choice..but as a singer, I

would be VERY concerned about vocal chord damage.

Thanks, Ruthie

Terry...may I ask a question???

Hi Terry...I am so glad to hear you are in remission...I am

optimistically

on my way there too. I was so excited yesterday when I heard a

stranger

say

something about finally being off Tapazole. I went right up to

er( being

that she is the only in-the-flesh person I've met with GD other than

myself.) She said she responded well to the Tap and was on it for 2

years...but every time she tried to come off of it completely, she

went

hyper again so she recently had RAI...2 mos. ago maybe. My question

is...did

this happen for you as well( not the RAI, but the going hyper when

coming

off the ATD)..is that why I think I heard you were on the ATDs on and

off

for 7 years? She was maybe in her mid 50's...I think I've heard age is

a

factor too, but I was very bummed to hear this news..and though I

would

never have the RAI done.....can one stay on the ATDs indefinitely?

Still

hoping for remission...been on ATDS for 13 mos. Another question for

anybody....Have any of you heard of anyone being happy long term with

their

RAI choice. She was all bubbly and happy about hers and said the only

adverse reaction she noticed was swelling of her gums. She is only a

couple

of months into it though. My husband thinks that this group only hears

the

negatives and that the people happy with their treatment and their

outcome

don't need this support...he comes from a background of thinking the

Drs

always know best and he and his family went to the Dr for every cold

and

sniffle. I grew up with a Nurse mom who never took us to the Dr and

wanted

our own immune systems to fight whatever we had. I rambled on

again..but

thanks in advance for answers to questions..

Ruthie