Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Darnell, Would u say it was a painful operation? I have all this to look forward to!!! Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Darnell, Would u say it was a painful operation? I have all this to look forward to!!! Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Thank you Darnell. I hope things continue to improve for you! Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Thank you Darnell. I hope things continue to improve for you! Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Thank you Darnell. I hope things continue to improve for you! Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi . As I am thinking about a sub-total myself, would you mind sharing with me why you are having it done? Was it suggested by your doctor for some reason, or is this something you decided on based on your research of the three options. Have you been on ATDs, and if so, how long? Holly RE: Terry...may I ask a question??? I am due to have a sub total thyroidectomy on 25th February and they have said that it can sometimes take up to six months for any voice problems to disappear. They told me that it is usually about 1% of people that end up with some permanent damage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi . As I am thinking about a sub-total myself, would you mind sharing with me why you are having it done? Was it suggested by your doctor for some reason, or is this something you decided on based on your research of the three options. Have you been on ATDs, and if so, how long? Holly RE: Terry...may I ask a question??? I am due to have a sub total thyroidectomy on 25th February and they have said that it can sometimes take up to six months for any voice problems to disappear. They told me that it is usually about 1% of people that end up with some permanent damage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi . As I am thinking about a sub-total myself, would you mind sharing with me why you are having it done? Was it suggested by your doctor for some reason, or is this something you decided on based on your research of the three options. Have you been on ATDs, and if so, how long? Holly RE: Terry...may I ask a question??? I am due to have a sub total thyroidectomy on 25th February and they have said that it can sometimes take up to six months for any voice problems to disappear. They told me that it is usually about 1% of people that end up with some permanent damage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Hi Holly, I was first diagnosed with GD when i was 17. I was referred to an endocrinologist and was put on Carbimazole which i had to stay on for quite a while until my thyroid levels came under control. I was finally able to come off of the medication some months later and had regular blood tests every 6 months to make sure the GD hadn`t come back. In July 2001 the GD came back. This time i felt much worseand was put on a much higher dose of Carbimazole. I was referred back to the same endocrinologist who said that as there was a history of thyroid problems in my family and as it had already come back once, it would be a good idea to look at a permanent solution to my GD. It has taken from July until now to get my thyroid down to a stage where i can think about what treatment i want to have. I have spent a long time thinking about RAI and i have heard some people say that is not the ideal treatment. My endocrinologist also said that although there is no concrete proof but people that have had thyroid eye disease can sometimes find that their eyes become worse when they have had RAI. I finally decided that i wanted surgery as i know quite a few people that have had it done and all have said that they felt much much better afterwards. I met with the surgeon that will perform the operation and he has suggested a sub total but has said he willmake sure he doesn`t leave enough of the gland behind for it to become overactive again. I didn`t really want a total because there is more chance of damage to the voice and parathyroid glands (Calcium). If you need any questions answered or if there is anything i can help you with just let me know. RE: Terry...may I ask a question??? I am due to have a sub total thyroidectomy on 25th February and they have said that it can sometimes take up to six months for any voice problems to disappear. They told me that it is usually about 1% of people that end up with some permanent damage. Quote Link to comment Share on other sites More sharing options...
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