Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi Ruthie and Terry, I get the palpitations sometimes watching scary movies also. Like CSI, I've always loved mysteries but don't know how I will react to what's going on. Debbie R. Debbie who used ATDs and took 5.5 yrs. to get my thyroid levels back to normal and would do the same again if I had too, has learned here to supplement gradually thanks to Jody. > Ruthie, > > I am the same way. Which is why I don't watch scary movies, I have NO > control over how I react to them. Sometimes my own nightmares can bring on > palpitations! > > Terry > > > From: " Ruthie Schaffer " <rschaffer@u...> > > Reply-To: graves_support@y... > > Date: Wed, 30 Jan 2002 09:37:23 -0600 > > To: <graves_support@y...> > > Subject: Re: Terry...may I ask a question??? > > > > Thank you Terry...your novel is a huge help. My prospects are not dim. I just > > have a feeling that I have never responded well to stress. I had a period of > > palpitations when my high need child started school..he is now 17. But I wore > > that Holter monitor for 24 hours and they found benign pre-ventricular > > contractions....most probably due to stress. My life is quite stress free for > > the most part...but my body seems to respond overly much to any monkey wrench > > that might be thrown my way. I am a low key sensible person who can roll with > > the flow...but my body doesn't cooperate and I can palpitate or feel that > > adrenaline surge and heart racing if something unexpected happens. I guess > > that may get me in trouble for relapse type episodes...oh well..I can't worry > > about it...one goal at a time...and the first order of business is to exercise > > more and keep hoping for remission...in another 9 months or so. Thanks again > > for sharing your experience. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi Ruthie- He treats all kinds of patients (he's an emergency physician) so he doesn't treat post-RAI patients for their Graves'. But while he's treating them for whatever they came in for, he'll ask them about how they've done since RAI. When he does treat Graves' patients for their Graves', generally they're either undiagnosed or untreated. Take care, > Thanks ...I guess the gamble is not worth taking. It helps to have your husband's perspective as one who treats post RAI patients. > Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi Ruthie- He treats all kinds of patients (he's an emergency physician) so he doesn't treat post-RAI patients for their Graves'. But while he's treating them for whatever they came in for, he'll ask them about how they've done since RAI. When he does treat Graves' patients for their Graves', generally they're either undiagnosed or untreated. Take care, > Thanks ...I guess the gamble is not worth taking. It helps to have your husband's perspective as one who treats post RAI patients. > Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi Ruthie- He treats all kinds of patients (he's an emergency physician) so he doesn't treat post-RAI patients for their Graves'. But while he's treating them for whatever they came in for, he'll ask them about how they've done since RAI. When he does treat Graves' patients for their Graves', generally they're either undiagnosed or untreated. Take care, > Thanks ...I guess the gamble is not worth taking. It helps to have your husband's perspective as one who treats post RAI patients. > Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi Holly, >>>It's only been six months, but I feel like crap most of the time, and my >>>eyes are getting worse. They haven't popped out, but I have awful >>>dryness, and itching, and burning, and they're always bloodshot, and I >>>occasionally have stabbing pains in them.<<< Think about asking your doctor to switch you to PTU and see if this won't help your eyes. When my doctors agreed to let me go on PTU for my eyes (RAI in '96, still high TSI ab's) both were adament that it be PTU and not TAP...they both have told me people on PTU for hyperthyroid generally see a big improvement on their eyes. When I asked about TAP or the generic that you take they both told me no. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi Holly, >>>It's only been six months, but I feel like crap most of the time, and my >>>eyes are getting worse. They haven't popped out, but I have awful >>>dryness, and itching, and burning, and they're always bloodshot, and I >>>occasionally have stabbing pains in them.<<< Think about asking your doctor to switch you to PTU and see if this won't help your eyes. When my doctors agreed to let me go on PTU for my eyes (RAI in '96, still high TSI ab's) both were adament that it be PTU and not TAP...they both have told me people on PTU for hyperthyroid generally see a big improvement on their eyes. When I asked about TAP or the generic that you take they both told me no. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi Holly, >>>It's only been six months, but I feel like crap most of the time, and my >>>eyes are getting worse. They haven't popped out, but I have awful >>>dryness, and itching, and burning, and they're always bloodshot, and I >>>occasionally have stabbing pains in them.<<< Think about asking your doctor to switch you to PTU and see if this won't help your eyes. When my doctors agreed to let me go on PTU for my eyes (RAI in '96, still high TSI ab's) both were adament that it be PTU and not TAP...they both have told me people on PTU for hyperthyroid generally see a big improvement on their eyes. When I asked about TAP or the generic that you take they both told me no. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Ruthie, Please, if you haven't done it yet, search out or A in the archives and read her posts on relaxing and reducing stress. That really helped me so much more than anything else. My life is not stress free, but the things that use to stress me don't anymore. You may want to find and read them for 's perspective on this. Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Ruthie, Please, if you haven't done it yet, search out or A in the archives and read her posts on relaxing and reducing stress. That really helped me so much more than anything else. My life is not stress free, but the things that use to stress me don't anymore. You may want to find and read them for 's perspective on this. Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Ruthie, Please, if you haven't done it yet, search out or A in the archives and read her posts on relaxing and reducing stress. That really helped me so much more than anything else. My life is not stress free, but the things that use to stress me don't anymore. You may want to find and read them for 's perspective on this. Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to her( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Thanks Jody...I will. It's so nice to know that those archives aren't going anywhere and I can look something up any time. I know that the more I exercise, the less stress gets to me. Not sure what may problem is today but so far I have insinuated that a telemarketer was feeding me a crock of you know what.... and I have left an annoyed message with my son's school financial secretary wondering why we are being fined 31 $ for an American Lit textbook.......it was evidently not the one he was issued, but he did turn one in at the end of the semester and they want us to pay for it anyway!!?? Used to be that I was such a meek doormat-like person. I would have been just as irritated but wouldn't have dreamed of showing it...I rather like the assertive me better...but who knows how these little tiny irritations can get to us. I do have my little dogs....I firmly believe in the health benefits of pets...they have been shown to lower blood pressure. Thanks for all of your wealth of experience, Ruthie Re: Terry...may I ask a question??? Ruthie, Please, if you haven't done it yet, search out or A in the archives and read her posts on relaxing and reducing stress. That really helped me so much more than anything else. My life is not stress free, but the things that use to stress me don't anymore. You may want to find and read them for 's perspective on this. Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi Darnell..thanks for responding. I hope your voice continues to heal and please keep us posted on the progress. Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to her( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi Darnell..thanks for responding. I hope your voice continues to heal and please keep us posted on the progress. Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to her( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi Darnell..thanks for responding. I hope your voice continues to heal and please keep us posted on the progress. Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to her( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 I am due to have a sub total thyroidectomy on 25th February and they have said that it can sometimes take up to six months for any voice problems to disappear. They told me that it is usually about 1% of people that end up with some permanent damage. Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 I am due to have a sub total thyroidectomy on 25th February and they have said that it can sometimes take up to six months for any voice problems to disappear. They told me that it is usually about 1% of people that end up with some permanent damage. Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 I am due to have a sub total thyroidectomy on 25th February and they have said that it can sometimes take up to six months for any voice problems to disappear. They told me that it is usually about 1% of people that end up with some permanent damage. Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Thanks for your response ! I was worried just becasue the surgeon seem to think that I should have my voice back by now. Probably panicing before I should. With four kids and a job that I use the phone alot it is very very hard to get use to this sound comming out of my mouth.....lol Darnell wrote: I am due to have a sub total thyroidectomy on 25th February and they have said that it can sometimes take up to six months for any voice problems to disappear. They told me that it is usually about 1% of people that end up with some permanent damage. Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Thanks for your response ! I was worried just becasue the surgeon seem to think that I should have my voice back by now. Probably panicing before I should. With four kids and a job that I use the phone alot it is very very hard to get use to this sound comming out of my mouth.....lol Darnell wrote: I am due to have a sub total thyroidectomy on 25th February and they have said that it can sometimes take up to six months for any voice problems to disappear. They told me that it is usually about 1% of people that end up with some permanent damage. Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Thanks for your response ! I was worried just becasue the surgeon seem to think that I should have my voice back by now. Probably panicing before I should. With four kids and a job that I use the phone alot it is very very hard to get use to this sound comming out of my mouth.....lol Darnell wrote: I am due to have a sub total thyroidectomy on 25th February and they have said that it can sometimes take up to six months for any voice problems to disappear. They told me that it is usually about 1% of people that end up with some permanent damage. Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 , Not really I was suprised by that. The first day was probably the worst due to the way I believe your next is streched. That is where most of my pain was. I had pain meds thru iv that day only, there after a couple of tylenol did the trick if I felt uncomfortable. The dr had given me a prescription for pain meds that I never took the first one so that is a good thing. One thing be aware if they didn't tell you that your calcium can drop extremely low and this will keep you in the hospt longer if it happens and if it doesn't come back up you will be on alot of calcium until it does. Also since I was feeling so much better and didn't have a lot of pain you tend to over due be aware that you will tire out very easily and all of a sudden. You will be fine one min and completely and utterly exhausted the next. I went back to work after 2 1/2 weeks and was glad that I only had to work 1/2 of a week that first week so something you might want to consider. Hope all goes well for you and if you need any more info please let me know. Darnell wrote: Darnell, Would u say it was a painful operation? I have all this to look forward to!!! Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 , Not really I was suprised by that. The first day was probably the worst due to the way I believe your next is streched. That is where most of my pain was. I had pain meds thru iv that day only, there after a couple of tylenol did the trick if I felt uncomfortable. The dr had given me a prescription for pain meds that I never took the first one so that is a good thing. One thing be aware if they didn't tell you that your calcium can drop extremely low and this will keep you in the hospt longer if it happens and if it doesn't come back up you will be on alot of calcium until it does. Also since I was feeling so much better and didn't have a lot of pain you tend to over due be aware that you will tire out very easily and all of a sudden. You will be fine one min and completely and utterly exhausted the next. I went back to work after 2 1/2 weeks and was glad that I only had to work 1/2 of a week that first week so something you might want to consider. Hope all goes well for you and if you need any more info please let me know. Darnell wrote: Darnell, Would u say it was a painful operation? I have all this to look forward to!!! Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 , Not really I was suprised by that. The first day was probably the worst due to the way I believe your next is streched. That is where most of my pain was. I had pain meds thru iv that day only, there after a couple of tylenol did the trick if I felt uncomfortable. The dr had given me a prescription for pain meds that I never took the first one so that is a good thing. One thing be aware if they didn't tell you that your calcium can drop extremely low and this will keep you in the hospt longer if it happens and if it doesn't come back up you will be on alot of calcium until it does. Also since I was feeling so much better and didn't have a lot of pain you tend to over due be aware that you will tire out very easily and all of a sudden. You will be fine one min and completely and utterly exhausted the next. I went back to work after 2 1/2 weeks and was glad that I only had to work 1/2 of a week that first week so something you might want to consider. Hope all goes well for you and if you need any more info please let me know. Darnell wrote: Darnell, Would u say it was a painful operation? I have all this to look forward to!!! Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Darnell, Would u say it was a painful operation? I have all this to look forward to!!! Re: Terry...may I ask a question??? Ruthie, You are right to be afraid of vocal cord damage. I had mine check and they said that their is no damage but I still do not have my complete voice back due to all the swelling I still have (at least what I am told). My husband says I still sound like popeye or froggy from the little rascals. I had surgery Dec 17th. I did end up with a sinus infection last week which made my voice worse. I followed up with the surgeon and they now have me on a methylprednisolone pak for 6 days to help with the swelling in my throat and hopefully to give me my voice back. I just wonder if I will still have it after I stop the meds? My voice sounds a little better today so hopeful but still scared it won't come all the way back. Anyone out there heard of it taking so long to get your voice back after surgery when they say there is no damage to your vocal chords? Also should there still be this much swelling this far out from surgery? Thanks for any imput. Darnell Ruthie Schaffer wrote: Thanks for your reply Holly...nice to know I am not alone. Good luck with your research and please share what you find. My decision is made... to continue with the ATDs for as long as it takes...surgery would be my second choice..but as a singer, I would be VERY concerned about vocal chord damage. Thanks, Ruthie Terry...may I ask a question??? Hi Terry...I am so glad to hear you are in remission...I am optimistically on my way there too. I was so excited yesterday when I heard a stranger say something about finally being off Tapazole. I went right up to er( being that she is the only in-the-flesh person I've met with GD other than myself.) She said she responded well to the Tap and was on it for 2 years...but every time she tried to come off of it completely, she went hyper again so she recently had RAI...2 mos. ago maybe. My question is...did this happen for you as well( not the RAI, but the going hyper when coming off the ATD)..is that why I think I heard you were on the ATDs on and off for 7 years? She was maybe in her mid 50's...I think I've heard age is a factor too, but I was very bummed to hear this news..and though I would never have the RAI done.....can one stay on the ATDs indefinitely? Still hoping for remission...been on ATDS for 13 mos. Another question for anybody....Have any of you heard of anyone being happy long term with their RAI choice. She was all bubbly and happy about hers and said the only adverse reaction she noticed was swelling of her gums. She is only a couple of months into it though. My husband thinks that this group only hears the negatives and that the people happy with their treatment and their outcome don't need this support...he comes from a background of thinking the Drs always know best and he and his family went to the Dr for every cold and sniffle. I grew up with a Nurse mom who never took us to the Dr and wanted our own immune systems to fight whatever we had. I rambled on again..but thanks in advance for answers to questions.. Ruthie Quote Link to comment Share on other sites More sharing options...
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