Re: My Update

April 27, 2004

I'm too lazy to send a separate one. I had my check up today. Without

going into too much detail, I will say the labs pretty much stayed the same,

I am still at 30% function, which is good, at least it hasn't gone down.

The only thing that got worse was my proteinuria went from 2.7 gms to 4.8

gms-don't know why. So, he changed my b/p meds-added altace-and then I'll

see him in July again. My H and H came up, HGB from 8.0 to 10.1 and hct

from 27 to 32. Still low, but much improved. I have been approved for the

Aranesp shots, and hopefully will get the first one next week or the week

after. Now that I'm gonna be on a new insurance, I have to go through the

same mess all over again, but DR. Oliver said it shouldn't take as long with

the second insurance (for whatever reason.) My husband came with me to the

appointment, and while we were waiting, he said, " I wonder if that

convertible red corvette with the license plate 'NEPHRO' belongs to Dr.

Oliver. I asked him about it when he came in, he said no, it must belong to

the competition. " (It's really his car, he was just joking.) I said, well

that's really neat, I have one just like it, only my license plate says

" NYMPHO " on it. ( We have a good, that is, comical, relationship, my doctor

and I.) No, I didn't really say that, but I thought about it. Just a

little comic relief for you all.

Update on the job. I started seeing patients by myself today, and I really

do love my job. They're really not giving me much of an orientation. I

guess that's because they're overwhelmed. I was really grouchy about it

yesterday. But today I am taking it in stride. Yesterday I was just

really, really tired because I hadn't had much sleep the night before.

Sleep is a good thing. I have a good relationship with my patients. One of

the ones I saw today, his wife was telling his daughter, " I like this one

better than any of the other nurses they've sent out. " That made me feel

good, though there were really only two nurses before me. I don't know that

much about labs, or kidneys for that matter, but I know assessment and I

know patient care. And what I really love, that I think I get to do more in

home health than anywhere else, is be a patient advocate. Anyway, that's

what's up with me.

Sending you all good thoughts and wishes!

_____

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April 27, 2004

YES! Way to go Marty! Got a question for you.... Now that you're two years

out, how frequently do you do labs or see a neph? How often do they do

viral tests? Were these tests just triggered by the hospitalization or do

they routinely scan for them?

Thanks in advance!

Cy

My Update

> Hi everyone.

>

> I had my 2 yr check up on yesterday (2 yrs since my transplant).

> Though I don't know the results of all of my labs, things look good.

> My serum creatinine is 1.7, which is my baseline. My BUN is 13. My

> Prograf level was within the acceptable range. I also inquired about

> the viral tests they had sent out when I was hospitalized in March.

> They all came back good. Epbstein-Barr Virus (sp?) or EBV was " none

> detected. " The test was developed by Mayo Clinic, but is not yet FDA

> approved. The Cytomegalovirus or CMV came back as " no amplification

> detected. " It is a polymerase chain reaction (PCR) test that was

> developed at Loma University Medical Center (my transplant

> center), but has not yet been FDA approved. The BK viruse test came

> back negative.

>

> Marty

>

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April 27, 2004