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Dawn

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Thanks Amy,

No I didn't...I was HOPING to actually sit in the sun for about 20

minutes...lol, never got much sun! I think I'm gonna head for the fake n

bake for a lil while...just want to brighten this dead white skin a bit!

Dawn

Dawn

Hi Dawn,

Welcome back, I am glad to hear you had such a great time.

Everyone has been really quiet since you left. So gettem talking

again ok? Amy by the way did you ever end up ordering that tanning

product? just curious

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Thanks Amy,

No I didn't...I was HOPING to actually sit in the sun for about 20

minutes...lol, never got much sun! I think I'm gonna head for the fake n

bake for a lil while...just want to brighten this dead white skin a bit!

Dawn

Dawn

Hi Dawn,

Welcome back, I am glad to hear you had such a great time.

Everyone has been really quiet since you left. So gettem talking

again ok? Amy by the way did you ever end up ordering that tanning

product? just curious

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Thank you again Ellen!

You could never look stupid! Think of how far you've come, and how much

further you'll go...that always makes me smile!!!

Dawn

Dawn

Thanks Dawn ....

You look GREAT !!!!!!! I can't wait till I look that good ... This

weekend is my brothers wedding and I look so STUPID in the dress ..

Although they did have to take it in A LOT !!! That was good ...

Ellen

-60lbs

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Thank you again Ellen!

You could never look stupid! Think of how far you've come, and how much

further you'll go...that always makes me smile!!!

Dawn

Dawn

Thanks Dawn ....

You look GREAT !!!!!!! I can't wait till I look that good ... This

weekend is my brothers wedding and I look so STUPID in the dress ..

Although they did have to take it in A LOT !!! That was good ...

Ellen

-60lbs

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Thank you again Ellen!

You could never look stupid! Think of how far you've come, and how much

further you'll go...that always makes me smile!!!

Dawn

Dawn

Thanks Dawn ....

You look GREAT !!!!!!! I can't wait till I look that good ... This

weekend is my brothers wedding and I look so STUPID in the dress ..

Although they did have to take it in A LOT !!! That was good ...

Ellen

-60lbs

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Guest guest

Rose,

Thank you, but we can't go on weekdays....next time u may go on a weekend,

lmk!

Happy catchin!

Dawn

dawn

The boat holds about 40 people, It goes about 20miles out and no you

can not see any land. We did see a seal a couple of weeks ago. We

might go on a Monday because not as many people and more room to move

around. Its lots of fun, We pack a good breakfast and snacks, and

lots of drinking water. I sure hope we can get together, and if

anyone is reading this you are welcome to come. I will keep you

posted,

I must be going, we are going to a pool/bbq party today, hope it

remains nice out.

till later,

rose

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Rose,

Thank you, but we can't go on weekdays....next time u may go on a weekend,

lmk!

Happy catchin!

Dawn

dawn

The boat holds about 40 people, It goes about 20miles out and no you

can not see any land. We did see a seal a couple of weeks ago. We

might go on a Monday because not as many people and more room to move

around. Its lots of fun, We pack a good breakfast and snacks, and

lots of drinking water. I sure hope we can get together, and if

anyone is reading this you are welcome to come. I will keep you

posted,

I must be going, we are going to a pool/bbq party today, hope it

remains nice out.

till later,

rose

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Guest guest

Rose,

Thank you, but we can't go on weekdays....next time u may go on a weekend,

lmk!

Happy catchin!

Dawn

dawn

The boat holds about 40 people, It goes about 20miles out and no you

can not see any land. We did see a seal a couple of weeks ago. We

might go on a Monday because not as many people and more room to move

around. Its lots of fun, We pack a good breakfast and snacks, and

lots of drinking water. I sure hope we can get together, and if

anyone is reading this you are welcome to come. I will keep you

posted,

I must be going, we are going to a pool/bbq party today, hope it

remains nice out.

till later,

rose

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LOL... yea but he originally got it for his girlfriend at the time cause she

was into all that weird crap....it's actually for sale now. Not to worry...he

really is normal...lol

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LOL... yea but he originally got it for his girlfriend at the time cause she

was into all that weird crap....it's actually for sale now. Not to worry...he

really is normal...lol

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Dawn,

You can come to Vegas with us.....we would love that. I am not sure any of us would sleep at all as much as we like to talk....hehe. They may kick us out of the wedding. I think we will be able to behave for that though. I promise I will be good........

Zanna

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Dawn,

You can come to Vegas with us.....we would love that. I am not sure any of us would sleep at all as much as we like to talk....hehe. They may kick us out of the wedding. I think we will be able to behave for that though. I promise I will be good........

Zanna

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Dawn,

You can come to Vegas with us.....we would love that. I am not sure any of us would sleep at all as much as we like to talk....hehe. They may kick us out of the wedding. I think we will be able to behave for that though. I promise I will be good........

Zanna

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Melita has a wonderful idea!! Call your local television station and see if they would like to do a special interest story about you. This week may be a little busy with the 9-11 remembrances but with you in Canada that may not be the case. Call them, or give my your local television's number and I will call them. I am so outraged by this. I am going to get on that airplane and come kick their butts.......grrrr.

Zanna

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Melita has a wonderful idea!! Call your local television station and see if they would like to do a special interest story about you. This week may be a little busy with the 9-11 remembrances but with you in Canada that may not be the case. Call them, or give my your local television's number and I will call them. I am so outraged by this. I am going to get on that airplane and come kick their butts.......grrrr.

Zanna

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Guest guest

Melita has a wonderful idea!! Call your local television station and see if they would like to do a special interest story about you. This week may be a little busy with the 9-11 remembrances but with you in Canada that may not be the case. Call them, or give my your local television's number and I will call them. I am so outraged by this. I am going to get on that airplane and come kick their butts.......grrrr.

Zanna

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They said that when I was approved, they were under the impression that I had a condition that would improve too and they would be reviewing my case. I don't think they ever did. Unless they just wrote to my doctor....I don't know.

You are right, they don't care about 'you'. You are only a number to them. The people you are talking to are just there to answer the phone and fill out the papers. They are not medical experts and they don't know this stuff.

In addition to calling the newstation, I think you should print up everything you can about myositis and JO-1 and lung involvement. You can even print up my story and I am sure Vicki's (I don't think that she would mind) and send that along with it. When I applied my doctor wrote a great letter, not just about the disease but how the medicine makes me feel. I also wrote my own letter telling them NOT what I could do, but what I COULD NOT do. I told them I couldn't play with my kids on the floor or take them to the park or bathe them or cook for them all the time or shop without help. I told them that I hadn't been to the mall in a long time because I can't even walk from the parking lot without getting winded.......I went on and on......just like me, eh???

Things will get better. DO NOT quit taking your meds......we don't want to lose you, girl.....

Lots of love,

Zanna

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They said that when I was approved, they were under the impression that I had a condition that would improve too and they would be reviewing my case. I don't think they ever did. Unless they just wrote to my doctor....I don't know.

You are right, they don't care about 'you'. You are only a number to them. The people you are talking to are just there to answer the phone and fill out the papers. They are not medical experts and they don't know this stuff.

In addition to calling the newstation, I think you should print up everything you can about myositis and JO-1 and lung involvement. You can even print up my story and I am sure Vicki's (I don't think that she would mind) and send that along with it. When I applied my doctor wrote a great letter, not just about the disease but how the medicine makes me feel. I also wrote my own letter telling them NOT what I could do, but what I COULD NOT do. I told them I couldn't play with my kids on the floor or take them to the park or bathe them or cook for them all the time or shop without help. I told them that I hadn't been to the mall in a long time because I can't even walk from the parking lot without getting winded.......I went on and on......just like me, eh???

Things will get better. DO NOT quit taking your meds......we don't want to lose you, girl.....

Lots of love,

Zanna

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They said that when I was approved, they were under the impression that I had a condition that would improve too and they would be reviewing my case. I don't think they ever did. Unless they just wrote to my doctor....I don't know.

You are right, they don't care about 'you'. You are only a number to them. The people you are talking to are just there to answer the phone and fill out the papers. They are not medical experts and they don't know this stuff.

In addition to calling the newstation, I think you should print up everything you can about myositis and JO-1 and lung involvement. You can even print up my story and I am sure Vicki's (I don't think that she would mind) and send that along with it. When I applied my doctor wrote a great letter, not just about the disease but how the medicine makes me feel. I also wrote my own letter telling them NOT what I could do, but what I COULD NOT do. I told them I couldn't play with my kids on the floor or take them to the park or bathe them or cook for them all the time or shop without help. I told them that I hadn't been to the mall in a long time because I can't even walk from the parking lot without getting winded.......I went on and on......just like me, eh???

Things will get better. DO NOT quit taking your meds......we don't want to lose you, girl.....

Lots of love,

Zanna

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