new to group

[Guest guest]

Hi Chuck welcome to the group and it's great to hear you are doing well post

transplant! As for the tonsil thing there is a theory out there that tries

to connect the tonsil problems with IgAN...but it is just a theory with no

real proof backing it. I did have my tonsils out post dx but it was due to

lots of discharge from them, history of constant strep infections, and the

fact that the discharge was causing me to gag constantly. My neph is now

watching my labs to see if the tonsil removal does anything to improve my

state of health. I had problems with my tonsils for years but I honestly

don't think they were the trigger to my IgAN. I can trace mine back roughly

to a severe case of food poisoning my family had, I never really recovered

from it and within a few months I was at 35% kidney function. However no

one can say for sure if the food poisoning caused it. Since my husband and

kids had the same food poisoning problem and all of them are healthy I may

have been predisposed to IgAN prior to the food poisoning incident.

As my neph says, you will never find the cause so just concentrate on the

present and what we can do to keep function as long as possible.

Amy

new to group

> Hello All,

> I had been diagnosed with IgA eight years ago. Within a year of being

> informed of the news I had already started having problems. I spent

> eighteen months of my life on hemo dalais before receiving a

> transplant. I have read some about all of the circumstances of what

> lead up to being one of the people that acquire this diseases. I was

> hoping some one would confirm my suspicions of my theory of the

> reason I ended up with this.

> When I was young I had several problems with my tonsils. I never had

> them removed, has anyone else had this problem or read anything about

> this?

> Chuck Biddle

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Welcome to the group Susie. Glad you like it so far. I was at your level of

kidney function during the summer of 2002, and I've gone through the whole

process of preparation and then starting dialysis, so if there's any way I

can help, don't hesitate to ask.

Pierre

new to group

> hi everyone and sarah

> i am 29 years old. i was 20 years old when i found out i had kidney

> failure 50% function i had a real bad headache from my bp being real

> high. my new neph gave me a biopisy about 2 years ago thats when i

> found out i had igan. Now i have 22% kidney function. i will be

> calling my neph about getting my access done. oh by the way i go by

> susie. thanks for this wonderful group it is helping me understand

> more about igan.

>

>

> Susie

>

[Guest guest]

Welcome to the group Susie. Glad you like it so far. I was at your level of

kidney function during the summer of 2002, and I've gone through the whole

process of preparation and then starting dialysis, so if there's any way I

can help, don't hesitate to ask.

Pierre

new to group

> hi everyone and sarah

> i am 29 years old. i was 20 years old when i found out i had kidney

> failure 50% function i had a real bad headache from my bp being real

> high. my new neph gave me a biopisy about 2 years ago thats when i

> found out i had igan. Now i have 22% kidney function. i will be

> calling my neph about getting my access done. oh by the way i go by

> susie. thanks for this wonderful group it is helping me understand

> more about igan.

>

>

> Susie

>

[Guest guest]

Welcome to the group Susie. Glad you like it so far. I was at your level of

kidney function during the summer of 2002, and I've gone through the whole

process of preparation and then starting dialysis, so if there's any way I

can help, don't hesitate to ask.

Pierre

new to group

> hi everyone and sarah

> i am 29 years old. i was 20 years old when i found out i had kidney

> failure 50% function i had a real bad headache from my bp being real

> high. my new neph gave me a biopisy about 2 years ago thats when i

> found out i had igan. Now i have 22% kidney function. i will be

> calling my neph about getting my access done. oh by the way i go by

> susie. thanks for this wonderful group it is helping me understand

> more about igan.

>

>

> Susie

>

[Guest guest]

Hi Susie,

Welcome to the group! As always, we are sorry to hear about new people being

diagnosed, but you have found a wonderful kidney family who will encourage

you along the way. I am at about 20% kidney function myself, so I understand

the feelings you are going through. If you have not yet done so, you may want

to read through www.igan.ca.

Welcome again Susie!

[Guest guest]

Hi Susie,

Welcome to the group! As always, we are sorry to hear about new people being

diagnosed, but you have found a wonderful kidney family who will encourage

you along the way. I am at about 20% kidney function myself, so I understand

the feelings you are going through. If you have not yet done so, you may want

to read through www.igan.ca.

Welcome again Susie!

[Guest guest]

Hi Susie,

Welcome to the group! As always, we are sorry to hear about new people being

diagnosed, but you have found a wonderful kidney family who will encourage

you along the way. I am at about 20% kidney function myself, so I understand

the feelings you are going through. If you have not yet done so, you may want

to read through www.igan.ca.

Welcome again Susie!

[Guest guest]

Hi Susie,

I'm happy you found us though sorry you had a reason to. Welcome to the

group. My diagnosis came about because I went into my GP for a sinus

infection and they found my b/p to be very high....no wonder I was having

migraines at least once a week. In testing me to start me on b/p meds they

found my creatinine to be 2.2...from there it was a short 2 months to

biopsy, diagnosis, and intensive prednisone treatment to try and stop things

from progressing rapidly. So far it seems to have stopped the rapid

decline, I'm hoping for at least 5 years out of it.

I hope your transition to dialysis goes smoothly. Have you thought

about transplant yet? We have a few recent transplant recipients here and

some (Pierre included) on dialysis. I'm sure they will be able to address

any concerns or questions you will have.

Welcome again,

Amy

new to group

> hi everyone and sarah

> i am 29 years old. i was 20 years old when i found out i had kidney

> failure 50% function i had a real bad headache from my bp being real

> high. my new neph gave me a biopisy about 2 years ago thats when i

> found out i had igan. Now i have 22% kidney function. i will be

> calling my neph about getting my access done. oh by the way i go by

> susie. thanks for this wonderful group it is helping me understand

> more about igan.

>

>

> Susie

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Hi Susie,

I'm happy you found us though sorry you had a reason to. Welcome to the

group. My diagnosis came about because I went into my GP for a sinus

infection and they found my b/p to be very high....no wonder I was having

migraines at least once a week. In testing me to start me on b/p meds they

found my creatinine to be 2.2...from there it was a short 2 months to

biopsy, diagnosis, and intensive prednisone treatment to try and stop things

from progressing rapidly. So far it seems to have stopped the rapid

decline, I'm hoping for at least 5 years out of it.

I hope your transition to dialysis goes smoothly. Have you thought

about transplant yet? We have a few recent transplant recipients here and

some (Pierre included) on dialysis. I'm sure they will be able to address

any concerns or questions you will have.

Welcome again,

Amy

new to group

> hi everyone and sarah

> i am 29 years old. i was 20 years old when i found out i had kidney

> failure 50% function i had a real bad headache from my bp being real

> high. my new neph gave me a biopisy about 2 years ago thats when i

> found out i had igan. Now i have 22% kidney function. i will be

> calling my neph about getting my access done. oh by the way i go by

> susie. thanks for this wonderful group it is helping me understand

> more about igan.

>

>

> Susie

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Hi Susie,

I'm happy you found us though sorry you had a reason to. Welcome to the

group. My diagnosis came about because I went into my GP for a sinus

infection and they found my b/p to be very high....no wonder I was having

migraines at least once a week. In testing me to start me on b/p meds they

found my creatinine to be 2.2...from there it was a short 2 months to

biopsy, diagnosis, and intensive prednisone treatment to try and stop things

from progressing rapidly. So far it seems to have stopped the rapid

decline, I'm hoping for at least 5 years out of it.

I hope your transition to dialysis goes smoothly. Have you thought

about transplant yet? We have a few recent transplant recipients here and

some (Pierre included) on dialysis. I'm sure they will be able to address

any concerns or questions you will have.

Welcome again,

Amy

new to group

> hi everyone and sarah

> i am 29 years old. i was 20 years old when i found out i had kidney

> failure 50% function i had a real bad headache from my bp being real

> high. my new neph gave me a biopisy about 2 years ago thats when i

> found out i had igan. Now i have 22% kidney function. i will be

> calling my neph about getting my access done. oh by the way i go by

> susie. thanks for this wonderful group it is helping me understand

> more about igan.

>

>

> Susie

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Bob, I have been on procainamide ever since I was diagnosed with afib, about

5 years ago. As far as I know I haven't suffered any ill effects from it

and in fact I rarely have any afib attacks. I'm wondering why your cardio

took you off of it.( Maybe there is something I should know that I

don't!!!!!)

By the way, welcome to the group. I know you have found it to be as helpful

as all of us have who have been here a while. Good luck with your PVA.

Brenta

New to group

> Hello All,

>

> I discovered this group while searching the internet for information on

focal ablation (PVA) and I'm glad I did!

>

> My journey as an afib patient began in March 1996 when I was awakened by

the " quivering' heart. To the ER I went and was admitted and diagnosed with

afib, something I knew nothing about. After a battery of tests to rule out

thyroid problems, faulty heart valves, etc., I was placed on procanamide and

advised to see my GP, who I'd just seen the week before for my annual

physical. He then referred me to a cardiologist, who immediately removed me

from the high dose of procanamide I'd been given. He conducted further

tests to see if there were any heart structural problems and also put me on

a Holter. He concluded I should go on amiodarone. This did a good job of

regulating my rhythm, BUT, the longer I was on it, the more photo sensitive

I became. It got to the point that being in the sun for a mere 10 minutes

made my skin feel like I was inches away from a roaring bonfire! I went

back to him saying this stuff is poison and I wanted something else. I've

been on flecanide!

> since. Even after being off the amiodarone for over 3 years, my

ophthalmologist can still see trace crystals of it in my eyes. Bad stuff

that amiodarone!

>

> Although I began with afib, three years ago it went to atrial flutter and

my cardio said that's a good thing because there is a procedure to correct

that. He referred me to an EP at s Hopkins in Baltimore and I had a

catheter ablation performed which corrected the problem and put me back to

NSR. In January of this year, I started having brief episodes of afib,

which became more frequent and longer in duration. I was again referred to

my EP, who told me about PVA. With little hesitation, I elected to pursue

PVA. I was given an excellent information packet about the procedure, which

spelled out the risks and potential gains. It was at that point I started

having second thoughts and started my internet search for more information.

Thankfully, I found this group and have been pouring over the personal

accounts of others who have preceded me along this path. My PVA is

scheduled for next month and I approach it with much more calm and

expectations of a positive outcome !

> than I did prior to finding this group.

>

> I noted with considerable interest some have reported laying on their left

side seemed to trigger an afib episode. I too had that experience and my

cardio didn't saying anything one way or the other about it. I know in my

case, caffeine and alcohol are triggers as is stress and fatigue. I have

never smoked and for nearly 20 years, I was a long distance runner so when

afib appeared in my life, I was really thrown for a loop. I've never been

debilitated by my afib episodes, more annoyed and frightened if anything.

I'm looking forward to post PVA and hoping for a long time in NSR. I'll

provide an update.

>

> Best to all,

> Bob

>

>

[Guest guest]

Bob, I have been on procainamide ever since I was diagnosed with afib, about

5 years ago. As far as I know I haven't suffered any ill effects from it

and in fact I rarely have any afib attacks. I'm wondering why your cardio

took you off of it.( Maybe there is something I should know that I

don't!!!!!)

By the way, welcome to the group. I know you have found it to be as helpful

as all of us have who have been here a while. Good luck with your PVA.

Brenta

New to group

> Hello All,

>

> I discovered this group while searching the internet for information on

focal ablation (PVA) and I'm glad I did!

>

> My journey as an afib patient began in March 1996 when I was awakened by

the " quivering' heart. To the ER I went and was admitted and diagnosed with

afib, something I knew nothing about. After a battery of tests to rule out

thyroid problems, faulty heart valves, etc., I was placed on procanamide and

advised to see my GP, who I'd just seen the week before for my annual

physical. He then referred me to a cardiologist, who immediately removed me

from the high dose of procanamide I'd been given. He conducted further

tests to see if there were any heart structural problems and also put me on

a Holter. He concluded I should go on amiodarone. This did a good job of

regulating my rhythm, BUT, the longer I was on it, the more photo sensitive

I became. It got to the point that being in the sun for a mere 10 minutes

made my skin feel like I was inches away from a roaring bonfire! I went

back to him saying this stuff is poison and I wanted something else. I've

been on flecanide!

> since. Even after being off the amiodarone for over 3 years, my

ophthalmologist can still see trace crystals of it in my eyes. Bad stuff

that amiodarone!

>

> Although I began with afib, three years ago it went to atrial flutter and

my cardio said that's a good thing because there is a procedure to correct

that. He referred me to an EP at s Hopkins in Baltimore and I had a

catheter ablation performed which corrected the problem and put me back to

NSR. In January of this year, I started having brief episodes of afib,

which became more frequent and longer in duration. I was again referred to

my EP, who told me about PVA. With little hesitation, I elected to pursue

PVA. I was given an excellent information packet about the procedure, which

spelled out the risks and potential gains. It was at that point I started

having second thoughts and started my internet search for more information.

Thankfully, I found this group and have been pouring over the personal

accounts of others who have preceded me along this path. My PVA is

scheduled for next month and I approach it with much more calm and

expectations of a positive outcome !

> than I did prior to finding this group.

>

> I noted with considerable interest some have reported laying on their left

side seemed to trigger an afib episode. I too had that experience and my

cardio didn't saying anything one way or the other about it. I know in my

case, caffeine and alcohol are triggers as is stress and fatigue. I have

never smoked and for nearly 20 years, I was a long distance runner so when

afib appeared in my life, I was really thrown for a loop. I've never been

debilitated by my afib episodes, more annoyed and frightened if anything.

I'm looking forward to post PVA and hoping for a long time in NSR. I'll

provide an update.

>

> Best to all,

> Bob

>

>

[Guest guest]

Thanks Brenta for your message. My cardio removed me from

procainamide because, in his opinion, it is not the med of choice for

a newly diagnosed afib patient. In addition, he felt the dosage

given me (sorry I don't recall what level it was) by the hospital was

far too high and could cause undesirable side effects. He told me if

I was his brother, he'd want me on amiodorone. It is effect for many

I'm sure, but as mentioned, it was poison for me and I'm glad to off

it.

Bob

> Bob, I have been on procainamide ever since I was diagnosed with

afib, about

> 5 years ago. As far as I know I haven't suffered any ill effects

from it

> and in fact I rarely have any afib attacks. I'm wondering why your

cardio

> took you off of it.( Maybe there is something I should know that I

> don't!!!!!)

>

> By the way, welcome to the group. I know you have found it to be as

helpful

> as all of us have who have been here a while. Good luck with your

PVA.

> Brenta

>

> New to group

>

>

> > Hello All,

> >

> > I discovered this group while searching the internet for

information on

> focal ablation (PVA) and I'm glad I did!

> >

> > My journey as an afib patient began in March 1996 when I was

awakened by

> the " quivering' heart. To the ER I went and was admitted and

diagnosed with

> afib, something I knew nothing about. After a battery of tests to

rule out

> thyroid problems, faulty heart valves, etc., I was placed on

procanamide and

> advised to see my GP, who I'd just seen the week before for my

annual

> physical. He then referred me to a cardiologist, who immediately

removed me

> from the high dose of procanamide I'd been given. He conducted

further

> tests to see if there were any heart structural problems and also

put me on

> a Holter. He concluded I should go on amiodarone. This did a good

job of

> regulating my rhythm, BUT, the longer I was on it, the more photo

sensitive

> I became. It got to the point that being in the sun for a mere 10

minutes

> made my skin feel like I was inches away from a roaring bonfire! I

went

> back to him saying this stuff is poison and I wanted something

else. I've

> been on flecanide!

> > since. Even after being off the amiodarone for over 3 years, my

> ophthalmologist can still see trace crystals of it in my eyes. Bad

stuff

> that amiodarone!

> >

> > Although I began with afib, three years ago it went to atrial

flutter and

> my cardio said that's a good thing because there is a procedure to

correct

> that. He referred me to an EP at s Hopkins in Baltimore and I

had a

> catheter ablation performed which corrected the problem and put me

back to

> NSR. In January of this year, I started having brief episodes of

afib,

> which became more frequent and longer in duration. I was again

referred to

> my EP, who told me about PVA. With little hesitation, I elected to

pursue

> PVA. I was given an excellent information packet about the

procedure, which

> spelled out the risks and potential gains. It was at that point I

started

> having second thoughts and started my internet search for more

information.

> Thankfully, I found this group and have been pouring over the

personal

> accounts of others who have preceded me along this path. My PVA is

> scheduled for next month and I approach it with much more calm and

> expectations of a positive outcome !

> > than I did prior to finding this group.

> >

> > I noted with considerable interest some have reported laying on

their left

> side seemed to trigger an afib episode. I too had that experience

and my

> cardio didn't saying anything one way or the other about it. I

know in my

> case, caffeine and alcohol are triggers as is stress and fatigue.

I have

> never smoked and for nearly 20 years, I was a long distance runner

so when

> afib appeared in my life, I was really thrown for a loop. I've

never been

> debilitated by my afib episodes, more annoyed and frightened if

anything.

> I'm looking forward to post PVA and hoping for a long time in NSR.

I'll

> provide an update.

> >

> > Best to all,

> > Bob

> >

> >

[Guest guest]

Thanks Brenta for your message. My cardio removed me from

procainamide because, in his opinion, it is not the med of choice for

a newly diagnosed afib patient. In addition, he felt the dosage

given me (sorry I don't recall what level it was) by the hospital was

far too high and could cause undesirable side effects. He told me if

I was his brother, he'd want me on amiodorone. It is effect for many

I'm sure, but as mentioned, it was poison for me and I'm glad to off

it.

Bob

> Bob, I have been on procainamide ever since I was diagnosed with

afib, about

> 5 years ago. As far as I know I haven't suffered any ill effects

from it

> and in fact I rarely have any afib attacks. I'm wondering why your

cardio

> took you off of it.( Maybe there is something I should know that I

> don't!!!!!)

>

> By the way, welcome to the group. I know you have found it to be as

helpful

> as all of us have who have been here a while. Good luck with your

PVA.

> Brenta

>

> New to group

>

>

> > Hello All,

> >

> > I discovered this group while searching the internet for

information on

> focal ablation (PVA) and I'm glad I did!

> >

> > My journey as an afib patient began in March 1996 when I was

awakened by

> the " quivering' heart. To the ER I went and was admitted and

diagnosed with

> afib, something I knew nothing about. After a battery of tests to

rule out

> thyroid problems, faulty heart valves, etc., I was placed on

procanamide and

> advised to see my GP, who I'd just seen the week before for my

annual

> physical. He then referred me to a cardiologist, who immediately

removed me

> from the high dose of procanamide I'd been given. He conducted

further

> tests to see if there were any heart structural problems and also

put me on

> a Holter. He concluded I should go on amiodarone. This did a good

job of

> regulating my rhythm, BUT, the longer I was on it, the more photo

sensitive

> I became. It got to the point that being in the sun for a mere 10

minutes

> made my skin feel like I was inches away from a roaring bonfire! I

went

> back to him saying this stuff is poison and I wanted something

else. I've

> been on flecanide!

> > since. Even after being off the amiodarone for over 3 years, my

> ophthalmologist can still see trace crystals of it in my eyes. Bad

stuff

> that amiodarone!

> >

> > Although I began with afib, three years ago it went to atrial

flutter and

> my cardio said that's a good thing because there is a procedure to

correct

> that. He referred me to an EP at s Hopkins in Baltimore and I

had a

> catheter ablation performed which corrected the problem and put me

back to

> NSR. In January of this year, I started having brief episodes of

afib,

> which became more frequent and longer in duration. I was again

referred to

> my EP, who told me about PVA. With little hesitation, I elected to

pursue

> PVA. I was given an excellent information packet about the

procedure, which

> spelled out the risks and potential gains. It was at that point I

started

> having second thoughts and started my internet search for more

information.

> Thankfully, I found this group and have been pouring over the

personal

> accounts of others who have preceded me along this path. My PVA is

> scheduled for next month and I approach it with much more calm and

> expectations of a positive outcome !

> > than I did prior to finding this group.

> >

> > I noted with considerable interest some have reported laying on

their left

> side seemed to trigger an afib episode. I too had that experience

and my

> cardio didn't saying anything one way or the other about it. I

know in my

> case, caffeine and alcohol are triggers as is stress and fatigue.

I have

> never smoked and for nearly 20 years, I was a long distance runner

so when

> afib appeared in my life, I was really thrown for a loop. I've

never been

> debilitated by my afib episodes, more annoyed and frightened if

anything.

> I'm looking forward to post PVA and hoping for a long time in NSR.

I'll

> provide an update.

> >

> > Best to all,

> > Bob

> >

> >

[Guest guest]

Thanks Brenta for your message. My cardio removed me from

procainamide because, in his opinion, it is not the med of choice for

a newly diagnosed afib patient. In addition, he felt the dosage

given me (sorry I don't recall what level it was) by the hospital was

far too high and could cause undesirable side effects. He told me if

I was his brother, he'd want me on amiodorone. It is effect for many

I'm sure, but as mentioned, it was poison for me and I'm glad to off

it.

Bob

> Bob, I have been on procainamide ever since I was diagnosed with

afib, about

> 5 years ago. As far as I know I haven't suffered any ill effects

from it

> and in fact I rarely have any afib attacks. I'm wondering why your

cardio

> took you off of it.( Maybe there is something I should know that I

> don't!!!!!)

>

> By the way, welcome to the group. I know you have found it to be as

helpful

> as all of us have who have been here a while. Good luck with your

PVA.

> Brenta

>

> New to group

>

>

> > Hello All,

> >

> > I discovered this group while searching the internet for

information on

> focal ablation (PVA) and I'm glad I did!

> >

> > My journey as an afib patient began in March 1996 when I was

awakened by

> the " quivering' heart. To the ER I went and was admitted and

diagnosed with

> afib, something I knew nothing about. After a battery of tests to

rule out

> thyroid problems, faulty heart valves, etc., I was placed on

procanamide and

> advised to see my GP, who I'd just seen the week before for my

annual

> physical. He then referred me to a cardiologist, who immediately

removed me

> from the high dose of procanamide I'd been given. He conducted

further

> tests to see if there were any heart structural problems and also

put me on

> a Holter. He concluded I should go on amiodarone. This did a good

job of

> regulating my rhythm, BUT, the longer I was on it, the more photo

sensitive

> I became. It got to the point that being in the sun for a mere 10

minutes

> made my skin feel like I was inches away from a roaring bonfire! I

went

> back to him saying this stuff is poison and I wanted something

else. I've

> been on flecanide!

> > since. Even after being off the amiodarone for over 3 years, my

> ophthalmologist can still see trace crystals of it in my eyes. Bad

stuff

> that amiodarone!

> >

> > Although I began with afib, three years ago it went to atrial

flutter and

> my cardio said that's a good thing because there is a procedure to

correct

> that. He referred me to an EP at s Hopkins in Baltimore and I

had a

> catheter ablation performed which corrected the problem and put me

back to

> NSR. In January of this year, I started having brief episodes of

afib,

> which became more frequent and longer in duration. I was again

referred to

> my EP, who told me about PVA. With little hesitation, I elected to

pursue

> PVA. I was given an excellent information packet about the

procedure, which

> spelled out the risks and potential gains. It was at that point I

started

> having second thoughts and started my internet search for more

information.

> Thankfully, I found this group and have been pouring over the

personal

> accounts of others who have preceded me along this path. My PVA is

> scheduled for next month and I approach it with much more calm and

> expectations of a positive outcome !

> > than I did prior to finding this group.

> >

> > I noted with considerable interest some have reported laying on

their left

> side seemed to trigger an afib episode. I too had that experience

and my

> cardio didn't saying anything one way or the other about it. I

know in my

> case, caffeine and alcohol are triggers as is stress and fatigue.

I have

> never smoked and for nearly 20 years, I was a long distance runner

so when

> afib appeared in my life, I was really thrown for a loop. I've

never been

> debilitated by my afib episodes, more annoyed and frightened if

anything.

> I'm looking forward to post PVA and hoping for a long time in NSR.

I'll

> provide an update.

> >

> > Best to all,

> > Bob

> >

> >

[Guest guest]

> Hello All,

>

> I discovered this group while searching the internet for

information on focal ablation (PVA) and I'm glad I did!

Good luck with the PVA, Bob. Please let us know how things are going.

[Guest guest]

> Hello All,

>

> I discovered this group while searching the internet for

information on focal ablation (PVA) and I'm glad I did!

Good luck with the PVA, Bob. Please let us know how things are going.

[Guest guest]

> Hello All,

>

> I discovered this group while searching the internet for

information on focal ablation (PVA) and I'm glad I did!

Good luck with the PVA, Bob. Please let us know how things are going.

[Guest guest]

> Hello All,

>

> I discovered this group while searching the internet for

information on focal ablation (PVA) and I'm glad I did!

>

>!

> . He referred me to an EP at s Hopkins in Baltimore and I had

a catheter ablation performed which corrected the problem and put me

back to NSR. path. My PVA is scheduled for next month and I

approach it with much more calm and expectations of a positive

outcome than I did prior to finding this group.

>

Hello Bob-

If you don't mind my asking, who is your EP at Hopkins? That's

where I also go. He is nice enough but doesn't spend much time with

you. I just had a cardioversion done there by him a week and a half

ago. I am also interested in the ablation route.

Thanks-

[Guest guest]

> Hello All,

>

> I discovered this group while searching the internet for

information on focal ablation (PVA) and I'm glad I did!

>

>!

> . He referred me to an EP at s Hopkins in Baltimore and I had

a catheter ablation performed which corrected the problem and put me

back to NSR. path. My PVA is scheduled for next month and I

approach it with much more calm and expectations of a positive

outcome than I did prior to finding this group.

>

Hello Bob-

If you don't mind my asking, who is your EP at Hopkins? That's

where I also go. He is nice enough but doesn't spend much time with

you. I just had a cardioversion done there by him a week and a half

ago. I am also interested in the ablation route.

Thanks-

[Guest guest]

> Hello All,

>

> I discovered this group while searching the internet for

information on focal ablation (PVA) and I'm glad I did!

>

>!

> . He referred me to an EP at s Hopkins in Baltimore and I had

a catheter ablation performed which corrected the problem and put me

back to NSR. path. My PVA is scheduled for next month and I

approach it with much more calm and expectations of a positive

outcome than I did prior to finding this group.

>

Hello Bob-

If you don't mind my asking, who is your EP at Hopkins? That's

where I also go. He is nice enough but doesn't spend much time with

you. I just had a cardioversion done there by him a week and a half

ago. I am also interested in the ablation route.

Thanks-

[Guest guest]

Hi and Grant,

I am glad you found us and wanted to extend a warm welcome to you both. It

always breaks my heart especially when a little one is diagnosed. I am not

sure if you have had a chance to look at our sister site www.igan.ca, but I

think

you will have many of your questions answered there. We look forward to

getting to know you .

Welcome again!

In a message dated 6/28/2004 3:14:27 PM Pacific Daylight Time,

lisajbone@... writes:

> I'm (age 38) and my 22-month-old is Grant. We

> both have IGA Nephropathy

[Guest guest]

Carolyn, you are right that some docs don't take women, especially young

women, as seriously re heart disease as they ought to. I had a mild heart

attack about 6 years ago and it was four days before I was properly

diagnosed for that very reason, even though I am in my 60s and the ER should

have check my heart . Also, women often have different symptoms than men.

For example I didn't have bad chest pains but I was nauseated, clammy and

felt like I was having a bad case of heart burn. I've decided that in the

future (God forbid) that I should have to return to the hospital I'm going

in the door saying I have chest pains whether I do or not. That way they are

obligated to check my heart. The next time you have the symptoms you

describe I hope you're able to go then to have them checked out, and don't

leave until they have done EKGs and blood tests.

Good luck,

Brenta

new to group

>>

> Symtoms:

> Extremely tired

> Nausea

> Pressure on center and left side of chest

> Weird tingly sensation on face (especially left side), left side of

> neck and left shoulder

> Some pain (feels like it's on the upper part of my heart), left jaw,

> back of neck and shoulder. Not severe, just slight but noticeable.

> Very dehydrated

> Having to urinate a lot. I can't even drink one sip of water at

> night before going to bed, or I'll be up in an hour to go to the

> bathroom.

> Heart feeling like it's beating funny. (PAC's, & feels like it's not

> pumping enough blood into my body)

> Shortness of breath

> Weak feeling

> The feeling of hands and other parts of body swelling.

> The feeling of blood pressure going up. (face getting hot, etc).

>

> Also, when I get upset about something, my heart rate rises

> significantly, starts jumping around like crazy, I start getting

> nauseous, and feel like I'm going to pass out.

>

> Any opinions, advice or whatever would be great! I know I need to

> see my doctor or another one. But I feel like because of my age,

> and being female that I'm not going to get the proper attention

> and/or treatment. I'm so sick of this and I would like to find a

> doctor that would care enough to get me as many tests or whatever to

> finally find out whats going on and fix it.

>

> Thank you for listening.

> Carolyn

>

>

>

>

>

>

>

> Web Page - http://www.afibsupport.com

> List owner: AFIBsupport-owner

> For help on how to use the group, including how to drive it via email,

> send a blank email to AFIBsupport-help

>

> Nothing in this message should be considered as medical advice, or should

be acted upon without consultation with one's physician.

>

[Guest guest]

Carolyn, you are right that some docs don't take women, especially young

women, as seriously re heart disease as they ought to. I had a mild heart

attack about 6 years ago and it was four days before I was properly

diagnosed for that very reason, even though I am in my 60s and the ER should

have check my heart . Also, women often have different symptoms than men.

For example I didn't have bad chest pains but I was nauseated, clammy and

felt like I was having a bad case of heart burn. I've decided that in the

future (God forbid) that I should have to return to the hospital I'm going

in the door saying I have chest pains whether I do or not. That way they are

obligated to check my heart. The next time you have the symptoms you

describe I hope you're able to go then to have them checked out, and don't

leave until they have done EKGs and blood tests.

Good luck,

Brenta

new to group

>>

> Symtoms:

> Extremely tired

> Nausea

> Pressure on center and left side of chest

> Weird tingly sensation on face (especially left side), left side of

> neck and left shoulder

> Some pain (feels like it's on the upper part of my heart), left jaw,

> back of neck and shoulder. Not severe, just slight but noticeable.

> Very dehydrated

> Having to urinate a lot. I can't even drink one sip of water at

> night before going to bed, or I'll be up in an hour to go to the

> bathroom.

> Heart feeling like it's beating funny. (PAC's, & feels like it's not

> pumping enough blood into my body)

> Shortness of breath

> Weak feeling

> The feeling of hands and other parts of body swelling.

> The feeling of blood pressure going up. (face getting hot, etc).

>

> Also, when I get upset about something, my heart rate rises

> significantly, starts jumping around like crazy, I start getting

> nauseous, and feel like I'm going to pass out.

>

> Any opinions, advice or whatever would be great! I know I need to

> see my doctor or another one. But I feel like because of my age,

> and being female that I'm not going to get the proper attention

> and/or treatment. I'm so sick of this and I would like to find a

> doctor that would care enough to get me as many tests or whatever to

> finally find out whats going on and fix it.

>

> Thank you for listening.

> Carolyn

>

>

>

>

>

>

>

> Web Page - http://www.afibsupport.com

> List owner: AFIBsupport-owner

> For help on how to use the group, including how to drive it via email,

> send a blank email to AFIBsupport-help

>

> Nothing in this message should be considered as medical advice, or should

be acted upon without consultation with one's physician.

>

[Guest guest]

Carolyn, you are right that some docs don't take women, especially young

women, as seriously re heart disease as they ought to. I had a mild heart

attack about 6 years ago and it was four days before I was properly

diagnosed for that very reason, even though I am in my 60s and the ER should

have check my heart . Also, women often have different symptoms than men.

For example I didn't have bad chest pains but I was nauseated, clammy and

felt like I was having a bad case of heart burn. I've decided that in the

future (God forbid) that I should have to return to the hospital I'm going

in the door saying I have chest pains whether I do or not. That way they are

obligated to check my heart. The next time you have the symptoms you

describe I hope you're able to go then to have them checked out, and don't

leave until they have done EKGs and blood tests.

Good luck,

Brenta

new to group

>>

> Symtoms:

> Extremely tired

> Nausea

> Pressure on center and left side of chest

> Weird tingly sensation on face (especially left side), left side of

> neck and left shoulder

> Some pain (feels like it's on the upper part of my heart), left jaw,

> back of neck and shoulder. Not severe, just slight but noticeable.

> Very dehydrated

> Having to urinate a lot. I can't even drink one sip of water at

> night before going to bed, or I'll be up in an hour to go to the

> bathroom.

> Heart feeling like it's beating funny. (PAC's, & feels like it's not

> pumping enough blood into my body)

> Shortness of breath

> Weak feeling

> The feeling of hands and other parts of body swelling.

> The feeling of blood pressure going up. (face getting hot, etc).

>

> Also, when I get upset about something, my heart rate rises

> significantly, starts jumping around like crazy, I start getting

> nauseous, and feel like I'm going to pass out.

>

> Any opinions, advice or whatever would be great! I know I need to

> see my doctor or another one. But I feel like because of my age,

> and being female that I'm not going to get the proper attention

> and/or treatment. I'm so sick of this and I would like to find a

> doctor that would care enough to get me as many tests or whatever to

> finally find out whats going on and fix it.

>

> Thank you for listening.

> Carolyn

>

>

>

>

>

>

>

> Web Page - http://www.afibsupport.com

> List owner: AFIBsupport-owner

> For help on how to use the group, including how to drive it via email,

> send a blank email to AFIBsupport-help

>

> Nothing in this message should be considered as medical advice, or should

be acted upon without consultation with one's physician.

>