new to group

October 4, 2005

Is anyone there near Kansas? I am interviewing for a job near there soon --

just wondering how it is there, never have been there myself. Does anyone have

any info? What is the quaility of life like? Nice places to live? Anything

would be helpful. I know I will see for myself some things when I go there for

the interview, but I will only be seeing the surface when I go.

Thanks.

Love to all,

Hello . Big HUGS to you. I was recently diagnosed and had 2 surgeries in the last 4 weeks, lumpectomy and then mastectomy of the right breast. I haven't started treatments yet so I can't help you there. I just thought I'd send you love and hugs.

LICS June "Peace cannot be kept by force; it can only be achieved by understanding." - Albert Einstein

-----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of anna bennettSent: Tuesday, October 04, 2005 6:50 AMTo: breastcancer2 Subject: new to groupHi EveryoneI'm new to this group and was diagnosed with breast cancer lasr october after being offf work sick for 2 years. My tumor was 5 cm and spread into 3 lymph nodes,it is also ER-PR positive. I went through 6 months of chemo treatments then radition. I was told last week by my oncolist that they think my cancer has spread. With being ER-PR positive I'm not able to take any hormone pills. I was wondering if anyone else has been through this or is presently undergoing treatment.

October 4, 2005

Is anyone there near Kansas? I am interviewing for a job near there soon --

just wondering how it is there, never have been there myself. Does anyone have

any info? What is the quaility of life like? Nice places to live? Anything

would be helpful. I know I will see for myself some things when I go there for

the interview, but I will only be seeing the surface when I go.

Thanks.

Love to all,

Hello . Big HUGS to you. I was recently diagnosed and had 2 surgeries in the last 4 weeks, lumpectomy and then mastectomy of the right breast. I haven't started treatments yet so I can't help you there. I just thought I'd send you love and hugs.

LICS June "Peace cannot be kept by force; it can only be achieved by understanding." - Albert Einstein

-----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of anna bennettSent: Tuesday, October 04, 2005 6:50 AMTo: breastcancer2 Subject: new to groupHi EveryoneI'm new to this group and was diagnosed with breast cancer lasr october after being offf work sick for 2 years. My tumor was 5 cm and spread into 3 lymph nodes,it is also ER-PR positive. I went through 6 months of chemo treatments then radition. I was told last week by my oncolist that they think my cancer has spread. With being ER-PR positive I'm not able to take any hormone pills. I was wondering if anyone else has been through this or is presently undergoing treatment.

October 23, 2005

Hi, And welcome!!!

Are you taking any calcium/magnesium/zinc supplements?

If not, may I suggest that you do so just as you are climbing into

bed.

There is a full bevvy of symtoms that go along with Hashi's. you

name it and I wouldn't be surprised if one of us or another hasn't

experienced it along the way.

Might I ask you why you ask?

What symptoms are you living with? or trying to?

Do you know what your last lab results were? If so would you mind

posting them, along with the lab ranges so we can add our two bits

of info on how we would approach the lab workups?

Depending upon how far along you are with Hashi's, and what syptoms

you are experiencing, Yes the meds may and in some instances will

quiet down the symptoms. However, if you are being under dosed, your

body is lacking in some way or another in one of the necessary

vitamin or minerals (Selinium for example) we may still experience

symptoms until these defeciences are addressed.

Please realize that 0.5mcg is not a very high dose...I call it the

beginning dose...a few of us have to go way up, 400mg daily to

exist.

Depending upon how your Free T4 and Free T3 hormone levels are doing

will determine how and if your dose needs to be increased after

being on the current dose for 6 to 8 weeks first. It takes this long

for the body to adjust to the new level of Thyroid hormone

medicines.

Did your Doc tell you to take your Thyorid hormones on an empty

stomach, with water only, wait an hour and then eat and drink? or

wait 3+ hours after eating before taking the meds?

It takes the full strength of the stomach acids to break down the

pill into the usable form of Thyroid hormone, T4.

For restless leg and Charlie horses, calcium/magnesium/zinc combo

supplements quite often do the trick.

Also, be sure that you are taking a HIGH QUALITY multi vit as well

as additional super B-Complex, Iron (Slow Fe works the best for me),

and Folic acid supplements. Try to take these with a meal, as they

will be absorbed better along with the food.

For most of these supplements, if the body has too much of something

on any one given day it will just eliminate the excess in the stool

and/or in the urine. B-complex will give the urine a BRIGHT

flourescent coloration..this is quite normal.

A couple really good web sites to visit and to read from front to

back side to side are:

www.thyrophoenix.com

thyroid.about.com

Even it the section does not apply to you know, gaining this

knowledge may shine a light on something that may lead to a

solution.

Gossimer

>

> Hi,

> My name is a and I was diagnosed w/ Hashimoto's in June of

this

> year. As of late, I've spent a lot of time on the web trying to

> determine what symptoms are " normal " and which ones aren't. I've

> also been trying to determine which ones may be the result of my

> meds and which are the illness. I'm also not clear on whether the

> meds are suppose to elimate the symptoms or if there are some you

> just have to " live with? "

> I'm currently on .05 mg of Levoxyl and while my doctor says my

test

> levels are good, I'm finding it difficult to get a good night's

> sleep and I'm aware of muscle twitching/spasms. (In June, they

> started out on .25 mg of Levoxyl and the dose was increased in

> September b/c my TSH jumped to 54.25). As a mom to three young

> children, I find the sleep interruptions hard b/c I get irritable

> from being tired and the muscle twitching leaves me w/ an

> overwhelming feeling of fear.

> Any input would be greatly appreciated b/c I feel so alone.

> Thanks,

> pk

>

October 23, 2005

Hi, And welcome!!!

Are you taking any calcium/magnesium/zinc supplements?

If not, may I suggest that you do so just as you are climbing into

bed.

There is a full bevvy of symtoms that go along with Hashi's. you

name it and I wouldn't be surprised if one of us or another hasn't

experienced it along the way.

Might I ask you why you ask?

What symptoms are you living with? or trying to?

Do you know what your last lab results were? If so would you mind

posting them, along with the lab ranges so we can add our two bits

of info on how we would approach the lab workups?

Depending upon how far along you are with Hashi's, and what syptoms

you are experiencing, Yes the meds may and in some instances will

quiet down the symptoms. However, if you are being under dosed, your

body is lacking in some way or another in one of the necessary

vitamin or minerals (Selinium for example) we may still experience

symptoms until these defeciences are addressed.

Please realize that 0.5mcg is not a very high dose...I call it the

beginning dose...a few of us have to go way up, 400mg daily to

exist.

Depending upon how your Free T4 and Free T3 hormone levels are doing

will determine how and if your dose needs to be increased after

being on the current dose for 6 to 8 weeks first. It takes this long

for the body to adjust to the new level of Thyroid hormone

medicines.

Did your Doc tell you to take your Thyorid hormones on an empty

stomach, with water only, wait an hour and then eat and drink? or

wait 3+ hours after eating before taking the meds?

It takes the full strength of the stomach acids to break down the

pill into the usable form of Thyroid hormone, T4.

For restless leg and Charlie horses, calcium/magnesium/zinc combo

supplements quite often do the trick.

Also, be sure that you are taking a HIGH QUALITY multi vit as well

as additional super B-Complex, Iron (Slow Fe works the best for me),

and Folic acid supplements. Try to take these with a meal, as they

will be absorbed better along with the food.

For most of these supplements, if the body has too much of something

on any one given day it will just eliminate the excess in the stool

and/or in the urine. B-complex will give the urine a BRIGHT

flourescent coloration..this is quite normal.

A couple really good web sites to visit and to read from front to

back side to side are:

www.thyrophoenix.com

thyroid.about.com

Even it the section does not apply to you know, gaining this

knowledge may shine a light on something that may lead to a

solution.

Gossimer

>

> Hi,

> My name is a and I was diagnosed w/ Hashimoto's in June of

this

> year. As of late, I've spent a lot of time on the web trying to

> determine what symptoms are " normal " and which ones aren't. I've

> also been trying to determine which ones may be the result of my

> meds and which are the illness. I'm also not clear on whether the

> meds are suppose to elimate the symptoms or if there are some you

> just have to " live with? "

> I'm currently on .05 mg of Levoxyl and while my doctor says my

test

> levels are good, I'm finding it difficult to get a good night's

> sleep and I'm aware of muscle twitching/spasms. (In June, they

> started out on .25 mg of Levoxyl and the dose was increased in

> September b/c my TSH jumped to 54.25). As a mom to three young

> children, I find the sleep interruptions hard b/c I get irritable

> from being tired and the muscle twitching leaves me w/ an

> overwhelming feeling of fear.

> Any input would be greatly appreciated b/c I feel so alone.

> Thanks,

> pk

>

October 23, 2005

Hi, And welcome!!!

Are you taking any calcium/magnesium/zinc supplements?

If not, may I suggest that you do so just as you are climbing into

bed.

There is a full bevvy of symtoms that go along with Hashi's. you

name it and I wouldn't be surprised if one of us or another hasn't

experienced it along the way.

Might I ask you why you ask?

What symptoms are you living with? or trying to?

Do you know what your last lab results were? If so would you mind

posting them, along with the lab ranges so we can add our two bits

of info on how we would approach the lab workups?

Depending upon how far along you are with Hashi's, and what syptoms

you are experiencing, Yes the meds may and in some instances will

quiet down the symptoms. However, if you are being under dosed, your

body is lacking in some way or another in one of the necessary

vitamin or minerals (Selinium for example) we may still experience

symptoms until these defeciences are addressed.

Please realize that 0.5mcg is not a very high dose...I call it the

beginning dose...a few of us have to go way up, 400mg daily to

exist.

Depending upon how your Free T4 and Free T3 hormone levels are doing

will determine how and if your dose needs to be increased after

being on the current dose for 6 to 8 weeks first. It takes this long

for the body to adjust to the new level of Thyroid hormone

medicines.

Did your Doc tell you to take your Thyorid hormones on an empty

stomach, with water only, wait an hour and then eat and drink? or

wait 3+ hours after eating before taking the meds?

It takes the full strength of the stomach acids to break down the

pill into the usable form of Thyroid hormone, T4.

For restless leg and Charlie horses, calcium/magnesium/zinc combo

supplements quite often do the trick.

Also, be sure that you are taking a HIGH QUALITY multi vit as well

as additional super B-Complex, Iron (Slow Fe works the best for me),

and Folic acid supplements. Try to take these with a meal, as they

will be absorbed better along with the food.

For most of these supplements, if the body has too much of something

on any one given day it will just eliminate the excess in the stool

and/or in the urine. B-complex will give the urine a BRIGHT

flourescent coloration..this is quite normal.

A couple really good web sites to visit and to read from front to

back side to side are:

www.thyrophoenix.com

thyroid.about.com

Even it the section does not apply to you know, gaining this

knowledge may shine a light on something that may lead to a

solution.

Gossimer

>

> Hi,

> My name is a and I was diagnosed w/ Hashimoto's in June of

this

> year. As of late, I've spent a lot of time on the web trying to

> determine what symptoms are " normal " and which ones aren't. I've

> also been trying to determine which ones may be the result of my

> meds and which are the illness. I'm also not clear on whether the

> meds are suppose to elimate the symptoms or if there are some you

> just have to " live with? "

> I'm currently on .05 mg of Levoxyl and while my doctor says my

test

> levels are good, I'm finding it difficult to get a good night's

> sleep and I'm aware of muscle twitching/spasms. (In June, they

> started out on .25 mg of Levoxyl and the dose was increased in

> September b/c my TSH jumped to 54.25). As a mom to three young

> children, I find the sleep interruptions hard b/c I get irritable

> from being tired and the muscle twitching leaves me w/ an

> overwhelming feeling of fear.

> Any input would be greatly appreciated b/c I feel so alone.

> Thanks,

> pk

>

October 23, 2005

Hi a, Welcome...

Hashi's means that you are likely to have an ebb and flow of thyroid hormones coming from the gland. We'll be going into that part more later... So it's not uncommon to have the TSH make jumps up or down.

..25 mg (25 mcg) of Levoxyl (synthetic T4) is a common starting dosage, but it's not gonna do much more that suppress gland function. Moving you up to .50 mg (50 mcg) is a good next step with your TSH jumping so high.

The muscle twitching now is saying there is something going on..... here's where we start digging.

First... we need to see your labs.... Give your doc a buzz and ask for copies.... in the US it's the law that you be given them upon request... if they ask why you want them, just tell them that you want to keep track of this stuff and it's easier if you can start a folder.... the truth.

Then post your labs here, the test, the value and the lab's ranges, so, for example TSH would look like this:

TSH 54.25 (.3 - 3.0)

From that information we will be able to see what the doc is testing AND how your body (if he's taking the correct tests) is responding to the hormone replacement.

Muscle twitching is not real common, but some of us do to through it, I did when I was in hyper phases.... others have done it during dosage adjustments.... others do it cuz of other issues, such as Adrenal fatigue, which is not uncommon among those with thyroid problems.

You're not alone... you've got the whole bunch of us in this with ya.... Feel free to ask questions or to just vent when you're having a bad day.... we're a support group, after all!

Sharing your symptoms is a good way to find out if others are dealing with the same things. How thyroid malfunction affects us seems to be very individual, some get this bunch of symptoms, others get that bunch and others get some of both... others don't get any of them... the get a bunch of their own.... so chances are you'll find someone that has some of your symptoms but no one that has them all....

Topper ()

On Sun, 23 Oct 2005 05:53:44 -0000 "paula_krauza" writes:

Hi,My name is a and I was diagnosed w/ Hashimoto's in June of this year. As of late, I've spent a lot of time on the web trying to determine what symptoms are "normal" and which ones aren't. I've also been trying to determine which ones may be the result of my meds and which are the illness. I'm also not clear on whether the meds are suppose to elimate the symptoms or if there are some you just have to "live with?" I'm currently on .05 mg of Levoxyl and while my doctor says my test levels are good, I'm finding it difficult to get a good night's sleep and I'm aware of muscle twitching/spasms. (In June, they started out on .25 mg of Levoxyl and the dose was increased in September b/c my TSH jumped to 54.25). As a mom to three young children, I find the sleep interruptions hard b/c I get irritable from being tired and the muscle twitching leaves me w/ an overwhelming feeling of fear.Any input would be greatly appreciated b/c I feel so alone.Thanks,pk

October 24, 2005

Hello again,

First, thanks for responding so quickly. It's at this point that I

quickly confess I'm not exactly sure what info I'm getting when I

read my lab reports. I see the numbers and the test name but it

doesn't mean anything to me other than it falls into the " In Range "

and " Out of Range " column.

After getting your email, I looked at my calendar and determined

I've been on .05 mg of Levoxyl for five weeks. Prior to this I'd

only been on .25 mg and my labs on 9/19/05 showed:

T-4 Free .5 L (out of range)

TSH 54.25 H (out of range)

T3 Free 194 L (out of range)

I had my blood drawn on 10/13/05 and the results were:

T-4 Free 1.1 (in range)

TSH 12.10 H (out of range)

T3. Free 294 (in range)

While this info appears to be better, I'm not sure how b/c I'm not

sure what a " good " number range is to begin with. Also, my doctor

says my sleeping difficulties are not related to the medicine and I

in all likelihood have a sleeping disorder. This irks me b/c prior

to April when all of this really " started " I normally slept very

well. I also don't want to go to another doctor and be put on pills

to sleep. I'm going to an acupuncturist tomorrow to see if he can

help.

Any who, since beginning the Levoxyl, I've taken it between 6:30-7

a.m. each morning on an empty stomach and then waited an hour to

eat. I started taking 250 mg of Magnesium (always in the afternoon)

a few weeks ago after reading on-line that this is helpful w/ nerves

and muscles function. I thought it might help w/ the muscle

twitching I experience in my hands and sometimes my legs. The

movement is involuntary and that's what scares me. It's not a

charley horse or cramping sensation. In fact, until they did a

Thyroglobulin Panel in June and confirmed Hashi's, I wasn't sure if

I was hypo or hyper due to having symptoms of both. I also kind of

hoped the sleep/muscle issues might be anxiety attack related and

nothing more.

As far as symptoms that I'm " living with: " I wake up several times

each night, I'm experiencing night sweats again, there are days when

I feel like I can't talk properly b/c what I wish to say comes out

slightly wrong and I feel like I really have to concentrate when I

speak. I also feel anxious from time to time but it hasn't been as

often now that I'm on Levoxyl. I never know if I should attribute

the anxiousness to freaking out over the symptoms or if being

anxious is part of the Hashi/hypo thing. My husband and dad are

both hypo, but they don't have all the symptoms/side effects I do.

The fact I have Hashi's and I'm a woman seems to add other

dimensions to the condition. Is there hope that these can go away

w/ the right meds and vitamins? I've continued to exercise 4-5 days

a week through this b/c it helps me feel like I'm still in control

of my body to a degree. I've noticed that since going on Levoxyl,

I'm sweating again when I exercise. For a while there I didn't

sweat b/c I was always so cold.

All that said, I need to check into a high quality multi vitamin b/c

the only time I've taken them religiously was when I was expecting

my children. I've also begun looking over the web site you

mentioned. Thank you.

My apologies for being so long winded. I have three children under

the age of 10 so I take my email time when I can.

Best regards,

a

> >

> > Hi,

> > My name is a and I was diagnosed w/ Hashimoto's in June of

> this

> > year. As of late, I've spent a lot of time on the web trying to

> > determine what symptoms are " normal " and which ones aren't.

I've

> > also been trying to determine which ones may be the result of my

> > meds and which are the illness. I'm also not clear on whether

the

> > meds are suppose to elimate the symptoms or if there are some

you

> > just have to " live with? "

> > I'm currently on .05 mg of Levoxyl and while my doctor says my

> test

> > levels are good, I'm finding it difficult to get a good night's

> > sleep and I'm aware of muscle twitching/spasms. (In June, they

> > started out on .25 mg of Levoxyl and the dose was increased in

> > September b/c my TSH jumped to 54.25). As a mom to three young

> > children, I find the sleep interruptions hard b/c I get

irritable

> > from being tired and the muscle twitching leaves me w/ an

> > overwhelming feeling of fear.

> > Any input would be greatly appreciated b/c I feel so alone.

> > Thanks,

> > pk

> >

>

October 24, 2005