Introduction

[Guest guest]

Hi KerryAnn-

It doesn't sound like cf to me, but maybe it is extremely mild. Is her heel

stuck up in the back of her foot? My son was diagnosed with a mild CF and

it was not movable into a neutral position at all. Best of luck with your

appointment tomorrow. Keep us posted.

>

>Reply-To: nosurgery4clubfoot

>To: <nosurgery4clubfoot >

>Subject: Re: Re: introduction

>Date: Mon, 11 Nov 2002 18:41:14 -0500

>

>Hi!

>

>We have our first appointment tomorrow morning at 8:15 with Dr.

>at UNC Children's Hospital.

>

>We have NOT been told that it is definitely club foot. That's why we're

>going in tomorrow. I'm not sure that it is.

>

>So my question- is cf always stiff and immovable? My daughter's feet can

>be moved into a normal position, but the right foot is too kidney bean

>shaped, according to my midwife.

>

>Thanks!

>

>KerryAnn

>Tupperware Consultant

>http://my.tupperware.com/krankedyann

>Earn free Tupperware- ask me how! Book your online party today!

> corrected, and your baby will go on to have a normal life. Can her

> foot be moved into a normal position? Have you been told it's

> definitely clubfoot?

>

>

>

[Guest guest]

Hi KerryAnn-

It doesn't sound like cf to me, but maybe it is extremely mild. Is her heel

stuck up in the back of her foot? My son was diagnosed with a mild CF and

it was not movable into a neutral position at all. Best of luck with your

appointment tomorrow. Keep us posted.

>

>Reply-To: nosurgery4clubfoot

>To: <nosurgery4clubfoot >

>Subject: Re: Re: introduction

>Date: Mon, 11 Nov 2002 18:41:14 -0500

>

>Hi!

>

>We have our first appointment tomorrow morning at 8:15 with Dr.

>at UNC Children's Hospital.

>

>We have NOT been told that it is definitely club foot. That's why we're

>going in tomorrow. I'm not sure that it is.

>

>So my question- is cf always stiff and immovable? My daughter's feet can

>be moved into a normal position, but the right foot is too kidney bean

>shaped, according to my midwife.

>

>Thanks!

>

>KerryAnn

>Tupperware Consultant

>http://my.tupperware.com/krankedyann

>Earn free Tupperware- ask me how! Book your online party today!

> corrected, and your baby will go on to have a normal life. Can her

> foot be moved into a normal position? Have you been told it's

> definitely clubfoot?

>

>

>

[Guest guest]

It could also be a case of Metatarsus Adductus that your daughter has. My

oldest daughter was born with it and my second daughter was born with

bilateral clubfoot. My oldests feet were very turned in and they had that

kidney bean shape to them. Her heals were completely down though (not pushed

up like with clubfoot) and we were very easily able to pull both feet into

neutral, even past neutral. For us with the metatarsus, clubfoot was never

even a possibility, her feet were considered mild. I'm sure with metatarsus,

there are verying degrees also, like with clubfoot. Luckily our daughter

required no medical treatment what so ever, and she did indeed grow out of

it like the doctors said she would. In more severe cases of metatarsus we

were told that special shoes are worn to help with correction and sometimes

castings.

For a picture of what my oldests metatarsus looked like when she was a baby

(she is almost 6 years old now) look in my youngest daughters file in the

" files " section on this site under " " .

Best of luck to you and I hope your appointment with Dr. goes

well.

Holly and (bilateral born: 2-11-00, patient of Dr. Ponseti in Iowa)

Re: Re: introduction

>Hi!

>

>We have our first appointment tomorrow morning at 8:15 with Dr.

at UNC Children's Hospital.

>

>We have NOT been told that it is definitely club foot. That's why we're

going in tomorrow. I'm not sure that it is.

>

>So my question- is cf always stiff and immovable? My daughter's feet can

be moved into a normal position, but the right foot is too kidney bean

shaped, according to my midwife.

>

>Thanks!

>

>KerryAnn

>Tupperware Consultant

>http://my.tupperware.com/krankedyann

>Earn free Tupperware- ask me how! Book your online party today!

> corrected, and your baby will go on to have a normal life. Can her

> foot be moved into a normal position? Have you been told it's

> definitely clubfoot?

>

>

>

[Guest guest]

It could also be a case of Metatarsus Adductus that your daughter has. My

oldest daughter was born with it and my second daughter was born with

bilateral clubfoot. My oldests feet were very turned in and they had that

kidney bean shape to them. Her heals were completely down though (not pushed

up like with clubfoot) and we were very easily able to pull both feet into

neutral, even past neutral. For us with the metatarsus, clubfoot was never

even a possibility, her feet were considered mild. I'm sure with metatarsus,

there are verying degrees also, like with clubfoot. Luckily our daughter

required no medical treatment what so ever, and she did indeed grow out of

it like the doctors said she would. In more severe cases of metatarsus we

were told that special shoes are worn to help with correction and sometimes

castings.

For a picture of what my oldests metatarsus looked like when she was a baby

(she is almost 6 years old now) look in my youngest daughters file in the

" files " section on this site under " " .

Best of luck to you and I hope your appointment with Dr. goes

well.

Holly and (bilateral born: 2-11-00, patient of Dr. Ponseti in Iowa)

Re: Re: introduction

>Hi!

>

>We have our first appointment tomorrow morning at 8:15 with Dr.

at UNC Children's Hospital.

>

>We have NOT been told that it is definitely club foot. That's why we're

going in tomorrow. I'm not sure that it is.

>

>So my question- is cf always stiff and immovable? My daughter's feet can

be moved into a normal position, but the right foot is too kidney bean

shaped, according to my midwife.

>

>Thanks!

>

>KerryAnn

>Tupperware Consultant

>http://my.tupperware.com/krankedyann

>Earn free Tupperware- ask me how! Book your online party today!

> corrected, and your baby will go on to have a normal life. Can her

> foot be moved into a normal position? Have you been told it's

> definitely clubfoot?

>

>

>

[Guest guest]

It could also be a case of Metatarsus Adductus that your daughter has. My

oldest daughter was born with it and my second daughter was born with

bilateral clubfoot. My oldests feet were very turned in and they had that

kidney bean shape to them. Her heals were completely down though (not pushed

up like with clubfoot) and we were very easily able to pull both feet into

neutral, even past neutral. For us with the metatarsus, clubfoot was never

even a possibility, her feet were considered mild. I'm sure with metatarsus,

there are verying degrees also, like with clubfoot. Luckily our daughter

required no medical treatment what so ever, and she did indeed grow out of

it like the doctors said she would. In more severe cases of metatarsus we

were told that special shoes are worn to help with correction and sometimes

castings.

For a picture of what my oldests metatarsus looked like when she was a baby

(she is almost 6 years old now) look in my youngest daughters file in the

" files " section on this site under " " .

Best of luck to you and I hope your appointment with Dr. goes

well.

Holly and (bilateral born: 2-11-00, patient of Dr. Ponseti in Iowa)

Re: Re: introduction

>Hi!

>

>We have our first appointment tomorrow morning at 8:15 with Dr.

at UNC Children's Hospital.

>

>We have NOT been told that it is definitely club foot. That's why we're

going in tomorrow. I'm not sure that it is.

>

>So my question- is cf always stiff and immovable? My daughter's feet can

be moved into a normal position, but the right foot is too kidney bean

shaped, according to my midwife.

>

>Thanks!

>

>KerryAnn

>Tupperware Consultant

>http://my.tupperware.com/krankedyann

>Earn free Tupperware- ask me how! Book your online party today!

> corrected, and your baby will go on to have a normal life. Can her

> foot be moved into a normal position? Have you been told it's

> definitely clubfoot?

>

>

>

[Guest guest]

KerryAnn,

My daughter's clubfoot was pretty flexible and could almost be moved

into neutral from birth. You can see a picture of her foot at birth

in the files section under the folder " Trevillian " . We went

through 3.5 months of treatment with a non-ponseti doctor and were

told that she needed surgery to correct the foot before we switched

to the Ponseti Method. After we started going to Iowa, it took 4

casts and a tenotomy to fix her foot. So even though it was not

really " stiff " , it did take a lot of work to fix it.

I hope your appointment with Dr. goes well. Please keep us

posted!

Regards,

& (3-16-00)

left clubfoot, switched to Ponseti method at 4 months old

> Hi!

>

> We have our first appointment tomorrow morning at 8:15 with Dr.

at UNC Children's Hospital.

>

> We have NOT been told that it is definitely club foot. That's why

we're going in tomorrow. I'm not sure that it is.

>

> So my question- is cf always stiff and immovable? My daughter's

feet can be moved into a normal position, but the right foot is too

kidney bean shaped, according to my midwife.

>

> Thanks!

>

> KerryAnn

> Tupperware Consultant

> http://my.tupperware.com/krankedyann

> Earn free Tupperware- ask me how! Book your online party today!

> corrected, and your baby will go on to have a normal life. Can

her

> foot be moved into a normal position? Have you been told it's

> definitely clubfoot?

>

>

>

[Guest guest]

From my personal experience, the first three pediatricians to examine my

daughter all said it looked like metatarsusaductus (pigeon toes) which

myself and my brother-in-law had. Her foot could be moved to " normal "

position without too much pushing.

When we went to the first pediatric orthopedist, he said it was actually a

mild clubfoot and we were totally unprepared. Then when we switched to a

Ponsetti doc, she too confirmed that it was a mild clubfoot. In fact, Zoe

did not need a tenotomy. (30% of children with clubfoot do not need them

according to our doc)

Hope this helps.

Joanne W. mom to Zoe (3-25-01) right clubfoot

>

>Reply-To: nosurgery4clubfoot

>To: <nosurgery4clubfoot >

>Subject: Re: Re: introduction

>Date: Mon, 11 Nov 2002 18:41:14 -0500

>

>Hi!

>

>We have our first appointment tomorrow morning at 8:15 with Dr.

>at UNC Children's Hospital.

>

>We have NOT been told that it is definitely club foot. That's why we're

>going in tomorrow. I'm not sure that it is.

>

>So my question- is cf always stiff and immovable? My daughter's feet can

>be moved into a normal position, but the right foot is too kidney bean

>shaped, according to my midwife.

>

>Thanks!

>

>KerryAnn

>Tupperware Consultant

>http://my.tupperware.com/krankedyann

>Earn free Tupperware- ask me how! Book your online party today!

> corrected, and your baby will go on to have a normal life. Can her

> foot be moved into a normal position? Have you been told it's

> definitely clubfoot?

>

>

>

[Guest guest]

KerryAnn,

I'm sure you've already had your appointment by now but I figured I

would just let you know about . When he was born, everyone

including pediatrician swore it was just " positional " . You could

flex the foot into normal position. The pediatrician said to just

keep working on it and it would correct itself in time. At his 2

week check up a different pediatrician sent us to see an orthopaedic

surgeon to have it casted (she also swore it was just " positional " ).

Imagine our surprise when we saw the specialist a few days later and

he informed us it was a club foot. I was not prepared at all. I

just saw Dr. Ponseti yesterday for a consultation to make sure the

doctors I've been seeing here in FL are doing the right stuff, and he

(Ponseti) informed me that after reviewing the initial pictures he

believes it was a mild case and fully correctable. Please let us

know what you find out.

Thanks,

Karyn Marty Katrina and 6/11/02 R CF

> Hi!

>

> We have our first appointment tomorrow morning at 8:15 with Dr.

at UNC Children's Hospital.

>

> We have NOT been told that it is definitely club foot. That's why

we're going in tomorrow. I'm not sure that it is.

>

> So my question- is cf always stiff and immovable? My daughter's

feet can be moved into a normal position, but the right foot is too

kidney bean shaped, according to my midwife.

>

> Thanks!

>

> KerryAnn

> Tupperware Consultant

> http://my.tupperware.com/krankedyann

> Earn free Tupperware- ask me how! Book your online party today!

> corrected, and your baby will go on to have a normal life. Can

her

> foot be moved into a normal position? Have you been told it's

> definitely clubfoot?

>

>

>

[Guest guest]

KerryAnn,

I'm sure you've already had your appointment by now but I figured I

would just let you know about . When he was born, everyone

including pediatrician swore it was just " positional " . You could

flex the foot into normal position. The pediatrician said to just

keep working on it and it would correct itself in time. At his 2

week check up a different pediatrician sent us to see an orthopaedic

surgeon to have it casted (she also swore it was just " positional " ).

Imagine our surprise when we saw the specialist a few days later and

he informed us it was a club foot. I was not prepared at all. I

just saw Dr. Ponseti yesterday for a consultation to make sure the

doctors I've been seeing here in FL are doing the right stuff, and he

(Ponseti) informed me that after reviewing the initial pictures he

believes it was a mild case and fully correctable. Please let us

know what you find out.

Thanks,

Karyn Marty Katrina and 6/11/02 R CF

> Hi!

>

> We have our first appointment tomorrow morning at 8:15 with Dr.

at UNC Children's Hospital.

>

> We have NOT been told that it is definitely club foot. That's why

we're going in tomorrow. I'm not sure that it is.

>

> So my question- is cf always stiff and immovable? My daughter's

feet can be moved into a normal position, but the right foot is too

kidney bean shaped, according to my midwife.

>

> Thanks!

>

> KerryAnn

> Tupperware Consultant

> http://my.tupperware.com/krankedyann

> Earn free Tupperware- ask me how! Book your online party today!

> corrected, and your baby will go on to have a normal life. Can

her

> foot be moved into a normal position? Have you been told it's

> definitely clubfoot?

>

>

>

[Guest guest]

Hi everyone!

My name is Tammy and I am 4 1/2 months post op down 62 lbs. I want

to get pregnant as soon as possible and I have the same questions as

Amy. Basically I just want to know if I will still make goal if I

get pregnant now. I want to lose about 45 more pounds and I want to

make sure the baby is healthy. If any of you have gotten pregnant

before they were 6 months post op I would love to hear from you. I

would also love to hear from anyone that just has some insight for

me. Thanks!

Tammy

> Hello All,

>

> My name is Amy and just had Open RNY on September 19, 2002. I am 35

> years old, married and have a 3 year old son. I am 5'7 and my

> starting weight was 267, I am down to 215 right now. I feel as if I

> am losing so slowly, I have only lost 12 lbs in the last 4 weeks. I

> was wondering how long all of you waited after surgery to get

> pregnant? and if you got pregnant early on after surgery, did you

> still get to your goal weight after the pregnancy?

>

> I really would like one more child before I get too old to have

one,

> my weight has really been a factor in not getting pregnant, when I

> had my son I had lost weight and was down to 190, but after having

> him my weight went back up and its very hard for me to concieve. I

am

> hoping with this weight loss that I will get pregnant sometime in

the

> spring. I am praying and keeping my fingers crossed.

>

> I would love to hear from all of you that have delivered nice

healthy

> babies.

>

> Huggles,

> Amy Stockle

[Guest guest]

Hi everyone!

My name is Tammy and I am 4 1/2 months post op down 62 lbs. I want

to get pregnant as soon as possible and I have the same questions as

Amy. Basically I just want to know if I will still make goal if I

get pregnant now. I want to lose about 45 more pounds and I want to

make sure the baby is healthy. If any of you have gotten pregnant

before they were 6 months post op I would love to hear from you. I

would also love to hear from anyone that just has some insight for

me. Thanks!

Tammy

> Hello All,

>

> My name is Amy and just had Open RNY on September 19, 2002. I am 35

> years old, married and have a 3 year old son. I am 5'7 and my

> starting weight was 267, I am down to 215 right now. I feel as if I

> am losing so slowly, I have only lost 12 lbs in the last 4 weeks. I

> was wondering how long all of you waited after surgery to get

> pregnant? and if you got pregnant early on after surgery, did you

> still get to your goal weight after the pregnancy?

>

> I really would like one more child before I get too old to have

one,

> my weight has really been a factor in not getting pregnant, when I

> had my son I had lost weight and was down to 190, but after having

> him my weight went back up and its very hard for me to concieve. I

am

> hoping with this weight loss that I will get pregnant sometime in

the

> spring. I am praying and keeping my fingers crossed.

>

> I would love to hear from all of you that have delivered nice

healthy

> babies.

>

> Huggles,

> Amy Stockle

[Guest guest]

Hi everyone!

My name is Tammy and I am 4 1/2 months post op down 62 lbs. I want

to get pregnant as soon as possible and I have the same questions as

Amy. Basically I just want to know if I will still make goal if I

get pregnant now. I want to lose about 45 more pounds and I want to

make sure the baby is healthy. If any of you have gotten pregnant

before they were 6 months post op I would love to hear from you. I

would also love to hear from anyone that just has some insight for

me. Thanks!

Tammy

> Hello All,

>

> My name is Amy and just had Open RNY on September 19, 2002. I am 35

> years old, married and have a 3 year old son. I am 5'7 and my

> starting weight was 267, I am down to 215 right now. I feel as if I

> am losing so slowly, I have only lost 12 lbs in the last 4 weeks. I

> was wondering how long all of you waited after surgery to get

> pregnant? and if you got pregnant early on after surgery, did you

> still get to your goal weight after the pregnancy?

>

> I really would like one more child before I get too old to have

one,

> my weight has really been a factor in not getting pregnant, when I

> had my son I had lost weight and was down to 190, but after having

> him my weight went back up and its very hard for me to concieve. I

am

> hoping with this weight loss that I will get pregnant sometime in

the

> spring. I am praying and keeping my fingers crossed.

>

> I would love to hear from all of you that have delivered nice

healthy

> babies.

>

> Huggles,

> Amy Stockle

[Guest guest]

Welsome ladies! From what I have heard, it is highly suggested that

YOU WAIT until you are 1-2 years out before you start trying! Your

surgeon(s) should have discussed this with you prior to surgery.

There are MANY reasons to not attempt this this early out.... I don't

have all the stats, but I am sure you will see some real soon being

posted.

> > Hello All,

> >

> > My name is Amy and just had Open RNY on September 19, 2002. I am

35

> > years old, married and have a 3 year old son. I am 5'7 and my

> > starting weight was 267, I am down to 215 right now. I feel as if

I

> > am losing so slowly, I have only lost 12 lbs in the last 4 weeks.

I

> > was wondering how long all of you waited after surgery to get

> > pregnant? and if you got pregnant early on after surgery, did you

> > still get to your goal weight after the pregnancy?

> >

> > I really would like one more child before I get too old to have

> one,

> > my weight has really been a factor in not getting pregnant, when

I

> > had my son I had lost weight and was down to 190, but after

having

> > him my weight went back up and its very hard for me to concieve.

I

> am

> > hoping with this weight loss that I will get pregnant sometime in

> the

> > spring. I am praying and keeping my fingers crossed.

> >

> > I would love to hear from all of you that have delivered nice

> healthy

> > babies.

> >

> > Huggles,

> > Amy Stockle

[Guest guest]

Welsome ladies! From what I have heard, it is highly suggested that

YOU WAIT until you are 1-2 years out before you start trying! Your

surgeon(s) should have discussed this with you prior to surgery.

There are MANY reasons to not attempt this this early out.... I don't

have all the stats, but I am sure you will see some real soon being

posted.

> > Hello All,

> >

> > My name is Amy and just had Open RNY on September 19, 2002. I am

35

> > years old, married and have a 3 year old son. I am 5'7 and my

> > starting weight was 267, I am down to 215 right now. I feel as if

I

> > am losing so slowly, I have only lost 12 lbs in the last 4 weeks.

I

> > was wondering how long all of you waited after surgery to get

> > pregnant? and if you got pregnant early on after surgery, did you

> > still get to your goal weight after the pregnancy?

> >

> > I really would like one more child before I get too old to have

> one,

> > my weight has really been a factor in not getting pregnant, when

I

> > had my son I had lost weight and was down to 190, but after

having

> > him my weight went back up and its very hard for me to concieve.

I

> am

> > hoping with this weight loss that I will get pregnant sometime in

> the

> > spring. I am praying and keeping my fingers crossed.

> >

> > I would love to hear from all of you that have delivered nice

> healthy

> > babies.

> >

> > Huggles,

> > Amy Stockle

[Guest guest]

Welsome ladies! From what I have heard, it is highly suggested that

YOU WAIT until you are 1-2 years out before you start trying! Your

surgeon(s) should have discussed this with you prior to surgery.

There are MANY reasons to not attempt this this early out.... I don't

have all the stats, but I am sure you will see some real soon being

posted.

> > Hello All,

> >

> > My name is Amy and just had Open RNY on September 19, 2002. I am

35

> > years old, married and have a 3 year old son. I am 5'7 and my

> > starting weight was 267, I am down to 215 right now. I feel as if

I

> > am losing so slowly, I have only lost 12 lbs in the last 4 weeks.

I

> > was wondering how long all of you waited after surgery to get

> > pregnant? and if you got pregnant early on after surgery, did you

> > still get to your goal weight after the pregnancy?

> >

> > I really would like one more child before I get too old to have

> one,

> > my weight has really been a factor in not getting pregnant, when

I

> > had my son I had lost weight and was down to 190, but after

having

> > him my weight went back up and its very hard for me to concieve.

I

> am

> > hoping with this weight loss that I will get pregnant sometime in

> the

> > spring. I am praying and keeping my fingers crossed.

> >

> > I would love to hear from all of you that have delivered nice

> healthy

> > babies.

> >

> > Huggles,

> > Amy Stockle

[Guest guest]

Hi,

I waited over 2 years before getting pg, and am glad I did. I truly

believe that you have to get comfortable with NOT losing before you can

face the fact of gaining pregnancy weight. I've seen too many people

freak out during pregnancy because they weren't emotionally ready to

gain. The feeling of losing weight was too fresh in their minds. I truly

believe you should give your body a chance to settle into its new weight

before putting it through more dramatic changes. You don't want to be

losing weight throughout a pregnancy if you can help it.

While physically, people seem to do fine, emotionally, i think many have

trouble.

Just my 2 cents.

- Alice

edd 5/18/03

R wrote:

>

> Welsome ladies! From what I have heard, it is highly suggested that

> YOU WAIT until you are 1-2 years out before you start trying! Your

> surgeon(s) should have discussed this with you prior to surgery.

> There are MANY reasons to not attempt this this early out.... I don't

> have all the stats, but I am sure you will see some real soon being

> posted.

>

>

> > > Hello All,

> > >

> > > My name is Amy and just had Open RNY on September 19, 2002. I am

> 35

> > > years old, married and have a 3 year old son. I am 5'7 and my

> > > starting weight was 267, I am down to 215 right now. I feel as if

> I

> > > am losing so slowly, I have only lost 12 lbs in the last 4 weeks.

> I

> > > was wondering how long all of you waited after surgery to get

> > > pregnant? and if you got pregnant early on after surgery, did you

> > > still get to your goal weight after the pregnancy?

> > >

> > > I really would like one more child before I get too old to have

> > one,

> > > my weight has really been a factor in not getting pregnant, when

> I

> > > had my son I had lost weight and was down to 190, but after

> having

> > > him my weight went back up and its very hard for me to concieve.

> I

> > am

> > > hoping with this weight loss that I will get pregnant sometime in

> > the

> > > spring. I am praying and keeping my fingers crossed.

> > >

> > > I would love to hear from all of you that have delivered nice

> > healthy

> > > babies.

> > >

> > > Huggles,

> > > Amy Stockle

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

[Guest guest]

Hi,

I waited over 2 years before getting pg, and am glad I did. I truly

believe that you have to get comfortable with NOT losing before you can

face the fact of gaining pregnancy weight. I've seen too many people

freak out during pregnancy because they weren't emotionally ready to

gain. The feeling of losing weight was too fresh in their minds. I truly

believe you should give your body a chance to settle into its new weight

before putting it through more dramatic changes. You don't want to be

losing weight throughout a pregnancy if you can help it.

While physically, people seem to do fine, emotionally, i think many have

trouble.

Just my 2 cents.

- Alice

edd 5/18/03

R wrote:

>

> Welsome ladies! From what I have heard, it is highly suggested that

> YOU WAIT until you are 1-2 years out before you start trying! Your

> surgeon(s) should have discussed this with you prior to surgery.

> There are MANY reasons to not attempt this this early out.... I don't

> have all the stats, but I am sure you will see some real soon being

> posted.

>

>

> > > Hello All,

> > >

> > > My name is Amy and just had Open RNY on September 19, 2002. I am

> 35

> > > years old, married and have a 3 year old son. I am 5'7 and my

> > > starting weight was 267, I am down to 215 right now. I feel as if

> I

> > > am losing so slowly, I have only lost 12 lbs in the last 4 weeks.

> I

> > > was wondering how long all of you waited after surgery to get

> > > pregnant? and if you got pregnant early on after surgery, did you

> > > still get to your goal weight after the pregnancy?

> > >

> > > I really would like one more child before I get too old to have

> > one,

> > > my weight has really been a factor in not getting pregnant, when

> I

> > > had my son I had lost weight and was down to 190, but after

> having

> > > him my weight went back up and its very hard for me to concieve.

> I

> > am

> > > hoping with this weight loss that I will get pregnant sometime in

> > the

> > > spring. I am praying and keeping my fingers crossed.

> > >

> > > I would love to hear from all of you that have delivered nice

> > healthy

> > > babies.

> > >

> > > Huggles,

> > > Amy Stockle

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

[Guest guest]

Hi,

I waited over 2 years before getting pg, and am glad I did. I truly

believe that you have to get comfortable with NOT losing before you can

face the fact of gaining pregnancy weight. I've seen too many people

freak out during pregnancy because they weren't emotionally ready to

gain. The feeling of losing weight was too fresh in their minds. I truly

believe you should give your body a chance to settle into its new weight

before putting it through more dramatic changes. You don't want to be

losing weight throughout a pregnancy if you can help it.

While physically, people seem to do fine, emotionally, i think many have

trouble.

Just my 2 cents.

- Alice

edd 5/18/03

R wrote:

>

> Welsome ladies! From what I have heard, it is highly suggested that

> YOU WAIT until you are 1-2 years out before you start trying! Your

> surgeon(s) should have discussed this with you prior to surgery.

> There are MANY reasons to not attempt this this early out.... I don't

> have all the stats, but I am sure you will see some real soon being

> posted.

>

>

> > > Hello All,

> > >

> > > My name is Amy and just had Open RNY on September 19, 2002. I am

> 35

> > > years old, married and have a 3 year old son. I am 5'7 and my

> > > starting weight was 267, I am down to 215 right now. I feel as if

> I

> > > am losing so slowly, I have only lost 12 lbs in the last 4 weeks.

> I

> > > was wondering how long all of you waited after surgery to get

> > > pregnant? and if you got pregnant early on after surgery, did you

> > > still get to your goal weight after the pregnancy?

> > >

> > > I really would like one more child before I get too old to have

> > one,

> > > my weight has really been a factor in not getting pregnant, when

> I

> > > had my son I had lost weight and was down to 190, but after

> having

> > > him my weight went back up and its very hard for me to concieve.

> I

> > am

> > > hoping with this weight loss that I will get pregnant sometime in

> > the

> > > spring. I am praying and keeping my fingers crossed.

> > >

> > > I would love to hear from all of you that have delivered nice

> > healthy

> > > babies.

> > >

> > > Huggles,

> > > Amy Stockle

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

[Guest guest]

I totally agree with Alice ... I am now 9 months postop and 15 weeks pregnant.

I am having a heck of a time not losing weight anymore. I got to within 18

pounds of my goal before I got pregnant and it is incredibly difficult from an

emotional standpoint. I have to force myself to eat. It is not something I

would EVER recommend to anyone that is only 6 months postop.

My .02

Re: Re: Introduction

Hi,

I waited over 2 years before getting pg, and am glad I did. I truly

believe that you have to get comfortable with NOT losing before you can

face the fact of gaining pregnancy weight. I've seen too many people

freak out during pregnancy because they weren't emotionally ready to

gain. The feeling of losing weight was too fresh in their minds. I truly

believe you should give your body a chance to settle into its new weight

before putting it through more dramatic changes. You don't want to be

losing weight throughout a pregnancy if you can help it.

While physically, people seem to do fine, emotionally, i think many have

trouble.

Just my 2 cents.

- Alice

edd 5/18/03

R wrote:

>

> Welsome ladies! From what I have heard, it is highly suggested that

> YOU WAIT until you are 1-2 years out before you start trying! Your

> surgeon(s) should have discussed this with you prior to surgery.

> There are MANY reasons to not attempt this this early out.... I don't

> have all the stats, but I am sure you will see some real soon being

> posted.

>

>

> > > Hello All,

> > >

> > > My name is Amy and just had Open RNY on September 19, 2002. I am

> 35

> > > years old, married and have a 3 year old son. I am 5'7 and my

> > > starting weight was 267, I am down to 215 right now. I feel as if

> I

> > > am losing so slowly, I have only lost 12 lbs in the last 4 weeks.

> I

> > > was wondering how long all of you waited after surgery to get

> > > pregnant? and if you got pregnant early on after surgery, did you

> > > still get to your goal weight after the pregnancy?

> > >

> > > I really would like one more child before I get too old to have

> > one,

> > > my weight has really been a factor in not getting pregnant, when

> I

> > > had my son I had lost weight and was down to 190, but after

> having

> > > him my weight went back up and its very hard for me to concieve.

> I

> > am

> > > hoping with this weight loss that I will get pregnant sometime in

> > the

> > > spring. I am praying and keeping my fingers crossed.

> > >

> > > I would love to hear from all of you that have delivered nice

> > healthy

> > > babies.

> > >

> > > Huggles,

> > > Amy Stockle

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

[Guest guest]

I totally agree with Alice ... I am now 9 months postop and 15 weeks pregnant.

I am having a heck of a time not losing weight anymore. I got to within 18

pounds of my goal before I got pregnant and it is incredibly difficult from an

emotional standpoint. I have to force myself to eat. It is not something I

would EVER recommend to anyone that is only 6 months postop.

My .02

Re: Re: Introduction

Hi,

I waited over 2 years before getting pg, and am glad I did. I truly

believe that you have to get comfortable with NOT losing before you can

face the fact of gaining pregnancy weight. I've seen too many people

freak out during pregnancy because they weren't emotionally ready to

gain. The feeling of losing weight was too fresh in their minds. I truly

believe you should give your body a chance to settle into its new weight

before putting it through more dramatic changes. You don't want to be

losing weight throughout a pregnancy if you can help it.

While physically, people seem to do fine, emotionally, i think many have

trouble.

Just my 2 cents.

- Alice

edd 5/18/03

R wrote:

>

> Welsome ladies! From what I have heard, it is highly suggested that

> YOU WAIT until you are 1-2 years out before you start trying! Your

> surgeon(s) should have discussed this with you prior to surgery.

> There are MANY reasons to not attempt this this early out.... I don't

> have all the stats, but I am sure you will see some real soon being

> posted.

>

>

> > > Hello All,

> > >

> > > My name is Amy and just had Open RNY on September 19, 2002. I am

> 35

> > > years old, married and have a 3 year old son. I am 5'7 and my

> > > starting weight was 267, I am down to 215 right now. I feel as if

> I

> > > am losing so slowly, I have only lost 12 lbs in the last 4 weeks.

> I

> > > was wondering how long all of you waited after surgery to get

> > > pregnant? and if you got pregnant early on after surgery, did you

> > > still get to your goal weight after the pregnancy?

> > >

> > > I really would like one more child before I get too old to have

> > one,

> > > my weight has really been a factor in not getting pregnant, when

> I

> > > had my son I had lost weight and was down to 190, but after

> having

> > > him my weight went back up and its very hard for me to concieve.

> I

> > am

> > > hoping with this weight loss that I will get pregnant sometime in

> > the

> > > spring. I am praying and keeping my fingers crossed.

> > >

> > > I would love to hear from all of you that have delivered nice

> > healthy

> > > babies.

> > >

> > > Huggles,

> > > Amy Stockle

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

[Guest guest]

I totally agree with Alice ... I am now 9 months postop and 15 weeks pregnant.

I am having a heck of a time not losing weight anymore. I got to within 18

pounds of my goal before I got pregnant and it is incredibly difficult from an

emotional standpoint. I have to force myself to eat. It is not something I

would EVER recommend to anyone that is only 6 months postop.

My .02

Re: Re: Introduction

Hi,

I waited over 2 years before getting pg, and am glad I did. I truly

believe that you have to get comfortable with NOT losing before you can

face the fact of gaining pregnancy weight. I've seen too many people

freak out during pregnancy because they weren't emotionally ready to

gain. The feeling of losing weight was too fresh in their minds. I truly

believe you should give your body a chance to settle into its new weight

before putting it through more dramatic changes. You don't want to be

losing weight throughout a pregnancy if you can help it.

While physically, people seem to do fine, emotionally, i think many have

trouble.

Just my 2 cents.

- Alice

edd 5/18/03

R wrote:

>

> Welsome ladies! From what I have heard, it is highly suggested that

> YOU WAIT until you are 1-2 years out before you start trying! Your

> surgeon(s) should have discussed this with you prior to surgery.

> There are MANY reasons to not attempt this this early out.... I don't

> have all the stats, but I am sure you will see some real soon being

> posted.

>

>

> > > Hello All,

> > >

> > > My name is Amy and just had Open RNY on September 19, 2002. I am

> 35

> > > years old, married and have a 3 year old son. I am 5'7 and my

> > > starting weight was 267, I am down to 215 right now. I feel as if

> I

> > > am losing so slowly, I have only lost 12 lbs in the last 4 weeks.

> I

> > > was wondering how long all of you waited after surgery to get

> > > pregnant? and if you got pregnant early on after surgery, did you

> > > still get to your goal weight after the pregnancy?

> > >

> > > I really would like one more child before I get too old to have

> > one,

> > > my weight has really been a factor in not getting pregnant, when

> I

> > > had my son I had lost weight and was down to 190, but after

> having

> > > him my weight went back up and its very hard for me to concieve.

> I

> > am

> > > hoping with this weight loss that I will get pregnant sometime in

> > the

> > > spring. I am praying and keeping my fingers crossed.

> > >

> > > I would love to hear from all of you that have delivered nice

> > healthy

> > > babies.

> > >

> > > Huggles,

> > > Amy Stockle

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

[Guest guest]

,

I don't have much time to reply in careful detail right now, but

wanted to at least respond to your message.

First of all, congratulations on your baby on the way! Don't let the

clubfoot cloud your joy of the pregnancy.. you are fortunate to know

about it ahead of time, to line up the best care. With good treatment

your baby will do JUST FINE. " With good treatment " is the important

part of that sentence. You have already made good headway toward that

end in finding out about the Ponseti method.

PLEASE do not let what that one doctor said to you influence you to

not seek out the method. IT IS WORTH IT even if you have to travel

far to get it. I have to control myself to not get angry when I hear

what the doctor said.. it amazes me that there are still doctors out

there who are not willing to look into this method, and rely on old

gut reaction negatives based on misconceptions. If you follow the

links gave you, you will see the tide has been steadily

turning in the orthopedic community in a growing understanding of the

true nature of this method and its unquestioned success.

You are absolutely right in that there is no reason NOT to try it..

because surgery would not be done till later anyway. Why start out

with a method of casting that the doctor himself says works only 10

to 20 percent of the time, when there is a PROVEN method that works

95% of the time?

The key is getting to a doctor who knows this method and follows it

to a T. I found that a big name or big hospital means nothing with

clubfoot treatment. It's rather an understanding of the casting

method that works, time and time again, even for babies for whom

other treatment has failed. A problem can be that a doctor will " say "

he's doing the method, when he's not. You've got to get the answers

you expect to hear.. the method is so reliable, the answers should be

forthcoming and exactly what you expect: 5 to 7 casts, no more than

9, often a tenotomy, then the FAB, full time for 3 months, during

sleep for several years, success rate of 95%. If you get any hedging,

watch out..

Our child had three months of treatment which ultimately didn't work.

We were being told surgery was the next inevitable step. That's when

we went to Iowa (all the way from N.C.), and all it took was 3

Ponseti casts to correct the foot. I saw the difference first hand,

and right away. Our daughter is 2 1/2 now, running, climbing, doing

anything any kid her age can do.. and no one looking at her, even

barefoot, has any idea anything was ever wrong.

Is Baltimore an option for you? Dr. Herzenberg is highly

respected, very skilled practioner of the Ponseti method.. here's

info from him:

http://www.lifebridgehealth.org/sinaibody.cfm?id=1530

I have written this quickly, but just wanted to support you in your

gut feeling that the Ponseti method is the way to go. It truly IS as

good as it sounds. You are lucky your son is being born when he is.

Former skeptics are being won over. You happened to speak to one who

hasn't. Question more doctors, and do it carefully. They can be great

surgeons, highly respected, friendly, compassionate.. but still not

know this method and end up proposing surgery, because what they do

with casts won't correct the foot.

Also.. please don't despair about this diagnosis.. I know it seems

overwhelmingly awful at this point.. but truly it's not. You will

find the strength to do what you need to do to help your son and

might find that having gone through it, your family will be the

stronger for it. At this point I actually embrace clubfoot as

something that is a special part of my daughter, and feel it has

strengthened us in many ways.

Sorry this has gotten so long.. Hope it makes sense and that I

haven't been too blunt. Continue your research.. you'll find that

you'll end up knowing more about clubfoot treatment than some of the

doctors you speak to.. and then a year or so from now, you'll find

out that they, too, have switched to the Ponseti method. It has

happened to many parents here..

Hope you stick around and keep asking questions..

and

born June 2000,

> Hello everyone! I've been reading this message board for the last

> week or so. I thought it was time to introduce myself and our story.

>

> My wife is currently 34 weeks pregnant. We are expecting a boy! At

> the 20 week ultrasound, we were notified that bilateral clubfeet

were

> suspected. We have had several other ultrasounds since that time

and

> each has confirmed the diagnosis, although my wife and I have a

> hard time seeing it in the ultrasound ourselves. We can see the

> bones of the feet and they look " normal " .

>

> While we continue to pray that this is a misdiagnosis, I am trying

to

> get prepared and informed for immediate treatment following birth.

I

> sent an email to Dr. Ponseti, which was answered by his secretary

as

> he was on vacation. We live in Tennessee (lin) and have found

> no local doctors practicing the Ponseti method. We were directed to

> Drs. Busch and sey in Atlanta. I emailed Dr. Busch and was

> referred to the Vanderbilt Pediatric Orthopedic group. We met with

> Dr. Mencio last week to discuss his philosophy on treatment. I am

> very thankful for that consultation, as he mentions that surgery is

> required for 80-90% of his patients. He begins treatment with

serial

> casting, below the knee for 3 months. Surgery follows at 6 months.

> This was very disheartening because he added that he didn't believe

> in the Ponseti technique, which placed a grain of doubt in our

> minds. This is especially upsetting as we have great respect for

> those doctors. I am sure that he is a great doctor, but I would

> prefer to give non-surgical treatment a chance.

>

> All of the information that I have seen indicate that the Ponseti

> method has a very high success rate, without surgery and other

> complications. I am leaning toward this treatment because I have

> seen very little negative comments, and rarely a negative outcome.

> If for some reason surgery should be necessary, our child would

still

> be under 6-8 months old and I would know that I gave him the best

> shot at treatment without surgery.

>

> We are located halfway between Louiville KY and Atlanta. If anyone

> knows of doctors, other than Busch and sey, in these

locations,

> please let me know. We are searching for options. Of course, our

> first line of defense is praying that the ultrasound is wrong. We

> are leaning toward Drs. Busch/sey as they were so helpful via

> email. However, we have family in Louisville that could be helpful.

>

> I would appreciate any assistance that might help us find

alternative

> doctors, and affirm our decision to use the Ponseti method.

>

> Regards,

>

[Guest guest]

,

Hello and Congratulations on your baby boy. My daughter Isabella

was born in october and we also found out in ultrasounds that she

would have bilateral clubbed feet. I was fortunate to find a ponsetti

doctor in kansas city. We are moving back to Tennessee in the next

few months and we have found No ponsetti doctors in Tennessee. So we

are going to go to Dr.Dobbs at shriners in St. Louis, i have emailed

him and he is a wonderful man. I have heard from other members of

this board about how nice and how good he was. Also there is a

Doctor in Lexington Ky. Dr.Talwalker, he is practicing the ponsetti

method but Dr.Ponsetti said he isn't listed on his site yet because

he hasn't gotten some paper work in about how it is working with his

patients. He is also at the shriners hospital. There is a lady on

this board whose daughter has been seen by him in Lexington and she

said he was good. Do not get discouraged by what the doctor from

Vanderbilt said. If he said 80 to 90 percent of his patients require

surgery i would seek another opinion. It is so worth the traveling

to get the ponsetti method done. We went weekly 2 1/2 hours away for

5 weeks to get it done. Some people even go to Iowa City to see

Dr.Ponsetti himself. I am willing to drive the 4 1/2 hours to see

Dr.Dobbs in St. Louis just to get a ponsetti doctor. What i have

read about surgery and what the long term affects of it, scared me.

My daughter is now 3 months old and has been in the DBB for a month

in a half and has no problems. Her feet are straight and look

beautiful. I look back to when she was born and it amazes me that

her feet looked so bad and now they look perfect with no surgery. I

was overwhelmed when i found out that she was going to have bilateral

clubbed feet and i cried and blamed myself but now everything is

fine. I thank god for Dr.Ponsetti.

Again Congratulations on your new baby. We will be moving Near

Nashville soon so if you want to talk just let us know.

(Isabella born 10-12-02 bilateral clubbed feet)

> Hello everyone! I've been reading this message board for the last

> week or so. I thought it was time to introduce myself and our story.

>

> My wife is currently 34 weeks pregnant. We are expecting a boy! At

> the 20 week ultrasound, we were notified that bilateral clubfeet

were

> suspected. We have had several other ultrasounds since that time

and

> each has confirmed the diagnosis, although my wife and I have a

> hard time seeing it in the ultrasound ourselves. We can see the

> bones of the feet and they look " normal " .

>

> While we continue to pray that this is a misdiagnosis, I am trying

to

> get prepared and informed for immediate treatment following birth.

I

> sent an email to Dr. Ponseti, which was answered by his secretary

as

> he was on vacation. We live in Tennessee (lin) and have found

> no local doctors practicing the Ponseti method. We were directed to

> Drs. Busch and sey in Atlanta. I emailed Dr. Busch and was

> referred to the Vanderbilt Pediatric Orthopedic group. We met with

> Dr. Mencio last week to discuss his philosophy on treatment. I am

> very thankful for that consultation, as he mentions that surgery is

> required for 80-90% of his patients. He begins treatment with

serial

> casting, below the knee for 3 months. Surgery follows at 6 months.

> This was very disheartening because he added that he didn't believe

> in the Ponseti technique, which placed a grain of doubt in our

> minds. This is especially upsetting as we have great respect for

> those doctors. I am sure that he is a great doctor, but I would

> prefer to give non-surgical treatment a chance.

>

> All of the information that I have seen indicate that the Ponseti

> method has a very high success rate, without surgery and other

> complications. I am leaning toward this treatment because I have

> seen very little negative comments, and rarely a negative outcome.

> If for some reason surgery should be necessary, our child would

still

> be under 6-8 months old and I would know that I gave him the best

> shot at treatment without surgery.

>

> We are located halfway between Louiville KY and Atlanta. If anyone

> knows of doctors, other than Busch and sey, in these

locations,

> please let me know. We are searching for options. Of course, our

> first line of defense is praying that the ultrasound is wrong. We

> are leaning toward Drs. Busch/sey as they were so helpful via

> email. However, we have family in Louisville that could be helpful.

>

> I would appreciate any assistance that might help us find

alternative

> doctors, and affirm our decision to use the Ponseti method.

>

> Regards,

>

[Guest guest]

Dear ,

My name is and I live in Phoenix. My daughter Alison was born with

severe bilateral clubfeet. I initially saw an ortho here in Phoenix who

wanted to do the same as your doctor. He told us about the Ponseti method

(which we were already aware of) but stated he thought there was " more to it "

and it wouldn't work for Alison.

We decided to seek out Dr. Ponseti. He fixed Alison's feet. It has been 2

yrs since. I mailed that Doctor pictures of Alison's corrected feet. Now

every time we see him (for other ortho reasons) he looks and Alison's feet

first and states he is amazed! The Ponseti method works!

[Guest guest]

,

I hope also that this is just a misdiagnosis, but if not, it is very

correctable. Please, do NOT let what that Dr. said discourage you.

It is a very emotional rollercoaster in the beginning. We did not

know until our son was born that he had clubfoot. We have two local

orthopedic surgeons. The first one we saw told us we were " lucky to

have him " because where he did his internship he worked with

clubfoot. He told us he would put our son in casts for one year and

then we would see how many surgeries he would need. When he

manipulated his foot, screamed, and that Dr. never looked at

anything but his foot. We saw the second Dr. when he was one week

old. (He wasn't in casts yet because the 1st Dr. said he didn't

begin casting until 2 weeks of age ((I now wonder if this was due to

his busy scedule or his need to do some research)). In the meantime

we had been searching the internet and had found out about Ponseti

and had applied to a Shriner's Hospital. The 2nd Dr. told us we

needed to cast him that day that we were not doing our child any

favors. I told him I wish I had known before he was born about his

CF so I could have been prepared and had all my research done. He

said, " What do you mean known before? " And I said that they would

have found it by ultrasond. And he proceeded to tell me that you

cannot find out by ultrasound. I disagreed with him because of what

I had read on the net. But he stood his ground saying there was no

way to know. He was at the time carrying at least 50 cases of CF.

He did not cast him that day. It concerned me that he didn't even

know you could find out by ultrasound. So as I said don't let what

one Dr. says influence your decision greatly. He told us that

would be in casts for 6 months and then multiple surgeries on both

feet. His feet were classified as moderate to severe. We live in

Madisonville, KY (about 2 hours from you). We see Dr. Dobbs in St.

Louis, MO. I cannot say enough wonderful things about him. He is at

Shriner's Hospital and also has his own office. was casted

from 2 1/2 weeks old, until he went into the DBB at 10 weeks old. He

is now part-time in the DBB (12-14 hrs/day) and doing great.

Walking, no, running all over the place! He NEVER cries with Dr.

Dobbs. And if I do see babies that cry, you also see Dr. Dobbs

picking them up " making his peace with them " . It does seem so very

overwhelming in the beginning, but just be glad you are able to

gather all this information now. Search the net for all the clubfoot

pages you can find and read peoples stories and look at the

pictures. That was a great help for me. Good Luck to you and if I

can be of any assistance, please don't hesitate to contact me. I

could even talk with your wife by phone if that would be helpful.

Pam and (8-12-01)

> Hello everyone! I've been reading this message board for the last

> week or so. I thought it was time to introduce myself and our story.

>

> My wife is currently 34 weeks pregnant. We are expecting a boy! At

> the 20 week ultrasound, we were notified that bilateral clubfeet

were

> suspected. We have had several other ultrasounds since that time

and

> each has confirmed the diagnosis, although my wife and I have a

> hard time seeing it in the ultrasound ourselves. We can see the

> bones of the feet and they look " normal " .

>

> While we continue to pray that this is a misdiagnosis, I am trying

to

> get prepared and informed for immediate treatment following birth.

I

> sent an email to Dr. Ponseti, which was answered by his secretary

as

> he was on vacation. We live in Tennessee (lin) and have found

> no local doctors practicing the Ponseti method. We were directed to

> Drs. Busch and sey in Atlanta. I emailed Dr. Busch and was

> referred to the Vanderbilt Pediatric Orthopedic group. We met with

> Dr. Mencio last week to discuss his philosophy on treatment. I am

> very thankful for that consultation, as he mentions that surgery is

> required for 80-90% of his patients. He begins treatment with

serial

> casting, below the knee for 3 months. Surgery follows at 6 months.

> This was very disheartening because he added that he didn't believe

> in the Ponseti technique, which placed a grain of doubt in our

> minds. This is especially upsetting as we have great respect for

> those doctors. I am sure that he is a great doctor, but I would

> prefer to give non-surgical treatment a chance.

>

> All of the information that I have seen indicate that the Ponseti

> method has a very high success rate, without surgery and other

> complications. I am leaning toward this treatment because I have

> seen very little negative comments, and rarely a negative outcome.

> If for some reason surgery should be necessary, our child would

still

> be under 6-8 months old and I would know that I gave him the best

> shot at treatment without surgery.

>

> We are located halfway between Louiville KY and Atlanta. If anyone

> knows of doctors, other than Busch and sey, in these

locations,

> please let me know. We are searching for options. Of course, our

> first line of defense is praying that the ultrasound is wrong. We

> are leaning toward Drs. Busch/sey as they were so helpful via

> email. However, we have family in Louisville that could be helpful.

>

> I would appreciate any assistance that might help us find

alternative

> doctors, and affirm our decision to use the Ponseti method.

>

> Regards,

>