Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 Great to have you here Jodi! I just got back OP (on program) Sunday and I've been really impressed w/ this group. And to think I originally joined up to check out the latest WWCalc. What was I thinking?! 175/157/130 New Here I just wanted to introduce myself. I am new to the list, I am Jodi and have been on WW for a few months now. I was attending the meetings but my husband lost his job and now I am going ot try it on my own until he find something else. It has been very slow and excited to try the new Flex Points. How has it been going for everyone? Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 Great to have you here Jodi! I just got back OP (on program) Sunday and I've been really impressed w/ this group. And to think I originally joined up to check out the latest WWCalc. What was I thinking?! 175/157/130 New Here I just wanted to introduce myself. I am new to the list, I am Jodi and have been on WW for a few months now. I was attending the meetings but my husband lost his job and now I am going ot try it on my own until he find something else. It has been very slow and excited to try the new Flex Points. How has it been going for everyone? Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 >It has been very slow and excited to try the new Flex Points. >How has it been going for everyone? Welcome Jodi )!!!!!!!! I hope your husband finds a job soon. I'm really enjoying the FP. I think it's much easier than the previous plans. Looking forward to getting back to goal with it. Be a F.R.O.G., GLYSDI, I love living in the FOG Gymmie, Tae and Bo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 I am in Tucson. We met a really good audi who wants to help but our insurance won't let us see her. She has been kind enough to go ahead and review his papers and tests and write up her opinion of him but we can't use her to order the FM system we want because she isn't a provider. The audiologists our insurance does cover, two aren't even qualified to read an ABR and the other two work at an ENT's office and have little or no experience with kids like . We are considering transfering that portion of his care to Phoenix, as we have done with his neurosurgical needs. >From: momnaudrey@... >Reply-To: Listen-Up >To: Listen-Up >Subject: Re: New here >Date: Mon, 29 Sep 2003 11:11:44 EDT > _________________________________________________________________ Add MSN 8 Internet Software to your existing Internet access and enjoy patented spam protection and more. Sign up now! http://join.msn.com/?page=dept/byoa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 Hi Sharon, Welcome to the group! I am glad you found us. You are very fortunate to have gone through three successful pregnancies with no trouble. Your precious family sounds just lovely. There is a list of questions you can find at the yahoo site, under " files " on the left hand menu. I think Cy was the author of these. I will paste them at the end of this email for you. Before I do, just let me encourage you to please do find a Nephrologist and keep an eye on your labs. Questions to ask your Nephrologist When learning about your disease, it's always been my handle that more is more. Off the top of my head, a reasonable set of questions might include: 1) What's your urine protein? How is it measured (dipstick, pro/creat ratio, 24 hour)? Why is it being measured that way instead of some other way? What significance does the doc read into those values? 2) What metrics does he base that mid-term conclusion on (i.e. GFR, biopsy, other)? 3) Can he explain any biopsy results (if a biopsy was done)? 4) What's your creatinine level? What range can you expect your results to fall in? When do you start worrying? How have they changed so far? 5) What markers does he look at for disease progression? 6) How often does he think the disease should be assessed this at this time? How often does he want to do blood work and urinalysis? 7) What about treatment? How does he treat his other IgAN patients? Why? 8) What's your hemoglobin and hematocrit? If these are abnormal, what does he recommend? 9) Any dietary restrictions? 10) What is your blood pressure? How often should you be taking it? If hypertension is a problem, what solutions can he offer? 11) What's the best way to get lab results to you? 12) What medications should you be taking? 13) What is your potassium level? 14) What is your creatinine clearance level? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 Hi Sharon, Welcome to the group! I am glad you found us. You are very fortunate to have gone through three successful pregnancies with no trouble. Your precious family sounds just lovely. There is a list of questions you can find at the yahoo site, under " files " on the left hand menu. I think Cy was the author of these. I will paste them at the end of this email for you. Before I do, just let me encourage you to please do find a Nephrologist and keep an eye on your labs. Questions to ask your Nephrologist When learning about your disease, it's always been my handle that more is more. Off the top of my head, a reasonable set of questions might include: 1) What's your urine protein? How is it measured (dipstick, pro/creat ratio, 24 hour)? Why is it being measured that way instead of some other way? What significance does the doc read into those values? 2) What metrics does he base that mid-term conclusion on (i.e. GFR, biopsy, other)? 3) Can he explain any biopsy results (if a biopsy was done)? 4) What's your creatinine level? What range can you expect your results to fall in? When do you start worrying? How have they changed so far? 5) What markers does he look at for disease progression? 6) How often does he think the disease should be assessed this at this time? How often does he want to do blood work and urinalysis? 7) What about treatment? How does he treat his other IgAN patients? Why? 8) What's your hemoglobin and hematocrit? If these are abnormal, what does he recommend? 9) Any dietary restrictions? 10) What is your blood pressure? How often should you be taking it? If hypertension is a problem, what solutions can he offer? 11) What's the best way to get lab results to you? 12) What medications should you be taking? 13) What is your potassium level? 14) What is your creatinine clearance level? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 Hi Sharon, Welcome to the group! I am glad you found us. You are very fortunate to have gone through three successful pregnancies with no trouble. Your precious family sounds just lovely. There is a list of questions you can find at the yahoo site, under " files " on the left hand menu. I think Cy was the author of these. I will paste them at the end of this email for you. Before I do, just let me encourage you to please do find a Nephrologist and keep an eye on your labs. Questions to ask your Nephrologist When learning about your disease, it's always been my handle that more is more. Off the top of my head, a reasonable set of questions might include: 1) What's your urine protein? How is it measured (dipstick, pro/creat ratio, 24 hour)? Why is it being measured that way instead of some other way? What significance does the doc read into those values? 2) What metrics does he base that mid-term conclusion on (i.e. GFR, biopsy, other)? 3) Can he explain any biopsy results (if a biopsy was done)? 4) What's your creatinine level? What range can you expect your results to fall in? When do you start worrying? How have they changed so far? 5) What markers does he look at for disease progression? 6) How often does he think the disease should be assessed this at this time? How often does he want to do blood work and urinalysis? 7) What about treatment? How does he treat his other IgAN patients? Why? 8) What's your hemoglobin and hematocrit? If these are abnormal, what does he recommend? 9) Any dietary restrictions? 10) What is your blood pressure? How often should you be taking it? If hypertension is a problem, what solutions can he offer? 11) What's the best way to get lab results to you? 12) What medications should you be taking? 13) What is your potassium level? 14) What is your creatinine clearance level? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 Hi Sharon, It's always great when a lurker surfaces. No need to apologise for length! It always makes my day to here postive stories. If you have problems finding the questions referred to, just let us know. I hope you find that neph... and that your labs haven't changed since you were 17! Please let us know how it goes. Dealing with new docs can be a bit stressful Cy New here > Hi all! I have been lurking here for a few weeks. Ya'll have a great group of pepole here. There is so much information, it's really unbelievable! Well I guess I should tell ya'll a little bit about myself, I'm 29 Have a wonderful husband and 3 spectacular kids. They are 5, 3, and 1, and the light of my life. I was diagnosed when I was 8. At the time I guess they really didn't know much about IgAN, we were told at the time that the only time they thought I might have a problem was when I started menstration or when I had children. So I just went on my merry way. I know I have been extremely lucky to have gone thruogh all of my pregnancies with no problems. I haven't had any lab work done for my kidneys since I was 17. I'm so sorry this is so long , I just want to get it all out there! Now that that is all out I have a few questions for ya'll. I am trying to find a Neph and would like to know some questions that I should ask. I know it has been a long time since my diagnosis, but I feel almost like I have just found out. I know that probably sounds silly. I just didn't know anything. All of the information that ya'll have shared has really helped me a lot. If ya'll can come up with some questions I would really appreciate it. Again I'm sorry this is so long, Sharon > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 Hi Sharon, It's always great when a lurker surfaces. No need to apologise for length! It always makes my day to here postive stories. If you have problems finding the questions referred to, just let us know. I hope you find that neph... and that your labs haven't changed since you were 17! Please let us know how it goes. Dealing with new docs can be a bit stressful Cy New here > Hi all! I have been lurking here for a few weeks. Ya'll have a great group of pepole here. There is so much information, it's really unbelievable! Well I guess I should tell ya'll a little bit about myself, I'm 29 Have a wonderful husband and 3 spectacular kids. They are 5, 3, and 1, and the light of my life. I was diagnosed when I was 8. At the time I guess they really didn't know much about IgAN, we were told at the time that the only time they thought I might have a problem was when I started menstration or when I had children. So I just went on my merry way. I know I have been extremely lucky to have gone thruogh all of my pregnancies with no problems. I haven't had any lab work done for my kidneys since I was 17. I'm so sorry this is so long , I just want to get it all out there! Now that that is all out I have a few questions for ya'll. I am trying to find a Neph and would like to know some questions that I should ask. I know it has been a long time since my diagnosis, but I feel almost like I have just found out. I know that probably sounds silly. I just didn't know anything. All of the information that ya'll have shared has really helped me a lot. If ya'll can come up with some questions I would really appreciate it. Again I'm sorry this is so long, Sharon > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 Hi Sharon, It's always great when a lurker surfaces. No need to apologise for length! It always makes my day to here postive stories. If you have problems finding the questions referred to, just let us know. I hope you find that neph... and that your labs haven't changed since you were 17! Please let us know how it goes. Dealing with new docs can be a bit stressful Cy New here > Hi all! I have been lurking here for a few weeks. Ya'll have a great group of pepole here. There is so much information, it's really unbelievable! Well I guess I should tell ya'll a little bit about myself, I'm 29 Have a wonderful husband and 3 spectacular kids. They are 5, 3, and 1, and the light of my life. I was diagnosed when I was 8. At the time I guess they really didn't know much about IgAN, we were told at the time that the only time they thought I might have a problem was when I started menstration or when I had children. So I just went on my merry way. I know I have been extremely lucky to have gone thruogh all of my pregnancies with no problems. I haven't had any lab work done for my kidneys since I was 17. I'm so sorry this is so long , I just want to get it all out there! Now that that is all out I have a few questions for ya'll. I am trying to find a Neph and would like to know some questions that I should ask. I know it has been a long time since my diagnosis, but I feel almost like I have just found out. I know that probably sounds silly. I just didn't know anything. All of the information that ya'll have shared has really helped me a lot. If ya'll can come up with some questions I would really appreciate it. Again I'm sorry this is so long, Sharon > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 > Hello, > > My husband has recently been diagnosed with Atrial Flutter. I realize this is a little different than afib, but I thought some of you might be familiar with it. Here's the link to aflutter info on the afib foundation web site: http://www.affacts.org/Questions/flutter.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 > Hello, > > My husband has recently been diagnosed with Atrial Flutter. I realize this is a little different than afib, but I thought some of you might be familiar with it. Here's the link to aflutter info on the afib foundation web site: http://www.affacts.org/Questions/flutter.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Welcome to the group. 12 years is great! Congratulations! I just passed my 15th year May 24th. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com New here Just thought I'd check in here to see what is the latest about BC; and to see if I could help in any way. My 12th "birthday" as a cancer survivor comes up Aug. 21st. Had a partial mastectomy; 14 lymph nodes removed, and 6 weeks of radiation. Lymph nodes were neg. If I can be of any help; please let me know. Know a BB on old Prodigy helped me so much. Bets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Welcome to the group. 12 years is great! Congratulations! I just passed my 15th year May 24th. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com New here Just thought I'd check in here to see what is the latest about BC; and to see if I could help in any way. My 12th "birthday" as a cancer survivor comes up Aug. 21st. Had a partial mastectomy; 14 lymph nodes removed, and 6 weeks of radiation. Lymph nodes were neg. If I can be of any help; please let me know. Know a BB on old Prodigy helped me so much. Bets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi and welcome to the group. I am sorry to hear about your sister. Please feel free to vent, cry etc. We will do our best to be there for you. I will keep you in my prayers. Hugs nne > Hello everyone. I'm new to the group. My name is LaCinda but I go by > . I am a 23 SAHM to girls and married to a wonderful man. I lost > my sister on June 3rd of this year to breast cancer. And have been > trying to find a group for support. Thank you for letting me join > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi and welcome to the group. I am sorry to hear about your sister. Please feel free to vent, cry etc. We will do our best to be there for you. I will keep you in my prayers. Hugs nne > Hello everyone. I'm new to the group. My name is LaCinda but I go by > . I am a 23 SAHM to girls and married to a wonderful man. I lost > my sister on June 3rd of this year to breast cancer. And have been > trying to find a group for support. Thank you for letting me join > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi and welcome to the group. I am sorry to hear about your sister. Please feel free to vent, cry etc. We will do our best to be there for you. I will keep you in my prayers. Hugs nne > Hello everyone. I'm new to the group. My name is LaCinda but I go by > . I am a 23 SAHM to girls and married to a wonderful man. I lost > my sister on June 3rd of this year to breast cancer. And have been > trying to find a group for support. Thank you for letting me join > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Thank You. My sister and I were very close and it's still hard to believe she is gone. She got diagnosed last October with Breast Cancer and she was 3 months pregnant with my youngest nephew she said from that day she was going to win the battle. I know in my heart that she is in a better place but it doesn't help the hurt yet. I still want to call her and see how she is doing. My husband and I moved from Missouri to Washington about 3 days before she passed away so we then had to go back to Missouri for the funeral. I know she stayed with us until we got here. That was the one promise she made me make. -- Re: new here Hi and welcome to the group. I am sorry to hear about your sister.Please feel free to vent, cry etc. We will do our best to be there for you. I will keep you in my prayers.Hugsnne> Hello everyone. I'm new to the group. My name is LaCinda but I go by > . I am a 23 SAHM to girls and married to a wonderful man. I lost > my sister on June 3rd of this year to breast cancer. And have been > trying to find a group for support. Thank you for letting me join> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Thank You. My sister and I were very close and it's still hard to believe she is gone. She got diagnosed last October with Breast Cancer and she was 3 months pregnant with my youngest nephew she said from that day she was going to win the battle. I know in my heart that she is in a better place but it doesn't help the hurt yet. I still want to call her and see how she is doing. My husband and I moved from Missouri to Washington about 3 days before she passed away so we then had to go back to Missouri for the funeral. I know she stayed with us until we got here. That was the one promise she made me make. -- Re: new here Hi and welcome to the group. I am sorry to hear about your sister.Please feel free to vent, cry etc. We will do our best to be there for you. I will keep you in my prayers.Hugsnne> Hello everyone. I'm new to the group. My name is LaCinda but I go by > . I am a 23 SAHM to girls and married to a wonderful man. I lost > my sister on June 3rd of this year to breast cancer. And have been > trying to find a group for support. Thank you for letting me join> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Thank You. My sister and I were very close and it's still hard to believe she is gone. She got diagnosed last October with Breast Cancer and she was 3 months pregnant with my youngest nephew she said from that day she was going to win the battle. I know in my heart that she is in a better place but it doesn't help the hurt yet. I still want to call her and see how she is doing. My husband and I moved from Missouri to Washington about 3 days before she passed away so we then had to go back to Missouri for the funeral. I know she stayed with us until we got here. That was the one promise she made me make. -- Re: new here Hi and welcome to the group. I am sorry to hear about your sister.Please feel free to vent, cry etc. We will do our best to be there for you. I will keep you in my prayers.Hugsnne> Hello everyone. I'm new to the group. My name is LaCinda but I go by > . I am a 23 SAHM to girls and married to a wonderful man. I lost > my sister on June 3rd of this year to breast cancer. And have been > trying to find a group for support. Thank you for letting me join> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 Welcome , you have found a good group. Ren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 Welcome , you have found a good group. Ren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 Welcome , you have found a good group. Ren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 Hi , I'm a 10 year survivor but I'm also living the other side as my sister has liver mets now and has been for over a year. Welcome to our group. Where in Missouri were you? I'm in Kansas City. Sharonlacinda drake wrote: Thank You. My sister and I were very close and it's still hard to believe she is gone. She got diagnosed last October with Breast Cancer and she was 3 months pregnant with my youngest nephew she said from that day she was going to win the battle. I know in my heart that she is in a better place but it doesn't help the hurt yet. I still want to call her and see how she is doing. My husband and I moved from Missouri to Washington about 3 days before she passed away so we then had to go back to Missouri for the funeral. I know she stayed with us until we got here. That was the one promise she made me make. -- Re: new here Hi and welcome to the group. I am sorry to hear about your sister.Please feel free to vent, cry etc. We will do our best to be there for you. I will keep you in my prayers.Hugsnne> Hello everyone. I'm new to the group. My name is LaCinda but I go by > . I am a 23 SAHM to girls and married to a wonderful man. I lost > my sister on June 3rd of this year to breast cancer. And have been > trying to find a group for support. Thank you for letting me join> > Start your day with Yahoo! - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 Hi , I'm a 10 year survivor but I'm also living the other side as my sister has liver mets now and has been for over a year. Welcome to our group. Where in Missouri were you? I'm in Kansas City. Sharonlacinda drake wrote: Thank You. My sister and I were very close and it's still hard to believe she is gone. She got diagnosed last October with Breast Cancer and she was 3 months pregnant with my youngest nephew she said from that day she was going to win the battle. I know in my heart that she is in a better place but it doesn't help the hurt yet. I still want to call her and see how she is doing. My husband and I moved from Missouri to Washington about 3 days before she passed away so we then had to go back to Missouri for the funeral. I know she stayed with us until we got here. That was the one promise she made me make. -- Re: new here Hi and welcome to the group. I am sorry to hear about your sister.Please feel free to vent, cry etc. We will do our best to be there for you. I will keep you in my prayers.Hugsnne> Hello everyone. I'm new to the group. My name is LaCinda but I go by > . I am a 23 SAHM to girls and married to a wonderful man. I lost > my sister on June 3rd of this year to breast cancer. And have been > trying to find a group for support. Thank you for letting me join> > Start your day with Yahoo! - make it your home page Quote Link to comment Share on other sites More sharing options...
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