Question

[Guest guest]

> I've only been on ww a couple of weeks. What does NSV stand for?

> The others I've figured out. Thanks,

> Sue, UT

Non Scale Victory......something we brag about besides losses......like

clothes fitting better, a compliment from someone, doing well at a buffet

etc. Something that has to do with our weightloss that has nothing to do

with the numbers on the scale.

Moe

234/212

[Guest guest]

> I've only been on ww a couple of weeks. What does NSV stand for?

> The others I've figured out. Thanks,

> Sue, UT

Non Scale Victory......something we brag about besides losses......like

clothes fitting better, a compliment from someone, doing well at a buffet

etc. Something that has to do with our weightloss that has nothing to do

with the numbers on the scale.

Moe

234/212

[Guest guest]

Non-Scale Victory

Sue wrote:

> I've only been on ww a couple of weeks. What does NSV stand for?

> The others I've figured out. Thanks,

> Sue, UT

>

>

>

[Guest guest]

Non-Scale Victory

Sue wrote:

> I've only been on ww a couple of weeks. What does NSV stand for?

> The others I've figured out. Thanks,

> Sue, UT

>

>

>

[Guest guest]

Non-Scale Victory

Sue wrote:

> I've only been on ww a couple of weeks. What does NSV stand for?

> The others I've figured out. Thanks,

> Sue, UT

>

>

>

[Guest guest]

Well, let's hope it's nothing serious. There are other kidney disease

besides IgAN that produce blood and protein in the urine. If it is IgAN, and

you say they might not be able to do a biopsy, it's important to note that

many people go for years and years with IgAN without ever having a biopsy

done. I myself didn't have a biopsy until 16 years after the symptoms first

appeared. They often won't do a biopsy until the symptoms are more

significant anyway. Good luck.

Pierre

P.S. We don't have any doctors here. It's a place for patients to support

each other.

question

> I have a question I have jkidney problims let me take you through the

> story. I have hemochromotosis Ie I cant metablize iron. Well we had been

> noticing blood in the uran and was just watching it. well last year I

> had a live biopsey becuse the liver is one area hit hard by high iron.

> so I have a liver biopsey every two years well when they did it ct

> guided they noticed on the right kidney three spots and on the left two

> spots. and so the liver gastro doc sent me to a kidney doc he said the

> spots dont fit what his thinking was iga but with ht eblood nd proteen

> in the uran and the kidney function he was postive that it was iga he

> got me in for a kidney biopsey and that didnt show iga so he said he is

> realy up in the area he said all the sighns and symptoms show iga but

> the biopsey doesnt show that. then we have these spots. are they cycts a

> tummer he doesnt know he dont want to biopsey them becuse with

> hemochromostis your risk for orgain cancer is real high and if they are

> a tummmer and they go and poke a hole in it it would follow the path of

> the needle and spread . any body have any ideas also today I went for a

> ct scan of the kidneys becuse of the spots to see if they have changed

> well I was seting in the tech room were they shoot from and look at

> afterwords frinds with th etech. he notcied the uritors are huge which

> they wernt. so he shoot some plain film x rays to see if they can see

> any thing with those. I will here from the kidney doc on monday any body

> have ideas.

>

>

[Guest guest]

Well, let's hope it's nothing serious. There are other kidney disease

besides IgAN that produce blood and protein in the urine. If it is IgAN, and

you say they might not be able to do a biopsy, it's important to note that

many people go for years and years with IgAN without ever having a biopsy

done. I myself didn't have a biopsy until 16 years after the symptoms first

appeared. They often won't do a biopsy until the symptoms are more

significant anyway. Good luck.

Pierre

P.S. We don't have any doctors here. It's a place for patients to support

each other.

question

> I have a question I have jkidney problims let me take you through the

> story. I have hemochromotosis Ie I cant metablize iron. Well we had been

> noticing blood in the uran and was just watching it. well last year I

> had a live biopsey becuse the liver is one area hit hard by high iron.

> so I have a liver biopsey every two years well when they did it ct

> guided they noticed on the right kidney three spots and on the left two

> spots. and so the liver gastro doc sent me to a kidney doc he said the

> spots dont fit what his thinking was iga but with ht eblood nd proteen

> in the uran and the kidney function he was postive that it was iga he

> got me in for a kidney biopsey and that didnt show iga so he said he is

> realy up in the area he said all the sighns and symptoms show iga but

> the biopsey doesnt show that. then we have these spots. are they cycts a

> tummer he doesnt know he dont want to biopsey them becuse with

> hemochromostis your risk for orgain cancer is real high and if they are

> a tummmer and they go and poke a hole in it it would follow the path of

> the needle and spread . any body have any ideas also today I went for a

> ct scan of the kidneys becuse of the spots to see if they have changed

> well I was seting in the tech room were they shoot from and look at

> afterwords frinds with th etech. he notcied the uritors are huge which

> they wernt. so he shoot some plain film x rays to see if they can see

> any thing with those. I will here from the kidney doc on monday any body

> have ideas.

>

>

[Guest guest]

Well, let's hope it's nothing serious. There are other kidney disease

besides IgAN that produce blood and protein in the urine. If it is IgAN, and

you say they might not be able to do a biopsy, it's important to note that

many people go for years and years with IgAN without ever having a biopsy

done. I myself didn't have a biopsy until 16 years after the symptoms first

appeared. They often won't do a biopsy until the symptoms are more

significant anyway. Good luck.

Pierre

P.S. We don't have any doctors here. It's a place for patients to support

each other.

question

> I have a question I have jkidney problims let me take you through the

> story. I have hemochromotosis Ie I cant metablize iron. Well we had been

> noticing blood in the uran and was just watching it. well last year I

> had a live biopsey becuse the liver is one area hit hard by high iron.

> so I have a liver biopsey every two years well when they did it ct

> guided they noticed on the right kidney three spots and on the left two

> spots. and so the liver gastro doc sent me to a kidney doc he said the

> spots dont fit what his thinking was iga but with ht eblood nd proteen

> in the uran and the kidney function he was postive that it was iga he

> got me in for a kidney biopsey and that didnt show iga so he said he is

> realy up in the area he said all the sighns and symptoms show iga but

> the biopsey doesnt show that. then we have these spots. are they cycts a

> tummer he doesnt know he dont want to biopsey them becuse with

> hemochromostis your risk for orgain cancer is real high and if they are

> a tummmer and they go and poke a hole in it it would follow the path of

> the needle and spread . any body have any ideas also today I went for a

> ct scan of the kidneys becuse of the spots to see if they have changed

> well I was seting in the tech room were they shoot from and look at

> afterwords frinds with th etech. he notcied the uritors are huge which

> they wernt. so he shoot some plain film x rays to see if they can see

> any thing with those. I will here from the kidney doc on monday any body

> have ideas.

>

>

[Guest guest]

Darlene: I am with on this, sounds like your writing my song.

ren

[Guest guest]

herceptin is giving through iv drip i think it works like those others

carolDarlene and Kate wrote:

If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene

[Guest guest]

herceptin is giving through iv drip i think it works like those others

carolDarlene and Kate wrote:

If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene

[Guest guest]

herceptin is giving through iv drip i think it works like those others

carolDarlene and Kate wrote:

If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene

[Guest guest]

Carol

Yes, that is the norm protocol for Her2 patients. I have been on Herceptin since Sept of 02. I get a treatment ( through IV at home ) every 3 weeks. I go to my oncologist every 9 wks. I feel no different with the Herceptin except maybe, and that is not always, a little tired the next day. But it is hard to tell because I am always doing something. You do not get nauseus, sick, pain etc.

Angel Hugs

Judy Re: Question

herceptin is giving through iv drip i think it works like those others

carolDarlene and Kate wrote:

If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene

[Guest guest]

Carol

Yes, that is the norm protocol for Her2 patients. I have been on Herceptin since Sept of 02. I get a treatment ( through IV at home ) every 3 weeks. I go to my oncologist every 9 wks. I feel no different with the Herceptin except maybe, and that is not always, a little tired the next day. But it is hard to tell because I am always doing something. You do not get nauseus, sick, pain etc.

Angel Hugs

Judy Re: Question

herceptin is giving through iv drip i think it works like those others

carolDarlene and Kate wrote:

If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene

[Guest guest]

Carol

Yes, that is the norm protocol for Her2 patients. I have been on Herceptin since Sept of 02. I get a treatment ( through IV at home ) every 3 weeks. I go to my oncologist every 9 wks. I feel no different with the Herceptin except maybe, and that is not always, a little tired the next day. But it is hard to tell because I am always doing something. You do not get nauseus, sick, pain etc.

Angel Hugs

Judy Re: Question

herceptin is giving through iv drip i think it works like those others

carolDarlene and Kate wrote:

If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene

[Guest guest]

So, either a person is on herceptin or Femara or Arimidex or another

type of drug? I'm on Arimidex. Why would someone be on herceptin

instead of the Femara, arimidex ect? I see my oco every 3 months

being on the Arimidex. So I guess my question is: Her2 patients can

be on the other drugs instead of the herceptin? What does the

herceptin do that the other drugs don't do? Any one know?

thanks everyone

Darlene

-- In breastcancer2 , HeyJude615@a... wrote:

> Carol

>

> Yes, that is the norm protocol for Her2 patients. I have been on

Herceptin since Sept of 02. I get a treatment ( through IV at home )

every 3 weeks. I go to my oncologist every 9 wks. I feel no different

with the Herceptin except maybe, and that is not always, a little

tired the next day. But it is hard to tell because I am always doing

something. You do not get nauseus, sick, pain etc.

>

> Angel Hugs

> Judy

>

> Re: Question

>

>

> herceptin is giving through iv drip i think it works like those

others

> carol

>

> Darlene and Kate <andwemet03@y...> wrote:

> If you're her2 +, is the norm to be on herceptin? I've heard of

this

> and know what it does, but how is it taken? And does herceptin work

> like the oral drugs like Femara, Arimidex or is it used along with

> these drugs?

> Thanks for any input

> Darlene

>

>

>

>

>

>

[Guest guest]

So, either a person is on herceptin or Femara or Arimidex or another

type of drug? I'm on Arimidex. Why would someone be on herceptin

instead of the Femara, arimidex ect? I see my oco every 3 months

being on the Arimidex. So I guess my question is: Her2 patients can

be on the other drugs instead of the herceptin? What does the

herceptin do that the other drugs don't do? Any one know?

thanks everyone

Darlene

-- In breastcancer2 , HeyJude615@a... wrote:

> Carol

>

> Yes, that is the norm protocol for Her2 patients. I have been on

Herceptin since Sept of 02. I get a treatment ( through IV at home )

every 3 weeks. I go to my oncologist every 9 wks. I feel no different

with the Herceptin except maybe, and that is not always, a little

tired the next day. But it is hard to tell because I am always doing

something. You do not get nauseus, sick, pain etc.

>

> Angel Hugs

> Judy

>

> Re: Question

>

>

> herceptin is giving through iv drip i think it works like those

others

> carol

>

> Darlene and Kate <andwemet03@y...> wrote:

> If you're her2 +, is the norm to be on herceptin? I've heard of

this

> and know what it does, but how is it taken? And does herceptin work

> like the oral drugs like Femara, Arimidex or is it used along with

> these drugs?

> Thanks for any input

> Darlene

>

>

>

>

>

>

[Guest guest]

Darlene

The hereceptin if for HER2 only. The other drugs I believe are for estrogen positive DX's.

I never had a option of any other drug but the Hereptin. Are you estrogen positive?

angel Hugs

Judy Re: Question

> > > herceptin is giving through iv drip i think it works like those others

> carol

> > Darlene and Kate <andwemet03@y...> wrote:

> If you're her2 +, is the norm to be on herceptin? I've heard of this > and know what it does, but how is it taken? And does herceptin work > like the oral drugs like Femara, Arimidex or is it used along with > these drugs?

> Thanks for any input

> Darlene

> > > > > >

[Guest guest]

thanks so very much; I've heard of her before. Actually I saw her on

Oprah some time ago, I think the topic at that time was about meno.

I was looking back at some of the info I got from the onco doc.

regarding my options and stuff. Mine was invasive ductal stage II.

Estrogen + 15%, Her2 +2. It's hard to think and remember back then.

From what I have at my finger tips:

15% estogen

Her2 +2

my KI 67 was elevated

CA 125 ekevated as well

Anyway......I forgot where I was going with this :-) imagine that???

Hope your day is a good one........it sure is hot out there!!!!!

Darlene

In breastcancer2 , " nancee32000 " <pineriverl@a...>

wrote:

> -Darlene, I just checked my " Dr. Loves " BREAST BOOK, it

looks

> like Herceptin is used on those who over express the Her2-nu gene

and

> have Metastatic Disease. I love this book. It answers so many

> questions. You can also go to her web site for information.

> Hugs Nancee-- In breastcancer2 , " Darlene and Kate "

> <andwemet03@y...> wrote:

> > So, either a person is on herceptin or Femara or Arimidex or

> another

> > type of drug? I'm on Arimidex. Why would someone be on

herceptin

> > instead of the Femara, arimidex ect? I see my oco every 3 months

> > being on the Arimidex. So I guess my question is: Her2 patients

> can

> > be on the other drugs instead of the herceptin? What does the

> > herceptin do that the other drugs don't do? Any one know?

> > thanks everyone

> > Darlene

> >

> >

> >

> >

> > -- In breastcancer2 , HeyJude615@a... wrote:

> > > Carol

> > >

> > > Yes, that is the norm protocol for Her2 patients. I have been

on

> > Herceptin since Sept of 02. I get a treatment ( through IV at

> home )

> > every 3 weeks. I go to my oncologist every 9 wks. I feel no

> different

> > with the Herceptin except maybe, and that is not always, a little

> > tired the next day. But it is hard to tell because I am always

> doing

> > something. You do not get nauseus, sick, pain etc.

> > >

> > > Angel Hugs

> > > Judy

> > >

> > > Re: Question

> > >

> > >

> > > herceptin is giving through iv drip i think it works like those

> > others

> > > carol

> > >

> > > Darlene and Kate <andwemet03@y...> wrote:

> > > If you're her2 +, is the norm to be on herceptin? I've heard of

> > this

> > > and know what it does, but how is it taken? And does herceptin

> work

> > > like the oral drugs like Femara, Arimidex or is it used along

> with

> > > these drugs?

> > > Thanks for any input

> > > Darlene

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

yes herceptin is for her2 only and yes the other drugs are for estrogen positive cancer. one is for menopausal and the other is for post menopausal.

carolHeyJude615@... wrote:

Darlene

The hereceptin if for HER2 only. The other drugs I believe are for estrogen positive DX's.

I never had a option of any other drug but the Hereptin. Are you estrogen positive?

angel Hugs

Judy Re: Question

> > > herceptin is giving through iv drip i think it works like those others

> carol

> > Darlene and Kate <andwemet03@y...> wrote:

> If you're her2 +, is the norm to be on herceptin? I've heard of this > and know what it does, but how is it taken? And does herceptin work > like the oral drugs like Femara, Arimidex or is it used along with > these drugs?

> Thanks for any input

> Darlene

> > > > > >

[Guest guest]

Wow, Darlene. Didn't have chemo (one of the " lucky " ones); but, I

sure can relate to the sweating and aches and pains. I was put on

Tamoxifin (sp) and thanks to a support group just like this on old

prodigy; I took myself off it after 8 mos. Don't know how old you

are; or how far you are past your treatments, but, at 63, it was

like going through the change all over again; but, worse. Then, all

the info came out about it. My older sister by 2 yrs. just finished

her radiation treatments earlier this year; they put her on a new

drug; she quit her's already; as they were causing her so much pain

and distress. She said and I agree, at our age, we have enough

aches and pains; we don't need meds to cause more. It's always good

to be able to " vent " at some place like this, who understands what

you are going through. Hang in there; and hope tomorrow is better

for ya. (((((((((((Big hugs, Darlene)))))))))) No expert here,

just know how you feel. Bets

> Has anyone had any long term pain through all this? Muscle and

joint

> pain for instance? How about sweating? I now sweat like

crazy!!!! The

> water just pours off my face like a faucet.

> Some one said: life is not the same since chemo. How true is

that.

> One of the hardest things to do is adjust to a new life. I'm

trying

> but not doing so good, the road is long. I too thought that once

I got

> through all the tx, life would be back to normal. (My PT

therapist

> keeps telling me: normal is a setting on the washing machine :-))

> I've been doing PT for about 10 months now.

> My pain dr. now says she thinks I have fibromyalgia.......Oh, is

that

> what it is? Doesn't matter what they call it.......it's pain. The

> muscle and joiint pain with the taxol wasn't this bad. I'm doing

> better with pain management though.

> Chemo brain isn't fun either, at least not in public :-)

> I forgot what I was originally going to write and ended up

> babling.........thanks for listening........and thanks for all

your

> support.

> Darlene

[Guest guest]

If you are her positive, the herceptin blocks the cell marker that tells any breast cancer cells in your body to reproduce. If you are ER positive you would also take an estrogen blocking drug like arimidex or tamoxifen since your cancer feeds off of estrogen. I am not ER or PR positive so those blockers do not have any use in my treatment. Before herceptin the prognosis was much worse for women with HER positive cancers. It's a good thing we have it now.

[Guest guest]

Sorry, I was so long in my last message. Anyhooo, can anyone tell me about Taxol? I'm having the A/C and will finish in August, then the lumpectomy, including taking a couple of lymph nodes. If they are positive, I'll be taking the 4 doses of Taxol. What are they like? Just trying to prepare myself. Gail

[Guest guest]

HI Gail

I had taxol. For me it was very strong, but mine was mixed with Carpoplatin which is very strong. It kicked my butt. I had terrible pain in my joins the second and third day after the chemo then I was fine. But I survivied it and hope to spend many more days on this earth!

Good luck, and keep up teh fight!

Angel Hugs

Judy

JUDY

[Guest guest]

Gail: I had taxol and I had a lot of bone pain. It was over before you know it. Stay tough.

ren