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Dear Meagan,

IUGR stands for inter uterine growth retardation. MAs are at risk for this

because our uterus is often smaller providing less room for the little one/ones.

They start testing for this via US around 28 weeks. There are other reasons

besides a MA that would put a women at risk, but I don't remember what they are.

I hope this helps.

Eleanor

BU/35

34 wks. preg.

1mc

>

> Date: 2003/12/22 Mon AM 06:23:44 GMT

> To: MullerianAnomalies

> Subject: Re: question

>

>

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Dear Meagan,

IUGR stands for inter uterine growth retardation. MAs are at risk for this

because our uterus is often smaller providing less room for the little one/ones.

They start testing for this via US around 28 weeks. There are other reasons

besides a MA that would put a women at risk, but I don't remember what they are.

I hope this helps.

Eleanor

BU/35

34 wks. preg.

1mc

>

> Date: 2003/12/22 Mon AM 06:23:44 GMT

> To: MullerianAnomalies

> Subject: Re: question

>

>

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Share on other sites

Dear Meagan,

IUGR stands for inter uterine growth retardation. MAs are at risk for this

because our uterus is often smaller providing less room for the little one/ones.

They start testing for this via US around 28 weeks. There are other reasons

besides a MA that would put a women at risk, but I don't remember what they are.

I hope this helps.

Eleanor

BU/35

34 wks. preg.

1mc

>

> Date: 2003/12/22 Mon AM 06:23:44 GMT

> To: MullerianAnomalies

> Subject: Re: question

>

>

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Dear ,

IUGR - in Canada at least, has been " renamed " the more politically

correct " intrauterine growth restriction " (instead

of " retardation " ) - I have some experience with it, as I have UD and

had " suspected IUGR " with all 3 kids. There can be all kinds of

reasons for IUGR, and there are two types - symmetrical and

asymmetrical. In the first type, the baby is just proportionately

smaller than average for gestational age, in all aspects. This type

of IUGR is more likely caused by genetic issues, and can accompany

other syndromes/issues. Asymmetrical IUGR is when the baby is

disproportionately smaller, meaning that its head continues to grow

at a faster rate and the torso/limbs slow down in growth. Often,

this is caused by environmental issues - meaning issues with the

uterus. Either restricted room, such as with MA's, sometimes

maternal malnutrition, or, as has been discussed here recently,

abnormal/lesser blood flow to the placenta. I believe a " normal "

uterus has a certain number of main blood vessels supplying it,

whereas an MA uterus may have fewer, so the baby compensates for

this limitation by continuing to grow its brain, while limiting

other body growth. There is obviously significant variation in the

severity of IUGR. In mild IUGR, the baby is generally monitored and

may be allowed to go to term. In severe IUGR, pre-term delivery is

sometimes indicated, once the baby is sufficiently developed, on the

theory that the baby is better off in special care than in a uterus

that isn't providing an optimal environment.

That is just my layperson's take on IUGR. There are TONS of

resources on this topic online, try a few search engines, you will

find many articles. Best of luck, try not to worry about it too

much in advance. All my kids were " suspected IUGR " and were just

over 6 lbs at full term. Once born, they caught up very quickly and

now are in the 75 percentile + for their age in height and weight.

Lia

UD

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Dear ,

IUGR - in Canada at least, has been " renamed " the more politically

correct " intrauterine growth restriction " (instead

of " retardation " ) - I have some experience with it, as I have UD and

had " suspected IUGR " with all 3 kids. There can be all kinds of

reasons for IUGR, and there are two types - symmetrical and

asymmetrical. In the first type, the baby is just proportionately

smaller than average for gestational age, in all aspects. This type

of IUGR is more likely caused by genetic issues, and can accompany

other syndromes/issues. Asymmetrical IUGR is when the baby is

disproportionately smaller, meaning that its head continues to grow

at a faster rate and the torso/limbs slow down in growth. Often,

this is caused by environmental issues - meaning issues with the

uterus. Either restricted room, such as with MA's, sometimes

maternal malnutrition, or, as has been discussed here recently,

abnormal/lesser blood flow to the placenta. I believe a " normal "

uterus has a certain number of main blood vessels supplying it,

whereas an MA uterus may have fewer, so the baby compensates for

this limitation by continuing to grow its brain, while limiting

other body growth. There is obviously significant variation in the

severity of IUGR. In mild IUGR, the baby is generally monitored and

may be allowed to go to term. In severe IUGR, pre-term delivery is

sometimes indicated, once the baby is sufficiently developed, on the

theory that the baby is better off in special care than in a uterus

that isn't providing an optimal environment.

That is just my layperson's take on IUGR. There are TONS of

resources on this topic online, try a few search engines, you will

find many articles. Best of luck, try not to worry about it too

much in advance. All my kids were " suspected IUGR " and were just

over 6 lbs at full term. Once born, they caught up very quickly and

now are in the 75 percentile + for their age in height and weight.

Lia

UD

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Dear ,

IUGR - in Canada at least, has been " renamed " the more politically

correct " intrauterine growth restriction " (instead

of " retardation " ) - I have some experience with it, as I have UD and

had " suspected IUGR " with all 3 kids. There can be all kinds of

reasons for IUGR, and there are two types - symmetrical and

asymmetrical. In the first type, the baby is just proportionately

smaller than average for gestational age, in all aspects. This type

of IUGR is more likely caused by genetic issues, and can accompany

other syndromes/issues. Asymmetrical IUGR is when the baby is

disproportionately smaller, meaning that its head continues to grow

at a faster rate and the torso/limbs slow down in growth. Often,

this is caused by environmental issues - meaning issues with the

uterus. Either restricted room, such as with MA's, sometimes

maternal malnutrition, or, as has been discussed here recently,

abnormal/lesser blood flow to the placenta. I believe a " normal "

uterus has a certain number of main blood vessels supplying it,

whereas an MA uterus may have fewer, so the baby compensates for

this limitation by continuing to grow its brain, while limiting

other body growth. There is obviously significant variation in the

severity of IUGR. In mild IUGR, the baby is generally monitored and

may be allowed to go to term. In severe IUGR, pre-term delivery is

sometimes indicated, once the baby is sufficiently developed, on the

theory that the baby is better off in special care than in a uterus

that isn't providing an optimal environment.

That is just my layperson's take on IUGR. There are TONS of

resources on this topic online, try a few search engines, you will

find many articles. Best of luck, try not to worry about it too

much in advance. All my kids were " suspected IUGR " and were just

over 6 lbs at full term. Once born, they caught up very quickly and

now are in the 75 percentile + for their age in height and weight.

Lia

UD

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The only time our daughter ever had a foul smell coming from her ears is

when she had an outer ear infection from putting her ear molds in before her

ear dried out after a bath. She would not be good about telling us her ear

hurt because she would be afraid we would take her hearing aids away in

order to clear up the infection. Maybe she doesn't let her ear canal dry

out enough after washing her hair before she puts in her molds? Maybe the

dampness turns to an unpleasant smell without any infection. Just a

thought.........Tish

> Hi, I have a question. My daughter has worn digital hearing aids for 6

> years now. In the past 2 weeks or so I notice an odor on her aids and

> ears. She has no pain, or discharge. Just a bad smell. She did pluck

> out a huge piece

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The only time our daughter ever had a foul smell coming from her ears is

when she had an outer ear infection from putting her ear molds in before her

ear dried out after a bath. She would not be good about telling us her ear

hurt because she would be afraid we would take her hearing aids away in

order to clear up the infection. Maybe she doesn't let her ear canal dry

out enough after washing her hair before she puts in her molds? Maybe the

dampness turns to an unpleasant smell without any infection. Just a

thought.........Tish

> Hi, I have a question. My daughter has worn digital hearing aids for 6

> years now. In the past 2 weeks or so I notice an odor on her aids and

> ears. She has no pain, or discharge. Just a bad smell. She did pluck

> out a huge piece

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The only time our daughter ever had a foul smell coming from her ears is

when she had an outer ear infection from putting her ear molds in before her

ear dried out after a bath. She would not be good about telling us her ear

hurt because she would be afraid we would take her hearing aids away in

order to clear up the infection. Maybe she doesn't let her ear canal dry

out enough after washing her hair before she puts in her molds? Maybe the

dampness turns to an unpleasant smell without any infection. Just a

thought.........Tish

> Hi, I have a question. My daughter has worn digital hearing aids for 6

> years now. In the past 2 weeks or so I notice an odor on her aids and

> ears. She has no pain, or discharge. Just a bad smell. She did pluck

> out a huge piece

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I don't know the answer, but I can tell you that the same thing happened to my

daughter (2 1/2) about a month ago. One morning, I noticed a foul smell from one

ear, not really strong but definitely there if you put your nose up to her ear.

It was a Saturday morning and we had to see the " on-call " pediatrician. We

cancelled all plans and spent more than an hour in the waiting room, but I did

not want to take any chances with Jessie's ears. The doctor looked and said her

ears looked fine. He said that ear wax sometimes just has an odor. I'm not sure

if I believe him or not, but the odor was gone by nightfall. Jessie has a

bilateral loss, but I kept taking out the aid on that side every hour for

ventilation that day. She would have it in one hour and out one hour and so on.

Jessie does well with just one aid although I always try to make her wear both.

I'm wondering if anyone else has an answer.

H.

question

Hi, I have a question. My daughter has worn digital hearing aids for 6

years now. In the past 2 weeks or so I notice an odor on her aids and

ears. She has no pain, or discharge. Just a bad smell. She did pluck

out a huge piece of earwax about a month ago. During school

nonetheless. I was wondering if anyone elese has had this experience.

The pediatrician says it looks fine. Should I see a specialist? Thank

you, / Ma

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

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I don't know the answer, but I can tell you that the same thing happened to my

daughter (2 1/2) about a month ago. One morning, I noticed a foul smell from one

ear, not really strong but definitely there if you put your nose up to her ear.

It was a Saturday morning and we had to see the " on-call " pediatrician. We

cancelled all plans and spent more than an hour in the waiting room, but I did

not want to take any chances with Jessie's ears. The doctor looked and said her

ears looked fine. He said that ear wax sometimes just has an odor. I'm not sure

if I believe him or not, but the odor was gone by nightfall. Jessie has a

bilateral loss, but I kept taking out the aid on that side every hour for

ventilation that day. She would have it in one hour and out one hour and so on.

Jessie does well with just one aid although I always try to make her wear both.

I'm wondering if anyone else has an answer.

H.

question

Hi, I have a question. My daughter has worn digital hearing aids for 6

years now. In the past 2 weeks or so I notice an odor on her aids and

ears. She has no pain, or discharge. Just a bad smell. She did pluck

out a huge piece of earwax about a month ago. During school

nonetheless. I was wondering if anyone elese has had this experience.

The pediatrician says it looks fine. Should I see a specialist? Thank

you, / Ma

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

------------------------------------------------------------------------------

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I don't know the answer, but I can tell you that the same thing happened to my

daughter (2 1/2) about a month ago. One morning, I noticed a foul smell from one

ear, not really strong but definitely there if you put your nose up to her ear.

It was a Saturday morning and we had to see the " on-call " pediatrician. We

cancelled all plans and spent more than an hour in the waiting room, but I did

not want to take any chances with Jessie's ears. The doctor looked and said her

ears looked fine. He said that ear wax sometimes just has an odor. I'm not sure

if I believe him or not, but the odor was gone by nightfall. Jessie has a

bilateral loss, but I kept taking out the aid on that side every hour for

ventilation that day. She would have it in one hour and out one hour and so on.

Jessie does well with just one aid although I always try to make her wear both.

I'm wondering if anyone else has an answer.

H.

question

Hi, I have a question. My daughter has worn digital hearing aids for 6

years now. In the past 2 weeks or so I notice an odor on her aids and

ears. She has no pain, or discharge. Just a bad smell. She did pluck

out a huge piece of earwax about a month ago. During school

nonetheless. I was wondering if anyone elese has had this experience.

The pediatrician says it looks fine. Should I see a specialist? Thank

you, / Ma

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

------------------------------------------------------------------------------

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I don't have experience with hearing aids, but I can tell you with orthotics

which are worn on the skin for long periods of time throughout the day, they

sweat which leaves a residue and over time it smells. I don't know if you clean

them on a regular basis but you might think about that and ask about that. I

would call the ENT or audi and ask them, they will probably give you advice on

how to clean them.

question

Hi, I have a question. My daughter has worn digital hearing aids for 6

years now. In the past 2 weeks or so I notice an odor on her aids and

ears. She has no pain, or discharge. Just a bad smell. She did pluck

out a huge piece of earwax about a month ago. During school

nonetheless. I was wondering if anyone elese has had this experience.

The pediatrician says it looks fine. Should I see a specialist? Thank

you, / Ma

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

------------------------------------------------------------------------------

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Share on other sites

I don't have experience with hearing aids, but I can tell you with orthotics

which are worn on the skin for long periods of time throughout the day, they

sweat which leaves a residue and over time it smells. I don't know if you clean

them on a regular basis but you might think about that and ask about that. I

would call the ENT or audi and ask them, they will probably give you advice on

how to clean them.

question

Hi, I have a question. My daughter has worn digital hearing aids for 6

years now. In the past 2 weeks or so I notice an odor on her aids and

ears. She has no pain, or discharge. Just a bad smell. She did pluck

out a huge piece of earwax about a month ago. During school

nonetheless. I was wondering if anyone elese has had this experience.

The pediatrician says it looks fine. Should I see a specialist? Thank

you, / Ma

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

------------------------------------------------------------------------------

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Share on other sites

I don't have experience with hearing aids, but I can tell you with orthotics

which are worn on the skin for long periods of time throughout the day, they

sweat which leaves a residue and over time it smells. I don't know if you clean

them on a regular basis but you might think about that and ask about that. I

would call the ENT or audi and ask them, they will probably give you advice on

how to clean them.

question

Hi, I have a question. My daughter has worn digital hearing aids for 6

years now. In the past 2 weeks or so I notice an odor on her aids and

ears. She has no pain, or discharge. Just a bad smell. She did pluck

out a huge piece of earwax about a month ago. During school

nonetheless. I was wondering if anyone elese has had this experience.

The pediatrician says it looks fine. Should I see a specialist? Thank

you, / Ma

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

------------------------------------------------------------------------------

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I have been wearing hearing aids for 11 yrs. Every week I check my aids for any

build up such as wax or etc. Once a month I clean my ear mold with whitch hazel

or rubbing alcohol. That might prevent some of the odor that u might be talking

about. These cleaning habits have worked fine for me since I have been wearing

aids.

Cammy

Hi, I have a question. My daughter has worn digital hearing aids for 6

years now. In the past 2 weeks or so I notice an odor on her aids and

ears. She has no pain, or discharge. Just a bad smell. She did pluck

out a huge piece of earwax about a month ago. During school

nonetheless. I was wondering if anyone elese has had this experience.

The pediatrician says it looks fine. Should I see a specialist? Thank

you, / Ma

Sign up for Internet Service under $10 dollars a month, at

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Hi - my younger son, Sam, when he was little had a nasty smell in his ears

(he wears hearing aids). What we thought was wax turned out to be RICE!

Evidently they had a rice table at daycare and Sam slept on the floor on a mat

for nap without his aids in. So I guess he picked up rice and put it in his

ear. We're still not quite sure why he did that but checking for a foreign body

might be worth it.

Good luck!

Barbara

wrote---

Hi, I have a question. My daughter has worn digital hearing aids for 6

years now. In the past 2 weeks or so I notice an odor on her aids and

ears. She has no pain, or discharge. Just a bad smell. She did pluck

out a huge piece of earwax about a month ago. During school

nonetheless. I was wondering if anyone elese has had this experience.

The pediatrician says it looks fine. Should I see a specialist? Thank

you, / Ma

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Oh that's too much! I think it is moisture affecting the smell. She

does put her aids in too early after swimming/bath ect. For the past

couple days (to her torture) I have been making her wait a while before

putting them in. We've been blow drying her hair and ears and it really

seems to help. Also I did see some wax in the molds which I cleaned out

good. Thank you all for the suggestions. Thanks Barbara! /MA

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What we thought was wax turned out to be RICE!

> Evidently they had a rice table at daycare and Sam slept on the

floor on a mat

> for nap without his aids in.

Barbara;

I moved my daughter out of daycare & to a stay at home Mom's house

very recently. I did it primarily because she is so suseptible to

catching colds, flu, bronchitis, & I thought being in a home would be

better for her healthwise.

We got her hearing aides approx 3 weeks after the change. Now that

we have had her hearing aid for about a month, I just could not see

her functioning as well in a daycare setting.

Unfortunately, this is just a temp situation, through Mar & we may

very well have to go back to daycare.

Were the teachers very receptive to learning how to care for the

hearing aids? Lindsi is only 19 months old, so she can not put her

own aids in & out. What special requests did you ask of your son's

caregivers?

Thanks,

Debby

Mom to Lindsi (19 months) from Jiangxi

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Hi Debby - My boys now both are in elementary school - Sam is in third grade (of

the rice table fame) and Tom is in 5th. Sam has a profound loss and Tom's is

severe - they both wear two hearing aids.

Both my boys started out in a home daycare setting with only a few kids and then

moved to a daycare center when they were around 18 months old that was part of a

retirement community (it's called Kendal and is run by the Quakers - they have

Kendals around the country, usually in towns that have universities). Their

daycare setting was really good - it wasn't large and the teachers were

extremely receptive to both our boys and their hearing aids. They took part in

IEP meetings and were very open and responsive to the various specialists who

were there on a regular basis (sped, teacher of the deaf, speech pathologist).

I really loved Kendal for them - not only did they get to interact with kids

their age, but also with the " residents " who lived there. It was sort of like

having a bunch of surrogate grandparents for them (our families are in W.Va. so

we're a long way from there in NH).

They did catch the usual daycare diseases pretty often although Kendal was

careful about it. I think that's hard to avoid with any group of kids.

I remember my older son - who is now 11 and has worn hearing aids since he was

3-1/2 - saying to me " I know old people wear hearing aids, do big people [mom

and dad's age] also wear hearing aids and will I wear heairng aids when I grow

up? " . I almost cried but then realized where he was coming from - mom and dad

don't wear hearing aids and neither do most of our adult friends - so it really

raised some good discussions. I'm very grateful for them being there and

realize what a special, unique situation it was.

Debby wrote---

Barbara;

I moved my daughter out of daycare & to a stay at home Mom's house

very recently. I did it primarily because she is so suseptible to

catching colds, flu, bronchitis, & I thought being in a home would be

better for her healthwise.

We got her hearing aides approx 3 weeks after the change. Now that

we have had her hearing aid for about a month, I just could not see

her functioning as well in a daycare setting.

Unfortunately, this is just a temp situation, through Mar & we may

very well have to go back to daycare.

Were the teachers very receptive to learning how to care for the

hearing aids? Lindsi is only 19 months old, so she can not put her

own aids in & out. What special requests did you ask of your son's

caregivers?

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Hi Debby - My boys now both are in elementary school - Sam is in third grade (of

the rice table fame) and Tom is in 5th. Sam has a profound loss and Tom's is

severe - they both wear two hearing aids.

Both my boys started out in a home daycare setting with only a few kids and then

moved to a daycare center when they were around 18 months old that was part of a

retirement community (it's called Kendal and is run by the Quakers - they have

Kendals around the country, usually in towns that have universities). Their

daycare setting was really good - it wasn't large and the teachers were

extremely receptive to both our boys and their hearing aids. They took part in

IEP meetings and were very open and responsive to the various specialists who

were there on a regular basis (sped, teacher of the deaf, speech pathologist).

I really loved Kendal for them - not only did they get to interact with kids

their age, but also with the " residents " who lived there. It was sort of like

having a bunch of surrogate grandparents for them (our families are in W.Va. so

we're a long way from there in NH).

They did catch the usual daycare diseases pretty often although Kendal was

careful about it. I think that's hard to avoid with any group of kids.

I remember my older son - who is now 11 and has worn hearing aids since he was

3-1/2 - saying to me " I know old people wear hearing aids, do big people [mom

and dad's age] also wear hearing aids and will I wear heairng aids when I grow

up? " . I almost cried but then realized where he was coming from - mom and dad

don't wear hearing aids and neither do most of our adult friends - so it really

raised some good discussions. I'm very grateful for them being there and

realize what a special, unique situation it was.

Debby wrote---

Barbara;

I moved my daughter out of daycare & to a stay at home Mom's house

very recently. I did it primarily because she is so suseptible to

catching colds, flu, bronchitis, & I thought being in a home would be

better for her healthwise.

We got her hearing aides approx 3 weeks after the change. Now that

we have had her hearing aid for about a month, I just could not see

her functioning as well in a daycare setting.

Unfortunately, this is just a temp situation, through Mar & we may

very well have to go back to daycare.

Were the teachers very receptive to learning how to care for the

hearing aids? Lindsi is only 19 months old, so she can not put her

own aids in & out. What special requests did you ask of your son's

caregivers?

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  • 2 months later...
Guest guest

Hi Louise,

I agree with everything Grazia said!

It has been virtually impossible to see my complete septum on an

ultrasound since I was around 16 weeks - an u/s operator has to have

experience looking for (and identifying) this sort of thing if s/he

hopes to spot one during pregnancy. This is why many doctors believe

the rate of MAs to be higher than we think - most women never know

they have one, and you often can't spot the SU after 14 or 18 weeks,

when many women with " normal " pregnancies have their first

ultrasounds.

Also, its impossible to diagnose with 100% accuracy via u/s or HSG

whether you are BU or SU, esp, when pregnant I would imagine.

I would absolutely see another perinatologist - the one you saw

sounds terrible!

Good luck,

a

35

26 weeks pg

Complete SU (diagnosed by lap/hyst)

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Guest guest

Hi Louise,

I agree with everything Grazia said!

It has been virtually impossible to see my complete septum on an

ultrasound since I was around 16 weeks - an u/s operator has to have

experience looking for (and identifying) this sort of thing if s/he

hopes to spot one during pregnancy. This is why many doctors believe

the rate of MAs to be higher than we think - most women never know

they have one, and you often can't spot the SU after 14 or 18 weeks,

when many women with " normal " pregnancies have their first

ultrasounds.

Also, its impossible to diagnose with 100% accuracy via u/s or HSG

whether you are BU or SU, esp, when pregnant I would imagine.

I would absolutely see another perinatologist - the one you saw

sounds terrible!

Good luck,

a

35

26 weeks pg

Complete SU (diagnosed by lap/hyst)

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Guest guest

Hi Louise,

I agree with everything Grazia said!

It has been virtually impossible to see my complete septum on an

ultrasound since I was around 16 weeks - an u/s operator has to have

experience looking for (and identifying) this sort of thing if s/he

hopes to spot one during pregnancy. This is why many doctors believe

the rate of MAs to be higher than we think - most women never know

they have one, and you often can't spot the SU after 14 or 18 weeks,

when many women with " normal " pregnancies have their first

ultrasounds.

Also, its impossible to diagnose with 100% accuracy via u/s or HSG

whether you are BU or SU, esp, when pregnant I would imagine.

I would absolutely see another perinatologist - the one you saw

sounds terrible!

Good luck,

a

35

26 weeks pg

Complete SU (diagnosed by lap/hyst)

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  • 2 weeks later...
Guest guest

Natasha;

I had a similiar question & I was told that the easiest thing to do

was to just take it off during outside, playground equipment play.

That, or teach your child to always ground herself (discharge the

static) before she touches her head, hair.

good luck.

Debby

> Hi all,

> I have a question for those who have cochlear implants. What do

you do about static electricity? Has it been a problem for you with

the implant and what implant do you have. Sierra will most likely

get her implant in August this summer and she loves going down the

slide and playing with other similar stuff that can cause her hair

to stand on end. Thanks for any advice.

> Natasha~Mommy to~

> (8/25/97) & *Sierra (11/28/00)

> *Multiple Craniosynostosis, Crouzon's Syndrome,

> Asthma, Trach, Tracheamalacia, Subglottic Stenosis,

> Chonal Stenosis, FTT, GERD, G-tube & Nissan,

> Profound hearing loss. Sierra's story:

> www.cappskids.org/CAPPSCranioKidSierra.htm

>

>

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