Re: test results

January 25, 2002

Sonya,

GOOD for you!!! Let us know when your appointment is and how it goes.

Jody

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January 25, 2002

Sonya,

GOOD for you!!! Let us know when your appointment is and how it goes.

Jody

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

January 25, 2002

> Sorry one more thing she mentioned I need to take B12 but she did not

> explain why. Any idea.

Sonya,

It's my understanding that the B-12 is vital to the muscles. It helps

them stay relaxed and healthy. I know before I started the B-12 I used

to have a lot more muscle aches and cramps. There may be more reasons

but I think that's the big one.

Val

January 25, 2002

She did not do any tests to determine any deficiencies. I assume the only

reason why she suggested it is because I asked her should I be on some type

of vitamin. I have found another docotor from the top doc list . I think

this woman was trying to kill me.

Sonya

Information Systems Administrator

Diamond Offshore Drilling, Inc.

281/647-4001 Office

281/647-4025 Fax

srharris@...

Re: Test Results

Hi Sonya,

Hopefully your doc did a blood level or saw evidence in your CBC of B12

deficiency. If not, you can develop imbalances of folate and other B

vitamins

by only taking B12. We do often have deficiencies of B vitamins,

particularly

B1, B2 and B6 and multivitamins generally have the right balance of the B

vitamins. You can also add B complex that contains all the B's in the right

proportions.

February 12, 2002

The TSH can be very misleading. It is a pituitary hormone that regulates your

thyroid hormone levels. What your really need to know is how much thyroid

hormone you have in your blood. Levels of T3 and T4 or better yet the free

thyroid hormones FT4 and FT3 will tell you this.

TSH is a good test for screening thyroid function in new patients. For

patients with thyroid antibodies, including people who had RAI or on

anti-thyroid drugs, TSH may be normal even though you're hypothyroid. On

www.suite101.com, I have an article called The TSH Nightmare that explains

this. you can do a search on graves disease or by the title.

February 12, 2002

The TSH can be very misleading. It is a pituitary hormone that regulates your

thyroid hormone levels. What your really need to know is how much thyroid

hormone you have in your blood. Levels of T3 and T4 or better yet the free

thyroid hormones FT4 and FT3 will tell you this.

TSH is a good test for screening thyroid function in new patients. For

patients with thyroid antibodies, including people who had RAI or on

anti-thyroid drugs, TSH may be normal even though you're hypothyroid. On

www.suite101.com, I have an article called The TSH Nightmare that explains

this. you can do a search on graves disease or by the title.

February 12, 2002

The TSH can be very misleading. It is a pituitary hormone that regulates your

thyroid hormone levels. What your really need to know is how much thyroid

hormone you have in your blood. Levels of T3 and T4 or better yet the free

thyroid hormones FT4 and FT3 will tell you this.

TSH is a good test for screening thyroid function in new patients. For

patients with thyroid antibodies, including people who had RAI or on

anti-thyroid drugs, TSH may be normal even though you're hypothyroid. On

www.suite101.com, I have an article called The TSH Nightmare that explains

this. you can do a search on graves disease or by the title.

February 12, 2002

Hi Dawn,

It is NOT all in your head...unfortunately too many doctors do this to us,

and when we get into our 40's it is either all in our heads or *female*

problems. You are not being petty at all. To get to quality back into your

life you need to learn every aspect of this disease and become very

proactive in your treatment.

It sounds like that is more than we can deal with at times, but it happens

as long as you keep on learning, and finding new doctors when all else has

failed with our current docs.

Jody

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February 12, 2002

Hi Dawn,

It is NOT all in your head...unfortunately too many doctors do this to us,

and when we get into our 40's it is either all in our heads or *female*

problems. You are not being petty at all. To get to quality back into your

life you need to learn every aspect of this disease and become very

proactive in your treatment.

It sounds like that is more than we can deal with at times, but it happens

as long as you keep on learning, and finding new doctors when all else has

failed with our current docs.

Jody

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

February 12, 2002

Hi Dawn,

It is NOT all in your head...unfortunately too many doctors do this to us,

and when we get into our 40's it is either all in our heads or *female*

problems. You are not being petty at all. To get to quality back into your

life you need to learn every aspect of this disease and become very

proactive in your treatment.

It sounds like that is more than we can deal with at times, but it happens

as long as you keep on learning, and finding new doctors when all else has

failed with our current docs.

Jody

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

July 28, 2003

,

Not knowing what the doctor had tested for with the biopsy, it would be

really hard to say. Was it a fresh biopsy, or was the sample frozen and

sent to a lab someplace? A negative test result, unless it is fresh,

doesn't mean Bob doesn't have mito. I would recommend you ask for a

copy of the actual biopsy report. Would he e-mail them to you or fax them?

I'm sorry I don't have any advise with disability questions. I am still

plugging away at work, but I have a desk job that I can still do most

days, or course the house never gets done because I am whipped out by

the time I get home.

wrote:

>Hi everyone! Bob's neuro emailed us the test results of his biopsy

>today. (That's right - our doc emails us all the time. If we email him

>with a question, he will respond usually within 24hrs).

>Anyway - He said there were no abnormalities in the biopsy but he is

>sending the sample (which he said is a bit small) to have some special

>tests done. He did not elaborate. Would any of you like to take a

>gander?

>Needless to say, Bob is beside himself. We figured this would tell us

>something, but alas! He is searching the want ads as I write this.

>He thinks he can get a job!!! I can't let him do that! He never

>knows what kind of shape he'll be in from day to day or minute to

>minute for that matter. He has waited a 1-1/2 so far without working.

> We have family that helps us, albiet that won't last much longer.

>The money tree is drying up. I just don't know what to do and neither

>does he. What kind of SS can you get without a dx? We are currently

>in a " reconsideration " phase and have yet to have to officially

>appeal. He goes to see a SS doctor next week without a definitive dx,

>without any paper work from the neuro (we have asked him to help and

>waiting for his response). Do any of you long timers have any

>suggestions? I am out of steam.

>

>Thanks for being there and I wish you and all of yours a better day

>tomorrow:

>

> and Bob

>Portsmouth VA

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

July 28, 2003

and Bob

I am guessing as I don't know what the biopsy was tested for, but many docs

think that if they don't find ragged red fibers, that they don't have mito.

If that were the case, most of us would not have mito.

Besides getting a copy of the results like advised, I'd also ask him

what additional tests are to be run and what might they show.

As for the disability thing, it is going to be hard without a diagnosis.

Have you been to an MDA clinic? They might give a diagnosis of a

neuromuscular disease.

laurie

>

> Reply-To:

> Date: Tue, 29 Jul 2003 00:59:54 -0000

> To:

> Subject: test results

>

> Hi everyone! Bob's neuro emailed us the test results of his biopsy

> today. (That's right - our doc emails us all the time. If we email him

> with a question, he will respond usually within 24hrs).

> Anyway - He said there were no abnormalities in the biopsy but he is

> sending the sample (which he said is a bit small) to have some special

> tests done. He did not elaborate. Would any of you like to take a

> gander?

> Needless to say, Bob is beside himself. We figured this would tell us

> something, but alas! He is searching the want ads as I write this.

> He thinks he can get a job!!! I can't let him do that! He never

> knows what kind of shape he'll be in from day to day or minute to

> minute for that matter. He has waited a 1-1/2 so far without working.

> We have family that helps us, albiet that won't last much longer.

> The money tree is drying up. I just don't know what to do and neither

> does he. What kind of SS can you get without a dx? We are currently

> in a " reconsideration " phase and have yet to have to officially

> appeal. He goes to see a SS doctor next week without a definitive dx,

> without any paper work from the neuro (we have asked him to help and

> waiting for his response). Do any of you long timers have any

> suggestions? I am out of steam.

>

> Thanks for being there and I wish you and all of yours a better day

> tomorrow:

>

> and Bob

> Portsmouth VA

>

July 29, 2003

Hi and Bob, I was on SSD before I had the diagnosis of Mito. I do

have the addition of hearing loss, but I don't think that the hearing loss

alone was the qualifying issue. Just be very honest with the qualifying

doctors about what is happening. I know how Bob feels there about the lack

of the diagnosis. Every time that happened to me, I assumed my problems

were in my head (doctors were very good and helping me to think that), and

tried to pretend I didn't have them only to crash a little down the road

with more problems. Both of you hang in there, Ruth

Ruth's Cochlear Implant History:

N22 May 1,1987

N22 removed Oct. 30, 2000 for MRI

N24 Nov.1,2000

3G May 18,2001

Diagnosis: Mitochondrial Myopathy Sept. 2001

test results