Hello

February 26, 2001

Sharon,

Review your insurance now, make sure it covers the meds, bloodwork and

ultrasound. If not, update your policy (in the long run it's cheaper than

paying for the meds!)

maria

Hello

> Sharon here.

> Dh and I decided to wait until the end of March before we go for our

> appointment at the fertility center. I have so much going on with the

> wedding that I don't want that to hinder my thoughts right now. It is

still

> depressing sometimes for me to deal with so i don't want to have to deal

with

> that right now. It's hard to believe there is so much that goes into

> planning a wedding and I only have 10 weeks left. I changed the

appointment

> for April 19th cause I figured that would be a good time. We would only

have

> 4 weeks so we would be able to just start with whatever the procedures or

> meds or whatever would be.

>

> I just wanted to update you on the occurences.

>

> Congrats to all the expectees.

>

> Sharon

>

February 26, 2001

Sharon,

Review your insurance now, make sure it covers the meds, bloodwork and

ultrasound. If not, update your policy (in the long run it's cheaper than

paying for the meds!)

maria

Hello

> Sharon here.

> Dh and I decided to wait until the end of March before we go for our

> appointment at the fertility center. I have so much going on with the

> wedding that I don't want that to hinder my thoughts right now. It is

still

> depressing sometimes for me to deal with so i don't want to have to deal

with

> that right now. It's hard to believe there is so much that goes into

> planning a wedding and I only have 10 weeks left. I changed the

appointment

> for April 19th cause I figured that would be a good time. We would only

have

> 4 weeks so we would be able to just start with whatever the procedures or

> meds or whatever would be.

>

> I just wanted to update you on the occurences.

>

> Congrats to all the expectees.

>

> Sharon

>

March 23, 2001

keri,

I seem to be having problems too with the mail and am not getting very many

posts either...

lisa r

T.T.F.N.

March 23, 2001

Keri and R

I don't know if I am having problems also. I didn't

check mail last night and when I logged on alittle bit

ago it said 38 postings and I thought, wow, it's been

quiet...maybe I am not getting them all. , you

said you " checked files and it wouldn't let you log

in " where are you talking about?

--- wrote:

> keri,

> I seem to be having problems too with the mail and

> am not getting very many

> posts either...

>

> lisa r

> T.T.F.N.

>

__________________________________________________

March 23, 2001

Keri and R

I don't know if I am having problems also. I didn't

check mail last night and when I logged on alittle bit

ago it said 38 postings and I thought, wow, it's been

quiet...maybe I am not getting them all. , you

said you " checked files and it wouldn't let you log

in " where are you talking about?

--- wrote:

> keri,

> I seem to be having problems too with the mail and

> am not getting very many

> posts either...

>

> lisa r

> T.T.F.N.

>

__________________________________________________

March 23, 2001

Keri and R

I don't know if I am having problems also. I didn't

check mail last night and when I logged on alittle bit

ago it said 38 postings and I thought, wow, it's been

quiet...maybe I am not getting them all. , you

said you " checked files and it wouldn't let you log

in " where are you talking about?

--- wrote:

> keri,

> I seem to be having problems too with the mail and

> am not getting very many

> posts either...

>

> lisa r

> T.T.F.N.

>

__________________________________________________

March 24, 2001

susan,

i just went to the web site and whenever I tried to click on anything it

said I wasn't a member, yet I am getting post..... I think it was just

really quiet yesterday...

lisa r

T.T.F.N.

March 24, 2001

susan,

i just went to the web site and whenever I tried to click on anything it

said I wasn't a member, yet I am getting post..... I think it was just

really quiet yesterday...

lisa r

T.T.F.N.

March 24, 2001

susan,

i just went to the web site and whenever I tried to click on anything it

said I wasn't a member, yet I am getting post..... I think it was just

really quiet yesterday...

lisa r

T.T.F.N.

May 30, 2001

Sounds terrific ! And I bet your mom would have liked it too.

NNN

June 14, 2002

That's so good to hear you all enjoying yourselves!! Keep it up!

Ed

> Love all the recipes. Have saved them all until I can get back to

my own

> computer and print them up.

>

> Melita - Exciting news about being able to return to work.

Remember, take

> is slow. So happy for you.

>

> Ed - My parents live in the Villages at Lady Lakes. It is

absolutely

> beautiful and my favorite place to vacation. It is close to

Ocala. It took

> just over an hour to get to Universal Studios.

>

> Dawn - When we visit my parents, we pick one theme park to visit

and make it

> a day trip. We have done Disney, Sea World and now Universal

Studios.

> Definitely helps to keep the cost down by staying with my parents.

We

> attended an Arthritis Conference at Disney a few Augusts ago and

even though

> it was " all expenses paid " it cost us a fortune. A family of 5

can't eat

> lunch for under $70 at Disney. Crazy! Of all the parks we have

been to,

> Sea World is my children's favorite so far.

>

> We had a great day at Universal Studios. The lines weren't long

and we got

> on all the major attractions. Shelby made it half way through the

day and

> then we needed a wheelchair. When we asked the people at a

souvenir shop

> where to rent one, they asked why we needed it. When we told them

they had

> one delievered to us and they didn't even charge us. Very nice of

them. By

> this time, was more then happy to ride on Shelby's lap in the

> wheelchair. didn't eat all day but he drank a lot of

Gatorade. He

> had a good time but I know it wore him out. We are going back to

Aguusta

> tomorrow. We had a great vacation and I am not anxious to get back

to

> reality. Boo hoo!

>

> Hope everyone had a great weekend!

>

> Cari

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger:

http://messenger.msn.com

June 14, 2002

That's so good to hear you all enjoying yourselves!! Keep it up!

Ed

> Love all the recipes. Have saved them all until I can get back to

my own

> computer and print them up.

>

> Melita - Exciting news about being able to return to work.

Remember, take

> is slow. So happy for you.

>

> Ed - My parents live in the Villages at Lady Lakes. It is

absolutely

> beautiful and my favorite place to vacation. It is close to

Ocala. It took

> just over an hour to get to Universal Studios.

>

> Dawn - When we visit my parents, we pick one theme park to visit

and make it

> a day trip. We have done Disney, Sea World and now Universal

Studios.

> Definitely helps to keep the cost down by staying with my parents.

We

> attended an Arthritis Conference at Disney a few Augusts ago and

even though

> it was " all expenses paid " it cost us a fortune. A family of 5

can't eat

> lunch for under $70 at Disney. Crazy! Of all the parks we have

been to,

> Sea World is my children's favorite so far.

>

> We had a great day at Universal Studios. The lines weren't long

and we got

> on all the major attractions. Shelby made it half way through the

day and

> then we needed a wheelchair. When we asked the people at a

souvenir shop

> where to rent one, they asked why we needed it. When we told them

they had

> one delievered to us and they didn't even charge us. Very nice of

them. By

> this time, was more then happy to ride on Shelby's lap in the

> wheelchair. didn't eat all day but he drank a lot of

Gatorade. He

> had a good time but I know it wore him out. We are going back to

Aguusta

> tomorrow. We had a great vacation and I am not anxious to get back

to

> reality. Boo hoo!

>

> Hope everyone had a great weekend!

>

> Cari

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger:

http://messenger.msn.com

June 14, 2002

Hi, Cari. Sounds as if you had a great vacation. I'm jealous....WHAA!!!! Can

you adopt me for the summer??? LOL. I agree that the prices at those theme

parks are out of this world....especially for food. They know you have to eat

and they take advantage. Makes me sick, really. I, too, enjoy Sea World. Did

you sit in the " splash section " at the Shamuu (sp?) show?? That was always my

favourite as a kid. I hope you have a safe (and sane) trip home, but with that

TV in the van, it should be a breeze. Again, I'm jealous. WHAA!!!!

LOL

Have fun,

Dawn

Cari Dorsey wrote:

> Love all the recipes. Have saved them all until I can get back to my own

> computer and print them up.

>

> Melita - Exciting news about being able to return to work. Remember, take

> is slow. So happy for you.

>

> Ed - My parents live in the Villages at Lady Lakes. It is absolutely

> beautiful and my favorite place to vacation. It is close to Ocala. It took

> just over an hour to get to Universal Studios.

>

> Dawn - When we visit my parents, we pick one theme park to visit and make it

> a day trip. We have done Disney, Sea World and now Universal Studios.

> Definitely helps to keep the cost down by staying with my parents. We

> attended an Arthritis Conference at Disney a few Augusts ago and even though

> it was " all expenses paid " it cost us a fortune. A family of 5 can't eat

> lunch for under $70 at Disney. Crazy! Of all the parks we have been to,

> Sea World is my children's favorite so far.

>

> We had a great day at Universal Studios. The lines weren't long and we got

> on all the major attractions. Shelby made it half way through the day and

> then we needed a wheelchair. When we asked the people at a souvenir shop

> where to rent one, they asked why we needed it. When we told them they had

> one delievered to us and they didn't even charge us. Very nice of them. By

> this time, was more then happy to ride on Shelby's lap in the

> wheelchair. didn't eat all day but he drank a lot of Gatorade. He

> had a good time but I know it wore him out. We are going back to Aguusta

> tomorrow. We had a great vacation and I am not anxious to get back to

> reality. Boo hoo!

>

> Hope everyone had a great weekend!

>

> Cari

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

June 15, 2002

Glad you enjoyed Universal Studios, Cari! Hope

Shelby's improvement is steady!

Lynn

--- Cari Dorsey wrote:

> Love all the recipes. Have saved them all until I

> can get back to my own

> computer and print them up.

>

=====

~*~*~*A little craziness once in a while prevents permanent brain damage. --

Anonymous *~*~*~

__________________________________________________

June 15, 2002

Glad you enjoyed Universal Studios, Cari! Hope

Shelby's improvement is steady!

Lynn

--- Cari Dorsey wrote:

> Love all the recipes. Have saved them all until I

> can get back to my own

> computer and print them up.

>

=====

~*~*~*A little craziness once in a while prevents permanent brain damage. --

Anonymous *~*~*~

__________________________________________________

June 15, 2002

Glad you enjoyed Universal Studios, Cari! Hope

Shelby's improvement is steady!

Lynn

--- Cari Dorsey wrote:

> Love all the recipes. Have saved them all until I

> can get back to my own

> computer and print them up.

>

=====

~*~*~*A little craziness once in a while prevents permanent brain damage. --

Anonymous *~*~*~

__________________________________________________

January 18, 2003

kmowens69 wrote:

> I was very fortunate in the fact that I actually knew someone who

> had papillary also 8 years ago and she is still here to tell her

> story (they told me this was rare!).

Knowing someone with thyca may be rare, but surviving to tell the

tale certainly isn't! I'm a 13+ year survivor and many people on

this list are much farther out than that from their thyca dx.

Following surgery and RAI, we all expect to live to a ripe old age

and die of something other than thyroid cancer.

> I've also been told I could be in hospital for up to 3 weeks which i

> will find really hard.

Are you sure you understood this correctly? Some of us have been

hospitalized for as long as *3 days* following RAI treatment, but

I've never heard of anyone needing 3 weeks of hospitalization for

thyca. This sounds like an error to me.

> I look forward to posting a POSITIVE OUTCOME one day very soon.

I'm sure you'll have one. Best of luck with your treatment!

ellen

--

mailto:ellen@...

January 18, 2003

kmowens69 wrote:

> I was very fortunate in the fact that I actually knew someone who

> had papillary also 8 years ago and she is still here to tell her

> story (they told me this was rare!).

Knowing someone with thyca may be rare, but surviving to tell the

tale certainly isn't! I'm a 13+ year survivor and many people on

this list are much farther out than that from their thyca dx.

Following surgery and RAI, we all expect to live to a ripe old age

and die of something other than thyroid cancer.

> I've also been told I could be in hospital for up to 3 weeks which i

> will find really hard.

Are you sure you understood this correctly? Some of us have been

hospitalized for as long as *3 days* following RAI treatment, but

I've never heard of anyone needing 3 weeks of hospitalization for

thyca. This sounds like an error to me.

> I look forward to posting a POSITIVE OUTCOME one day very soon.

I'm sure you'll have one. Best of luck with your treatment!

ellen

--

mailto:ellen@...

January 18, 2003

Hi there (can you tell us your name?)

> (snip)...I was diagnosed with papillary

> (1.7cm) on 6th Dec 2002 (great Xmas present) and i was admitted to

> hospital the following week (11th Dec 02) with surgery the following

> day. I had a total TT with some 2/3 nodules in one of my lymph

> nodes which was also removed. December was the most difficult

> period of my life - divorce was a breeze compared to this !! As a

> single mother to a beautiful 6 year old girl - I suddenly realised

> that i wasn't going to be around for her forever but I at least

> hoped to be here to see her marry and make me a grandmother at some

> point ! That was and still is my biggest fear.

Just wanted to say " Welcome " from another Brit on this list (I

don't think there are that many of us on the list at the moment) and

let you know you're not alone and that the odds are you WILL dance at

your daughter's wedding...and maybe your grandchildrens' weddings too.

As Ellen has written, we all expect to live to a ripe old age and die

of something unrelated. I am another " oldie " as I was diagnosed in

1965 (not a typo :-)) when I was only 15, and I am still here, even

though I had only a PT at the time of my first diagnosis and needed a

TT and radioiodine treatment some 17 years later.

> I was very fortunate in the fact that I actually knew someone who

> had papillary also 8 years ago and she is still here to tell her

> story (they told me this was rare!).

As you say, it's unusual to know someone with thyca in your own

circle, and is great that you have someone to compare notes with - not

to mention the friends you'll make here.

> I'm still a novice in all of

> this but learning more day-by-day. I too want to help people

> through their fears as my friend helped me through mine. Don't

> misunderstand - I'm still pretty stressed, I shall be coming off my

> meds next week and will experience " hypo " for the 1st time and the

> unexpected is quite scary.

My surgeon said when I asked what was going to happen to me when I

went hypo for the first time that my " body would just need to work a

little harder... " - some would say this was pretty uncaring, but in

fact it was really helpful because that is just what I did, put more

effort into exercising (walking, biking, swimming), and it really did

help in my case. Gentle exercise also helps in coping with the stress

and anxiety.

> I feel like my life is on hold until I have my scan and if needed

> the radio iodine treatment. I've also been told I could be in

> hospital for up to 3 weeks which i will find really hard.

That strikes me as unlikely unless you're going through an unusual

protocol? Radioiodine ablation usually involves a 4-night stay in the

UK as I understand it. What are they planning to do in the up to 3

weeks you mention? I wouldn't rule anything out - my endocrinologist

here in Holland hospitalised his patients for a week before RAI to

make sure that they followed a strict low iodine diet, but that was in

the 70's and 80's and nowadays people are able to follow the diet at

home.

> I've had

> all the aches - espcially in my arms and trying to convince myself

> that I don't have bone cancer is one of the hardest things I've ever

> had to do. At least the pains come and go I say to myself. Deep

> anxiety my doc keeps telling me but he doesn't know what's going on

> inside my body unless he's wearing X-ray specs !

Yesss - I was sure too that it had spread to my bones and was worried

about every unusual ache and pain. I think I suffered more from

imagining all the worst scenarios than from the disease itself. It is

easy for me to write this in retrospect, but what you are thinking and

imagining now won't change things, and don't worry until it happens

(the odds are in your favour that it won't...)

> Thankfully, the consultant who operated on me is at the top of his

> field and is in the top 10 in the UK so I feel like I'm in safe

> hands. I have so much to thank him for. I know its not over but

> hopefully I'm halfway through. I look forward to posting a POSITIVE

> OUTCOME one day very soon.

I'm glad you have a good surgeon and you've probably been through the

worst part, although I know the waiting isn't fun.

Are you going on the low iodine diet? You'll find loads of

information here and there is also an LID recipes book at

http://www.thyca.org

Keep in touch with us on your journey and good luck with your

treatment,

Judith (British, living in Holland)

dx 1965 pap thyca (T4-N1-M0)

dx2 recurrence in right lobe and lymph nodes

pt 1965 (London, England)

tt + rai (1982) The Netherlands)

January 18, 2003