Guest guest Report post Posted August 9, 2002 No problem, I didn't think about you being at work. I was thinking it would keep you busy and you might forget about the chocolates. Maureen Re: HELP! | >-----------------------------------------------------------| I am trying to get into the chat room, you want to meet me there and we will talk for a while?? Maureen ~There are no strangers here... Only friends that haven't met yet~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 No problem, I didn't think about you being at work. I was thinking it would keep you busy and you might forget about the chocolates. Maureen Re: HELP! | >-----------------------------------------------------------| I am trying to get into the chat room, you want to meet me there and we will talk for a while?? Maureen ~There are no strangers here... Only friends that haven't met yet~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 No problem, I didn't think about you being at work. I was thinking it would keep you busy and you might forget about the chocolates. Maureen Re: HELP! | >-----------------------------------------------------------| I am trying to get into the chat room, you want to meet me there and we will talk for a while?? Maureen ~There are no strangers here... Only friends that haven't met yet~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 Actually, the mint gum is starting to help. I'll beat this one (with a little help from my friends!)! |--------+-----------------------> | | " RW " | | | <r.rweston@ve| | | rizon.net> | | | | | | 08/09/2002 | | | 03:19 PM | | | Please | | | respond to | | | wwliterside | | | | |--------+-----------------------> >-----------------------------------------------------------| | | | To: wwliterside | | cc: (bcc: -C /BRE/AGFA/US/BAYER) | | Subject: Re: HELP! | >-----------------------------------------------------------| Do you have any mints or little chocolates that you could try sucking on? Maureen HELP! I WANT CHOCOLATE! Gnawing on a piece of mint gum right now. Drinking water. Walked around. Somebody tell me " NO!!!! " Thanks, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 Actually, the mint gum is starting to help. I'll beat this one (with a little help from my friends!)! |--------+-----------------------> | | " RW " | | | <r.rweston@ve| | | rizon.net> | | | | | | 08/09/2002 | | | 03:19 PM | | | Please | | | respond to | | | wwliterside | | | | |--------+-----------------------> >-----------------------------------------------------------| | | | To: wwliterside | | cc: (bcc: -C /BRE/AGFA/US/BAYER) | | Subject: Re: HELP! | >-----------------------------------------------------------| Do you have any mints or little chocolates that you could try sucking on? Maureen HELP! I WANT CHOCOLATE! Gnawing on a piece of mint gum right now. Drinking water. Walked around. Somebody tell me " NO!!!! " Thanks, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 I am glad that it is not really serious, just the munchies from boredom. Those are usually pretty easy to get past, by just doing something else. Maureen Re: HELP! Actually, the mint gum is starting to help. I'll beat this one (with a little help from my friends!)! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 I am glad that it is not really serious, just the munchies from boredom. Those are usually pretty easy to get past, by just doing something else. Maureen Re: HELP! Actually, the mint gum is starting to help. I'll beat this one (with a little help from my friends!)! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 I am glad that it is not really serious, just the munchies from boredom. Those are usually pretty easy to get past, by just doing something else. Maureen Re: HELP! Actually, the mint gum is starting to help. I'll beat this one (with a little help from my friends!)! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 Luckily, if I were to get any chocolate, it would require a trip downstairs to the vending machines in the cafeteria! (BTW, did I tell you our B & B pickles turned out really good? We're doing garlic-dills tonight!) |--------+-----------------------> | | " RW " | | | <r.rweston@ve| | | rizon.net> | | | | | | 08/09/2002 | | | 03:21 PM | | | Please | | | respond to | | | wwliterside | | | | |--------+-----------------------> >-----------------------------------------------------------| | | | To: wwliterside | | cc: (bcc: -C /BRE/AGFA/US/BAYER) | | Subject: Re: Re: HELP! | >-----------------------------------------------------------| No problem, I didn't think about you being at work. I was thinking it would keep you busy and you might forget about the chocolates. Maureen Re: HELP! | >-----------------------------------------------------------| I am trying to get into the chat room, you want to meet me there and we will talk for a while?? Maureen ~There are no strangers here... Only friends that haven't met yet~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 Luckily, if I were to get any chocolate, it would require a trip downstairs to the vending machines in the cafeteria! (BTW, did I tell you our B & B pickles turned out really good? We're doing garlic-dills tonight!) |--------+-----------------------> | | " RW " | | | <r.rweston@ve| | | rizon.net> | | | | | | 08/09/2002 | | | 03:21 PM | | | Please | | | respond to | | | wwliterside | | | | |--------+-----------------------> >-----------------------------------------------------------| | | | To: wwliterside | | cc: (bcc: -C /BRE/AGFA/US/BAYER) | | Subject: Re: Re: HELP! | >-----------------------------------------------------------| No problem, I didn't think about you being at work. I was thinking it would keep you busy and you might forget about the chocolates. Maureen Re: HELP! | >-----------------------------------------------------------| I am trying to get into the chat room, you want to meet me there and we will talk for a while?? Maureen ~There are no strangers here... Only friends that haven't met yet~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 Luckily, if I were to get any chocolate, it would require a trip downstairs to the vending machines in the cafeteria! (BTW, did I tell you our B & B pickles turned out really good? We're doing garlic-dills tonight!) |--------+-----------------------> | | " RW " | | | <r.rweston@ve| | | rizon.net> | | | | | | 08/09/2002 | | | 03:21 PM | | | Please | | | respond to | | | wwliterside | | | | |--------+-----------------------> >-----------------------------------------------------------| | | | To: wwliterside | | cc: (bcc: -C /BRE/AGFA/US/BAYER) | | Subject: Re: Re: HELP! | >-----------------------------------------------------------| No problem, I didn't think about you being at work. I was thinking it would keep you busy and you might forget about the chocolates. Maureen Re: HELP! | >-----------------------------------------------------------| I am trying to get into the chat room, you want to meet me there and we will talk for a while?? Maureen ~There are no strangers here... Only friends that haven't met yet~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 No, you didn't tell me about the bread and butters. I am sooooooo jealous! Are you using regular cukes or the pickling type? I really need to do this. The boys will eat a whole jar of pickles in a couple of days. Maureen Re: Re: HELP! Luckily, if I were to get any chocolate, it would require a trip downstairs to the vending machines in the cafeteria! (BTW, did I tell you our B & B pickles turned out really good? We're doing garlic-dills tonight!) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 No, you didn't tell me about the bread and butters. I am sooooooo jealous! Are you using regular cukes or the pickling type? I really need to do this. The boys will eat a whole jar of pickles in a couple of days. Maureen Re: Re: HELP! Luckily, if I were to get any chocolate, it would require a trip downstairs to the vending machines in the cafeteria! (BTW, did I tell you our B & B pickles turned out really good? We're doing garlic-dills tonight!) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 No, you didn't tell me about the bread and butters. I am sooooooo jealous! Are you using regular cukes or the pickling type? I really need to do this. The boys will eat a whole jar of pickles in a couple of days. Maureen Re: Re: HELP! Luckily, if I were to get any chocolate, it would require a trip downstairs to the vending machines in the cafeteria! (BTW, did I tell you our B & B pickles turned out really good? We're doing garlic-dills tonight!) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 They are pickling cukes. We have cucumbers running out our ears! I'm getting very creative in making different varieties of cucumber salad! |--------+-----------------------> | | " RW " | | | <r.rweston@ve| | | rizon.net> | | | | | | 08/09/2002 | | | 03:38 PM | | | Please | | | respond to | | | wwliterside | | | | |--------+-----------------------> >-----------------------------------------------------------| | | | To: wwliterside | | cc: (bcc: -C /BRE/AGFA/US/BAYER) | | Subject: Re: Re: HELP! | >-----------------------------------------------------------| No, you didn't tell me about the bread and butters. I am sooooooo jealous! Are you using regular cukes or the pickling type? I really need to do this. The boys will eat a whole jar of pickles in a couple of days. Maureen Re: Re: HELP! Luckily, if I were to get any chocolate, it would require a trip downstairs to the vending machines in the cafeteria! (BTW, did I tell you our B & B pickles turned out really good? We're doing garlic-dills tonight!) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 They are pickling cukes. We have cucumbers running out our ears! I'm getting very creative in making different varieties of cucumber salad! |--------+-----------------------> | | " RW " | | | <r.rweston@ve| | | rizon.net> | | | | | | 08/09/2002 | | | 03:38 PM | | | Please | | | respond to | | | wwliterside | | | | |--------+-----------------------> >-----------------------------------------------------------| | | | To: wwliterside | | cc: (bcc: -C /BRE/AGFA/US/BAYER) | | Subject: Re: Re: HELP! | >-----------------------------------------------------------| No, you didn't tell me about the bread and butters. I am sooooooo jealous! Are you using regular cukes or the pickling type? I really need to do this. The boys will eat a whole jar of pickles in a couple of days. Maureen Re: Re: HELP! Luckily, if I were to get any chocolate, it would require a trip downstairs to the vending machines in the cafeteria! (BTW, did I tell you our B & B pickles turned out really good? We're doing garlic-dills tonight!) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 9, 2002 They are pickling cukes. We have cucumbers running out our ears! I'm getting very creative in making different varieties of cucumber salad! |--------+-----------------------> | | " RW " | | | <r.rweston@ve| | | rizon.net> | | | | | | 08/09/2002 | | | 03:38 PM | | | Please | | | respond to | | | wwliterside | | | | |--------+-----------------------> >-----------------------------------------------------------| | | | To: wwliterside | | cc: (bcc: -C /BRE/AGFA/US/BAYER) | | Subject: Re: Re: HELP! | >-----------------------------------------------------------| No, you didn't tell me about the bread and butters. I am sooooooo jealous! Are you using regular cukes or the pickling type? I really need to do this. The boys will eat a whole jar of pickles in a couple of days. Maureen Re: Re: HELP! Luckily, if I were to get any chocolate, it would require a trip downstairs to the vending machines in the cafeteria! (BTW, did I tell you our B & B pickles turned out really good? We're doing garlic-dills tonight!) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 2, 2004 on 7/3/04 6:39 PM, From the Mcs at capnmacncrew@... wrote: Hello My son , who was diagnosed with absence szs in Aug, has been on the Atkins diet (neuro said " no " to ketogenic diet, but " yes " to atkins) now since about January. Before Atkins he had 2-4 szs per hour even on meds. He went seizure free the very first day of ketosis and was sz-free or mostly sz free until about a month or two ago. He is sz free all day until about dinner time when he will have clusters of szs, one after another after another after another. I don't know if it is related to blood sugar, but does anyone have any thoughts? It could be related to heat as well since it is now hot and he plays outside just prior to dinner. Definitely heat is a trigger for , but even if he stays inside the cool house he will cluster in the evenings now. I have been trying to keep a diary, but life has been so crazy since the fire (we lost our home in the large San Diego fire and are still fighting with insurance company before we can rebuild, we just had our baby girl 2 weeks ago (child #11 for us) and she ended up in the hospital with meningitis this past week plus my father has just been diagnosed with end stage prostate and bone cancer). I haven't kept up with the diary since the baby was born. has been drug free since he started the Atkins, but I am thinking about trying other drugs as suggested by the neuro (although neuro said our likelihood of finding any that work is practically nil, hence the Atkins diet). I am also thinking about pushing the neuro to refer us to the keto diet, but life has been so up in the air I am thinking it will be too hard (although the atkins is very hard already). It just seems that if a pill could work, it would be better than the diet. (but of course no pills have worked, only added to our troubles). Aack--I am at such a loss at what to do these days! I am also mad and worried that we do not have a dietician to help us with either Atkins or Keto diet. is getting so thin and frail looking. He was already small for his age, now he is even smaller. I worry about his health. Does your keto team dietician help you a lot or a little? Or does it depend on the team? Do you have access to the dietician more than just at induction? I am trying to see how much help a dietician would be. I can use any help and encouragement you can give me. Thanks in advance Pam McD ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 2, 2004 Dear Pam, I'm on the Atkins diet too and have been for about 18 months, however my diet is unmonitored by medical staff/dieticians etc apart from regular blood-level checks. I've had various types of seizures during the past forty years, though none grand mals. In recent years I've become more inquisitive and nosey about various aspects of epilepsy with the medical fraternity, with some remarkable lessons along the way, anyway........... Prior to becoming seizure-free, and now aura-free, I discovered and to some extent had it supported by my neurologist that seizures can be triggered during the heat of the summer months, even in the UK lol. Also, another likely time of day when seizures may occur is in the evenings, like when you're winding down from the day in the lounge or whatever......... Both of the above seemed to be consistent with the main pattern of my seizures. Nowadays, as most in the group may know, my seizures are controlled not only by meds but by a Vagus Nerve Stimulator and some crude form of the Atkins diet, I hope that helps in some way, Best wishes, Phil Help! Hello My son , who was diagnosed with absence szs in Aug, has been on the Atkins diet (neuro said " no " to ketogenic diet, but " yes " to atkins) now since about January. Before Atkins he had 2-4 szs per hour even on meds. He went seizure free the very first day of ketosis and was sz-free or mostly sz free until about a month or two ago. He is sz free all day until about dinner time when he will have clusters of szs, one after another after another after another. I don't know if it is related to blood sugar, but does anyone have any thoughts? It could be related to heat as well since it is now hot and he plays outside just prior to dinner. Definitely heat is a trigger for , but even if he stays inside the cool house he will cluster in the evenings now. I have been trying to keep a diary, but life has been so crazy since the fire (we lost our home in the large San Diego fire and are still fighting with insurance company before we can rebuild, we just had our baby girl 2 weeks ago (child #11 for us) and she ended up in the hospital with meningitis this past week plus my father has just been diagnosed with end stage prostate and bone cancer). I haven't kept up with the diary since the baby was born. has been drug free since he started the Atkins, but I am thinking about trying other drugs as suggested by the neuro (although neuro said our likelihood of finding any that work is practically nil, hence the Atkins diet). I am also thinking about pushing the neuro to refer us to the keto diet, but life has been so up in the air I am thinking it will be too hard (although the atkins is very hard already). It just seems that if a pill could work, it would be better than the diet. (but of course no pills have worked, only added to our troubles). Aack--I am at such a loss at what to do these days! I am also mad and worried that we do not have a dietician to help us with either Atkins or Keto diet. is getting so thin and frail looking. He was already small for his age, now he is even smaller. I worry about his health. Does your keto team dietician help you a lot or a little? Or does it depend on the team? Do you have access to the dietician more than just at induction? I am trying to see how much help a dietician would be. I can use any help and encouragement you can give me. Thanks in advance Pam McD ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 2, 2004 Dear Pam, I'm on the Atkins diet too and have been for about 18 months, however my diet is unmonitored by medical staff/dieticians etc apart from regular blood-level checks. I've had various types of seizures during the past forty years, though none grand mals. In recent years I've become more inquisitive and nosey about various aspects of epilepsy with the medical fraternity, with some remarkable lessons along the way, anyway........... Prior to becoming seizure-free, and now aura-free, I discovered and to some extent had it supported by my neurologist that seizures can be triggered during the heat of the summer months, even in the UK lol. Also, another likely time of day when seizures may occur is in the evenings, like when you're winding down from the day in the lounge or whatever......... Both of the above seemed to be consistent with the main pattern of my seizures. Nowadays, as most in the group may know, my seizures are controlled not only by meds but by a Vagus Nerve Stimulator and some crude form of the Atkins diet, I hope that helps in some way, Best wishes, Phil Help! Hello My son , who was diagnosed with absence szs in Aug, has been on the Atkins diet (neuro said " no " to ketogenic diet, but " yes " to atkins) now since about January. Before Atkins he had 2-4 szs per hour even on meds. He went seizure free the very first day of ketosis and was sz-free or mostly sz free until about a month or two ago. He is sz free all day until about dinner time when he will have clusters of szs, one after another after another after another. I don't know if it is related to blood sugar, but does anyone have any thoughts? It could be related to heat as well since it is now hot and he plays outside just prior to dinner. Definitely heat is a trigger for , but even if he stays inside the cool house he will cluster in the evenings now. I have been trying to keep a diary, but life has been so crazy since the fire (we lost our home in the large San Diego fire and are still fighting with insurance company before we can rebuild, we just had our baby girl 2 weeks ago (child #11 for us) and she ended up in the hospital with meningitis this past week plus my father has just been diagnosed with end stage prostate and bone cancer). I haven't kept up with the diary since the baby was born. has been drug free since he started the Atkins, but I am thinking about trying other drugs as suggested by the neuro (although neuro said our likelihood of finding any that work is practically nil, hence the Atkins diet). I am also thinking about pushing the neuro to refer us to the keto diet, but life has been so up in the air I am thinking it will be too hard (although the atkins is very hard already). It just seems that if a pill could work, it would be better than the diet. (but of course no pills have worked, only added to our troubles). Aack--I am at such a loss at what to do these days! I am also mad and worried that we do not have a dietician to help us with either Atkins or Keto diet. is getting so thin and frail looking. He was already small for his age, now he is even smaller. I worry about his health. Does your keto team dietician help you a lot or a little? Or does it depend on the team? Do you have access to the dietician more than just at induction? I am trying to see how much help a dietician would be. I can use any help and encouragement you can give me. Thanks in advance Pam McD ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 2, 2004 Dear Pam, I'm on the Atkins diet too and have been for about 18 months, however my diet is unmonitored by medical staff/dieticians etc apart from regular blood-level checks. I've had various types of seizures during the past forty years, though none grand mals. In recent years I've become more inquisitive and nosey about various aspects of epilepsy with the medical fraternity, with some remarkable lessons along the way, anyway........... Prior to becoming seizure-free, and now aura-free, I discovered and to some extent had it supported by my neurologist that seizures can be triggered during the heat of the summer months, even in the UK lol. Also, another likely time of day when seizures may occur is in the evenings, like when you're winding down from the day in the lounge or whatever......... Both of the above seemed to be consistent with the main pattern of my seizures. Nowadays, as most in the group may know, my seizures are controlled not only by meds but by a Vagus Nerve Stimulator and some crude form of the Atkins diet, I hope that helps in some way, Best wishes, Phil Help! Hello My son , who was diagnosed with absence szs in Aug, has been on the Atkins diet (neuro said " no " to ketogenic diet, but " yes " to atkins) now since about January. Before Atkins he had 2-4 szs per hour even on meds. He went seizure free the very first day of ketosis and was sz-free or mostly sz free until about a month or two ago. He is sz free all day until about dinner time when he will have clusters of szs, one after another after another after another. I don't know if it is related to blood sugar, but does anyone have any thoughts? It could be related to heat as well since it is now hot and he plays outside just prior to dinner. Definitely heat is a trigger for , but even if he stays inside the cool house he will cluster in the evenings now. I have been trying to keep a diary, but life has been so crazy since the fire (we lost our home in the large San Diego fire and are still fighting with insurance company before we can rebuild, we just had our baby girl 2 weeks ago (child #11 for us) and she ended up in the hospital with meningitis this past week plus my father has just been diagnosed with end stage prostate and bone cancer). I haven't kept up with the diary since the baby was born. has been drug free since he started the Atkins, but I am thinking about trying other drugs as suggested by the neuro (although neuro said our likelihood of finding any that work is practically nil, hence the Atkins diet). I am also thinking about pushing the neuro to refer us to the keto diet, but life has been so up in the air I am thinking it will be too hard (although the atkins is very hard already). It just seems that if a pill could work, it would be better than the diet. (but of course no pills have worked, only added to our troubles). Aack--I am at such a loss at what to do these days! I am also mad and worried that we do not have a dietician to help us with either Atkins or Keto diet. is getting so thin and frail looking. He was already small for his age, now he is even smaller. I worry about his health. Does your keto team dietician help you a lot or a little? Or does it depend on the team? Do you have access to the dietician more than just at induction? I am trying to see how much help a dietician would be. I can use any help and encouragement you can give me. Thanks in advance Pam McD ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 3, 2004 You might want to increase calories slightly. He shouldn't be losing weight on the diet. Bill and Stansfield-lyons wrote: > on 7/3/04 6:39 PM, From the Mcs at capnmacncrew@... wrote: > > > Hello > My son , who was diagnosed with absence szs in Aug, has been on the > Atkins diet (neuro said " no " to ketogenic diet, but " yes " to atkins) now > since about January. Before Atkins he had 2-4 szs per hour even on meds. > He went seizure free the very first day of ketosis and was sz-free or > mostly sz free until about a month or two ago. He is sz free all day > until about dinner time when he will have clusters of szs, one after > another after another after another. I don't know if it is related to > blood sugar, but does anyone have any thoughts? It could be related to > heat as well since it is now hot and he plays outside just prior to > dinner. Definitely heat is a trigger for , but even if he stays > inside the cool house he will cluster in the evenings now. > > I have been trying to keep a diary, but life has been so crazy since the > fire (we lost our home in the large San Diego fire and are still fighting > with insurance company before we can rebuild, we just had our baby girl 2 > weeks ago (child #11 for us) and she ended up in the hospital with > meningitis this past week plus my father has just been diagnosed with end > stage prostate and bone cancer). I haven't kept up with the diary since > the baby was born. > > has been drug free since he started the Atkins, but I am thinking > about trying other drugs as suggested by the neuro (although neuro said > our likelihood of finding any that work is practically nil, hence the > Atkins diet). I am also thinking about pushing the neuro to refer us to > the keto diet, but life has been so up in the air I am thinking it will > be too hard (although the atkins is very hard already). It just seems > that if a pill could work, it would be better than the diet. (but of > course no pills have worked, only added to our troubles). Aack--I am at > such a loss at what to do these days! > > I am also mad and worried that we do not have a dietician to help us with > either Atkins or Keto diet. is getting so thin and frail looking. > He was already small for his age, now he is even smaller. I worry about > his health. Does your keto team dietician help you a lot or a little? > Or does it depend on the team? Do you have access to the dietician more > than just at induction? I am trying to see how much help a dietician > would be. > > I can use any help and encouragement you can give me. Thanks in advance > Pam McD > > ________________________________________________________________ > The best thing to hit the Internet in years - Juno SpeedBand! > Surf the Web up to FIVE TIMES FASTER! > Only $14.95/ month - visit www.juno.com to sign up today! > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional > keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 3, 2004 You might want to increase calories slightly. He shouldn't be losing weight on the diet. Bill and Stansfield-lyons wrote: > on 7/3/04 6:39 PM, From the Mcs at capnmacncrew@... wrote: > > > Hello > My son , who was diagnosed with absence szs in Aug, has been on the > Atkins diet (neuro said " no " to ketogenic diet, but " yes " to atkins) now > since about January. Before Atkins he had 2-4 szs per hour even on meds. > He went seizure free the very first day of ketosis and was sz-free or > mostly sz free until about a month or two ago. He is sz free all day > until about dinner time when he will have clusters of szs, one after > another after another after another. I don't know if it is related to > blood sugar, but does anyone have any thoughts? It could be related to > heat as well since it is now hot and he plays outside just prior to > dinner. Definitely heat is a trigger for , but even if he stays > inside the cool house he will cluster in the evenings now. > > I have been trying to keep a diary, but life has been so crazy since the > fire (we lost our home in the large San Diego fire and are still fighting > with insurance company before we can rebuild, we just had our baby girl 2 > weeks ago (child #11 for us) and she ended up in the hospital with > meningitis this past week plus my father has just been diagnosed with end > stage prostate and bone cancer). I haven't kept up with the diary since > the baby was born. > > has been drug free since he started the Atkins, but I am thinking > about trying other drugs as suggested by the neuro (although neuro said > our likelihood of finding any that work is practically nil, hence the > Atkins diet). I am also thinking about pushing the neuro to refer us to > the keto diet, but life has been so up in the air I am thinking it will > be too hard (although the atkins is very hard already). It just seems > that if a pill could work, it would be better than the diet. (but of > course no pills have worked, only added to our troubles). Aack--I am at > such a loss at what to do these days! > > I am also mad and worried that we do not have a dietician to help us with > either Atkins or Keto diet. is getting so thin and frail looking. > He was already small for his age, now he is even smaller. I worry about > his health. Does your keto team dietician help you a lot or a little? > Or does it depend on the team? Do you have access to the dietician more > than just at induction? I am trying to see how much help a dietician > would be. > > I can use any help and encouragement you can give me. Thanks in advance > Pam McD > > ________________________________________________________________ > The best thing to hit the Internet in years - Juno SpeedBand! > Surf the Web up to FIVE TIMES FASTER! > Only $14.95/ month - visit www.juno.com to sign up today! > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional > keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 3, 2004 You might want to increase calories slightly. He shouldn't be losing weight on the diet. Bill and Stansfield-lyons wrote: > on 7/3/04 6:39 PM, From the Mcs at capnmacncrew@... wrote: > > > Hello > My son , who was diagnosed with absence szs in Aug, has been on the > Atkins diet (neuro said " no " to ketogenic diet, but " yes " to atkins) now > since about January. Before Atkins he had 2-4 szs per hour even on meds. > He went seizure free the very first day of ketosis and was sz-free or > mostly sz free until about a month or two ago. He is sz free all day > until about dinner time when he will have clusters of szs, one after > another after another after another. I don't know if it is related to > blood sugar, but does anyone have any thoughts? It could be related to > heat as well since it is now hot and he plays outside just prior to > dinner. Definitely heat is a trigger for , but even if he stays > inside the cool house he will cluster in the evenings now. > > I have been trying to keep a diary, but life has been so crazy since the > fire (we lost our home in the large San Diego fire and are still fighting > with insurance company before we can rebuild, we just had our baby girl 2 > weeks ago (child #11 for us) and she ended up in the hospital with > meningitis this past week plus my father has just been diagnosed with end > stage prostate and bone cancer). I haven't kept up with the diary since > the baby was born. > > has been drug free since he started the Atkins, but I am thinking > about trying other drugs as suggested by the neuro (although neuro said > our likelihood of finding any that work is practically nil, hence the > Atkins diet). I am also thinking about pushing the neuro to refer us to > the keto diet, but life has been so up in the air I am thinking it will > be too hard (although the atkins is very hard already). It just seems > that if a pill could work, it would be better than the diet. (but of > course no pills have worked, only added to our troubles). Aack--I am at > such a loss at what to do these days! > > I am also mad and worried that we do not have a dietician to help us with > either Atkins or Keto diet. is getting so thin and frail looking. > He was already small for his age, now he is even smaller. I worry about > his health. Does your keto team dietician help you a lot or a little? > Or does it depend on the team? Do you have access to the dietician more > than just at induction? I am trying to see how much help a dietician > would be. > > I can use any help and encouragement you can give me. Thanks in advance > Pam McD > > ________________________________________________________________ > The best thing to hit the Internet in years - Juno SpeedBand! > Surf the Web up to FIVE TIMES FASTER! > Only $14.95/ month - visit www.juno.com to sign up today! > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional > keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 4, 2004 Pam, First of all, bless you!! Have you checked his ketosis before dinner when he's seizing? Maybe he is burning too many calories during the day, and needs more at lunch or needs an afternoon snack. Is it possible he's out of the home in the afternoon and is cheating? Are you using sunscreen on him in the afternoon, or brushing his teeth with a non-keto toothpaste in the late morning or afternoon? I bet if the Atkins works the rest of the day, it's something with the diet you just haven't figured out yet. Our dietician isn't really very passionate about the diet, and thus only mediochre. There have been many questions she couldn't answer, and that was that. No " I'll find out the answer for you. " I find the best resource to be the parents on this website; much better than the dietician. Hang in there! Debbie (mom to Bryce, 5 ketokid since 9/03 and seizure free since 9/03; just beginning to wean meds and terrified....) > > Hello > My son , who was diagnosed with absence szs in Aug, has been on the > Atkins diet (neuro said " no " to ketogenic diet, but " yes " to atkins) now > since about January. Before Atkins he had 2-4 szs per hour even on meds. > He went seizure free the very first day of ketosis and was sz- free or > mostly sz free until about a month or two ago. He is sz free all day > until about dinner time when he will have clusters of szs, one after > another after another after another. I don't know if it is related to > blood sugar, but does anyone have any thoughts? It could be related to > heat as well since it is now hot and he plays outside just prior to > dinner. Definitely heat is a trigger for , but even if he stays > inside the cool house he will cluster in the evenings now. > > I have been trying to keep a diary, but life has been so crazy since the > fire (we lost our home in the large San Diego fire and are still fighting > with insurance company before we can rebuild, we just had our baby girl 2 > weeks ago (child #11 for us) and she ended up in the hospital with > meningitis this past week plus my father has just been diagnosed with end > stage prostate and bone cancer). I haven't kept up with the diary since > the baby was born. > > has been drug free since he started the Atkins, but I am thinking > about trying other drugs as suggested by the neuro (although neuro said > our likelihood of finding any that work is practically nil, hence the > Atkins diet). I am also thinking about pushing the neuro to refer us to > the keto diet, but life has been so up in the air I am thinking it will > be too hard (although the atkins is very hard already). It just seems > that if a pill could work, it would be better than the diet. (but of > course no pills have worked, only added to our troubles). Aack--I am at > such a loss at what to do these days! > > I am also mad and worried that we do not have a dietician to help us with > either Atkins or Keto diet. is getting so thin and frail looking. > He was already small for his age, now he is even smaller. I worry about > his health. Does your keto team dietician help you a lot or a little? > Or does it depend on the team? Do you have access to the dietician more > than just at induction? I am trying to see how much help a dietician > would be. > > I can use any help and encouragement you can give me. Thanks in advance > Pam McD > > ________________________________________________________________ > The best thing to hit the Internet in years - Juno SpeedBand! > Surf the Web up to FIVE TIMES FASTER! > Only $14.95/ month - visit www.juno.com to sign up today! Quote Share this post Link to post Share on other sites
