update

[Guest guest]

Thanks Debbie

Dylan is doing really well. He is crawling and pulling himself up on all the

furniture (or anything that stays still

for more than a few seconds) to walk around. I'm sure he will walk as soon as

his legs will balance his weight.

We call him the 'Great Explorer'!

Tell heanry he can shake hands really well (his Grandad has taught him) also

he does love hugs.

Take Care

Caroline

Riley wrote:

> Hi Caroline,

>

> I am happy that your tests came back normal and you are in remission too!

> That is great news.

>

> Sorry to hear about the stess. I do have faith that you will take care of

> yourself you did a great job the last time with Dylan. How is Dylan doing

> anyways? Getting big I would imagine.

>

> Take care and give Dylan a hug from me and a handshake from henry.

>

> Debbie R.

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

of

> the listowner. I have no input as to what ads are attached to emails.

>

--------------------------------------------------------------------------------\

------

>

>

[Guest guest]

Thanks Debbie

Dylan is doing really well. He is crawling and pulling himself up on all the

furniture (or anything that stays still

for more than a few seconds) to walk around. I'm sure he will walk as soon as

his legs will balance his weight.

We call him the 'Great Explorer'!

Tell heanry he can shake hands really well (his Grandad has taught him) also

he does love hugs.

Take Care

Caroline

Riley wrote:

> Hi Caroline,

>

> I am happy that your tests came back normal and you are in remission too!

> That is great news.

>

> Sorry to hear about the stess. I do have faith that you will take care of

> yourself you did a great job the last time with Dylan. How is Dylan doing

> anyways? Getting big I would imagine.

>

> Take care and give Dylan a hug from me and a handshake from henry.

>

> Debbie R.

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

of

> the listowner. I have no input as to what ads are attached to emails.

>

--------------------------------------------------------------------------------\

------

>

>

[Guest guest]

Thanks Debbie

Dylan is doing really well. He is crawling and pulling himself up on all the

furniture (or anything that stays still

for more than a few seconds) to walk around. I'm sure he will walk as soon as

his legs will balance his weight.

We call him the 'Great Explorer'!

Tell heanry he can shake hands really well (his Grandad has taught him) also

he does love hugs.

Take Care

Caroline

Riley wrote:

> Hi Caroline,

>

> I am happy that your tests came back normal and you are in remission too!

> That is great news.

>

> Sorry to hear about the stess. I do have faith that you will take care of

> yourself you did a great job the last time with Dylan. How is Dylan doing

> anyways? Getting big I would imagine.

>

> Take care and give Dylan a hug from me and a handshake from henry.

>

> Debbie R.

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

of

> the listowner. I have no input as to what ads are attached to emails.

>

--------------------------------------------------------------------------------\

------

>

>

[Guest guest]

--- Headdock

wrote:

> Hi to you all

>

> Just letting you know how I got on this afternoon.

>

> My endo agrees I might now be slightly hypo. I told

> him I had reduced the carbimazole to 10mg per day &

> he said that was the right thing to do & to stay on

> that dose, to increase it if I felt hyper & to ring

> him if I needed to.

>

> I was tested for thryroparodoxine??.Not sure if I

> spelt that right _ some kind of antibody which was

> very positive.

> I asked about thyroid stimulating antibodies & he

> said there is only one place in the UK that tests

> for it & it's very expensive so it's very rarely

> done.

> We talked about RAI & surgery & he said in his

> experience he would expect me to go hypo eventually

> after RAI. He said in the UK they don't like to do

> surgery too much because it is a long operation &

> there is a slight risk of damage to the vocal

> chords. He also said surgery, as it is invasive etc,

> can also lead to antibodies being released. He also

> said if I really wanted surgery they would do it.

> They usually use it on women who might want to have

> children or if there is a very large vascular goitre

> I said I'd seen some info that RAI can also lead to

> TED( which I already have slightly). He said in the

> UK TED can be treated by steroids & in serious cases

> surgery or radiotherapy.

>

> Back to see him in 4 weeks to get today's bloodtest

> results.

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

[Guest guest]

--- Headdock

wrote:

> Hi to you all

>

> Just letting you know how I got on this afternoon.

>

> My endo agrees I might now be slightly hypo. I told

> him I had reduced the carbimazole to 10mg per day &

> he said that was the right thing to do & to stay on

> that dose, to increase it if I felt hyper & to ring

> him if I needed to.

>

> I was tested for thryroparodoxine??.Not sure if I

> spelt that right _ some kind of antibody which was

> very positive.

> I asked about thyroid stimulating antibodies & he

> said there is only one place in the UK that tests

> for it & it's very expensive so it's very rarely

> done.

> We talked about RAI & surgery & he said in his

> experience he would expect me to go hypo eventually

> after RAI. He said in the UK they don't like to do

> surgery too much because it is a long operation &

> there is a slight risk of damage to the vocal

> chords. He also said surgery, as it is invasive etc,

> can also lead to antibodies being released. He also

> said if I really wanted surgery they would do it.

> They usually use it on women who might want to have

> children or if there is a very large vascular goitre

> I said I'd seen some info that RAI can also lead to

> TED( which I already have slightly). He said in the

> UK TED can be treated by steroids & in serious cases

> surgery or radiotherapy.

>

> Back to see him in 4 weeks to get today's bloodtest

> results.

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

[Guest guest]

Hi ,

>>>He said in the UK they don't like to do surgery too much because it is a

>>>long operation & there is a slight risk of damage to the vocal chords. He

>>>also said surgery, as it is invasive etc, can also lead to antibodies

>>>being released. He also said if I really wanted surgery they would do it.

>>>They usually use it on women who might want to have children or if there

>>>is a very large vascular goitre I said I'd seen some info that RAI can

>>>also lead to TED( which I already have slightly). He said in the UK TED

>>>can be treated by steroids & in serious cases surgery or radiotherapy.<<<

I hope Shani posts her visit with the surgeon today in which she asked him

all of the quetions on the list posted over the weekend for you! If not you

can read it on the mediboard site at

http://www.mediboard.com/cgi-local/ubbcgi/ultimatebb.cgi?ubb=forum & f=1 & DaysPrune\

=1000

under surgeon outcome. I see the surgeon spoke of the traditional eye

treatments for our eye disease, but did he tell you that the eye radition

can atrophy your eye muscles, I have a friend who has had this happen, and

did he tell you, that you will have a GOOD chance of getting cataracts after

the eye radiation? The steroids are something I told my doctor I would

consider if the treatment I am doing now doesn't work, but only in the

lowest dose because I have had 3 bad experiences with steroids in the past.

I have not ruled them out yet, but hopefully I never have to use them. I

don't ever want to go through the eye surgies, but if necessary to save my

vision, I would in a heart beat...but if these things can be lessened with

the surgery, and they KNOW the problems the RAI can/will cause...I just can

not figure out where this doctor is coming from.

One last thing, and I hope Elaine verifies or corrects me on this, but I

believe that it is with RAI that antibodies are released into the

body...with the surgery, though a very little may escape into the system,

most are taken out with the thyroid. I believe he is wrong on this.

The TSI antibody test is an important one, maybe if more doctors would

realize this in the UK, other places would begin doing them bringing the

costs down. Here is a url that Jeanette shared with us quite awhile ago on

antibodies. You may want to read it, and share it with your doctor.

http://www.labodia.com//en/thyroid/review_thyroid_english.htm

Take care,

Jody

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

Hi ,

There's quite a few studies comparing antibody titers after surgery and RAI,

and the studies indicate that surgery doesn't cause a release of thyroid

antibodies or an increase in their titers. This is because the tissue, with

the antibodies in it, is removed. With RAI, antibody titers rise a great deal

because the cells die over a period of time and the antibodies are released

from dying cells.

You probably had a thyroid peroxidase (TPO) antibody test done. This confirms

that you have autoimmune thyorid disease. Take care, Elaine

[Guest guest]

Hi ,

There's quite a few studies comparing antibody titers after surgery and RAI,

and the studies indicate that surgery doesn't cause a release of thyroid

antibodies or an increase in their titers. This is because the tissue, with

the antibodies in it, is removed. With RAI, antibody titers rise a great deal

because the cells die over a period of time and the antibodies are released

from dying cells.

You probably had a thyroid peroxidase (TPO) antibody test done. This confirms

that you have autoimmune thyorid disease. Take care, Elaine

[Guest guest]

Hi ,

There's quite a few studies comparing antibody titers after surgery and RAI,

and the studies indicate that surgery doesn't cause a release of thyroid

antibodies or an increase in their titers. This is because the tissue, with

the antibodies in it, is removed. With RAI, antibody titers rise a great deal

because the cells die over a period of time and the antibodies are released

from dying cells.

You probably had a thyroid peroxidase (TPO) antibody test done. This confirms

that you have autoimmune thyorid disease. Take care, Elaine

[Guest guest]

Hi

He doesn't sound like he is very well informed. Maybe you ought to tell him to

read Elaine's book!! His attitude seems to be typical of many Drs. They treat

illnesses in a certain way and don't like to change nor do they like to be

challenged.

Unfortunately many endos don't really care about GD. Their focus is on the

thyroid and the quickest (and cheapest for the insurance) way to " fix " it.

As Elaine and Jody have said, after a thyroidectomy (sub or total) there is

generally a reduction of the GD antibodies. This was certainly the case for me

and I'm still in remission 18 months later. There is also less chance of

developing TED. Evidence shows that RAI increases risk of TED and increased

antibodies.

Do you feel you can develop a good working relationship with this Dr? If not try

to get another. It is too important to your health future to muck around with a

quack who won't listen to you and doesn't have his facts right.

All the best

Caroline

[Guest guest]

Hi Jody

Thanks for that. We didn't have a long discussion on the TED issue but I will

certainly talk to him about this when I see him next. I believe he isw agood

consultant - he has never patronised me & spent 1/2hour( the apppointments are

scheduled at 5 minute intervals) with me on Monday - which probably meant other

peole had to wait but he never once tried to rush me.

I will check out the site you mentioned

Thanks for your help

Re: update

Hi ,

>>>He said in the UK they don't like to do surgery too much because it is a

>>>long operation & there is a slight risk of damage to the vocal chords. He

>>>also said surgery, as it is invasive etc, can also lead to antibodies

>>>being released. He also said if I really wanted surgery they would do it.

>>>They usually use it on women who might want to have children or if there

>>>is a very large vascular goitre I said I'd seen some info that RAI can

>>>also lead to TED( which I already have slightly). He said in the UK TED

>>>can be treated by steroids & in serious cases surgery or radiotherapy.<<<

I hope Shani posts her visit with the surgeon today in which she asked him

all of the quetions on the list posted over the weekend for you! If not you

can read it on the mediboard site at

http://www.mediboard.com/cgi-local/ubbcgi/ultimatebb.cgi?ubb=forum & f=1 & DaysPrune\

=1000

under surgeon outcome. I see the surgeon spoke of the traditional eye

treatments for our eye disease, but did he tell you that the eye radition

can atrophy your eye muscles, I have a friend who has had this happen, and

did he tell you, that you will have a GOOD chance of getting cataracts after

the eye radiation? The steroids are something I told my doctor I would

consider if the treatment I am doing now doesn't work, but only in the

lowest dose because I have had 3 bad experiences with steroids in the past.

I have not ruled them out yet, but hopefully I never have to use them. I

don't ever want to go through the eye surgies, but if necessary to save my

vision, I would in a heart beat...but if these things can be lessened with

the surgery, and they KNOW the problems the RAI can/will cause...I just can

not figure out where this doctor is coming from.

One last thing, and I hope Elaine verifies or corrects me on this, but I

believe that it is with RAI that antibodies are released into the

body...with the surgery, though a very little may escape into the system,

most are taken out with the thyroid. I believe he is wrong on this.

The TSI antibody test is an important one, maybe if more doctors would

realize this in the UK, other places would begin doing them bringing the

costs down. Here is a url that Jeanette shared with us quite awhile ago on

antibodies. You may want to read it, and share it with your doctor.

http://www.labodia.com//en/thyroid/review_thyroid_english.htm

Take care,

Jody

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

Hi Jody

Thanks for that. We didn't have a long discussion on the TED issue but I will

certainly talk to him about this when I see him next. I believe he isw agood

consultant - he has never patronised me & spent 1/2hour( the apppointments are

scheduled at 5 minute intervals) with me on Monday - which probably meant other

peole had to wait but he never once tried to rush me.

I will check out the site you mentioned

Thanks for your help

Re: update

Hi ,

>>>He said in the UK they don't like to do surgery too much because it is a

>>>long operation & there is a slight risk of damage to the vocal chords. He

>>>also said surgery, as it is invasive etc, can also lead to antibodies

>>>being released. He also said if I really wanted surgery they would do it.

>>>They usually use it on women who might want to have children or if there

>>>is a very large vascular goitre I said I'd seen some info that RAI can

>>>also lead to TED( which I already have slightly). He said in the UK TED

>>>can be treated by steroids & in serious cases surgery or radiotherapy.<<<

I hope Shani posts her visit with the surgeon today in which she asked him

all of the quetions on the list posted over the weekend for you! If not you

can read it on the mediboard site at

http://www.mediboard.com/cgi-local/ubbcgi/ultimatebb.cgi?ubb=forum & f=1 & DaysPrune\

=1000

under surgeon outcome. I see the surgeon spoke of the traditional eye

treatments for our eye disease, but did he tell you that the eye radition

can atrophy your eye muscles, I have a friend who has had this happen, and

did he tell you, that you will have a GOOD chance of getting cataracts after

the eye radiation? The steroids are something I told my doctor I would

consider if the treatment I am doing now doesn't work, but only in the

lowest dose because I have had 3 bad experiences with steroids in the past.

I have not ruled them out yet, but hopefully I never have to use them. I

don't ever want to go through the eye surgies, but if necessary to save my

vision, I would in a heart beat...but if these things can be lessened with

the surgery, and they KNOW the problems the RAI can/will cause...I just can

not figure out where this doctor is coming from.

One last thing, and I hope Elaine verifies or corrects me on this, but I

believe that it is with RAI that antibodies are released into the

body...with the surgery, though a very little may escape into the system,

most are taken out with the thyroid. I believe he is wrong on this.

The TSI antibody test is an important one, maybe if more doctors would

realize this in the UK, other places would begin doing them bringing the

costs down. Here is a url that Jeanette shared with us quite awhile ago on

antibodies. You may want to read it, and share it with your doctor.

http://www.labodia.com//en/thyroid/review_thyroid_english.htm

Take care,

Jody

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

Hi Elaine

Thanks for that - do you have any idea where I can find these studies?Also if

only part of the thyroid is removed can the remaining bit release antibodies?

Thanks again for your help

Re: update

Hi ,

There's quite a few studies comparing antibody titers after surgery and RAI,

and the studies indicate that surgery doesn't cause a release of thyroid

antibodies or an increase in their titers. This is because the tissue, with

the antibodies in it, is removed. With RAI, antibody titers rise a great deal

because the cells die over a period of time and the antibodies are released

from dying cells.

You probably had a thyroid peroxidase (TPO) antibody test done. This confirms

that you have autoimmune thyorid disease. Take care, Elaine

[Guest guest]

Hi Elaine

Thanks for that - do you have any idea where I can find these studies?Also if

only part of the thyroid is removed can the remaining bit release antibodies?

Thanks again for your help

Re: update

Hi ,

There's quite a few studies comparing antibody titers after surgery and RAI,

and the studies indicate that surgery doesn't cause a release of thyroid

antibodies or an increase in their titers. This is because the tissue, with

the antibodies in it, is removed. With RAI, antibody titers rise a great deal

because the cells die over a period of time and the antibodies are released

from dying cells.

You probably had a thyroid peroxidase (TPO) antibody test done. This confirms

that you have autoimmune thyorid disease. Take care, Elaine

[Guest guest]

Hi Caroline

Oops you seem to dislike my Doc! I am sorry if I gave a negative impression - I

think he's quite good . As I said in my post to Jodie he spent 1/2hr with me &

kept other patients waiting. He is also treating a friend of mine for an

underactive thyroid( hers is complicated - they think her pituitary has never

worked properly, might lack enough human growth hormone etc) & she also thinks

he's good.

I do find he is receptive but I have realised I have more questions to ask.

I am glad to hear you are doing well.

Re: update

Hi

He doesn't sound like he is very well informed. Maybe you ought to tell him to

read Elaine's book!! His attitude seems to be typical of many Drs. They treat

illnesses in a certain way and don't like to change nor do they like to be

challenged.

Unfortunately many endos don't really care about GD. Their focus is on the

thyroid and the quickest (and cheapest for the insurance) way to " fix " it.

As Elaine and Jody have said, after a thyroidectomy (sub or total) there is

generally a reduction of the GD antibodies. This was certainly the case for me

and I'm still in remission 18 months later. There is also less chance of

developing TED. Evidence shows that RAI increases risk of TED and increased

antibodies.

Do you feel you can develop a good working relationship with this Dr? If not

try to get another. It is too important to your health future to muck around

with a quack who won't listen to you and doesn't have his facts right.

All the best

Caroline

[Guest guest]

Hi Caroline

Oops you seem to dislike my Doc! I am sorry if I gave a negative impression - I

think he's quite good . As I said in my post to Jodie he spent 1/2hr with me &

kept other patients waiting. He is also treating a friend of mine for an

underactive thyroid( hers is complicated - they think her pituitary has never

worked properly, might lack enough human growth hormone etc) & she also thinks

he's good.

I do find he is receptive but I have realised I have more questions to ask.

I am glad to hear you are doing well.

Re: update

Hi

He doesn't sound like he is very well informed. Maybe you ought to tell him to

read Elaine's book!! His attitude seems to be typical of many Drs. They treat

illnesses in a certain way and don't like to change nor do they like to be

challenged.

Unfortunately many endos don't really care about GD. Their focus is on the

thyroid and the quickest (and cheapest for the insurance) way to " fix " it.

As Elaine and Jody have said, after a thyroidectomy (sub or total) there is

generally a reduction of the GD antibodies. This was certainly the case for me

and I'm still in remission 18 months later. There is also less chance of

developing TED. Evidence shows that RAI increases risk of TED and increased

antibodies.

Do you feel you can develop a good working relationship with this Dr? If not

try to get another. It is too important to your health future to muck around

with a quack who won't listen to you and doesn't have his facts right.

All the best

Caroline

[Guest guest]

Hi Caroline

Oops you seem to dislike my Doc! I am sorry if I gave a negative impression - I

think he's quite good . As I said in my post to Jodie he spent 1/2hr with me &

kept other patients waiting. He is also treating a friend of mine for an

underactive thyroid( hers is complicated - they think her pituitary has never

worked properly, might lack enough human growth hormone etc) & she also thinks

he's good.

I do find he is receptive but I have realised I have more questions to ask.

I am glad to hear you are doing well.

Re: update

Hi

He doesn't sound like he is very well informed. Maybe you ought to tell him to

read Elaine's book!! His attitude seems to be typical of many Drs. They treat

illnesses in a certain way and don't like to change nor do they like to be

challenged.

Unfortunately many endos don't really care about GD. Their focus is on the

thyroid and the quickest (and cheapest for the insurance) way to " fix " it.

As Elaine and Jody have said, after a thyroidectomy (sub or total) there is

generally a reduction of the GD antibodies. This was certainly the case for me

and I'm still in remission 18 months later. There is also less chance of

developing TED. Evidence shows that RAI increases risk of TED and increased

antibodies.

Do you feel you can develop a good working relationship with this Dr? If not

try to get another. It is too important to your health future to muck around

with a quack who won't listen to you and doesn't have his facts right.

All the best

Caroline

[Guest guest]

,

DawnRose is in the UK, and went through the whole thing figuring out where

to get the correct antibody tests.

You might go back in the archives and see if you can find the post where she

explained where she finally got it all settled.

It seems to me she did post the good news here.Including exactly which

hospital and which doctor.

If you don't find it, I am sure if you find her address in those old posts,

she would be more than happy to help you.

[Guest guest]

,

DawnRose is in the UK, and went through the whole thing figuring out where

to get the correct antibody tests.

You might go back in the archives and see if you can find the post where she

explained where she finally got it all settled.

It seems to me she did post the good news here.Including exactly which

hospital and which doctor.

If you don't find it, I am sure if you find her address in those old posts,

she would be more than happy to help you.

[Guest guest]

,

DawnRose is in the UK, and went through the whole thing figuring out where

to get the correct antibody tests.

You might go back in the archives and see if you can find the post where she

explained where she finally got it all settled.

It seems to me she did post the good news here.Including exactly which

hospital and which doctor.

If you don't find it, I am sure if you find her address in those old posts,

she would be more than happy to help you.

[Guest guest]

Hi ,

Have they checked your friend for Cushings?

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

Hi ,

Have they checked your friend for Cushings?

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

Hi ,

Have they checked your friend for Cushings?

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

HI Jody

don't know but I'll ask

thanks for the idea

Re: update

Hi ,

Have they checked your friend for Cushings?

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

HI Jody

don't know but I'll ask

thanks for the idea

Re: update

Hi ,

Have they checked your friend for Cushings?

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.