update

[Guest guest]

Wow,what a bout. Seems you are more secure than they are,looks like good

news but they act like it's no news. Must be very confusing,especially if

after you

made that 45 minute trip,chewing your nails all the while,for what? There are

more ways available but many surgeons don't always reply to your questions.

Why were you bleeding and what did they do about it. I hope you are not still

hurting.

You cancer markers went down,guess you know bwttwe but still smoke,hopefully

the specks on the pancreas are just that. You deserve a break...stay well do

something special as a treat for yourself. Hugs and prayers and very positive

vibes

Nick & Jane

[Guest guest]

Wow,what a bout. Seems you are more secure than they are,looks like good

news but they act like it's no news. Must be very confusing,especially if

after you

made that 45 minute trip,chewing your nails all the while,for what? There are

more ways available but many surgeons don't always reply to your questions.

Why were you bleeding and what did they do about it. I hope you are not still

hurting.

You cancer markers went down,guess you know bwttwe but still smoke,hopefully

the specks on the pancreas are just that. You deserve a break...stay well do

something special as a treat for yourself. Hugs and prayers and very positive

vibes

Nick & Jane

[Guest guest]

Wow,what a bout. Seems you are more secure than they are,looks like good

news but they act like it's no news. Must be very confusing,especially if

after you

made that 45 minute trip,chewing your nails all the while,for what? There are

more ways available but many surgeons don't always reply to your questions.

Why were you bleeding and what did they do about it. I hope you are not still

hurting.

You cancer markers went down,guess you know bwttwe but still smoke,hopefully

the specks on the pancreas are just that. You deserve a break...stay well do

something special as a treat for yourself. Hugs and prayers and very positive

vibes

Nick & Jane

[Guest guest]

Jane compared to most people or their families on this list I have been VERY

lucky. As far as we know my cancer was all removed with surgery. I had no

chemo or other treatments. I ran into infections and other things but they

can or were all be taken care of. Getting the stent put in should take care

of the last of problems I think but of course they are going to be watching

me for recurrent cancer. I also go next month for more tests on pancreas but

the Dr's do not seem worried that it is cancer at this point. I like to post

what is going on so other people know and try to give hope to others.

Yes I do complain and vent but guess that is human nature:)

Hildreth

Re: Update

You've been through it. Hugs and prayers. Jane

[Guest guest]

Jane compared to most people or their families on this list I have been VERY

lucky. As far as we know my cancer was all removed with surgery. I had no

chemo or other treatments. I ran into infections and other things but they

can or were all be taken care of. Getting the stent put in should take care

of the last of problems I think but of course they are going to be watching

me for recurrent cancer. I also go next month for more tests on pancreas but

the Dr's do not seem worried that it is cancer at this point. I like to post

what is going on so other people know and try to give hope to others.

Yes I do complain and vent but guess that is human nature:)

Hildreth

Re: Update

You've been through it. Hugs and prayers. Jane

[Guest guest]

Gosh Hildreth....you sure have been through a lot lately. Hope you

won't have much more of this....but being cancer free is worth a lot,

isn't it?

Hugs,

Monika

> I went to my Dr appt this morning even though at first I did not

think I could make it. I was suppose to take two fleet enema's after

the one I thought I would cramp to death and got sick to my stomach.

I called and they said not to take the second one but he really

needed to see me.

> It is a 45 minute ride for me so was nervous about that.

> It really was a wasted trip from my point of view. He used a sig

and looking at the monitor I told him the opening appeared much

larger then it has the last two times. He said it might be

magnification or something. Oh well I tried. Then he called for other

instruments and I have no idea what he did but it hurt and I was

bleeding when I got home. My surgeon had told me this was the Dr that

did the stent's and that is what he was to talk to me about this

morning. All I got was I will talk to Dr. Faried and one of us will

be calling you. He did state it did not look like I required surgery

at this time. I questioned if I had to be hospitalized for stent and

from his answer I take it is done under sedation in his office. I

asked about balloon stretch and all I got was something about scar

tissue growing.

> I already knew about my biopsy not showing cancer. That is exactly

what he told me but said they don't know what it is and will have to

watch it. He was going to have me have another cat scan but I

informed him I had one about 2 weeks ago!

> I at least got a answer when I asked about my last CEA. It is down

to 5.9 and he asked if I was a smoker which I am. In the last three

months it has been 7.1,6.8 and now 5.9. The other cancer surgeon has

told me he would not worry about it unless it started jumping all

over so this sounds good. I think the other cancer surgeon plans a

MRI and CEA next month to check the tiny spot on pancreas. At least

that did not show up in PET. So far the two spots that did show up in

the PET have been biopsied and are not cancer.

> All I do know is I am to stay on soft diet or he said I would end

up in the ER.

>

> Hildreth

>

>

>

[Guest guest]

Gosh Hildreth....you sure have been through a lot lately. Hope you

won't have much more of this....but being cancer free is worth a lot,

isn't it?

Hugs,

Monika

> I went to my Dr appt this morning even though at first I did not

think I could make it. I was suppose to take two fleet enema's after

the one I thought I would cramp to death and got sick to my stomach.

I called and they said not to take the second one but he really

needed to see me.

> It is a 45 minute ride for me so was nervous about that.

> It really was a wasted trip from my point of view. He used a sig

and looking at the monitor I told him the opening appeared much

larger then it has the last two times. He said it might be

magnification or something. Oh well I tried. Then he called for other

instruments and I have no idea what he did but it hurt and I was

bleeding when I got home. My surgeon had told me this was the Dr that

did the stent's and that is what he was to talk to me about this

morning. All I got was I will talk to Dr. Faried and one of us will

be calling you. He did state it did not look like I required surgery

at this time. I questioned if I had to be hospitalized for stent and

from his answer I take it is done under sedation in his office. I

asked about balloon stretch and all I got was something about scar

tissue growing.

> I already knew about my biopsy not showing cancer. That is exactly

what he told me but said they don't know what it is and will have to

watch it. He was going to have me have another cat scan but I

informed him I had one about 2 weeks ago!

> I at least got a answer when I asked about my last CEA. It is down

to 5.9 and he asked if I was a smoker which I am. In the last three

months it has been 7.1,6.8 and now 5.9. The other cancer surgeon has

told me he would not worry about it unless it started jumping all

over so this sounds good. I think the other cancer surgeon plans a

MRI and CEA next month to check the tiny spot on pancreas. At least

that did not show up in PET. So far the two spots that did show up in

the PET have been biopsied and are not cancer.

> All I do know is I am to stay on soft diet or he said I would end

up in the ER.

>

> Hildreth

>

>

>

[Guest guest]

Gosh Hildreth....you sure have been through a lot lately. Hope you

won't have much more of this....but being cancer free is worth a lot,

isn't it?

Hugs,

Monika

> I went to my Dr appt this morning even though at first I did not

think I could make it. I was suppose to take two fleet enema's after

the one I thought I would cramp to death and got sick to my stomach.

I called and they said not to take the second one but he really

needed to see me.

> It is a 45 minute ride for me so was nervous about that.

> It really was a wasted trip from my point of view. He used a sig

and looking at the monitor I told him the opening appeared much

larger then it has the last two times. He said it might be

magnification or something. Oh well I tried. Then he called for other

instruments and I have no idea what he did but it hurt and I was

bleeding when I got home. My surgeon had told me this was the Dr that

did the stent's and that is what he was to talk to me about this

morning. All I got was I will talk to Dr. Faried and one of us will

be calling you. He did state it did not look like I required surgery

at this time. I questioned if I had to be hospitalized for stent and

from his answer I take it is done under sedation in his office. I

asked about balloon stretch and all I got was something about scar

tissue growing.

> I already knew about my biopsy not showing cancer. That is exactly

what he told me but said they don't know what it is and will have to

watch it. He was going to have me have another cat scan but I

informed him I had one about 2 weeks ago!

> I at least got a answer when I asked about my last CEA. It is down

to 5.9 and he asked if I was a smoker which I am. In the last three

months it has been 7.1,6.8 and now 5.9. The other cancer surgeon has

told me he would not worry about it unless it started jumping all

over so this sounds good. I think the other cancer surgeon plans a

MRI and CEA next month to check the tiny spot on pancreas. At least

that did not show up in PET. So far the two spots that did show up in

the PET have been biopsied and are not cancer.

> All I do know is I am to stay on soft diet or he said I would end

up in the ER.

>

> Hildreth

>

>

>

[Guest guest]

Being Cancer Free is the most wonderful news you can hear!!! I have not gone

through anything compared to most people with cancer. The staph infection is the

one that almost killed me. I understand this is a world wide problem and some

organizations are fighting to clean up the hospitals. My biggest fear of having

a stent put in is that I have to go to the hospital to let them do it. I am

paranoid of going in that hospital again but understand it is not the only one.

Hildreth

Re: Update

Gosh Hildreth....you sure have been through a lot lately. Hope you

won't have much more of this....but being cancer free is worth a lot,

isn't it?

Hugs,

Monika

[Guest guest]

Being Cancer Free is the most wonderful news you can hear!!! I have not gone

through anything compared to most people with cancer. The staph infection is the

one that almost killed me. I understand this is a world wide problem and some

organizations are fighting to clean up the hospitals. My biggest fear of having

a stent put in is that I have to go to the hospital to let them do it. I am

paranoid of going in that hospital again but understand it is not the only one.

Hildreth

Re: Update

Gosh Hildreth....you sure have been through a lot lately. Hope you

won't have much more of this....but being cancer free is worth a lot,

isn't it?

Hugs,

Monika

[Guest guest]

I wish I had all the answers of what a stent is:) My appt yesterday was with

the surgeon who puts in the stents and my understanding was he was going to

explain it all to me. That did not happen. I don't know much more then I did

before. He did say he did not think I needed surgery and just mentioned the

stent but that was all. I asked about balloon stretch and he said something

about scar tissue. I would think the balloon stretch would make less scar

tissue then a stent but I am not a Dr. All I know it is something they will

put in the opening of my colon to enlarge it and keep it more open. Right

now for one reason or another it has become a very small opening which I

understand is common after colon surgery. Either the surgeon sews it to

tight or scar tissue grows. My GI is afraid I will get a complete blockage

if they don't do something soon. I have been on a soft food diet since they

found this a month ago and will have to stay on it until they decide what to

do.

Hildreth

Re: Update

Hildreth, you have been lucky and I hope it continues that way for you. Out

of interest please, what is a stent. I have read about it often but do not

know what it is. All best Jane

[Guest guest]

I wish I had all the answers of what a stent is:) My appt yesterday was with

the surgeon who puts in the stents and my understanding was he was going to

explain it all to me. That did not happen. I don't know much more then I did

before. He did say he did not think I needed surgery and just mentioned the

stent but that was all. I asked about balloon stretch and he said something

about scar tissue. I would think the balloon stretch would make less scar

tissue then a stent but I am not a Dr. All I know it is something they will

put in the opening of my colon to enlarge it and keep it more open. Right

now for one reason or another it has become a very small opening which I

understand is common after colon surgery. Either the surgeon sews it to

tight or scar tissue grows. My GI is afraid I will get a complete blockage

if they don't do something soon. I have been on a soft food diet since they

found this a month ago and will have to stay on it until they decide what to

do.

Hildreth

Re: Update

Hildreth, you have been lucky and I hope it continues that way for you. Out

of interest please, what is a stent. I have read about it often but do not

know what it is. All best Jane

[Guest guest]

Hi, Hildreth,

My friend had a doctor's appointment today, and his colonoscopist

seemed surprised that the surgeon we saw last week said he doesn't

think either surgery or a stent is necessary. The colonoscopist told

us that removable stents for noncancerous conditions are now

available. They are put in for 6 months and then removed. However,

he said these are not designed specifically for the colon, but he

thinks they can be used for the colon.

My friend says his bowel movements are now about the size of his

thumb, whereas earlier they were very small. After his first

stretching, the colon shrunk back down to 9 cm or so, but it seems to

have stayed more open a bit after having been stretched the last

time, to 15 cm. It was at 18 cm this afternoon after having been

stretched with a 19 cm dilator.

His surgeon said he needs to eat a high fiber diet to try to keep it

open, and that if he should develop a blockage he'd have at least a

week to get to the doctor, which is a concern, since he'll be out of

state for several months working all summer, on the road.

His friend quipped that maybe I could blow up the balloon stretcher

myself for him, and when we told the colonoscopist this he kidded us,

saying, yes, that we could try tying animal shapes out of the

balloon, too, for extra stretching potential. :>) He said that

theoretically a colon can be stretched unlimited times. The surgeon

had said a dozen times, but I guess he was talking figuratively, and

not literally, meaning " dozens of times. " I thought he meant 12 times

total, but the colonoscopist said, no, that there is no limit to

stretchings, but that he can't do one every 2 weeks, which is why he

is considering a stent.

A nurse teased us, asking if we'd like pictures of my friend's

stretched colon for our Christmas newsletter! She suggested we write

on our cards, " I have a Gut Feeling You will have a Wonderful

Christmas! " :>)

I hope this information is helpful, and I hope things go well for you.

Clare

> I wish I had all the answers of what a stent is:) My appt yesterday

was with

> the surgeon who puts in the stents and my understanding was he was

going to

> explain it all to me. That did not happen. I don't know much more

then I did

> before. He did say he did not think I needed surgery and just

mentioned the

> stent but that was all. I asked about balloon stretch and he said

something

> about scar tissue. I would think the balloon stretch would make

less scar

> tissue then a stent but I am not a Dr. All I know it is something

they will

> put in the opening of my colon to enlarge it and keep it more open.

Right

> now for one reason or another it has become a very small opening

which I

> understand is common after colon surgery. Either the surgeon sews

it to

> tight or scar tissue grows. My GI is afraid I will get a complete

blockage

> if they don't do something soon. I have been on a soft food diet

since they

> found this a month ago and will have to stay on it until they

decide what to

> do.

>

> Hildreth

> Re: Update

>

>

> Hildreth, you have been lucky and I hope it continues that way for

you. Out

> of interest please, what is a stent. I have read about it often but

do not

> know what it is. All best Jane

[Guest guest]

Hi, Hildreth,

My friend had a doctor's appointment today, and his colonoscopist

seemed surprised that the surgeon we saw last week said he doesn't

think either surgery or a stent is necessary. The colonoscopist told

us that removable stents for noncancerous conditions are now

available. They are put in for 6 months and then removed. However,

he said these are not designed specifically for the colon, but he

thinks they can be used for the colon.

My friend says his bowel movements are now about the size of his

thumb, whereas earlier they were very small. After his first

stretching, the colon shrunk back down to 9 cm or so, but it seems to

have stayed more open a bit after having been stretched the last

time, to 15 cm. It was at 18 cm this afternoon after having been

stretched with a 19 cm dilator.

His surgeon said he needs to eat a high fiber diet to try to keep it

open, and that if he should develop a blockage he'd have at least a

week to get to the doctor, which is a concern, since he'll be out of

state for several months working all summer, on the road.

His friend quipped that maybe I could blow up the balloon stretcher

myself for him, and when we told the colonoscopist this he kidded us,

saying, yes, that we could try tying animal shapes out of the

balloon, too, for extra stretching potential. :>) He said that

theoretically a colon can be stretched unlimited times. The surgeon

had said a dozen times, but I guess he was talking figuratively, and

not literally, meaning " dozens of times. " I thought he meant 12 times

total, but the colonoscopist said, no, that there is no limit to

stretchings, but that he can't do one every 2 weeks, which is why he

is considering a stent.

A nurse teased us, asking if we'd like pictures of my friend's

stretched colon for our Christmas newsletter! She suggested we write

on our cards, " I have a Gut Feeling You will have a Wonderful

Christmas! " :>)

I hope this information is helpful, and I hope things go well for you.

Clare

> I wish I had all the answers of what a stent is:) My appt yesterday

was with

> the surgeon who puts in the stents and my understanding was he was

going to

> explain it all to me. That did not happen. I don't know much more

then I did

> before. He did say he did not think I needed surgery and just

mentioned the

> stent but that was all. I asked about balloon stretch and he said

something

> about scar tissue. I would think the balloon stretch would make

less scar

> tissue then a stent but I am not a Dr. All I know it is something

they will

> put in the opening of my colon to enlarge it and keep it more open.

Right

> now for one reason or another it has become a very small opening

which I

> understand is common after colon surgery. Either the surgeon sews

it to

> tight or scar tissue grows. My GI is afraid I will get a complete

blockage

> if they don't do something soon. I have been on a soft food diet

since they

> found this a month ago and will have to stay on it until they

decide what to

> do.

>

> Hildreth

> Re: Update

>

>

> Hildreth, you have been lucky and I hope it continues that way for

you. Out

> of interest please, what is a stent. I have read about it often but

do not

> know what it is. All best Jane

[Guest guest]

Following all the skin drama I have been experiencing and it

progressively was getting worse and my eye inflammation got weird, I

went to the ER last night as I was very nervous from the constant

on-slaught of having to scratch and scratch and scratch (what a great

way to torture someone) but my eye itching threw me right over the

sane ledge into totally mental territory.

I was worried I may have the Shingles. I have had Chicken Pox when I

was a youngster, I have an underlying Herpes issue (cold sores- would

get super bad at times) but when I was really ill with the Crohn's

stuff I got Sackie virus which was an utter nightmare. I couldn't

swallow for probably a month and just lived on ingestible lidociane,

antibiotics and get this ANGEL FOOD CAKE as that would " coat " my

stomach to be able to take the meds. I don't want to think about it

as it makes me sick how I did so many things so wrong. Boy have I

been desperate at times.

Anyway, with this and teetering over the edge- I went to the ER.

Complications were ruled out and I was told to take Benadryl and

continue with an anti-histamine during the day. The Benadryl dosage

IMMEDIATELY helped. They said it is some kind of acute skin allergy-

as when I just touch my skin a rash appears now. After the Benadryl

this subsided. If I have any throat issues or difficulty breathing

within the next few days I need to go back to the ER and get steroids.

I don't think that is the route I will take. Unless it's an

emergency of course.

I think it is some bizzare die-off. I do not think it is just an

allergy, granted something could of changed for sure but I think the

yeastie beasties are acting up and they just have different ways of

manifesting with each layer and level of die-off or aggravation.

I am seeing my Homeopath today and doing another Ozone treatment.

This too shall pass.

I just am always so humbled to learn just how sick I have been and the

various layers to getting healthy is quite astonishing. Many people

taking Low Dose Naltrexone see a total connection with something

called Hering's Law of Cure. In a nutshell it's about when one gets

cured- the symptoms cure in a reverse order of how they appear. I

will write a post about Hering's soon. It enlightened me.

Big hugs.. and thank you all for your support.

Jodi

[Guest guest]

:I'm glad to hear the sleep study is over. When do you get the results? I used to take klonopin too. In fact I have taken it several different times in my MS-Life. I'm glad it worked for you. When I am having more leg pain the klonopin always works for me.I found you on Facebook and just sent you a friend request:) SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or

defects. To: MSersLife Sent: Saturday, August 29, 2009 1:43:52 PMSubject: Update

Well, I had the second part of my sleep study done...where you wear the CPAP mask all night...it really helped me rest. So that is a done deal. I am curious to see if it helps my MS symptoms. I was also treated with clonopin for the jumpy limbs to shut that down in the evenings. Thank goodness. It works. I am so very glad. The first time at the sleep study lab was TORTURE...I moved 500 times in my sleep, not to mention that I was discovered with sleep apnea TOO. To all newbies...Welcome...come anytime...browse...post, don't post...there is TONS of knowledge and experience of MS here...I've been diagnosed since 1989...and I am doing JUST FINE. It can happen. Shalonda, you were excellent in your interview! And you are some cute! Love the dog!Have a good day everyone...MARY...from Louisiana...I am on facebook too....

Folse...from Plaquemine Louisiana...check out the photos of my beautiful grandbaby PIPER.------------------------------------

[Guest guest]

:I'm glad to hear the sleep study is over. When do you get the results? I used to take klonopin too. In fact I have taken it several different times in my MS-Life. I'm glad it worked for you. When I am having more leg pain the klonopin always works for me.I found you on Facebook and just sent you a friend request:) SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or

defects. To: MSersLife Sent: Saturday, August 29, 2009 1:43:52 PMSubject: Update

Well, I had the second part of my sleep study done...where you wear the CPAP mask all night...it really helped me rest. So that is a done deal. I am curious to see if it helps my MS symptoms. I was also treated with clonopin for the jumpy limbs to shut that down in the evenings. Thank goodness. It works. I am so very glad. The first time at the sleep study lab was TORTURE...I moved 500 times in my sleep, not to mention that I was discovered with sleep apnea TOO. To all newbies...Welcome...come anytime...browse...post, don't post...there is TONS of knowledge and experience of MS here...I've been diagnosed since 1989...and I am doing JUST FINE. It can happen. Shalonda, you were excellent in your interview! And you are some cute! Love the dog!Have a good day everyone...MARY...from Louisiana...I am on facebook too....

Folse...from Plaquemine Louisiana...check out the photos of my beautiful grandbaby PIPER.------------------------------------

[Guest guest]

:I'm glad to hear the sleep study is over. When do you get the results? I used to take klonopin too. In fact I have taken it several different times in my MS-Life. I'm glad it worked for you. When I am having more leg pain the klonopin always works for me.I found you on Facebook and just sent you a friend request:) SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or

defects. To: MSersLife Sent: Saturday, August 29, 2009 1:43:52 PMSubject: Update

Well, I had the second part of my sleep study done...where you wear the CPAP mask all night...it really helped me rest. So that is a done deal. I am curious to see if it helps my MS symptoms. I was also treated with clonopin for the jumpy limbs to shut that down in the evenings. Thank goodness. It works. I am so very glad. The first time at the sleep study lab was TORTURE...I moved 500 times in my sleep, not to mention that I was discovered with sleep apnea TOO. To all newbies...Welcome...come anytime...browse...post, don't post...there is TONS of knowledge and experience of MS here...I've been diagnosed since 1989...and I am doing JUST FINE. It can happen. Shalonda, you were excellent in your interview! And you are some cute! Love the dog!Have a good day everyone...MARY...from Louisiana...I am on facebook too....

Folse...from Plaquemine Louisiana...check out the photos of my beautiful grandbaby PIPER.------------------------------------

[Guest guest]

Hi ,I found out in late 2007 that I too have sleep apnea. It was adding greatly tomy fatigue. The CPAP is great, thoughit was a bit to get used to it. I still have fatigue from the MS, but not as exaggeratedas it was before.blessings, Kate in NY UpdateTo: MSersLife > Well, I had the second part of my sleep study done...where you > wear the CPAP mask all night...it really helped me rest. So > that is a done deal. I am curious to see if it helps my MS > symptoms. > > I was also treated with clonopin for the jumpy limbs to shut > that down in the evenings. Thank goodness. It works. I am so > very glad. The first time at the sleep study lab was > TORTURE...I moved 500 times in my sleep, not to mention that I > was discovered with sleep apnea TOO. > > To all newbies...Welcome...> come anytime...browse...post, don't post...there is TONS of > knowledge and experience of MS here...> I've been diagnosed since 1989...and I am doing JUST FINE. It > can happen. > > Shalonda, you were excellent in your interview! And you are > some cute! Love the dog!> > Have a good day everyone...> MARY...from Louisiana...> I am on facebook too....> > Folse...from Plaquemine Louisiana...check out the photos of > my beautiful grandbaby PIPER.> >

[Guest guest]

Hi ,I found out in late 2007 that I too have sleep apnea. It was adding greatly tomy fatigue. The CPAP is great, thoughit was a bit to get used to it. I still have fatigue from the MS, but not as exaggeratedas it was before.blessings, Kate in NY UpdateTo: MSersLife > Well, I had the second part of my sleep study done...where you > wear the CPAP mask all night...it really helped me rest. So > that is a done deal. I am curious to see if it helps my MS > symptoms. > > I was also treated with clonopin for the jumpy limbs to shut > that down in the evenings. Thank goodness. It works. I am so > very glad. The first time at the sleep study lab was > TORTURE...I moved 500 times in my sleep, not to mention that I > was discovered with sleep apnea TOO. > > To all newbies...Welcome...> come anytime...browse...post, don't post...there is TONS of > knowledge and experience of MS here...> I've been diagnosed since 1989...and I am doing JUST FINE. It > can happen. > > Shalonda, you were excellent in your interview! And you are > some cute! Love the dog!> > Have a good day everyone...> MARY...from Louisiana...> I am on facebook too....> > Folse...from Plaquemine Louisiana...check out the photos of > my beautiful grandbaby PIPER.> >

[Guest guest]

Hi ,I found out in late 2007 that I too have sleep apnea. It was adding greatly tomy fatigue. The CPAP is great, thoughit was a bit to get used to it. I still have fatigue from the MS, but not as exaggeratedas it was before.blessings, Kate in NY UpdateTo: MSersLife > Well, I had the second part of my sleep study done...where you > wear the CPAP mask all night...it really helped me rest. So > that is a done deal. I am curious to see if it helps my MS > symptoms. > > I was also treated with clonopin for the jumpy limbs to shut > that down in the evenings. Thank goodness. It works. I am so > very glad. The first time at the sleep study lab was > TORTURE...I moved 500 times in my sleep, not to mention that I > was discovered with sleep apnea TOO. > > To all newbies...Welcome...> come anytime...browse...post, don't post...there is TONS of > knowledge and experience of MS here...> I've been diagnosed since 1989...and I am doing JUST FINE. It > can happen. > > Shalonda, you were excellent in your interview! And you are > some cute! Love the dog!> > Have a good day everyone...> MARY...from Louisiana...> I am on facebook too....> > Folse...from Plaquemine Louisiana...check out the photos of > my beautiful grandbaby PIPER.> >

[Guest guest]

I know I'm new here but I've been following your  story Akiba.  Add my prayers for a hasslefree and happy move.  Feeling " at home " is such a good and secure feeling.

 

Cait

 

Well, so far I am no closer to moving. I am still hoping for Thursday, mainly because they will be packing to move as of Friday and I can't stay here alone! So, I have found a church group that does moves and am waiting for an estimate from them. If it comes in at $200 or less I'm ok. Won't have much left to eat on but I'll make it, I have $36 in the Wisconsin food card still and $32 in the Pa. one, which will change but probably not till next month, since my expenses will go up, so will my food card go up....I have $27 in Paypal from a necklace I sold, so add all that up and I'm good for top ramen and eggs and milk...not much else but oh well, it's food and it's hot. So keep those prayers coming that they come in at something I can afford and that the move goes easy and safe. Then if'/when I get the MS grant I can use some of it toward the pet deposit and either talk her into giving me the rest or putting it toward next month's rent, which would be ok, having 1/2 the rent paid in advance...

 

             ~*~ Akiba~*~

~*~Pragmatic Visionary~*~

The World revolves around the Sun

My World revolves around My Son

[Guest guest]

I know I'm new here but I've been following your  story Akiba.  Add my prayers for a hasslefree and happy move.  Feeling " at home " is such a good and secure feeling.

 

Cait

 

Well, so far I am no closer to moving. I am still hoping for Thursday, mainly because they will be packing to move as of Friday and I can't stay here alone! So, I have found a church group that does moves and am waiting for an estimate from them. If it comes in at $200 or less I'm ok. Won't have much left to eat on but I'll make it, I have $36 in the Wisconsin food card still and $32 in the Pa. one, which will change but probably not till next month, since my expenses will go up, so will my food card go up....I have $27 in Paypal from a necklace I sold, so add all that up and I'm good for top ramen and eggs and milk...not much else but oh well, it's food and it's hot. So keep those prayers coming that they come in at something I can afford and that the move goes easy and safe. Then if'/when I get the MS grant I can use some of it toward the pet deposit and either talk her into giving me the rest or putting it toward next month's rent, which would be ok, having 1/2 the rent paid in advance...

 

             ~*~ Akiba~*~

~*~Pragmatic Visionary~*~

The World revolves around the Sun

My World revolves around My Son

[Guest guest]

I know I'm new here but I've been following your  story Akiba.  Add my prayers for a hasslefree and happy move.  Feeling " at home " is such a good and secure feeling.

 

Cait

 

Well, so far I am no closer to moving. I am still hoping for Thursday, mainly because they will be packing to move as of Friday and I can't stay here alone! So, I have found a church group that does moves and am waiting for an estimate from them. If it comes in at $200 or less I'm ok. Won't have much left to eat on but I'll make it, I have $36 in the Wisconsin food card still and $32 in the Pa. one, which will change but probably not till next month, since my expenses will go up, so will my food card go up....I have $27 in Paypal from a necklace I sold, so add all that up and I'm good for top ramen and eggs and milk...not much else but oh well, it's food and it's hot. So keep those prayers coming that they come in at something I can afford and that the move goes easy and safe. Then if'/when I get the MS grant I can use some of it toward the pet deposit and either talk her into giving me the rest or putting it toward next month's rent, which would be ok, having 1/2 the rent paid in advance...

 

             ~*~ Akiba~*~

~*~Pragmatic Visionary~*~

The World revolves around the Sun

My World revolves around My Son

[Guest guest]

Oh my Akiba I sure wish things would work out for you. Continued prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: akyba@...Sent: Tue, 1 Sep 2009 18:35:36 -0400 (Eastern Daylight Time)To: mserslife , wayofthewingedheart , the_wolfs_lodge Subject: update

Well, so far I am no closer to moving. I am still hoping for Thursday, mainly because they will be packing to move as of Friday and I can't stay here alone! So, I have found a church group that does moves and am waiting for an estimate from them. If it comes in at $200 or less I'm ok. Won't have much left to eat on but I'll make it, I have $36 in the Wisconsin food card still and $32 in the Pa. one, which will change but probably not till next month, since my expenses will go up, so will my food card go up....I have $27 in Paypal from a necklace I sold, so add all that up and I'm good for top ramen and eggs and milk...not much else but oh well, it's food and it's hot. So keep those prayers coming that they come in at something I can afford and that the move goes easy and safe. Then if'/when I get the MS grant I can use some of it toward the pet deposit and either talk her into giving me the rest or putting it toward next month's rent, which would be ok, having 1/2 the rent paid in advance...

    ~*~ Akiba~*~

~*~Pragmatic Visionary~*~

The World revolves around the Sun

My World revolves around My Son