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Mine went away within 24 hours of going GF. I think it probably

varies from person to person though.

Trudy

>

> How do you get rid of the FAT BLOTED feeling????

>

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Paper gown amnesia. Good to know I'm not the only one.

I'm doing

> it now to document my experience for when I see the doctor again-to avoid

> that amnesia that happens while wearing a paper gown.

>

>

>

> Laurie

>

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Thanks goodness, it seems to improve relatively soon after going GF. I do admit

that a bit

of my tummy is going to have to be improved with more exercise, but there is a

difference

between seeing a little jiggle and feeling like my belly is being pushed out and

cannot be

pulled in. I never understood when people would say they felt bloated during

certain

times of the month. I now realize that it was because I felt bloated ALL the

time, so I

didn't know what not bloated was.

To be completely honest about my vain side, that is one of the true reasons I

know I need

to stay GF. Anything that makes me look pregnant when I am positive I am not

just cannot

be doing good things to my body.

>

> How do you get rid of the FAT BLOTED feeling????

>

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I wish!!! Lactose intolerant since high school - I can eat a little baby scoop

without

problems, but transitioning to GF required a bit more than a baby scoop

sometimes ;-)

Have you guys checked out www.mypyramidtracker.com? It is the government food

pyramid site where you can put in what you eat and it gives you the nutritional

breakdown.

Depending on what you eat, sometimes you have to do a little substituting to

something

close to it (like most GF food is lot listed by brand), but I figure it is

fairly accurate. I use it

to spot check and make sure I am eating a good amount of fiber, vitamins etc.

>

>

> I used ice cream. :o)

>

> Trudy

>

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Yes, it’s those symptoms that I

thought were just normal that I forget to emphasize when I’m having paper

gown amnesia. Do I feel bloated? Do I have normal BMs? How do you know unless

they’ve changed from one to the other?

Vanity used in service to your health is a

good thing, positive and empowering. It’s the shadow side of vanity that

trips us up eventually.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Jen

Sent: Monday, March 06, 2006 12:52

PM

To: SillyYaks

Subject: Re: gluten

challenge

Thanks goodness, it seems to

improve relatively soon after going GF. I do admit that a bit

of my tummy is going to have to be improved with

more exercise, but there is a difference

between seeing a little jiggle and feeling like my

belly is being pushed out and cannot be

pulled in. I never understood when people

would say they felt bloated during certain

times of the month. I now realize that it

was because I felt bloated ALL the time, so I

didn't know what not bloated was.

To be completely honest about my vain side, that

is one of the true reasons I know I need

to stay GF. Anything that makes me look

pregnant when I am positive I am not just cannot

be doing good things to my body.

>

> How do you get rid of the FAT BLOTED

feeling????

>

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I’m not wild about soy cheese either—the

shredded blend I bought tastes ok. I just blended it up, but won’t taste

it until the flavors blend.

Actually, ds might be soy sensitive also,

so this is another kind of test also….

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of clanmcculloch

Sent: Monday, March 13, 2006 1:33

PM

To: SillyYaks

Subject: Re: gluten

challenge

> Stopped at Trader Joes

on the way home (it's on the way into

> Boston-I

don't get to go there very often). Naturally, I forgot my

> gf list, but had fun checking out my old

favorites.

Trader Joe's has a great list of their gluten free

products that

they'll give you. They also mark everything

in the store that is

gluten free with a gluten free sticker on the

price sign. At least

that's the way the one in Tyngsborough is.

They even give out lists

of other stores in Nashua (with addresses and phone numbers)

that

sell gluten free foods. Talk about service.

> DS has had a tummy ache for a couple of

days. I'm thinking it

> might be dairy, which I've suspected all

along. I got some

> shredded soy cheese and some lo-fat tofu. In

a little while, I'm

> going to adapt a favorite cheese ball recipe

to be dairy free. We

> love to smear cheese on celery sticks these

days. If it works,

> I'll post it!

Beware soy cheeses. Many have casein.

The others are usually

gross. I stick to Tofutti slices and Follow

Your Heart blocks of

cheese.

Trudy in NH

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I want your Dr. He sounds really on top of things!

>

>

> I noticed that they use Prometheus labs for the celiac testing and he

> requested every single test on it including gene. They're also doing a

> fairly extensive nutrients panel-I can't even remember all of them, but will

> get a copy.

>

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Never mind—it’s a gross

concoction! Yuck.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Laurie Bilyeu

Sent: Monday, March 13, 2006 1:54

PM

To: SillyYaks

Subject: RE: Re:

gluten challenge

I’m not wild about soy cheese

either—the shredded blend I bought tastes ok. I just blended it up, but

won’t taste it until the flavors blend.

Actually, ds might be soy sensitive also,

so this is another kind of test also….

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of clanmcculloch

Sent: Monday, March 13, 2006 1:33

PM

To: SillyYaks

Subject: Re: gluten

challenge

> Stopped at Trader Joes

on the way home (it's on the way into

> Boston-I

don't get to go there very often). Naturally, I forgot my

> gf list, but had fun checking out my old

favorites.

Trader Joe's has a great list of their gluten free

products that

they'll give you. They also mark everything

in the store that is

gluten free with a gluten free sticker on the

price sign. At least

that's the way the one in Tyngsborough is.

They even give out lists

of other stores in Nashua (with addresses and phone numbers)

that

sell gluten free foods. Talk about service.

> DS has had a tummy ache for a couple of

days. I'm thinking it

> might be dairy, which I've suspected all

along. I got some

> shredded soy cheese and some lo-fat tofu. In

a little while, I'm

> going to adapt a favorite cheese ball recipe

to be dairy free. We

> love to smear cheese on celery sticks these

days. If it works,

> I'll post it!

Beware soy cheeses. Many have casein.

The others are usually

gross. I stick to Tofutti slices and Follow

Your Heart blocks of

cheese.

Trudy in NH

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I think he is on top of it! He’s at

the Celiac center in Boston’s

Beth Israel hospital—it makes sense that a doctor would be more thorough

in a place where they must see every kind of manifestation of Celiac. He seems

to believe also that gluten intolerance without villi damage is probably just a

“pre-celiac” condition. He said today that based on the changes in

my health on the challenge (glad I kept the diary) he would support a gluten

free diet even if the tests are ambiguous or negative.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Jen

Sent: Monday, March 13, 2006 2:25

PM

To: SillyYaks

Subject: Re: gluten

challenge

I want your Dr. He

sounds really on top of things!

>

>

> I noticed that they use Prometheus labs for

the celiac testing and he

> requested every single test on it including

gene. They're also doing a

> fairly extensive nutrients panel-I can't even

remember all of them, but will

> get a copy.

>

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Guest guest

>

> > Stopped at Trader Joes on the way home (it's on the way into

> > Boston-I don't get to go there very often). Naturally, I forgot my

> > gf list, but had fun checking out my old favorites.

>

> Trader Joe's has a great list of their gluten free products that

> they'll give you. They also mark everything in the store that is

> gluten free with a gluten free sticker on the price sign.

(snip)

> Trudy in NH

>

As was just discussed in this group recently, Trader Joe's GF list is

NOT ACCURATE - one of their mistakes made me sick for weeks. Check and

double check their labels - their GF lists in the past have included

things that clearly list wheat or barley on the labels.

Also, as for marking the things that are GF on the price signs - that

must be store specific, because I've never seen it in California,

Oregon or Virginia when I've been in TJ's stores.

Maureen

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Have you tried mixing your favorite herbs and spices in with some

Tofutti cream cheese? If you make it into a ball, you can roll it

in some crushed nuts to make it like a cheese ball you'd buy in a

store (would work better if refredgerated again for a couple hours

after mixing before rolling in nuts). You can also add some Follow

Your Heart cheddar (shredded) for another flavor.

Trudy in NH

>

> Never mind-it's a gross concoction! Yuck.

>

>

>

> Laurie

>

> lbilyeu@...

>

> _____

>

> From: SillyYaks [mailto:SillyYaks ]

On Behalf

> Of Laurie Bilyeu

> Sent: Monday, March 13, 2006 1:54 PM

> To: SillyYaks

> Subject: RE: Re: gluten challenge

>

>

>

> I'm not wild about soy cheese either-the shredded blend I bought

tastes ok.

> I just blended it up, but won't taste it until the flavors blend.

>

>

>

> Actually, ds might be soy sensitive also, so this is another kind

of test

> also..

>

>

>

> Laurie

>

> lbilyeu@...

>

> _____

>

> From: SillyYaks [mailto:SillyYaks ]

On Behalf

> Of clanmcculloch

> Sent: Monday, March 13, 2006 1:33 PM

> To: SillyYaks

> Subject: Re: gluten challenge

>

>

>

> > Stopped at Trader Joes on the way home (it's on the way into

> > Boston-I don't get to go there very often). Naturally, I forgot

my

> > gf list, but had fun checking out my old favorites.

>

> Trader Joe's has a great list of their gluten free products that

> they'll give you. They also mark everything in the store that is

> gluten free with a gluten free sticker on the price sign. At

least

> that's the way the one in Tyngsborough is. They even give out

lists

> of other stores in Nashua (with addresses and phone numbers) that

> sell gluten free foods. Talk about service.

>

> > DS has had a tummy ache for a couple of days. I'm thinking it

> > might be dairy, which I've suspected all along. I got some

> > shredded soy cheese and some lo-fat tofu. In a little while, I'm

> > going to adapt a favorite cheese ball recipe to be dairy free.

We

> > love to smear cheese on celery sticks these days. If it works,

> > I'll post it!

>

> Beware soy cheeses. Many have casein. The others are usually

> gross. I stick to Tofutti slices and Follow Your Heart blocks of

> cheese.

>

> Trudy in NH

>

>

>

>

>

>

>

>

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Guest guest

What a great idea! :D

>

> Have you tried mixing your favorite herbs and spices in with some

> Tofutti cream cheese? If you make it into a ball, you can roll it

> in some crushed nuts to make it like a cheese ball you'd buy in a

> store (would work better if refredgerated again for a couple hours

> after mixing before rolling in nuts). You can also add some Follow

> Your Heart cheddar (shredded) for another flavor.

>

> Trudy in NH

>

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Guest guest

> As was just discussed in this group recently, Trader Joe's GF list

> is NOT ACCURATE - one of their mistakes made me sick for weeks.

> Check and double check their labels - their GF lists in the past

> have included things that clearly list wheat or barley on the labels.

>

> Also, as for marking the things that are GF on the price signs - that

> must be store specific, because I've never seen it in California,

> Oregon or Virginia when I've been in TJ's stores.

>

> Maureen

Thanks for pointing that out. I've been off the list for a while and

only just returned so I hadn't seen that thread. I'll admit that even

with the gluten free list and signs I still check products that I've

never tried before. The signs must be a local thing. I don't know.

I love that they do it, but I've also noticed that there are

discrepancies between the signs and the list as well. I use it mostly

for when I'm kind of browsing around to see what's out that that I may

want to try. Again, I read the labels still at all stores.

Trudy in NH

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Doing the happy dancing here for you, congratulations.....

good luck Wednesday, the end of the tunnel is almost here for

you :)

Angie

>

> Happy dancing. I just returned from the gastroenterologist-my

endoscopy is

> scheduled for WEDNESDAY! I thought I'd have to poison myself for

another 2

> weeks! They also sucked out EIGHT vials of blood for testing!

Fortunately,

> bloods draws don't phase me.

>

>

>

> I noticed that they use Prometheus labs for the celiac testing and he

> requested every single test on it including gene. They're also doing a

> fairly extensive nutrients panel-I can't even remember all of them,

but will

> get a copy.

>

>

>

> Now I just have to find a responsible adult available to drive me

home on

> such notice. It's the " responsible " part that's really hard. :-)

>

>

>

> Stopped at Trader Joes on the way home (it's on the way into

Boston-I don't

> get to go there very often). Naturally, I forgot my gf list, but had fun

> checking out my old favorites. DS has had a tummy ache for a couple

of days.

> I'm thinking it might be dairy, which I've suspected all along. I

got some

> shredded soy cheese and some lo-fat tofu. In a little while, I'm

going to

> adapt a favorite cheese ball recipe to be dairy free. We love to smear

> cheese on celery sticks these days. If it works, I'll post it!

>

>

>

> Laurie

>

> lbilyeu@...

>

> _____

>

> _____

>

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Guest guest

That would definitely work better! A cheese

ball needs that sweeter cream cheese flavor and consistency. I haven’t

tried Follow Your Heart stuff—I’ll be looking carefully at such

ideas if we get a real dairy intolerance reading when tests come back.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of clanmcculloch

Sent: Monday, March 13, 2006 3:24

PM

To: SillyYaks

Subject: Re: gluten

challenge

Have you tried mixing your

favorite herbs and spices in with some

Tofutti cream cheese? If you make it into a

ball, you can roll it

in some crushed nuts to make it like a cheese ball

you'd buy in a

store (would work better if refredgerated again

for a couple hours

after mixing before rolling in nuts). You

can also add some Follow

Your Heart cheddar (shredded) for another flavor.

Trudy in NH

>

> Never mind-it's a gross concoction! Yuck.

>

>

>

> Laurie

>

> lbilyeu@...

>

> _____

>

> From: SillyYaks

[mailto:SillyYaks ]

On Behalf

> Of Laurie Bilyeu

> Sent: Monday, March 13, 2006 1:54 PM

> To: SillyYaks

> Subject: RE: Re: gluten challenge

>

>

>

> I'm not wild about soy cheese either-the

shredded blend I bought

tastes ok.

> I just blended it up, but won't taste it

until the flavors blend.

>

>

>

> Actually, ds might be soy sensitive also, so

this is another kind

of test

> also..

>

>

>

> Laurie

>

> lbilyeu@...

>

> _____

>

> From: SillyYaks

[mailto:SillyYaks ]

On Behalf

> Of clanmcculloch

> Sent: Monday, March 13, 2006 1:33 PM

> To: SillyYaks

> Subject: Re: gluten challenge

>

>

>

> > Stopped at Trader Joes on the way home

(it's on the way into

> > Boston-I

don't get to go there very often). Naturally, I forgot

my

> > gf list, but had fun checking out my old

favorites.

>

> Trader Joe's has a great list of their gluten

free products that

> they'll give you. They also mark

everything in the store that is

> gluten free with a gluten free sticker on the

price sign. At

least

> that's the way the one in Tyngsborough

is. They even give out

lists

> of other stores in Nashua (with addresses and phone numbers)

that

> sell gluten free foods. Talk about

service.

>

> > DS has had a tummy ache for a couple of

days. I'm thinking it

> > might be dairy, which I've suspected all

along. I got some

> > shredded soy cheese and some lo-fat

tofu. In a little while, I'm

> > going to adapt a favorite cheese ball

recipe to be dairy free.

We

> > love to smear cheese on celery sticks

these days. If it works,

> > I'll post it!

>

> Beware soy cheeses. Many have

casein. The others are usually

> gross. I stick to Tofutti slices and

Follow Your Heart blocks of

> cheese.

>

> Trudy in NH

>

>

>

>

>

>

>

>

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I did catch that warning before, but

thanks for the reminder. I’ve been shopping at Trader Joes for 20 years—I

think they’re fabulous with their own unique flaws. I wouldn’t

trust any list from any grocery store blindly. I should have asked them for a

print out in the store today…but being there without the list I’d

printed out (and my own actual and carefully prepared shopping list) I looked

at that long aisle of frozen food and knew I’d never find many of the gf

options on my own.

West Coast TJ shoppers will be amused to

hear that in Massachusetts Trader Joe’s is only about food. Their cool

selection of beer and wine are only available in 3 stores! MA still has odd,

restrictive liquor license laws. I don’t remember that those three stores

carry spirits at all.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of marcianar

Sent: Monday, March 13, 2006 3:21

PM

To: SillyYaks

Subject: Re: gluten

challenge

>

> > Stopped at Trader Joes on the way home

(it's on the way into

> > Boston-I

don't get to go there very often). Naturally, I forgot my

> > gf list, but had fun checking out my old

favorites.

>

> Trader Joe's has a great list of their gluten

free products that

> they'll give you. They also mark

everything in the store that is

> gluten free with a gluten free sticker on the

price sign.

(snip)

> Trudy in NH

>

As was just discussed in this group recently,

Trader Joe's GF list is

NOT ACCURATE - one of their mistakes made me sick

for weeks. Check and

double check their labels - their GF lists in the

past have included

things that clearly list wheat or barley on the

labels.

Also, as for marking the things that are GF on the

price signs - that

must be store specific, because I've never seen it

in California,

Oregon or Virginia

when I've been in TJ's stores.

Maureen

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Guest guest

I want your Dr. too!!!!!!!!!!!!!!!! I am so glad that your challenge is almost over. I had my endoscopy last week and I am waiting for the results. It sounded like everything looked good, so I am just waiting for the biopsy results. I wonder if you can have a positive biopsy without any obvious damage. My Dr. said that the results take two weeks which seems like a long time. I think that Angie got her results back in just several days. My Dr. doesn't want to do any further testing, but I think I may push for more blood work. It sounds like you have had so many more tests than I have and I just want to make sure that my testing is complete. My $450 Dr. was so much more thorough and interested. I haven't been online much as I am having a hard time keeping up with all my emails. Between work and dealing with aging parents, I just don't have a lot of time to keep up with leisure activities. This

group is so informative, but I feel like I am missing out of so much lately. Anyway, best of luck on Wednesday! I am looking forward to your update. ArleneLaurie Bilyeu wrote: I think he is on top of it! He’s at the Celiac center in Boston’s Beth Israel hospital—it makes sense that a doctor would be more thorough in a place where they must see every kind of manifestation of Celiac. He seems to believe also that gluten intolerance without villi damage is probably

just a “pre-celiac” condition. He said today that based on the changes in my health on the challenge (glad I kept the diary) he would support a gluten free diet even if the tests are ambiguous or negative. Laurie lbilyeu@... From: SillyYaks [mailto:SillyYaks ] On Behalf Of JenSent: Monday, March 13, 2006 2:25 PMTo: SillyYaks Subject: Re: gluten challenge I want your Dr. He sounds really on top of things!> > > I noticed that they use Prometheus labs for the celiac testing and he> requested every single test on it including gene. They're also doing a> fairly extensive nutrients panel-I can't even remember all of them, but will> get a copy.>

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Thanks all! A good friend is driving in

from Western MA to accompany me—an even

better friend than I thought! I have a lovely GF steak and pilaf and spinach

salad staged for the celebration. (Please tell me I’ll feel like eating?)

I’m scheduled for 1:30, so I’ll be awfully hungry after fasting

from now til then.

Did you really ask if you could go back to

sleep? How funny. It’s pretty good drugs, that conscious sedation stuff.

The last time I had it was for foot surgery. I left the hospital still loopy

and trying to deal with crutches. I must have been a real sight.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of LaURi* C

Sent: Tuesday, March 14, 2006 9:49

PM

To: SillyYaks

Subject: Re: gluten

challenge

OOH good luck tmmrw! I had

mine today and let me just say that whole

bog 20 mins i was out was THE best sleep i have

ever had! When the

nurse woke me up i asked if i could go back to

sleep! but no avail.

> >

> > Happy dancing. I just returned from the

gastroenterologist-my

> endoscopy is

> > scheduled for WEDNESDAY! I thought I'd

have to poison myself for

> another 2

> > weeks! They also sucked out EIGHT vials

of blood for testing!

> Fortunately,

> > bloods draws don't phase me.

> >

> >

> >

> > I noticed that they use Prometheus labs

for the celiac testing

and he

> > requested every single test on it

including gene. They're also

doing a

> > fairly extensive nutrients panel-I can't

even remember all of

them,

> but will

> > get a copy.

> >

> >

> >

> > Now I just have to find a responsible

adult available to drive me

> home on

> > such notice. It's the

" responsible " part that's really hard. :-)

> >

> >

> >

> > Stopped at Trader Joes on the way home

(it's on the way into

> Boston-I

don't

> > get to go there very often). Naturally,

I forgot my gf list, but

had fun

> > checking out my old favorites. DS has

had a tummy ache for a

couple

> of days.

> > I'm thinking it might be dairy, which

I've suspected all along. I

> got some

> > shredded soy cheese and some lo-fat

tofu. In a little while, I'm

> going to

> > adapt a favorite cheese ball recipe to

be dairy free. We love to

smear

> > cheese on celery sticks these days. If

it works, I'll post it!

> >

> >

> >

> > Laurie

> >

> > <mailto:lbilyeu@> lbilyeu@

> >

> > _____

> >

> > _____

> >

>

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Back and all done with endoscopy! It was a

simple procedure, really. I just have a little sore throat. I also have a cold—it

snuck up on me in the night so I didn’t sleep much. Just went to sleep

even faster on the table.

So, he told me today that the ttg and iga

bloodtests came back normal! Maybe I really had it cleared out of my system (I

had an elevated IgA before going gluten free then gluten challenge)

He thought the lining of the intestine

looked normal, but I have inflammation in the lining of the stomach! Anyone

have any thoughts about that? He wants me to take Prilosec for 8 weeks and stay

on gluten for the first week to see if the gluten or the Prilosec cures what

gastro symptoms I have. I’m too foggy to figure this out this evening.

I had a granola bar on the way home and

just ate some pasta salad. I think we’ll postpone the steak dinner

though.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Jen

Sent: Wednesday, March 15, 2006

12:20 PM

To: SillyYaks

Subject: Re: gluten

challenge

What a great friend!

You will probably be very hungry. I insisted

we eat right after. Of course, my sister didn't

complain, I also insisted on paying ;-)

>

> Thanks all! A good friend is driving in from Western MA to accompany me-an

> even better friend than I thought! I have a

lovely GF steak and pilaf and

> spinach salad staged for the celebration.

(Please tell me I'll feel like

> eating?) I'm scheduled for 1:30, so I'll be

awfully hungry after fasting

> from now til then.

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How odd! I my paper says that i had inflamtaion in the stomach too.

I didnt get meds, but i did read that it can be caused by stress,

too much alcohol and about a million other things. I belive (and i

could have been too groggy to undertsnad) that he said my intestines

were inflammed, but he did say to follow a GF diet so we'll see in 2

days, or unless my mom can interecept the results from my md (where

she works) first.

-- In SillyYaks , " Laurie Bilyeu " wrote:

>

> Back and all done with endoscopy! It was a simple procedure,

really. I just

> have a little sore throat. I also have a cold-it snuck up on me in

the night

> so I didn't sleep much. Just went to sleep even faster on the

table.

>

>

>

> So, he told me today that the ttg and iga bloodtests came back

normal! Maybe

> I really had it cleared out of my system (I had an elevated IgA

before going

> gluten free then gluten challenge)

>

>

>

> He thought the lining of the intestine looked normal, but I have

> inflammation in the lining of the stomach! Anyone have any

thoughts about

> that? He wants me to take Prilosec for 8 weeks and stay on gluten

for the

> first week to see if the gluten or the Prilosec cures what gastro

symptoms I

> have. I'm too foggy to figure this out this evening.

>

>

>

> I had a granola bar on the way home and just ate some pasta salad.

I think

> we'll postpone the steak dinner though.

>

>

>

> Laurie

>

> lbilyeu@...

>

> _____

>

> From: SillyYaks [mailto:SillyYaks ]

On Behalf

> Of Jen

> Sent: Wednesday, March 15, 2006 12:20 PM

> To: SillyYaks

> Subject: Re: gluten challenge

>

>

>

> What a great friend!

>

> You will probably be very hungry. I insisted we eat right after.

Of

> course, my sister didn't

> complain, I also insisted on paying ;-)

>

>

> >

> > Thanks all! A good friend is driving in from Western MA to

accompany me-an

> > even better friend than I thought! I have a lovely GF steak and

pilaf and

> > spinach salad staged for the celebration. (Please tell me I'll

feel like

> > eating?) I'm scheduled for 1:30, so I'll be awfully hungry after

fasting

> > from now til then.

>

>

>

>

>

>

>

>

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