New member

[Guest guest]

> My tsh numbers are on the rise and the docs here don't

> seem to be concerned,,well,,I am concerned. I want to

> find out why it is rising.

If your TSH is on the rise, the most obvious reason is that you are

not taking enough medication to keep it suppressed. Perhaps you

simply need a higher dose of Levothyroxine (Synthroid, Levoxyl,

Unithroid, etc.). Keep in mind that TSH in thyca patients should be

suppressed to <0.1 since TSH is a growth factor in thyroid cancer.

Marilyn

Dx in 1994, papillary w/follicular variant and lung metastases.

Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean

scans 1999, 2000, 2002...the last one using Thyrogen.

[Guest guest]

Hi Pat and welcome~!

How far are you from the Ohio line? I have an excellent Endo in Canton,

OH. I'm thinking this is farther than you might want to travel? :-(Feel free to

write privately if you need/want more information.

Best to you,

--

" ...the joy of the Lord is your strength " .

Nehemiah 8:10b; NIV

Does your ISP pay *you* for referring others?

http://www.ispvip.biz/peace2you

======================

patches19990 said:

> HELLO ! I am new to this group. I am a survivor of

> thyroid cancer dx 2 1/2 yrs ago. I am stil unable to

> locate a " good " endo doc. I have also been dx'd last

> year with type II diabitis. Do any of you know of a

> good endo doc within 100 mi. from Northcentral Pa?

> My tsh numbers are on the rise and the docs here don't

> seem to be concerned,,well,,I am concerned. I want to

> find out why it is rising. I have a family history of

> different thyroid problems. An older sister who was dx'd

> with thyroid cancer about 4 yrs. ago, plus breast cancer

> about 3 yrs. ago and she is also type II diabetic. I would

> appreciate any doctor recommendations. Thank You,,Pat

[Guest guest]

Hi Pat and welcome~!

How far are you from the Ohio line? I have an excellent Endo in Canton,

OH. I'm thinking this is farther than you might want to travel? :-(Feel free to

write privately if you need/want more information.

Best to you,

--

" ...the joy of the Lord is your strength " .

Nehemiah 8:10b; NIV

Does your ISP pay *you* for referring others?

http://www.ispvip.biz/peace2you

======================

patches19990 said:

> HELLO ! I am new to this group. I am a survivor of

> thyroid cancer dx 2 1/2 yrs ago. I am stil unable to

> locate a " good " endo doc. I have also been dx'd last

> year with type II diabitis. Do any of you know of a

> good endo doc within 100 mi. from Northcentral Pa?

> My tsh numbers are on the rise and the docs here don't

> seem to be concerned,,well,,I am concerned. I want to

> find out why it is rising. I have a family history of

> different thyroid problems. An older sister who was dx'd

> with thyroid cancer about 4 yrs. ago, plus breast cancer

> about 3 yrs. ago and she is also type II diabetic. I would

> appreciate any doctor recommendations. Thank You,,Pat

[Guest guest]

Hi Pat and welcome~!

How far are you from the Ohio line? I have an excellent Endo in Canton,

OH. I'm thinking this is farther than you might want to travel? :-(Feel free to

write privately if you need/want more information.

Best to you,

--

" ...the joy of the Lord is your strength " .

Nehemiah 8:10b; NIV

Does your ISP pay *you* for referring others?

http://www.ispvip.biz/peace2you

======================

patches19990 said:

> HELLO ! I am new to this group. I am a survivor of

> thyroid cancer dx 2 1/2 yrs ago. I am stil unable to

> locate a " good " endo doc. I have also been dx'd last

> year with type II diabitis. Do any of you know of a

> good endo doc within 100 mi. from Northcentral Pa?

> My tsh numbers are on the rise and the docs here don't

> seem to be concerned,,well,,I am concerned. I want to

> find out why it is rising. I have a family history of

> different thyroid problems. An older sister who was dx'd

> with thyroid cancer about 4 yrs. ago, plus breast cancer

> about 3 yrs. ago and she is also type II diabetic. I would

> appreciate any doctor recommendations. Thank You,,Pat

[Guest guest]

Hello Marilyn its me Terry, I was reading your answer to another post about

tsh levels. could you please explain to me if your tsh level is 0.002 and

your t4 level is 17.0 and your t3 level is 1.56. What is happening to the

person which is me. I feel awful all the time. and now I have shingles. What

next. Thanks for hearing me out. Terry

Re: New Member

>

>

> > My tsh numbers are on the rise and the docs here don't

> > seem to be concerned,,well,,I am concerned. I want to

> > find out why it is rising.

>

> If your TSH is on the rise, the most obvious reason is that you are

> not taking enough medication to keep it suppressed. Perhaps you

> simply need a higher dose of Levothyroxine (Synthroid, Levoxyl,

> Unithroid, etc.). Keep in mind that TSH in thyca patients should be

> suppressed to <0.1 since TSH is a growth factor in thyroid cancer.

>

> Marilyn

> Dx in 1994, papillary w/follicular variant and lung metastases.

> Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean

> scans 1999, 2000, 2002...the last one using Thyrogen.

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

Hello Marilyn its me Terry, I was reading your answer to another post about

tsh levels. could you please explain to me if your tsh level is 0.002 and

your t4 level is 17.0 and your t3 level is 1.56. What is happening to the

person which is me. I feel awful all the time. and now I have shingles. What

next. Thanks for hearing me out. Terry

Re: New Member

>

>

> > My tsh numbers are on the rise and the docs here don't

> > seem to be concerned,,well,,I am concerned. I want to

> > find out why it is rising.

>

> If your TSH is on the rise, the most obvious reason is that you are

> not taking enough medication to keep it suppressed. Perhaps you

> simply need a higher dose of Levothyroxine (Synthroid, Levoxyl,

> Unithroid, etc.). Keep in mind that TSH in thyca patients should be

> suppressed to <0.1 since TSH is a growth factor in thyroid cancer.

>

> Marilyn

> Dx in 1994, papillary w/follicular variant and lung metastases.

> Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean

> scans 1999, 2000, 2002...the last one using Thyrogen.

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

Hello Marilyn its me Terry, I was reading your answer to another post about

tsh levels. could you please explain to me if your tsh level is 0.002 and

your t4 level is 17.0 and your t3 level is 1.56. What is happening to the

person which is me. I feel awful all the time. and now I have shingles. What

next. Thanks for hearing me out. Terry

Re: New Member

>

>

> > My tsh numbers are on the rise and the docs here don't

> > seem to be concerned,,well,,I am concerned. I want to

> > find out why it is rising.

>

> If your TSH is on the rise, the most obvious reason is that you are

> not taking enough medication to keep it suppressed. Perhaps you

> simply need a higher dose of Levothyroxine (Synthroid, Levoxyl,

> Unithroid, etc.). Keep in mind that TSH in thyca patients should be

> suppressed to <0.1 since TSH is a growth factor in thyroid cancer.

>

> Marilyn

> Dx in 1994, papillary w/follicular variant and lung metastases.

> Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean

> scans 1999, 2000, 2002...the last one using Thyrogen.

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

With a T4 of 17.0 yours is on the high side. Normal T4 values are in

the 4.6-12 ug/dl range.

TSH should be suppressed to <0.1 but with a TSH of 0.002, you are very

suppressed and that may account for your feeling awful. None of this

has anything to do with shingles as far as I know.

Does your Dr. know you are feeling awful? You should discuss this

with him....perhaps a small reduction in the dosage of your

Levothyroxine drug would make you feel better but still be able to

keep your TSH suppressed. Sometimes it is a balancing act to maintain

suppression and still feel good. If you let your Dr. know how you

feel, he might weigh the lab results with the way you are feeling and

maybe make some small changes that will allow you to feel better.

Taking thyroid meds is something we all have to do for the rest of our

lives so it is best if you are on the correct dosage that allows for

your TSH to be suppressed and for you to feel 'normal'. It is not

normal to feel awful.

Marilyn

> >

> > > My tsh numbers are on the rise and the docs here don't

> > > seem to be concerned,,well,,I am concerned. I want to

> > > find out why it is rising.

> >

> > If your TSH is on the rise, the most obvious reason is that you are

> > not taking enough medication to keep it suppressed. Perhaps you

> > simply need a higher dose of Levothyroxine (Synthroid, Levoxyl,

> > Unithroid, etc.). Keep in mind that TSH in thyca patients should be

> > suppressed to <0.1 since TSH is a growth factor in thyroid cancer.

> >

> > Marilyn

> > Dx in 1994, papillary w/follicular variant and lung metastases.

> > Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean

> > scans 1999, 2000, 2002...the last one using Thyrogen.

> >

> >

> >

> > For more information regarding thyroid cancer visit www.thyca.org.

If you

> do not wish to belong to this group, you may UNSUBSCRIBE by sending

a blank

> email to thyca-unsubscribe@y...

> >

> >

> >

[Guest guest]

With a T4 of 17.0 yours is on the high side. Normal T4 values are in

the 4.6-12 ug/dl range.

TSH should be suppressed to <0.1 but with a TSH of 0.002, you are very

suppressed and that may account for your feeling awful. None of this

has anything to do with shingles as far as I know.

Does your Dr. know you are feeling awful? You should discuss this

with him....perhaps a small reduction in the dosage of your

Levothyroxine drug would make you feel better but still be able to

keep your TSH suppressed. Sometimes it is a balancing act to maintain

suppression and still feel good. If you let your Dr. know how you

feel, he might weigh the lab results with the way you are feeling and

maybe make some small changes that will allow you to feel better.

Taking thyroid meds is something we all have to do for the rest of our

lives so it is best if you are on the correct dosage that allows for

your TSH to be suppressed and for you to feel 'normal'. It is not

normal to feel awful.

Marilyn

> >

> > > My tsh numbers are on the rise and the docs here don't

> > > seem to be concerned,,well,,I am concerned. I want to

> > > find out why it is rising.

> >

> > If your TSH is on the rise, the most obvious reason is that you are

> > not taking enough medication to keep it suppressed. Perhaps you

> > simply need a higher dose of Levothyroxine (Synthroid, Levoxyl,

> > Unithroid, etc.). Keep in mind that TSH in thyca patients should be

> > suppressed to <0.1 since TSH is a growth factor in thyroid cancer.

> >

> > Marilyn

> > Dx in 1994, papillary w/follicular variant and lung metastases.

> > Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean

> > scans 1999, 2000, 2002...the last one using Thyrogen.

> >

> >

> >

> > For more information regarding thyroid cancer visit www.thyca.org.

If you

> do not wish to belong to this group, you may UNSUBSCRIBE by sending

a blank

> email to thyca-unsubscribe@y...

> >

> >

> >

[Guest guest]

With a T4 of 17.0 yours is on the high side. Normal T4 values are in

the 4.6-12 ug/dl range.

TSH should be suppressed to <0.1 but with a TSH of 0.002, you are very

suppressed and that may account for your feeling awful. None of this

has anything to do with shingles as far as I know.

Does your Dr. know you are feeling awful? You should discuss this

with him....perhaps a small reduction in the dosage of your

Levothyroxine drug would make you feel better but still be able to

keep your TSH suppressed. Sometimes it is a balancing act to maintain

suppression and still feel good. If you let your Dr. know how you

feel, he might weigh the lab results with the way you are feeling and

maybe make some small changes that will allow you to feel better.

Taking thyroid meds is something we all have to do for the rest of our

lives so it is best if you are on the correct dosage that allows for

your TSH to be suppressed and for you to feel 'normal'. It is not

normal to feel awful.

Marilyn

> >

> > > My tsh numbers are on the rise and the docs here don't

> > > seem to be concerned,,well,,I am concerned. I want to

> > > find out why it is rising.

> >

> > If your TSH is on the rise, the most obvious reason is that you are

> > not taking enough medication to keep it suppressed. Perhaps you

> > simply need a higher dose of Levothyroxine (Synthroid, Levoxyl,

> > Unithroid, etc.). Keep in mind that TSH in thyca patients should be

> > suppressed to <0.1 since TSH is a growth factor in thyroid cancer.

> >

> > Marilyn

> > Dx in 1994, papillary w/follicular variant and lung metastases.

> > Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean

> > scans 1999, 2000, 2002...the last one using Thyrogen.

> >

> >

> >

> > For more information regarding thyroid cancer visit www.thyca.org.

If you

> do not wish to belong to this group, you may UNSUBSCRIBE by sending

a blank

> email to thyca-unsubscribe@y...

> >

> >

> >

[Guest guest]

Marilyn, They have been changing my dosages every 4 weeks after my routine

blood work. I now am on 112mcg of levoxyl. but only for about a week now. My

endo saids that is not enough for anyone. but he said he rather me have not

enough than to much. Do you think that is right? I guess I will find out

when my next blood test is taken. Terry

Re: New Member

> With a T4 of 17.0 yours is on the high side. Normal T4 values are in

> the 4.6-12 ug/dl range.

>

> TSH should be suppressed to <0.1 but with a TSH of 0.002, you are very

> suppressed and that may account for your feeling awful. None of this

> has anything to do with shingles as far as I know.

>

> Does your Dr. know you are feeling awful? You should discuss this

> with him....perhaps a small reduction in the dosage of your

> Levothyroxine drug would make you feel better but still be able to

> keep your TSH suppressed. Sometimes it is a balancing act to maintain

> suppression and still feel good. If you let your Dr. know how you

> feel, he might weigh the lab results with the way you are feeling and

> maybe make some small changes that will allow you to feel better.

>

> Taking thyroid meds is something we all have to do for the rest of our

> lives so it is best if you are on the correct dosage that allows for

> your TSH to be suppressed and for you to feel 'normal'. It is not

> normal to feel awful.

>

> Marilyn

>

>

>

>

>

> > >

> > > > My tsh numbers are on the rise and the docs here don't

> > > > seem to be concerned,,well,,I am concerned. I want to

> > > > find out why it is rising.

> > >

> > > If your TSH is on the rise, the most obvious reason is that you are

> > > not taking enough medication to keep it suppressed. Perhaps you

> > > simply need a higher dose of Levothyroxine (Synthroid, Levoxyl,

> > > Unithroid, etc.). Keep in mind that TSH in thyca patients should be

> > > suppressed to <0.1 since TSH is a growth factor in thyroid cancer.

> > >

> > > Marilyn

> > > Dx in 1994, papillary w/follicular variant and lung metastases.

> > > Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean

> > > scans 1999, 2000, 2002...the last one using Thyrogen.

> > >

> > >

> > >

> > > For more information regarding thyroid cancer visit www.thyca.org.

> If you

> > do not wish to belong to this group, you may UNSUBSCRIBE by sending

> a blank

> > email to thyca-unsubscribe@y...

> > >

> > >

> > >

[Guest guest]

New Member

> My tsh numbers are on the rise and the docs here don't seem to be

concerned,,well,,I am concerned.

>

How much of a rise are you talking about, over what time period?

And why don't the doctors seem concerned -- they should give you a good

reason -- even if you don't agree with it, they should HAVE a reason they

can articulate.

I'm also T2 diabetic. How are you doing with bg control?

bj

[Guest guest]

New Member

> My tsh numbers are on the rise and the docs here don't seem to be

concerned,,well,,I am concerned.

>

How much of a rise are you talking about, over what time period?

And why don't the doctors seem concerned -- they should give you a good

reason -- even if you don't agree with it, they should HAVE a reason they

can articulate.

I'm also T2 diabetic. How are you doing with bg control?

bj

[Guest guest]

> Marilyn, They have been changing my dosages every 4 weeks after my

> routine blood work. I now am on 112mcg of levoxyl. but only for

> about a week now. My endo saids that is not enough for anyone. but

> he said he rather me have not enough than to much. Do you think that

> is right? I guess I will find out when my next blood test is taken.

> Terry

Terry -

4 weeks is too frequent a time to be changing your doses. It takes

6-8 weeks for the levels of T4 to adjust, so that's how often they

should check your blood levels.

I'm a bit surprised at the " by guess or by golly " approach being used.

After my first post RAI blood test, taking 150mcg of levoxyl, my

TSH was great, but my free T4 levels were a tiny bit higher than my

endo wanted. He took out a calculator and did some calculations to

determine what to change my levels to, and came up with 140mcg - so I

now take 150mcg every day but Friday, when I take 75mcg. I forget,

what dose WERE you on?

Cheers,

Alisa

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets

Currently - TSH 0.06, 140mcg Levoxyl

Age: 48 Location: near Seattle WA

Please feel free to email me privately anytime

Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

[Guest guest]

> Marilyn, They have been changing my dosages every 4 weeks after my

> routine blood work. I now am on 112mcg of levoxyl. but only for

> about a week now. My endo saids that is not enough for anyone. but

> he said he rather me have not enough than to much. Do you think that

> is right? I guess I will find out when my next blood test is taken.

> Terry

Terry -

4 weeks is too frequent a time to be changing your doses. It takes

6-8 weeks for the levels of T4 to adjust, so that's how often they

should check your blood levels.

I'm a bit surprised at the " by guess or by golly " approach being used.

After my first post RAI blood test, taking 150mcg of levoxyl, my

TSH was great, but my free T4 levels were a tiny bit higher than my

endo wanted. He took out a calculator and did some calculations to

determine what to change my levels to, and came up with 140mcg - so I

now take 150mcg every day but Friday, when I take 75mcg. I forget,

what dose WERE you on?

Cheers,

Alisa

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets

Currently - TSH 0.06, 140mcg Levoxyl

Age: 48 Location: near Seattle WA

Please feel free to email me privately anytime

Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

[Guest guest]

> Marilyn, They have been changing my dosages every 4 weeks after my

> routine blood work. I now am on 112mcg of levoxyl. but only for

> about a week now. My endo saids that is not enough for anyone. but

> he said he rather me have not enough than to much. Do you think that

> is right? I guess I will find out when my next blood test is taken.

> Terry

Terry -

4 weeks is too frequent a time to be changing your doses. It takes

6-8 weeks for the levels of T4 to adjust, so that's how often they

should check your blood levels.

I'm a bit surprised at the " by guess or by golly " approach being used.

After my first post RAI blood test, taking 150mcg of levoxyl, my

TSH was great, but my free T4 levels were a tiny bit higher than my

endo wanted. He took out a calculator and did some calculations to

determine what to change my levels to, and came up with 140mcg - so I

now take 150mcg every day but Friday, when I take 75mcg. I forget,

what dose WERE you on?

Cheers,

Alisa

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets

Currently - TSH 0.06, 140mcg Levoxyl

Age: 48 Location: near Seattle WA

Please feel free to email me privately anytime

Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

[Guest guest]

Alisa, I was on 150mcg for about 8 weeks. I had my blood levels checked and

they were t4-15.0 and tsh-0.008 and t3-1.56. the next time I had blood work

done my t4-17.0 my tsh-0.003 and my t3-1.56. my endo called me at home and

said he would rather lower the dosage to not enough so he did to 112mcg.

which am on for about a week. and I got the shingles the other day. What a

mess. So as you can guess I am not feeling to good. any advice. Terry

Re: New Member

>

> > Marilyn, They have been changing my dosages every 4 weeks after my

> > routine blood work. I now am on 112mcg of levoxyl. but only for

> > about a week now. My endo saids that is not enough for anyone. but

> > he said he rather me have not enough than to much. Do you think that

> > is right? I guess I will find out when my next blood test is taken.

> > Terry

>

> Terry -

>

> 4 weeks is too frequent a time to be changing your doses. It takes

> 6-8 weeks for the levels of T4 to adjust, so that's how often they

> should check your blood levels.

>

> I'm a bit surprised at the " by guess or by golly " approach being used.

> After my first post RAI blood test, taking 150mcg of levoxyl, my

> TSH was great, but my free T4 levels were a tiny bit higher than my

> endo wanted. He took out a calculator and did some calculations to

> determine what to change my levels to, and came up with 140mcg - so I

> now take 150mcg every day but Friday, when I take 75mcg. I forget,

> what dose WERE you on?

>

> Cheers,

> Alisa

>

> 2/15/2002: Nodule found 2/27/2002: FNA

> 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

> 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

> 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets

> Currently - TSH 0.06, 140mcg Levoxyl

> Age: 48 Location: near Seattle WA

> Please feel free to email me privately anytime

> Check out my posts:

> Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

> My LID - http://groups.yahoo.com/group/Thyca/message/15872

> My RAI - http://groups.yahoo.com/group/Thyca/message/15873

>

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

Alisa, I was on 150mcg for about 8 weeks. I had my blood levels checked and

they were t4-15.0 and tsh-0.008 and t3-1.56. the next time I had blood work

done my t4-17.0 my tsh-0.003 and my t3-1.56. my endo called me at home and

said he would rather lower the dosage to not enough so he did to 112mcg.

which am on for about a week. and I got the shingles the other day. What a

mess. So as you can guess I am not feeling to good. any advice. Terry

Re: New Member

>

> > Marilyn, They have been changing my dosages every 4 weeks after my

> > routine blood work. I now am on 112mcg of levoxyl. but only for

> > about a week now. My endo saids that is not enough for anyone. but

> > he said he rather me have not enough than to much. Do you think that

> > is right? I guess I will find out when my next blood test is taken.

> > Terry

>

> Terry -

>

> 4 weeks is too frequent a time to be changing your doses. It takes

> 6-8 weeks for the levels of T4 to adjust, so that's how often they

> should check your blood levels.

>

> I'm a bit surprised at the " by guess or by golly " approach being used.

> After my first post RAI blood test, taking 150mcg of levoxyl, my

> TSH was great, but my free T4 levels were a tiny bit higher than my

> endo wanted. He took out a calculator and did some calculations to

> determine what to change my levels to, and came up with 140mcg - so I

> now take 150mcg every day but Friday, when I take 75mcg. I forget,

> what dose WERE you on?

>

> Cheers,

> Alisa

>

> 2/15/2002: Nodule found 2/27/2002: FNA

> 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

> 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

> 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets

> Currently - TSH 0.06, 140mcg Levoxyl

> Age: 48 Location: near Seattle WA

> Please feel free to email me privately anytime

> Check out my posts:

> Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

> My LID - http://groups.yahoo.com/group/Thyca/message/15872

> My RAI - http://groups.yahoo.com/group/Thyca/message/15873

>

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

Alisa, I was on 150mcg for about 8 weeks. I had my blood levels checked and

they were t4-15.0 and tsh-0.008 and t3-1.56. the next time I had blood work

done my t4-17.0 my tsh-0.003 and my t3-1.56. my endo called me at home and

said he would rather lower the dosage to not enough so he did to 112mcg.

which am on for about a week. and I got the shingles the other day. What a

mess. So as you can guess I am not feeling to good. any advice. Terry

Re: New Member

>

> > Marilyn, They have been changing my dosages every 4 weeks after my

> > routine blood work. I now am on 112mcg of levoxyl. but only for

> > about a week now. My endo saids that is not enough for anyone. but

> > he said he rather me have not enough than to much. Do you think that

> > is right? I guess I will find out when my next blood test is taken.

> > Terry

>

> Terry -

>

> 4 weeks is too frequent a time to be changing your doses. It takes

> 6-8 weeks for the levels of T4 to adjust, so that's how often they

> should check your blood levels.

>

> I'm a bit surprised at the " by guess or by golly " approach being used.

> After my first post RAI blood test, taking 150mcg of levoxyl, my

> TSH was great, but my free T4 levels were a tiny bit higher than my

> endo wanted. He took out a calculator and did some calculations to

> determine what to change my levels to, and came up with 140mcg - so I

> now take 150mcg every day but Friday, when I take 75mcg. I forget,

> what dose WERE you on?

>

> Cheers,

> Alisa

>

> 2/15/2002: Nodule found 2/27/2002: FNA

> 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

> 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

> 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets

> Currently - TSH 0.06, 140mcg Levoxyl

> Age: 48 Location: near Seattle WA

> Please feel free to email me privately anytime

> Check out my posts:

> Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

> My LID - http://groups.yahoo.com/group/Thyca/message/15872

> My RAI - http://groups.yahoo.com/group/Thyca/message/15873

>

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

> I now am on 112mcg of levoxyl. but only for about a week now. My

> endo saids that is not enough for anyone.

Terry,

Your Endo's statement is incorrect.

..112 is the perfect dose for some people! In fact with me, I am suppressed

nicely at a .100 and .112 on alternating days. (.112 daily makes me hyper,

..100 doesn't keep me in suppression range)

> but he said he rather me have not

> enough than to much. Do you think that is right?

This part I agree with, since it's miserable to be sent hypo ->hyper ->hypo,

as you are getting adjusted. It can wreck havoc on your emotional and

physical state just at the point when you were planning on feeling better

again!

-Myke

[Guest guest]

> I now am on 112mcg of levoxyl. but only for about a week now. My

> endo saids that is not enough for anyone.

Terry,

Your Endo's statement is incorrect.

..112 is the perfect dose for some people! In fact with me, I am suppressed

nicely at a .100 and .112 on alternating days. (.112 daily makes me hyper,

..100 doesn't keep me in suppression range)

> but he said he rather me have not

> enough than to much. Do you think that is right?

This part I agree with, since it's miserable to be sent hypo ->hyper ->hypo,

as you are getting adjusted. It can wreck havoc on your emotional and

physical state just at the point when you were planning on feeling better

again!

-Myke

[Guest guest]

Myke, I am hoping I start to feel better on 112mcg of levoxyl. I think it is

to soon to tell yet.But why is everyone concerned with my tsh being 0.002.

My t4 keeps rising tho. it is now 17.0. Well maybe I will be like you and be

ok on 112mcg. I'm keeping my fingers crossed. Terry

Re: Re: New Member

> > I now am on 112mcg of levoxyl. but only for about a week now. My

> > endo saids that is not enough for anyone.

>

> Terry,

>

> Your Endo's statement is incorrect.

> .112 is the perfect dose for some people! In fact with me, I am suppressed

> nicely at a .100 and .112 on alternating days. (.112 daily makes me hyper,

> .100 doesn't keep me in suppression range)

>

> > but he said he rather me have not

> > enough than to much. Do you think that is right?

>

> This part I agree with, since it's miserable to be sent

hypo ->hyper ->hypo,

> as you are getting adjusted. It can wreck havoc on your emotional and

> physical state just at the point when you were planning on feeling better

> again!

>

> -Myke

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

Hi, Robin, and welcome.

There are a few men around your husband's age who are members of this

group; hopefully they can add a more personalized perspective.

For most of us, the last weeks off meds before a scan are the most

difficult part of the whole process. Your husband is lucky to have you be

there to advocate.

It's hard to explain what the process feels like, but they don't call it

hypo hell for nothing :-)

(as an aside, I am happy to remind everyone that it's not hellish for all).

Severe PMS and very low blood sugar are comparisons that come to mind.

It doesn't really help, but try to remind your husband (and yourself) that

what he is experiencing is not only normal, but physiological; that little

thyroid gland rules an awful lot, and without it, our entire systems are

awry.

Depression is one of the major symptoms of severe hypothyroidism; in

fact, psychiatric disturbances accompanying hypothyroidism far milder

than what we experience off meds, mimic mental illness so well that thyroid

function tests are always done before hospitalization for mental illness.

I suspect that in the back of both your minds is the concern of what this

upcoming scan will show, which certainly exacerbates all the other very

real symptoms.

As you are tending to your husband, remember to take care of yourself. If

that makes you feel guilty, remember that it will make you a better care

giver :-)

Good luck to you both, and feel free to vent here if and whenever you feel

the need.

-

NYC

TT 2/99 dx pap/foll; RAI 100 mCi 3/99 & 4/00; clean scan 3/02;

current TSH ~.06 on .225 levothyroxine

PS - you may want to peruse the LID recipe index (over 100 recipes posted

by list members) .... http://groups.yahoo.com/group/Thyca/message/21242

Robin Hartman wrote:

>

> Hello all,

>

> I am a little different member of this group, my husband is the Thyca

> Survivor. He was diagnosed last year (age 39) with Papillary Thyca. He

> had a complete thyroidectomy and underwent RAI treatment. He has gone

> through alot to get his levels correct and is on a very high dose of

> Synthroid. Now here we go again with the LID to check the thyroglobulin

> level to see if scan is necessary and further to see if additional

> treatment is necessary. Not a week has gone by on his Cytomel and he is

> already feeling bad. I have a bit more information on the LID this time

> and that is helping some. I am not looking forward to two weeks of no

> medication and I know he is dreading it. He is generally a very positive

> person but this has just knocked him down. I am trying to be supportive

> but am sometimes lost. I don't want him to see me upset for him so I am

> keeping alot inside too.

>

> Kudos to all of you that keep your households running, take care of kids

> and work outside the home with this disease. May you continue to find

> the strength to persevere.

>

> Robin

>

[Guest guest]

Hi, Robin, and welcome.

There are a few men around your husband's age who are members of this

group; hopefully they can add a more personalized perspective.

For most of us, the last weeks off meds before a scan are the most

difficult part of the whole process. Your husband is lucky to have you be

there to advocate.

It's hard to explain what the process feels like, but they don't call it

hypo hell for nothing :-)

(as an aside, I am happy to remind everyone that it's not hellish for all).

Severe PMS and very low blood sugar are comparisons that come to mind.

It doesn't really help, but try to remind your husband (and yourself) that

what he is experiencing is not only normal, but physiological; that little

thyroid gland rules an awful lot, and without it, our entire systems are

awry.

Depression is one of the major symptoms of severe hypothyroidism; in

fact, psychiatric disturbances accompanying hypothyroidism far milder

than what we experience off meds, mimic mental illness so well that thyroid

function tests are always done before hospitalization for mental illness.

I suspect that in the back of both your minds is the concern of what this

upcoming scan will show, which certainly exacerbates all the other very

real symptoms.

As you are tending to your husband, remember to take care of yourself. If

that makes you feel guilty, remember that it will make you a better care

giver :-)

Good luck to you both, and feel free to vent here if and whenever you feel

the need.

-

NYC

TT 2/99 dx pap/foll; RAI 100 mCi 3/99 & 4/00; clean scan 3/02;

current TSH ~.06 on .225 levothyroxine

PS - you may want to peruse the LID recipe index (over 100 recipes posted

by list members) .... http://groups.yahoo.com/group/Thyca/message/21242

Robin Hartman wrote:

>

> Hello all,

>

> I am a little different member of this group, my husband is the Thyca

> Survivor. He was diagnosed last year (age 39) with Papillary Thyca. He

> had a complete thyroidectomy and underwent RAI treatment. He has gone

> through alot to get his levels correct and is on a very high dose of

> Synthroid. Now here we go again with the LID to check the thyroglobulin

> level to see if scan is necessary and further to see if additional

> treatment is necessary. Not a week has gone by on his Cytomel and he is

> already feeling bad. I have a bit more information on the LID this time

> and that is helping some. I am not looking forward to two weeks of no

> medication and I know he is dreading it. He is generally a very positive

> person but this has just knocked him down. I am trying to be supportive

> but am sometimes lost. I don't want him to see me upset for him so I am

> keeping alot inside too.

>

> Kudos to all of you that keep your households running, take care of kids

> and work outside the home with this disease. May you continue to find

> the strength to persevere.

>

> Robin

>

[Guest guest]

Hi Kim,

Welcome to the group. I am sorry you are here, but glad that you

found us. This is a wonderful group-everyone has been very supportive

and informative. Before I found this group I felt very isolated, but

now I have the strength and hope to go forward, one day at a time.

You are so right in that finding an A list doctor is very critical. I

had an operative hysteroscopy in July. The doctor was not on the A

list. The scarring has reformed. As soon as I came home from my hsg I

made an appointment on Oct.18 with an A list doctor.

Good luck with your recovery!

Take care,