New member

[Guest guest]

Welcome Sylvia. What geographic area are you in?

Mel (LEMYNADE@...)

DX Hashimoto's, Graves & follicular neoplasm 2.7 cm 8/2001

with extensive hurtle cells and vascular invasion

TT 11/19/2001 RAI 3/8/2002 100MCI, 7/2002 clean scan

new member

Hello friends,

Just thought I'd introduce myself. I'm an almost

38-year-old friendly newly-single music-loving leftist

vegetarian lesbian quilting beekeeper who has been

diagnosed with what looks like papillary cancer but

could possibly be Hurthle cell cancer. I just had my

right thyroid lobe removed, and the preliminary

diagnosis looks like stage 1 papillary cancer. I will

be meeting w/an endocrinologist next week for a more

in-depth diagnosis, and I assume that I will have to

decide whether to have my other lobe removed and

whether to take hormone replacement therapy and

radioactive iodine. It's been a hell of a year.

ttfn,

Sylvia

__________________________________________________

[Guest guest]

Welcome Sylvia. What geographic area are you in?

Mel (LEMYNADE@...)

DX Hashimoto's, Graves & follicular neoplasm 2.7 cm 8/2001

with extensive hurtle cells and vascular invasion

TT 11/19/2001 RAI 3/8/2002 100MCI, 7/2002 clean scan

new member

Hello friends,

Just thought I'd introduce myself. I'm an almost

38-year-old friendly newly-single music-loving leftist

vegetarian lesbian quilting beekeeper who has been

diagnosed with what looks like papillary cancer but

could possibly be Hurthle cell cancer. I just had my

right thyroid lobe removed, and the preliminary

diagnosis looks like stage 1 papillary cancer. I will

be meeting w/an endocrinologist next week for a more

in-depth diagnosis, and I assume that I will have to

decide whether to have my other lobe removed and

whether to take hormone replacement therapy and

radioactive iodine. It's been a hell of a year.

ttfn,

Sylvia

__________________________________________________

[Guest guest]

Welcome Sylvia. What geographic area are you in?

Mel (LEMYNADE@...)

DX Hashimoto's, Graves & follicular neoplasm 2.7 cm 8/2001

with extensive hurtle cells and vascular invasion

TT 11/19/2001 RAI 3/8/2002 100MCI, 7/2002 clean scan

new member

Hello friends,

Just thought I'd introduce myself. I'm an almost

38-year-old friendly newly-single music-loving leftist

vegetarian lesbian quilting beekeeper who has been

diagnosed with what looks like papillary cancer but

could possibly be Hurthle cell cancer. I just had my

right thyroid lobe removed, and the preliminary

diagnosis looks like stage 1 papillary cancer. I will

be meeting w/an endocrinologist next week for a more

in-depth diagnosis, and I assume that I will have to

decide whether to have my other lobe removed and

whether to take hormone replacement therapy and

radioactive iodine. It's been a hell of a year.

ttfn,

Sylvia

__________________________________________________

[Guest guest]

Hi Sylvia;

Welcome, you've come to a great spot for information and support!!!

There are advantages and disadvantages to having the other lobe out.

If you don't have thyroglobulin antibodies, removing the other lobe

and having an RAI ablation gives you 2 tools for followup going

forward, scanning and TG(thyroglobulin) levels.

Be sure to ask your endocrinologist lots of questions about ongoing

treatment, and how your case will be followed going forward. Ask

lots of questions here, usually one of the 900 or so of us on the

list has had a similar circumstance.

good luck,

and welcome

barb

tt 8/99 RAI 4/00 Clean Scans 12/00,5/02

> Hello friends,

>

> Just thought I'd introduce myself. I'm an almost

> 38-year-old friendly newly-single music-loving leftist

> vegetarian lesbian quilting beekeeper who has been

> diagnosed with what looks like papillary cancer but

> could possibly be Hurthle cell cancer. I just had my

> right thyroid lobe removed, and the preliminary

> diagnosis looks like stage 1 papillary cancer. I will

> be meeting w/an endocrinologist next week for a more

> in-depth diagnosis, and I assume that I will have to

> decide whether to have my other lobe removed and

> whether to take hormone replacement therapy and

> radioactive iodine. It's been a hell of a year.

>

> ttfn,

> Sylvia

>

> __________________________________________________

>

[Guest guest]

Hi Sylvia;

Welcome, you've come to a great spot for information and support!!!

There are advantages and disadvantages to having the other lobe out.

If you don't have thyroglobulin antibodies, removing the other lobe

and having an RAI ablation gives you 2 tools for followup going

forward, scanning and TG(thyroglobulin) levels.

Be sure to ask your endocrinologist lots of questions about ongoing

treatment, and how your case will be followed going forward. Ask

lots of questions here, usually one of the 900 or so of us on the

list has had a similar circumstance.

good luck,

and welcome

barb

tt 8/99 RAI 4/00 Clean Scans 12/00,5/02

> Hello friends,

>

> Just thought I'd introduce myself. I'm an almost

> 38-year-old friendly newly-single music-loving leftist

> vegetarian lesbian quilting beekeeper who has been

> diagnosed with what looks like papillary cancer but

> could possibly be Hurthle cell cancer. I just had my

> right thyroid lobe removed, and the preliminary

> diagnosis looks like stage 1 papillary cancer. I will

> be meeting w/an endocrinologist next week for a more

> in-depth diagnosis, and I assume that I will have to

> decide whether to have my other lobe removed and

> whether to take hormone replacement therapy and

> radioactive iodine. It's been a hell of a year.

>

> ttfn,

> Sylvia

>

> __________________________________________________

>

[Guest guest]

Hi Sylvia;

Welcome, you've come to a great spot for information and support!!!

There are advantages and disadvantages to having the other lobe out.

If you don't have thyroglobulin antibodies, removing the other lobe

and having an RAI ablation gives you 2 tools for followup going

forward, scanning and TG(thyroglobulin) levels.

Be sure to ask your endocrinologist lots of questions about ongoing

treatment, and how your case will be followed going forward. Ask

lots of questions here, usually one of the 900 or so of us on the

list has had a similar circumstance.

good luck,

and welcome

barb

tt 8/99 RAI 4/00 Clean Scans 12/00,5/02

> Hello friends,

>

> Just thought I'd introduce myself. I'm an almost

> 38-year-old friendly newly-single music-loving leftist

> vegetarian lesbian quilting beekeeper who has been

> diagnosed with what looks like papillary cancer but

> could possibly be Hurthle cell cancer. I just had my

> right thyroid lobe removed, and the preliminary

> diagnosis looks like stage 1 papillary cancer. I will

> be meeting w/an endocrinologist next week for a more

> in-depth diagnosis, and I assume that I will have to

> decide whether to have my other lobe removed and

> whether to take hormone replacement therapy and

> radioactive iodine. It's been a hell of a year.

>

> ttfn,

> Sylvia

>

> __________________________________________________

>

[Guest guest]

Hi Sylvia.

Welcome. It seems to me that they will recommend a TT for you with

follow up RAI, but of course it depends upon your exact situation.

Good Luck.

dee

TT 7/02

dx pap thyca the next wk

WBS (2mC) & RAI 29.9 mC 8/23/02

still very hypo

scan scheduled for 2/03

> Hello friends,

>

> Just thought I'd introduce myself. I'm an almost

> 38-year-old friendly newly-single music-loving leftist

> vegetarian lesbian quilting beekeeper who has been

> diagnosed with what looks like papillary cancer but

> could possibly be Hurthle cell cancer. I just had my

> right thyroid lobe removed, and the preliminary

> diagnosis looks like stage 1 papillary cancer. I will

> be meeting w/an endocrinologist next week for a more

> in-depth diagnosis, and I assume that I will have to

> decide whether to have my other lobe removed and

> whether to take hormone replacement therapy and

> radioactive iodine. It's been a hell of a year.

>

> ttfn,

> Sylvia

>

> __________________________________________________

>

[Guest guest]

Hi Sylvia.

Welcome. It seems to me that they will recommend a TT for you with

follow up RAI, but of course it depends upon your exact situation.

Good Luck.

dee

TT 7/02

dx pap thyca the next wk

WBS (2mC) & RAI 29.9 mC 8/23/02

still very hypo

scan scheduled for 2/03

> Hello friends,

>

> Just thought I'd introduce myself. I'm an almost

> 38-year-old friendly newly-single music-loving leftist

> vegetarian lesbian quilting beekeeper who has been

> diagnosed with what looks like papillary cancer but

> could possibly be Hurthle cell cancer. I just had my

> right thyroid lobe removed, and the preliminary

> diagnosis looks like stage 1 papillary cancer. I will

> be meeting w/an endocrinologist next week for a more

> in-depth diagnosis, and I assume that I will have to

> decide whether to have my other lobe removed and

> whether to take hormone replacement therapy and

> radioactive iodine. It's been a hell of a year.

>

> ttfn,

> Sylvia

>

> __________________________________________________

>

[Guest guest]

Hi Sylvia.

Welcome. It seems to me that they will recommend a TT for you with

follow up RAI, but of course it depends upon your exact situation.

Good Luck.

dee

TT 7/02

dx pap thyca the next wk

WBS (2mC) & RAI 29.9 mC 8/23/02

still very hypo

scan scheduled for 2/03

> Hello friends,

>

> Just thought I'd introduce myself. I'm an almost

> 38-year-old friendly newly-single music-loving leftist

> vegetarian lesbian quilting beekeeper who has been

> diagnosed with what looks like papillary cancer but

> could possibly be Hurthle cell cancer. I just had my

> right thyroid lobe removed, and the preliminary

> diagnosis looks like stage 1 papillary cancer. I will

> be meeting w/an endocrinologist next week for a more

> in-depth diagnosis, and I assume that I will have to

> decide whether to have my other lobe removed and

> whether to take hormone replacement therapy and

> radioactive iodine. It's been a hell of a year.

>

> ttfn,

> Sylvia

>

> __________________________________________________

>

[Guest guest]

Hi Sylvia,

It definitely has been a hell of a year - for all of

us! I hope you will find information and support here

as you begin your long journey towards recovery.

You just had one lobe removed with cancer. I would

suggest strongly that you chat with your endo and

surgeon about your options, especially having the

whole thyroid removed. Because you have cancer,

radioactive iodine is usually the very next step in

treatment protocol, unless you were considering other

options. As far as hormone replacement, with half

your thyroid you may have to wait and see what your

remaining tissue will produce.

Good Luck with your decisions. Gather as much info as

you can and ask your doctors as many questions as they

will answer.

Pattie

=====

Dx Familial Pap Thyca, Hashimoto's Thyroiditis - 11/01

TT - 12/20/01

RAI 150 mCi - 2/12/02

__________________________________________________

[Guest guest]

Hi Sylvia,

It definitely has been a hell of a year - for all of

us! I hope you will find information and support here

as you begin your long journey towards recovery.

You just had one lobe removed with cancer. I would

suggest strongly that you chat with your endo and

surgeon about your options, especially having the

whole thyroid removed. Because you have cancer,

radioactive iodine is usually the very next step in

treatment protocol, unless you were considering other

options. As far as hormone replacement, with half

your thyroid you may have to wait and see what your

remaining tissue will produce.

Good Luck with your decisions. Gather as much info as

you can and ask your doctors as many questions as they

will answer.

Pattie

=====

Dx Familial Pap Thyca, Hashimoto's Thyroiditis - 11/01

TT - 12/20/01

RAI 150 mCi - 2/12/02

__________________________________________________

[Guest guest]

Hi Sylvia,

It definitely has been a hell of a year - for all of

us! I hope you will find information and support here

as you begin your long journey towards recovery.

You just had one lobe removed with cancer. I would

suggest strongly that you chat with your endo and

surgeon about your options, especially having the

whole thyroid removed. Because you have cancer,

radioactive iodine is usually the very next step in

treatment protocol, unless you were considering other

options. As far as hormone replacement, with half

your thyroid you may have to wait and see what your

remaining tissue will produce.

Good Luck with your decisions. Gather as much info as

you can and ask your doctors as many questions as they

will answer.

Pattie

=====

Dx Familial Pap Thyca, Hashimoto's Thyroiditis - 11/01

TT - 12/20/01

RAI 150 mCi - 2/12/02

__________________________________________________

[Guest guest]

Greetings Sylvia!

Sorry to hear that you have Papillary Carcinoma. You will find this

support group to be A#1. They have been a tremendous source of

inspiration and a fountain of information for me.

Good Luck,

7/23/02 - FNA dx pap. carc.

8/27/02 - TT Phase II

> Hello friends,

>

> Just thought I'd introduce myself. I'm an almost

> 38-year-old friendly newly-single music-loving leftist

> vegetarian lesbian quilting beekeeper who has been

> diagnosed with what looks like papillary cancer but

> could possibly be Hurthle cell cancer. I just had my

> right thyroid lobe removed, and the preliminary

> diagnosis looks like stage 1 papillary cancer. I will

> be meeting w/an endocrinologist next week for a more

> in-depth diagnosis, and I assume that I will have to

> decide whether to have my other lobe removed and

> whether to take hormone replacement therapy and

> radioactive iodine. It's been a hell of a year.

>

> ttfn,

> Sylvia

>

> __________________________________________________

>

[Guest guest]

Greetings Sylvia!

Sorry to hear that you have Papillary Carcinoma. You will find this

support group to be A#1. They have been a tremendous source of

inspiration and a fountain of information for me.

Good Luck,

7/23/02 - FNA dx pap. carc.

8/27/02 - TT Phase II

> Hello friends,

>

> Just thought I'd introduce myself. I'm an almost

> 38-year-old friendly newly-single music-loving leftist

> vegetarian lesbian quilting beekeeper who has been

> diagnosed with what looks like papillary cancer but

> could possibly be Hurthle cell cancer. I just had my

> right thyroid lobe removed, and the preliminary

> diagnosis looks like stage 1 papillary cancer. I will

> be meeting w/an endocrinologist next week for a more

> in-depth diagnosis, and I assume that I will have to

> decide whether to have my other lobe removed and

> whether to take hormone replacement therapy and

> radioactive iodine. It's been a hell of a year.

>

> ttfn,

> Sylvia

>

> __________________________________________________

>

[Guest guest]

Cheryl: Welcome to the group, although I'm sorry you have reason to

be here. Even if you do not desire more children...you shouldn't

have to live in PAIN like this!! And, you greatly increase your

likelihood of developing painful endometriosis if you leave your

Asherman's untreated as it sounds like you definitely have a " pocket "

of healthy endometrium that is trying to shed lining every month but

is " trapped " behind scar tissue.

Check the A-list for a doctor near you that can help.....you need to

get this resolved without going to the extreme of a hysterectomy

which can wreck havoc with your hormone levels and sex drive.

Ask any questions you may have and we'll do our best to help!

Gwen

[Guest guest]

Welcome Colleen - It's nice to have you with us. To prepare for surgery, you

should begin a regular exercise program, find a protein powder that you like,

and be aware of the supplements you will need to be on for life as a post-op.

Our greatest resource is www.vitalady.com. From her(she is our " mom " by the

way), you can order protein samples so you can find one you like without

investing in a big can, and she also sells all the vitamins in the right

formulas you will need as a post-op. The 3 biggies are calcium citrate, B-12,

and iron. Don't let the docs/nutritionists talk you into Tums or Viactiv chews.

They are the wrong kind of calcium. Hope I've answered some of your questions.

Take care.

Jeanne in WI

Age 39

Open RNY 05/21/2002

314/ 256./150-175

5' 8 "

djgraves@...

[Guest guest]

wow what a great story that you and twin did this new life start together

way to go and welcome

TN

new member

> hello everyone,

>

> how is everyone feeling? how is your weight loss going. 23 yearold

> from pa. i had my surgury on august 1. my twin and me had it the same

> day same doctor. so far i've lost 34 pounds 11 inches from my bust

> and 9 from my hips.looking forward tog etting to know everyone

>

> sheryl

>

>

>

>

> To Subscribe to 's weekly FREE Newsletter send an email to

GBCookbook-subscribe@...

>

[Guest guest]

tina

hello there,

how are you today. thats so great that you have lost 101 pounds so

far. i can not wait till i hit that point. somedays i want pop so bad

and other days it doesn't bother me. like today i wanted my mt.dew

really bad. but its all in the will power i believe. it helps that my

sister is going thru this at the same time. i am looking forward tog

etting to know you. do you have msn messenger?

sheryl

[Guest guest]

-Dear Sue, I am having RAI in October and plan on staying away from

my children 2 and 4 yrs for 7 days after treatment. They are at a

high risk as their cells are dividing so rapidly and already have the

family history of a mom with thyroid cancer. I could not live with

myself if they developed thyroid cancer somewhere down the line and I

did not feel I had done everything I could to protect them. Good

luck with your treatments! Suzanne pt04/02

tt06/02 dx papca

rai 10/02

[Guest guest]

-Dear Sue, I am having RAI in October and plan on staying away from

my children 2 and 4 yrs for 7 days after treatment. They are at a

high risk as their cells are dividing so rapidly and already have the

family history of a mom with thyroid cancer. I could not live with

myself if they developed thyroid cancer somewhere down the line and I

did not feel I had done everything I could to protect them. Good

luck with your treatments! Suzanne pt04/02

tt06/02 dx papca

rai 10/02

[Guest guest]

Hi, Sue -

> Would someone explain " thyrogobulin " ?

Thyroglobulin (TG) is a protein in the thyroid gland. It is only

produced by thyroid tissue - healthy or cancerous.

Those of us who have had TTs AND RAI should have no healthy thyroid

tissue to produce TG. So, the TG level should be undetectable. If

your TG goes up, it is an indication the cancer may have recurred.

However, if you have TG Antibodies (which 15-20% of Thyca patients

do), that can interfere with TG test (it can show as either higher or

lower than it really is). For those people, the TG may not be an

accurate marker. So they also always measure the TgAb

You can have TG Antibodies one time, and not at others. My endo told

me that they can be high right after your first ablation, but may go

down later. I'm in that group, hoping they'll go down. My TgAb were

17.5 about 2 months post RAI, and are now still 8 (should be 0-1).

Here's a post from Dr Ain on the subject:

http://groups.yahoo.com/group/Thyca/message/17615

And some great info on the THYCA site:

http://www.thyca.org/thyroglobulin.htm

> Also, could someone go over the routine of the tracer dose, scan, >

> large dose, etc.

> About how many days from tracer dose to final dose? Then is that it

> for 6 months before any other treatment?

Typically, you will have the scan dose, then the scan 2-3 days later.

Some doctors do not do this initial scan. The RAI could be the same

day as the scan (mine was), or within a few days - that probably

depends on the ability of the facility to get your RAI dose and a

room, if they will isolate you. A follow up scan is generally done

about a week later.

Then, the process of getting your T4 adjusted so that your TSH is

less than 0.1 and your Free T4 is not too high will happen

The first follow up scan is usually done 6 months - 1 year after the

RAI.

> Thanks to all of you, I know that I have to isolate myself for 3

> days. How long would you suggest I stay away from my grandchildren?

> They are 3 years and 1-1/2 years old.

>

I'd stay away from them for at least 7 days..I'm extra cautious (ok,

obsessive), so I'd probably even do it longer :-)

Here's a link to Ian's post telling how to calculate how long you're

" hot " , based on a combination of factors.

> The web site have helped me immensely. I am grateful to you all.

I second that - this group has been invaluable to me, too!

>

> God bless,

>

> Sue

Cheers,

Alisa

2/15/2002: Nodule found during bad sore throat

2/27/2002: FNA - suspicious for pap

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule,

Hashimotos discovered

5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI

6/6/2002: TBS - No sign of mets

Currently - TSH 0.06, 140mcg Levoxyl

Age: 48 Location: near Seattle WA

Please feel free to email me privately anytime

Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

[Guest guest]

Hi, Sue -

> Would someone explain " thyrogobulin " ?

Thyroglobulin (TG) is a protein in the thyroid gland. It is only

produced by thyroid tissue - healthy or cancerous.

Those of us who have had TTs AND RAI should have no healthy thyroid

tissue to produce TG. So, the TG level should be undetectable. If

your TG goes up, it is an indication the cancer may have recurred.

However, if you have TG Antibodies (which 15-20% of Thyca patients

do), that can interfere with TG test (it can show as either higher or

lower than it really is). For those people, the TG may not be an

accurate marker. So they also always measure the TgAb

You can have TG Antibodies one time, and not at others. My endo told

me that they can be high right after your first ablation, but may go

down later. I'm in that group, hoping they'll go down. My TgAb were

17.5 about 2 months post RAI, and are now still 8 (should be 0-1).

Here's a post from Dr Ain on the subject:

http://groups.yahoo.com/group/Thyca/message/17615

And some great info on the THYCA site:

http://www.thyca.org/thyroglobulin.htm

> Also, could someone go over the routine of the tracer dose, scan, >

> large dose, etc.

> About how many days from tracer dose to final dose? Then is that it

> for 6 months before any other treatment?

Typically, you will have the scan dose, then the scan 2-3 days later.

Some doctors do not do this initial scan. The RAI could be the same

day as the scan (mine was), or within a few days - that probably

depends on the ability of the facility to get your RAI dose and a

room, if they will isolate you. A follow up scan is generally done

about a week later.

Then, the process of getting your T4 adjusted so that your TSH is

less than 0.1 and your Free T4 is not too high will happen

The first follow up scan is usually done 6 months - 1 year after the

RAI.

> Thanks to all of you, I know that I have to isolate myself for 3

> days. How long would you suggest I stay away from my grandchildren?

> They are 3 years and 1-1/2 years old.

>

I'd stay away from them for at least 7 days..I'm extra cautious (ok,

obsessive), so I'd probably even do it longer :-)

Here's a link to Ian's post telling how to calculate how long you're

" hot " , based on a combination of factors.

> The web site have helped me immensely. I am grateful to you all.

I second that - this group has been invaluable to me, too!

>

> God bless,

>

> Sue

Cheers,

Alisa

2/15/2002: Nodule found during bad sore throat

2/27/2002: FNA - suspicious for pap

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule,

Hashimotos discovered

5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI

6/6/2002: TBS - No sign of mets

Currently - TSH 0.06, 140mcg Levoxyl

Age: 48 Location: near Seattle WA

Please feel free to email me privately anytime

Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

[Guest guest]

Hi, Sue -

> Would someone explain " thyrogobulin " ?

Thyroglobulin (TG) is a protein in the thyroid gland. It is only

produced by thyroid tissue - healthy or cancerous.

Those of us who have had TTs AND RAI should have no healthy thyroid

tissue to produce TG. So, the TG level should be undetectable. If

your TG goes up, it is an indication the cancer may have recurred.

However, if you have TG Antibodies (which 15-20% of Thyca patients

do), that can interfere with TG test (it can show as either higher or

lower than it really is). For those people, the TG may not be an

accurate marker. So they also always measure the TgAb

You can have TG Antibodies one time, and not at others. My endo told

me that they can be high right after your first ablation, but may go

down later. I'm in that group, hoping they'll go down. My TgAb were

17.5 about 2 months post RAI, and are now still 8 (should be 0-1).

Here's a post from Dr Ain on the subject:

http://groups.yahoo.com/group/Thyca/message/17615

And some great info on the THYCA site:

http://www.thyca.org/thyroglobulin.htm

> Also, could someone go over the routine of the tracer dose, scan, >

> large dose, etc.

> About how many days from tracer dose to final dose? Then is that it

> for 6 months before any other treatment?

Typically, you will have the scan dose, then the scan 2-3 days later.

Some doctors do not do this initial scan. The RAI could be the same

day as the scan (mine was), or within a few days - that probably

depends on the ability of the facility to get your RAI dose and a

room, if they will isolate you. A follow up scan is generally done

about a week later.

Then, the process of getting your T4 adjusted so that your TSH is

less than 0.1 and your Free T4 is not too high will happen

The first follow up scan is usually done 6 months - 1 year after the

RAI.

> Thanks to all of you, I know that I have to isolate myself for 3

> days. How long would you suggest I stay away from my grandchildren?

> They are 3 years and 1-1/2 years old.

>

I'd stay away from them for at least 7 days..I'm extra cautious (ok,

obsessive), so I'd probably even do it longer :-)

Here's a link to Ian's post telling how to calculate how long you're

" hot " , based on a combination of factors.

> The web site have helped me immensely. I am grateful to you all.

I second that - this group has been invaluable to me, too!

>

> God bless,

>

> Sue

Cheers,

Alisa

2/15/2002: Nodule found during bad sore throat

2/27/2002: FNA - suspicious for pap

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule,

Hashimotos discovered

5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI

6/6/2002: TBS - No sign of mets

Currently - TSH 0.06, 140mcg Levoxyl

Age: 48 Location: near Seattle WA

Please feel free to email me privately anytime

Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

[Guest guest]

> My tsh numbers are on the rise and the docs here don't

> seem to be concerned,,well,,I am concerned. I want to

> find out why it is rising.

If your TSH is on the rise, the most obvious reason is that you are

not taking enough medication to keep it suppressed. Perhaps you

simply need a higher dose of Levothyroxine (Synthroid, Levoxyl,

Unithroid, etc.). Keep in mind that TSH in thyca patients should be

suppressed to <0.1 since TSH is a growth factor in thyroid cancer.

Marilyn

Dx in 1994, papillary w/follicular variant and lung metastases.

Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean

scans 1999, 2000, 2002...the last one using Thyrogen.

[Guest guest]

> My tsh numbers are on the rise and the docs here don't

> seem to be concerned,,well,,I am concerned. I want to

> find out why it is rising.

If your TSH is on the rise, the most obvious reason is that you are

not taking enough medication to keep it suppressed. Perhaps you

simply need a higher dose of Levothyroxine (Synthroid, Levoxyl,

Unithroid, etc.). Keep in mind that TSH in thyca patients should be

suppressed to <0.1 since TSH is a growth factor in thyroid cancer.

Marilyn

Dx in 1994, papillary w/follicular variant and lung metastases.

Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean

scans 1999, 2000, 2002...the last one using Thyrogen.