Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Welcome Sylvia. What geographic area are you in? Mel (LEMYNADE@...) DX Hashimoto's, Graves & follicular neoplasm 2.7 cm 8/2001 with extensive hurtle cells and vascular invasion TT 11/19/2001 RAI 3/8/2002 100MCI, 7/2002 clean scan new member Hello friends, Just thought I'd introduce myself. I'm an almost 38-year-old friendly newly-single music-loving leftist vegetarian lesbian quilting beekeeper who has been diagnosed with what looks like papillary cancer but could possibly be Hurthle cell cancer. I just had my right thyroid lobe removed, and the preliminary diagnosis looks like stage 1 papillary cancer. I will be meeting w/an endocrinologist next week for a more in-depth diagnosis, and I assume that I will have to decide whether to have my other lobe removed and whether to take hormone replacement therapy and radioactive iodine. It's been a hell of a year. ttfn, Sylvia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Welcome Sylvia. What geographic area are you in? Mel (LEMYNADE@...) DX Hashimoto's, Graves & follicular neoplasm 2.7 cm 8/2001 with extensive hurtle cells and vascular invasion TT 11/19/2001 RAI 3/8/2002 100MCI, 7/2002 clean scan new member Hello friends, Just thought I'd introduce myself. I'm an almost 38-year-old friendly newly-single music-loving leftist vegetarian lesbian quilting beekeeper who has been diagnosed with what looks like papillary cancer but could possibly be Hurthle cell cancer. I just had my right thyroid lobe removed, and the preliminary diagnosis looks like stage 1 papillary cancer. I will be meeting w/an endocrinologist next week for a more in-depth diagnosis, and I assume that I will have to decide whether to have my other lobe removed and whether to take hormone replacement therapy and radioactive iodine. It's been a hell of a year. ttfn, Sylvia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Welcome Sylvia. What geographic area are you in? Mel (LEMYNADE@...) DX Hashimoto's, Graves & follicular neoplasm 2.7 cm 8/2001 with extensive hurtle cells and vascular invasion TT 11/19/2001 RAI 3/8/2002 100MCI, 7/2002 clean scan new member Hello friends, Just thought I'd introduce myself. I'm an almost 38-year-old friendly newly-single music-loving leftist vegetarian lesbian quilting beekeeper who has been diagnosed with what looks like papillary cancer but could possibly be Hurthle cell cancer. I just had my right thyroid lobe removed, and the preliminary diagnosis looks like stage 1 papillary cancer. I will be meeting w/an endocrinologist next week for a more in-depth diagnosis, and I assume that I will have to decide whether to have my other lobe removed and whether to take hormone replacement therapy and radioactive iodine. It's been a hell of a year. ttfn, Sylvia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Hi Sylvia; Welcome, you've come to a great spot for information and support!!! There are advantages and disadvantages to having the other lobe out. If you don't have thyroglobulin antibodies, removing the other lobe and having an RAI ablation gives you 2 tools for followup going forward, scanning and TG(thyroglobulin) levels. Be sure to ask your endocrinologist lots of questions about ongoing treatment, and how your case will be followed going forward. Ask lots of questions here, usually one of the 900 or so of us on the list has had a similar circumstance. good luck, and welcome barb tt 8/99 RAI 4/00 Clean Scans 12/00,5/02 > Hello friends, > > Just thought I'd introduce myself. I'm an almost > 38-year-old friendly newly-single music-loving leftist > vegetarian lesbian quilting beekeeper who has been > diagnosed with what looks like papillary cancer but > could possibly be Hurthle cell cancer. I just had my > right thyroid lobe removed, and the preliminary > diagnosis looks like stage 1 papillary cancer. I will > be meeting w/an endocrinologist next week for a more > in-depth diagnosis, and I assume that I will have to > decide whether to have my other lobe removed and > whether to take hormone replacement therapy and > radioactive iodine. It's been a hell of a year. > > ttfn, > Sylvia > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Hi Sylvia; Welcome, you've come to a great spot for information and support!!! There are advantages and disadvantages to having the other lobe out. If you don't have thyroglobulin antibodies, removing the other lobe and having an RAI ablation gives you 2 tools for followup going forward, scanning and TG(thyroglobulin) levels. Be sure to ask your endocrinologist lots of questions about ongoing treatment, and how your case will be followed going forward. Ask lots of questions here, usually one of the 900 or so of us on the list has had a similar circumstance. good luck, and welcome barb tt 8/99 RAI 4/00 Clean Scans 12/00,5/02 > Hello friends, > > Just thought I'd introduce myself. I'm an almost > 38-year-old friendly newly-single music-loving leftist > vegetarian lesbian quilting beekeeper who has been > diagnosed with what looks like papillary cancer but > could possibly be Hurthle cell cancer. I just had my > right thyroid lobe removed, and the preliminary > diagnosis looks like stage 1 papillary cancer. I will > be meeting w/an endocrinologist next week for a more > in-depth diagnosis, and I assume that I will have to > decide whether to have my other lobe removed and > whether to take hormone replacement therapy and > radioactive iodine. It's been a hell of a year. > > ttfn, > Sylvia > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Hi Sylvia; Welcome, you've come to a great spot for information and support!!! There are advantages and disadvantages to having the other lobe out. If you don't have thyroglobulin antibodies, removing the other lobe and having an RAI ablation gives you 2 tools for followup going forward, scanning and TG(thyroglobulin) levels. Be sure to ask your endocrinologist lots of questions about ongoing treatment, and how your case will be followed going forward. Ask lots of questions here, usually one of the 900 or so of us on the list has had a similar circumstance. good luck, and welcome barb tt 8/99 RAI 4/00 Clean Scans 12/00,5/02 > Hello friends, > > Just thought I'd introduce myself. I'm an almost > 38-year-old friendly newly-single music-loving leftist > vegetarian lesbian quilting beekeeper who has been > diagnosed with what looks like papillary cancer but > could possibly be Hurthle cell cancer. I just had my > right thyroid lobe removed, and the preliminary > diagnosis looks like stage 1 papillary cancer. I will > be meeting w/an endocrinologist next week for a more > in-depth diagnosis, and I assume that I will have to > decide whether to have my other lobe removed and > whether to take hormone replacement therapy and > radioactive iodine. It's been a hell of a year. > > ttfn, > Sylvia > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Hi Sylvia. Welcome. It seems to me that they will recommend a TT for you with follow up RAI, but of course it depends upon your exact situation. Good Luck. dee TT 7/02 dx pap thyca the next wk WBS (2mC) & RAI 29.9 mC 8/23/02 still very hypo scan scheduled for 2/03 > Hello friends, > > Just thought I'd introduce myself. I'm an almost > 38-year-old friendly newly-single music-loving leftist > vegetarian lesbian quilting beekeeper who has been > diagnosed with what looks like papillary cancer but > could possibly be Hurthle cell cancer. I just had my > right thyroid lobe removed, and the preliminary > diagnosis looks like stage 1 papillary cancer. I will > be meeting w/an endocrinologist next week for a more > in-depth diagnosis, and I assume that I will have to > decide whether to have my other lobe removed and > whether to take hormone replacement therapy and > radioactive iodine. It's been a hell of a year. > > ttfn, > Sylvia > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Hi Sylvia. Welcome. It seems to me that they will recommend a TT for you with follow up RAI, but of course it depends upon your exact situation. Good Luck. dee TT 7/02 dx pap thyca the next wk WBS (2mC) & RAI 29.9 mC 8/23/02 still very hypo scan scheduled for 2/03 > Hello friends, > > Just thought I'd introduce myself. I'm an almost > 38-year-old friendly newly-single music-loving leftist > vegetarian lesbian quilting beekeeper who has been > diagnosed with what looks like papillary cancer but > could possibly be Hurthle cell cancer. I just had my > right thyroid lobe removed, and the preliminary > diagnosis looks like stage 1 papillary cancer. I will > be meeting w/an endocrinologist next week for a more > in-depth diagnosis, and I assume that I will have to > decide whether to have my other lobe removed and > whether to take hormone replacement therapy and > radioactive iodine. It's been a hell of a year. > > ttfn, > Sylvia > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Hi Sylvia. Welcome. It seems to me that they will recommend a TT for you with follow up RAI, but of course it depends upon your exact situation. Good Luck. dee TT 7/02 dx pap thyca the next wk WBS (2mC) & RAI 29.9 mC 8/23/02 still very hypo scan scheduled for 2/03 > Hello friends, > > Just thought I'd introduce myself. I'm an almost > 38-year-old friendly newly-single music-loving leftist > vegetarian lesbian quilting beekeeper who has been > diagnosed with what looks like papillary cancer but > could possibly be Hurthle cell cancer. I just had my > right thyroid lobe removed, and the preliminary > diagnosis looks like stage 1 papillary cancer. I will > be meeting w/an endocrinologist next week for a more > in-depth diagnosis, and I assume that I will have to > decide whether to have my other lobe removed and > whether to take hormone replacement therapy and > radioactive iodine. It's been a hell of a year. > > ttfn, > Sylvia > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Hi Sylvia, It definitely has been a hell of a year - for all of us! I hope you will find information and support here as you begin your long journey towards recovery. You just had one lobe removed with cancer. I would suggest strongly that you chat with your endo and surgeon about your options, especially having the whole thyroid removed. Because you have cancer, radioactive iodine is usually the very next step in treatment protocol, unless you were considering other options. As far as hormone replacement, with half your thyroid you may have to wait and see what your remaining tissue will produce. Good Luck with your decisions. Gather as much info as you can and ask your doctors as many questions as they will answer. Pattie ===== Dx Familial Pap Thyca, Hashimoto's Thyroiditis - 11/01 TT - 12/20/01 RAI 150 mCi - 2/12/02 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Hi Sylvia, It definitely has been a hell of a year - for all of us! I hope you will find information and support here as you begin your long journey towards recovery. You just had one lobe removed with cancer. I would suggest strongly that you chat with your endo and surgeon about your options, especially having the whole thyroid removed. Because you have cancer, radioactive iodine is usually the very next step in treatment protocol, unless you were considering other options. As far as hormone replacement, with half your thyroid you may have to wait and see what your remaining tissue will produce. Good Luck with your decisions. Gather as much info as you can and ask your doctors as many questions as they will answer. Pattie ===== Dx Familial Pap Thyca, Hashimoto's Thyroiditis - 11/01 TT - 12/20/01 RAI 150 mCi - 2/12/02 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Hi Sylvia, It definitely has been a hell of a year - for all of us! I hope you will find information and support here as you begin your long journey towards recovery. You just had one lobe removed with cancer. I would suggest strongly that you chat with your endo and surgeon about your options, especially having the whole thyroid removed. Because you have cancer, radioactive iodine is usually the very next step in treatment protocol, unless you were considering other options. As far as hormone replacement, with half your thyroid you may have to wait and see what your remaining tissue will produce. Good Luck with your decisions. Gather as much info as you can and ask your doctors as many questions as they will answer. Pattie ===== Dx Familial Pap Thyca, Hashimoto's Thyroiditis - 11/01 TT - 12/20/01 RAI 150 mCi - 2/12/02 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Greetings Sylvia! Sorry to hear that you have Papillary Carcinoma. You will find this support group to be A#1. They have been a tremendous source of inspiration and a fountain of information for me. Good Luck, 7/23/02 - FNA dx pap. carc. 8/27/02 - TT Phase II > Hello friends, > > Just thought I'd introduce myself. I'm an almost > 38-year-old friendly newly-single music-loving leftist > vegetarian lesbian quilting beekeeper who has been > diagnosed with what looks like papillary cancer but > could possibly be Hurthle cell cancer. I just had my > right thyroid lobe removed, and the preliminary > diagnosis looks like stage 1 papillary cancer. I will > be meeting w/an endocrinologist next week for a more > in-depth diagnosis, and I assume that I will have to > decide whether to have my other lobe removed and > whether to take hormone replacement therapy and > radioactive iodine. It's been a hell of a year. > > ttfn, > Sylvia > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 Greetings Sylvia! Sorry to hear that you have Papillary Carcinoma. You will find this support group to be A#1. They have been a tremendous source of inspiration and a fountain of information for me. Good Luck, 7/23/02 - FNA dx pap. carc. 8/27/02 - TT Phase II > Hello friends, > > Just thought I'd introduce myself. I'm an almost > 38-year-old friendly newly-single music-loving leftist > vegetarian lesbian quilting beekeeper who has been > diagnosed with what looks like papillary cancer but > could possibly be Hurthle cell cancer. I just had my > right thyroid lobe removed, and the preliminary > diagnosis looks like stage 1 papillary cancer. I will > be meeting w/an endocrinologist next week for a more > in-depth diagnosis, and I assume that I will have to > decide whether to have my other lobe removed and > whether to take hormone replacement therapy and > radioactive iodine. It's been a hell of a year. > > ttfn, > Sylvia > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Cheryl: Welcome to the group, although I'm sorry you have reason to be here. Even if you do not desire more children...you shouldn't have to live in PAIN like this!! And, you greatly increase your likelihood of developing painful endometriosis if you leave your Asherman's untreated as it sounds like you definitely have a " pocket " of healthy endometrium that is trying to shed lining every month but is " trapped " behind scar tissue. Check the A-list for a doctor near you that can help.....you need to get this resolved without going to the extreme of a hysterectomy which can wreck havoc with your hormone levels and sex drive. Ask any questions you may have and we'll do our best to help! Gwen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2002 Report Share Posted September 15, 2002 Welcome Colleen - It's nice to have you with us. To prepare for surgery, you should begin a regular exercise program, find a protein powder that you like, and be aware of the supplements you will need to be on for life as a post-op. Our greatest resource is www.vitalady.com. From her(she is our " mom " by the way), you can order protein samples so you can find one you like without investing in a big can, and she also sells all the vitamins in the right formulas you will need as a post-op. The 3 biggies are calcium citrate, B-12, and iron. Don't let the docs/nutritionists talk you into Tums or Viactiv chews. They are the wrong kind of calcium. Hope I've answered some of your questions. Take care. Jeanne in WI Age 39 Open RNY 05/21/2002 314/ 256./150-175 5' 8 " djgraves@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 wow what a great story that you and twin did this new life start together way to go and welcome TN new member > hello everyone, > > how is everyone feeling? how is your weight loss going. 23 yearold > from pa. i had my surgury on august 1. my twin and me had it the same > day same doctor. so far i've lost 34 pounds 11 inches from my bust > and 9 from my hips.looking forward tog etting to know everyone > > sheryl > > > > > To Subscribe to 's weekly FREE Newsletter send an email to GBCookbook-subscribe@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 tina hello there, how are you today. thats so great that you have lost 101 pounds so far. i can not wait till i hit that point. somedays i want pop so bad and other days it doesn't bother me. like today i wanted my mt.dew really bad. but its all in the will power i believe. it helps that my sister is going thru this at the same time. i am looking forward tog etting to know you. do you have msn messenger? sheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 -Dear Sue, I am having RAI in October and plan on staying away from my children 2 and 4 yrs for 7 days after treatment. They are at a high risk as their cells are dividing so rapidly and already have the family history of a mom with thyroid cancer. I could not live with myself if they developed thyroid cancer somewhere down the line and I did not feel I had done everything I could to protect them. Good luck with your treatments! Suzanne pt04/02 tt06/02 dx papca rai 10/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 -Dear Sue, I am having RAI in October and plan on staying away from my children 2 and 4 yrs for 7 days after treatment. They are at a high risk as their cells are dividing so rapidly and already have the family history of a mom with thyroid cancer. I could not live with myself if they developed thyroid cancer somewhere down the line and I did not feel I had done everything I could to protect them. Good luck with your treatments! Suzanne pt04/02 tt06/02 dx papca rai 10/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Hi, Sue - > Would someone explain " thyrogobulin " ? Thyroglobulin (TG) is a protein in the thyroid gland. It is only produced by thyroid tissue - healthy or cancerous. Those of us who have had TTs AND RAI should have no healthy thyroid tissue to produce TG. So, the TG level should be undetectable. If your TG goes up, it is an indication the cancer may have recurred. However, if you have TG Antibodies (which 15-20% of Thyca patients do), that can interfere with TG test (it can show as either higher or lower than it really is). For those people, the TG may not be an accurate marker. So they also always measure the TgAb You can have TG Antibodies one time, and not at others. My endo told me that they can be high right after your first ablation, but may go down later. I'm in that group, hoping they'll go down. My TgAb were 17.5 about 2 months post RAI, and are now still 8 (should be 0-1). Here's a post from Dr Ain on the subject: http://groups.yahoo.com/group/Thyca/message/17615 And some great info on the THYCA site: http://www.thyca.org/thyroglobulin.htm > Also, could someone go over the routine of the tracer dose, scan, > > large dose, etc. > About how many days from tracer dose to final dose? Then is that it > for 6 months before any other treatment? Typically, you will have the scan dose, then the scan 2-3 days later. Some doctors do not do this initial scan. The RAI could be the same day as the scan (mine was), or within a few days - that probably depends on the ability of the facility to get your RAI dose and a room, if they will isolate you. A follow up scan is generally done about a week later. Then, the process of getting your T4 adjusted so that your TSH is less than 0.1 and your Free T4 is not too high will happen The first follow up scan is usually done 6 months - 1 year after the RAI. > Thanks to all of you, I know that I have to isolate myself for 3 > days. How long would you suggest I stay away from my grandchildren? > They are 3 years and 1-1/2 years old. > I'd stay away from them for at least 7 days..I'm extra cautious (ok, obsessive), so I'd probably even do it longer :-) Here's a link to Ian's post telling how to calculate how long you're " hot " , based on a combination of factors. > The web site have helped me immensely. I am grateful to you all. I second that - this group has been invaluable to me, too! > > God bless, > > Sue Cheers, Alisa 2/15/2002: Nodule found during bad sore throat 2/27/2002: FNA - suspicious for pap 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule, Hashimotos discovered 5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI 6/6/2002: TBS - No sign of mets Currently - TSH 0.06, 140mcg Levoxyl Age: 48 Location: near Seattle WA Please feel free to email me privately anytime Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Hi, Sue - > Would someone explain " thyrogobulin " ? Thyroglobulin (TG) is a protein in the thyroid gland. It is only produced by thyroid tissue - healthy or cancerous. Those of us who have had TTs AND RAI should have no healthy thyroid tissue to produce TG. So, the TG level should be undetectable. If your TG goes up, it is an indication the cancer may have recurred. However, if you have TG Antibodies (which 15-20% of Thyca patients do), that can interfere with TG test (it can show as either higher or lower than it really is). For those people, the TG may not be an accurate marker. So they also always measure the TgAb You can have TG Antibodies one time, and not at others. My endo told me that they can be high right after your first ablation, but may go down later. I'm in that group, hoping they'll go down. My TgAb were 17.5 about 2 months post RAI, and are now still 8 (should be 0-1). Here's a post from Dr Ain on the subject: http://groups.yahoo.com/group/Thyca/message/17615 And some great info on the THYCA site: http://www.thyca.org/thyroglobulin.htm > Also, could someone go over the routine of the tracer dose, scan, > > large dose, etc. > About how many days from tracer dose to final dose? Then is that it > for 6 months before any other treatment? Typically, you will have the scan dose, then the scan 2-3 days later. Some doctors do not do this initial scan. The RAI could be the same day as the scan (mine was), or within a few days - that probably depends on the ability of the facility to get your RAI dose and a room, if they will isolate you. A follow up scan is generally done about a week later. Then, the process of getting your T4 adjusted so that your TSH is less than 0.1 and your Free T4 is not too high will happen The first follow up scan is usually done 6 months - 1 year after the RAI. > Thanks to all of you, I know that I have to isolate myself for 3 > days. How long would you suggest I stay away from my grandchildren? > They are 3 years and 1-1/2 years old. > I'd stay away from them for at least 7 days..I'm extra cautious (ok, obsessive), so I'd probably even do it longer :-) Here's a link to Ian's post telling how to calculate how long you're " hot " , based on a combination of factors. > The web site have helped me immensely. I am grateful to you all. I second that - this group has been invaluable to me, too! > > God bless, > > Sue Cheers, Alisa 2/15/2002: Nodule found during bad sore throat 2/27/2002: FNA - suspicious for pap 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule, Hashimotos discovered 5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI 6/6/2002: TBS - No sign of mets Currently - TSH 0.06, 140mcg Levoxyl Age: 48 Location: near Seattle WA Please feel free to email me privately anytime Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Hi, Sue - > Would someone explain " thyrogobulin " ? Thyroglobulin (TG) is a protein in the thyroid gland. It is only produced by thyroid tissue - healthy or cancerous. Those of us who have had TTs AND RAI should have no healthy thyroid tissue to produce TG. So, the TG level should be undetectable. If your TG goes up, it is an indication the cancer may have recurred. However, if you have TG Antibodies (which 15-20% of Thyca patients do), that can interfere with TG test (it can show as either higher or lower than it really is). For those people, the TG may not be an accurate marker. So they also always measure the TgAb You can have TG Antibodies one time, and not at others. My endo told me that they can be high right after your first ablation, but may go down later. I'm in that group, hoping they'll go down. My TgAb were 17.5 about 2 months post RAI, and are now still 8 (should be 0-1). Here's a post from Dr Ain on the subject: http://groups.yahoo.com/group/Thyca/message/17615 And some great info on the THYCA site: http://www.thyca.org/thyroglobulin.htm > Also, could someone go over the routine of the tracer dose, scan, > > large dose, etc. > About how many days from tracer dose to final dose? Then is that it > for 6 months before any other treatment? Typically, you will have the scan dose, then the scan 2-3 days later. Some doctors do not do this initial scan. The RAI could be the same day as the scan (mine was), or within a few days - that probably depends on the ability of the facility to get your RAI dose and a room, if they will isolate you. A follow up scan is generally done about a week later. Then, the process of getting your T4 adjusted so that your TSH is less than 0.1 and your Free T4 is not too high will happen The first follow up scan is usually done 6 months - 1 year after the RAI. > Thanks to all of you, I know that I have to isolate myself for 3 > days. How long would you suggest I stay away from my grandchildren? > They are 3 years and 1-1/2 years old. > I'd stay away from them for at least 7 days..I'm extra cautious (ok, obsessive), so I'd probably even do it longer :-) Here's a link to Ian's post telling how to calculate how long you're " hot " , based on a combination of factors. > The web site have helped me immensely. I am grateful to you all. I second that - this group has been invaluable to me, too! > > God bless, > > Sue Cheers, Alisa 2/15/2002: Nodule found during bad sore throat 2/27/2002: FNA - suspicious for pap 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule, Hashimotos discovered 5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI 6/6/2002: TBS - No sign of mets Currently - TSH 0.06, 140mcg Levoxyl Age: 48 Location: near Seattle WA Please feel free to email me privately anytime Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 > My tsh numbers are on the rise and the docs here don't > seem to be concerned,,well,,I am concerned. I want to > find out why it is rising. If your TSH is on the rise, the most obvious reason is that you are not taking enough medication to keep it suppressed. Perhaps you simply need a higher dose of Levothyroxine (Synthroid, Levoxyl, Unithroid, etc.). Keep in mind that TSH in thyca patients should be suppressed to <0.1 since TSH is a growth factor in thyroid cancer. Marilyn Dx in 1994, papillary w/follicular variant and lung metastases. Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean scans 1999, 2000, 2002...the last one using Thyrogen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 > My tsh numbers are on the rise and the docs here don't > seem to be concerned,,well,,I am concerned. I want to > find out why it is rising. If your TSH is on the rise, the most obvious reason is that you are not taking enough medication to keep it suppressed. Perhaps you simply need a higher dose of Levothyroxine (Synthroid, Levoxyl, Unithroid, etc.). Keep in mind that TSH in thyca patients should be suppressed to <0.1 since TSH is a growth factor in thyroid cancer. Marilyn Dx in 1994, papillary w/follicular variant and lung metastases. Positive scans in 1994, 1995, 1996, 1997, 1998. 435mCi's RAI. Clean scans 1999, 2000, 2002...the last one using Thyrogen. Quote Link to comment Share on other sites More sharing options...
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