Re: IgaN and Anemia-Physical Therapy

[Guest guest]

Wow Gloria,

Talking about overcoming! You must be made of steel and have an endless

supply of strength to make it back from so far. Keep up the great work in PT.

You are another one of our members who is very inspirational!

In a message dated 8/31/2004 1:50:55 PM Pacific Daylight Time,

gt7082002@... writes:

> Since I lost all motor skills with

> prolonged hospitalization and massive steriods, I have had rehab to

> learn how to walk again and even know how to hold a spoon. I

> recently was seen by outpatient physical therapist and they gave me

> exercises to do with free weights. Now the PT is going to meet me at

> the local Y which has all the latest Cybex equipment and start me on

> the machines. I am really excited, since I have used these machines

> in the past and they made a difference. I'm meeting the PT Thursday

> and will let you know how it goes. Wish me luck and the strength to

> get through at least one session.

>

> Thanks for listening.

>

> Gloria

>

[Guest guest]

Hi Amy,

Lucky you don't have anemia since that is just another source of

fatigue- I always know when it's time for another shot as the fatigue

gets worse daily.

It's interesting about the physical workouts; I have been working out

most of my adult life until I started on prednisone again in March

after my biopsy and diagnosis. Since I lost all motor skills with

prolonged hospitalization and massive steriods, I have had rehab to

learn how to walk again and even know how to hold a spoon. I

recently was seen by outpatient physical therapist and they gave me

exercises to do with free weights. Now the PT is going to meet me at

the local Y which has all the latest Cybex equipment and start me on

the machines. I am really excited, since I have used these machines

in the past and they made a difference. I'm meeting the PT Thursday

and will let you know how it goes. Wish me luck and the strength to

get through at least one session.

Thanks for listening.

Gloria

> Gloria I've been on prednisone for nearly a year now. My serum

creatinine is holding steady at 1.9-2.4 (it varies from month to

month) I have always had a good hematocrit reading, so no anemia yet

for me...however I have been quite fatigued since just prior to my

diagnosis and even more so since starting on the prednisone. I'm

finding that working out 3 times a week for about 30 minutes is

helping quite a bit with my energy level. It took me forcing myself

into it for the first few weeks but now I feel like I can't do

without it. I didn't believe that it could boost my energy levels

but now that I'm doing it I realize that " hey " it really does work.

(Perhaps I'll finally drop these extra 100lbs I'm carrying around too)

>

> That not quite with it feeling comes from the prednisone. It

really messes with your head in ways you don't notice at first but

then as time goes by you realize you just can't do things the way you

used to. It does get better as your dose gets reduced and from what

I hear anyhow that mental function goes back to normal once off the

stuff. *I know I can't wait for that day to come, though on 5mg

daily it's not nearly as bad as it was on higher doses*

>

> Amy

> IgaN and Anemia

>

>

> Do most IgaN patients also have anemia? Just wondering the

> percentage since I have been anemic for some time and get monthly

> 40,000 units of Procrit. Does this ever get better?

>

> I am notyet on dialysis and seem to be holding steady at 2.3

creat

> and am now on prednisone taper after 6 months. I will know more

on

> the 7th - haven't seen the neph for 2 months so don't know if

> anything has changed. Still have great fatigue - no energy and

that

> vague - not quite with it feeling I have seen expressed on this

forum.

>

> Thanks for any information.

>

> Gloria

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

[Guest guest]

Gloria good luck with the workouts at the Y...I'm excited for you! It sounds

like you have had one hell of a year. Congratulations on getting this far with

the rehab, it can be rough.

When I first started going to Curves my goal was to be able to make the

circuit twice without having to stop. After a year of very little activity,

just the occasional slow walk on the treadmill, and a weakened right side from a

minor stroke I was in no shape to move on those machines. To my surprise I did

make the " twice around " goal fairly quickly. My next goal was to do the squat

machine without having to stop...when I accomplished that my goal became to get

my right leg (the side affected by my stroke) out of hip abductor machine

without having to lift it with my hands. Well this week I made that goal and

now I have to come up with a new one! I told the girls there I wasn't going to

set any weight loss goals since those tend to discourage me, instead I want a

goal that is strength oriented...if I lose weight it the process I see that as a

bonus. ) Focus on your strength, it's empowering!

Good luck and I know you will do fine.

Amy

Re: IgaN and Anemia-Physical Therapy

Hi Amy,

Lucky you don't have anemia since that is just another source of

fatigue- I always know when it's time for another shot as the fatigue

gets worse daily.

It's interesting about the physical workouts; I have been working out

most of my adult life until I started on prednisone again in March

after my biopsy and diagnosis. Since I lost all motor skills with

prolonged hospitalization and massive steriods, I have had rehab to

learn how to walk again and even know how to hold a spoon. I

recently was seen by outpatient physical therapist and they gave me

exercises to do with free weights. Now the PT is going to meet me at

the local Y which has all the latest Cybex equipment and start me on

the machines. I am really excited, since I have used these machines

in the past and they made a difference. I'm meeting the PT Thursday

and will let you know how it goes. Wish me luck and the strength to

get through at least one session.

Thanks for listening.

Gloria

[Guest guest]

Amy,

Congratulations on making all your goals thus far. It really does not take

too long to see results in terms of stamina building up, and strength building

up. Keep up the great work.

In a message dated 9/1/2004 12:01:14 AM Pacific Daylight Time,

purr-fect@... writes:

> When I first started going to Curves my goal was to be able to make the

> circuit twice without having to stop. After a year of very little activity,

> just the occasional slow walk on the treadmill, and a weakened right side from

a

> minor stroke I was in no shape to move on those machines. To my surprise I

> did make the " twice around " goal fairly quickly. My next goal was to do the

> squat machine without having to stop...when I accomplished that my goal

> became to get my right leg (the side affected by my stroke) out of hip

abductor

> machine without having to lift it with my hands. Well this week I made that

> goal and now I have to come up with a new one! I told the girls there I

wasn't

> going to set any weight loss goals since those tend to discourage me,

> instead I want a goal that is strength oriented...if I lose weight it the

process I

> see that as a bonus. ) Focus on your strength, it's empowering!

>

[Guest guest]

Hi Amy,

It sounds like you and I have gone through similar ordeals. I can

remember having to lift my leg to get it into the hospital bed - just

that was an excruciating ordeal! There was some controversy also as

to whether I had a slight stroke as well and my left side is still

weaker than the right. I have actually been 2-1/2 years getting this

far and yes, I guess I am stronger than I thought. The doctors were

amazed that I survived at all.

Good luck to you and let me hear about your progress.

Gloria

> Gloria good luck with the workouts at the Y...I'm excited for you!

It sounds like you have had one hell of a year. Congratulations on

getting this far with the rehab, it can be rough.

> When I first started going to Curves my goal was to be able to

make the circuit twice without having to stop. After a year of very

little activity, just the occasional slow walk on the treadmill, and

a weakened right side from a minor stroke I was in no shape to move

on those machines. To my surprise I did make the " twice around " goal

fairly quickly. My next goal was to do the squat machine without

having to stop...when I accomplished that my goal became to get my

right leg (the side affected by my stroke) out of hip abductor

machine without having to lift it with my hands. Well this week I

made that goal and now I have to come up with a new one! I told the

girls there I wasn't going to set any weight loss goals since those

tend to discourage me, instead I want a goal that is strength

oriented...if I lose weight it the process I see that as a

bonus. ) Focus on your strength, it's empowering!

>

> Good luck and I know you will do fine.

> Amy

> Re: IgaN and Anemia-Physical Therapy

>

>

> Hi Amy,

>

> Lucky you don't have anemia since that is just another source of

> fatigue- I always know when it's time for another shot as the

fatigue

> gets worse daily.

>

> It's interesting about the physical workouts; I have been working

out

> most of my adult life until I started on prednisone again in

March

> after my biopsy and diagnosis. Since I lost all motor skills

with

> prolonged hospitalization and massive steriods, I have had rehab

to

> learn how to walk again and even know how to hold a spoon. I

> recently was seen by outpatient physical therapist and they gave

me

> exercises to do with free weights. Now the PT is going to meet

me at

> the local Y which has all the latest Cybex equipment and start me

on

> the machines. I am really excited, since I have used these

machines

> in the past and they made a difference. I'm meeting the PT

Thursday

> and will let you know how it goes. Wish me luck and the strength

to

> get through at least one session.

>

> Thanks for listening.

>

> Gloria

>

>

>