Re: Hi I just have to vent

[Guest guest]

Deb G....

I believe we are both under a large nasty cold system from watching the

weather channel earlier... I like snow if you don't have to go anywhere and

have a nice picture window to watch it blanket the streets etc. I prefer to

watch my screensaver which is a n house and it is snowing. LOL So,

all who can go out in the snow make an Angel or two for me... thanks bunches.

As a kid I loved playing in the snow and never wanted to go back in the

house even when my face was red from the cold.

I have congenital lymphedema, which due to the excess fluids (lymph patients

do not have the tubes as I call them to remove fluid and toxins normally, we

have to sweat them out and most cases can wrap the affected areas to keep the

swelling down. I however was not diagnosed until a couple years ago and my

lower legs are big and the tissue has hardened, so no conventinal treatment

will help me) working on gravity it settles in the lower legs. My legs are

so big that socks cut my circulation from a childhood of foot surgeries. At

this time I cannot even find socks which would stretch wide enough. -( The

Drs use the term clubfeet as a visual only because we still don't know

exactly what I have. I can no longer wear socks and shoes nor boots. I live

in clogs, thongs and these cool clog slippers(kinda fleece inside) I got them

at the $1 store... I want to go back and get some more. They were about $5

and are red but who cares as long as I have " happy feet " . While in TN I got

a similar pair of slippers at Walmart but they had a soft spongy bottom...

wore those out and afraid to wash cause they might come out in pieces. LOL

I can't wear them right now with my broken toes. Right now need hard bottoms

or my big toe crunches loud enough to actually hear it. This means still

broken... grrrrr!!!! I have 2months and if still not healed I will have to

have a pin in the big toe to refuse the joint. I have to have a wedge type

bottom cause one foot is fused (toes fused and both ankles) and one bends...

so the wedge makes it easier to walk since it kinda pushes you down when you

walk. Sorry kinda hard to explain what I mean.

Has anyone gone for bone density testing? I have to go on Feb27th for the

added osteoporosis. I was told by a friend that I should not be taking any

calcium supplements until after the test. I am confused now cause when I

asked my GP (family Dr up here) she said it wouldn't make any difference.

She put me on Didrocal cause the rhuemy said the over the counter stuff was a

waste of time. I was concerned about the calcium because of my body

producing kidney stones regardless of what I do. My stones are calcium

oxelate and so the calcium alone is ok we found out. I start the Didrocal

tomorrow and it is nice it is blister packed so I won't be dropping any... my

regular daily meds are blister packed as well.. I was surprised that most

pharmacies do this for free to their customers.

I hope this cold warms soon cause my whole body is back to the burning under

the skin junk. Just saw the weather on one of your Seattle stations and they

are saying it will be going up to the 40s... yes! I want to be able to get on

the scooter and finish my last minute stuff.. mostly stocking stuff for my

Mum and getting Cameron the Nutty Professor 2, which I know he will love.. I

think everyone else is finished.

Sorry this got long once again... I just seem to let my heart speak with

y'all.

Angel Hugs+Love

[Guest guest]

Deb G....

I believe we are both under a large nasty cold system from watching the

weather channel earlier... I like snow if you don't have to go anywhere and

have a nice picture window to watch it blanket the streets etc. I prefer to

watch my screensaver which is a n house and it is snowing. LOL So,

all who can go out in the snow make an Angel or two for me... thanks bunches.

As a kid I loved playing in the snow and never wanted to go back in the

house even when my face was red from the cold.

I have congenital lymphedema, which due to the excess fluids (lymph patients

do not have the tubes as I call them to remove fluid and toxins normally, we

have to sweat them out and most cases can wrap the affected areas to keep the

swelling down. I however was not diagnosed until a couple years ago and my

lower legs are big and the tissue has hardened, so no conventinal treatment

will help me) working on gravity it settles in the lower legs. My legs are

so big that socks cut my circulation from a childhood of foot surgeries. At

this time I cannot even find socks which would stretch wide enough. -( The

Drs use the term clubfeet as a visual only because we still don't know

exactly what I have. I can no longer wear socks and shoes nor boots. I live

in clogs, thongs and these cool clog slippers(kinda fleece inside) I got them

at the $1 store... I want to go back and get some more. They were about $5

and are red but who cares as long as I have " happy feet " . While in TN I got

a similar pair of slippers at Walmart but they had a soft spongy bottom...

wore those out and afraid to wash cause they might come out in pieces. LOL

I can't wear them right now with my broken toes. Right now need hard bottoms

or my big toe crunches loud enough to actually hear it. This means still

broken... grrrrr!!!! I have 2months and if still not healed I will have to

have a pin in the big toe to refuse the joint. I have to have a wedge type

bottom cause one foot is fused (toes fused and both ankles) and one bends...

so the wedge makes it easier to walk since it kinda pushes you down when you

walk. Sorry kinda hard to explain what I mean.

Has anyone gone for bone density testing? I have to go on Feb27th for the

added osteoporosis. I was told by a friend that I should not be taking any

calcium supplements until after the test. I am confused now cause when I

asked my GP (family Dr up here) she said it wouldn't make any difference.

She put me on Didrocal cause the rhuemy said the over the counter stuff was a

waste of time. I was concerned about the calcium because of my body

producing kidney stones regardless of what I do. My stones are calcium

oxelate and so the calcium alone is ok we found out. I start the Didrocal

tomorrow and it is nice it is blister packed so I won't be dropping any... my

regular daily meds are blister packed as well.. I was surprised that most

pharmacies do this for free to their customers.

I hope this cold warms soon cause my whole body is back to the burning under

the skin junk. Just saw the weather on one of your Seattle stations and they

are saying it will be going up to the 40s... yes! I want to be able to get on

the scooter and finish my last minute stuff.. mostly stocking stuff for my

Mum and getting Cameron the Nutty Professor 2, which I know he will love.. I

think everyone else is finished.

Sorry this got long once again... I just seem to let my heart speak with

y'all.

Angel Hugs+Love

[Guest guest]

,

Yes, I live in Washington State and you are very welcome. I would

rather have the snow and cold winds going north of us than staying

here....Unfortunately, I think that we are both getting hit at the same

time. If I figure out who ordered this weather I'll be sure and let you

know cause it doesn't thrill me either.

As far as the wedding goes, I am done. I have everything together that

needs to be together and now I'm just going to let the chips fall where they

fall. I'm sure everything will turn out just fine, but I appreciate your

encouragement.....5 days to go!!!!!

Debbie G.

Re: Hi I just have to vent

> Deb G.... did you say once that you live in WA State? if so, thanks

bunches

> for the snow and bitter cold winds.. I am above you in Vancouver,

BC...LOL

> I am grounded off the scooter til the sidewalks clear... don't have snow

> tires. -( I am gonna get cabin fever... sometimes I just go out and

ride

> around to get some air.

>

> Deb... I know how it is with a Christmas wedding cause my younger brother

> dropped this bombshell on us a couple years ago. It was the year we had

> almost 3 feet of snow... try not to worry about everything, we made it

thru

> and lived to tell the story.. LOL

>

> Angel Hugs+Love

>

>

>

>

> List owner Bierman

>

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>

>

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>

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>

>

>

>

>

>

[Guest guest]

,

Yes, I live in Washington State and you are very welcome. I would

rather have the snow and cold winds going north of us than staying

here....Unfortunately, I think that we are both getting hit at the same

time. If I figure out who ordered this weather I'll be sure and let you

know cause it doesn't thrill me either.

As far as the wedding goes, I am done. I have everything together that

needs to be together and now I'm just going to let the chips fall where they

fall. I'm sure everything will turn out just fine, but I appreciate your

encouragement.....5 days to go!!!!!

Debbie G.

Re: Hi I just have to vent

> Deb G.... did you say once that you live in WA State? if so, thanks

bunches

> for the snow and bitter cold winds.. I am above you in Vancouver,

BC...LOL

> I am grounded off the scooter til the sidewalks clear... don't have snow

> tires. -( I am gonna get cabin fever... sometimes I just go out and

ride

> around to get some air.

>

> Deb... I know how it is with a Christmas wedding cause my younger brother

> dropped this bombshell on us a couple years ago. It was the year we had

> almost 3 feet of snow... try not to worry about everything, we made it

thru

> and lived to tell the story.. LOL

>

> Angel Hugs+Love

>

>

>

>

> List owner Bierman

>

> Add or view webpage links about Fibromyalgia/CFS.

> http://www.onelist.com/links/

>

>

> ~*~CHAT TIME:~*~

> MON Night

> TIME:Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

> WHERE: /chat/

>

> To write the list owner: The_List_Owner@...

>

> TO unsubscribe.

> Go to: http://www.onelist.com/ to this list and unsub from it.

>

>

>

>

>

>

[Guest guest]

SparklH2O@... writes:

> I am grounded off the scooter til the sidewalks clear... don't have snow

> tires. -( I am gonna get cabin fever... sometimes I just go out and

ride

> around to get some air.

Hi ,

I hope that you were OK this weekend. We got at least 5 inches of snow last

Thurs. and it was cold but also very windy. I am in Maine, but in the coast

and we get mild winters compared to the northern parts of Maine. I made the

mistake of helping my husband shovel. It was starting to rain and he didn't

get home from work for another 9 hours, so I shoveled, well pushed the snow

with a shovel, I never lift anymore, I find I have more strength in my legs

and I use them to push the snow like a plow.

Hope you are staying warm! Take care.

Sending Comfort and Peace

Janice

" I wish we could change our dials to AM instead of FM!!! "

[Guest guest]

,

Bless You. After reading about the problems you have with your legs and

your feet, it made me take a long look at all the stress I have felt I was

under due to this wedding and now I realize it could be a whole lot worse.

I believe that God speaks to me through others and I believe he used you

to help me realize this, so Thank you.

As to the weather...I think this cold that we are both getting is

horrible. I too like to watch snow come down, but with the wedding coming

up, I would rather have it hold off for awhile.

I am the type of person that gets into automobile accidents on a regular

basis. People just seem to aim for my car and hit me. I've already had

seven and these have happened when it was nice outside, so I don't really

need the snow to up my chances. (As soon as I find the bullseye on my car,

I'm having it removed!)

As far as the calcium thing, I would take the advise of a doctor over a

friend unless the friend has been through the same thing, but if you are

worried about it, just call your GP and ask.....that's what they're there

for.

Well, I need to go and get some rest. Tomorrow night is the rehearsal

and rehearsal dinner and Friday is the wedding, and I need some shut eye so

I can keep up. You take care of yourself and keep in touch.

Fibro Huggs,

Debbie G.

Re: Hi I just have to vent

> Deb G....

>

> I believe we are both under a large nasty cold system from watching the

> weather channel earlier... I like snow if you don't have to go anywhere

and

> have a nice picture window to watch it blanket the streets etc. I prefer

to

> watch my screensaver which is a n house and it is snowing. LOL

So,

> all who can go out in the snow make an Angel or two for me... thanks

bunches.

> As a kid I loved playing in the snow and never wanted to go back in the

> house even when my face was red from the cold.

>

> I have congenital lymphedema, which due to the excess fluids (lymph

patients

> do not have the tubes as I call them to remove fluid and toxins normally,

we

> have to sweat them out and most cases can wrap the affected areas to keep

the

> swelling down. I however was not diagnosed until a couple years ago and

my

> lower legs are big and the tissue has hardened, so no conventinal

treatment

> will help me) working on gravity it settles in the lower legs. My legs

are

> so big that socks cut my circulation from a childhood of foot surgeries.

At

> this time I cannot even find socks which would stretch wide enough.

-( The

> Drs use the term clubfeet as a visual only because we still don't know

> exactly what I have. I can no longer wear socks and shoes nor boots. I

live

> in clogs, thongs and these cool clog slippers(kinda fleece inside) I got

them

> at the $1 store... I want to go back and get some more. They were about

$5

> and are red but who cares as long as I have " happy feet " . While in TN I

got

> a similar pair of slippers at Walmart but they had a soft spongy bottom...

> wore those out and afraid to wash cause they might come out in pieces.

LOL

> I can't wear them right now with my broken toes. Right now need hard

bottoms

> or my big toe crunches loud enough to actually hear it. This means still

> broken... grrrrr!!!! I have 2months and if still not healed I will have

to

> have a pin in the big toe to refuse the joint. I have to have a wedge

type

> bottom cause one foot is fused (toes fused and both ankles) and one

bends...

> so the wedge makes it easier to walk since it kinda pushes you down when

you

> walk. Sorry kinda hard to explain what I mean.

>

> Has anyone gone for bone density testing? I have to go on Feb27th for the

> added osteoporosis. I was told by a friend that I should not be taking

any

> calcium supplements until after the test. I am confused now cause when I

> asked my GP (family Dr up here) she said it wouldn't make any difference.

> She put me on Didrocal cause the rhuemy said the over the counter stuff

was a

> waste of time. I was concerned about the calcium because of my body

> producing kidney stones regardless of what I do. My stones are calcium

> oxelate and so the calcium alone is ok we found out. I start the Didrocal

> tomorrow and it is nice it is blister packed so I won't be dropping any...

my

> regular daily meds are blister packed as well.. I was surprised that most

> pharmacies do this for free to their customers.

>

> I hope this cold warms soon cause my whole body is back to the burning

under

> the skin junk. Just saw the weather on one of your Seattle stations and

they

> are saying it will be going up to the 40s... yes! I want to be able to get

on

> the scooter and finish my last minute stuff.. mostly stocking stuff for my

> Mum and getting Cameron the Nutty Professor 2, which I know he will love..

I

> think everyone else is finished.

>

> Sorry this got long once again... I just seem to let my heart speak with

> y'all.

>

> Angel Hugs+Love

>

>

>

> List owner Bierman

>

> Add or view webpage links about Fibromyalgia/CFS.

> http://www.onelist.com/links/

>

>

> ~*~CHAT TIME:~*~

> MON Night

> TIME:Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

> WHERE: /chat/

>

> To write the list owner: The_List_Owner@...

>

> TO unsubscribe.

> Go to: http://www.onelist.com/ to this list and unsub from it.

>

>

>

>

>

>

[Guest guest]

{{{{{{{DEBBIE G}}}}}}}

Thanks for the kind words but I don't think my life is such a biggy anymore..

I just do what I can and have surgery on the feet when I must and keep moving

onward. When I worked at a local hospital from 1980 - 1991 I did the weekend

graveyard switchboard shift. I was having a lot of repeat foot surgery at

the time. I would take 1 weekend off, have the surgery, then be back to work

the 2nd weekend. I had bone graphs and refusion of my ankles done at that

time and those are 2 of the most painful things to have done. I would go to

work in a cast and the security guard would wheel me down to our office in

the basement and i would hobble around on my crutches. So, you can see

nothing stops me. Heck, at 5 I learned to run on crutches... almost gave my

Mum heart failure. LOL I believe that I could be worse than I am or

paralyzed etc.

I took a pre employment class in 1994 and it was 9 guys and me. They were

either a paraplegic or a quad and to me my stuff is nothin compared to their

problems. I assisted a quad who had not been treated emotionally for his

instant change when he was hit by a drunk driver I believe. He held

everything in and he had minimal use of his hands and his head/speech and

that was it. Nobody could reach him but I guess I had the right approach. I

would make him first try to write on his own and when he needed I would

finish things for him. We had several days of like placement testing and a

lot of writing and check marking answers. This guy was built like a football

player and he became my shadow. His dream was to write movies and at the

time of his accident he gave up on his dream. Well, me being me and not one

to stop my life I got him alone and gave him you know what! I would not give

him sympathy cause that validates his thoughts. I treated him with empathy

and compassion instead... do you know today he has voice software and is in

the Vancouver Film School.... I guess what I am saying is " never ever give

up on your dreams - there is ALWAYS a way to make them happen " . I am living

proof as is he.

I am just thankful that I now have a GP who " hears " me and doesn't say it is

all in my head. Been there - done that! Today she was saying that she read

in some Drs newspaper that most fibro patients have a malfunction of sorts

with their pain messages turning off. She said that we can take pain meds

and not have 100% relief from the pain cause the messanging system is not

shutting off. I take the 2 Percocet (which she is not afraid to give me

60/week) and I have about 65% relief which is about the best... altho, if I

take it with Gravol (dramamine in the US) it makes the pain med work

better... I learned that one in the hospital. If we had Dalodid in pill form

which was covered by my medical prescriptions I know that would help more and

she would give it to me in a heartbeat.... sure kicked my kidney pain out in

TN last April and I was able to sleep. I told her that I totally agree with

the article and so she is researching to see if my FMS, CFS, IBS, RLS, and my

lymphedema are connected. I will keep you informed of any other news she

finds. See why I love this Dr?

Deb, please try and rest as much as you can before the wedding... I know how

the fibro can zap your strength. I am concerned about Christmas cause we

have Christmas Eve with Herb(Mum's boyfriend) family which is the German

custom, then family here Christmas Day, and then we have Boxing Day (Canadian

day after Christmas and when I can remember the meaning of the day I will let

y'all know) we have a house full.

On Christmas Eve day we are also going to see my Dad in the nursing home and

I am nervous big time. He has dementia (started with alcoholic strokes 4yrs

ago because he wouldn't take his high blood pressure meds and he drank beer

and then he moved to Scotch in his coffee even when he first got up. He was

warned and didn't listen. But, I honestly believe that he gave up in 1980

when he was working for Otis Elevators and fell in a shaft 40feet shattering

both ankles and broke his arm. He was never the same after that) and then he

has had lung cancer in each lung which the first was encapsuled and removed

and he was fine.. by the time the 2nd tumor appeared in other lung (not

related to first tumor) he was too week for surgery and so I went daily with

him for his radiation treatments. I know this is trivial but I kept the

little card which had his appointments were marked on. Dad is in the anger

stage of the dementia still and 2 summers ago he managed down here (13 steep

stairs and he could hardly walk to the bathroom upstairs so. We were confused

how he got down here) and he was going to as he said " take me out of this

world " . He had run into the stop sign at the corner when he lost control of

the scooter and I took the keys away from him.. Mum was on stress relief at

my oldest brother Bruce's house (Cameron & Shayla's Dad) and Dad had a

homecare worker for 4days... Well, she was out of it cause he fell and gashed

his leg and she came to get me.. It was her job.. geez! She was to watch

him and she was too engrosed in Mum's 33 " tv and having all the cable

channels. We reported her cause I ended up in bad panic cause she wouldn't

let me just come back downstairs... she was afraid of him I am sure, but the

workers that do stress relief are supposed to be trained for patients in his

condition. This was the time I had my 3 bad falls and I am sure my nerves

just snapped and then I know now I had a long bad flare of the fibro.

Finally when my Dr (talk to the back of his shirt) wrote a note that I was

falling etc because of being so afraid of Dad that got Dad;s Dr to admit him

for 2weeks of psych evaluation. Dad knew the questions they would ask and he

knew the answers to give. He admitted this to the pysch Drs when he was in

the last evaluation, which Mum went to and I was to go but was a panic mess

and Mum said I was to stay home. She said it got bad with his tantrums etc

and the idiots still claimed he was able to make his own decisions and sent

him back home.. I think not!!!! He would go out and leave the upstairs

door wide open and tv going.. once I caught him spitting on people off the

porch.... he would scream at me when I wanted the scooter, which he had

originally bought for me. He had me so scared I was having 20 panic attacks

a day or more when I was home alone with him when Mum was at work. It ended

up with the door leading down here having a lock put on which you needed a

key to open... I had my side of the door key and Mum had her side which was

on her key ring, so he could not come down again. I felt like I was in jail

which does not help anyone with panic. The last time I saw him was in April

when I got back from TN because of the kidney stones. He seemed to perk

right up and had the sparkle in his eye when he saw me and then he seemed to

go back to his lost world. I am praying (and please anyone who prays please

come into agreement with me) that Dad will not get nasty on me. We all know

what stress does to our fibro.. I don't know if Mum has told him about my

fibro and the other stuff.... maybe if he knows he will be kinder... the Drs

said when he had his strokes it reversed his emotions... so when he wants to

laugh he cries and visa versa. I love him so much and he was my Dad not the

idiot sperm donor who helped in my creation. He told me at 18 that he

couldn't be in public with me cause I embarrassed him as a man. We have not

spoken since then... I cannot handle that crap and won't. My Dad is the one

in the nursing home and from the time I was 13yrs old. He and I have always

been very close. I am the only girl and so he was the man who built me 2

basement suites (or some call it apartments) since we have moved from our old

house. He wanted me home til I married. I have been praying for Dad for

7yrs that GOD would take Dad home cause he is lingering not living anymore.

Sorry everyone but now cryin... this is so hard to see him hurting like he is

with worn out hips and stuff.. he is now permanently in a wheelchair.

I am sorry this got so long, it wasn't my intention..

Angel Hugs + Love

[Guest guest]

Hi , please tell me more about your different diseases and what the

meds are for....y'all will have to bear with me as I am very new to alot of

this lingo. You have such a wonderful outlook. I am very proud for you and

whoever is giving you the emotional support that you need to keep your

spirits high.

Shay, Max, Samson, and all of the rescue crew...

(SamsonI, Walter, Ralph, Jake, Tina Marie, Sebastian, Bogie, Curly, and Bear)