NEw Member

[Guest guest]

New Member

> Hi!, and thank you for your introduction.

>

> I have been suffering with what my shrink has diagnosed (last week)as

Fibromyalgia for five years now. It has steadily gotten worse through the

years.

> I am in the fetal stage with the diagnosis as my primary doc has no

compassion whatsoever, and has told my Shrink that it is all in my head and

that I am trying to get narcotics.

> Well, let me tell you that after coming home from my Shrink who graciously

shed a new light on my life with at least a diagnosis, my loving husband has

checked out numerous books and in every one of them we have read, it all

points to Fibromyalgia! Sometimes I don't want to read about it and hope

that if I don't learn more about it, that I will get better. Sometimes with

the discoveries that we find in these books, I feel better that there is a

legitimate name to all of the things that I have been going through, and

sometimes I just want to cry because I don't want to have such a weakness. I

always thought of myself as a strong person, and this seems to be knocking

me down pretty hard.

> Not to mention the doctor who mistreated me for nearly five years.

> I just changed doctors with the help of my shrink, and hope he is as

compassionate as the shrink.

> To top it all off, my last doc phoned my shrink and yelled at her, telling

her that I am a hypochondriac.

> I feel like it is almost hopeless to get a complete diagnosis and good

healthcare since I have Dr. Jekyl (my old doc) calling and yelling at the

ones who are trying to give me the benefit of the doubt.

> I can assure you that the pain is very real in that I cannot get out of

bed without the help of medicine... ANY medicine, that would help.

> If there is someone out there to support me with some sound advice, I

would greatly appreciate it as I am in a great deal of pain and have someone

who is trying to destroy my good name (I have NEVER done illegal drugs, and

don't intend to).

> I am very skeptical about the healthcare system and have tried just about

everything.

> Please help if you can.

> I am truly grateful to all of you and my wonderful husband who signed me

up for this sight.

>

> Sincerely,

>

>

>

>

>

[Guest guest]

New Member

> Hi!, and thank you for your introduction.

>

> I have been suffering with what my shrink has diagnosed (last week)as

Fibromyalgia for five years now. It has steadily gotten worse through the

years.

> I am in the fetal stage with the diagnosis as my primary doc has no

compassion whatsoever, and has told my Shrink that it is all in my head and

that I am trying to get narcotics.

> Well, let me tell you that after coming home from my Shrink who graciously

shed a new light on my life with at least a diagnosis, my loving husband has

checked out numerous books and in every one of them we have read, it all

points to Fibromyalgia! Sometimes I don't want to read about it and hope

that if I don't learn more about it, that I will get better. Sometimes with

the discoveries that we find in these books, I feel better that there is a

legitimate name to all of the things that I have been going through, and

sometimes I just want to cry because I don't want to have such a weakness. I

always thought of myself as a strong person, and this seems to be knocking

me down pretty hard.

> Not to mention the doctor who mistreated me for nearly five years.

> I just changed doctors with the help of my shrink, and hope he is as

compassionate as the shrink.

> To top it all off, my last doc phoned my shrink and yelled at her, telling

her that I am a hypochondriac.

> I feel like it is almost hopeless to get a complete diagnosis and good

healthcare since I have Dr. Jekyl (my old doc) calling and yelling at the

ones who are trying to give me the benefit of the doubt.

> I can assure you that the pain is very real in that I cannot get out of

bed without the help of medicine... ANY medicine, that would help.

> If there is someone out there to support me with some sound advice, I

would greatly appreciate it as I am in a great deal of pain and have someone

who is trying to destroy my good name (I have NEVER done illegal drugs, and

don't intend to).

> I am very skeptical about the healthcare system and have tried just about

everything.

> Please help if you can.

> I am truly grateful to all of you and my wonderful husband who signed me

up for this sight.

>

> Sincerely,

>

>

>

>

>

[Guest guest]

Isn't it nice to know its someone else who is wrong and not you.....and that

you aren't crazy.??? those were my two most favorite minutes after I found

this list.....I was sorry that I had to find this list ....and anyone had to

be here...but I was so glad that I wasn't alone in my misery (and I even had

friends with this affliction and STILL thought it was ME until this list

made it solid for me) and I was so relieved that if I was crazy (and I am

absolutely crazy as I have four special needs kids) at least it was for a

legitimate reason and not over this......so welcome to the " not crazy and in

pain legitimately " group...I don't come here everyday but I am here mentally

a lot because I KNOW now that I'm okay, it's the ones who disbelieve me that

have the problem....Dee in Va.

New Member

> Hi!, and thank you for your introduction.

>

> I have been suffering with what my shrink has diagnosed (last week)as

Fibromyalgia for five years now. It has steadily gotten worse through the

years.

> I am in the fetal stage with the diagnosis as my primary doc has no

compassion whatsoever, and has told my Shrink that it is all in my head and

that I am trying to get narcotics.

> Well, let me tell you that after coming home from my Shrink who graciously

shed a new light on my life with at least a diagnosis, my loving husband has

checked out numerous books and in every one of them we have read, it all

points to Fibromyalgia! Sometimes I don't want to read about it and hope

that if I don't learn more about it, that I will get better. Sometimes with

the discoveries that we find in these books, I feel better that there is a

legitimate name to all of the things that I have been going through, and

sometimes I just want to cry because I don't want to have such a weakness. I

always thought of myself as a strong person, and this seems to be knocking

me down pretty hard.

> Not to mention the doctor who mistreated me for nearly five years.

> I just changed doctors with the help of my shrink, and hope he is as

compassionate as the shrink.

> To top it all off, my last doc phoned my shrink and yelled at her, telling

her that I am a hypochondriac.

> I feel like it is almost hopeless to get a complete diagnosis and good

healthcare since I have Dr. Jekyl (my old doc) calling and yelling at the

ones who are trying to give me the benefit of the doubt.

> I can assure you that the pain is very real in that I cannot get out of

bed without the help of medicine... ANY medicine, that would help.

> If there is someone out there to support me with some sound advice, I

would greatly appreciate it as I am in a great deal of pain and have someone

who is trying to destroy my good name (I have NEVER done illegal drugs, and

don't intend to).

> I am very skeptical about the healthcare system and have tried just about

everything.

> Please help if you can.

> I am truly grateful to all of you and my wonderful husband who signed me

up for this sight.

>

> Sincerely,

>

>

>

>

>

[Guest guest]

I love your letter dee we have all been there done that. It feels so good

when we finally know it is not all in are heads.

>

>Reply-To: egroups

>To: < egroups>

>Subject: Re: New Member

>Date: Mon, 23 Oct 2000 18:13:47 -0400

>

>Isn't it nice to know its someone else who is wrong and not you.....and

>that

>you aren't crazy.??? those were my two most favorite minutes after I found

>this list.....I was sorry that I had to find this list ....and anyone had

>to

>be here...but I was so glad that I wasn't alone in my misery (and I even

>had

>friends with this affliction and STILL thought it was ME until this list

>made it solid for me) and I was so relieved that if I was crazy (and I am

>absolutely crazy as I have four special needs kids) at least it was for a

>legitimate reason and not over this......so welcome to the " not crazy and

>in

>pain legitimately " group...I don't come here everyday but I am here

>mentally

>a lot because I KNOW now that I'm okay, it's the ones who disbelieve me

>that

>have the problem....Dee in Va.

> New Member

>

>

> > Hi!, and thank you for your introduction.

> >

> > I have been suffering with what my shrink has diagnosed (last week)as

>Fibromyalgia for five years now. It has steadily gotten worse through the

>years.

> > I am in the fetal stage with the diagnosis as my primary doc has no

>compassion whatsoever, and has told my Shrink that it is all in my head and

>that I am trying to get narcotics.

> > Well, let me tell you that after coming home from my Shrink who

>graciously

>shed a new light on my life with at least a diagnosis, my loving husband

>has

>checked out numerous books and in every one of them we have read, it all

>points to Fibromyalgia! Sometimes I don't want to read about it and hope

>that if I don't learn more about it, that I will get better. Sometimes with

>the discoveries that we find in these books, I feel better that there is a

>legitimate name to all of the things that I have been going through, and

>sometimes I just want to cry because I don't want to have such a weakness.

>I

>always thought of myself as a strong person, and this seems to be knocking

>me down pretty hard.

> > Not to mention the doctor who mistreated me for nearly five years.

> > I just changed doctors with the help of my shrink, and hope he is as

>compassionate as the shrink.

> > To top it all off, my last doc phoned my shrink and yelled at her,

>telling

>her that I am a hypochondriac.

> > I feel like it is almost hopeless to get a complete diagnosis and good

>healthcare since I have Dr. Jekyl (my old doc) calling and yelling at the

>ones who are trying to give me the benefit of the doubt.

> > I can assure you that the pain is very real in that I cannot get out of

>bed without the help of medicine... ANY medicine, that would help.

> > If there is someone out there to support me with some sound advice, I

>would greatly appreciate it as I am in a great deal of pain and have

>someone

>who is trying to destroy my good name (I have NEVER done illegal drugs, and

>don't intend to).

> > I am very skeptical about the healthcare system and have tried just

>about

>everything.

> > Please help if you can.

> > I am truly grateful to all of you and my wonderful husband who signed me

>up for this sight.

> >

> > Sincerely,

> >

> >

> >

> >

> >

[Guest guest]

Welcome to the group ~I understand all to well what you have

mostly gone thru..I have recently been dx with Fms-Cfs just after my

move to Fl 6 months ago...I knew some really agonizing things were

going on un-exsplainable when i lived 11 yrs prior in Az; but all the

Drs could find nothing and tried to treat the symptoms singally and

the rest they purposly overlooked without a mention to me or other

drs because they were stumped with mystery i guess(not all Drs study

up on Fms..As you know;Drs usually study up on their majors and

general basics...Well in Az; after 10 yrs of *intense* pain and

disability comming fast;the Az Drs put me on a safe pain killer

(Ultram) Az state also feels you are in for getting narcotics for

addiction purposes so they rarely give them to patients;.. no less

the poor people in Er rooms there...Anyhow~Now that i'm in a whole

different state on the East coast..the Drs seem very well informed on

Fms;with many specializing in Fms-Cfs...and if you tell a Dr here you

think they should consider you having Fms..They will study up more on

it an present you with the medical options on the next visit(this is

my personal findings and the few Drs i saw brought Fms up BEFORE i

did)I'm not nearly better by far but i am on medician trails i never

had offered to me in Az...they are the standard ones so far but it's

a new hope for me now...I looked into a copy of my medical records 20

yrs back to find info on an old anesthesia report and read at least

100 pages of things i was seen for in the past; with the drs comments

being*of hypochiandria's forms* but after reading thru these full

detailed reports giving symptoms and any findings; I noticed EVERY

symptom of 20 yrs were symptoms listed in a Fms book i read and

talking to New Drs and new Fms friends;it now all made much sense to

me and very clear.There was ONE dr who thought something else was

going on back then in Maine and he did not agree with the other Drs

comments about me since i had also recovered from cancer,gallbladder

removal and other pertinant medical diseases i still am chronically

being treated for today;I had alot on my plate then to just *dismiss*

all those symptoms..but as i said earlier;I now defenantly see the

symptoms were progressivly of Fms-Cfs!!It is better talked about

these days and Drs are getting the info on Fms now with more

understandings to treatment courses to try.Sorry i rattled on so long

but i did think i felt much as you did..and yes;they tried to label

me with other mental illness's i did not have due to Drs passing me

off as crazy to avoid answers they did not have~ Best wishes to you

and i'm glad you found this group!!~ Mitzi

[Guest guest]

Mitzi.... hi there girl!!!!!

I can understand everything you are saying and then some. I have had a

childhood of foot surgeries, a cleft palate (no hair lip) repair at 20months

my Mum thinks, at 14yrs had appendix removed, more foot surgeries thru teens

and 20s, at 19yrs 3/4 kidney and staghorn(very large stones which clump

together) removed and a month later my gallbladder was yanked too. My scar

is called " the zipper " cause it is so long. LOL Inbetween all this mess a

lot of pneumonia, infections etc. It was just one thing after another and

nobody could say what or why this was happening.

I can trace the fibro back to 15yrs when I had such pains in the palms of my

hands that even a cold cloth made me scream. I could not walk either and had

to be carried to and from the bathroom. This went on for a month and then it

went away. As I got older I would find that if I had something big to do

like planning Mum's 50th bday once it was over I slept for 2days. I never

could get enough sleep to feel " semi " normal. I would go to a concert and

sleep for 2days.. This pattern went on for years until I was diagnosed with

fibro and then it all fit together.

It took me a long time to find the wonderful Dr I have now... it is also cool

that she is around my age. I no longer look at the back of the other guys

shirt and being told " I refuse to give you pain meds " ... that statement got

him fired. I have learned to finally take control over my own health care,

which for me was something because I am of the generation (am 39yrs) where

Drs were to be believed.

My new Dr has many fibro patients and we are working on this obstacle

together.... this is so refreshing to take info from the group or off the

net and she sits with me and we go over it together. I am due for a physical

and I asked her how I can do this now... for one my worst trigger points for

me are in the lumbar (I call it the back of my hips) area and she barely

touched me and I was almost screaming... I cannot lay flat on my back.. the

second problem is that I have trouble somedays getting dressed, which is why

I live in sweatpants or flannel pants and tshirts... she is so sweet and she

said she would help me get dressed and she would go as fast as she could with

the pap test and then get me back up sitting. This blew my mind let me tell

you.... LOL

I had to have the tubes in my ears redone and I told him about the fibro and

he had my on my back for all of 4mins and he was done... he is a very kind

man as well.. Have been going to him for years once I was diagnosed with the

TMJ (temporomandibular joint or jaw is out of wack is the easy term LOL) and

I was having trouble hearing mostly in my right ear. Well, my normal tubes

had been blocked off long enough by my jaw being messed up (most likely since

birth he believes which could be since I had the cleft palate) Anyway I was

first put in braces which I had fun with and did the matching color bands to

the holiday coming up eg: purple and yellow for Easter,.. The Orthodontist

thought it was cool since most adults try to hide them. I saw the ENT and he

suggested the tubes in my ears and I agreed... it felt like I was underwater

sort of.. the first time I had the tubes everything was so loud it was

incredible. The tubes are redone every 8-10months unless they fall out

sooner. This last time I went 10 1/2 months which is good. Oh, as for my

TMJ after 2yrs in braces I finally had the surgery and my jaw remains

straight and my teeth have stayed straight as well. I still grind my teeth

at night and I am in the process of getting a new mouth guard. I have

actually broken teeth before while I was asleep grinding away. My mouth is

worth about $10,000 and I cannot afford to break anymore teeth. I have a

very small mouth and I opted that my very back teeth be removed because there

was no way they could be worked on. So, we did the right thing... if the

tooth was not needed it came out. Even my Dentist agreed with my choice.

I know that exercise is supposed to help the fibro pain etc but since I have

primary lymphedema I cannot exercise. I also have pericarditis and on xray

my heart is almost 3/4 of my chest area. The fluid around my heart or in the

lining of the heart is aggtivated by the lymphedema. I used to ride my

exercise bike 1hr/day for years until I noticed my lower legs were getting

bigger. The back of my leg above my knee touched the bottom of my leg

preventing me from the proper motion of riding the bike. I later found out

that due to the lymphedema the excess fluid and toxins were not being removed

in the normal fashion. The excess of fluids etc was moving with gravity and

that is my lower legs. The tissue in the lower legs has gotten to the point

that it feels hardened. There is 4 stages of lymphedema I have read... I

believe I am in stage 4 because if you can push your finger into the swelling

and it leaves a mark this is called " pitting " . I have never been able to get

it to pit. Today I cannot even wear socks because my lower legs are so big

and I don't have a defined ankle anymore, which prevents me from also wearing

shoes and boots etc. I live in clogs and thongs and everyone I know could

care less and if I am comfortable that is what we look for. LOL the first

official function I went to when I worked at the Country Music Association in

1994-95 was the Christmas meet and greet. I had forced myself into the one

pair of shoes I own.. Everyone wanted to know if something was wrong.. I

looked confused and said nothing is wrong why? They said " you have

shoes on " ... I laughed so hard it was too funny. I always wanted a pair of

cowboy boots as a kid and now I have seen clogs that you can get handpainted

on the tops... and I am thinking of getting a pair. Another good thing about

clogs is that they are made wider and I have always had wide feet.

Well, I should get off the soap box... sorry this is so long... guess I was

just full of this stuff I needed to share. I just want everyone to know

never to give up... I know some days feel like torture with the fibro but

there is always a tomorrow coming.

Angel Hugs

aka Spark

[Guest guest]

Hi Mitzi, and thank you for your compassionate reply;

I too was on Ultram and the shrink I'm seeing previously worked with

mentally ill patients for twenty years. She was shocked that my Quack (last

doc) had me on Ultram.

The shrink said that through many personal experiences, she has seen that it

sort of made people nuts. Now for me this turned out to be true. I was

apprehensive on taking the drug anyway with the research my husband and

myself did on the internet. But thinking that my doc knows what she was

doing (she's very aggressive and dominant), we gave it a chance.

Well to tell you what happened next was quite an eye-opener. I went in to

see my shrink because I felt that I was very depresses and she took me off

the Ultram and put me on Vicodin (in which I have been on before, so I know

the side effects). Immediately the day after, I felt like I was being

shocked by an electric fence with every move I made. This lasted for five

days and then disappeared. I also have regained more of my memory back and

don't feel as depressed as I had felt before.

I don't want to offend anyone using the drug, but I was so appalled by the

lack of compassion that my last doc had, and she wouldn't listen to me when

I would call in pain. She would say " Just take your Ultram " .

Ultram made me feel better in some cases and it calmed me down and eased my

pain to a point, but I never knew the side effects could be so devastating!

I couldn't even remember my name some of the times.

I only pray that all of us in seeking pain management, don't fall victim to

meds out there that put us in the category of guinea pigs.

I know most of you have probably have moved on beyond this point, but I want

to thank all of you for lending a compassionate ear, and hope that we all

bet better soon!!

Take care & God Bless you all!!

Most Sincerely,

Re:New member

> Welcome to the group ~I understand all to well what you have

> mostly gone thru..I have recently been dx with Fms-Cfs just after my

> move to Fl 6 months ago...I knew some really agonizing things were

> going on un-exsplainable when i lived 11 yrs prior in Az; but all the

> Drs could find nothing and tried to treat the symptoms singally and

> the rest they purposly overlooked without a mention to me or other

> drs because they were stumped with mystery i guess(not all Drs study

> up on Fms..As you know;Drs usually study up on their majors and

> general basics...Well in Az; after 10 yrs of *intense* pain and

> disability comming fast;the Az Drs put me on a safe pain killer

> (Ultram) Az state also feels you are in for getting narcotics for

> addiction purposes so they rarely give them to patients;.. no less

> the poor people in Er rooms there...Anyhow~Now that i'm in a whole

> different state on the East coast..the Drs seem very well informed on

> Fms;with many specializing in Fms-Cfs...and if you tell a Dr here you

> think they should consider you having Fms..They will study up more on

> it an present you with the medical options on the next visit(this is

> my personal findings and the few Drs i saw brought Fms up BEFORE i

> did)I'm not nearly better by far but i am on medician trails i never

> had offered to me in Az...they are the standard ones so far but it's

> a new hope for me now...I looked into a copy of my medical records 20

> yrs back to find info on an old anesthesia report and read at least

> 100 pages of things i was seen for in the past; with the drs comments

> being*of hypochiandria's forms* but after reading thru these full

> detailed reports giving symptoms and any findings; I noticed EVERY

> symptom of 20 yrs were symptoms listed in a Fms book i read and

> talking to New Drs and new Fms friends;it now all made much sense to

> me and very clear.There was ONE dr who thought something else was

> going on back then in Maine and he did not agree with the other Drs

> comments about me since i had also recovered from cancer,gallbladder

> removal and other pertinant medical diseases i still am chronically

> being treated for today;I had alot on my plate then to just *dismiss*

> all those symptoms..but as i said earlier;I now defenantly see the

> symptoms were progressivly of Fms-Cfs!!It is better talked about

> these days and Drs are getting the info on Fms now with more

> understandings to treatment courses to try.Sorry i rattled on so long

> but i did think i felt much as you did..and yes;they tried to label

> me with other mental illness's i did not have due to Drs passing me

> off as crazy to avoid answers they did not have~ Best wishes to you

> and i'm glad you found this group!!~ Mitzi

>

>

>

>

> ~*~CHAT TIME:~*~

> MON & THURS

> Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM

> Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

> WHERE: /chat/

>

>

> VIP

> If there is a problem on this list notify.

> Co-Moderator

> The_List_Owner@...

>

>

> Add or view links about fibro/CFS.

> http://www.onelist.com/links/

>

> TO unsubscribe.

> Go to: http://www.onelist.com/ to this list and unsub from it.

>

>

>

>

>

>

[Guest guest]

Ultram helps me a lot. Different things help different people.

Peggy

I too was on Ultram and the shrink I'm seeing previously worked with

mentally ill patients for twenty years. She was shocked that my Quack (last

doc) had me on Ultram.

[Guest guest]

Welcome to the group!!!

Terri

[Guest guest]

De De:

Thanks for introducing yourself. Welcome to this group! It sounds like

you've been through a lot.

Peggy

Hi and gentle hugs to (((all))). I'm new to this particular site and

just wanted to introduce myself. You can read my story at:

www.mybattlewithfibromyalgia.homestead.com/MYBATTLEWITHFIBROMYALGIA.ht

ml

I

[Guest guest]

....excuse me...did I MISS SOMETHING?

....disability for " JUST " !!!!!!! fibro?

....let me go put a sock in my mouth.

Colette, S. Florida...also filed for disability for " JUST " fibro

[Guest guest]

....excuse me...did I MISS SOMETHING?

....disability for " JUST " !!!!!!! fibro?

....let me go put a sock in my mouth.

Colette, S. Florida...also filed for disability for " JUST " fibro

[Guest guest]

Welcome Sandy,

I am and I am 23 yo. I have had CFS and Fibro for 4 years now. I also

have a fainting disorder that kept me down until a year ago when it was

discovered and treated. Now I am doing well and am even working for the

first time since I got sick.

Glad you are here.

Bill & Sandy McKee wrote:

> Hello All,

> My name is Sandy, and I live in Texas and am 54 years old. My doctor

> just diagnosed me with Fibromyalgia/CFS. I have suffered with over all

> pain now for about 3 years, and having diabetes for many years, my

> doctor had thought my pain was caused by neuropathy. Im sure my

> neuropathy plays a part, but the pain from the fibromyalgia is much more

> intense. My poor hubby cant even touch me anywhere on my body without it

> causing pain. Im looking for help and support. I belong to several other

> onelist groups, and have found friends and supporters in all of them.

> I'm expecting two new grandbabies in Jan. and Feb. They are my first and

> I am overjoyed, but one family lives on the west coast, and one on the

> east. This means a lot of traveling to visit with my new grands, and

> Lord help me, I don't know if the pain from this disease will allow me

> to do much traveling. Anyway, I look forward to reading all of your

> post, and hope that somehow we can help each other.

> Thanks,

> Sandy in Texas

>

>

> List owner Bierman

>

> Add or view webpage links about Fibromyalgia/CFS.

> http://www.onelist.com/links/

>

> ~*~CHAT TIME:~*~

> MON Night

> TIME:Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

> WHERE: /chat/

>

> To write the list owner: The_List_Owner@...

>

> TO unsubscribe.

> Go to: http://www.onelist.com/ to this list and unsub from it.

[Guest guest]

Welcome Sandy!

I'm 47 years old and have had CFS and Fibromyalgia since 1990. I work part

time in my home and also am on SSD. I have been on SSD for about 4 years.

I enjoy this list a lot and find really good people here and also lots of

love and support. I'm glad that you've joined us. I'm so happy for you

that you have the grandchildren coming. That is wonderful.

Peggy

[Guest guest]

Peggy

You are on SSD for just CFS and fibromyalgia?

=^..^= Tami =^..^=

[Guest guest]

....excuse me...did I MISS SOMETHING?

....disability for " JUST " !!!!!!! fibro?

....let me go put a sock in my mouth.

Colette, S. Florida...also filed for disability for " JUST " fibro

Hi Colette:

I'm pretty sure that Tami wasn't minimizing fibro and CFS, but rather trying

to find out what they took into account when they awarded disability to me.

Peggy

[Guest guest]

....excuse me...did I MISS SOMETHING?

....disability for " JUST " !!!!!!! fibro?

....let me go put a sock in my mouth.

Colette, S. Florida...also filed for disability for " JUST " fibro

Hi Colette:

I'm pretty sure that Tami wasn't minimizing fibro and CFS, but rather trying

to find out what they took into account when they awarded disability to me.

Peggy

[Guest guest]

Colette and Peggy

I didnt mean any thing by it. I was just asking. Because I am coming up to a

review and I am on SSD for lung problems, back problems. Although my one lung

disease seems to be better as my doctor says. I was diagnosed with Fibromyalgia,

Pulmonary fibrosis and IBS since I have been on SSD. I called and asked them if

i am suppose to report if i get worse, and she said no they dont care if you are

worse or diagnosed with something else. They just want to know if u are better.

So I am kinda freaking about the review next year. If they will take the other

problems i have now into consideration. Or will I have to start over. When I got

it the first time I didnt have a lawyer. I guess I didnt need one, because my

doctor fought for me.. Funny thing now is that I dont think he realizes I am on

SSD still.

=^..^= Tami =^..^=

[Guest guest]

Colette and Peggy

I didnt mean any thing by it. I was just asking. Because I am coming up to a

review and I am on SSD for lung problems, back problems. Although my one lung

disease seems to be better as my doctor says. I was diagnosed with Fibromyalgia,

Pulmonary fibrosis and IBS since I have been on SSD. I called and asked them if

i am suppose to report if i get worse, and she said no they dont care if you are

worse or diagnosed with something else. They just want to know if u are better.

So I am kinda freaking about the review next year. If they will take the other

problems i have now into consideration. Or will I have to start over. When I got

it the first time I didnt have a lawyer. I guess I didnt need one, because my

doctor fought for me.. Funny thing now is that I dont think he realizes I am on

SSD still.

=^..^= Tami =^..^=

[Guest guest]

Colette and Peggy

I didnt mean any thing by it. I was just asking. Because I am coming up to a

review and I am on SSD for lung problems, back problems. Although my one lung

disease seems to be better as my doctor says. I was diagnosed with Fibromyalgia,

Pulmonary fibrosis and IBS since I have been on SSD. I called and asked them if

i am suppose to report if i get worse, and she said no they dont care if you are

worse or diagnosed with something else. They just want to know if u are better.

So I am kinda freaking about the review next year. If they will take the other

problems i have now into consideration. Or will I have to start over. When I got

it the first time I didnt have a lawyer. I guess I didnt need one, because my

doctor fought for me.. Funny thing now is that I dont think he realizes I am on

SSD still.

=^..^= Tami =^..^=

[Guest guest]

i would also like to know if they accept u on disability if u just have fms

and cfs or do u have to have added health problems to

qualify???-ALA-aknaynay98@... or @hotmail

[Guest guest]

Missy,

I have lung problems and when i get what the doctor calls Pleuresy I use a

heating pad to help the pain. U can try that.

=^..^= Tami =^..^=

[Guest guest]

Sandy,

Welcome to our family. This group is great. They are always here to listen,

to share and to comfort all of us.

Congratulations on your upcoming little ones! That is great!

I am 33 and have had FM for around 5 years, maybe longer. I am on SSD and am

trying to venture out on a limb and sell my photos that I take with my

digital camera. I am nervous about it, but would like to " do " something to

have fun. I can do it at my pace which is good.

I am having trouble with my daughter who is a teenager, but only 10 (well 11

her bday is Dec 6th) she has been saying when she gets mad, you don't work,

all you do is sit around. But I am sure this will stop soon, she is in the

phase were your parents are embarrassing and all that stuff. She is a great

kid though, so it is not bad, but it still hurts when she says that. She

used to think that I was going to die from this FM, so this is better I guess

Take care and Welcome!

Sending Comfort and Peace

Janice

" I wish we could change our dials to AM instead of FM!!! "

[Guest guest]

thekidlives@... writes:

Does anyone know any suggestions to help ease the pain in my neck and

rib cage.

Missy,

The only suggestion I can come up with is Heat. I use heat all the time for

many of my " spots " . I also am very lucky to own a spa (retroactive pay for

SSD paid for it) and this helps. I am not sure if heat works for many

people, but cold made it worse for me. Also I use the " rice " bags, they are

heated in the microwave and then places on the area of pain. They are made

of material and have rice or corn or sand in them. They are like a heating

pad, but are considered moist heat.

I also have used a TENS unit, but lately it makes me figity more, so I tend

to use it less, but still do.

Sometimes I forget that I can help relieve my pain by the above mentioned

ways and I live with it, I forget many things.

Hope this helps.

Sending Comfort and Peace

Janice

" I wish we could change our dials to AM instead of FM!!! "

[Guest guest]

Janice

what is a TENS unit?

=^..^= Tami =^..^=