Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 , I don't have RP (I lurk to irritate ) but I do have multiple autoimmune diseases and I take methotrexate, .4 cc every Friday by IM injection. Side effects are that it makes me sick as a dog but we increased my folic acid to 2 mg a day (from 1 mg although my doc swears there is no scientific evidence that an increase helps LOL) and I haven't been sick in 2 weeks now. One note about ambien: after I had been taking it for 8 months and a neurologist was checking me due to short term memory loss, I discovered that it is only meant for short-term use no more than 5-6 weeks max. Please check with your doctor on his views about this (all docs vary) and see if he is aware of any side effects from this. I loved it though. Nothing else worked and within 30 minutes of taking it, I was snoozing like a baby! No lingering after-effects the next day either. Christy PS Do you have cats or dogs by any chance? <evil grin> MethotrexateFrom: RCColloran@... From CGood morning to all. I would like to know what strength and dosage of meth you are on, if you take tabs or injections, do you split the dose every 12 hours or take it all at once? My dr is adjusting my dosage and I was just curious how some of you took it and what side effects if any you experienced. The thrush is getting better, but now I have a real sore throat and my inner ears are hurting and have pressure. P I know you said you had ear problems. I don't know if this is a cold or a flare. I know throat problems should not be ignored, but I don't want to make this bigger than it is. The dr is decreasing my xanax (for sleep) and put me on Ambian. I haven't slept in two days and my body feels like its been run over by a truck. Looks like it too lol. Thank for any info you can give me. I feel like I've found a second family since I've found this group. Thanks for just listening. Much Love and hugs 3x + / wk 1-2x / wk 0-1x / wk hi and welcome. maybe we can come up with answers that our doctors can't Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 To Christy, Thanks for the info. I'm taking 15mg meth per week. Today I started splitting the dose to 3 am and 3 pm. I'm sick as a dog today (yes, I have a dog)lol feel like joining her in her bed. The ambien hasn't worked at all yet. Would love to get some sleep. I've had short term memory loss for many years so guess I wouldn't know if I am being affected now lol. Wouldn't remember. How much are or were you taking and is there another drug that might work? Thanks for all your help. What exactly is the disease you have? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 hi all, i have a quick question for the group regarding methotrexate.....my mom is on methotrexate for her rhuemetoid arthritis and she feels it isnt doing the trick any longer, she is on only 5mg a week (taken at 2.5 mg a day, that she takes twice weekly) i am just curious what the highest dosage is that you can take orally so i can tell my mom so she can tell her dr. (yup, she has one of those doctors that she has to tell what she needs (actually beg) any input would be greatly appreciated. thanks again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 , I'm on 15mg weekly of meth. I had to work up form 7 1/2 to 15mg, increasing one pill each week. It took me a lot longer because I had side effects. This is only my second week at 15mg. Today I split the dose and took 3 am and will take 3 pm. got sick today. Hope this helps. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 do you take that orally? cuz my mom wont take a shot, (even if i give it to her) which i'm a pro at because i have to give myself an IM injection once weekly for my MS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 Yes, I take it orally, but I would have no problem giving it IM, if it wouldn't make me sick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 Do you take folic acid? I have rheumatoid arthritis, osteoarthritis, ankylosing spondylitis, lupus, fibromyalgia and anything else they can tag me with but I won't let 'em tell me anymore LOL I have no idea what the highest dose is but I started on the shots even at the lower dose because I was so sick while taking some other meds. We just skipped that phase. I know at a certain stage, the side effects are worse and you should go to injections rather than pills but I'm afraisd I can't tell you how much that is. Re: MethotrexateFrom: RCColloran@... , I'm on 15mg weekly of meth. I had to work up form 7 1/2 to 15mg, increasing one pill each week. It took me a lot longer because I had side effects. This is only my second week at 15mg. Today I split the dose and took 3 am and will take 3 pm. got sick today. Hope this helps. C hi and welcome. maybe we can come up with answers that our doctors can't Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 I was on 25 mgs of methotrexate a week taken all at once. I am now on the injections. side effect wise for me in the beginning it was the worse, nausea (not throwing up just upset) and real tired but in a few months the symptoms went away. love, hugs and hope Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 In a message dated 03/05/2000 8:05:25 PM Eastern Standard Time, RCColloran@... writes: << What exactly is the disease you have? >> don't let Christy fool you she had mental illness??? now really she has a ton of things wrong with her and she is a really terrific person. she is also the webmistress for the web site we have. she makes all the changes and adjustments. also if your interested if you typw a brief bio of your symptoms and things a my story type of thing that will be added to the web site. love, hugs and hope Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 the highest recommended dose is 25mgs weekly. love, hugs and hope Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 <<now really she has a ton of things wrong with her >> Jeez Angie............. Re: MethotrexateFrom: rpawareness@... << What exactly is the disease you have? >>don't let Christy fool you she had mental illness??? now really she has a ton of things wrong with her and she is a really terrific person. she is also the webmistress for the web site we have. she makes all the changes and adjustments. also if your interested if you typw a brief bio of your symptoms and things a my story type of thing that will be added to the web site.love, hugs and hopeAngie hi and welcome. maybe we can come up with answers that our doctors can't Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 Hi- Pete takes 20mg of meth every Wednesday--he takes it with supper..he has been quite fortunate that he does not experience any side effects.Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 Not sleeping interfers gatly withy ability to cope ith pain. At one ime was on a cycle where I would not sleepfor three days ad ten crash for 24-48 hours. it wa a nightmare. that iswhen I was so very sick, and i was tld how terrible slleep deprivation was. Had a sleep stud and they found I ad severe sleep apnea and narcolepsy. pleae et it asnarmal as pssilbe and god luck love denise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2000 Report Share Posted March 7, 2000 hi again, quick question, what is the folic acid used for when prescribed in conjuction with the methotrexate??? thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2000 Report Share Posted March 7, 2000 It helps with the upset stomach, nausea and vomiting. Re: MethotrexateFrom: gabbyoreo@... hi again, quick question, what is the folic acid used for when prescribed in conjuction with the methotrexate??? thanks, hi and welcome. maybe we can come up with answers that our doctors can't Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2000 Report Share Posted March 7, 2000 From C Hi , My dr told me folic acid lessens the side effects of metho.(Could have fooled me)lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2000 Report Share Posted March 7, 2000 I currently take 25mg of methotrexate once a week. His(my doctor) cut off point is 30. He is considering splitting the dose or putting me on injections. Seems to be a number of options. Ros Re: Methotrexate > From: gabbyoreo@... > > hi all, i have a quick question for the group regarding methotrexate.....my > mom is on methotrexate for her rhuemetoid arthritis and she feels it isn't > doing the trick any longer, she is on only 5mg a week (taken at 2.5 mg a day, > that she takes twice weekly) I am just curious what the highest dosage is > that you can take orally so i can tell my mom so she can tell her dr. (yup, > she has one of those doctors that she has to tell what she needs (actually > beg) any input would be greatly appreciated. thanks again. > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates > as low as 0.0% Intro APR and no hidden fees. > Apply NOW! > http://click./1/975/0/_/32049/_/952304816/ > ------------------------------------------------------------------------ > > hi and welcome. maybe we can come up with answers that our doctors can't Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2000 Report Share Posted March 9, 2000 To: and RP friends ================================================================================ Methotrexate Drug information for Methotrexate For the whole story, click here: http://www.intelihealth.com/IH/ihtIH/EMIHC000/8124/11620/214093.html (If your e-mail system doesn’t support hyperlinks, you can copy and paste the link into your web browser). ================================================================================ The information above from the InteliHealth web site was forwarded to you by . Please read through this entire message to find out how you can register with the InteliHealth site to get free health e-mails and access to the most up-to-date health information and resources. InteliHealth is The Trusted Source ® for health information. With over 4 million pages of s Hopkins-approved content, InteliHealth has become the health site of choice for millions of people world-wide. Visit our site at : <http://www.intelihealth.com> , and sign up for our free health e-mails! Just click on the “Free Health E-mail” link on the left side of the screen. Bookmark the site for quick access. If you are looking for health care products, we’ve got them too! Check out the InteliHealth Healthy Home Store at <http://www.intelihealth.com/store> Copyright InteliHealth Inc., 1999. All rights reserved. All information is intended for your general knowledge only and is not a substitute for medical advice or treatment for specific medical conditions. You should seek prompt medical care for any specific health issues and consult your physician before starting a new fitness regimen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 I have fibro also.....another alternative to the pred would be a tricyclic antidepressant...they are using this form of medication a lot now for fibro a drug called elavil if often prescribed, and they are having great response from it. Personally I cannot take tricyclics b/c they cause me to get headaches...so I do yoga, stretches, meditation, and when it gets truly horrible take vicodin. Massages on the Fibro "points" work also. Do you have all of the points?....if so, which ones are the worst for you, maybe I can give you some stretching ideas to ease some of your pain. Stacie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 I have fibro also.....another alternative to the pred would be a tricyclic antidepressant...they are using this form of medication a lot now for fibro a drug called elavil if often prescribed, and they are having great response from it. Personally I cannot take tricyclics b/c they cause me to get headaches...so I do yoga, stretches, meditation, and when it gets truly horrible take vicodin. Massages on the Fibro "points" work also. Do you have all of the points?....if so, which ones are the worst for you, maybe I can give you some stretching ideas to ease some of your pain. Stacie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 Jan - Thanks for your advice about the methotrexate. The doctor was planning on treating the sarc with it as well even before he diagnosed the fibro. He had mentioned it a couple of months ago. He says most people take it on Friday, but the weekend is the time with my family and I don't want to feel worse then. Since Im not working I thought I would take it on Mondays. The beginning of the week is the most quiet for me. I appreciate your help and kind words and I missed you while you were out of commission with your computer. Your compassionate ways always lit up the board. Luv, Debbie > Hi Debbie, > I started out with 10mg a week then it got raised to 15mg a week. With me i just chose a day and started taking it on that day every week. I was taking mine on wednesday but it tires me out so much and i have church on wednesday night i take it on thursdays now then i have thurs friday and saturday to recuperate before church on sunday cause it does make me feel more tired than usual but overall i feel like its helping the sarc in some ways tho too so i don't know you have to find what works for you. > I myself refused the pred when my pancreatitis was flaring up so i got the methotrexate and morphine cause all the other pain meds weren't working and i had just been in the hospital. > Give it a try it takes a while tho you won't feel anything for a while. > Take care and God Bless, > Jan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 Hi - Thanks for your advice on the Methotrexate. I was wondering if it did make a difference taking it at night or in the morning. As I said previously to Jan, I don't want to ruin my family time either. Thanks again. Luv, Debbie > Hi Debbie, > I am on methotrexate. I take 20mg. a week. I was taking it on Sat. morning, > but it makes me so weak and I feel so bad all weekend. So, now I am taking it > on Friday night. I thought maybe that would help me taking it at night > because I would be asleep. It did help the tiredness the next day some but I was > still tried. I start feeling better around Thursday then it starts all over > again. Good luck with it. > > [unable to display image] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 Hi Elodia - I was wondering about that as well - taking it at night.... I wondered how long the nausea would last, but I suppose it's different for every person. I will have to experiment. Thanks a lot, Luv, Debbie T. > Debbie, > When I was on methotrexate, I found it worked better for me to take > it at night. Seemed the nausea was a little less for me that way. I > just slept through it. > > Elodia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 Marla - I think I may have talked to you before about Methotrexate. (Little brain jolt!!) I can't believe how much support I have received on this subject! You are all the greatest friends! I don't know what I would do without this group. I would be totally alone. I have a feeling it's going to make me nauseous/or the big " D " because I've always had problems with meds and my stomach. So again its been helpful to hear from different people on when and how they take it, along with their reactions. Like I said previously, I think I'm going to take it at the beginning of the week as well. Thanks for your help, I appreciate it. Luv, Debbie T. > Debbie, > I am on Methotrexate, I was started on 5mgs, then 10 and now 15mgs once > a week, I take it Sunday night. I have the big " D " from it, at first > just once in awhile now all the time. Other then that, and being tired, > which who knows if that is the med or the Sarcoid, right, I don't have > any real problem with it. My " brain fog " has cleared up with it, and > the intense pain too. However the chronic pain seems to feel worse, but > I think it's just because the intense pain is no longer there to remind > me of how much worse the pain can be, it's late, and I think I am > rambling on, wait that's Rose's job! > Good luck, I will remember you in my thoughts, and prayers, > Marla > > . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 Sharon does Dr. B order imuran and/or methotrexate for neurosarcoid. What doses does he order. I am considering going to him. It's about an 8 hour drive from where I live. Judy Quote Link to comment Share on other sites More sharing options...
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